Pub Date : 2025-11-01DOI: 10.1016/j.anpedi.2025.503956
Marta Pacio Miguez , Sixto García-Miñaúr , Ángela del Pozo , Juan José Menéndez Suso , Francisco J. Climent Alcalá , María Sánchez Holgado , Patricia Álvarez García , Carmen Jiménez Rodríguez , Fernando Santos-Simarro , María Palomares-Bralo
Rapid genome sequencing has been found to be an effective tool for the diagnosis of genetic disorders in neonatal and pediatric intensive care settings, allowing rapid and accurate decision-making and access to personalized care and therapies. Most genetic disorders exhibit significant clinical and genetic heterogeneity, which complicates recognition of the disease and diagnosis by conventional methods. Rapid genome sequencing offers a superior diagnostic yield, improving patient management and reducing diagnostic delay and inpatient care costs. However, there are barriers to its implementation in everyday clinical practice, such as a lack of technological infrastructure and qualified professionals. This study, conducted in a Spanish center, demonstrated the viability of genomic medicine in real-world practice, with a diagnostic yield of 42% and a significant impact on the management of patients in 32.5% of cases.
{"title":"Secuenciación genómica rápida en unidades de críticos neonatales y pediátricas. Evidencias y situación actual","authors":"Marta Pacio Miguez , Sixto García-Miñaúr , Ángela del Pozo , Juan José Menéndez Suso , Francisco J. Climent Alcalá , María Sánchez Holgado , Patricia Álvarez García , Carmen Jiménez Rodríguez , Fernando Santos-Simarro , María Palomares-Bralo","doi":"10.1016/j.anpedi.2025.503956","DOIUrl":"10.1016/j.anpedi.2025.503956","url":null,"abstract":"<div><div>Rapid genome sequencing has been found to be an effective tool for the diagnosis of genetic disorders in neonatal and pediatric intensive care settings, allowing rapid and accurate decision-making and access to personalized care and therapies. Most genetic disorders exhibit significant clinical and genetic heterogeneity, which complicates recognition of the disease and diagnosis by conventional methods. Rapid genome sequencing offers a superior diagnostic yield, improving patient management and reducing diagnostic delay and inpatient care costs. However, there are barriers to its implementation in everyday clinical practice, such as a lack of technological infrastructure and qualified professionals. This study, conducted in a Spanish center, demonstrated the viability of genomic medicine in real-world practice, with a diagnostic yield of 42% and a significant impact on the management of patients in 32.5% of cases.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 5","pages":"Article 503956"},"PeriodicalIF":2.1,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145425823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01DOI: 10.1016/j.anpedi.2025.503944
María Asunción Martínez-Brocca , Virginia Bellido , Roque Cardona-Hernandez , Luis Castaño , Ignacio Conget , Alberto Fernández , Ana Lucía Gómez Gila , Isabel Leiva-Gea , Dídac Mauricio
Type 1 diabetes (T1D) is an autoimmune disease whose late diagnosis can lead to serious complications such as diabetic ketoacidosis, especially in children. The presence of specific autoantibodies allows for the identification of a presymptomatic phase, opening the door to screening strategies targeting populations at high genetic risk, such as first-degree relatives. This document presents the consensus recommendations of the Spanish Diabetes Society (SED), the Spanish Society of Endocrinology and Nutrition (SEEN) and the Spanish Society of Paediatric Endocrinology (SEEP) on the screening, staging and monitoring of T1D in preclinical stages. Early identification of the disease will enable a personalised approach to be established, promote health education and, eventually, consider therapeutic interventions that may delay progression to the symptomatic phase. This consensus seeks to establish a common framework for clinical action based on the available evidence, with clear recommendations for its proper implementation.
{"title":"Resumen ejecutivo. Cribado, estadificación y seguimiento de la diabetes tipo 1 en estadios preclínicos: consenso de las sociedades científicas SED, SEEN y SEEP","authors":"María Asunción Martínez-Brocca , Virginia Bellido , Roque Cardona-Hernandez , Luis Castaño , Ignacio Conget , Alberto Fernández , Ana Lucía Gómez Gila , Isabel Leiva-Gea , Dídac Mauricio","doi":"10.1016/j.anpedi.2025.503944","DOIUrl":"10.1016/j.anpedi.2025.503944","url":null,"abstract":"<div><div>Type 1 diabetes (T1D) is an autoimmune disease whose late diagnosis can lead to serious complications such as diabetic ketoacidosis, especially in children. The presence of specific autoantibodies allows for the identification of a presymptomatic phase, opening the door to screening strategies targeting populations at high genetic risk, such as first-degree relatives. This document presents the consensus recommendations of the Spanish Diabetes Society (SED), the Spanish Society of Endocrinology and Nutrition (SEEN) and the Spanish Society of Paediatric Endocrinology (SEEP) on the screening, staging and monitoring of T1D in preclinical stages. Early identification of the disease will enable a personalised approach to be established, promote health education and, eventually, consider therapeutic interventions that may delay progression to the symptomatic phase. This consensus seeks to establish a common framework for clinical action based on the available evidence, with clear recommendations for its proper implementation.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 5","pages":"Article 503944"},"PeriodicalIF":2.1,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145425826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01DOI: 10.1016/j.anpedi.2025.503899
Damià Heine Suñer, Víctor José Asensio, Laura Torres Juan
The development of genomic technologies has transformed pediatric practice, enabling significant advances in the diagnosis of genetic diseases, 70% of which manifest during childhood. Genomic variants, ranging from single-nucleotide changes to large chromosomal rearrangements, are responsible for many pediatric conditions, and their detection relies on the appropriate selection of technologies. Methods such as karyotyping, MLPA, microarrays, Sanger sequencing, and next-generation sequencing (NGS) have increased diagnostic capacity, although, on average, a definitive diagnosis is currently made in only 27% of pediatric cases. Gene panels and exome, genome, and RNA sequencing offer varying diagnostic yields depending on clinical complexity, with rates that may be as high as 75% in specific cohorts. Additionally, emerging technologies such as long-read sequencing and optical genome mapping have proven useful in identifying complex structural variants and repetitive genomic regions. The integration of comprehensive clinical phenotyping and tools like the Human Phenotype Ontology (HPO) standard vocabulary optimizes genetic variant prioritization and enhances diagnostic accuracy. This article reviews the capabilities, limitations and clinical applications of currently available genomic techniques, highlighting their differences, advantages and disadvantages as well as implications for diagnostics in pediatrics.
{"title":"Nuevas tecnologías genómicas y su aplicación en pediatría","authors":"Damià Heine Suñer, Víctor José Asensio, Laura Torres Juan","doi":"10.1016/j.anpedi.2025.503899","DOIUrl":"10.1016/j.anpedi.2025.503899","url":null,"abstract":"<div><div>The development of genomic technologies has transformed pediatric practice, enabling significant advances in the diagnosis of genetic diseases, 70% of which manifest during childhood. Genomic variants, ranging from single-nucleotide changes to large chromosomal rearrangements, are responsible for many pediatric conditions, and their detection relies on the appropriate selection of technologies. Methods such as karyotyping, MLPA, microarrays, Sanger sequencing, and next-generation sequencing (NGS) have increased diagnostic capacity, although, on average, a definitive diagnosis is currently made in only 27% of pediatric cases. Gene panels and exome, genome, and RNA sequencing offer varying diagnostic yields depending on clinical complexity, with rates that may be as high as 75% in specific cohorts. Additionally, emerging technologies such as long-read sequencing and optical genome mapping have proven useful in identifying complex structural variants and repetitive genomic regions. The integration of comprehensive clinical phenotyping and tools like the Human Phenotype Ontology (HPO) standard vocabulary optimizes genetic variant prioritization and enhances diagnostic accuracy. This article reviews the capabilities, limitations and clinical applications of currently available genomic techniques, highlighting their differences, advantages and disadvantages as well as implications for diagnostics in pediatrics.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 5","pages":"Article 503899"},"PeriodicalIF":2.1,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145425825","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01DOI: 10.1016/j.anpedi.2025.503997
Ana Elisa Laso-Alonso , Pablo del Villar-Guerra , Cristina Molinos-Norniella , Vicent Modesto-Alapont , David Pérez-Solís , Alberto Medina-Villanueva
Introduction
Interhospital transport is crucial for ensuring access to specialized care and poses a logistic and clinical challenge that impacts patient safety and resource management. Few tools are available to predict risks in pediatric transport (PT), so a triage scale could help optimize and standardize resources.
Objectives
To analyze the diagnostic accuracy of urgent interhospital transport team selection by health care professionals compared to the use of SCOPETAS, the adapted version Pediatric Transport Triage Tool (PT3), and to assess the agreement between the choices of professionals and those proposed by the scale.
Method
Observational cohort study to evaluate the accuracy of the SCOPETAS scale and the agreement between the actual transport team and the one recommended by the scale, considered the gold standard. We analyzed urgent PT cases (aged 1 month to 14 years) from four regional hospitals to the referral hospital over a one-year period.
Results
The study included a total of 150 PT cases. The weighted kappa for the agreement in team selection was 0.68 (P<.001), with greater discordance in the choice of emergency medical technician (EMT) + nursing teams. The weight of evidence (WoE) for selecting advanced and basic life support was 10.1 dB and 7.54 dB, respectively, compared to 3.93 dB and 3.11 dB for EMT and EMT + nursing teams, respectively. The application of SCOPETAS would have reduced costs and optimized staff availability.
Conclusions
SCOPETAS is a useful and easy-to-apply tool that standardizes PT and optimizes resources. Future research should cover all pediatric age groups and other regions.
{"title":"Enfoque basado en la evidencia para la selección del recurso humano de transporte urgente","authors":"Ana Elisa Laso-Alonso , Pablo del Villar-Guerra , Cristina Molinos-Norniella , Vicent Modesto-Alapont , David Pérez-Solís , Alberto Medina-Villanueva","doi":"10.1016/j.anpedi.2025.503997","DOIUrl":"10.1016/j.anpedi.2025.503997","url":null,"abstract":"<div><h3>Introduction</h3><div>Interhospital transport is crucial for ensuring access to specialized care and poses a logistic and clinical challenge that impacts patient safety and resource management. Few tools are available to predict risks in pediatric transport (PT), so a triage scale could help optimize and standardize resources.</div></div><div><h3>Objectives</h3><div>To analyze the diagnostic accuracy of urgent interhospital transport team selection by health care professionals compared to the use of SCOPETAS, the adapted version Pediatric Transport Triage Tool (PT3), and to assess the agreement between the choices of professionals and those proposed by the scale.</div></div><div><h3>Method</h3><div>Observational cohort study to evaluate the accuracy of the SCOPETAS scale and the agreement between the actual transport team and the one recommended by the scale, considered the gold standard. We analyzed urgent PT cases (aged 1 month to 14 years) from four regional hospitals to the referral hospital over a one-year period.</div></div><div><h3>Results</h3><div>The study included a total of 150 PT cases. The weighted kappa for the agreement in team selection was 0.68 (<em>P</em><.001), with greater discordance in the choice of emergency medical technician (EMT) + nursing teams. The weight of evidence (WoE) for selecting advanced and basic life support was 10.1<!--> <!-->dB and 7.54<!--> <!-->dB, respectively, compared to 3.93<!--> <!-->dB and 3.11<!--> <!-->dB for EMT and EMT + nursing teams, respectively. The application of SCOPETAS would have reduced costs and optimized staff availability.</div></div><div><h3>Conclusions</h3><div>SCOPETAS is a useful and easy-to-apply tool that standardizes PT and optimizes resources. Future research should cover all pediatric age groups and other regions.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 5","pages":"Article 503997"},"PeriodicalIF":2.1,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145425829","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01DOI: 10.1016/j.anpedi.2025.504021
Ramy Álvaro Hamaui Akkad, Carolina Vizcaíno Díaz
{"title":"Nistagmo como manifestación de crisis epilépticas en un neonato con alteración en el gen SCN3A","authors":"Ramy Álvaro Hamaui Akkad, Carolina Vizcaíno Díaz","doi":"10.1016/j.anpedi.2025.504021","DOIUrl":"10.1016/j.anpedi.2025.504021","url":null,"abstract":"","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 5","pages":"Article 504021"},"PeriodicalIF":2.1,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145425820","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-11-01DOI: 10.1016/j.anpedi.2025.504012
María José Peláez Cantero , Iñigo Noriega Echevarría , Juan Pablo García Iñiguez , Felipe Verjano Sánchez , Ester Barrios Miras , Inés del Río Pastoriza , María Jesús Alijas Merillas , Francisco Moreno Madrid , Isolina Riaño Galán , José Antonio Salinas Sanz , en representación del Comité de Bioética de la Asociación Española de Pediatría
Objective
To determine the prevalence of compassion satisfaction (CS), secondary traumatic stress (STS) and job exhaustion or burnout (BO) in medical professionals specialized in pediatrics at the national level in Spain and determine which demographic and work-related factors affect their development.
Methods
We conducted a cross-sectional study in pediatricians by means of questionnaires sent by the Spanish Association of Pediatrics (AEP) to its members, which were completed online and anonymously. We collected data on demographic variables, professional category (medical intern/resident [MIR] in pediatrics or pediatrician), main care setting and type of employment, specific field within pediatrics, main field of work, duration of work experience in general and time in current position. Care settings were further categorized into three groups: out-of-hospital, low-volume hospital and high-volume hospital (neonatology, intensive care, palliative care, oncology and emergency care). Participants completed the Spanish adaptation of the Professional Quality of Life Scale (ProQOL) version 5 (escala de calidad de vida profesional) to assess three domains—CS, STS and BO—in relation to the past 30 days.
Results
We obtained total of 1112 responses from pediatricians. Female respondents amounted to 78.9% of the sample. The distribution by care setting was 35.6% primary care, 34.9% low-volume hospital settings and 29.5% high-volume hospital settings. Most participants scored in the midrange of the three subscales of the ProQOL questionnaire: compassion satisfaction 60.7% (95%CI, 57.8-63.5), burnout 88.8% (95%CI, 86.8-90.5) and secondary traumatic stress 77.2% (95%CI, 74.7-79.6). Women scored significantly higher in the compassion fatigue subscales (BO and STS), while older age was associated with a linear increase in CS and an exponential decrease in STS. Permanent staff scored higher in CS and lower in BO and STS. We found a higher CS score in association with high-load hospital specialties and a higher BO score in association with low-load hospital specialties.
Conclusions
The surveyed sample of Spanish pediatricians showed significant levels of compassion fatigue and secondary traumatic stress, with greater impact among younger and less experienced professionals, temporary workers and female doctors, highlighting the need for further study and targeted educational interventions.
目的了解西班牙全国儿科医学专业人员同情满意度（CS）、继发性创伤应激（STS）和工作倦怠（BO）的患病率，并确定哪些人口统计学和工作相关因素影响其发展。方法采用西班牙儿科协会（AEP）向其成员发放的在线匿名问卷，对儿科医生进行横断面研究。我们收集了人口统计变量、专业类别（儿科医学实习生/住院医师或儿科医生）、主要护理环境和就业类型、儿科特定领域、主要工作领域、一般工作经验持续时间和当前职位时间的数据。护理环境进一步分为三组：院外、小容量医院和大容量医院（新生儿科、重症监护室、姑息治疗、肿瘤科和急诊）。参与者完成了西班牙语版的职业生活质量量表（ProQOL）第5版（escala de calidad de vida Professional），以评估过去30天的三个领域- cs， STS和bo。结果共获得1112份儿科医生的反馈。女性受访者占样本的78.9%。按护理环境分布为35.6%的初级保健、34.9%的小容量医院和29.5%的大容量医院。大多数被试在ProQOL问卷的三个分量表中得分处于中间位置：同情满意度60.7% (95%CI, 57.8 ~ 63.5)，倦怠88.8% (95%CI, 86.8 ~ 90.5)，继发性创伤应激77.2% （95%CI, 74.7 ~ 79.6）。女性在同情疲劳亚量表（BO和STS）上得分显著较高，而年龄越大，CS呈线性增加，STS呈指数下降。长期雇员在社会服务方面得分较高，而在社会服务及社会服务方面得分较低。我们发现高负荷医院专科有较高的CS评分，低负荷医院专科有较高的BO评分。结论西班牙儿科医生的同情疲劳和继发性创伤应激水平显著，在年轻和经验不足的专业人员、临时工和女医生中影响更大，需要进一步研究和有针对性的教育干预。
{"title":"Satisfacción por compasión, estrés traumático secundario y agotamiento laboral: calidad de vida profesional en la pediatría española","authors":"María José Peláez Cantero , Iñigo Noriega Echevarría , Juan Pablo García Iñiguez , Felipe Verjano Sánchez , Ester Barrios Miras , Inés del Río Pastoriza , María Jesús Alijas Merillas , Francisco Moreno Madrid , Isolina Riaño Galán , José Antonio Salinas Sanz , en representación del Comité de Bioética de la Asociación Española de Pediatría","doi":"10.1016/j.anpedi.2025.504012","DOIUrl":"10.1016/j.anpedi.2025.504012","url":null,"abstract":"<div><h3>Objective</h3><div>To determine the prevalence of compassion satisfaction (CS), secondary traumatic stress (STS) and job exhaustion or burnout (BO) in medical professionals specialized in pediatrics at the national level in Spain and determine which demographic and work-related factors affect their development.</div></div><div><h3>Methods</h3><div>We conducted a cross-sectional study in pediatricians by means of questionnaires sent by the Spanish Association of Pediatrics (AEP) to its members, which were completed online and anonymously. We collected data on demographic variables, professional category (medical intern/resident [MIR] in pediatrics or pediatrician), main care setting and type of employment, specific field within pediatrics, main field of work, duration of work experience in general and time in current position. Care settings were further categorized into three groups: out-of-hospital, low-volume hospital and high-volume hospital (neonatology, intensive care, palliative care, oncology and emergency care). Participants completed the Spanish adaptation of the Professional Quality of Life Scale (ProQOL) version 5 <em>(escala de calidad de vida profesional)</em> to assess three domains—CS, STS and BO—in relation to the past 30 days.</div></div><div><h3>Results</h3><div>We obtained total of 1112 responses from pediatricians. Female respondents amounted to 78.9% of the sample. The distribution by care setting was 35.6% primary care, 34.9% low-volume hospital settings and 29.5% high-volume hospital settings. Most participants scored in the midrange of the three subscales of the ProQOL questionnaire: compassion satisfaction 60.7% (95%CI, 57.8-63.5), burnout 88.8% (95%CI, 86.8-90.5) and secondary traumatic stress 77.2% (95%CI, 74.7-79.6). Women scored significantly higher in the compassion fatigue subscales (BO and STS), while older age was associated with a linear increase in CS and an exponential decrease in STS. Permanent staff scored higher in CS and lower in BO and STS. We found a higher CS score in association with high-load hospital specialties and a higher BO score in association with low-load hospital specialties.</div></div><div><h3>Conclusions</h3><div>The surveyed sample of Spanish pediatricians showed significant levels of compassion fatigue and secondary traumatic stress, with greater impact among younger and less experienced professionals, temporary workers and female doctors, highlighting the need for further study and targeted educational interventions.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 5","pages":"Article 504012"},"PeriodicalIF":2.1,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145425828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Respondiendo a los síntomas estructurales: pediatría social hacia 2030","authors":"Raquel Páez González , Carme Vidal Palacios , Manuel Sobrino Toro","doi":"10.1016/j.anpedi.2025.503986","DOIUrl":"10.1016/j.anpedi.2025.503986","url":null,"abstract":"","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 5","pages":"Article 503986"},"PeriodicalIF":2.1,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145425897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-10-01DOI: 10.1016/j.anpedi.2025.503993
Miren Ibarzabal Arregi , Tregony Simoneau , Jonathan M. Gaffin , María Gimeno Castillo , Isabel Castro Garrido , Claudia María Chaverri Reparaz , Laura Moreno-Galarraga
Introduction
Virtual visits (VVs) were used during the pandemic as an alternative to face-to-face visits. Following this experience, the implementation of this type of telemedicine in pediatric care may offer clear advantages and benefits, but it is important to understand the perspectives of both patients and caregivers.
Material and methods
Cross-sectional descriptive with data collection through an online questionnaire distributed via QR code and hosted on REDCap completed anonymously by parents/legal guardians and adolescents (n = 426). We obtained data on sociodemographic characteristics, previous experience with telemedicine and the perceived usefulness of VVs from 316 caregivers and 110 adolescents. We analyzed the associations with demographic variables and performed comparative analyses.
Results
Both groups considered VVs a useful alternative, particularly when it came to primary care and hospital-based follow-up. Caregivers highlighted saving time (53%) and reducing school absenteeism (40%) as the main advantages, whereas adolescents emphasized reducing the environmental impact associated with the visit (48%). The ideal duration was estimated at 5 to15 minutes, and more than 95% agreed that VVs should be offered as a voluntary option. We found a higher level of acceptance among caregivers who were younger, with higher educational attainment, who did not have a private vehicle or who had greater difficulty accessing the hospital. The main concern did not involve data breaches or aspects related to confidentiality (10%), but the possibility of missing the call and therefore the appointment (33%).
Conclusions
Both patients and caregivers support the integration of VVs in pediatric care, provided they remain a voluntary and complementary alternative to in-person care. Future programs should consider user preferences, suggestions and the actual barriers they perceive.
{"title":"Visitas virtuales en pediatría: experiencias, preferencias y expectativas de pacientes y cuidadores","authors":"Miren Ibarzabal Arregi , Tregony Simoneau , Jonathan M. Gaffin , María Gimeno Castillo , Isabel Castro Garrido , Claudia María Chaverri Reparaz , Laura Moreno-Galarraga","doi":"10.1016/j.anpedi.2025.503993","DOIUrl":"10.1016/j.anpedi.2025.503993","url":null,"abstract":"<div><h3>Introduction</h3><div>Virtual visits (VVs) were used during the pandemic as an alternative to face-to-face visits. Following this experience, the implementation of this type of telemedicine in pediatric care may offer clear advantages and benefits, but it is important to understand the perspectives of both patients and caregivers.</div></div><div><h3>Material and methods</h3><div>Cross-sectional descriptive with data collection through an online questionnaire distributed via QR code and hosted on REDCap completed anonymously by parents/legal guardians and adolescents (n<!--> <!-->=<!--> <!-->426). We obtained data on sociodemographic characteristics, previous experience with telemedicine and the perceived usefulness of VVs from 316 caregivers and 110 adolescents. We analyzed the associations with demographic variables and performed comparative analyses.</div></div><div><h3>Results</h3><div>Both groups considered VVs a useful alternative, particularly when it came to primary care and hospital-based follow-up. Caregivers highlighted saving time (53%) and reducing school absenteeism (40%) as the main advantages, whereas adolescents emphasized reducing the environmental impact associated with the visit (48%). The ideal duration was estimated at 5 to15<!--> <!-->minutes, and more than 95% agreed that VVs should be offered as a voluntary option. We found a higher level of acceptance among caregivers who were younger, with higher educational attainment, who did not have a private vehicle or who had greater difficulty accessing the hospital. The main concern did not involve data breaches or aspects related to confidentiality (10%), but the possibility of missing the call and therefore the appointment (33%).</div></div><div><h3>Conclusions</h3><div>Both patients and caregivers support the integration of VVs in pediatric care, provided they remain a voluntary and complementary alternative to in-person care. Future programs should consider user preferences, suggestions and the actual barriers they perceive.</div></div>","PeriodicalId":7783,"journal":{"name":"Anales de pediatria","volume":"103 4","pages":"Article 503993"},"PeriodicalIF":2.1,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145189679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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