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Perspective of smokers and healthcare professionals toward real-time video counseling smoking cessation program in general out-patient clinics in Hong Kong: a qualitative study. 吸烟者和医护人员对香港普通科门诊实时视频戒烟辅导项目的看法:一项定性研究。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmac118
Hiu Ting Yung, Man Kin Wong, Shiu Kee Lai, Jun Liang

Objective: This study aimed to explore the perceptions and experiences of individuals that currently smoke and healthcare professionals on using real-time video counseling in the Smoking Cessation and Counselling Program in General Out-patient Clinics in Hong Kong.

Design: This was a qualitative study using face-to-face semi-structured interviews based on the extended technology acceptance model. All interviews were audiotaped and transcribed verbatim. Two investigators coded the transcripts independently. Thematic analysis was adopted.

Participants: Individuals that currently smoke and healthcare professionals who had experience using real-time video counseling in the Smoking Cessation and Counselling Program in General Out-patient Clinics in Hong Kong were recruited. Purposive sampling was adopted. 18 participants were interviewed to reach data saturation.

Main outcome measures: Themes that emerged from thematic analysis of data were the main outcome measures. The emerged themes were refined and verified via inductive and then deductive processes until data saturation was reached.

Results: Two core themes, which were in coherence with the extended technology acceptance model, namely (i) perceived ease of use and (ii) perceived usefulness, were identified. Under perceived ease of use, we identified 2 subthemes: (i) convenience and (ii) measures to facilitate the use of real-time video counseling. Three subthemes were identified under perceived usefulness: (i) empathy and rapport, (ii) measures for pandemics, and (iii) service outcome.

Conclusion: Our study provided a culture-specific perspective of users towards real-time video counseling. It identified users' opinions on the easiness and usefulness of the service. Those could provide clues for future improvement and development of using real-time video counseling in healthcare services.

研究目的本研究旨在探讨目前吸烟的个人和医护人员对在香港普通科门诊戒烟辅导项目中使用实时视频辅导的看法和经验:这是一项基于扩展技术接受模型的定性研究,采用面对面半结构式访谈。所有访谈都进行了录音和逐字记录。两名研究人员独立对记录誊本进行编码。采用主题分析法:研究人员招募了目前吸烟的个人和在香港普通科门诊的戒烟和咨询项目中使用过实时视频咨询的医护人员。研究采用了有目的的抽样方法。访谈了 18 名参与者,以达到数据饱和:主要结果测量:对数据进行主题分析后得出的主题为主要结果测量。通过先归纳后演绎的过程对出现的主题进行完善和验证,直至达到数据饱和:结果:确定了两个与扩展技术接受模型一致的核心主题,即(i)感知易用性和(ii)感知有用性。在感知易用性下,我们确定了两个次主题:(i) 便利性和 (ii) 促进使用实时视频咨询的措施。在 "感知有用性 "下,我们确定了三个次主题:(i) 共情与融洽;(ii) 针对流行病的措施;(iii) 服务成果:我们的研究提供了用户对实时视频咨询的特定文化视角。结论:我们的研究提供了用户对实时视频咨询的特定文化视角,确定了用户对服务的易用性和实用性的看法。这些可以为未来在医疗保健服务中使用实时视频咨询的改进和发展提供线索。
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引用次数: 0
Eating disorder recovery requires attention to the social lives of those affected. 饮食失调康复需要关注受影响者的社会生活。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmad028
Aoife-Marie Foran, Aisling T O'Donnell, Orla T Muldoon
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引用次数: 0
The unknown silent drug reaction in acne patients: rare case of isotretinoin-induced haematuria. 痤疮患者未知的无声药物反应:异维A酸诱发血尿的罕见病例。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmad043
Igor Kapetanovic, Dubravka Zivanovic, Margita Mijuskovic, Snezana Minic

Background: Acne vulgaris is one of the most frequent visits to primary care physicians and dermatologists alike. Isotretinoin is the backbone of acne treatment. In most countries, depending on the health care system, isotretinoin is prescribed by dermatologists but primary care physicians are a part of the follow-up and interpreting analysis. Adverse effects of isotretinoin on the kidney and urinary system are mostly limited to sparse case reports. Specifically, gross and microscopic haematuria is not mentioned to be associated with isotretinoin. Lack of data regarding these adverse effects can lead to doubt regarding further patient management not only with dermatologists but also primary care physicians.

Objective: We report a 16-year-old male patient with isotretinoin-induced haematuria with multiple episodes and subsequent challenge and de-challenge. No personal or familial history of nephrological disease was present. Ultrasound imaging and nephrology workup was within normal limits. Other aetiologies were excluded. Nephrology consult stated there was no contraindication for isotretinoin use and was reinstated at 0.6 m/kg/day. More frequent observation was indicated until completion of isotretinoin.

Conclusion: Our case raises awareness to other dermatologists and primary care physicians that haematuria can be secondary to isotretinoin but not a contraindication for further use if asymptomatic and microscopic. More extensive evaluation and monitoring should be done if the patient is symptomatic with other abnormalities and symptoms. Urinalysis should be a part of routine follow-up monitoring in patients on isotretinoin. Furthermore, delineating and differentiating when to refer to a nephrologist is essential for physicians, patients, and the health care system overall.

背景:寻常痤疮是初级保健医生和皮肤科医生最常就诊的疾病之一。异维A酸是治疗痤疮的主要药物。在大多数国家,根据医疗保健系统的不同,异维A酸由皮肤科医生处方,但初级保健医生也参与随访和解释分析。异维A酸对肾脏和泌尿系统的不良影响大多仅限于稀少的病例报告。具体而言,未提及异维A酸会导致毛细血管和显微镜下血尿。缺乏有关这些不良反应的数据不仅会使皮肤科医生,还会使初级保健医生对患者的进一步治疗产生怀疑:我们报告了一名异维A酸诱发血尿的 16 岁男性患者,该患者曾多次出现血尿,并在随后接受挑战和解除挑战。患者无个人或家族肾病史。超声波成像和肾病检查均在正常范围内。排除了其他病因。肾脏科医生指出,异维A酸没有禁忌症,因此恢复了每天0.6毫克/千克的剂量。在完成异维A酸治疗前,需要更频繁地进行观察:结论:我们的病例提高了其他皮肤科医生和初级保健医生的认识,即血尿可能是异维A酸的继发性症状,但如果无症状且显微镜下可见,则并非继续使用的禁忌症。如果患者伴有其他异常症状,则应进行更广泛的评估和监测。尿液分析应成为异维A酸患者常规随访监测的一部分。此外,界定和区分何时应转诊至肾科医生对医生、患者和整个医疗保健系统都至关重要。
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引用次数: 0
Family physicians' perspectives on the impact of COVID-19 on preventative care in primary care: findings from a qualitative study. 家庭医生对 COVID-19 对初级保健中预防性护理影响的看法:定性研究的结果。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmac113
Crystal Vaughan, Julia Lukewich, Maria Mathews, Emily Gard Marshall, Lindsay Hedden, Sarah Spencer, Dana Ryan, Rita K McCracken, Paul Gill, Stephen Wetmore, Richard Buote, Leslie Meredith, Lauren Moritz, Judith Belle Brown

Introduction: Health system disruptions, caused by unexpected emergencies such as disease outbreaks, natural disasters, and cybercrimes, impact the delivery of routine preventative care. As comprehensive care providers, family physicians (FPs) devote significant time to prevention. However, without emergency and pandemic plans in place in primary care, FPs face added barriers to prioritizing and sustaining preventative care when health systems are strained, which was evident during the COVID-19 pandemic. This study aims to describe FPs' experiences providing preventative care during the COVID-19 pandemic and their perceptions of the impacts of disrupted preventative care in primary care settings.

Methods: Using a qualitative descriptive approach, we conducted semistructured interviews with FPs across 4 provinces in Canada (i.e. Newfoundland and Labrador, Nova Scotia, Ontario, British Columbia) between October 2020 and June 2021 as part of a larger multiple case study. These interviews broadly explored the roles and responsibilities of FPs during the COVID-19 pandemic. Interviews were coded thematically and codes from the larger study were analysed further using an iterative, phased process of thematic analysis.

Results: Interviews averaged 58 min in length (range 17-97 min) and FPs had a mean of 16.9 years of experience. We identified 4 major themes from interviews with FPs (n = 68): (i) lack of capacity and coordination across health systems, (ii) patient fear, (iii) impacts on patient care, and (iv) negative impacts on FPs. Physicians voiced concerns with managing patients' prevention needs when testing availability and coordination of services was limited. Early in the pandemic, patients were also missing or postponing their own primary care appointments. Change in the provision and coordination of routine preventative care had negative impacts on both patients and physicians, affecting disease incidence/progression, physician workload, and psychological wellbeing.

Conclusion: During the COVID-19 pandemic, upstream care efforts were impacted, and FPs were forced to reduce their provision of preventative care. FPs contribute direct insight to primary care delivery that can support pandemic planning to ensure preventative care is sustained during future emergencies.

导言:疾病爆发、自然灾害和网络犯罪等突发事件造成的医疗系统混乱影响了常规预防性护理的提供。作为综合医疗服务提供者,家庭医生(FPs)在预防方面投入了大量时间。然而,由于初级保健中没有应急和大流行病计划,当卫生系统紧张时,家庭医生在优先考虑和维持预防性保健方面面临更多障碍,这在 COVID-19 大流行病期间显而易见。本研究旨在描述 FPs 在 COVID-19 大流行期间提供预防性医疗服务的经历,以及他们对初级医疗机构预防性医疗服务中断的影响的看法:我们采用定性描述的方法,在 2020 年 10 月至 2021 年 6 月期间对加拿大 4 个省(即纽芬兰省和拉布拉多省、新斯科舍省、安大略省、不列颠哥伦比亚省)的初级保健医生进行了半结构化访谈,作为大型多案例研究的一部分。这些访谈广泛探讨了 FP 在 COVID-19 大流行期间的作用和责任。对访谈内容进行了主题编码,并采用迭代、分阶段的主题分析方法对大型研究中的编码进行了进一步分析:访谈时间平均为 58 分钟(17-97 分钟不等),FPs 平均工作年限为 16.9 年。我们从对 FPs(n = 68)的访谈中确定了 4 个主要专题:(i)缺乏能力和跨医疗系统的协调,(ii)患者恐惧,(iii)对患者护理的影响,以及(iv)对FP的负面影响。医生们对在检测可用性和服务协调有限的情况下管理病人的预防需求表示担忧。在大流行初期,病人也会错过或推迟自己的初级保健预约。常规预防保健的提供和协调方面的变化对患者和医生都产生了负面影响,影响了疾病的发生/发展、医生的工作量和心理健康:在 COVID-19 大流行期间,上游护理工作受到影响,FPs 被迫减少预防性护理的提供。初级保健医生对初级保健的提供具有直接的洞察力,可以支持大流行病规划,确保预防性保健在未来的紧急情况下得以持续。
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引用次数: 0
Disagreement between patients' and general practitioners' estimates of patient health literacy increases from the top to the bottom of the social ladder: a cross-sectional study in the Paris area. 患者和全科医生对患者健康素养估计的分歧从社会阶梯的顶端向底端递增:一项在巴黎地区进行的横断面研究。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmad056
Céline Casta, Sophie Bucher, Pierre Labitrie, Théotime Nadot, Henri Panjo, Laurent Rigal

Background: Associated with both socioeconomic position and health outcomes, health literacy (HL) may be a mechanism contributing to social disparities. However, it is often difficult for general practitioners (GPs) to assess their patients' HL level.

Objective: To analyse disagreements about patient HL between GPs and their patients according to the patient's socioeconomic position.

Methods: For each of the 15 participating GPs (from the Paris-Saclay University network), every adult consulting at the practice on a single day was recruited. Patients completed the European HL Survey questionnaire and provided socio-demographic information. For each patient, doctors answered 4 questions from the HL questionnaire with their opinion of the patient's HL. The doctor-patient disagreement about each patient's HL was analysed with mixed logistic models to study its associations with patients' occupational, educational, and financial characteristics.

Results: The analysis covered the 292 patients (88.2% of the 331 included patients) for whom both patients and GPs responded. The overall disagreement was 23.9%. In all, 71.8% of patients estimated their own HL as higher than their doctors did, and the gap between doctors' answers and those of their patients widened from the top to the bottom of the social ladder. The odd ratio for the 'synthetic disagreement' variable for workers versus managers was 3.48 (95% CI: 1.46-8.26).

Conclusions: The lower the patient's place on the social ladder, the greater the gap between the patient's and doctor's opinion of the patient's HL. This greater gap may contribute to the reproduction or maintenance of social disparities in care and health.

背景:健康素养(HL)与社会经济地位和健康结果相关,可能是造成社会差异的一个机制。然而,全科医生通常很难评估患者的健康素养水平:根据患者的社会经济地位,分析全科医生与患者之间在患者健康素养方面的分歧:15 名参与调查的全科医生(来自巴黎-萨克雷大学网络)中的每一名全科医生都招募了一天内在诊所就诊的所有成年人。患者填写欧洲 HL 调查问卷并提供社会人口信息。对于每位患者,医生都要回答 HL 问卷中的 4 个问题,并附上他们对患者 HL 的看法。通过混合逻辑模型分析了医患双方对每位患者 HL 的不同意见,研究了其与患者职业、教育和经济特征的关系:分析涵盖了 292 名患者(占 331 名纳入患者的 88.2%),这些患者和全科医生都做出了回答。总体不同意率为 23.9%。总的来说,71.8%的患者对自身HL的估计高于医生的估计,医生和患者的答案之间的差距从社会阶梯的顶端向底端扩大。工人与管理人员的 "合成分歧 "变量的奇数比为 3.48(95% CI:1.46-8.26):病人在社会阶梯上的位置越低,病人和医生对病人 HL 的看法之间的差距就越大。这种较大的差距可能会导致护理和健康方面的社会差异的再现或维持。
{"title":"Disagreement between patients' and general practitioners' estimates of patient health literacy increases from the top to the bottom of the social ladder: a cross-sectional study in the Paris area.","authors":"Céline Casta, Sophie Bucher, Pierre Labitrie, Théotime Nadot, Henri Panjo, Laurent Rigal","doi":"10.1093/fampra/cmad056","DOIUrl":"10.1093/fampra/cmad056","url":null,"abstract":"<p><strong>Background: </strong>Associated with both socioeconomic position and health outcomes, health literacy (HL) may be a mechanism contributing to social disparities. However, it is often difficult for general practitioners (GPs) to assess their patients' HL level.</p><p><strong>Objective: </strong>To analyse disagreements about patient HL between GPs and their patients according to the patient's socioeconomic position.</p><p><strong>Methods: </strong>For each of the 15 participating GPs (from the Paris-Saclay University network), every adult consulting at the practice on a single day was recruited. Patients completed the European HL Survey questionnaire and provided socio-demographic information. For each patient, doctors answered 4 questions from the HL questionnaire with their opinion of the patient's HL. The doctor-patient disagreement about each patient's HL was analysed with mixed logistic models to study its associations with patients' occupational, educational, and financial characteristics.</p><p><strong>Results: </strong>The analysis covered the 292 patients (88.2% of the 331 included patients) for whom both patients and GPs responded. The overall disagreement was 23.9%. In all, 71.8% of patients estimated their own HL as higher than their doctors did, and the gap between doctors' answers and those of their patients widened from the top to the bottom of the social ladder. The odd ratio for the 'synthetic disagreement' variable for workers versus managers was 3.48 (95% CI: 1.46-8.26).</p><p><strong>Conclusions: </strong>The lower the patient's place on the social ladder, the greater the gap between the patient's and doctor's opinion of the patient's HL. This greater gap may contribute to the reproduction or maintenance of social disparities in care and health.</p>","PeriodicalId":12209,"journal":{"name":"Family practice","volume":null,"pages":null},"PeriodicalIF":2.4,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9570476","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prescription of benzodiazepines and Z-drugs among older patients in primary care: a French, national, cohort study. 初级保健中老年患者苯二氮卓类药物和 Z 类药物的处方:一项法国全国性队列研究。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmac114
Jonathan Yana, Laura Moscova, Julien Le Breton, Emmanuelle Boutin, Tiphaine Siess, Pascal Clerc, Sylvie Bastuji-Garin, Emilie Ferrat

Background: In France, general practitioners (GPs) prescribe benzodiazepines and Z-drugs (BZD/ZDs) widely, and especially to older adults. Several characteristics of patients and/or GPs linked to BZD/ZD overprescription have been described in the general population but not among older patients in primary care.

Objectives: To estimate the proportion of GP consultations by patients aged 65 and over that resulted in a BZD/ZD prescription, and determine whether any GP-related factors predicted BZD/ZD overprescription in this setting.

Methods: We analyzed sociodemographic and practice-related GP characteristics, and aggregated data on consultations recorded prospectively by 117 GPs in a database between 2000 and 2010. Next, we used logistic regression models to look for factors potentially associated with BZD/ZD overprescription (defined as an above-median prescription rate).

Results: The GPs' mean age at inclusion was 47.4 (7.1), and 87.9% were male. During the study period, the median (95% confidence interval) proportion of consultations with patients aged 65 and over resulting in a BZD/ZD prescription was 21.8% (18.1-26.1) (range per GP: 5-34.1%). In a multivariable analysis, a greater number of chronic disease (OR [95% CI] = 2.10 [1.22-3.64]), a greater number of drugs prescribed per consultation (5.29 [2.72-10.28]), and shorter study participation were independently associated with BZD/ZD overprescription.

Conclusions: BZD/ZD overprescription was associated with a greater chronic disease burden and the number of drugs prescribed per consultation but not with any sociodemographic or practice-related GP characteristics. Targeted actions are needed to help GPs limit their prescription of BZD/ZDs to older patients with multiple comorbidities and polypharmacy.

背景:在法国,全科医生(GPs)广泛开具苯二氮卓类药物和Z类药物(BZD/ZDs)处方,尤其是针对老年人。在普通人群中,患者和/或全科医生的一些特征与BZD/ZD超量处方有关,但在初级医疗机构的老年患者中却没有描述:目的:估算 65 岁及以上患者接受全科医生咨询后开出 BZD/ZD 处方的比例,并确定在这种情况下是否有任何全科医生相关因素可预测 BZD/ZD 的超量处方:我们分析了全科医生的社会人口学特征和执业相关特征,并汇总了数据库中 117 名全科医生在 2000 年至 2010 年间记录的前瞻性咨询数据。然后,我们使用逻辑回归模型来寻找与BZD/ZD超量处方(定义为处方率高于中位数)相关的潜在因素:全科医生入选时的平均年龄为 47.4 (7.1)岁,87.9% 为男性。在研究期间,65 岁及以上患者就诊时开出 BZD/ZD 处方的比例中位数(95% 置信区间)为 21.8%(18.1-26.1)(每位全科医生的比例范围为 5-34.1%)。在一项多变量分析中,慢性病数量越多(OR [95% CI] = 2.10 [1.22-3.64])、每次问诊开出的药物数量越多(5.29 [2.72-10.28])以及参与研究的时间越短,均与BZD/ZD超量处方独立相关:结论:BZD/ZD超量处方与慢性病负担加重和每次就诊处方药物数量有关,但与任何社会人口学特征或全科医生执业相关特征无关。需要采取有针对性的行动,帮助全科医生限制向患有多种并发症和多种药物的老年患者开具BZD/ZD处方。
{"title":"Prescription of benzodiazepines and Z-drugs among older patients in primary care: a French, national, cohort study.","authors":"Jonathan Yana, Laura Moscova, Julien Le Breton, Emmanuelle Boutin, Tiphaine Siess, Pascal Clerc, Sylvie Bastuji-Garin, Emilie Ferrat","doi":"10.1093/fampra/cmac114","DOIUrl":"10.1093/fampra/cmac114","url":null,"abstract":"<p><strong>Background: </strong>In France, general practitioners (GPs) prescribe benzodiazepines and Z-drugs (BZD/ZDs) widely, and especially to older adults. Several characteristics of patients and/or GPs linked to BZD/ZD overprescription have been described in the general population but not among older patients in primary care.</p><p><strong>Objectives: </strong>To estimate the proportion of GP consultations by patients aged 65 and over that resulted in a BZD/ZD prescription, and determine whether any GP-related factors predicted BZD/ZD overprescription in this setting.</p><p><strong>Methods: </strong>We analyzed sociodemographic and practice-related GP characteristics, and aggregated data on consultations recorded prospectively by 117 GPs in a database between 2000 and 2010. Next, we used logistic regression models to look for factors potentially associated with BZD/ZD overprescription (defined as an above-median prescription rate).</p><p><strong>Results: </strong>The GPs' mean age at inclusion was 47.4 (7.1), and 87.9% were male. During the study period, the median (95% confidence interval) proportion of consultations with patients aged 65 and over resulting in a BZD/ZD prescription was 21.8% (18.1-26.1) (range per GP: 5-34.1%). In a multivariable analysis, a greater number of chronic disease (OR [95% CI] = 2.10 [1.22-3.64]), a greater number of drugs prescribed per consultation (5.29 [2.72-10.28]), and shorter study participation were independently associated with BZD/ZD overprescription.</p><p><strong>Conclusions: </strong>BZD/ZD overprescription was associated with a greater chronic disease burden and the number of drugs prescribed per consultation but not with any sociodemographic or practice-related GP characteristics. Targeted actions are needed to help GPs limit their prescription of BZD/ZDs to older patients with multiple comorbidities and polypharmacy.</p>","PeriodicalId":12209,"journal":{"name":"Family practice","volume":null,"pages":null},"PeriodicalIF":2.4,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40456090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Primary care professionals' views on population-based expanded carrier screening: an online focus group study. 初级保健专业人员对基于人群的扩大携带者筛查的看法:在线焦点小组研究。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmad011
Lieke M van den Heuvel, Anke J Woudstra, Sanne van der Hout, Suze Jans, Tjerk Wiersma, Wybo Dondorp, Erwin Birnie, Phillis Lakeman, Lidewij Henneman, Mirjam Plantinga, Irene M van Langen

Background: Population-based expanded carrier screening (ECS) involves screening for multiple recessive diseases offered to all couples considering a pregnancy or during pregnancy. Previous research indicates that in some countries primary care professionals are perceived as suitable providers for ECS. However, little is known about their perspectives. We therefore aimed to explore primary care professionals' views on population-based ECS.

Methods: Four online focus groups with 14 general practitioners (GPs) and 16 community midwives were conducted in the Netherlands.

Results: Our findings highlight various perspectives on the desirability of population-based ECS. Participants agreed that ECS could enhance reproductive autonomy and thereby prevent suffering of the child and/or parents. However, they also raised several ethical, societal, and psychological concerns, including a tendency towards a perfect society, stigmatization, unequal access to screening and negative psychosocial consequences. Participants believed that provision of population-based ECS would be feasible if prerequisites regarding training and reimbursement for providers would be fulfilled. most GPs considered themselves less suitable or capable of providing ECS, in contrast to midwives who did consider themselves suitable. Nevertheless, participants believed that, if implemented, ECS should be offered in primary care or by public health services rather than as hospital-based specialized care, because they believed a primary care ECS offer increases access in terms of time and location.

Conclusions: While participants believed that an ECS offer would be feasible, they questioned its desirability and priority. Studies on the desirability and feasibility of population-based ECS offered in primary care or public health settings are needed.

背景:基于人群的扩大携带者筛查(ECS)是指为所有考虑怀孕或怀孕期间的夫妇提供多种隐性疾病的筛查。以往的研究表明,在一些国家,初级保健专业人员被认为是 ECS 的合适提供者。然而,人们对他们的观点知之甚少。因此,我们旨在探讨基层医疗专业人员对基于人群的 ECS 的看法:方法:我们在荷兰与 14 名全科医生和 16 名社区助产士进行了四次在线焦点小组讨论:结果:我们的研究结果表明,人们对基于人口的 ECS 的可取性有不同的看法。参与者一致认为,母婴健康服务可以提高生育自主权,从而避免儿童和/或父母遭受痛苦。然而,他们也提出了一些伦理、社会和心理方面的担忧,包括完美社会的趋势、污名化、筛查机会不平等以及负面的社会心理后果。大多数全科医生认为自己不太适合或没有能力提供 ECS,而助产士则认为自己适合。尽管如此,与会者认为,如果实施产科护理,应在基层医疗机构或公共卫生服务机构提供,而不是以医院为基础的专业护理,因为他们认为基层医疗机构提供的产科护理在时间和地点上都更容易获得:尽管参与者认为提供电子病历服务是可行的,但他们对其可取性和优先性提出了质疑。我们需要对在基层医疗机构或公共卫生机构提供以人群为基础的电子病历服务的可取性和可行性进行研究。
{"title":"Primary care professionals' views on population-based expanded carrier screening: an online focus group study.","authors":"Lieke M van den Heuvel, Anke J Woudstra, Sanne van der Hout, Suze Jans, Tjerk Wiersma, Wybo Dondorp, Erwin Birnie, Phillis Lakeman, Lidewij Henneman, Mirjam Plantinga, Irene M van Langen","doi":"10.1093/fampra/cmad011","DOIUrl":"10.1093/fampra/cmad011","url":null,"abstract":"<p><strong>Background: </strong>Population-based expanded carrier screening (ECS) involves screening for multiple recessive diseases offered to all couples considering a pregnancy or during pregnancy. Previous research indicates that in some countries primary care professionals are perceived as suitable providers for ECS. However, little is known about their perspectives. We therefore aimed to explore primary care professionals' views on population-based ECS.</p><p><strong>Methods: </strong>Four online focus groups with 14 general practitioners (GPs) and 16 community midwives were conducted in the Netherlands.</p><p><strong>Results: </strong>Our findings highlight various perspectives on the desirability of population-based ECS. Participants agreed that ECS could enhance reproductive autonomy and thereby prevent suffering of the child and/or parents. However, they also raised several ethical, societal, and psychological concerns, including a tendency towards a perfect society, stigmatization, unequal access to screening and negative psychosocial consequences. Participants believed that provision of population-based ECS would be feasible if prerequisites regarding training and reimbursement for providers would be fulfilled. most GPs considered themselves less suitable or capable of providing ECS, in contrast to midwives who did consider themselves suitable. Nevertheless, participants believed that, if implemented, ECS should be offered in primary care or by public health services rather than as hospital-based specialized care, because they believed a primary care ECS offer increases access in terms of time and location.</p><p><strong>Conclusions: </strong>While participants believed that an ECS offer would be feasible, they questioned its desirability and priority. Studies on the desirability and feasibility of population-based ECS offered in primary care or public health settings are needed.</p>","PeriodicalId":12209,"journal":{"name":"Family practice","volume":null,"pages":null},"PeriodicalIF":2.4,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11324326/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9143452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comparing the number and length of primary care consultations in people with and without intellectual disabilities and health needs: observational cohort study using electronic health records. 比较有智力障碍和健康需求的人与无智力障碍和健康需求的人接受初级保健咨询的次数和时间:使用电子健康记录的观察性队列研究。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmac135
Freya Tyrer, Richard Morriss, Reza Kiani, Satheesh K Gangadharan, Harish Kundaje, Mark J Rutherford

Background: In the United Kingdom, 15-min appointments with the general practitioner (GP) are recommended for people with complex health conditions, including intellectual disabilities and health needs, but we do not know whether this happens.

Aims: We compared number and length of primary care consultations (GP, nurse, other allied health, other) for people with and without intellectual disabilities and health needs.

Methods: Linked primary care data from the Clinical Practice Research Datalink (CPRD) in England were used to investigate face-to-face and telephone primary care consultations in 2017-2019. Health needs investigated were: epilepsy; incontinence; severe visual/hearing impairments; severe mobility difficulties; cerebral palsy; and percutaneous endoscopic gastrostomy feeding. Age and gender-standardized consultation rates per year (Poisson), duration of consultations, and the proportion of "long consultations" (≥15 min) were reported.

Results: People with intellectual disabilities (n = 7,794) had 1.9 times as many GP consultations per year as those without (n = 176,807; consultation rate ratio = 1.87 [95% confidence interval 1.86-1.89]). Consultation rates with nurses and allied healthcare professionals were also twice as high. Mean GP consultation time was 9-10 min regardless of intellectual disability/health need status. Long GP consultations were less common in people with intellectual disabilities (18.2% [17.8-18.7] vs. 20.9% [20.8-21.0]). Long consultations with practice nurses were more common in people with health needs, particularly severe visual loss.

Conclusions: People with intellectual disabilities and/or health needs tend to have more, rather than longer, GP consultations compared with the rest of the population. We recommend further investigation into the role of practice nurses to support people with intellectual disabilities and health needs.

背景:目的:我们比较了有智力障碍和健康需求的人与没有智力障碍和健康需求的人的初级医疗咨询(全科医生、护士、其他专职医疗人员、其他)次数和时间:我们使用英格兰临床实践研究数据链接(CPRD)中的关联初级医疗数据,调查了 2017-2019 年面对面和电话初级医疗咨询的情况。调查的健康需求包括:癫痫;大小便失禁;严重视力/听力障碍;严重行动不便;脑瘫;经皮内镜胃造口喂养。报告了每年按年龄和性别标准化的就诊率(泊松)、就诊时间和 "长时间就诊"(≥15 分钟)的比例:结果:智障人士(n = 7,794 人)每年接受全科医生咨询的次数是非智障人士(n = 176,807 人;咨询率比率 = 1.87 [95% 置信区间为 1.86-1.89])的 1.9 倍。护士和专职医疗人员的问诊率也是后者的两倍。无论智力残疾/健康需求状况如何,全科医生平均问诊时间为 9-10 分钟。智障人士接受全科医生长时间问诊的比例较低(18.2% [17.8-18.7] vs. 20.9% [20.8-21.0])。有健康需求(尤其是严重视力丧失)的人更常与执业护士长时间会诊:结论:与其他人群相比,智障人士和/或有健康需求的人士接受全科医生咨询的次数更多,而不是时间更长。我们建议进一步调查执业护士在支持智障人士和有健康需求人士方面的作用。
{"title":"Comparing the number and length of primary care consultations in people with and without intellectual disabilities and health needs: observational cohort study using electronic health records.","authors":"Freya Tyrer, Richard Morriss, Reza Kiani, Satheesh K Gangadharan, Harish Kundaje, Mark J Rutherford","doi":"10.1093/fampra/cmac135","DOIUrl":"10.1093/fampra/cmac135","url":null,"abstract":"<p><strong>Background: </strong>In the United Kingdom, 15-min appointments with the general practitioner (GP) are recommended for people with complex health conditions, including intellectual disabilities and health needs, but we do not know whether this happens.</p><p><strong>Aims: </strong>We compared number and length of primary care consultations (GP, nurse, other allied health, other) for people with and without intellectual disabilities and health needs.</p><p><strong>Methods: </strong>Linked primary care data from the Clinical Practice Research Datalink (CPRD) in England were used to investigate face-to-face and telephone primary care consultations in 2017-2019. Health needs investigated were: epilepsy; incontinence; severe visual/hearing impairments; severe mobility difficulties; cerebral palsy; and percutaneous endoscopic gastrostomy feeding. Age and gender-standardized consultation rates per year (Poisson), duration of consultations, and the proportion of \"long consultations\" (≥15 min) were reported.</p><p><strong>Results: </strong>People with intellectual disabilities (n = 7,794) had 1.9 times as many GP consultations per year as those without (n = 176,807; consultation rate ratio = 1.87 [95% confidence interval 1.86-1.89]). Consultation rates with nurses and allied healthcare professionals were also twice as high. Mean GP consultation time was 9-10 min regardless of intellectual disability/health need status. Long GP consultations were less common in people with intellectual disabilities (18.2% [17.8-18.7] vs. 20.9% [20.8-21.0]). Long consultations with practice nurses were more common in people with health needs, particularly severe visual loss.</p><p><strong>Conclusions: </strong>People with intellectual disabilities and/or health needs tend to have more, rather than longer, GP consultations compared with the rest of the population. We recommend further investigation into the role of practice nurses to support people with intellectual disabilities and health needs.</p>","PeriodicalId":12209,"journal":{"name":"Family practice","volume":null,"pages":null},"PeriodicalIF":2.4,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11324320/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40488213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceived importance and interest in research by Chilean primary care providers. 智利初级保健提供者对研究的重视程度和兴趣。
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmad012
Diego García-Huidobro, Marcela Aracena, Paulina Bravo, Karla González, Mauricio Soto, Pamela von Borries, Jaime C Sapag

Background: Primary care providers (PCPs) are relevant stakeholders for primary care research (PCR).

Objective: We report the perceived importance and interest in PCR of a national sample of Chilean PCPs.

Methods: We conducted a cross-sectional study targeting Chilean PCPs. An electronic survey assessing perceived relevance of PCR, research training and experience, training interests, and demographics was disseminated through emails and WhatsApp messages. Descriptive statistics were used to summarize data. Logistic regression models were used to estimate adjusted probabilities and 95% confidence intervals for high interest in PCR, high interest in using research methods, and high interest in receiving research training, and predictors of these outcomes.

Results: A total of 387 providers completed the online survey. Only 26.4% of PCPs had research experience as a principal or co-investigator. However, most clinicians perceived PCR as very important (92.5%) and were interested in using research methods (90.7%) and receiving training (94.3%). There were no statistically significant differences in these perceptions between provider's discipline, role, sex, age, and geographical location after adjusting for covariates.

Conclusions: Despite few Chilean PCPs have research training, a large majority perceive it as important, are interested in using it in their practice and would like to receive training.

背景:初级保健提供者是初级保健研究(PCR)的相关利益方:初级保健提供者(PCPs)是初级保健研究(PCR)的相关利益方:我们报告了智利全国初级保健提供者样本对初级保健研究的重要性和兴趣:方法:我们针对智利初级保健医生开展了一项横断面研究。我们通过电子邮件和 WhatsApp 消息发布了一项电子调查,对 PCR 的相关性、研究培训和经验、培训兴趣以及人口统计学进行了评估。调查采用描述性统计来总结数据。使用逻辑回归模型估算了对 PCR 的高兴趣、对使用研究方法的高兴趣、对接受研究培训的高兴趣的调整概率和 95% 的置信区间,以及这些结果的预测因素:共有 387 名医疗服务提供者完成了在线调查。只有 26.4% 的初级保健医生曾作为主要研究者或合作研究者进行过研究。然而,大多数临床医生认为 PCR 非常重要(92.5%),并对使用研究方法(90.7%)和接受培训(94.3%)感兴趣。经过协变量调整后,不同学科、不同角色、不同性别、不同年龄和不同地理位置的医疗服务提供者对 PCR 的认识在统计学上没有明显差异:尽管接受过研究培训的智利初级保健医生很少,但大多数人认为研究培训很重要,有兴趣在实践中使用研究培训,并希望接受培训。
{"title":"Perceived importance and interest in research by Chilean primary care providers.","authors":"Diego García-Huidobro, Marcela Aracena, Paulina Bravo, Karla González, Mauricio Soto, Pamela von Borries, Jaime C Sapag","doi":"10.1093/fampra/cmad012","DOIUrl":"10.1093/fampra/cmad012","url":null,"abstract":"<p><strong>Background: </strong>Primary care providers (PCPs) are relevant stakeholders for primary care research (PCR).</p><p><strong>Objective: </strong>We report the perceived importance and interest in PCR of a national sample of Chilean PCPs.</p><p><strong>Methods: </strong>We conducted a cross-sectional study targeting Chilean PCPs. An electronic survey assessing perceived relevance of PCR, research training and experience, training interests, and demographics was disseminated through emails and WhatsApp messages. Descriptive statistics were used to summarize data. Logistic regression models were used to estimate adjusted probabilities and 95% confidence intervals for high interest in PCR, high interest in using research methods, and high interest in receiving research training, and predictors of these outcomes.</p><p><strong>Results: </strong>A total of 387 providers completed the online survey. Only 26.4% of PCPs had research experience as a principal or co-investigator. However, most clinicians perceived PCR as very important (92.5%) and were interested in using research methods (90.7%) and receiving training (94.3%). There were no statistically significant differences in these perceptions between provider's discipline, role, sex, age, and geographical location after adjusting for covariates.</p><p><strong>Conclusions: </strong>Despite few Chilean PCPs have research training, a large majority perceive it as important, are interested in using it in their practice and would like to receive training.</p>","PeriodicalId":12209,"journal":{"name":"Family practice","volume":null,"pages":null},"PeriodicalIF":2.4,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10583699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reliability and validity of the Turkish version of the Family Caregiver Medication Administration Hassles Scale. 土耳其版家庭照顾者药物管理纠纷量表的信度和效度
IF 2.4 4区 医学 Q1 MEDICINE, GENERAL & INTERNAL Pub Date : 2024-08-14 DOI: 10.1093/fampra/cmad040
Zehra Betul Kingir, Mesut Sancar, Pinar Ay, Refik Demirtunc, Cagatay Nuhoglu, Cemile H Misirli, Betul Okuyan

Background: The Family Caregiver Medication Administration Hassles Scale (FCMAHS) was developed to evaluate the hassles and concerns experienced by family caregivers in medication administration.

Objective: This study aimed to evaluate the reliability and validity of the Turkish version of the Family Caregiver Medication Administration Hassles Scale (FCMAHS-TR).

Methods: The FCMAHS-TR was developed after translation, cultural adaptation, and a pilot study. The cross-sectional study was conducted among family caregivers (≥18 years) in community pharmacies. Test-retest reliability analysis, exploratory factor analysis (EFA), and confirmatory factor analysis (CFA) were performed. Hypothesis testing was used for the assessment of construct validity.

Results: The majority (68.7%) of the family caregivers were female (n = 470). In the test-retest reliability analysis (n = 30), the ICC value was 0.917 (P < 0.001). In EFA analysis (n = 251), the Kaiser‒Meyer‒Olkin (KMO) measure was 0.799, 62.6% of the total variance was explained by five factors including eighteen items, and Cronbach's alpha was 0.836. According to CFA (n = 219), the root mean square error of approximation (RMSEA) was 0.0654, and the comparative fit index (CFI) was 0.918. In construct validity, family caregivers with low reading ability of health-related materials and with high care burden had significantly higher median scores for all the factors of the FCMAHS-TR (P < 0.05 for all).

Conclusions: The FCMAHS-TR can be used to evaluate the hassle and concerns experienced by family caregivers in medication administration. This scale can be used by healthcare professionals to identify family caregivers who need individualized interventions for medication administration hassles.

制定家庭护理人员用药困扰量表(FCMAHS)是为了评估家庭护理人员在用药过程中遇到的困扰和担忧。本研究旨在评估土耳其版家庭护理人员用药Hassles量表(FCMAHS-TR)的可靠性和有效性。FCMAHS-TR是在翻译、文化适应和试点研究之后开发的。这项横断面研究是在社区药房的家庭护理人员(≥18岁)中进行的。进行了测试-再测试可靠性分析、探索性因素分析(EFA)和验证性因素分析。假设检验用于结构有效性的评估。大多数(68.7%)家庭照顾者是女性(n=470)。在测试-再测试可靠性分析(n=30)中,ICC值为0.917(P<0.001)。在EFA分析(n=251)中,Kaiser-Meyer-Olkin(KMO)测量值为0.799,62.6%的总方差由包括18个项目的5个因素解释,Cronbachα为0.836。根据CFA(n=219),近似均方根误差(RMSEA)为0.0654,比较拟合指数(CFI)为0.918。在结构有效性方面,健康相关材料阅读能力低、护理负担高的家庭护理人员在FCMAHS-TR的所有因素中的中位得分显著较高(所有因素均P<0.05)。FCMAHS-TR可用于评估家庭护理人员在用药过程中遇到的麻烦和担忧。医疗保健专业人员可以使用该量表来确定需要对药物管理问题进行个性化干预的家庭护理人员。
{"title":"Reliability and validity of the Turkish version of the Family Caregiver Medication Administration Hassles Scale.","authors":"Zehra Betul Kingir, Mesut Sancar, Pinar Ay, Refik Demirtunc, Cagatay Nuhoglu, Cemile H Misirli, Betul Okuyan","doi":"10.1093/fampra/cmad040","DOIUrl":"10.1093/fampra/cmad040","url":null,"abstract":"<p><strong>Background: </strong>The Family Caregiver Medication Administration Hassles Scale (FCMAHS) was developed to evaluate the hassles and concerns experienced by family caregivers in medication administration.</p><p><strong>Objective: </strong>This study aimed to evaluate the reliability and validity of the Turkish version of the Family Caregiver Medication Administration Hassles Scale (FCMAHS-TR).</p><p><strong>Methods: </strong>The FCMAHS-TR was developed after translation, cultural adaptation, and a pilot study. The cross-sectional study was conducted among family caregivers (≥18 years) in community pharmacies. Test-retest reliability analysis, exploratory factor analysis (EFA), and confirmatory factor analysis (CFA) were performed. Hypothesis testing was used for the assessment of construct validity.</p><p><strong>Results: </strong>The majority (68.7%) of the family caregivers were female (n = 470). In the test-retest reliability analysis (n = 30), the ICC value was 0.917 (P < 0.001). In EFA analysis (n = 251), the Kaiser‒Meyer‒Olkin (KMO) measure was 0.799, 62.6% of the total variance was explained by five factors including eighteen items, and Cronbach's alpha was 0.836. According to CFA (n = 219), the root mean square error of approximation (RMSEA) was 0.0654, and the comparative fit index (CFI) was 0.918. In construct validity, family caregivers with low reading ability of health-related materials and with high care burden had significantly higher median scores for all the factors of the FCMAHS-TR (P < 0.05 for all).</p><p><strong>Conclusions: </strong>The FCMAHS-TR can be used to evaluate the hassle and concerns experienced by family caregivers in medication administration. This scale can be used by healthcare professionals to identify family caregivers who need individualized interventions for medication administration hassles.</p>","PeriodicalId":12209,"journal":{"name":"Family practice","volume":null,"pages":null},"PeriodicalIF":2.4,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46499833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Family practice
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