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And they slept happily ever after: Online interpretive repertoires on the use of benzodiazepines and z-drugs. 从那以后,他们睡得很开心:关于苯二氮卓类药物和z类药物使用的在线解说节目。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 Epub Date: 2021-11-25 DOI: 10.1177/13634593211060770
Melissa Ceuterick, Thierry Christiaens, Hanne Creupelandt, Piet Bracke

Drawing on a critical social-psychological framework for discourse analysis, data from a popular forum for people over 50 were analysed to study how the habitual use of benzodiazepines and Z-drugs (BZD/Z) is discursively negotiated by Flemish older adults. We present five different repertoires (risk and addiction; alternative pathways; suffering; rationalisation; cessation) that illustrate how a pharmaceutical imaginary of these medications is constructed online and how posters act as reflexive users taking on a health role. Most repertoires emerge from a tacit norm on the undesirability of medication use for sleeping problems. In the alternative pathways and cessation repertoires this norm is implicitly accepted by focussing on how to either prevent or overcome chronic use with various alternative solutions or through tapering off, while the risk and addiction repertoire is used to more openly defend and discursively magnify the idea that medication has to be avoided at all cost. We discuss how this reflects a prevailing imperative of health and ethos of healthicisation of sleep. The rationalisation and suffering repertoires on the other hand challenge this norm by defending medication use. We further explore how these repertoires are used to self-position as either 'noble non-user', 'deserving and/or compliant patient' or 'rational user', reflecting previously found moral positions in offline settings. Our data add another position that has thus far not been discussed extensively with regard to prescription medication use, namely that of a 'recovered user'. As such, this study shows how this particular online community is a site for contestation of health promotion and medical/pharmaceuticalised discourses on sleep by users and non-users alike and offers a unique insight into how people in the age group that is known to use most BZD/Z discursively negotiate the use of these medications in pseudonymised online interactions.

根据话语分析的关键社会心理框架,分析了一个面向50岁以上人群的流行论坛的数据,以研究佛兰德老年人如何对苯二氮卓类药物和Z类药物的习惯性使用进行话语协商。我们展示了五个不同的曲目(风险和成瘾;替代途径;痛苦;合理化;停止),说明了这些药物的药物想象是如何在网上构建的,以及海报是如何作为反射性用户扮演健康角色的。大多数曲目都源于对睡眠问题药物使用的不可取性的默认规范。在替代途径和戒烟曲目中,这一规范被隐含地接受,因为它专注于如何通过各种替代解决方案或通过逐渐减少来预防或克服长期使用,而风险和成瘾曲目则被用来更公开地捍卫和讨论地放大必须不惜一切代价避免药物的想法。我们讨论了这是如何反映健康的普遍要求和睡眠健康化的风气的。另一方面,合理化和痛苦的剧目通过为药物使用辩护来挑战这一规范。我们进一步探索了这些曲目是如何被用来自我定位为“高尚的非用户”、“值得和/或顺从的患者”或“理性用户”的,反映了以前在离线环境中发现的道德立场。我们的数据增加了另一个迄今为止尚未就处方药使用进行广泛讨论的立场,即“康复用户”的立场。因此,这项研究表明,这个特定的在线社区是如何成为用户和非用户对健康促进和医疗/药物睡眠话语进行争论的网站,并对已知使用最多BZD/Z的年龄组的人如何在假名在线互动中协商这些药物的使用提供了独特的见解。
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引用次数: 1
Exempting the state and responsibilizing individuals during pandemic governance: Analyzing the health minister's responses to the Covid-19 pandemic in Turkey. 在大流行治理期间免除国家和负责任的个人:分析土耳其卫生部长对Covid-19大流行的反应。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593211060766
G Ezgi Akguloglu, Gulcin Con Wright

The COVID-19 pandemic pushed the governments of the world to implement different regulative and protective measures. Although these measures required serious re-considerations of public health strategies, they were still grounded on pre-existing contexts of countries' health systems, namely the "new public health" paradigm. Turkey's neoliberal health reforms since 2003 coincide with the principles of this paradigm's trends toward marketizing services and responsibilizing individuals; yet the Turkish context of the pandemic also stands out due to its mixed and unique form of governance. Utilizing the tweets of the Turkish Health Minister between March 13th and October 1st, 2020, we conducted a thematic qualitative analysis investigating the Turkish state's response to the COVID-19 pandemic. Our analysis revealed that state responsibility was framed around building new pandemic hospitals, informing the public, and building trust. Conversely, his tweets assigned Turkish individuals an active role in shaping pandemic outcomes through their "informed" and "empowered" agency. Finally, he coined "togetherness," referring to the sum of individual actions, as an indispensable goal in assuring public compliance with precautions. The Minister's tweets reflect the unique nature of pandemic governance in Turkey with a relatively imposing and swift response of centralized power but a primary focus on "responsibilized" individuals' collective actions.

COVID-19大流行促使世界各国政府实施不同的监管和保护措施。尽管这些措施需要认真重新考虑公共卫生战略,但它们仍然基于各国卫生系统的原有背景,即“新公共卫生”范式。自2003年以来,土耳其的新自由主义医疗改革与这种模式的服务市场化和个人负责任趋势的原则相吻合;然而,由于其混合和独特的治理形式,这一流行病的土耳其背景也很突出。利用土耳其卫生部长在2020年3月13日至10月1日期间的推文,我们进行了专题定性分析,调查了土耳其国家对COVID-19大流行的反应。我们的分析显示,国家的责任是围绕建设新的流行病医院、告知公众和建立信任展开的。相反,他的推文赋予土耳其个人通过其“知情”和“授权”机构在塑造流行病结果方面发挥积极作用。最后,他创造了“团结”,指的是个人行动的总和,作为确保公众遵守预防措施的不可或缺的目标。部长的推文反映了土耳其大流行病治理的独特性质,即集中权力相对有力和迅速的反应,但主要侧重于“负责任的”个人的集体行动。
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引用次数: 1
Racial biases in healthcare: Examining the contributions of Point of Care tools and unintended practitioner bias to patient treatment and diagnosis. 医疗保健中的种族偏见:检查护理点工具和无意的从业者偏见对患者治疗和诊断的贡献。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593211061215
Sachil Singh

Sophisticated algorithms are used daily to search through hundreds of medical journals in order to package updated medical insights into commercial databases. Healthcare practitioners can access these searchable databases-called Point of Care (PoC) tools-as downloadable apps on their smartphones or tablets to comprehensively and efficiently inform patient diagnosis and treatment. Because racist biases are unintentionally incorporated into the search reports that the companies generate and that practitioners regularly access, the aim of this article is to examine how healthcare practitioners' "pre-existing" racial stereotypes interact with pithy conclusions about race and ethnicity in PoC tools. I use qualitative research methods (content analysis, discourse analysis, open-ended semi-structured interviews, and role play) to frame the analysis within the Public Health Critical Race Praxis (PHCRP). This approach facilitates an understanding of how biological racism-the use of scientific evidence to support inherent differences between races-that is embedded in PoC algorithms informs a practitioner's assessment of a patient, and converges with persistent racial bias in medical training, medical research and healthcare. I contextualize the study with one semi-structured interview with an Editor of a leading PoC tool, MedScope (pseudonomized), and 10 semi-structured interviews with healthcare practitioners in S.E. Ontario, Canada. The article concludes that PoC tools and practitioners' personal biases contribute to racial prejudices in healthcare provision. This warrants further research on racial bias in medical literature and curriculum design in medical school.

每天都要使用复杂的算法来搜索数百种医学期刊,以便将最新的医学见解打包到商业数据库中。医疗保健从业者可以在智能手机或平板电脑上以可下载应用程序的形式访问这些可搜索的数据库(称为护理点(PoC)工具),从而全面有效地为患者提供诊断和治疗信息。由于种族主义偏见无意中被纳入公司生成的搜索报告和从业者经常访问的搜索报告中,本文的目的是研究医疗保健从业者的“预先存在的”种族刻板印象如何与PoC工具中关于种族和民族的简洁结论相互作用。我使用定性研究方法(内容分析,话语分析,开放式半结构化访谈和角色扮演)来构建公共卫生关键种族实践(PHCRP)中的分析。这种方法有助于理解嵌入在PoC算法中的生物种族主义——利用科学证据来支持种族之间的内在差异——如何影响从业者对患者的评估,并与医学培训、医学研究和医疗保健中持续存在的种族偏见融合在一起。我将研究背景化为对领先PoC工具MedScope(假名化)编辑的一次半结构化访谈,以及对加拿大南安大略省医疗保健从业人员的10次半结构化访谈。文章的结论是,PoC工具和从业者的个人偏见有助于在医疗保健提供种族偏见。这需要进一步研究医学文献中的种族偏见和医学院的课程设计。
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引用次数: 2
An auto-ethnographic reflection on the nature of nursing in the UK during the Covid-19 pandemic. 2019冠状病毒病大流行期间英国护理性质的自我民族志反思
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593211064122
Helen T Allan

In this article I discuss the effects on the patient experience of isolation nursing during the CoronaVirus Disease (COVID)-19 pandemic. An unintended consequence of isolation nursing has been to distance patients from nurses and emphasise the technical side of nursing while at the same time reducing the relational or affective potential of nursing. Such distanced forms of nursing normalise the distal patient in hospital. I consider ways in which this new form of distanced nursing has unwittingly contributed to the continued commodification of nursing care in the British NHS. Autoethnography is used to describe and reflect on the illness experience, the experiences of caregivers and the sociocultural organisation of health care. The findings discuss three areas of the illness experience: intimate nursing care; communication; the 'distanced' patient experience.

本文讨论了新冠肺炎大流行期间隔离护理对患者体验的影响。隔离护理的一个意想不到的后果是使患者与护士保持距离,强调护理的技术方面,同时减少护理的关系或情感潜力。这种远距离护理形式使远端病人在医院正常化。我认为这种新形式的远程护理在不知不觉中促进了英国NHS护理的持续商品化。自我民族志是用来描述和反映疾病的经验,护理人员的经验和卫生保健的社会文化组织。研究结果讨论了疾病体验的三个方面:亲密护理;沟通;“远程”患者体验。
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引用次数: 0
Individualizing the burnout problem: Health professionals' discourses of burnout and recovery in the context of rehabilitation. 职业倦怠问题的个体化:康复背景下健康专业人员的职业倦怠与康复话语。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593211063053
Maija Korhonen, Katri Komulainen

This discourse analytical study explores how health professionals (HPs) construct burnout as a form of mental distress in the context of Finnish burnout rehabilitation framed with a particular rehabilitation ethos. Burnout is a fuzzy concept and lacks a disease status. Therefore, it calls for context-specific definition and justification. By highlighting the socially and interactionally produced character of categories of mental distress, the study investigates the kinds of discourses HPs use to formulate "the problem" and its solutions, and how people dealing with burnout are categorized in these discourses. The data consists of field notes from the observation of group discussion sessions in two 1-year burnout rehabilitation courses. As a result of the analysis, five partly overlapping discourses were identified: psychological, evolutionary, healthy lifestyle, biomedical, and welfare. Within these discourses, people who experience burnout were categorized as over-conscientious employees, "good girls," "primitive people," self-responsible rehabilitees, patients, and (aging) employees with social and legal rights. Burnout rehabilitation and HPs' views reproduce a cultural and clinical discourse around burnout in which work-related problems are treated as individual-level problems and individuals are responsibilized for the management of mental distress. Based on the results, it is concluded that the hybrid type of interventions that attempt to influence both individual- and work-related problems behind burnout would help to prevent people dealing with burnout from being over-responsibilized for solving problems at the workplace.

本话语分析研究探讨了卫生专业人员(hp)如何在芬兰职业倦怠康复框架下,以特定的康复精神为背景,将职业倦怠构建为一种精神痛苦形式。职业倦怠是一个模糊的概念,缺乏疾病状态。因此,它需要上下文特定的定义和理由。通过强调社会和互动产生的精神痛苦类别的特征,本研究调查了高情商者用来制定“问题”及其解决方案的话语类型,以及如何在这些话语中对处理倦怠的人进行分类。本研究的数据来自于两个为期一年的倦怠康复课程的小组讨论。作为分析的结果,确定了五个部分重叠的话语:心理,进化,健康生活方式,生物医学和福利。在这些话语中,经历过倦怠的人被归类为过度尽责的员工、“好女孩”、“原始人”、自我负责的康复者、病人和拥有社会和法律权利的(老年)员工。倦怠康复和HPs的观点再现了一种围绕倦怠的文化和临床话语,在这种话语中,与工作有关的问题被视为个人层面的问题,个人负责管理精神痛苦。基于这些结果,我们得出的结论是,试图影响倦怠背后的个人和工作相关问题的混合型干预措施,将有助于防止人们在解决工作场所的问题时过度负责。
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引用次数: 2
Quality-of-life measurement in depression trials: A consumerist relic. 抑郁症试验中的生活质量测量:消费主义的遗物。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593221074887
Susan McPherson, Jeppe Oute, Ewen Speed

Quality-of-life measurement in depression is advocated as a patient-centred indicator of recovery, but may instead enhance the mimetic authority of randomised controlled trials (RCTs) which have been roundly critiqued in mental health. In this paper we draw on the social life of methods approach to extend the well-developed critique of RCTs into the field of quality-of-life measurement. We accomplish this through consideration and critique of the conceptual and epistemological development of quality-of-life measurement in depression, including the role of psychometrics in its development. Examining conceptual developments from the 1970s onwards, we consider how the scientific literature on quality-of-life in depression aligns with behavioural economics and consumerism but falls short of engaging with genuinely patient-centred approaches to recovery. We argue that quality-of-life measures in depression were developed within a consumerist model of healthcare in which the medical model was a central pillar and 'choice' a rhetorical device only. While quality-of-life instrument development was largely funded by industry, psychometrics provided no coherent solution to the 'affective fallacy' (high correlations between quality-of-life and depressive symptoms). Industry has largely abandoned the measures, while psychotherapy research has increasingly endorsed them. We argue that in their design and implementation, quality-of-life measures for depression remain based on a commercial model of healthcare, are conceptually flawed and do not support concepts of patient-centred healthcare.

抑郁症的生活质量测量被提倡作为一种以患者为中心的康复指标,但可能会增强随机对照试验(rct)的模仿权威,而随机对照试验在精神健康领域受到了全面的批评。在本文中,我们借鉴了社会生活方法的方法,将对随机对照试验的成熟批评扩展到生活质量测量领域。我们通过考虑和批判抑郁症生活质量测量的概念和认识论发展,包括心理测量学在其发展中的作用,来实现这一目标。回顾20世纪70年代以来的概念发展,我们考虑了关于抑郁症患者生活质量的科学文献如何与行为经济学和消费主义保持一致,但却缺乏真正以患者为中心的康复方法。我们认为,抑郁症的生活质量测量是在医疗保健的消费主义模式中发展起来的,在这种模式中,医疗模式是中心支柱,“选择”只是一种修辞手段。虽然生活质量仪器的开发很大程度上是由工业界资助的,但心理测量学并没有为“情感谬误”(生活质量和抑郁症状之间的高度相关性)提供连贯的解决方案。业界基本上已经放弃了这些措施,而心理治疗研究却越来越支持这些措施。我们认为,在其设计和实施中,抑郁症的生活质量措施仍然基于医疗保健的商业模式,在概念上存在缺陷,不支持以患者为中心的医疗保健概念。
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引用次数: 2
Past, present and imaginary: Pathography in all its forms. 过去、现在和想象:各种形式的病理学。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593211060759
Annemarie Jutel, Ginny Russell

Diagnosis is a profoundly social phenomenon which, while putatively identifying disease entities, also provides insights into how societies understand and explain health, illness and deviance. In this paper, we explore how diagnosis becomes part of popular culture through its use in many non-clinical settings. From historical diagnosis of long-deceased public personalities to media diagnoses of prominent politicians and even diagnostic analysis of fictitious characters, the diagnosis does meaningful social work, explaining diversity and legitimising deviance in the popular imagination. We discuss a range of diagnostic approaches from paleopathography to fictopathography, which all take place outside of the clinic. Through pathography, diagnosis creeps into widespread and everyday domains it has not occupied previously, performing medicalisation through popularisation. We describe how these pathographies capture, not the disorders of historical or fictitious figures, rather, the anxieties of a contemporary society, eager to explain deviance in ways that helps to make sense of the world, past, present and imaginary.

诊断是一种深刻的社会现象,它在认定疾病实体的同时,也提供了对社会如何理解和解释健康、疾病和越轨行为的见解。在本文中,我们探讨如何诊断成为流行文化的一部分,通过它的使用在许多非临床设置。从对去世已久的公众人物的历史诊断,到对杰出政治家的媒体诊断,甚至是对虚构人物的诊断分析,这种诊断做了有意义的社会工作,解释了大众想象中的多样性,并使越轨行为合法化。我们讨论了一系列的诊断方法,从古病理学到虚构病理学,这些都发生在诊所之外。通过病理学,诊断进入以前没有占领的广泛和日常领域,通过普及进行医学化。我们描述这些病态如何捕捉,而不是历史或虚构人物的紊乱,而是当代社会的焦虑,渴望以有助于理解世界的方式解释偏差,过去,现在和想象。
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引用次数: 1
A narrative exploration of identity in adults with de novo scoliosis. 新生脊柱侧凸成人身份的叙事探索。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593211067892
Lucy Tweedlie, Laura Simonds, Paul Hanna, Darren F Lui

Adult de novo scoliosis is a chronic health condition characterised by a curvature in the ageing spine. It can cause debilitating back pain and significant visible differences. Yet there has been very limited research on the psychological effects of this condition, particularly around identity. Therefore, we undertook semi-structured interviews to explore the ways in which individuals with scoliosis understood their identity. Findings from narrative analysis highlight the ways in which individuals negotiate their identity in relation to their social roles, their ability to control their condition and things around them, the extent to which their condition is visible and the extent to which they experienced physical pain from their condition. This article concludes by highlighting the relationship between identity and scoliosis and offers practical implications and suggestions for future research.

成人新生脊柱侧凸是一种慢性健康状况,其特征是老化的脊柱弯曲。它会导致虚弱的背部疼痛和明显的可见差异。然而,关于这种情况的心理影响的研究非常有限,特别是在身份方面。因此,我们进行了半结构化访谈,以探索脊柱侧凸患者理解其身份的方式。叙事分析的发现强调了个体在与其社会角色、控制自身状况和周围事物的能力、自身状况的可见程度以及因自身状况而经历的身体痛苦程度等方面的身份协商方式。本文最后强调了身份与脊柱侧凸之间的关系,并对未来的研究提出了实际意义和建议。
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引用次数: 0
Taking care of oneself and others: The emotion work of women suffering from a rare skin disease. 照顾自己和他人:患有罕见皮肤病的女性的情感工作。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 Epub Date: 2022-01-06 DOI: 10.1177/13634593211064127
Yannick Le Henaff, Stéphane Héas, Pascal Joly

In this article, we analyze the emotion work of women suffering from pemphigus, a rare skin disease. We suggest that this approach sheds new light on the upheavals caused by illness and more generally on the experience of illness itself. Our study draws on a series of 27 interviews with pemphigus patients whose average age was 57. We show that serious and chronic illness does not radically alter the feeling rules in place with close friends and family, despite the uncertainty and emotional upheaval confronting patients. The emotion work they carry out should be understood in light of roles and places established prior to the onset of the disease. Emotion work is embedded in the broader history of relationships with family and friends and prior episodes of illness help create particular configurations and expectations.

在这篇文章中,我们分析了患有天疱疮(一种罕见的皮肤病)的女性的情绪工作。我们认为,这种方法为疾病引起的动荡以及更普遍的疾病本身的经历提供了新的视角。我们的研究采用了一系列27名天疱疮患者的访谈,这些患者的平均年龄为57岁。我们表明,尽管患者面临着不确定性和情绪波动,但严重和慢性疾病并不会从根本上改变与亲密朋友和家人的情感规则。他们所进行的情感工作应该根据疾病发作前确立的角色和地点来理解。情感工作植根于与家人和朋友关系的更广泛历史中,之前的疾病发作有助于创造特定的配置和期望。
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引用次数: 1
From domestication to imperial patronage: Deconstructing the biomedicalisation of occupational therapy. 从驯化到帝国赞助:解构职业治疗的生物医学化。
IF 2.1 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-09-01 DOI: 10.1177/13634593211067891
Pier-Luc Turcotte, Dave Holmes

Occupational therapy knowledge emerged in the 19th century as reformist movements responded to the industrialisation of society and capitalist expansion. In the Global North, it was institutionalised by State apparatuses during the First and Second World Wars. Although biomedicine contributed to the rapid expansion and establishment of occupational therapy as a health discipline, its domestication by the biomedical model led to an overly regulated profession that betrays its reformist ideals. Drawing on the work of Deleuze and Guattari, our aim in this article is to deconstruct the biomedicalisation of occupational therapy and demonstrate how resistance to this process is critical for the future of this discipline. The use of arts and crafts in occupational therapy may be conceptualised as a 'nomad science' aesthetically resisting the domination of industrialism and medical reductionism. Through the war efforts, a coalition of progressive nurses, social workers, teachers, artisans and activists metamorphosed into occupational therapists. As it did with nursing, biomedicine proceeded to domesticate occupational therapy through a form of 'imperial' patronage subsequently embodied in the evidence-based movement. 'Occupational' jargon is widely used today and may be viewed as the product of a profession trying to establish itself as an autonomous discipline that imposes its own regime of truth. Given the symbolic violence underlying this patronage, the future of occupational therapy should not mean behaving according to biomedicine's terms. As a discipline, occupational therapy must resist the appropriation of its 'war machine' and craft its own terms through the release of new creative energy.

19世纪,随着改革运动对社会工业化和资本主义扩张的回应,职业治疗知识出现了。在全球北方,它在第一次和第二次世界大战期间被国家机器制度化。尽管生物医学促进了职业治疗作为一门健康学科的迅速扩张和建立,但生物医学模式对其的驯化导致了一个过度监管的职业,违背了其改革理想。借鉴德勒兹和瓜塔里的工作,我们在这篇文章中的目的是解构职业治疗的生物医学化,并证明对这一过程的抵制如何对这一学科的未来至关重要。在职业治疗中使用艺术和工艺可以被概念化为一种“游牧科学”,在美学上抵制工业主义和医学简化主义的统治。通过战争的努力,一个由进步的护士、社会工作者、教师、工匠和活动家组成的联盟转变为职业治疗师。就像护理一样,生物医学通过一种“帝国”赞助的形式开始驯化职业治疗,随后体现在循证运动中。“职业”术语在今天被广泛使用,可能被视为一种职业的产物,这种职业试图将自己建立为一种自治的学科,强加自己的真理制度。考虑到这种赞助背后的象征性暴力,职业治疗的未来不应该意味着按照生物医学的术语行事。作为一门学科,职业治疗必须抵制其“战争机器”的占用,并通过释放新的创造性能量来制定自己的条款。
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引用次数: 5
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