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Nurse-Administered Yale Swallow Protocol in High-Risk Hospitalised Adults for Dysphagia: Feasibility and Refinement. 护士管理的耶鲁吞咽方案在高危住院成人吞咽困难:可行性和改进。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-29 DOI: 10.1177/02692155251407317
Yu-Chun Chang, Chih-Hung Chang, Tyng-Guey Wang, Pei-Jen Lou, Ming-Chu Feng, Hsueh-Pei Wang, Ya-Wen Kuo, Cheryl Chia-Hui Chen

ObjectiveTo assess the feasibility of the Yale Swallow Protocol and refine it for parsimony.DesignCross-sectional study.SettingFour diverse units at a medical centre.ParticipantsHospitalised adults at high risk of dysphagia (i.e., those aged over 65 years, admitted for stroke, Parkinson's disease, or head and neck cancer treatment) using consecutive sampling.Main MeasuresA research nurse administered the protocol, recording adverse events, administration time, and failure rates, with an 85% failure rate threshold to assess the ceiling effect. The protocol consists of contraindications, cognitive screenings, oral motor examinations, and a 3-ounce water swallow challenge, but pass/fail decisions are based solely on contraindications and the water challenge. Parsimonious combinations of items were explored to refine and potentially shorten the protocol. The measurement precision of the refined and shortened protocols was evaluated using the Rasch model.ResultsOf the 502 patients enrolled (mean age 71; 59.8% male), no adverse events occurred, and the protocol took under 3 min. The failure rate was 41.8%, indicating no ceiling effect. Five well-fitting items were retained from cognitive screenings and oral motor examinations: location, year, tongue sticking out, lingual motion, and facial symmetry. Both refined protocol (contraindications, five well-fitting items and water challenge) and shortened protocol (contraindications and five well-fitting items) enhanced measurement precision beyond the original version.ConclusionThe Yale Swallow Protocol is a safe, quick, and ceiling-effect-free screening for identifying dysphagia, even among diverse high-risk hospitalised patients. Our study also refined the protocol, achieving better measurement precision than the original protocol.

目的评价耶鲁Swallow手术方案的可行性,并对其进行改进,使其更加简洁。DesignCross-sectional研究。在一个医疗中心设置四个不同的单位。参与者:使用连续抽样的方法,住院的有吞咽困难高风险的成年人(即65岁以上、因中风、帕金森病或头颈癌治疗而入院的成年人)。一名研究护士执行该方案,记录不良事件、给药时间和失败率,以85%的失败率阈值评估上限效应。该方案包括禁忌症、认知筛查、口腔运动检查和3盎司吞水挑战,但通过/不通过的决定仅基于禁忌症和水挑战。研究人员探索了项目的简约组合,以改进并可能缩短协议。采用Rasch模型对改进和缩短方案的测量精度进行了评价。结果入组的502例患者(平均年龄71岁,男性59.8%),无不良事件发生,治疗时间小于3分钟。不合格率为41.8%,没有上限效应。从认知筛查和口腔运动检查中保留了五个合适的项目:地点、年份、舌头伸出、舌运动和面部对称性。精炼方案(禁忌症、五项拟合项目和水挑战)和缩短方案(禁忌症和五项拟合项目)都比原始版本提高了测量精度。结论耶鲁吞咽方案是一种安全、快速、无天花板效应的吞咽困难筛查方法,适用于各种高危住院患者。我们的研究还对方案进行了改进,获得了比原始方案更好的测量精度。
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引用次数: 0
Perspectives of early mobility in the cardiac surgery intensive care unit: an interpretive description study. 心脏外科重症监护病房早期活动的观点:一项解释性描述研究。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-26 DOI: 10.1177/02692155251405747
Emily K Phillips, Amy Abegglen, Jacqueline L Hay, April Gregora, Kathy Smith, Carly Shaski, Gavin Bozek, Sarah Gilchrist, Andrew Fagan, Anna M Chudyk, Maureen C Ashe, Annette S H Schultz, Sheila O'Keefe-McCarthy, Rakesh C Arora, Todd A Duhamel

ObjectiveEarly mobility after cardiac surgery in the intensive care unit improves patient outcomes, yet implementation by clinicians remains inconsistent. To inform interventions to increase adoption, this study sought to explore clinicians' perspectives on the definition of early mobility in the cardiac surgery intensive care unit and describe perceived barriers and facilitators to implementation.DesignThis qualitative study was guided by interpretive description.SettingA tertiary hospital that performs 1000 cardiac surgeries annually.ParticipantsA total of 26 clinicians, including nurses, physicians, healthcare aides, respiratory therapists, and physiotherapists, participated.Main MeasuresThe nine focus groups and four individual interviews were audio-recorded, transcribed verbatim, and analyzed using thematic analysis.ResultsThree themes and 13 categories were created from the data: (1) Incongruent operationalization and conceptualization (across micro, meso, and macro levels), (2) uncertainty, and (3) inconsistency in mobilization practices. Themes were rooted in ambiguous definitions of "early" and "mobility," discrepancy between conceptualization and implementation of timing, varied interpretations of success, and perceived safety concerns. In addition, 4 barriers and 4 facilitators were identified and categorized into patient-care and clinician-related.ConclusionDeveloping early mobility protocols and education informed by clinicians may enhance its implementation in the cardiac surgery intensive care unit. Incorporating the perspectives of clinicians into early mobility protocol development is essential to support behaviour change and provide this beneficial care.

目的:在重症监护室进行心脏手术后早期活动可以改善患者的预后,但临床医生的实施仍然不一致。为了提高干预措施的采用率,本研究试图探索临床医生对心脏外科重症监护病房早期流动性定义的观点,并描述实施的障碍和促进因素。本定性研究以解释性描述为指导。一家三级医院,每年进行1000例心脏手术。共有26名临床医生参与,包括护士、内科医生、保健助理、呼吸治疗师和物理治疗师。主要措施对9个焦点小组和4个个人访谈进行录音,逐字转录,并使用专题分析进行分析。结果从数据中创建了三个主题和13个类别:(1)操作化和概念化不一致(跨越微观,中观和宏观层面),(2)不确定性,(3)动员实践中的不一致性。主题植根于“早期”和“机动性”的模糊定义,时间概念和实施之间的差异,对成功的不同解释以及感知到的安全问题。此外,确定了4个障碍和4个促进因素,并将其分为患者护理和临床相关。结论制定早期活动方案和临床医生的教育可提高其在心脏外科重症监护病房的实施。将临床医生的观点纳入早期行动方案的制定对于支持行为改变和提供这种有益的护理至关重要。
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引用次数: 0
The role of personal social networks in social participation for adult burn survivors: A cohort study. 成人烧伤幸存者的个人社会网络在社会参与中的作用:一项队列研究。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-18 DOI: 10.1177/02692155251406571
Huan Deng, Cailin A Abouzeid, Pengsheng Ni, Zachary Robert Rothfeld-Wehrwein, Amar Dhand, Mary D Slavin, Juan P Herrera-Escobar, Lewis E Kazis, Colleen M Ryan, Jeffrey C Schneider

ObjectiveTo describe the structure and composition of personal social networks in burn survivors and examine their associations with social participation.DesignA 6-month cohort study.SettingCommunity.Participants23 adult burn survivors.Main MeasuresParticipants completed the Personal Network Survey and Life Impact Burn Recovery Evaluation Social Interactions and Social Activities short forms at baseline, 3-month, and 6-month. Personal Network Survey assesses individual social network in two categories: network structure depicts the architecture of social connections, while network composition describes the characteristics of network members. Life Impact Burn Recovery Evaluation measures social participation after burn injury.ResultsThe average age of the 23 participants was 49.1 (SD 12.5) years, with an average of 45.0% (SD 25.9%) total body surface area burned. Friends and family were the major relationship types, while camaraderie, emotion, and advice were the major support types. Multilevel models results showed that within-person smaller (β=-0.91; 95% CI = -1.48, -0.33; p = .004) and more close-knit (β=-1.29; 95% CI = -2.22, -0.37; p = .009) networks, as well as between-person networks in which burn survivors had fewer advisors (β=-40.97; 95% CI = -69.56, -12.38; p = .008) and received less health support (β=-20.35; 95% CI = -37.91, -2.79; p = .030), were significantly associated with better social participation.ConclusionThe findings advance the current understanding of burn survivors' social networks and their impact on social participation and lay the foundation for developing targeted strategies to promote social engagement and well-being by optimizing network composition and the balance of received support.

目的描述烧伤幸存者个人社会网络的结构和组成,并探讨其与社会参与的关系。设计一个6个月的队列研究。参与者为23名成年烧伤幸存者。参与者在基线、3个月和6个月完成了个人网络调查和生活影响烧伤恢复评估社会互动和社会活动简短表格。个人网络调查从两方面评估个人社会网络:网络结构描述了社会联系的架构,而网络组成描述了网络成员的特征。生命影响烧伤恢复评价衡量烧伤后的社会参与。结果23例患者平均年龄49.1岁(SD 12.5),烧伤面积平均为45.0% (SD 25.9%)。朋友和家人是主要的关系类型,而友情、情感和建议是主要的支持类型。多水平模型结果显示,在人体内较小(β=-0.91; 95% CI = -1.48, -0.33; p =。004)和更紧密的(β= -1.29,95% CI = -2.22, -0.37; p =。在人际网络中,烧伤幸存者的顾问较少(β=-40.97; 95% CI = -69.56, -12.38; p =。008),获得较少的健康支持(β=-20.35; 95% CI = -37.91, -2.79; p =。030),与更好的社会参与显著相关。结论本研究结果有助于进一步了解烧伤幸存者的社会网络及其对社会参与的影响,并为制定有针对性的策略奠定基础,通过优化网络构成和获得支持的平衡来促进社会参与和幸福感。
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引用次数: 0
Rationale and description of Tied by Tiredness: A blended care intervention for fatigue after acquired brain injury. 疲劳捆绑的基本原理和描述:后天性脑损伤后疲劳的混合护理干预。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-16 DOI: 10.1177/02692155251407318
Ela Lazeron-Savu, Tom Smejka, Bert Lenaert, Jeanette Dijkstra, Claire Wolfs, Vera Schepers, Rudolf Ponds, Caroline van Heugten

AimThe development of a new intervention designed to reduce persistent fatigue following acquired brain injury through personalised support.RationaleFatigue is a common and long-lasting consequence after brain injury. Evidence indicates that tailored, multimodal interventions targeting individual experiences are more effective than standardised approaches.Materials and proceduresThe intervention combines real-time data collection using the Experience Sampling Method via a dedicated mHealth app with a workbook containing practical instructions and an online secure feedback environment. Patients complete eight short daily assessments for three consecutive days each week, collecting detailed information on fatigue and contextual factors such as mood, physical activities and social situations.Providers, setting, and deliveryTied by Tiredness is delivered by psychologists or occupational therapists in rehabilitation or outpatient settings to adults with acquired brain injuries aged 18 and over. In face-to-face therapy sessions, patient-collected data are used to tailor personalised feedback and advice on strategies, emphasising collaborative decision-making and active engagement.Dose and personalisationPatients attend six weekly 1-h sessions. Intervention strategies are adjusted to individual needs and goals throughout the programme, based on ongoing assessment data.Unique featuresContinuous personalisation and the integration of real-time data into therapy sessions distinguish this intervention.Purpose and implicationsThe programme aims to provide insight into the personal and environmental factors that contribute to a person's fatigue, enabling patients to implement cognitive and behavioural strategies for effective daily fatigue management. Tied by Tiredness represents a novel, practical approach to supporting self-management after brain injury.Trial registrationOverview of Medical Research in the Netherlands (OMON), ID: NL-OMON21265.

目的开发一种新的干预措施,旨在通过个性化支持减少后发性脑损伤后的持续性疲劳。理性疲劳是脑损伤后常见且持久的后果。有证据表明,针对个人经历的量身定制的多模式干预措施比标准化方法更有效。材料和程序该干预措施通过专用的移动健康应用程序结合使用体验抽样方法的实时数据收集,其中包含实用说明和在线安全反馈环境的工作簿。患者每周连续三天完成八次简短的每日评估,收集有关疲劳和环境因素(如情绪、身体活动和社交情况)的详细信息。提供者,环境和交付由心理医生或职业治疗师在康复或门诊设置提供给18岁及以上的获得性脑损伤成人。在面对面的治疗过程中,患者收集的数据被用于定制个性化的反馈和策略建议,强调协作决策和积极参与。剂量和个性化患者每周参加6次1小时的疗程。根据正在进行的评估数据,在整个方案中调整干预战略以适应个人需要和目标。独特的特点持续的个性化和实时数据整合到治疗过程中区分这种干预。目的和意义该计划旨在深入了解导致个人疲劳的个人和环境因素,使患者能够实施有效的日常疲劳管理的认知和行为策略。疲劳捆绑代表了一种新颖实用的方法来支持脑损伤后的自我管理。试验注册荷兰医学研究综述(OMON), ID: NL-OMON21265。
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引用次数: 0
Perceptions and experiences of self-initiated discontinuation of home-based exercise rehabilitation in people with coronary artery disease. 冠状动脉疾病患者自我停止家庭运动康复的认知和经验
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-15 DOI: 10.1177/02692155251405844
Shiyin Zhai, Lan Wei, Dandan Xu, Hongmei Sun, Li Sun, Xinyue Zhang

ObjectiveTo qualitatively explore the perceptions and experiences of patients with coronary artery disease regarding discontinuation of home-based exercise rehabilitation.DesignA qualitative, descriptive design was utilized in this study.SettingThis study focused on home-based exercise rehabilitation.ParticipantsA purposive sample of 24 patients who had voluntarily participated in the home-based exercise rehabilitation program was recruited.Main measuresSemistructured interviews were undertaken. Data were analyzed using a framework approach.ResultsA total of 24 participants (13 males and 11 females) from 28 to 77 years were recruited for this study to examine the endogenous and exogenous factors that influence withdrawal from exercise rehabilitation. The four major themes identified were (1) "exercise inertia," (2) "perception deviation," (3) "disruption of habit loop," and (4) "weakness in exercise literacy." These themes were further divided into 12 subthemes.ConclusionsSustained implementation of home-based exercise rehabilitation is crucial for patients with coronary heart disease. Discontinuation of exercise regimens frequently stems from patients' internal perceptions, including exercise inertia, cognitive biases, disruptions in established habit loops, and insufficient exercise literacy. Consequently, enhancing patient awareness of exercise rehabilitation and strengthening supervision of exercise routines are imperative. Establishing a multidisciplinary home-based exercise management system would further facilitate the optimization of exercise-related benefits.

目的定性探讨冠心病患者对停止居家运动康复的认知和体验。设计本研究采用定性、描述性设计。本研究的重点是基于家庭的运动康复。研究人员招募了24名自愿参加以家庭为基础的运动康复计划的患者。主要测量方法:采用半结构化访谈。使用框架方法分析数据。结果本研究共招募了24名参与者(男性13名,女性11名),年龄在28 ~ 77岁之间,研究影响运动康复退出的内源性和外源性因素。确定的四个主要主题是(1)“运动惯性”,(2)“感知偏差”,(3)“习惯循环的破坏”,以及(4)“运动素养的薄弱”。这些主题又进一步分为12个子主题。结论持续实施以家庭为基础的运动康复对冠心病患者至关重要。运动方案的中断通常源于患者的内在认知,包括运动惯性、认知偏差、既定习惯循环的中断以及运动素养不足。因此,提高患者对运动康复的认识,加强对运动程序的监督势在必行。建立多学科的家庭运动管理系统将进一步促进运动相关效益的优化。
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引用次数: 0
Assessing functional communication in patients emerging from a disorder of consciousness: Impact of task and stimuli on response accuracy. 评估意识障碍患者的功能性沟通:任务和刺激对反应准确性的影响。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-12 DOI: 10.1177/02692155251403995
Amy Pundole, Sophie Duport, Victoria Fleming, Suzanne Beeke, Rosemary Varley

ObjectiveTo explore how task and stimuli influence response accuracy in assessing functional communication in adults emerging from a Prolonged Disorder of Consciousness (PDOC).SettingSpecialist post-acute brain injury assessment centre.SubjectsTwelve adults (7 male; 5 female) emerging from PDOC, recruited consecutively between June 2021 and August 2023.MethodsA prospective study exploring the impact of task and stimuli on response accuracy. Yes/no questions and spoken word-to-referent (colour/object) matching tasks were presented. Stimuli were controlled for psycholinguistic variables to reduce linguistic confounds in the assessment of consciousness. Accuracy was compared to a standard measure (visually based situational yes/no questions from the Coma Recovery Scale-Revised).ResultsResponses were most accurate for word-to-referent matching tasks compared to yes/no questions (t(23) = -6.49, P < 0.001, d = 1.33), with greater accuracy to colour than object stimuli (t(23) = 2.79, P = 0.01, d = 0.57). Participants also responded with greater accuracy to word-to-referent matching and yes/no questions involving colours and objects compared to the Coma Recovery Scale-Revised situational yes/no questions.ConclusionTask influences accuracy of responses in assessing return of consciousness. The advantage of colours over objects can be attributed to simpler visual processing and higher lexical frequency of these words. The current standard situational yes/no tasks from the Coma Recovery Scale-Revised resulted in lowest scores and should not be relied upon as the only measure of functional communication.

目的探讨任务和刺激对成人长时间意识障碍(PDOC)功能性沟通评估反应准确性的影响。设置专科急性脑损伤后评估中心。12名成年患者(7名男性,5名女性)从PDOC中脱颖而出,于2021年6月至2023年8月连续招募。方法采用前瞻性研究探讨任务和刺激对反应准确性的影响。提出是/否问题和口头词对指物(颜色/物体)匹配任务。对心理语言变量的刺激进行控制,以减少意识评估中的语言混淆。准确度与标准测量(昏迷恢复量表-修订版中基于视觉的情景是/否问题)进行比较。结果与是/否问题相比,单词-所指匹配任务的回答最准确(t(23) = -6.49, P d = 1.33),对颜色的回答比物体刺激的回答更准确(t(23) = 2.79, P = 0.01, d = 0.57)。与昏迷恢复量表-修正情景性是/否问题相比,参与者对词与指的匹配和涉及颜色和物体的是/否问题的回答也更准确。结论任务对评估意识恢复反应的准确性有影响。颜色相对于物体的优势可以归因于更简单的视觉处理和这些词的更高词汇频率。《昏迷恢复量表-修订版》中当前标准的情境“是/否”任务得分最低,不应作为功能性沟通的唯一衡量标准。
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引用次数: 0
ADAPT-NMD: A hybrid II feasibility study of a co-designed self-management support intervention for people living with neuromuscular disorders. ADAPT-NMD:一项针对神经肌肉疾病患者共同设计的自我管理支持干预的混合可行性研究。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-10 DOI: 10.1177/02692155251403989
Laurence Edward Lee, Stefan Tino Kulnik, Annette Boaz, Gita M Ramdharry

ObjectiveTo examine the feasibility and acceptability of Neuromuscular Bridges, a personalised self-management support intervention adapted for people with neuromuscular disorders, and to explore contextual factors influencing its implementation in specialist care.DesignA hybrid type II feasibility study employing mixed methods to evaluate clinical and implementation feasibility, incorporating quantitative outcomes with qualitative process evaluation.SettingA specialist neuromuscular tertiary centre in the United Kingdom.ParticipantsThirty-three adults with diverse neuromuscular disorders and six trained clinicians (physiotherapists and clinical nurse specialists).InterventionNM-Bridges, a co-designed, person-centred self-management support intervention delivered in a single clinical consultation, underpinned by the Bridges approach and Social Cognitive Theory.Main measuresRecruitment, retention, fidelity, and patient-reported outcomes were collected at baseline, post-intervention, and 3-month follow-up. Implementation was assessed using validated instruments and qualitative interviews.ResultsOf 106 eligible patients invited, 33 (31.1%) enrolled, with full retention and no missing data. Quantitative outcomes showed moderate pre- and post-improvements in patient-centred care, especially goal setting and activation. Small positive changes were noted in social participation, emotional well-being, mood, and self-efficacy, with effects generally sustained at follow-up. Fidelity was high, and implementation measures indicated strong clinician engagement. Qualitative data reinforced these findings, highlighting collaboration, relevance, and acceptability within routine care.ConclusionNM-Bridges was feasible and acceptable within specialist neuromuscular care. By integrating clinical outcomes with implementation learning, this hybrid feasibility study provides early evidence and a foundation for future evaluation of self-management support as a relational and sustainable component of neuromuscular rehabilitation.

目的探讨神经肌肉桥这一针对神经肌肉疾病患者的个性化自我管理支持干预的可行性和可接受性,并探讨影响其在专科护理中实施的环境因素。设计一项混合II型可行性研究,采用混合方法评估临床和实施可行性,结合定量结果和定性过程评估。英国专业的神经肌肉三级中心。参与者:33名患有各种神经肌肉疾病的成年人和6名训练有素的临床医生(物理治疗师和临床护理专家)。interonnm -Bridges,一个共同设计的,以人为本的自我管理支持干预,在一次临床咨询中提供,以桥梁方法和社会认知理论为基础。在基线、干预后和3个月随访时收集招募、保留、保真度和患者报告的结果。使用有效的工具和定性访谈来评估实施情况。结果入选的106例符合条件的患者中,33例(31.1%)入组,数据全部保留,无遗漏。定量结果显示,在以患者为中心的护理方面,尤其是目标设定和激活方面,有适度的前后改善。在社会参与、情绪健康、情绪和自我效能方面都有微小的积极变化,这些变化在随访中通常持续存在。保真度高,实施措施表明临床医生参与程度高。定性数据强化了这些发现,强调了常规护理中的协作性、相关性和可接受性。结论纳米桥在神经肌肉专科护理中是可行和可接受的。通过将临床结果与实施学习相结合,这项混合可行性研究为未来评估自我管理支持作为神经肌肉康复的相关和可持续组成部分提供了早期证据和基础。
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引用次数: 0
Reliability and concurrent validity of the Courage Kenny-Fibrosis Grading Scale for breast or head and neck cancer-related fibrosis. Courage kenny -纤维化分级量表对乳腺癌或头颈癌相关纤维化的信度和同时效度
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-09 DOI: 10.1177/02692155251403994
Laura Gilchrist, Laura Franco, Monica Heinen, Carolyn Holm, Margaret Weightman

ObjectiveFibrosis can develop after surgical or radiation treatments for cancer and is often seen in rehabilitation settings, yet few measures exist for standardized assessment. The aims of this study are to describe the validity and reliability of a new measure for cancer treatment-related fibrosis in survivors of breast or head/neck cancer.DesignFace validity of the Courage Kenny-Fibrosis Grading Scale was established using an iterative survey process. Reliability and concurrent validity were assessed using repeated measures by blinded raters and concurrent assessment with the Common Terminology Criteria for Adverse Events, Late Effects Normal Tissue-Subjective, Objective, Management, Analytic scales, and adheremeter rating of skin mobility.SettingOutpatient rehabilitation clinic.ParticipantsQuestionnaires were completed by 43 clinicians and researchers in the first round of face validation and 21 in the second. For reliability and concurrent validity, 41 cancer survivors, including 26 post-breast cancer and 15 post-head/neck cancer, were assessed by four physical therapists.ResultsAdequate face validity of the final version was established using responses from 21 clinicians. Inter-rater and intra-rater reliability of the final scale was adequate at ICC = 0.810 and 0.941, respectively. Associations between the Fibrosis Grading Scale and the Common Terminology Criteria for Adverse Events and Late Effects Normal Tissue scales were moderately significant (rS = 0.290-0.574, p < 0.05), indicating concurrent validity.ConclusionAfter development of the Fibrosis Grading Scale using an iterative survey process, sufficient reliability and validity was established to use as an assessment in breast and head/neck cancer survivors.

目的癌症手术或放射治疗后可发生纤维化,常见于康复环境,但缺乏标准化评估的措施。本研究的目的是描述乳腺癌或头颈癌幸存者癌症治疗相关纤维化的新措施的有效性和可靠性。采用迭代调查过程建立Courage Kenny-Fibrosis分级量表的DesignFace效度。信度和并发效度通过盲法评分者和不良事件、后期效应、正常组织——主观、客观、管理、分析量表和皮肤活动性粘附度评定的通用术语标准的重复测量进行评估。门诊康复诊所。43名临床医生和研究人员在第一轮面部验证中完成问卷,21名在第二轮面部验证中完成问卷。对于信度和同时效度,41名癌症幸存者,包括26名乳腺癌患者和15名头颈癌患者,由4名物理治疗师进行评估。结果采用21名临床医生的反馈,确定了最终版本具有足够的面效度。最终量表的评量表间信度和评量表内信度均足够,ICC分别为0.810和0.941。纤维化分级量表与不良事件和晚期反应通用术语标准正常组织量表之间的相关性为中度显著(rS = 0.290-0.574, p .574)
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引用次数: 0
Exploring the digital landscape: A scoping review of Achilles tendinopathy education on public websites and in randomised controlled trials. 探索数字景观:在公共网站和随机对照试验中对跟腱病教育的范围审查。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-08 DOI: 10.1177/02692155251397620
Peter Malliaras, Adrian Mallows, Sean McAullife, Ruth L Chimenti, Wenbo Chen, Jie Deng, Jinjian Jiang, Shivam Sharma, Morgan Potter, Hayley Smitheman, Igor Sancho, Sanam Tavakkoli Oskouei, Peter Nicklen, Jaryd Bourke, Timothy Fleagle, Diego Ruffino, Karin Silbernagel, Robert-Jan de Vos

ObjectivesThe aims of this scoping review were to (i) map education from randomised controlled trials and public websites for Achilles tendinopathy to pre-defined categories and (ii) appraise the quality of education available.Data sourcesSources were extracted via a search of multiple databases and from the first three pages of targeted Google searches in English, Chinese, and Spanish (websites).Review methodsThe frequency of sources that reported on each pre-defined category (n = 15) was reported, and the content within each category was summarised descriptively. Quality and reliability were assessed with the DISCERN tool (1-5 points, higher score means higher quality and trustworthiness). Understandability and actionability of education was assessed using Patient Education Materials Assessment tool (0-100%, higher scores indicate more comprehensible information with clearer messages and more identifiable actions). Alignment with current international guidelines was reported.Results119 randomised controlled trials and 385 websites were included. Education coverage was better in websites compared to trials, particularly related to pathology and management. Conflicting advice was found on websites (e.g. when treatment should be sought). Quality (1.6 ± 0.5) and reliability (2.1 ± 0.7) of education were poor, with low scores for treatment risks and shared decision-making. Understandability was moderate (59%) and actionability was poor (28%). Alignment with clinical guidelines was low, with key information commonly omitted.ConclusionEducational sources found in randomised controlled trials and public websites on Achilles tendinopathy are poorly aligned with clinical guidelines. The information gaps in these sources mean that they are unhelpful to patients and may steer them towards inappropriate decisions. The review highlights the need for the development of accurate, meaningful, and evidence-based educational resources for individuals with Achilles tendinopathy.

目的本综述的目的是(i)将跟腱病的随机对照试验和公共网站的教育映射到预先定义的类别,(ii)评估现有教育的质量。数据源通过对多个数据库的搜索以及从目标谷歌搜索的前三个页面(英文、中文和西班牙语)(网站)中提取数据源。回顾方法报告每个预定义类别(n = 15)的来源频率,并对每个类别中的内容进行描述性总结。使用DISCERN工具评估质量和可靠性(1-5分,分数越高意味着质量和可信度越高)。采用患者教育材料评估工具对教育的可理解性和可操作性进行评估(0-100%,得分越高表明信息越可理解,信息更清晰,行动更可识别)。报告了与现行国际准则的一致性。结果共纳入119项随机对照试验和385个网站。与试验相比,网站的教育覆盖面更好,特别是与病理学和管理相关的内容。在网站上发现了相互矛盾的建议(例如,何时应该寻求治疗)。教育质量(1.6±0.5)和信度(2.1±0.7)较差,治疗风险和共同决策得分较低。可理解性中等(59%),可操作性较差(28%)。与临床指南的一致性较低,关键信息通常被省略。结论在随机对照试验和公共网站中发现的关于跟腱病的教育资料与临床指南的一致性较差。这些来源的信息差距意味着它们对患者没有帮助,并可能引导他们做出不适当的决定。该综述强调需要为跟腱病患者开发准确、有意义和基于证据的教育资源。
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引用次数: 0
Prioritizing quality of geriatric rehabilitation from the older adults' perspective: A nominal group technique study. 老年人视角下的老年康复质量优先:一项名义小组技术研究。
IF 2.9 3区 医学 Q1 REHABILITATION Pub Date : 2025-12-04 DOI: 10.1177/02692155251404003
Anne L Lubbe, Wim G Groen, Marjon van Rijn, Deborah C Mittelmeijer, Cees Mpm Hertogh, Bianca M Buurman, Margriet C Pol

ObjectiveTo identify and prioritize aspects of quality in geriatric rehabilitation from the perspective of older adults.DesignQualitative study using a structured Nominal Group Technique.SettingThree nominal group technique sessions were conducted in geriatric rehabilitation settings in the Netherlands.ParticipantsWe included older adults admitted to geriatric rehabilitation, Dutch proficiency, the ability to communicate and engage in group discussions, and an intention to return to independent living.InterventionParticipants engaged in structured nominal group technique sessions. Each session included five steps: introduction, idea generation, exchange of ideas, discussion, and ordering and rankingMain measuresAudio-recorded sessions were transcribed verbatim and analyzed using a combined inductive and deductive coding. Quality aspects were prioritized based on their summed ranking scores, relative importance, and selection frequency.ResultsEighteen older adults were included. Participants identified five key priorities for quality in geriatric rehabilitation: (1) good preparation with clear expectations, (2) well-organized therapy and care, (3) relationships with healthcare professionals that acknowledge individual needs, (4) clear, respectful communication, and (5) autonomy in treatment decision-making. The qualitative analysis supported these priorities with three overarching themes: the value of a supportive environment, feeling heard and understood, and the need for guidance and involvement.ConclusionThis study provides priorities for improving quality in geriatric rehabilitation, according to the experiences of older adults and offers direction for implementation in clinical practice.

目的从老年人的角度确定老年康复质量的各个方面并进行排序。设计定性研究使用一个结构化的名义组技术。在荷兰的老年康复机构进行了三次名义上的小组技术会议。参与者包括接受老年康复治疗的老年人,荷兰语熟练程度,沟通能力和参与小组讨论的能力,以及回归独立生活的意愿。干预:参与者参加有组织的名义小组技术会议。每次会议包括五个步骤:介绍、想法产生、交流、讨论、排序和排名。主要措施录音会议逐字记录,并使用归纳和演绎编码相结合的方法进行分析。质量方面是根据它们的总排名分数、相对重要性和选择频率来优先排序的。结果共纳入18名老年人。参与者确定了老年康复质量的五个关键优先事项:(1)有明确期望的良好准备;(2)组织良好的治疗和护理;(3)与医疗保健专业人员的关系,承认个人需求;(4)清晰、尊重的沟通;(5)治疗决策的自主权。定性分析以三个总体主题支持这些优先事项:支持性环境的价值,感觉被倾听和理解,以及指导和参与的需要。结论根据老年人的经验,本研究为提高老年康复质量提供了重点,并为临床实践提供了实施方向。
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Clinical Rehabilitation
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