Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.28
A. Pring, Marika Kulesza, N. duPreez, N. Bowtell, J. Verne
IntroductionPlace of death is a metric used for planning and monitoring palliative care (PC). The COVID-19 pandemic has seen a significant increase in cancer deaths at home.AimsTo determine whether pandemic increases in the percentage of cancer deaths at home differ by ethnic groupMethodsData source: death registrations in England, 2018 to 2021 with underlying cause of death cancer (ICD-10 C00-C97). Ethnic group derived from linked hospital episode data. The age and deprivation distribution across ethnic groups varies and each has a strong independent effect on place of death. so, calculated percentage deaths at home were standardised by these factors to make them comparable. Analysis concentrated on the largest ethnic groups: White, Asian/Asian British (Asian), and Black/African/Caribbean/Black British (Black). Comparisons were made between time periods by analysis of the ratio of percentages 2020–2021 (COVID-19 Pandemic) vs 2018–2019 (Baseline).ResultsFor each ethnic group the age-standardised percentage of cancer deaths at home significantly increased (P < 0.05) from 2018–2019 to 2020–2021Asian: 33.5%, 47.5%Black: 28.8%, 39.0%White: 30.7%, 41.2%The ratio of standardised percentage of deaths at home (95% CI) wasAsian: 1.42 (1.36,1.48 )Black: 1.35 (1.27, 1.44)White 1.34 (1.33, 1.35)ConclusionsCancer deaths at home increased by > 10 percentage points during the pandemic for Asians, Blacks and Whites. Significant differences between ethnic groups before the pandemic (2018–19) persisted with Asians more likely than Whites, and Blacks less likely than Whites to die at home. The largest increase was for Asians, the group with the highest pre-pandemic home deaths.ImpactThese ethnic differences merit investigation regarding cultural preferences, access issues and quality of PC experience. Community health and PC teams need additional resources and training in culturally sensitive care to support the increased number of ethnically diverse cancer patients dying at home.
{"title":"29 Ethnic differences in cancer deaths at home before and during pandemic","authors":"A. Pring, Marika Kulesza, N. duPreez, N. Bowtell, J. Verne","doi":"10.1136/spcare-2023-mcrc.28","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.28","url":null,"abstract":"IntroductionPlace of death is a metric used for planning and monitoring palliative care (PC). The COVID-19 pandemic has seen a significant increase in cancer deaths at home.AimsTo determine whether pandemic increases in the percentage of cancer deaths at home differ by ethnic groupMethodsData source: death registrations in England, 2018 to 2021 with underlying cause of death cancer (ICD-10 C00-C97). Ethnic group derived from linked hospital episode data. The age and deprivation distribution across ethnic groups varies and each has a strong independent effect on place of death. so, calculated percentage deaths at home were standardised by these factors to make them comparable. Analysis concentrated on the largest ethnic groups: White, Asian/Asian British (Asian), and Black/African/Caribbean/Black British (Black). Comparisons were made between time periods by analysis of the ratio of percentages 2020–2021 (COVID-19 Pandemic) vs 2018–2019 (Baseline).ResultsFor each ethnic group the age-standardised percentage of cancer deaths at home significantly increased (P < 0.05) from 2018–2019 to 2020–2021Asian: 33.5%, 47.5%Black: 28.8%, 39.0%White: 30.7%, 41.2%The ratio of standardised percentage of deaths at home (95% CI) wasAsian: 1.42 (1.36,1.48 )Black: 1.35 (1.27, 1.44)White 1.34 (1.33, 1.35)ConclusionsCancer deaths at home increased by > 10 percentage points during the pandemic for Asians, Blacks and Whites. Significant differences between ethnic groups before the pandemic (2018–19) persisted with Asians more likely than Whites, and Blacks less likely than Whites to die at home. The largest increase was for Asians, the group with the highest pre-pandemic home deaths.ImpactThese ethnic differences merit investigation regarding cultural preferences, access issues and quality of PC experience. Community health and PC teams need additional resources and training in culturally sensitive care to support the increased number of ethnically diverse cancer patients dying at home.","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129661877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.27
Mala Mann, Rhiannon Cordine, A. Byrne
{"title":"28 What competency frameworks are available to promote a consistent education framework for the palliative and end of life care workforce in Wales? A rapid evidence map","authors":"Mala Mann, Rhiannon Cordine, A. Byrne","doi":"10.1136/spcare-2023-mcrc.27","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.27","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"3 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128965439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.54
Elizabeth Arnold, A. Finucane, J. Spiller, Siobhan Fairhurst, E. Carduff, Julie Spenceley, Z. Tieges, A. MacLullich
{"title":"55 Validation of the 4AT for delirium detection in patients receiving palliative care in a hospice inpatient setting","authors":"Elizabeth Arnold, A. Finucane, J. Spiller, Siobhan Fairhurst, E. Carduff, Julie Spenceley, Z. Tieges, A. MacLullich","doi":"10.1136/spcare-2023-mcrc.54","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.54","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127915541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.37
Gemma Clarke, Jodie Crooks, S. Trotter, J. MacArtney, J. Hussain, Ruby Bhatti, Zarina Mirza, Michael Bennett
{"title":"38 Access to palliative care by people from South Asian communities in the UK: a qualitative study using Narrative Inquiry","authors":"Gemma Clarke, Jodie Crooks, S. Trotter, J. MacArtney, J. Hussain, Ruby Bhatti, Zarina Mirza, Michael Bennett","doi":"10.1136/spcare-2023-mcrc.37","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.37","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"11 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124618593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.40
Alberic Signang, G. Mbah, F. Kouya, P. Angele
{"title":"41 Morphine gap in cameroon: more administrative facilitation needed to reduce suffering","authors":"Alberic Signang, G. Mbah, F. Kouya, P. Angele","doi":"10.1136/spcare-2023-mcrc.40","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.40","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123233507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.39
S. Stanley, Karen Higginbotham, A. Nwosu
{"title":"40 What are palliative care healthcare professional’s experiences of supporting palliative patients in managing digital legacy as part of advance care planning?","authors":"S. Stanley, Karen Higginbotham, A. Nwosu","doi":"10.1136/spcare-2023-mcrc.39","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.39","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"117 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123102346","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.44
J. Smithson, A. Kaushal
{"title":"45 Experience of terminal illness in working-age people: a review of the literature and a survey of HR professionals","authors":"J. Smithson, A. Kaushal","doi":"10.1136/spcare-2023-mcrc.44","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.44","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"51 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125619234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.30
E. Borgstrom, C. Henry, J. Jordan, Una St-Ledger
{"title":"31 Ambitions for palliative and end of life care: mapping examples of use in practice","authors":"E. Borgstrom, C. Henry, J. Jordan, Una St-Ledger","doi":"10.1136/spcare-2023-mcrc.30","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.30","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"14 3","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114130483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.12
J. Verne, N. Bowtell, L. Deacon, Sarah Groom, J. Robson, Alexandra Thackeray
IntroductionRestrictions during the COVID-19 pandemic adversely impacted bereavement as: visiting the dying, funerals, family meetings, access to bereavement services were disrupted. Pandemic work at Public Health England and Test and Trace was unrelenting. Enforced home working enhanced isolation. Many colleagues experienced difficult bereavements with little access to normal support networks.AimsTo further understand how a workplace grassroots virtual grief café can support the bereaved.MethodsA grassroots group of bereaved staff and/or with bereavement expertise, established virtual bereavement cafes in May 2021, run by staff for staff. MS Teams (video teleconferencing, chat, signposting to resources) provided a safe, supportive meeting space. Facilitated Cafés are held fortnightly, with mental health first aiders present. Ground rules emphasised respect, confidentiality, the validity of all types of grief and all deaths (pre or during the pandemic). Chat and emojis offered support. Post café email and phone follow-up was offered. Additional themed cafés supported: Grief Awareness Week, the Queen's death, Pregnancy or Infant loss and bespoke sessions run for teams whose colleague had died. A rapid qualitative thematic evaluation to better understand participants experience of grief and how the cafes have helped was carried out in 2022.ResultsBetween 9–34 staff attend with new participants at each session. All types of grief have been experienced: anticipatory, complicated, cumulative and disenfranchised grief – often in combination. Participants' feedback has been thematically grouped related to their experience of the Grief Cafes, specific workplace challenges, and the impact of the pandemic on grief.ConclusionsThere is a significant level of unresolved and complex grief following the COVID-19 pandemic in working-age people.ImpactVirtual cafes provide critical emotional support in geographically dispersed organisations. They work best linking with and driving compassionate workplace policies.
{"title":"13 A rapid evaluation of virtual grief cafés across two national Public Health organisations","authors":"J. Verne, N. Bowtell, L. Deacon, Sarah Groom, J. Robson, Alexandra Thackeray","doi":"10.1136/spcare-2023-mcrc.12","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.12","url":null,"abstract":"IntroductionRestrictions during the COVID-19 pandemic adversely impacted bereavement as: visiting the dying, funerals, family meetings, access to bereavement services were disrupted. Pandemic work at Public Health England and Test and Trace was unrelenting. Enforced home working enhanced isolation. Many colleagues experienced difficult bereavements with little access to normal support networks.AimsTo further understand how a workplace grassroots virtual grief café can support the bereaved.MethodsA grassroots group of bereaved staff and/or with bereavement expertise, established virtual bereavement cafes in May 2021, run by staff for staff. MS Teams (video teleconferencing, chat, signposting to resources) provided a safe, supportive meeting space. Facilitated Cafés are held fortnightly, with mental health first aiders present. Ground rules emphasised respect, confidentiality, the validity of all types of grief and all deaths (pre or during the pandemic). Chat and emojis offered support. Post café email and phone follow-up was offered. Additional themed cafés supported: Grief Awareness Week, the Queen's death, Pregnancy or Infant loss and bespoke sessions run for teams whose colleague had died. A rapid qualitative thematic evaluation to better understand participants experience of grief and how the cafes have helped was carried out in 2022.ResultsBetween 9–34 staff attend with new participants at each session. All types of grief have been experienced: anticipatory, complicated, cumulative and disenfranchised grief – often in combination. Participants' feedback has been thematically grouped related to their experience of the Grief Cafes, specific workplace challenges, and the impact of the pandemic on grief.ConclusionsThere is a significant level of unresolved and complex grief following the COVID-19 pandemic in working-age people.ImpactVirtual cafes provide critical emotional support in geographically dispersed organisations. They work best linking with and driving compassionate workplace policies.","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114611078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1136/spcare-2023-mcrc.52
Elizabeth Arnold, J. Lugton, J. Spiller, A. Finucane
{"title":"53 What are the experiences and support needs of district nurses caring for terminally ill people with delirium at home? A qualitative study","authors":"Elizabeth Arnold, J. Lugton, J. Spiller, A. Finucane","doi":"10.1136/spcare-2023-mcrc.52","DOIUrl":"https://doi.org/10.1136/spcare-2023-mcrc.52","url":null,"abstract":"","PeriodicalId":117798,"journal":{"name":"The Marie Curie Research Conference 2023","volume":"48 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114891327","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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