Health and Quality of Life Outcomes最新文献

{"title":"Psychometric properties of health-related quality of life assessment instruments in idiopathic pulmonary fibrosis: a systematic review applying COSMIN methodology.","authors":"Kailin Su, Zhenzhen Feng, Lu Wang, Guixiang Zhao, Jiajia Wang, Jiansheng Li","doi":"10.1186/s12955-026-02526-8","DOIUrl":"https://doi.org/10.1186/s12955-026-02526-8","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147503641","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health-related quality of life in Chinese kidney transplant recipients assessed by Chinese medicine quality of life-11 dimensions (CQ-11D).","authors":"Shaobo Guo, Yingtian Jia, Xinran Yang, Jie Pan, Wentao Zhu, Wanhui Yu, Haiya Sun, Hongxia Liu","doi":"10.1186/s12955-026-02520-0","DOIUrl":"https://doi.org/10.1186/s12955-026-02520-0","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147503679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Value set of EQ-5D-Y-3L for Hong Kong.","authors":"Eliza Lai-Yi Wong, Kailu Wang, Amy Yuen-Kwan Wong, Annie Wai-Ling Cheung, Carlos King Ho Wong, Nan Luo, Oliver Rivero-Arias, Eng-Kiong Yeoh","doi":"10.1186/s12955-026-02522-y","DOIUrl":"https://doi.org/10.1186/s12955-026-02522-y","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147503669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Interpreting patient-reported outcomes after ischemic stroke: defining minimal important difference in EQ-5D across recovery phases.","authors":"Pingping Li, Min Zhao, Yining Huang, Weiping Sun, Luying Wang, Xuejing Jin, Feng Xie, Hongchao Li","doi":"10.1186/s12955-026-02524-w","DOIUrl":"https://doi.org/10.1186/s12955-026-02524-w","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147493418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cross-cultural adaptation and validation of the Pediatric Chemotherapy-Induced Neuropathy (P-CIN) using a patient-reported outcome measure for Chinese pediatric oncology patients.","authors":"Ting Mao, Janelle Yorke, Yan Shi, Nanping Shen, Frankie Wai Tsoi Cheng, Haixia Wang, Katherine Ka Wai Lam, Qi Liu, Funa Yang, Li Wang, Mengxue He, Xin Liu, Ellen M Lavoie Smith, Ka Yan Ho","doi":"10.1186/s12955-026-02509-9","DOIUrl":"https://doi.org/10.1186/s12955-026-02509-9","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147491134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health-related quality of life in immunocompromised adults with mild-moderate COVID-19 treated with nirmatrelvir-ritonavir: results from the randomized, double-blinded EPIC-IC trial.","authors":"Ruth Mokgokong, Paul Cislo, Elena Tudone, Edward Weinstein, Joseph C Cappelleri","doi":"10.1186/s12955-026-02518-8","DOIUrl":"https://doi.org/10.1186/s12955-026-02518-8","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147485339","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and content validation of a health assessment item bank for regional health big data: a sequential mixed-methods approach.","authors":"Yizhu Zhang, Hua Chen, Wendi Zhu, Guofang Zhao, Yi Li, Hongyu Sun","doi":"10.1186/s12955-026-02512-0","DOIUrl":"https://doi.org/10.1186/s12955-026-02512-0","url":null,"abstract":"<p><strong>Background: </strong>Health assessment instruments are essential for individual health monitoring, yet most existing tools rely on periodic surveys and lack the capacity to integrate large-scale digital health data. With the increasing availability of regional health big data, there is a need to establish comprehensive indicator resources that can inform the development of validated instruments tailored to local health contexts. This study aimed to develop and validate a health assessment item bank based on regional health big data, providing a structured foundation for subsequent instrument development.</p><p><strong>Methods: </strong>A sequential mixed-methods design was adopted. First, semi-structured interviews were conducted with experts from diverse health-related disciplines to identify key health categories and subcategories. A preliminary conceptual framework was produced through a directed qualitative content analysis process. Second, data elements were extracted from the national Regional Health Information Platform Interaction Standard (WS/T 790) of China and related standards. These data elements were vectorized using a Chinese pre-trained RoBERTa model, clustered with the DBSCAN algorithm, and matched to the conceptual framework through cosine similarity. Finally, experts reviewed and rated the semantic matching results by scoring the matching relevance from 1 to 5, agreement among experts were evaluated with the Fleiss' Kappa analysis, and consensus discussions were conducted to refine the item pool and ensure content validity.</p><p><strong>Results: </strong>The resulting item bank comprised 430 indicators distributed across five main categories and 17 subcategories. The main categories are Physiological health, Psychological health, Health behaviors, Social health, and Environment and healthcare services. Expert review yielded high agreement (mean score = 4.95/5.00; Fleiss' Kappa = 0.626), supporting the adequacy of content validity. The Social support and Health service subcategories contained no mapped indicator, highlighting areas requiring integration of additional data sources.</p><p><strong>Conclusions: </strong>This study established a comprehensive and validated item bank for health assessment based on regional health big data, offering a structured foundation for future development, calibration, and psychometric testing of health assessment instruments. This work contributes to advancing data-driven, context-specific approaches for monitoring health at the individual level.</p>","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147480556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Item generation for a tooth wear-specific patient-reported outcome measure.","authors":"Melissa Sin, Richard Holliday, Helen Rogers, Rijula Karanjkar","doi":"10.1186/s12955-025-02472-x","DOIUrl":"https://doi.org/10.1186/s12955-025-02472-x","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147473376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Anticipating incomplete patient-reported outcomes in schizophrenia: a machine learning approach to predict the occurrence of missing data.","authors":"Guillaume Barbalat, Julien Plasse, Isabelle Chéreau-Boudet, Benjamin Gouache, Emilie Legros-Lafarge, Nathalie Guillard-Bouhet, Nicolas Franck","doi":"10.1186/s12955-026-02511-1","DOIUrl":"https://doi.org/10.1186/s12955-026-02511-1","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147456934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health-related quality of life and six-month hospitalization in older outpatients with heart failure with reduced ejection fraction: a prospective observational study.","authors":"Huan Thanh Nguyen, Huong Thi Mai Nguyen, Huy Quang Nguyen","doi":"10.1186/s12955-026-02514-y","DOIUrl":"https://doi.org/10.1186/s12955-026-02514-y","url":null,"abstract":"","PeriodicalId":12980,"journal":{"name":"Health and Quality of Life Outcomes","volume":" ","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147456966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}