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American Journal of Hospice and Palliative Medicine®最新文献

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The ABMS, the ABHPM, and the future of a specialty ABMS, ABHPM,以及专业的未来
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900403
S. Baumrucker
hospice and palliative care learned their craft on the job; opportunities for full-time employment were rare, and formal postgraduate education was nonexistent. Common wisdom held that the average medical student received approximately six hours of education in end-of-life issues (implying that half the students received even less). Hospice nurses are, in some areas, the most independent practitioners in the whole field of nursing; they are often faced with a “do whatever and I’ll sign it” attitude by doctors whose fund of knowledge in basic symptom control is sorely lacking. Nurses have learned to practice without the input of knowledgeable physicians for the most part, but this freedom tends to be as frightening as it is liberating. Endof-life care, as all care, should be practiced within a team model. When one member of the team is missing, the game will often be lost (to stretch the metaphor). Primary care physicians are not really to blame for this situation, any more than high school students who graduate without learning to read should be blamed if no one notices or remedies the problem. Of course, the world is no longer quite so bleak. Medical schools, for the most part, are adding mandatory contact hours in end-of-life care, and elective rotations in hospice or palliative care are increasing. The number of full-time jobs for hospice medical directors is also increasing as hospice finally reaches the far corners of our country, and hospitals and cancer centers are sprouting palliative care services like spring flowers. This begs the question, however: who will fill these new positions? In my talks across the country, I have always asserted that symptom control and end-of-life care should be an integral part of every primary-care practice. I often half-heartedly joke that our goal should be to make physicians such as myself obsolete—as long as we wait until I retire to do it. As our specialty progresses and becomes more evidence-based, and as it becomes more technically advanced, with tricky opioid rotation schedules and highly evolved procedures, I realize that my dream of a specialty-free world of primary care physicians practicing state-of-the art palliative care is untenable. However, the current milieu is unacceptable as well, and so a compromise must be found. Consider cardiology; this is an essential subspecialty of internal medicine that practices a remarkably advanced form of medicine, with rapidly advancing research and technology. Most primary care physicians refer to cardiologists readily, but they don’t do so in a vacuum. Before graduation, internists and family practitioners have had intensive training in the diagnosis and treatment of circulatory disorders and are quite comfortable treating congestive heart failure, hypertension, and other common maladies. If the relationship between primary care and cardiology was analogous to that of primary care and
临终关怀和姑息治疗在工作中学会了他们的手艺;全职工作的机会很少,正式的研究生教育也不存在。人们普遍认为,医学院学生在临终问题上平均接受了大约6个小时的教育(这意味着一半的学生接受的教育甚至更少)。在某些领域,临终关怀护士是整个护理领域中最独立的从业者;他们经常面对医生“随便做什么,我都会签字”的态度,而这些医生在基本症状控制方面的知识储备严重缺乏。在大多数情况下,护士已经学会了在没有知识渊博的医生介入的情况下进行实践,但这种自由往往是令人恐惧的,因为它是解放的。与所有护理一样,临终关怀应该在团队模式下进行。当团队中缺少一名成员时,游戏通常就会失败。初级保健医生不应该为这种情况负责,就像如果没有人注意到或纠正这个问题,不应该责怪那些没有学会阅读就毕业的高中生一样。当然,世界不再那么黯淡了。在大多数情况下,医学院正在增加临终关怀的强制性联系时间,临终关怀或姑息治疗的选修轮转也在增加。随着临终关怀最终到达我们国家的偏远角落,医院和癌症中心正在像春天的花朵一样发芽,临终关怀医疗主任的全职工作数量也在增加。然而,这就引出了一个问题:谁来填补这些新职位?在我的全国演讲中,我总是强调症状控制和临终关怀应该是每个初级保健实践的组成部分。我经常半心半意地开玩笑说,我们的目标应该是让像我这样的医生过时——只要我们等到我退休后再做这件事。随着我们专业的发展,越来越以证据为基础,随着技术的进步,阿片类药物的轮换时间表和高度进化的程序,我意识到,我梦想的初级保健医生实行最先进的姑息治疗的无专业世界是站不住脚的。然而,目前的环境也是不可接受的,因此必须找到一种妥协办法。考虑心脏病;这是内科医学的一个重要的亚专业,实践着一种非常先进的医学形式,研究和技术正在迅速发展。大多数初级保健医生都很乐意参考心脏病专家,但他们不会在真空中这样做。在毕业前,内科医生和家庭医生在循环系统疾病的诊断和治疗方面接受过强化培训,对治疗充血性心力衰竭、高血压和其他常见疾病非常熟练。如果初级保健和心脏病学之间的关系类似于初级保健和
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引用次数: 1
Episodic pain in patients with advanced cancer 晚期癌症患者的阵发性疼痛
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900412
G. Zeppetella, M. Ribeiro
Episodic pain is a common problem for patients with advanced cancer and is often difficult to manage successfully. In this article, the daily variations in cancer-related episodic pain in a patient with metastatic lung cancer are described. The definition, etiology, prevalence, and pharmacological management of episodic pain are also reviewed.
间歇性疼痛是晚期癌症患者的常见问题,通常难以成功控制。在这篇文章中,在转移性肺癌患者癌症相关的发作性疼痛的日常变化进行了描述。定义,病因,患病率,和药理学管理的阵发性疼痛也进行了审查。
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引用次数: 12
An investigation into the use of palliative care services by patients with prostate cancer 前列腺癌患者使用姑息治疗服务的调查
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900410
James S.A. Green
The use of palliative services by prostate cancer patients was assessed in relation to other cancer patients and as a proportion of men diagnosed with prostate cancer. Retrospective analysis of palliative care referral and inpatient and outpatient activity was undertaken in respect to patients with nine types of cancer. A cohort of men diagnosed with prostate cancer in 1993 was followed for five years. The records of those that died during this period were reviewed to confirm if they had received hospice care. Of the 118 men dying of prostate cancer, 25.4 percent used hospice services, 23 percent used the hospice at home services (for an average of 68.8 days), while 7 percent used day-care services (for an average of 8.25 days). Prostate cancer patients formed the third largest cancer referral group to hospital-based palliative care services (9.5 percent). They had the third longest survival time from referral (3.8 months) and the oldest average age of death of any group. Lower than average inpatient stays, coupled with the highest average length of stay, led to the third highest use of inpatient services by patients with prostate cancer. We concluded that the morbidity from prostate cancer leads to a high use of palliative services. This significant use of resources should be included in comparisons assessing and planning health care strategies for prostate cancer.
评估了前列腺癌患者使用姑息治疗服务的情况,并将其与其他癌症患者进行比较,以及与诊断为前列腺癌的男性的比例进行比较。回顾性分析九种癌症患者的姑息治疗转诊及住院和门诊活动。一组在1993年被诊断患有前列腺癌的男性被跟踪调查了5年。在此期间死亡的人的记录被审查,以确认他们是否接受了临终关怀。在118名死于前列腺癌的男性中,25.4%的人使用临终关怀服务,23%的人使用家庭临终关怀服务(平均68.8天),而7%的人使用日托服务(平均8.25天)。前列腺癌患者是医院姑息治疗服务的第三大癌症转诊群体(9.5%)。他们转诊后的存活时间第三长(3.8个月),平均死亡年龄是所有组中最长的。低于平均住院时间,加上最高的平均住院时间,导致前列腺癌患者使用住院服务的第三高。我们得出结论,前列腺癌的发病率导致姑息治疗的高使用率。在比较、评估和规划前列腺癌保健战略时,应包括这种资源的大量使用。
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引用次数: 7
Beyond principles: Virtue ethics in hospice and palliative care 超越原则:安宁疗护与缓和疗护的美德伦理
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900407
M. J. Giblin
Living ethically in the face of death is a major challenge for the ill person, the family, and the hospice staff. Beyond the recognized need for ethical decision-making regarding medical principles, there are decisions about character for all involved: “What kind of person will I be?” “What kind of family will we be?” “What kind of caregiver will I be?” “What kind of community will we be?” This article is a discussion of virtues that are appropriate in hospice staff and volunteers: compassion/empathy, faithfulness, justice/advocacy, and practical wisdom. The author calls for a wider sharing of their knowledge and experience.
面对死亡合乎道德地生活,对病人、家属和安宁疗护人员都是一大挑战。除了公认的关于医学原则的道德决策需要之外,还有关于所有相关人物的性格决策:“我将成为什么样的人?”“我们会成为什么样的家庭?”“我将成为什么样的看护人?”“我们将成为一个什么样的社区?”这篇文章讨论了适合临终关怀工作人员和志愿者的美德:同情/同情、忠诚、正义/倡导和实践智慧。作者呼吁更广泛地分享他们的知识和经验。
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引用次数: 13
Mary, the prisoner who stole our hearts 玛丽,那个偷走我们心的囚犯
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900414
J. Ufema
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引用次数: 0
Proactive identification of seizure risk improves terminal care 主动识别癫痫发作风险可改善临终护理
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900409
K. Baldwin, L. Miller, Joseph Scott
Seizures are a common neurologic consequence of various etiologies in the end-stage cancer patient. Because dying cancer patients and their families are often coping with new challenges daily, any intervention that can prevent further patient or family discomfort should be implemented. The purpose of this study was to evaluate four pharmacy interventions aimed at improving nursing care to cancer patients at a facility for the terminally ill. The four interventions were development of a seizure risk factor assessment toll, assembly or availability of a diazepam seizure kit, nursing education via in-service training, and development of a manual for nursing stations. Successful implementation of this project indicated that nurses perceived an empowerment in improving quality of life of their patients.
癫痫发作是终末期癌症患者各种病因的常见神经系统后果。由于垂死的癌症患者及其家属经常每天都在应对新的挑战,任何可以防止患者或家属进一步不适的干预措施都应该实施。本研究的目的是评估四种药物干预措施,旨在改善临终癌症患者的护理。这四项干预措施是制定癫痫发作风险因素评估收费,装配或提供地西泮发作工具包,通过在职培训进行护理教育,以及为护理站编写手册。这个项目的成功实施表明,护士认为在提高病人的生活质量的权力。
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引用次数: 4
Use of recombinant factor VIIa to control bleeding in an adolescent male with severe hemophilia A, HIV, thrombocytopenia, hepatitis C, and end-stage liver disease 使用重组VIIa因子控制严重血友病A、HIV、血小板减少症、丙型肝炎和终末期肝病的青春期男性出血
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900413
J. Puetz, J. Bouhasin
Few options are available to treat hemorrhaging during the palliative care of patients. Blood products, such as plasma and platelets, are difficult to transfuse in the home or hospice setting. What is needed is a product that can be given in the home setting for effective control of hemorrhaging in patients with various types of coagulopathies. Unfortunately, no such product currently exists. One agent that may be beneficial in this clinical setting is recombinant factor VIIa. This factor was approved initially for controlling hemorrhaging in patients with hemophilia who have developed antibodies against factor VIII, known as inhibitors. It subsequently has been found to control bleeding in several other clinical situations. We will describe our use of this agent during the palliative care of a patient with numerous insults to his coagulation system.
在患者姑息治疗期间,很少有治疗出血的选择。血液制品,如血浆和血小板,很难在家庭或临终关怀环境中输注。我们需要的是一种可以在家庭环境中给予的产品,以有效控制各种类型凝血疾病患者的出血。不幸的是,目前还没有这样的产品存在。在这种临床环境中,一种可能有益的药物是重组因子VIIa。该因子最初被批准用于控制血友病患者的出血,这些患者已经产生了针对因子8的抗体,称为抑制剂。它随后被发现在其他几个临床情况下控制出血。我们将描述我们使用这种药物在姑息治疗的病人有许多侮辱他的凝血系统。
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引用次数: 3
Palliative medicine in a United States cancer center: A prospective study 美国癌症中心的姑息治疗:一项前瞻性研究
Pub Date : 2002-07-01 DOI: 10.1177/104990910201900408
J. Cowan, D. Walsh, J. Homsi
Purpose: (a) To report the medical complexity of cancer and noncancer patients receiving palliative medicine (PM) consultation at a tertiary medical center and (b) to describe the consult recommendations made for this group. Patients and methods: Prospective data collection was performed on all consultations (cancer, n = 175; non-cancer, n = 35) done by first author (JDC) as a PM fellow at the Cleveland Clinic Foundation between July 1998 and April 1999. A computer database was used to query for demographics, complexity of medical problems, current medications, mortality, symptoms, nursing problems, and consult recommendations. Results: A median of three (range, 0-12) acute medical problems and three (range, 0-16) chronic medical problems were identified for each patient. Patients were taking a median of six medications (range, 0-20). They had a median of five symptoms (range, 0-13) with pain (73 percent) being most common, followed by weakness (40 percent) and shortness of breath (40 percent). Cancer patients were twice as likely to have more than five symptoms (48 percent versus 23 percent) (chi-square = 0.006). The most common nursing problems were ambulation or fall risk (15 percent) and skin integrity (11 percent). A median of five (range, 1-11) management recommendations were made as part of each consultation. These included medication changes in 81 percent, nonmedication changes in 53 percent, and follow-up services in 100 percent. The median survival from the time of consultation for the known dead was 29 days with 65 percent living more than 14 days. Conclusion: Multiple recommendations were made with most patients surviving long enough potentially to benefit. Consultation in palliative medicine is a sophisticated intervention involving considerable acuity and complexity of care.
目的:(a)报告在三级医疗中心接受姑息治疗(PM)会诊的癌症和非癌症患者的医疗复杂性;(b)描述为这一群体提出的会诊建议。患者和方法:对所有咨询进行前瞻性数据收集(癌症,n = 175;非癌症,n = 35),由第一作者(JDC)在1998年7月至1999年4月期间作为克利夫兰诊所基金会的PM研究员完成。计算机数据库用于查询人口统计、医疗问题的复杂性、当前药物、死亡率、症状、护理问题和咨询建议。结果:每个患者确定了3个(范围0-12)急性医疗问题和3个(范围0-16)慢性医疗问题的中位数。患者服用的药物中位数为6种(范围0-20)。他们的症状中位数为五种(范围0-13),最常见的是疼痛(73%),其次是虚弱(40%)和呼吸短促(40%)。癌症患者出现五种以上症状的可能性是前者的两倍(48%对23%)(卡方= 0.006)。最常见的护理问题是行走或跌倒风险(15%)和皮肤完整性(11%)。作为每次咨询的一部分,中位数为5项(范围1-11)管理建议。其中包括81%的药物改变,53%的非药物改变,以及100%的随访服务。从会诊时算起,已知死者的中位生存期为29天,65%的人活过14天。结论:针对大多数患者存活时间足够长,有可能从中获益的情况,提出了多项建议。姑息医学咨询是一项复杂的干预措施,涉及相当的敏锐度和护理的复杂性。
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引用次数: 24
A prescription for drug cost savings 节省药费的处方
Pub Date : 2002-05-01 DOI: 10.1177/104990910201900302
J. Varga
effective palliative prescribing, I find the Hospice of the Bluegrass (HOB) initiative progressive as well as prudent. National hospice economics demand that cost savings and cost reduction issues be addressed using new approaches. The HOB study shows how a clinical pharmacist with a specific expertise in palliative medicine can dramatically affect hospice drug costs without sacrificing quality of patient care. Pharmacy practice, particularly in nonhospital settings, has traditionally focused on fundamental services such as accurate dispensing, recording keeping and profiling, and timely delivery of medications. On occasion, true therapeutic intervention occurs. These services alone add little value to pharmaceutical care and save little money; if they did, drug costs would not continue to escalate rapidly for the majority of hospices. Administrators and supervisors may be lead to believe that nothing can be done about the cost of drug therapy and accept it as a consequence of doing business. What the HOB study clearly shows is that something can be done; in fact, it clearly substantiates the role and value of a clinical palliative care pharmacist solely dedicated to hospice issues regarding formulary development, prescribing habits, ongoing education, and per-member/per-day patient drug costs. Pharmaceutical care and pharmacy itself constitute core services that all hospices must provide. Yet how many hospices have an independent palliative care pharmacist consulting and advocating for their hospice and its patients? A hospice administrator would never consider foregoing legal or accounting counsel in his or her organization. With drug costs frequently representing over 20 percent of direct expenses for patient care, it is practical and responsible to have a clinical palliative care pharmacist available to the hospice team. When considering contracting such a clinician for your hospice, the following check list may be useful in determining a potential candidate’s qualifications and experience:
有效的缓和处方,我发现蓝草临终关怀(HOB)倡议既进步又谨慎。国家临终关怀经济学要求使用新的方法来解决成本节约和成本降低的问题。HOB的研究表明,具有姑息医学专业知识的临床药剂师如何在不牺牲病人护理质量的情况下显著影响临终关怀药物成本。药房实践,特别是在非医院环境中,传统上侧重于基本服务,如准确配药、记录保存和分析以及及时提供药物。有时,真正的治疗干预会发生。这些服务本身对药学服务几乎没有增加价值,也节省不了多少钱;如果他们这样做,大多数临终关怀医院的药品成本就不会继续迅速上升。管理者和监督者可能会被引导相信药物治疗的费用是无计可施的,并接受它作为做生意的结果。HOB的研究清楚地表明,有些事情是可以做的;事实上,它清楚地证实了临床姑息治疗药剂师的作用和价值,他们完全致力于临终关怀问题,包括处方制定、处方习惯、持续教育和每位成员/每天患者的药物成本。药学服务和药房本身构成了所有临终关怀医院必须提供的核心服务。然而,有多少临终关怀医院有独立的姑息治疗药剂师为他们的临终关怀和病人提供咨询和倡导?安宁疗护管理人绝不会考虑在他或她的组织中放弃法律或会计顾问。由于药物费用经常占病人护理直接费用的20%以上,因此为临终关怀团队配备一名临床姑息治疗药剂师是切实可行且负责任的。当考虑为您的安宁疗护聘请这样的临床医生时,以下检查清单可能有助于确定潜在候选人的资格和经验:
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引用次数: 5
Palliative radiation therapy in end-of-life care: Evidence-based utilization 临终关怀中的姑息性放射治疗:循证应用
Pub Date : 2002-05-01 DOI: 10.1177/104990910201900307
P. Fine
Palliative radiation therapy is a potentially valuable, but rarely used, tool in end-of-life care programs (e.g., hospice) that could greatly enhance the quality of life in appropriately selected patients with advanced cancer who still have more than a few weeks or months to live.1 Although there are no data on hospice utilization of radiation therapy, it is commonly known within the field that, of the more than one-half million patients who are cared for in hospice programs annually, very few are ever considered for this form of therapy. This is primarily due to the perception that this form of therapy is overly burdensome to the patient and financially untenable under the provisions of the Medicare hospice benefit (the main payer for hospice care), which pays about $100 per day for all services related to the terminal diagnosis. Since conventionally applied radiation therapy fractionation regimens may average 12 or more treatment sessions, requiring frequent trips and considerable time spent at a treatment center, and at costs that are prohibitive under this Medicare prospective payment plan, hospice programs are loathe to advocate for this form of therapy. Conversely, because Medicare payment streams are mutually exclusive, patients with relatively limited prognoses who opt for radiation therapy forcibly deny themselves and their families the more fully featured supportive end-of-life care provided by hospice. On the surface, this would appear to be an irreconcilable “systems” problem, only to be resolved by restructuring Medicare financing. However, a review of the radiation therapy literature from the last several years suggests that markedly abbreviated radiation therapy treatment schedules can be highly therapeutic, cost-effective, and relatively without burden, making palliative radiotherapy a worthy treatment option for patients in hospice programs.2 In fact, this review reveals that there are few radiation therapy outcome studies that can empirically direct the care we give to patients with far-advanced cancer. Much of the practice of radiation oncology seems to be based upon the cumulative observations and experiences of individual therapists, built upon those passed down by their mentors and reinforced through individual practice patterns. As a result, widely variable approaches are taken to manage similar cases, without well-defined differences in clinical results. The intent of this article is to summarize the evidence found in the contemporary radiation therapy literature, with the hope that hospice programs will rethink their hesitant stance on this potentially beneficial therapy, and that radiation therapists will adapt their practices to better serve the needs of patients with limited life expectancy.
姑息性放射治疗在临终关怀项目(如临终关怀)中是一种潜在的有价值但很少使用的工具,它可以极大地提高适当选择的仍有几周或几个月生命的晚期癌症患者的生活质量虽然没有关于临终关怀使用放射治疗的数据,但在该领域内众所周知,每年在临终关怀项目中接受治疗的超过50万名患者中,很少有人考虑过这种形式的治疗。这主要是因为人们认为这种形式的治疗对病人来说过于繁重,而且在医疗保险临终关怀福利(临终关怀的主要付款人)的规定下,在经济上是站不住脚的,该福利每天支付约100美元用于所有与临终诊断有关的服务。由于传统的放射治疗分步治疗方案平均需要12次或更多的治疗疗程,需要频繁的旅行和在治疗中心花费相当长的时间,并且在医疗保险预期支付计划下的费用令人望而却步,临终关怀项目不愿意提倡这种形式的治疗。相反,由于医疗保险支付流是相互排斥的,选择放射治疗的预后相对有限的患者被迫拒绝自己和家人接受临终关怀提供的更全面的支持性临终关怀。从表面上看,这似乎是一个不可调和的“系统”问题,只能通过重组医疗保险融资来解决。然而,回顾过去几年的放射治疗文献表明,明显缩短的放射治疗计划可以具有高度的治疗性,成本效益,并且相对没有负担,使姑息放疗成为临终关怀计划中患者值得选择的治疗方案事实上,这篇综述表明,很少有放射治疗的结果研究可以经验性地指导我们对晚期癌症患者的护理。放射肿瘤学的许多实践似乎是基于个体治疗师的累积观察和经验,建立在他们的导师传递的基础上,并通过个体实践模式得到加强。因此,采取广泛不同的方法来处理类似的病例,没有明确的临床结果差异。本文的目的是总结在当代放射治疗文献中发现的证据,希望安宁疗护计划将重新考虑他们对这种潜在有益治疗的犹豫立场,并且放射治疗师将调整他们的做法,以更好地服务于预期寿命有限的患者的需求。
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引用次数: 24
期刊
American Journal of Hospice and Palliative Medicine®
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