Aims: The literature provides numerous medical therapies for chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) and spinal cord lesion following spinal tumor surgery separately. Spinal cord injuries from CIDP-related spinal tumors have no evidence-based rehabilitation methods. This case report discusses CIDP, spinal cord lesion owing to a spine tumor, and tertiary care interdisciplinary rehabilitation. It shows how medical knowledge, clinical reasoning, and evidence guide outcome measures, care plans, and clinical decisions help to overcome CIDP. Methods: In this report, we follow a 27-year-old male who began experiencing gradual paresthesia and mild weakening in his lower extremities for six weeks. After two months, the lumbar spine had the initial operation (laminectomy) because of the extreme pain. After the operation, he was pain-free, able to walk, and even started riding again. Pain in his lower midback, similar to cramping, and moderate swelling in his left ankle forced him into a wheelchair three years after his initial operation (intradural-extramedullary spinal space-occupying lesion at L2–L5 level). After the second operation (laminectomy), he had trouble in walking, lost sensation below the knees on both legs, and experienced mild incontinence. As the patient was confined to a wheelchair, he was standing with the help of two people. Significant main muscle group weakening was one of the first noticeable symptoms. Therapeutic exercise, balance training, functional training, and progressive endurance activities were the main components of the intervention. Berg balance score increased from 5 to 23, which is an eligible score for discharge. Results: Clinical outcomes for the man with spinal cord lesion and chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) were improved with interdisciplinary therapy. The patient underwent a first lumbar spine operation, which initially eased pain and allowed him to walk and ride again after feeling gradual paresthesia and minor weakened in his lower extremities. Conclusion: For this patient with CIDP with spinal cord lesion due to spinal tumor, effective collaborative team communication and interdisciplinary management worked to optimize clinical decision making and recovery.
{"title":"Rehabilitation of a patient with spinal cord lesion due to surgical removal of the spinal tumor with chronic idiopathic demyelinating polyneuropathy (CIDP): A case report","authors":"Md Zakir Hossain, Akter Sohana, Md. Waliul Islam, Shahid Afridi","doi":"10.5348/100056d05mh2023ra","DOIUrl":"https://doi.org/10.5348/100056d05mh2023ra","url":null,"abstract":"Aims: The literature provides numerous medical therapies for chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) and spinal cord lesion following spinal tumor surgery separately. Spinal cord injuries from CIDP-related spinal tumors have no evidence-based rehabilitation methods. This case report discusses CIDP, spinal cord lesion owing to a spine tumor, and tertiary care interdisciplinary rehabilitation. It shows how medical knowledge, clinical reasoning, and evidence guide outcome measures, care plans, and clinical decisions help to overcome CIDP. Methods: In this report, we follow a 27-year-old male who began experiencing gradual paresthesia and mild weakening in his lower extremities for six weeks. After two months, the lumbar spine had the initial operation (laminectomy) because of the extreme pain. After the operation, he was pain-free, able to walk, and even started riding again. Pain in his lower midback, similar to cramping, and moderate swelling in his left ankle forced him into a wheelchair three years after his initial operation (intradural-extramedullary spinal space-occupying lesion at L2–L5 level). After the second operation (laminectomy), he had trouble in walking, lost sensation below the knees on both legs, and experienced mild incontinence. As the patient was confined to a wheelchair, he was standing with the help of two people. Significant main muscle group weakening was one of the first noticeable symptoms. Therapeutic exercise, balance training, functional training, and progressive endurance activities were the main components of the intervention. Berg balance score increased from 5 to 23, which is an eligible score for discharge. Results: Clinical outcomes for the man with spinal cord lesion and chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) were improved with interdisciplinary therapy. The patient underwent a first lumbar spine operation, which initially eased pain and allowed him to walk and ride again after feeling gradual paresthesia and minor weakened in his lower extremities. Conclusion: For this patient with CIDP with spinal cord lesion due to spinal tumor, effective collaborative team communication and interdisciplinary management worked to optimize clinical decision making and recovery.","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"66 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139261030","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-26DOI: 10.5348/100055d05mh2023ra
Md. Monir Hossain, Nahid Parvez, Ershad Ali
Aim: To determine the number of people having swallowing difficulties among traumatic brain injury patient. Methods: This is a quantitative type of cross-sectional survey study where 117 samples were assigned purposively from Dhaka Medical College Hospital (DMCH). The Swallowing Disturbance Questionnaire (SDQ) was used for the study. Data were analyzed by using descriptive statistical analysis (SPSS = Statistics package for social science) method. Results: On an average, most of the participants 90.60% (106) were males and other participants 9.40% (11) were females. The maximum numbers of participants 25.6% (30) were in the age range 18–27 years. The majority numbers of participants 33.30% (39) were at secondary level education. The maximum numbers of respondents 22.20% (26) found were day laborer (driver, rickshaw puller, and masons). Most of the participants 63.20% (74) had injuries in 0–2 months earlier. Among 117 participants, 76 (64.95%) participants had no swallowing difficulties (dysphagia) and 41 (35.05%) participants had swallowing difficulties (dysphagia). Conclusions: Swallowing difficulty (dysphagia) is a common problem in patients with traumatic brain injury (TBI). Researchers explored the prevalence of swallowing difficulty among TBI patients. In this study, among 117 participants most of the participants 90.60% (106) were males and 9.40% (11) participants were females. So, swallowing difficulty is common in TBI patients who are associated with other condition of swallowing. According to SDQ score among 117 participants, (35.05%) participants had swallowing difficulties. So, TBI patients are vulnerable for presence of swallowing difficulties.
目的:了解外伤性脑损伤患者中出现吞咽困难的人数。方法:这是一项定量的横断面调查研究，有目的地从达卡医学院医院(DMCH)分配了117个样本。采用吞咽障碍问卷(SDQ)进行研究。数据分析采用描述性统计分析(SPSS = Statistics package for social science)方法。结果:参与者中男性占90.60%(106人)，女性占9.40%(11人)。参与者的最大数量为25.6%(30)，年龄在18-27岁之间。大多数参与者(33.30%，39人)受过中等教育。被调查者最多的是日工(司机、车夫、泥瓦匠)，占22.20%。大多数参与者(63.20%，74人)在0-2个月前受伤。117名参与者中，76名(64.95%)参与者无吞咽困难(吞咽困难)，41名(35.05%)参与者有吞咽困难(吞咽困难)。结论:吞咽困难(吞咽困难)是创伤性脑损伤(TBI)患者的常见问题。研究人员探讨了脑外伤患者中吞咽困难的患病率。本研究117名参与者中，男性占90.60%(106人)，女性占9.40%(11人)。因此，吞咽困难在TBI患者中很常见，并且伴有其他吞咽状况。117名受试者中，SDQ评分显示有吞咽困难(35.05%)。因此，创伤性脑损伤患者很容易出现吞咽困难。
{"title":"Swallowing difficulties among traumatic brain injury patients in Bangladesh","authors":"Md. Monir Hossain, Nahid Parvez, Ershad Ali","doi":"10.5348/100055d05mh2023ra","DOIUrl":"https://doi.org/10.5348/100055d05mh2023ra","url":null,"abstract":"Aim: To determine the number of people having swallowing difficulties among traumatic brain injury patient. Methods: This is a quantitative type of cross-sectional survey study where 117 samples were assigned purposively from Dhaka Medical College Hospital (DMCH). The Swallowing Disturbance Questionnaire (SDQ) was used for the study. Data were analyzed by using descriptive statistical analysis (SPSS = Statistics package for social science) method. Results: On an average, most of the participants 90.60% (106) were males and other participants 9.40% (11) were females. The maximum numbers of participants 25.6% (30) were in the age range 18–27 years. The majority numbers of participants 33.30% (39) were at secondary level education. The maximum numbers of respondents 22.20% (26) found were day laborer (driver, rickshaw puller, and masons). Most of the participants 63.20% (74) had injuries in 0–2 months earlier. Among 117 participants, 76 (64.95%) participants had no swallowing difficulties (dysphagia) and 41 (35.05%) participants had swallowing difficulties (dysphagia). Conclusions: Swallowing difficulty (dysphagia) is a common problem in patients with traumatic brain injury (TBI). Researchers explored the prevalence of swallowing difficulty among TBI patients. In this study, among 117 participants most of the participants 90.60% (106) were males and 9.40% (11) participants were females. So, swallowing difficulty is common in TBI patients who are associated with other condition of swallowing. According to SDQ score among 117 participants, (35.05%) participants had swallowing difficulties. So, TBI patients are vulnerable for presence of swallowing difficulties.","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"165 3","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136382116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-07-27DOI: 10.5348/100054d05af2023cr
Abdullah Ibn Abul Fazal, Md. Golam Kibria, Samima Akter, Suraiya Salek, Md. Mostafijur Rahman
Introduction: The most quintessential elbow condition among athletes, especially tennis players, is lateral epicondylalgia, familiar as lateral epicondylitis. Individuals employed in professions that involve frequent physical exertion or repetitive movements are also susceptible to potential risk. This case report intents to present a brief overview of the patient’s treatment and rehabilitation for lateral epicondylalgia by using specific problem-oriented treatments. Case Report: In this case report, we report a case of a 35-year-old female patient who had chronic lateral epicondylitis on right elbow for three months. On physical examination, Numeric Pain Rating Scale (NPRS), Quick DASH, and Patient-rated Tennis Elbow Evaluation score and activities were evaluated on the initial visit to physical therapy and after discharge. By the time she attended three times a week for four weeks, she received conventional therapy lateral epicondylitis. Additionally, she also received a wide range of physiotherapy to stabilize the scapula, more specifically the middle and lower trapezius and strengthening of serratus anterior muscle. This helped to correct deformities, reduce pain, and restore elbow function. The patient reported NPRS = 8/10, Quick DASH = 72.7, and PR-TEE = 89 on the initial visit. At discharge the patient reported a 3 on NPRS, Quick DASH = 15.9, and PR-TEE = 34 with ability to return to full work and no associated symptoms or complaints. Conclusion: The combination of conventional physiotherapy intervention with scapular muscle activation and strengthening was comparatively effective in relieving the patient’s lateral epicondylalgia and push the patient to a higher level of functional activity within only four weeks.
{"title":"Activation of middle and lower trapezius and strengthening of serratus anterior muscle for the rehabilitation of a patient with chronic lateral epicondylalgia: A case report","authors":"Abdullah Ibn Abul Fazal, Md. Golam Kibria, Samima Akter, Suraiya Salek, Md. Mostafijur Rahman","doi":"10.5348/100054d05af2023cr","DOIUrl":"https://doi.org/10.5348/100054d05af2023cr","url":null,"abstract":"\u0000 Introduction: The most quintessential elbow condition among athletes, especially tennis players, is lateral epicondylalgia, familiar as lateral epicondylitis. Individuals employed in professions that involve frequent physical exertion or repetitive movements are also susceptible to potential risk. This case report intents to present a brief overview of the patient’s treatment and rehabilitation for lateral epicondylalgia by using specific problem-oriented treatments.\u0000\u0000 Case Report: In this case report, we report a case of a 35-year-old female patient who had chronic lateral epicondylitis on right elbow for three months. On physical examination, Numeric Pain Rating Scale (NPRS), Quick DASH, and Patient-rated Tennis Elbow Evaluation score and activities were evaluated on the initial visit to physical therapy and after discharge. By the time she attended three times a week for four weeks, she received conventional therapy lateral epicondylitis. Additionally, she also received a wide range of physiotherapy to stabilize the scapula, more specifically the middle and lower trapezius and strengthening of serratus anterior muscle. This helped to correct deformities, reduce pain, and restore elbow function. The patient reported NPRS = 8/10, Quick DASH = 72.7, and PR-TEE = 89 on the initial visit. At discharge the patient reported a 3 on NPRS, Quick DASH = 15.9, and PR-TEE = 34 with ability to return to full work and no associated symptoms or complaints.\u0000\u0000 Conclusion: The combination of conventional physiotherapy intervention with scapular muscle activation and strengthening was comparatively effective in relieving the patient’s lateral epicondylalgia and push the patient to a higher level of functional activity within only four weeks.\u0000","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"4 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-07-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91370312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-12-29DOI: 10.5348/100053d05mi2022cr
Md Waliul Islam, F. Alam, A. Islam, Nadia Afrin Urme
Introduction: Alzheimer’s disease (AD) is a degenerative disease and dementia is a neurological condition which is significantly caused by AD. Sometimes it is found at early to middle age which is associated with cognitive and functional impairment. There is no significant curative treatment till now but only symptomatic treatment in available. Aim of this study is to describe evidence-based physiotherapy management for fall prevention associated with Alzheimer’s disease. Case Report: This is a case-based study which features an elderly man who has just fallen for the few times and has early Alzheimer’s disease (AD). In literature, exercise therapy is proven to be effective for fall management. Exercise was demonstrated by the physiotherapist and follow-up was done on a regular basis. The fall prevention exercise included core muscle strength training, cue gait training, fall prevention strategy, and task-based functional activity practice focused on Alzheimer’s symptoms. The patient was assessed with the Tinetti Patient Oriented Mobility Assessment (POMA) and Berg Balance Scale score (BBS). The initial score was 8/28 for POMA and 19/56 for BBS, and after 8 weeks it was recorded as 19/28 and 21/56. Oxford muscle grading system was used for measuring strength. Conclusion: Final outcomes suggested minor improvements in balance, strength of lower limbs, functional activities. This case study focuses on the importance of physical exercise to improve balance and prevent consequences of fall.
{"title":"Evidence-based physiotherapy management of fall prevention for the patient with Alzheimer disease: A case-based study","authors":"Md Waliul Islam, F. Alam, A. Islam, Nadia Afrin Urme","doi":"10.5348/100053d05mi2022cr","DOIUrl":"https://doi.org/10.5348/100053d05mi2022cr","url":null,"abstract":"\u0000 Introduction: Alzheimer’s disease (AD) is a degenerative disease and dementia is a neurological condition which is significantly caused by AD. Sometimes it is found at early to middle age which is associated with cognitive and functional impairment. There is no significant curative treatment till now but only symptomatic treatment in available. Aim of this study is to describe evidence-based physiotherapy management for fall prevention associated with Alzheimer’s disease.\u0000\u0000 Case Report: This is a case-based study which features an elderly man who has just fallen for the few times and has early Alzheimer’s disease (AD). In literature, exercise therapy is proven to be effective for fall management. Exercise was demonstrated by the physiotherapist and follow-up was done on a regular basis. The fall prevention exercise included core muscle strength training, cue gait training, fall prevention strategy, and task-based functional activity practice focused on Alzheimer’s symptoms. The patient was assessed with the Tinetti Patient Oriented Mobility Assessment (POMA) and Berg Balance Scale score (BBS). The initial score was 8/28 for POMA and 19/56 for BBS, and after 8 weeks it was recorded as 19/28 and 21/56. Oxford muscle grading system was used for measuring strength.\u0000\u0000 Conclusion: Final outcomes suggested minor improvements in balance, strength of lower limbs, functional activities. This case study focuses on the importance of physical exercise to improve balance and prevent consequences of fall.\u0000","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"4 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74488881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.5348/100052d05pr2022ra
P. Ryan, D. Harmon
Aims: The negative role of anger expression in chronic pain has been described. However, there is a poor understanding of the impact of anger and perceived injustice in the therapeutic alliance in this setting. The aim was to review the current literature examining anger and perceived injustice and its impact on the therapeutic alliance in the context of chronic pain. Methods: In July 2020 a search was carried out of electronic databases [Academic Search Complete, Allied and Complementary Medicine Database (AMED), Biomedical Reference Collection, General Science, Medline, PsycArticles, PsycInfo, Social Sciences Full Text and SPORTDiscus]. Further results were obtained from reference lists. Inclusion and exclusion criteria were applied using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines for systematic reviews. Results: The initial search yielded 255 results, and after duplicates were removed and inclusion and exclusion criteria applied, the final result was three papers to be reviewed. In total 225 patients were analyzed. Of the papers reviewed, all showed a negative correlation between perceived injustice and patient rating of the therapeutic alliance. Anger expression is the mediator of the proposed perceived injustice and therapeutic alliance relationship. Conclusion: The review addresses the potential role of anger expression in the modulation of the therapeutic alliance. The assessment of anger expression in chronic pain patients may be beneficial. Clinicians should be aware of its implications on the therapeutic alliance. The review highlights the need for further research which could lead to potential therapeutic interventions for such patient groups.
目的:描述了愤怒表达在慢性疼痛中的消极作用。然而，在这种情况下，对治疗联盟中愤怒和感知不公正的影响的理解很差。目的是回顾当前的文献研究愤怒和感知不公正及其影响治疗联盟在慢性疼痛的背景下。方法:于2020年7月检索电子数据库[Academic search Complete, Allied and Complementary Medicine Database (AMED)， Biomedical Reference Collection, General Science, Medline, PsycArticles, PsycInfo, Social Sciences Full Text and SPORTDiscus]。进一步的结果从参考文献中得到。纳入和排除标准采用系统评价的首选报告项目和荟萃分析(PRISMA)系统评价指南。结果:初始检索结果为255篇，剔除重复并应用纳入、排除标准后，最终结果为3篇论文。共分析225例患者。在所有被审查的论文中，所有的论文都显示了感知到的不公正与患者对治疗联盟的评价之间的负相关。愤怒表达是提出的感知不公正和治疗联盟关系的中介。结论:本综述探讨了愤怒表达在调节治疗联盟中的潜在作用。评估慢性疼痛患者的愤怒表达可能是有益的。临床医生应该意识到它对治疗联盟的影响。该综述强调了进一步研究的必要性，这可能导致对这类患者群体的潜在治疗干预。
{"title":"The effect of anger expression and perceived injustice on the formation of a beneficial therapeutic alliance in chronic pain management: A systematic review","authors":"P. Ryan, D. Harmon","doi":"10.5348/100052d05pr2022ra","DOIUrl":"https://doi.org/10.5348/100052d05pr2022ra","url":null,"abstract":"Aims: The negative role of anger expression in chronic pain has been described. However, there is a poor understanding of the impact of anger and perceived injustice in the therapeutic alliance in this setting. The aim was to review the current literature examining anger and perceived injustice and its impact on the therapeutic alliance in the context of chronic pain. Methods: In July 2020 a search was carried out of electronic databases [Academic Search Complete, Allied and Complementary Medicine Database (AMED), Biomedical Reference Collection, General Science, Medline, PsycArticles, PsycInfo, Social Sciences Full Text and SPORTDiscus]. Further results were obtained from reference lists. Inclusion and exclusion criteria were applied using Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines for systematic reviews. Results: The initial search yielded 255 results, and after duplicates were removed and inclusion and exclusion criteria applied, the final result was three papers to be reviewed. In total 225 patients were analyzed. Of the papers reviewed, all showed a negative correlation between perceived injustice and patient rating of the therapeutic alliance. Anger expression is the mediator of the proposed perceived injustice and therapeutic alliance relationship. Conclusion: The review addresses the potential role of anger expression in the modulation of the therapeutic alliance. The assessment of anger expression in chronic pain patients may be beneficial. Clinicians should be aware of its implications on the therapeutic alliance. The review highlights the need for further research which could lead to potential therapeutic interventions for such patient groups.","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76015015","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.5348/100050d05pm2021ed
Patrick Millet
both using
同时使用
{"title":"The ICF twenty years later","authors":"Patrick Millet","doi":"10.5348/100050d05pm2021ed","DOIUrl":"https://doi.org/10.5348/100050d05pm2021ed","url":null,"abstract":"both using","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"14 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88301910","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.5348/100051d05ab2021ra
Anita Blight, Sarah A. Patterson, Hannah Matson, Alisha Westerman
Aims: Community rehabilitation is a key component of health services within stroke care. Ongoing challenges exist as to how to best capture outcomes for these services, especially considering the multi-faceted service delivery and flexible focus on individual need. A goal setting tool, such as the multidisciplinary goal attainment measurement (MGAM), may be useful to objectively measure client outcomes that are meaningful and relevant to individuals within this complex environment. This study aims to review MGAM client outcomes within a stroke population in a community rehabilitation context. Methods: Pre and post goal outcome data was collected by multidisciplinary team members with stroke survivors, across the domains of impairment, activity/participation, and knowledge/information. These pre and post scores were compared with each other, as well as a measure of everyday functioning. Results: Clinically significant average change scores and statistically significant changes pre and post intervention were found across all domains on the MGAM. There were no correlations noted between MGAM and length of stay, quality of life and everyday functioning outcomes. Conclusion: As evidenced in the stroke population of this study, MGAM offers a unique outcome measure different to other clinical measures as it captures client outcomes that are relevant and meaningful to individual need across a range of domains within a multi-disciplinary setting. These formalized goal setting practices and outcomes, such as the MGAM, may assist in providing standardized outcome processes across various community rehabilitation settings.
{"title":"Multidisciplinary goal attainment measure (MGAM): A review of stroke client goal-based outcomes within a community rehabilitation setting in Brisbane, Queensland, Australia","authors":"Anita Blight, Sarah A. Patterson, Hannah Matson, Alisha Westerman","doi":"10.5348/100051d05ab2021ra","DOIUrl":"https://doi.org/10.5348/100051d05ab2021ra","url":null,"abstract":"Aims: Community rehabilitation is a key component of health services within stroke care. Ongoing challenges exist as to how to best capture outcomes for these services, especially considering the multi-faceted service delivery and flexible focus on individual need. A goal setting tool, such as the multidisciplinary goal attainment measurement (MGAM), may be useful to objectively measure client outcomes that are meaningful and relevant to individuals within this complex environment. This study aims to review MGAM client outcomes within a stroke population in a community rehabilitation context. Methods: Pre and post goal outcome data was collected by multidisciplinary team members with stroke survivors, across the domains of impairment, activity/participation, and knowledge/information. These pre and post scores were compared with each other, as well as a measure of everyday functioning. Results: Clinically significant average change scores and statistically significant changes pre and post intervention were found across all domains on the MGAM. There were no correlations noted between MGAM and length of stay, quality of life and everyday functioning outcomes. Conclusion: As evidenced in the stroke population of this study, MGAM offers a unique outcome measure different to other clinical measures as it captures client outcomes that are relevant and meaningful to individual need across a range of domains within a multi-disciplinary setting. These formalized goal setting practices and outcomes, such as the MGAM, may assist in providing standardized outcome processes across various community rehabilitation settings.","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"46 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75811125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-01-01DOI: 10.5348/100049d05mc2020ra
M. Coussens, I. Wandele, V. Pacey, F. Malfait, M. Craemer, H. Demeyer, P. Calders
Aims: Research objectively evaluating physical activity (PA) and sleep in adults with hypermobile Ehlers– Danlos syndrome (hEDS) and generalized hypermobility spectrum disorder (G-HSD) is lacking. Furthermore, it is not clear to what extent frequently occurring symptoms in these patients are related to their PA and sleep. Therefore, a cross-sectional study was performed to objectively evaluate, and identify factors contributing to, PA and sleep in adults with hEDS and G-HSD. Methods: Twenty female adults with hEDS, 23 with G-HSD, and 32 healthy controls participated. Physical activity and sleep were measured using two tri-axial ActiGraphs worn over seven consecutive days. Furthermore, questionnaires evaluating frequently occurring symptoms were completed. Regression analysis Marie Coussens1, Inge De Wandele2, Verity Pacey3, Fransiska Malfait4, Marieke De Craemer5, Heleen Demeyer6, Lies Rombaut2, Patrick Calders5 Affiliations: 1MSc, Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium; 2PhD, Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium; 3PhD, Department of Health Professions, Macquarie University, NSW, Australia; 4PhD, MD, Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium; 5PhD, Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium; 6PhD, Department of Rehabilitation Sciences, KU Leuven – University of Leuven, Leuven, Belgium; Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium. Corresponding Author: Marie Coussens, Campus Heymanslaan 10, 9000 Ghent, Belgium; Email: Marie.Coussens@ ugent.be Received: 29 July 2020 Accepted: 01 October 2020 Published: 25 November 2020 was performed to determine major contributors to PA and sleep. Results: Daily step counts were significantly lower in both patient groups compared to the control (CTR) group (p<0.04) and to the recommended 7500 steps (p≤0.001). Other PA and sleep variables did not differ between the groups. In the hEDS group, body mass index and kinesiophobia were related to PA, explaining 53% of the variance in step counts. In the G-HSD group, 18.5% of the variance in step counts could be attributed to the variance in pain impact. Conclusion: Adults with hEDS and G-HSD had lower step counts than healthy peers, which may be partially due to kinesiophobia and the impact of pain respectively. No differences in objectively measured sleep parameters were identified. Treatment focusing on fear-avoidance beliefs and pain relief could potentially increase daily step counts and benefit overall health in these patients.
目的:目前缺乏客观评价成人多动Ehlers - Danlos综合征(hEDS)和广泛性多动谱系障碍(G-HSD)患者身体活动(PA)和睡眠的研究。此外，尚不清楚这些患者频繁出现的症状在多大程度上与他们的PA和睡眠有关。因此，我们进行了一项横断面研究，以客观评估并确定影响hEDS和G-HSD成人PA和睡眠的因素。方法:女性成年hEDS患者20例，G-HSD患者23例，健康对照32例。通过连续7天佩戴两个三轴活动记录仪来测量身体活动和睡眠。此外，还完成了评估常见症状的问卷。回归分析Marie Coussens1, Inge De Wandele2, Verity Pacey3, franciska Malfait4, Marieke De Craemer5, Heleen Demeyer6, Lies rombau2, Patrick calder5所属单位:1MSc，比利时根特大学康复科学与物理治疗系;2比利时根特大学医院医学遗传学中心博士;3澳大利亚新南威尔士州麦考瑞大学卫生专业系博士;4比利时根特大学医院医学遗传学中心博士，医学博士;5比利时根特大学康复科学与物理治疗系博士;6鲁汶大学康复科学系博士，比利时鲁汶;比利时根特大学康复科学与物理治疗系。通讯作者:Marie Coussens, Campus Heymanslaan 10,9000 Ghent, Belgium;电子邮件:玛丽。Coussens@ ugent。收稿日期:2020年7月29日接受日期:2020年10月1日发布日期:2020年11月25日进行研究，以确定PA和睡眠的主要影响因素。结果:两组患者的每日步数均显著低于对照组(p<0.04)和推荐的7500步(p≤0.001)。其他PA和睡眠变量在两组之间没有差异。在hEDS组中，体重指数和运动恐惧症与PA相关，解释了53%的步数差异。在G-HSD组中，18.5%的步数差异可归因于疼痛影响的差异。结论:成人hEDS和G-HSD的步数低于健康同龄人，这可能部分是由于运动恐惧症和疼痛的影响。客观测量的睡眠参数没有差异。专注于恐惧避免信念和疼痛缓解的治疗可能会增加这些患者的每日步数，并有益于整体健康。
{"title":"Physical activity and sleep in patients with hypermobile Ehlers–Danlos syndrome and patients with generalized hypermobility spectrum disorder","authors":"M. Coussens, I. Wandele, V. Pacey, F. Malfait, M. Craemer, H. Demeyer, P. Calders","doi":"10.5348/100049d05mc2020ra","DOIUrl":"https://doi.org/10.5348/100049d05mc2020ra","url":null,"abstract":"Aims: Research objectively evaluating physical activity (PA) and sleep in adults with hypermobile Ehlers– Danlos syndrome (hEDS) and generalized hypermobility spectrum disorder (G-HSD) is lacking. Furthermore, it is not clear to what extent frequently occurring symptoms in these patients are related to their PA and sleep. Therefore, a cross-sectional study was performed to objectively evaluate, and identify factors contributing to, PA and sleep in adults with hEDS and G-HSD. Methods: Twenty female adults with hEDS, 23 with G-HSD, and 32 healthy controls participated. Physical activity and sleep were measured using two tri-axial ActiGraphs worn over seven consecutive days. Furthermore, questionnaires evaluating frequently occurring symptoms were completed. Regression analysis Marie Coussens1, Inge De Wandele2, Verity Pacey3, Fransiska Malfait4, Marieke De Craemer5, Heleen Demeyer6, Lies Rombaut2, Patrick Calders5 Affiliations: 1MSc, Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium; 2PhD, Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium; 3PhD, Department of Health Professions, Macquarie University, NSW, Australia; 4PhD, MD, Center for Medical Genetics, Ghent University Hospital, Ghent, Belgium; 5PhD, Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium; 6PhD, Department of Rehabilitation Sciences, KU Leuven – University of Leuven, Leuven, Belgium; Department of Rehabilitation Sciences and Physiotherapy, Ghent University, Ghent, Belgium. Corresponding Author: Marie Coussens, Campus Heymanslaan 10, 9000 Ghent, Belgium; Email: Marie.Coussens@ ugent.be Received: 29 July 2020 Accepted: 01 October 2020 Published: 25 November 2020 was performed to determine major contributors to PA and sleep. Results: Daily step counts were significantly lower in both patient groups compared to the control (CTR) group (p<0.04) and to the recommended 7500 steps (p≤0.001). Other PA and sleep variables did not differ between the groups. In the hEDS group, body mass index and kinesiophobia were related to PA, explaining 53% of the variance in step counts. In the G-HSD group, 18.5% of the variance in step counts could be attributed to the variance in pain impact. Conclusion: Adults with hEDS and G-HSD had lower step counts than healthy peers, which may be partially due to kinesiophobia and the impact of pain respectively. No differences in objectively measured sleep parameters were identified. Treatment focusing on fear-avoidance beliefs and pain relief could potentially increase daily step counts and benefit overall health in these patients.","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"42 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76832807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-07-10DOI: 10.5348/100046D05LP2019RA
Skovgård Petersen Lena, Dichmann Sorknæs Anne
Aims: To describe patients’ experiences of being diagnosed with multiple sclerosis (MS) and their needs for support and guidance in the first year with the disease. Methods: A qualitative, semi-structured interview study with five patients with MS was conducted. Data were transcribed and analyzed using interpretative phenomenological analysis. Results: Three themes emerged: Frightening to get the diagnosis, needs from family and network, and the importance of continuity in contacts with nurses. The participants struggled with thoughts about serious disabilities and stigmatization, although for some the disease moved more into the background after a period. The patients expressed a need for support and guidance from both families and nurses. They primarily used their families for support, and this was influenced by the family’s emotional involvement. Family members typically did not have the necessary experience to give appropriate guidance. The patients were aware of the impact the disease had on their families, and this sometimes stopped them from seeking support from them. The nurse should develop the contact with the individual patient to become familiar with the patient’s illness narrative and previous
{"title":"Patients’ experiences of being diagnosed with multiple sclerosis and their support and guidance needs in the first year of illness","authors":"Skovgård Petersen Lena, Dichmann Sorknæs Anne","doi":"10.5348/100046D05LP2019RA","DOIUrl":"https://doi.org/10.5348/100046D05LP2019RA","url":null,"abstract":"Aims: To describe patients’ experiences of being diagnosed with multiple sclerosis (MS) and their needs for support and guidance in the first year with the disease. Methods: A qualitative, semi-structured interview study with five patients with MS was conducted. Data were transcribed and analyzed using interpretative phenomenological analysis. Results: Three themes emerged: Frightening to get the diagnosis, needs from family and network, and the importance of continuity in contacts with nurses. The participants struggled with thoughts about serious disabilities and stigmatization, although for some the disease moved more into the background after a period. The patients expressed a need for support and guidance from both families and nurses. They primarily used their families for support, and this was influenced by the family’s emotional involvement. Family members typically did not have the necessary experience to give appropriate guidance. The patients were aware of the impact the disease had on their families, and this sometimes stopped them from seeking support from them. The nurse should develop the contact with the individual patient to become familiar with the patient’s illness narrative and previous","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"26 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-07-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80312927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-01-01DOI: 10.5348/100047d05js2019ra
Jessica Söderborg, K. Hellström
{"title":"Fall-related self-efficacy in adults poststroke: A cross-sectional study","authors":"Jessica Söderborg, K. Hellström","doi":"10.5348/100047d05js2019ra","DOIUrl":"https://doi.org/10.5348/100047d05js2019ra","url":null,"abstract":"","PeriodicalId":91676,"journal":{"name":"Edorium journal of disability and rehabilitation","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88158446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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