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Are children with neuromuscular diseases still eligible for paediatric palliative care? 患有神经肌肉疾病的儿童是否仍有资格接受儿科姑息治疗?
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-13 DOI: 10.1136/archdischild-2024-327837
Francesca Benedetti, Caterina Agosto
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引用次数: 0
A co-designed health education model to improve outcomes for children with emotional and behavioural difficulties: a study of acceptability, feasibility and impacts. 共同设计的健康教育模式,以改善有情绪和行为困难的儿童的结果:可接受性、可行性和影响的研究。
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-11 DOI: 10.1136/archdischild-2024-327119
William Garvey, Lingling Chen, Frank Oberklaid, Harriet Hiscock

Objective: To assess the acceptability and impacts of a co-designed health education model aiming to improve outcomes for children with emotional and behavioural difficulties.

Design: Qualitative focus group study.

Setting: Six primary schools from metropolitan and rural settings in the state of Victoria, Australia.

Participants: 36 educators who engaged with the intervention between July and December 2021.

Intervention: Co-designed community of practice, led by a paediatrician, with fortnightly tailored case-based discussions aiming to build educator capacity to identify and support children with emotional and behavioural difficulties.

Main outcome measures: At the completion of the intervention, all educators were invited to participate in focus groups with their school group. The lead author facilitated the groups. Semistructured questions guided the sessions focusing on the motivation of participants, their experience of the intervention, its impact on their work and suggestions for possible improvements and impact upon their own well-being. Sessions were audio recorded, and field notes were taken by the facilitator. Interpretative phenomenological analysis was carried out to evaluate the data collected.

Results: 36 of 46 educators completed six focus groups (one per school). Participants were highly motivated due to the mental health needs of their students. Participants experienced the intervention as stimulating and providing practical strategies. Participants discussed the positive impact it had on their capacity to support children with emotional and behavioural difficulties as well as their own well-being.

Conclusions: The intervention is highly acceptable to educators, and evaluating this intervention with a larger sample will inform expansion.

目的:评估共同设计的健康教育模式的可接受性和影响,旨在改善情绪和行为困难儿童的预后。设计:定性焦点小组研究。背景:澳大利亚维多利亚州的六所小学,分别来自城市和农村。参与者:在2021年7月至12月期间参与干预的36名教育工作者。干预措施:由一名儿科医生领导的合作设计的实践社区,每两周进行一次量身定制的基于案例的讨论,旨在建立教育者识别和支持有情感和行为困难的儿童的能力。主要结果测量:在干预结束时,所有教育工作者被邀请与他们的学校小组一起参加焦点小组。第一作者为这些小组提供了便利。半结构化的问题指导了会议,重点关注参与者的动机、他们对干预的体验、干预对他们工作的影响以及对可能的改进和对他们自己福祉的影响的建议。会议录音,并由调解人作现场记录。对收集到的数据进行解释性现象学分析。结果:46名教育工作者中有36名完成了6个焦点小组(每个学校一个)。由于学生的心理健康需求,参与者的积极性很高。参与者将干预体验为刺激和提供实用策略。与会者讨论了它对他们支持有情绪和行为困难的儿童的能力以及他们自己的福祉产生的积极影响。结论:教育工作者对干预措施的接受度很高,在更大的样本中评估这种干预措施将为扩展提供信息。
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引用次数: 0
Pulmonary aspiration after activated charcoal in unintentional acute poisonings in childhood. 儿童意外急性中毒中活性炭后肺误吸的研究。
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-11 DOI: 10.1136/archdischild-2024-327478
Johanna Ramirez-Romero, Claudia Cifuentes Zamalloa, Amaia Elorza Elena, Beatriz Azkunaga, Santiago Mintegi

Introduction: Although the administration of activated charcoal (AC) is considered safe, the associated risk of pulmonary aspiration explains certain reluctance of physicians to use this procedure. The objective of this study was to analyse the rate of pulmonary aspiration in children receiving AC after accidental ingestion of a toxic substance.

Methods: We carried out a substudy of a multicentre prospective registry-based cohort study including children presenting with acute poisoning to 58 paediatric emergency department (EDs) members of the Spanish Society of Pediatric Emergency Medicine between 2008 and 2022 on certain previously designated days.

Results: During the study period, we registered 1983 episodes corresponding to accidental ingestion of a toxic substance in patients less than 7 years old. Of them, 517 (26.1%) received AC, 167 (32.3%) via a nasogastric tube. In most cases, the substance swallowed was a medication (paracetamol, psychotropics, and cough and cold medications accounting for 91.6% of episodes) and 419 children (81%) were asymptomatic on arrival to the ED. Gastric lavage was performed in 81 cases (15.7%). After receiving AC, 448 children (86.6%) were managed as outpatients (329 after a less than 24-hour stay in the ED observation unit).All patients did well, and no cases of pulmonary aspiration were reported, regardless of the route of AC administration.

Conclusions: The administration of AC to children after accidental ingestion of a toxic substance seems to be safe, regardless of the route of administration. Efforts are required to improve the ED management of these children.

虽然活性炭(AC)被认为是安全的,但相关的肺误吸风险解释了医生不愿使用这种方法的原因。本研究的目的是分析意外摄入有毒物质后接受AC治疗的儿童肺误吸率。方法:我们对一项多中心前瞻性登记队列研究进行了一项亚研究,该研究包括2008年至2022年期间西班牙儿科急诊医学协会58名儿科急诊科(EDs)成员在事先指定的特定日期出现急性中毒的儿童。结果:在研究期间,我们记录了1983例与意外摄入有毒物质相对应的7岁以下患者。其中517例(26.1%)接受AC, 167例(32.3%)经鼻胃管。在大多数病例中,吞咽的物质是药物(扑热息痛、精神药物、咳嗽和感冒药占91.6%),419例(81%)儿童在到达急诊科时无症状。81例(15.7%)儿童进行了洗胃。接受AC治疗后,448名儿童(86.6%)作为门诊患者接受治疗(329名儿童在ED观察单元住院时间少于24小时)。所有患者均表现良好,无肺误吸病例报告,无论采用何种给药途径。结论:儿童意外摄入有毒物质后,无论何种给药途径,给药AC似乎是安全的。需要努力改善这些儿童的ED管理。
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引用次数: 0
Decisions under duress and the limits of data. 在胁迫和数据限制下做出的决定。
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-11 DOI: 10.1136/archdischild-2024-328250
Nir Samuel, Silvia Bressan, Ruud Gerard Nijman
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引用次数: 0
Improving consent practices in paediatric populations: what can be done? 改善儿科人群的同意做法:可以做些什么?
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-11 DOI: 10.1136/archdischild-2024-327663
Matthew Formstone, Laura Bengree, Robert Wheeler
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引用次数: 0
Full-cycle audit of the RCEM Best Practice Guidelines for the ingestion of super strong magnets in children using data from a UK prospective observational study. 使用来自英国前瞻性观察研究的数据对儿童摄入超强磁铁的RCEM最佳实践指南进行全周期审核。
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-09 DOI: 10.1136/archdischild-2024-327729
Sierra Schaffer, Jonathan J Neville, Nigel J Hall
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引用次数: 0
Opportunistic vaccination in a children's hospital outpatients department. 儿童医院门诊部的机会性疫苗接种。
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-09 DOI: 10.1136/archdischild-2024-328130
Liam Flannigan, Jonathan Cohen, Leonora Weil
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引用次数: 0
What's in a name? Children, young people and adultification bias. 名字里有什么?儿童、年轻人和成人偏见。
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-09 DOI: 10.1136/archdischild-2024-327777
Rachel Jenner, Helen Lowey, Damian Dallimore
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引用次数: 0
What do young voices tell us about medication needs during the transition to adult care? 在向成人护理过渡的过程中,年轻人的声音告诉了我们什么关于药物需求的信息?
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-09 DOI: 10.1136/archdischild-2024-328085
Ashifa Trivedi, Sarah Mohamad, Merin Thoppil, Roshnee Patel, Shivani Sethi, Naiya Patel, Anne-Lise Goddings
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引用次数: 0
'They're creepy creatures with human-like features': children's experiences of visual hallucinations in Charles Bonnet syndrome-a qualitative study. “他们是令人毛骨悚然的生物,有着类似人类的特征”:查尔斯·邦纳综合征中儿童的视觉幻觉经历——一项定性研究。
IF 4.3 3区 医学 Q1 PEDIATRICS Pub Date : 2025-01-09 DOI: 10.1136/archdischild-2024-327811
Lee Jones, Lara Ditzel-Finn, Leanne McDonald, Mariya Moosajee

Objective: Charles Bonnet syndrome (CBS) refers to the presence of visual hallucinations occurring secondary to visual impairment. The aim of this study was to understand the phenomenology of CBS in children and assess the emotional impact and support needs of patients and their families.

Design: Semistructured qualitative interview study.

Setting: UK.

Participants: Children (7-15 years) with an inherited retinal disease living with CBS and their parents.

Results: 10 participants were recruited from six families (dyadic interviews n=4; parent-only interviews n=2). Thematic analysis identified five superordinate themes relating to experiences of CBS: (1) diagnosis journey, (2) hallucination phenomenology, (3) impact of hallucinations, (4) understanding and managing hallucinations and (5) experiences of support. The impact of CBS was broad and heterogenous, causing significant disruption to patients' daily life. Limited awareness led to parents expressing largely negative healthcare experiences. Overall, the extent of knowledge and understanding of CBS was an indicator of successful self-management of the condition.

Conclusions: The journey towards understanding and managing CBS for both parents and children is challenging. Although coping strategies can lead to improved adjustment, visual hallucinations compounded the difficulty of living with a chronic visual impairment. Healthcare providers have an integral role in ensuring patients and families are effectively supported to allay fears and promote psychological well-being.

目的:查尔斯邦纳综合征(CBS)是指继发于视觉障碍的视觉幻觉。本研究的目的是了解儿童CBS的现象学,并评估患者及其家属的情绪影响和支持需求。设计:半结构化定性访谈研究。设置:英国。参与者:患有CBS的遗传性视网膜疾病的儿童(7-15岁)及其父母。结果:从6个家庭中招募了10名参与者(二元访谈n=4;家长访谈n=2)。主题分析确定了与CBS经历相关的五个主要主题:(1)诊断过程,(2)幻觉现象学,(3)幻觉的影响,(4)理解和管理幻觉,(5)支持体验。CBS的影响是广泛和异质性的,对患者的日常生活造成了显著的干扰。有限的意识导致父母表达了大部分负面的医疗保健经历。总体而言,对CBS的知识和理解程度是病情成功自我管理的一个指标。结论:理解和管理父母和孩子的CBS是具有挑战性的。尽管应对策略可以改善适应能力,但视幻觉加剧了慢性视力障碍患者的生活困难。医疗保健提供者在确保患者和家属得到有效支持以减轻恐惧和促进心理健康方面发挥着不可或缺的作用。
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引用次数: 0
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Archives of Disease in Childhood
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