Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.26
M. Wood, C. Walshe, A. Nwosu
{"title":"27 Going beyond words: benefits and challenges of visual research methods for qualitative research in palliative care","authors":"M. Wood, C. Walshe, A. Nwosu","doi":"10.1136/spcare-2023-mcrc.26","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.26","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131595234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.19
S. Sivell, D. Price, M. Longo, Andrew Holness, Sarah Holmes, C. Millington-Sanders, G. Skerry, A. Carson-Stevens
{"title":"20 Protocol to evaluate the implementation of the royal college of general practitioners and Marie Curie daffodil standards in UK general practice","authors":"S. Sivell, D. Price, M. Longo, Andrew Holness, Sarah Holmes, C. Millington-Sanders, G. Skerry, A. Carson-Stevens","doi":"10.1136/spcare-2023-mcrc.19","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.19","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116493914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.25
Daniella Holland-Hart, Michelle Edwards, Mala Mann, M. Longo, A. Byrne, A. Nelson
{"title":"26 A rapid realist review: how shared decision-making approaches and patient aids influence treatment decisions for patients with advanced (non-curative) cancer?","authors":"Daniella Holland-Hart, Michelle Edwards, Mala Mann, M. Longo, A. Byrne, A. Nelson","doi":"10.1136/spcare-2023-mcrc.25","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.25","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114720410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.23
K. Bristowe, Liadh Timmins, D. Braybrook, Steve Marshall, A. Pitman, K. Johnson, E. Day, Paul Clift, Ruth Rose, D. Yi, K. Almack, Richard Harding
{"title":"24 LGBT+ partner bereavement: an in depth qualitative interview study and appraisal of the Acceptance-Disclosure Model of LGBT+ bereavement","authors":"K. Bristowe, Liadh Timmins, D. Braybrook, Steve Marshall, A. Pitman, K. Johnson, E. Day, Paul Clift, Ruth Rose, D. Yi, K. Almack, Richard Harding","doi":"10.1136/spcare-2023-mcrc.23","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.23","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121443330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.18
A. Newman, E. Baddeley, K. Seddon, Julie Hepburn, Bob McAlister, S. Peddle, K. Cleary, A. Nelson
{"title":"19 Launch of the public involvement in research impact toolkit","authors":"A. Newman, E. Baddeley, K. Seddon, Julie Hepburn, Bob McAlister, S. Peddle, K. Cleary, A. Nelson","doi":"10.1136/spcare-2023-mcrc.18","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.18","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132935461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.34
J. Goodrich, Inez Gaczkowska, Alice M Firth, R. Harding, F. Murtagh, C. Evans
{"title":"35 ‘Plugging the gaps’: healthcare professionals’ responses to challenges in providing palliative care out-of-hours in the community","authors":"J. Goodrich, Inez Gaczkowska, Alice M Firth, R. Harding, F. Murtagh, C. Evans","doi":"10.1136/spcare-2023-mcrc.34","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.34","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114268769","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.13
K. McGuigan, G. Laurente, Andrena Christie, C. Carswell, Conor Moran, M. Yaqoob, S. Rej, P. Gilbert, C. Mckeaveney, C. McVeigh, C. Tierney, J. Reid, I. Walsh, Helen Noble
{"title":"14 Effectiveness of interventions for informal caregivers of people with advanced chronic illness: a systematic review","authors":"K. McGuigan, G. Laurente, Andrena Christie, C. Carswell, Conor Moran, M. Yaqoob, S. Rej, P. Gilbert, C. Mckeaveney, C. McVeigh, C. Tierney, J. Reid, I. Walsh, Helen Noble","doi":"10.1136/spcare-2023-mcrc.13","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.13","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122682642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.1
Jodie Crooks, C. Shulman, K. Flemming, E. Shaw, B. Hudson
{"title":"1 Understanding aims, successes and challenges of palliative care and homelessness projects across the UK","authors":"Jodie Crooks, C. Shulman, K. Flemming, E. Shaw, B. Hudson","doi":"10.1136/spcare-2023-mcrc.1","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.1","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122316510","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.14
S. Goss, Renata Mirra, M. Longo, S. Sivell, K. Seddon, A. Torrens-Burton, E. Sutton, A. Nelson, A. Byrne, L. Selman, E. Harrop
IntroductionMillions became bereaved during the pandemic, with many facing challenges accessing support.AimsTo describe the use and helpfulness of different types of support in a cohort of people bereaved during the pandemic in the UK.MethodsA longitudinal survey of people bereaved during the pandemic over four time points. At 7- and 13-months post-bereavement (T2 and T3), participants rated the helpfulness of support used and described how they had been helped by this support.Results420 participants completed at least one follow-up survey (T2, T3 or both). Most respondents were female (88.3%) and had lost a parent (57.6%) or partner (24.3%), with 3.3% from a minoritised ethnic background. Support from family and friends, reported by 89.3% of participants, was rated as ‘quite helpful' (mean rating 4.3 out of 5), and included help with practical tasks, expressing feelings/sharing grief, remembering, feeling cared for and less isolated. The most commonly used form of other support was 1:1 support (e.g. counselling), used by 40.5% of participants, with an average helpfulness rating of 4.1, helping participants feel listened to and process their grief. Online community support, used by 31.0% of participants, was also rated ‘quite helpful' (3.9), enabling sharing with similar others, feeling understood and less alone. Informal and formal bereavement groups were rated as similarly helpful (4.2) while helplines and specialist mental health support were slightly less helpful (3.6) (used by 9.3%, 4.8%, 7.1% and 4.5% of participants, respectively).ConclusionsResults demonstrate the perceived benefits and helpfulness of different forms of bereavement support used during the pandemic.ImpactThese findings highlight the value of informal as well as formal support, particularly bereavement counselling. Policy makers must attend to the foundational and second tiers of the public health model of bereavement support, supporting communities as well as services.
{"title":"15 Bereavement during COVID-19: findings from a UK-wide online survey on the use and perceived helpfulness of informal and formal support during the pandemic","authors":"S. Goss, Renata Mirra, M. Longo, S. Sivell, K. Seddon, A. Torrens-Burton, E. Sutton, A. Nelson, A. Byrne, L. Selman, E. Harrop","doi":"10.1136/spcare-2023-mcrc.14","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.14","url":null,"abstract":"IntroductionMillions became bereaved during the pandemic, with many facing challenges accessing support.AimsTo describe the use and helpfulness of different types of support in a cohort of people bereaved during the pandemic in the UK.MethodsA longitudinal survey of people bereaved during the pandemic over four time points. At 7- and 13-months post-bereavement (T2 and T3), participants rated the helpfulness of support used and described how they had been helped by this support.Results420 participants completed at least one follow-up survey (T2, T3 or both). Most respondents were female (88.3%) and had lost a parent (57.6%) or partner (24.3%), with 3.3% from a minoritised ethnic background. Support from family and friends, reported by 89.3% of participants, was rated as ‘quite helpful' (mean rating 4.3 out of 5), and included help with practical tasks, expressing feelings/sharing grief, remembering, feeling cared for and less isolated. The most commonly used form of other support was 1:1 support (e.g. counselling), used by 40.5% of participants, with an average helpfulness rating of 4.1, helping participants feel listened to and process their grief. Online community support, used by 31.0% of participants, was also rated ‘quite helpful' (3.9), enabling sharing with similar others, feeling understood and less alone. Informal and formal bereavement groups were rated as similarly helpful (4.2) while helplines and specialist mental health support were slightly less helpful (3.6) (used by 9.3%, 4.8%, 7.1% and 4.5% of participants, respectively).ConclusionsResults demonstrate the perceived benefits and helpfulness of different forms of bereavement support used during the pandemic.ImpactThese findings highlight the value of informal as well as formal support, particularly bereavement counselling. Policy makers must attend to the foundational and second tiers of the public health model of bereavement support, supporting communities as well as services.","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129166540","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.51
Cristina Felizardo, Paula Santos, Margarida Cerqueira
{"title":"52 Let’s talk about grief: building a theoretical framework for grief counselling with systematic literature review","authors":"Cristina Felizardo, Paula Santos, Margarida Cerqueira","doi":"10.1136/spcare-2023-mcrc.51","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.51","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130231061","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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