{"title":"Foundations: Origins: International Perspectives, Then and Now","authors":"D. Saunders","doi":"10.1300/J011V14N03_01","DOIUrl":"https://doi.org/10.1300/J011V14N03_01","url":null,"abstract":"","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"18 1","pages":"1-7"},"PeriodicalIF":0.0,"publicationDate":"1999-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77678660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1999-09-01DOI: 10.1080/0742-969X.1999.11882942
A. Macgregor
{"title":"Hospice reminiscences and reflections--an 18 year personal and professional love affair.","authors":"A. Macgregor","doi":"10.1080/0742-969X.1999.11882942","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882942","url":null,"abstract":"","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4 1","pages":"247-51"},"PeriodicalIF":0.0,"publicationDate":"1999-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882942","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59937220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1999-03-01DOI: 10.1080/0742-969X.1999.11882915
C. Holden
{"title":"The Good Death: The New American Search to Reshape the End of Life. By Marilyn Webb: Bantam Books, New York, 1997. 470 pages, $24.95","authors":"C. Holden","doi":"10.1080/0742-969X.1999.11882915","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882915","url":null,"abstract":"","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"1 1","pages":"81-82"},"PeriodicalIF":0.0,"publicationDate":"1999-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79257647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The moment of death was a compelling image and dominant concept through much of history. In recent years this term has become destabilized by technological advances and changes in clinical practice. Perhaps even more significantly, the meanings previously associated with the death-bed scene and the final breath have become increasingly marginalized. Hospice programs continue to demonstrate that enlightened and dedicated care can markedly reduce the suffering of terminally ill people and their families. The vast experience acquired by hospice programs, however, has not yet been translated into a vision of the moment of death and the death-bed scene for our times. Several reasons are identified for the limited interest and even more limited hospice-based research into the death-bed scene and the moment of death. Hospice programs could contribute much to our understanding of the final moments of life if this should ever become a priority.
{"title":"The moment of death: is hospice making a difference?","authors":"R Kastenbaum","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The moment of death was a compelling image and dominant concept through much of history. In recent years this term has become destabilized by technological advances and changes in clinical practice. Perhaps even more significantly, the meanings previously associated with the death-bed scene and the final breath have become increasingly marginalized. Hospice programs continue to demonstrate that enlightened and dedicated care can markedly reduce the suffering of terminally ill people and their families. The vast experience acquired by hospice programs, however, has not yet been translated into a vision of the moment of death and the death-bed scene for our times. Several reasons are identified for the limited interest and even more limited hospice-based research into the death-bed scene and the moment of death. Hospice programs could contribute much to our understanding of the final moments of life if this should ever become a priority.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"253-70"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hospice care has had an impact at many levels--on individual patients and families, on the health care industry, and on society. However, no comprehensive body of evidence has been generated that documents the impact of hospice care in terms that are meaningful to competitors, referral sources, and consumers. In part, this is because of the many challenges for evaluating hospice care. This paper describes recent efforts in the documentation of the value of hospice which have focused on outcomes measurement by individual providers rather than on large scale studies. Several groups are working to develop reliable measurement tools, to support standardized measurement in large numbers of hospices, and to collect information for benchmarking and comparison. Measurement of the impact of hospice care will set standards for other providers of end-of-life care and will document the expertise and knowledge of hospice professionals. Once established as centers of excellence in care of the dying, hospices will be well positioned for whatever delivery models may evolve for end-of-life care.
{"title":"Documenting the impact of hospice.","authors":"M P Merriman","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Hospice care has had an impact at many levels--on individual patients and families, on the health care industry, and on society. However, no comprehensive body of evidence has been generated that documents the impact of hospice care in terms that are meaningful to competitors, referral sources, and consumers. In part, this is because of the many challenges for evaluating hospice care. This paper describes recent efforts in the documentation of the value of hospice which have focused on outcomes measurement by individual providers rather than on large scale studies. Several groups are working to develop reliable measurement tools, to support standardized measurement in large numbers of hospices, and to collect information for benchmarking and comparison. Measurement of the impact of hospice care will set standards for other providers of end-of-life care and will document the expertise and knowledge of hospice professionals. Once established as centers of excellence in care of the dying, hospices will be well positioned for whatever delivery models may evolve for end-of-life care.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"177-92"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hospice care has been successful in serving a large segment of the terminally ill population in the United States. This article addresses a number of significant trends that may impact the future of hospice care. It is proposed that as many as one-third of those who die will not be in a position to make use of any end-stage program of care. Of the remaining, some will have difficulty being served by hospices due to uncertain prognosis and continued efforts at curative treatment. New models of caring for chronically terminally ill persons are being developed and are reviewed. A clearer definition of who ought to be served by hospice programs is encouraged.
{"title":"New initiatives transforming hospice care.","authors":"S R Connor","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Hospice care has been successful in serving a large segment of the terminally ill population in the United States. This article addresses a number of significant trends that may impact the future of hospice care. It is proposed that as many as one-third of those who die will not be in a position to make use of any end-stage program of care. Of the remaining, some will have difficulty being served by hospices due to uncertain prognosis and continued efforts at curative treatment. New models of caring for chronically terminally ill persons are being developed and are reviewed. A clearer definition of who ought to be served by hospice programs is encouraged.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"193-203"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The National Hospice Organization grew out of efforts by the founders of the earliest hospice programs in the United States to protect their emotional investments in hospice care, to advocate for hospice interests in Congress and other public policy forums, to define standards for the fledgling movement, and to provide education on the nuts and bolts of running hospice programs for others who were interested in starting hospices in communities from coast to coast. Unlike the model of St. Christopher's Hospice in England, which began as a free-standing in-patient facility and later added home care services, most U.S. hospices started as home care-based programs, often largely manned by volunteers. Among the crucial issues that have dominated the work of NHO during its first 21 years were passage and maintenance of the Medicare hospice benefit, ideological battles over the hospice philosophy, and efforts to extend hospice care to other populations, such as people with AIDS.
{"title":"History of the National Hospice Organization.","authors":"L Beresford, S R Connor","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The National Hospice Organization grew out of efforts by the founders of the earliest hospice programs in the United States to protect their emotional investments in hospice care, to advocate for hospice interests in Congress and other public policy forums, to define standards for the fledgling movement, and to provide education on the nuts and bolts of running hospice programs for others who were interested in starting hospices in communities from coast to coast. Unlike the model of St. Christopher's Hospice in England, which began as a free-standing in-patient facility and later added home care services, most U.S. hospices started as home care-based programs, often largely manned by volunteers. Among the crucial issues that have dominated the work of NHO during its first 21 years were passage and maintenance of the Medicare hospice benefit, ideological battles over the hospice philosophy, and efforts to extend hospice care to other populations, such as people with AIDS.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"15-31"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21684062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1999-01-01DOI: 10.1080/0742-969x.1999.11882913
T Bowman
The bereavement process can be aided by multiple resources. Hospice counselors and related therapeutic professionals turn most easily to their own disciplines and training. In this article, complementary or ancillary resources from literature have been offered. If healing includes the "storying" and "restorying" of lives, then literature can enrich and facilitate the mourning process. Suggestions of resources and some of their connections to hospice care have been offered.
{"title":"Literary resources for bereavement.","authors":"T Bowman","doi":"10.1080/0742-969x.1999.11882913","DOIUrl":"https://doi.org/10.1080/0742-969x.1999.11882913","url":null,"abstract":"<p><p>The bereavement process can be aided by multiple resources. Hospice counselors and related therapeutic professionals turn most easily to their own disciplines and training. In this article, complementary or ancillary resources from literature have been offered. If healing includes the \"storying\" and \"restorying\" of lives, then literature can enrich and facilitate the mourning process. Suggestions of resources and some of their connections to hospice care have been offered.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 1","pages":"39-54"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.1999.11882913","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21284344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}