Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.15
S. Goss, S. Sivell, E. Baddeley, Lowri A. Griffiths, Gladys Makuta, A. Byrne
{"title":"16 Achieving consistency and consensus in evaluating the impact of palliative care service interventions: development of an effectiveness core outcome set for adult palliative care services in Wales","authors":"S. Goss, S. Sivell, E. Baddeley, Lowri A. Griffiths, Gladys Makuta, A. Byrne","doi":"10.1136/spcare-2023-mcrc.15","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.15","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114902638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.6
Elsa Joan Durhuus Johannesen, H. Timm, Ása Róin
{"title":"7 Caregivers´ experiences of end-of-life caregiving in a home care setting","authors":"Elsa Joan Durhuus Johannesen, H. Timm, Ása Róin","doi":"10.1136/spcare-2023-mcrc.6","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.6","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122689489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.50
Mark Robinson, Justin Robinson, A. Pring, J. Verne
{"title":"51 Changing needs and geographical variation in palliative care for lung cancer","authors":"Mark Robinson, Justin Robinson, A. Pring, J. Verne","doi":"10.1136/spcare-2023-mcrc.50","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.50","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130041601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.55
Tayler Kern, H. Drury-Smith
{"title":"56 Spiritual care – neglected through professional practice or taboo? A focus on palliative and end-of-life care practice in nursing homes","authors":"Tayler Kern, H. Drury-Smith","doi":"10.1136/spcare-2023-mcrc.55","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.55","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130898406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.24
Diana Teggi
{"title":"25 The role of anticipatory prescribing in care homes: identifying dying, complying with regulations and preventing death in hospital – a qualitative study","authors":"Diana Teggi","doi":"10.1136/spcare-2023-mcrc.24","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.24","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131116121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.33
Charlotte Brigden, K. Marks, Wendy Hills, Sophie Van Walwyk
{"title":"34 Primary care and hospice engagement with patients to think, talk or act on current or future end of life needs: the THINK, TALK, ACT (TTA) pilot","authors":"Charlotte Brigden, K. Marks, Wendy Hills, Sophie Van Walwyk","doi":"10.1136/spcare-2023-mcrc.33","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.33","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114671272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.43
Beth Mulhern, Kasia Patynowska, T. McConnell
IntroductionAt the advent of COVID-19 the bereavement support service in Belfast Hospice had to quickly adapt to new ways of working to ensure continued service provision, with counsellors transitioning to video-link platforms and telephone to facilitate client sessions.However, counsellors reported challenges building a rapport with clients online, and had concerns that the client's grief was compounded by loneliness and social isolation.In response, the Marie Curie walk and walk bereavement support project, in partnership with the National Trust, was proposed as an innovative solution. Taking traditional counselling sessions outdoors meant the counsellors could maintain adherence to COVID-19 guidance, while supporting the mental health and wellbeing of bereaved clients.Furthermore, nature therapy has been shown to enhance both physical and mental health, reducing symptoms of depression. Whilst there are studies that demonstrate the benefit of nature therapy for mental health outcomes, research is limited in bereavement care.AimsSupporting the mental health and wellbeing of bereaved clients.MethodsA pilot Walk and Talk bereavement therapy brings together the skilful, compassionate counselling work of Marie Curie staff and volunteers in beautiful, restorative National Trust spaces. We plan to conduct semi-structured interviews with service users to explore their experience of walk and talk therapy.ResultsTo date, the feedback received has been overwhelmingly positive, this is based on informal verbal feedback gathered by counsellors at the end of each session.ConclusionsDespite the physical distancing barriers faced during COVID-19, staff and volunteers were able to overcome these challenges through innovation, creativity, and flexibility, to provide person-centred, compassionate bereavement care and supportImpactWork is ongoing, but we hope to continue to develop the walk and talk bereavement service with the National Trust, to support the mental and physical health and wellbeing of people affected by dying, death and bereavement.
{"title":"44 Walk and talk bereavement support: piloting an innovative service at Marie Curie Northern Ireland","authors":"Beth Mulhern, Kasia Patynowska, T. McConnell","doi":"10.1136/spcare-2023-mcrc.43","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.43","url":null,"abstract":"IntroductionAt the advent of COVID-19 the bereavement support service in Belfast Hospice had to quickly adapt to new ways of working to ensure continued service provision, with counsellors transitioning to video-link platforms and telephone to facilitate client sessions.However, counsellors reported challenges building a rapport with clients online, and had concerns that the client's grief was compounded by loneliness and social isolation.In response, the Marie Curie walk and walk bereavement support project, in partnership with the National Trust, was proposed as an innovative solution. Taking traditional counselling sessions outdoors meant the counsellors could maintain adherence to COVID-19 guidance, while supporting the mental health and wellbeing of bereaved clients.Furthermore, nature therapy has been shown to enhance both physical and mental health, reducing symptoms of depression. Whilst there are studies that demonstrate the benefit of nature therapy for mental health outcomes, research is limited in bereavement care.AimsSupporting the mental health and wellbeing of bereaved clients.MethodsA pilot Walk and Talk bereavement therapy brings together the skilful, compassionate counselling work of Marie Curie staff and volunteers in beautiful, restorative National Trust spaces. We plan to conduct semi-structured interviews with service users to explore their experience of walk and talk therapy.ResultsTo date, the feedback received has been overwhelmingly positive, this is based on informal verbal feedback gathered by counsellors at the end of each session.ConclusionsDespite the physical distancing barriers faced during COVID-19, staff and volunteers were able to overcome these challenges through innovation, creativity, and flexibility, to provide person-centred, compassionate bereavement care and supportImpactWork is ongoing, but we hope to continue to develop the walk and talk bereavement service with the National Trust, to support the mental and physical health and wellbeing of people affected by dying, death and bereavement.","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129787213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.29
E. Borgstrom, C. Henry, J. Jordan, Una St-Ledger
{"title":"30 Learning from engagement with and Use of the ambitions for palliative and end of life care national framework","authors":"E. Borgstrom, C. Henry, J. Jordan, Una St-Ledger","doi":"10.1136/spcare-2023-mcrc.29","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.29","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123156992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.8
A. P. Susilo, Laila Isrona, Rizky Loviana Roza, Khayyirannisa Sitismart, Adhiya Azni
{"title":"9 A cross-cultural validation of the good death questionnaires in Indonesian","authors":"A. P. Susilo, Laila Isrona, Rizky Loviana Roza, Khayyirannisa Sitismart, Adhiya Azni","doi":"10.1136/spcare-2023-mcrc.8","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.8","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122450209","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.9
L. Wright, C. Faull, Penny Smith, L. Birt
{"title":"10 Empowerment and education for family carers supporting someone at end-of-life: an evaluation of hospice-led community sessions","authors":"L. Wright, C. Faull, Penny Smith, L. Birt","doi":"10.1136/spcare-2023-mcrc.9","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.9","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114200956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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