Pub Date : 2025-05-01Epub Date: 2024-10-06DOI: 10.1177/13634593241279206
Judith McHugh, Paul Trotman, Helen D Nicholson, Kelby Smith-Han
Since 2020 health workers everywhere have been challenged by the ongoing ramifications of the Covid-19 pandemic. This virus impacted all aspects of life but health-related workplaces particularly, were transformed virtually overnight. Demands were heightened and customary supports came under pressure presenting a huge crisis for health systems. The goal of this study was to explore how this catastrophic pandemic event impacted the wellbeing of healthcare professionals (HCPs) working through this time. Interviews with 57 HCPs from multiple countries and specialty areas were explored utilising inductive content analysis (ICA). Resulting data were then categorised into themes and deductively analysed utilising a method informed by Capability Theory. These were secondary data as the interviews were part of a larger set collected primarily for the purpose of a documentary being made about this experience. This study found that illbeing experiences were prevalent among HCPs. However, significant sources of wellbeing were also evident, and were instrumental in maintaining HCP resilience. Wellbeing was enhanced when HCPs experienced a small number of key capabilities that enabled a broad range of functionings. The capabilities were for (a) participation in positive relationships, (b) a sense of identity, purpose, meaning and value in relation to one's work and (c) ability to provide an appropriate level of medical treatment, care and other role related support. These capabilities were central to HCP wellbeing irrespective of the individual's location and specialty area, however the ability to realise these capabilities in desired functionings was differentially impacted by each individual's unique circumstances.
{"title":"Conceptualising wellbeing among health-care workers during the Covid-19 pandemic.","authors":"Judith McHugh, Paul Trotman, Helen D Nicholson, Kelby Smith-Han","doi":"10.1177/13634593241279206","DOIUrl":"10.1177/13634593241279206","url":null,"abstract":"<p><p>Since 2020 health workers everywhere have been challenged by the ongoing ramifications of the Covid-19 pandemic. This virus impacted all aspects of life but health-related workplaces particularly, were transformed virtually overnight. Demands were heightened and customary supports came under pressure presenting a huge crisis for health systems. The goal of this study was to explore how this catastrophic pandemic event impacted the wellbeing of healthcare professionals (HCPs) working through this time. Interviews with 57 HCPs from multiple countries and specialty areas were explored utilising inductive content analysis (ICA). Resulting data were then categorised into themes and deductively analysed utilising a method informed by Capability Theory. These were secondary data as the interviews were part of a larger set collected primarily for the purpose of a documentary being made about this experience. This study found that illbeing experiences were prevalent among HCPs. However, significant sources of wellbeing were also evident, and were instrumental in maintaining HCP resilience. Wellbeing was enhanced when HCPs experienced a small number of key <i>capabilities</i> that enabled a broad range of <i>functionings.</i> The <i>capabilities</i> were for (a) participation in positive relationships, (b) a sense of identity, purpose, meaning and value in relation to one's work and (c) ability to provide an appropriate level of medical treatment, care and other role related support. These c<i>apabilities</i> were central to HCP wellbeing irrespective of the individual's location and specialty area, however the ability to realise these <i>capabilities</i> in desired <i>functionings</i> was differentially impacted by each individual's unique circumstances.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"335-354"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12049583/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142380691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-01Epub Date: 2024-09-19DOI: 10.1177/13634593241279207
Lewis Jefferson, Stephen Dunne
This paper examines the rhetorical strategies used by stroke survivors to attend to identity aloneness, a phenomenon in which individuals experience a sense of disconnect from others as a consequence of identity change, for which stroke is known as an antecedent. Three stroke survivors, and their spouses, were interviewed about their stroke, social support, and experiences with loneliness and identity change. The data was transcribed using a simplified version of the Jeffersonian method and analysed using a critical discursive psychological approach. This made it possible to examine the way in which the psychological business of identity aloneness was managed in participants' talk via discursive devices such as metaphors and category entitlement, while also leaving room to consider how broader societal discourses were drawn upon. The analysis revealed two critical ways in which participants attended to the issue of identity aloneness: (1) by crafting and occupying a position of resilience; (2) by managing the impact of the post-stroke social world on their identities. These findings offer insight into how the issue of identity aloneness is made sense of by stroke survivors in the context of a discussion with an interviewer. Finally, findings informed future directions for research, including developing a comprehensive theory of identity aloneness using a grounded theory approach and developing and validating a psychometric measure of identity aloneness to be applied in a rehabilitative setting.
{"title":"'They think we're just in God's waiting room': A discursive study on identity aloneness in stroke survivors.","authors":"Lewis Jefferson, Stephen Dunne","doi":"10.1177/13634593241279207","DOIUrl":"10.1177/13634593241279207","url":null,"abstract":"<p><p>This paper examines the rhetorical strategies used by stroke survivors to attend to identity aloneness, a phenomenon in which individuals experience a sense of disconnect from others as a consequence of identity change, for which stroke is known as an antecedent. Three stroke survivors, and their spouses, were interviewed about their stroke, social support, and experiences with loneliness and identity change. The data was transcribed using a simplified version of the Jeffersonian method and analysed using a critical discursive psychological approach. This made it possible to examine the way in which the psychological business of identity aloneness was managed in participants' talk via discursive devices such as metaphors and category entitlement, while also leaving room to consider how broader societal discourses were drawn upon. The analysis revealed two critical ways in which participants attended to the issue of identity aloneness: (1) by crafting and occupying a position of resilience; (2) by managing the impact of the post-stroke social world on their identities. These findings offer insight into how the issue of identity aloneness is made sense of by stroke survivors in the context of a discussion with an interviewer. Finally, findings informed future directions for research, including developing a comprehensive theory of identity aloneness using a grounded theory approach and developing and validating a psychometric measure of identity aloneness to be applied in a rehabilitative setting.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"316-334"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12049578/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142285878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-05-01Epub Date: 2024-08-05DOI: 10.1177/13634593241270955
Monica L Molinaro, Jessica Polzer, Debbie Laliberte Rudman, Marie Savundranayagam
Drawing on Arthur Frank's conceptualization of narrative repair, we consider how pediatric oncology nurses restore and re-story the narratives of patients and families whose biographies have been thrown off course by the diagnosis and death of a child from cancer, as well as their own narratives as caregivers. Frank argued that when one's life story is shipwrecked by chronic or life-threatening illness, storytelling is way to reorient one's biography to a new ending, repairing the narrative wreckage created by the illness experience. In this critical narrative study with nine pediatric oncology nurses in Ontario, Canada, we highlight how, through physical, narrative, and moral proximity, nurses become entwined in their patients' and families' illness narratives, and how developing this narrative knowledge provides nurses with opportunities to steer families onto new terrain. As well, we examine how nurses re-story and repair their own identities as "good" caregivers in situations when they are prevented from acting on behalf of their pediatric cancer patients. These findings contribute to literature on illness narratives by considering narrative repair as a relational process enacted as part of pediatric oncology caregiving.
{"title":"Pediatric oncology caregiving as narrative repair: Restor(y)ing disrupted family biographies and damaged moral identities.","authors":"Monica L Molinaro, Jessica Polzer, Debbie Laliberte Rudman, Marie Savundranayagam","doi":"10.1177/13634593241270955","DOIUrl":"10.1177/13634593241270955","url":null,"abstract":"<p><p>Drawing on Arthur Frank's conceptualization of narrative repair, we consider how pediatric oncology nurses restore and re-story the narratives of patients and families whose biographies have been thrown off course by the diagnosis and death of a child from cancer, as well as their own narratives as caregivers. Frank argued that when one's life story is shipwrecked by chronic or life-threatening illness, storytelling is way to reorient one's biography to a new ending, repairing the narrative wreckage created by the illness experience. In this critical narrative study with nine pediatric oncology nurses in Ontario, Canada, we highlight how, through physical, narrative, and moral proximity, nurses become entwined in their patients' and families' illness narratives, and how developing this narrative knowledge provides nurses with opportunities to steer families onto new terrain. As well, we examine how nurses re-story and repair their own identities as \"good\" caregivers in situations when they are prevented from acting on behalf of their pediatric cancer patients. These findings contribute to literature on illness narratives by considering narrative repair as a relational process enacted as part of pediatric oncology caregiving.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"396-410"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12049576/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141889025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-04-30DOI: 10.1177/13634593251336175
Tracy Morison, Catriona Ida Macleod, Yanela Ndabula
Global research indicates ongoing challenges in delivering person-centred contraceptive care. Much of the contraceptive research investigates this issue using systems-focussed approaches to map institutional constraints (e.g. institutional or health system barriers to accessing contraception). The assumption underlying this research approach is that simply removing structural barriers can address issues and enhance contraceptive autonomy, but this is not the case. Our research shows how discursively constructed power relations undermine bodily integrity and contraceptive agency even as contraceptive providers endorse the principles of patient-centred care. Using a synthetic narrative/discourse approach to analyse provider interviews in South Africa and New Zealand, we draw on Foucauldian analytics of biopower to show how an idealised person-centred care narrative collapses under the weight of discourses of medicalised risk, protectionism, and biomedical expertise, signalling practices of power through confession, responsibilisation and surveillance. Our findings highlight an essential perspective frequently missing in systems-focussed research on contraceptive care: the crucial dimension of power and reproductive politics. Thus, we argue for the necessity of investigating this dimension, in addition to systemic challenges. Our work demonstrates the value of frameworks that illuminate power dynamics, such as the Foucauldian analytics of biopower we undertook. Expanding the range of research perspectives in contraceptive research can deepen understandings of how systems constraints and power relations together undermine relational person-centred contraceptive care.
{"title":"The unravelling of person-centred care: The value and necessity of analysing power relations in contraceptive services.","authors":"Tracy Morison, Catriona Ida Macleod, Yanela Ndabula","doi":"10.1177/13634593251336175","DOIUrl":"https://doi.org/10.1177/13634593251336175","url":null,"abstract":"<p><p>Global research indicates ongoing challenges in delivering person-centred contraceptive care. Much of the contraceptive research investigates this issue using systems-focussed approaches to map institutional constraints (e.g. institutional or health system barriers to accessing contraception). The assumption underlying this research approach is that simply removing structural barriers can address issues and enhance contraceptive autonomy, but this is not the case. Our research shows how discursively constructed power relations undermine bodily integrity and contraceptive agency even as contraceptive providers endorse the principles of patient-centred care. Using a synthetic narrative/discourse approach to analyse provider interviews in South Africa and New Zealand, we draw on Foucauldian analytics of biopower to show how an idealised person-centred care narrative collapses under the weight of discourses of medicalised risk, protectionism, and biomedical expertise, signalling practices of power through confession, responsibilisation and surveillance. Our findings highlight an essential perspective frequently missing in systems-focussed research on contraceptive care: the crucial dimension of power and reproductive politics. Thus, we argue for the necessity of investigating this dimension, in addition to systemic challenges. Our work demonstrates the value of frameworks that illuminate power dynamics, such as the Foucauldian analytics of biopower we undertook. Expanding the range of research perspectives in contraceptive research can deepen understandings of how systems constraints <i>and</i> power relations <i>together</i> undermine relational person-centred contraceptive care.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593251336175"},"PeriodicalIF":1.9,"publicationDate":"2025-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144007941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-04-21DOI: 10.1177/13634593251332891
Lea Høj Høstrup, Lea Cordes, Julie Grøn Corneliussen, Jeanette Ørskov Pedersen, Kia Cecilie Korsgaard Sørensen, Nicole Thualagant, Katja Schrøder, Astrid Janssens
This study sought to explore which possibilities for voicing childbirth experiences women who have given birth experience having, and what types of knowledge they share in different social contexts. With an interpretative phenomenological analysis, conducted in collaboration between academic researchers and The Birthing Experience Panel, the study explores nine Danish women's accounts of articulating and sharing experiential childbirth knowledge. The analysis presents two main themes and six subthemes: (1) Women differentiate practices of voicing of their childbirth experiences by dosing details: by relational proximity, by listener's insight, and by the expertise of health professionals and (2) Women maneuver sharing experiential knowledge, through seeking community, considering countering experiences and careful censoring, differentiated by the childbirth experiences held by the listener. We lean on concepts from feminist epistemology as we discuss how individual epistemic practices rely on cultural perceptions of the value of experiential childbirth knowledge. The detailed understanding of how experiential childbirth knowledge is shared and valued in women's daily lives can contribute to broader discussions on efforts to build collective knowledge resources and include experiential knowledge in the organization of reproductive health care.
{"title":"'I'm very open about it if people ask': Selective sharing, seeking community and careful censoring in women's epistemic practices surrounding childbirth experiences.","authors":"Lea Høj Høstrup, Lea Cordes, Julie Grøn Corneliussen, Jeanette Ørskov Pedersen, Kia Cecilie Korsgaard Sørensen, Nicole Thualagant, Katja Schrøder, Astrid Janssens","doi":"10.1177/13634593251332891","DOIUrl":"https://doi.org/10.1177/13634593251332891","url":null,"abstract":"<p><p>This study sought to explore which possibilities for voicing childbirth experiences women who have given birth experience having, and what types of knowledge they share in different social contexts. With an interpretative phenomenological analysis, conducted in collaboration between academic researchers and The Birthing Experience Panel, the study explores nine Danish women's accounts of articulating and sharing experiential childbirth knowledge. The analysis presents two main themes and six subthemes: (1) Women differentiate practices of voicing of their childbirth experiences by dosing details: by relational proximity, by listener's insight, and by the expertise of health professionals and (2) Women maneuver sharing experiential knowledge, through seeking community, considering countering experiences and careful censoring, differentiated by the childbirth experiences held by the listener. We lean on concepts from feminist epistemology as we discuss how individual epistemic practices rely on cultural perceptions of the value of experiential childbirth knowledge. The detailed understanding of how experiential childbirth knowledge is shared and valued in women's daily lives can contribute to broader discussions on efforts to build collective knowledge resources and include experiential knowledge in the organization of reproductive health care.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593251332891"},"PeriodicalIF":1.9,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143983379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-04-21DOI: 10.1177/13634593251336163
Emma Craddock
This article conceptualises a combined autism and ADHD (AuDHD) diagnosis as a residual category not formally represented in diagnostic systems, addressing a critical gap in neurodiversity research. Using Interpretative Phenomenological Analysis of email interviews with six women diagnosed in adulthood, it examines the ambivalence arising from inhabiting this liminal diagnostic space. Residuality generates conflicting feelings about autism, ADHD, and the self, resulting in fragmented identities shaped more by societal narratives than by interpersonal perceptions. Themes include the contradictions between autism and ADHD ('two separate parts of my brain'), their sometimes-complementary relationship ('two sides of the same coin'), and the tension between neurodiversity and medicalisation narratives ('autism is a part of me, ADHD is an add-on'). To resolve this ambivalence, participants sought an objective understanding of their conditions and distinguished between neurodivergent and neurotypical identities. Collectively, their narratives reveal a fluid and dynamic understanding of AuDHD. As the first study to explore the lived experiences of adults diagnosed with both autism and ADHD, it makes an original contribution by developing an AuDHD phenomenology and analytical framework. By amplifying the voices of women historically marginalised, the findings underscore the need for integrated diagnostic processes and tailored support to foster cohesive self-identity. This article contributes to neurodiversity literature, broadens understandings of categorical systems, and illuminates the complexities of navigating residual diagnostic spaces.
{"title":"Navigating residual diagnostic categories: The lived experiences of women diagnosed with autism and ADHD in adulthood.","authors":"Emma Craddock","doi":"10.1177/13634593251336163","DOIUrl":"https://doi.org/10.1177/13634593251336163","url":null,"abstract":"<p><p>This article conceptualises a combined autism and ADHD (AuDHD) diagnosis as a residual category not formally represented in diagnostic systems, addressing a critical gap in neurodiversity research. Using Interpretative Phenomenological Analysis of email interviews with six women diagnosed in adulthood, it examines the ambivalence arising from inhabiting this liminal diagnostic space. Residuality generates conflicting feelings about autism, ADHD, and the self, resulting in fragmented identities shaped more by societal narratives than by interpersonal perceptions. Themes include the contradictions between autism and ADHD ('two separate parts of my brain'), their sometimes-complementary relationship ('two sides of the same coin'), and the tension between neurodiversity and medicalisation narratives ('autism is a part of me, ADHD is an add-on'). To resolve this ambivalence, participants sought an objective understanding of their conditions and distinguished between neurodivergent and neurotypical identities. Collectively, their narratives reveal a fluid and dynamic understanding of AuDHD. As the first study to explore the lived experiences of adults diagnosed with both autism and ADHD, it makes an original contribution by developing an AuDHD phenomenology and analytical framework. By amplifying the voices of women historically marginalised, the findings underscore the need for integrated diagnostic processes and tailored support to foster cohesive self-identity. This article contributes to neurodiversity literature, broadens understandings of categorical systems, and illuminates the complexities of navigating residual diagnostic spaces.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593251336163"},"PeriodicalIF":1.9,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143994178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-04-12DOI: 10.1177/13634593251332879
Tebogo B Sebeelo
Non-communicable diseases (NCD's) have recently become a focus of attention for policymakers in Botswana. In line with the global community, the country has been intentional about dealing with the challenges posed by NCD's and the potential threat it poses to the population. Although the concern with NCD's is legitimate, it is relatively unknown how NCD's have been constructed as policy 'problems' in Botswana. More importantly, the genealogy of NCD's and the politics of their emergence has largely been outside the scope of mainstream policymaking. This paper draws from Carol Bacchi's 'What's the Problem Represented to Be' (WPR), a poststructural analytic approach to examine how the Botswana Multi-Sectoral Strategy for Prevention and Control of Non-Communicable Diseases (2018-2023) represents the NCD 'problem' in Botswana. The paper argues that the NCD strategy in Botswana is framed from a neoliberal approach that place emphasis on individual responsibility and neglect larger social forces. Furthermore, the paper highlights that the use of international 'experts' and consultants bring along international tropes of evidence that might undermine local knowledge systems. The NCD strategy essentially neglects the socio-cultural factors that shape NCD risk in Botswana. The paper provides a critical analysis of how the construction of NCD 'problems' might undermine the everyday experiences of the people of Botswana. Alternative conceptualisations of the NCD 'problem' identified by the WPR analysis is outlined in the conclusion of the paper.
{"title":"Producing non-communicable diseases(NCD's) as health 'problems' in Botswana: A critical analysis of the NCD strategy (2018-2023).","authors":"Tebogo B Sebeelo","doi":"10.1177/13634593251332879","DOIUrl":"https://doi.org/10.1177/13634593251332879","url":null,"abstract":"<p><p>Non-communicable diseases (NCD's) have recently become a focus of attention for policymakers in Botswana. In line with the global community, the country has been intentional about dealing with the challenges posed by NCD's and the potential threat it poses to the population. Although the concern with NCD's is legitimate, it is relatively unknown how NCD's have been constructed as policy 'problems' in Botswana. More importantly, the genealogy of NCD's and the politics of their emergence has largely been outside the scope of mainstream policymaking. This paper draws from Carol Bacchi's 'What's the Problem Represented to Be' (WPR), a poststructural analytic approach to examine how the Botswana Multi-Sectoral Strategy for Prevention and Control of Non-Communicable Diseases (2018-2023) represents the NCD 'problem' in Botswana. The paper argues that the NCD strategy in Botswana is framed from a neoliberal approach that place emphasis on individual responsibility and neglect larger social forces. Furthermore, the paper highlights that the use of international 'experts' and consultants bring along international tropes of evidence that might undermine local knowledge systems. The NCD strategy essentially neglects the socio-cultural factors that shape NCD risk in Botswana. The paper provides a critical analysis of how the construction of NCD 'problems' might undermine the everyday experiences of the people of Botswana. Alternative conceptualisations of the NCD 'problem' identified by the WPR analysis is outlined in the conclusion of the paper.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"13634593251332879"},"PeriodicalIF":1.9,"publicationDate":"2025-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144003154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-03-21DOI: 10.1177/13634593241238857
Gemma Hughes, Timothy J Stephens, Lucas M Seuren, Rupert M Pearse, Sara E Shaw
Increasing numbers of older people undergo major surgery in the United Kingdom (UK), with many at high risk of complications due to age, co-morbidities or frailty. This article reports on a study of such patients and their clinicians engaged in shared decision-making. Shared decision-making is a collaborative approach that seeks to value and centre patients' preferences, potentially addressing asymmetries of knowledge and power between clinicians and patients by countering medical authority with greater patient empowerment. We studied shared decision-making practices in the context of major surgery by recruiting 16 patients contemplating either colorectal, cardiac or joint replacement surgery in the UK National Health Service (NHS). Over 18 months 2019-2020, we observed and video-recorded decision-making consultations, studied the organisational and clinical context for consultations, and interviewed patients and clinicians about their experiences of making decisions. Linguistic ethnography, the study of communication and interaction in context, guided us to analyse the interplay between interactions (during consultations between clinicians, patients and family members) and clinical and organisational features of the contexts for those interactions. We found that the framing of consultations as being about life-saving or life-enhancing procedures was important in producing three different genres of consultations focused variously on: resolving problems, deliberation of options and evaluation of benefits of surgery. We conclude that medical authority persists, but can be used to create more deliberative opportunities for decision-making through amending the context for consultations in addition to adopting appropriate communication practices during surgical consultations.
{"title":"Clinical context and communication in shared decision-making about major surgery: Findings from a qualitative study with colorectal, orthopaedic and cardiac patients.","authors":"Gemma Hughes, Timothy J Stephens, Lucas M Seuren, Rupert M Pearse, Sara E Shaw","doi":"10.1177/13634593241238857","DOIUrl":"10.1177/13634593241238857","url":null,"abstract":"<p><p>Increasing numbers of older people undergo major surgery in the United Kingdom (UK), with many at high risk of complications due to age, co-morbidities or frailty. This article reports on a study of such patients and their clinicians engaged in shared decision-making. Shared decision-making is a collaborative approach that seeks to value and centre patients' preferences, potentially addressing asymmetries of knowledge and power between clinicians and patients by countering medical authority with greater patient empowerment. We studied shared decision-making practices in the context of major surgery by recruiting 16 patients contemplating either colorectal, cardiac or joint replacement surgery in the UK National Health Service (NHS). Over 18 months 2019-2020, we observed and video-recorded decision-making consultations, studied the organisational and clinical context for consultations, and interviewed patients and clinicians about their experiences of making decisions. Linguistic ethnography, the study of communication and interaction in context, guided us to analyse the interplay between interactions (during consultations between clinicians, patients and family members) and clinical and organisational features of the contexts for those interactions. We found that the framing of consultations as being about life-saving or life-enhancing procedures was important in producing three different genres of consultations focused variously on: resolving problems, deliberation of options and evaluation of benefits of surgery. We conclude that medical authority persists, but can be used to create more deliberative opportunities for decision-making through amending the context for consultations in addition to adopting appropriate communication practices during surgical consultations.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"200-219"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11894849/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140184261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-02-26DOI: 10.1177/13634593241234491
Marjo Kolehmainen
This article analyses the digital screen as a health technology. In particular, the article asks how screens as a part of therapy settings or counselling practices materialise - or fail to materialise - care. The empirical data comprise interviews with therapy and counselling professionals, whose experiences with technology during the COVID-19 pandemic were my original interest. Adopting a sociomaterial approach to technology use, it scrutinises not only how screens are used, but also how screens themselves act and operate. This approach foregrounds the screen as 'multiple', complicating a dichotomous understanding between in-person therapy and remote therapy. The article argues that the screen operates in a variety of ways that might either facilitate or degrade care and is an essential part of more-than-human care in digitalised societies. Acknowledging the agential capacities of all matter, the article also conceptualises screens as 'vibrant matter'.
{"title":"Vibrant Screens: Remote therapy and counselling through the lens of digital materiality.","authors":"Marjo Kolehmainen","doi":"10.1177/13634593241234491","DOIUrl":"10.1177/13634593241234491","url":null,"abstract":"<p><p>This article analyses the digital screen as a health technology. In particular, the article asks how screens as a part of therapy settings or counselling practices materialise - or fail to materialise - care. The empirical data comprise interviews with therapy and counselling professionals, whose experiences with technology during the COVID-19 pandemic were my original interest. Adopting a sociomaterial approach to technology use, it scrutinises not only how screens are used, but also how screens themselves act and operate. This approach foregrounds the screen as 'multiple', complicating a dichotomous understanding between in-person therapy and remote therapy. The article argues that the screen operates in a variety of ways that might either facilitate or degrade care and is an essential part of more-than-human care in digitalised societies. Acknowledging the agential capacities of all matter, the article also conceptualises screens as 'vibrant matter'.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"181-199"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11894870/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139971662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-03-01Epub Date: 2024-02-26DOI: 10.1177/13634593241234479
Eleonora Rossero, Raffaella Ferrero Camoletto
Psychiatric practice has always entailed a coercive dimension, visible not only in its formal expressions (e.g. compulsory treatment) but in many informal and implicit forms. In fact, contemporary psychiatric practices are characterized by an interplay of coercion and dialog to be interpreted not as binary categories but as extremes of a spectrum. Within this perspective, it becomes crucial to draw boundaries attributing meaning to professional identities and practices in psychiatric work. This is particularly relevant in acute wards: to explore this issue, we selected two cases according to a most-different-cases design, one ward with a mechanical-restraint approach compared to one with no-mechanical-restraint. We argue that gender, mobilized to performatively draw distinctions and hierarchies in order to define and justify different approaches to psychiatric crises along the continuum between coercion and dialog, is a key dimension in the boundary-making process. The analysis identifies two main dimensions of drawing gendered boundaries: inter-gender boundaries (overlapping the binary distinction between masculinity and femininity with a more coercive or relational-dialogic approach to crisis) and intra-gender boundaries (distinguishing and ranking of different masculinities and femininities), associating a less coercive orientation with a devirilized masculinity.
{"title":"\"Too soft for real psychiatry\"? Gendered boundary-making between coercion and dialog in Italian wards.","authors":"Eleonora Rossero, Raffaella Ferrero Camoletto","doi":"10.1177/13634593241234479","DOIUrl":"10.1177/13634593241234479","url":null,"abstract":"<p><p>Psychiatric practice has always entailed a coercive dimension, visible not only in its formal expressions (e.g. compulsory treatment) but in many informal and implicit forms. In fact, contemporary psychiatric practices are characterized by an interplay of coercion and dialog to be interpreted not as binary categories but as extremes of a spectrum. Within this perspective, it becomes crucial to draw boundaries attributing meaning to professional identities and practices in psychiatric work. This is particularly relevant in acute wards: to explore this issue, we selected two cases according to a most-different-cases design, one ward with a mechanical-restraint approach compared to one with no-mechanical-restraint. We argue that gender, mobilized to performatively draw distinctions and hierarchies in order to define and justify different approaches to psychiatric crises along the continuum between coercion and dialog, is a key dimension in the boundary-making process. The analysis identifies two main dimensions of drawing gendered boundaries: inter-gender boundaries (overlapping the binary distinction between masculinity and femininity with a more coercive or relational-dialogic approach to crisis) and intra-gender boundaries (distinguishing and ranking of different masculinities and femininities), associating a less coercive orientation with a devirilized masculinity.</p>","PeriodicalId":12944,"journal":{"name":"Health","volume":" ","pages":"163-180"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139971660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}