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Minority status, consumer outcomes, and service inputs in four States. 四个州的少数民族地位、消费者结果和服务投入。
Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[165:MSCOAS]2.0.CO;2
Roger J Stancliffe, K Charlie Lakin
Data from the Center for Outcome Analysis were subjected to independent secondary analysis involving comparisons by ethnic group of eight indicators of service quality for users of adult developmental disability services in four states. Ethnic group membership had very limited or no association with the consumer outcomes and service inputs evaluated. Where significant ethnic group differences were found, they were small, and there was no consistent pattern of a particular ethnic group doing better. These findings may relate to the substantial influence of developmental disability services in the lives of service recipients and to the effect of disability itself, in that adaptive behavior was strongly related to most consumer outcomes.
来自结果分析中心的数据进行了独立的二次分析,包括对四个州成人发展性残疾服务使用者的八项服务质量指标进行种族比较。种族群体成员与消费者结果和评估的服务投入之间的联系非常有限或没有联系。在发现显著的种族差异的地方,这些差异很小,并且没有特定种族表现更好的一致模式。这些发现可能与发展性残疾服务对服务接受者生活的重大影响以及残疾本身的影响有关,因为适应行为与大多数消费者的结果密切相关。
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引用次数: 5
Epidemiology of osteoporosis in women with cognitive impairment. 认知障碍女性骨质疏松的流行病学研究。
Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[203:EOOIWW]2.0.CO;2
Sarina Schrager

Osteoporosis is increasing due to the aging of the population. Women with cognitive impairment from childhood are at disproportionally high risk for osteoporosis and fractures. Suggested explanations for this increased risk include high use of anticonvulsant medications, lower peak bone densities, and higher rates of nonambulation. Down syndrome seems to be an independent risk factor for low bone density and fractures, presumably due to lower muscle tone. Here, the limited information available on the epidemiology of osteoporosis in the general population and in women with cognitive disabilities is briefly reviewed. Health care professionals should consider women with cognitive disabilities at high risk for osteoporosis and fractures. Studies are needed to determine screening regimens and prevention strategies appropriate for women in this population.

由于人口老龄化,骨质疏松症正在增加。儿童期患有认知障碍的妇女患骨质疏松症和骨折的风险高得不成比例。对这种风险增加的解释可能包括大量使用抗惊厥药物、较低的峰值骨密度和较高的不活动率。唐氏综合症似乎是低骨密度和骨折的独立危险因素,可能是由于肌肉张力降低。在这里,关于骨质疏松症的流行病学在普通人群和妇女认知障碍的有限信息简要回顾。卫生保健专业人员应考虑骨质疏松和骨折高风险的认知障碍妇女。需要进行研究,以确定适合这一人群中妇女的筛查方案和预防策略。
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引用次数: 23
Reductions continue in average daily populations of large state facilities; nearly 70% decrease between 1980 and 2005. 大型国家设施的日均人口继续减少;从1980年到2005年减少了近70%。
Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[235:RCIADP]2.0.CO;2
Kathryn Coucouvanis, K Charlie Lakin, Robert Prouty, Amanda Webster
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引用次数: 7
Health outcomes of midlife and older Latina and black American mothers of children with developmental disabilities. 有发育障碍儿童的拉美裔和美国黑人中年和老年母亲的健康状况。
Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[224:HOOMAO]2.0.CO;2
Sandra Magaña, Matthew J Smith

The impact of caring for a child with a developmental disability on the physical and mental health of Latina and Black American women was examined. We used the National Health Interview Survey to compare the health of older mothers who were co-residing with a child who had a developmental disability to the health of same age mothers without caregiving responsibilities. Findings show that for both groups, older adult caregivers were more likely to report having limitations from arthritis than their noncaregiving counterparts. Caregiving was associated with more depressive symptoms for Latinas, but this relationship was not found for Black American women. Findings suggest that physical and mental health of caregivers need more attention in research and practice.

我们研究了照顾发育障碍儿童对拉丁裔美国妇女和黑人美国妇女身心健康的影响。我们利用全国健康访谈调查(National Health Interview Survey)对与发育障碍儿童同住的老年母亲的健康状况与没有照顾责任的同龄母亲的健康状况进行了比较。研究结果表明,在这两个群体中,与不承担照顾责任的母亲相比,承担照顾责任的老年母亲更有可能因关节炎而受到限制。拉美裔妇女的护理与更多的抑郁症状有关,但美国黑人妇女没有发现这种关系。研究结果表明,照顾者的身心健康需要在研究和实践中得到更多关注。
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引用次数: 0
Mandating education of dental graduates to provide care to individuals with intellectual and developmental disabilities. 强制教育牙科毕业生为有智力和发育障碍的人提供照顾。
Pub Date : 2006-06-01 DOI: 10.1352/0047-6765(2006)44[184:MEODGT]2.0.CO;2
H Barry Waldman, Steven P Perlman

In 2004, The Commission on Dental Accreditation adopted new standards for dental and dental hygiene education programs to ensure the preparation of practitioners to provide oral health services for persons with special health care needs. The course of action leading to the adoption of the new standards, together with the continuing obstacles of limited government support for dental services and the availability of faculty members to provide the needed dental educational experiences is reviewed. Expanding Health Resources and Services Administration definition of medically underserved areas is presented as one approach to improving the delivery of dental services.

2004年,牙科认证委员会通过了牙科和口腔卫生教育计划的新标准,以确保为有特殊保健需要的人提供口腔卫生服务的从业人员做好准备。本文回顾了导致采用新标准的行动过程,以及政府对牙科服务的有限支持和教师提供所需牙科教育经验的可用性等持续障碍。扩大卫生资源和服务管理局对医疗服务不足地区的定义是改进提供牙科服务的一种方法。
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引用次数: 11
The Supreme Court, "Our Town," and disability policy: boardrooms and bedrooms, courtrooms and cloakrooms. 最高法院,“我们的城市”,残疾人政策:会议室和卧室,法庭和衣帽间。
Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[83:TSCOTA]2.0.CO;2
Matthew J Stowe, H Rutherford Turnbull, Chad Sublet

In this discussion of recent key disability-related decisions of the U.S. Supreme Court (1995- 2004), we (a) assess whether the Court has supported or undermined certain core concepts of disability policy and (b) examine how the Court balances the comparative rights of those with and those without disabilities. In cases involving employment discrimination, family law, and access to courts and other public decision-making entities, the Court adopts an idealized version of a previous America. We explain the Court's "reverie" for that version, resorting to the constructs known as (a) compelled confrontation and remission to majoritarian processes and (b) advancement of personal relationships.

在对美国最高法院(1995- 2004)最近与残疾相关的关键判决的讨论中,我们(a)评估法院是否支持或破坏了残疾政策的某些核心概念,(b)研究法院如何平衡残疾人和非残疾人的相对权利。在涉及就业歧视、家庭法以及诉诸法院和其他公共决策实体的案件中,最高法院采用了一个理想化的过去的美国。我们解释了法院对这一版本的“幻想”,诉诸于(a)强制对抗和对多数主义进程的缓解,以及(b)个人关系的发展。
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引用次数: 13
Christmas in purgatory: a retrospective look. 炼狱中的圣诞节:回顾。
Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[145:CIPARL]2.0.CO;2
Steven J Taylor
It has now been 40 years since the publication of Blatt and Kaplan's (1966) Christmas in Purgatory, a photographic exposeof institutions. In this article I review this landmark work in the context of some of the major events in the field of mental retarda- tion in the era immediately following its publica- tion. The growing dissatisfaction with abusive and dehumanizing conditions at institutions soon led to the emergence of new concepts and philosophies as well as law suits that eventually challenged the very existence of institutions. ''There is hell on earth,'' wrote Burton Blatt (Blatt & Kaplan 1966), ''and in America there is a special inferno. We were visitors there during Christmas, 1965'' (p. v). Blatt, then a professor at Boston University, had followed the controversy surrounding Senator Robert Kennedy's unan- nounced visits to New York's Willowbrook and Rome State Schools in fall 1965. Kennedy publicly denounced conditions at the institutions. In re- sponse, public officials and supporters of Governor Nelson Rockefeller accused Kennedy of painting a misleading picture of conditions at the institutions based on superficial tours. Blatt was aware that Ken- nedy had accurately portrayed the nature of con-
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引用次数: 5
Comparison of reports by relatives and staff on living conditions of adults with intellectual disabilities. 成人智障人士家属与工作人员生活状况报告之比较。
Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[120:CORBRA]2.0.CO;2
Oie Umb-Carlsson, Karin Sonnander

Proxies typically serve as information providers in studies of persons with intellectual disabilities. However, little is known about the concordance between different proxy categories and how proxy characteristics influence the information provided. We compared 89 pairs of relative and staff reports on the living conditions of persons with intellectual disabilities, using percentage agreement and Cohen's kappa statistics. Results demonstrate differences between relative and staff reports for most of the domains investigated, with moderate agreement for objective items and fair agreement for subjective items. Relative and staff proxies contributed different information related to diverse viewpoints and varying types of information. Thus, we suggest that information provided by proxies should not be treated as being interchangeable but, rather, as complementary.

代理人通常作为智力残疾者研究中的信息提供者。然而,人们对不同代理类别之间的一致性以及代理特征如何影响所提供的信息知之甚少。我们比较了89对有关智障人士生活条件的亲属和工作人员报告,使用百分比一致性和科恩的kappa统计。结果表明,在调查的大多数领域中,相关报告和工作人员报告之间存在差异,客观项目的一致程度中等,主观项目的一致程度相当。亲属代理和工作人员代理提供了与不同观点和不同类型的信息有关的不同信息。因此,我们建议代理提供的信息不应被视为可互换的,而应被视为互补的。
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引用次数: 6
Inclusion of people with mental retardation and other developmental disabilities in communities of faith. 将智障人士和其他发育障碍者纳入信仰社区。
Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2
Jeannine Vogel, Edward A Polloway, J David Smith

Our focus in this paper is on efforts to include persons with developmental disabilities in faith communities. We provide a review of the relevant literature on religious participation and faith communities for persons with disabilities and blend the limited data available on these topics with the perspectives of individuals whose efforts focus on these concerns. Topics explored are the implications of being part of the faith community in terms of its impact on quality of life, the barriers to inclusion in such communities, strategies for overcoming these barriers, and special considerations for adults with mental retardation or other developmental disabilities. Discussion of the implications for enhancing inclusion in faith communities is provided.

我们在这篇文章中的重点是努力将发育性残疾人士纳入信仰社区。我们对残疾人的宗教参与和信仰社区的相关文献进行了回顾,并将这些主题的有限数据与关注这些问题的个人的观点相结合。探讨的主题是成为信仰社区的一部分对生活质量的影响,融入这些社区的障碍,克服这些障碍的策略,以及对智力迟钝或其他发育障碍的成年人的特殊考虑。讨论了加强信仰社区包容的影响。
{"title":"Inclusion of people with mental retardation and other developmental disabilities in communities of faith.","authors":"Jeannine Vogel,&nbsp;Edward A Polloway,&nbsp;J David Smith","doi":"10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2","url":null,"abstract":"<p><p>Our focus in this paper is on efforts to include persons with developmental disabilities in faith communities. We provide a review of the relevant literature on religious participation and faith communities for persons with disabilities and blend the limited data available on these topics with the perspectives of individuals whose efforts focus on these concerns. Topics explored are the implications of being part of the faith community in terms of its impact on quality of life, the barriers to inclusion in such communities, strategies for overcoming these barriers, and special considerations for adults with mental retardation or other developmental disabilities. Discussion of the implications for enhancing inclusion in faith communities is provided.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 2","pages":"100-11"},"PeriodicalIF":0.0,"publicationDate":"2006-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[100:IOPWMR]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26014677","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 41
"Who would I be without Danny?" phenomenological case study of an adult sibling. "没有丹尼我会是谁"一个成年兄弟姐妹的现象学案例研究。
Pub Date : 2006-04-01 DOI: 10.1352/0047-6765(2006)44[135:WWIBWD]2.0.CO;2
Robin A Flaton

How is life different for someone who grows up with a sibling who has mental retardation? In this phenomenological case study, I profile the life experiences of a 39-year-old woman as sibling to a 35-year-old man with Down syndrome, using her own words as she explored her sibling experience and how this relationship shaped her identity, experiences, and life choices. Emerging themes, including her self-perception and perception of family members, her identity formation, and the impact of the experience are discussed. A number of possible variables for future quantitative research are suggested based on her experiences, including increased empathy in typically developing siblings and the sibling with disability as a barometer of other people's traits and their impact on the formation of other significant relationships.

与患有智力迟钝的兄弟姐妹一起长大的人的生活有什么不同?在这个现象学案例研究中,我描述了一位39岁的女性与一位患有唐氏综合症的35岁男性的兄弟姐妹的生活经历,用她自己的话探索了她的兄弟姐妹经历,以及这种关系如何塑造了她的身份、经历和生活选择。新出现的主题,包括她的自我认知和家庭成员的认知,她的身份形成,和经验的影响进行了讨论。根据她的经验,她提出了未来定量研究的一些可能变量,包括在正常发育的兄弟姐妹和残疾的兄弟姐妹中增加同理心,作为他人特征及其对其他重要关系形成的影响的晴雨表。
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引用次数: 35
期刊
Mental retardation
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