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Patient-Centered Communication and Cancer Information Overload Among Adults without a History of Cancer in the United States.
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-02-14 DOI: 10.1080/10810730.2025.2465491
Asos Mahmood, Nikhil A Ahuja, Satish Kedia, James E Bailey

Patient-centered communication (PCC) plays a pivotal role in improving healthcare quality and health outcomes. A plethora of cancer prevention-related information is publicly available, potentially leading to cancer information overload (CIO). However, little is known about whether experience with PCC can help prevent or reduce CIO among adults without a history of cancer. Pooled data from the Health Information National Trends Survey (HINTS 5, Cycles 1-4, 2017 through 2020) were utilized for 10,636 non-institutionalized U.S. adults (≥18 years) without a history of cancer. The CIO was constructed based on respondents' experiences of difficulties following myriad cancer prevention recommendations. Experience of PCC was measured on a composite score scale of 0 to 100 based on elements of the PCC model for patient-healthcare provider encounters. A multivariable logistic regression model was fitted to investigate associations between PCC and CIO. Approximately 75.0% of the study respondents with a lower mean PCC expressed experiencing CIO (79.1 vs. no-CIO = 82.1, p < .001). With each one-unit score increase on the PCC scale, the odds of experiencing CIO decreased by approximately 1% (adjusted OR = 0.993; 95% CI: 0.988, 0.997; p < .01). The findings highlight that higher levels of PCC are associated with reduced odds of experiencing CIO. Increased PCC could help individuals better navigate cancer prevention-related information, thus reducing stress and improving informed decision-making. Healthcare providers and policy initiatives should promote tailored cancer prevention communication practices that prioritize patient-centeredness.

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引用次数: 0
Methods for Co-designing Health Communication Initiatives with People with Disability: A Scoping Review.
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-02-09 DOI: 10.1080/10810730.2025.2462679
Kelsey Chapman, Connie Allen, Elizabeth Kendall

Co-design, a collaborative approach where end-users are actively involved in design processes, has gained traction in health communication. Its integration into health communication initiatives holds promise for amplifying the voices of people with disability. Despite this, its application remains inconsistent. This scoping literature review explores how people with disability are included, when and through what methods to co-design health communication interventions. Principles of importance are considered and identified. Thirty articles published between 2018 and 2023 were reviewed. The review identified a range of methods used in health communication initiatives, with people with disability engaging at different stages and in different ways. While co-design offers potential for improved health communication, challenges such as unpredictable outcomes, diversity of participant needs, and barriers to full engagement persist. Improved transparency and consistency in reporting co-design processes are recommended to enhance rigor and effectiveness of future initiatives.

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引用次数: 0
Tweeted, Trolled, Twisted: Battling for Narrative Control in E-Cigarette Use Prevention Campaigns (2014-2020).
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-02-06 DOI: 10.1080/10810730.2025.2462682
Miao Feng, Chandler C Carter, Simon Page, Sherry L Emery, Hy Tran, Ganna Kostygina

This study identifies and analyzes X (formerly Twitter) posts related to 14 e-cigarette use prevention campaigns from 2014 to 2020, assessing message volume, content, sources, potential reach and engagement. Using supervised machine learning, we classified 618,965 tweets, finding 43% contained opposition messaging. Two regional campaigns received the highest levels of opposition, with over 99% of related tweets classified as opposition. However, prevention/neutral messages exhibited 92% higher potential reach than opposition messages. Geolocation analysis suggested that regional campaigns may have struggled to focus their impact within targeted jurisdictions. These findings illustrate the dual role of social media as both an amplifier of prevention messages and a platform for oppositional narratives, underscoring the need for public health practitioners to develop adaptive strategies to address misinformation and enhance the impact of digital campaigns.

{"title":"Tweeted, Trolled, Twisted: Battling for Narrative Control in E-Cigarette Use Prevention Campaigns (2014-2020).","authors":"Miao Feng, Chandler C Carter, Simon Page, Sherry L Emery, Hy Tran, Ganna Kostygina","doi":"10.1080/10810730.2025.2462682","DOIUrl":"https://doi.org/10.1080/10810730.2025.2462682","url":null,"abstract":"<p><p>This study identifies and analyzes X (formerly Twitter) posts related to 14 e-cigarette use prevention campaigns from 2014 to 2020, assessing message volume, content, sources, potential reach and engagement. Using supervised machine learning, we classified 618,965 tweets, finding 43% contained opposition messaging. Two regional campaigns received the highest levels of opposition, with over 99% of related tweets classified as opposition. However, prevention/neutral messages exhibited 92% higher potential reach than opposition messages. Geolocation analysis suggested that regional campaigns may have struggled to focus their impact within targeted jurisdictions. These findings illustrate the dual role of social media as both an amplifier of prevention messages and a platform for oppositional narratives, underscoring the need for public health practitioners to develop adaptive strategies to address misinformation and enhance the impact of digital campaigns.</p>","PeriodicalId":16026,"journal":{"name":"Journal of Health Communication","volume":" ","pages":"1-11"},"PeriodicalIF":3.1,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143365091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Visual Art and Medical Narratives as Universal Connectors in Health Communication: An Exploratory Study.
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-01-31 DOI: 10.1080/10810730.2025.2459845
Tracey Beck, Steven Giese, Tien K Khoo

Health-related information can often be overwhelming for consumers resulting in difficulty in interpretation and application. Historically, art and narratives have played key roles in communication within diverse populations however collectively have received little recognition as a means to enable health literacy. This study aims to investigate patient/caregiver narratives and visual art as a modality to improve knowledge translation and health literacy in the wider community. Nine recently discharged patients and 1 caregiver from a regional hospital were paired with 10 tertiary visual arts students for interview. Each narrative was transformed into visual art and exhibited at a community art gallery and to high school art students. Self-reported questionnaires generated data in subjective experience and learning outcomes. Health literacy was evaluated via voluntary gallery viewer and school student response surveys post-exhibition exposure. Exhibition surveys revealed 96.9% of gallery observers had learnt something new about illness or injury. High school students found the activity had improved (42%) or somewhat improved (38%) their understanding of illness and injury. Our findings suggest patient/caregiver narratives and visual art are equitable and effectual modalities for health service organizations to facilitate, affective and experiential learning, and improve health literacy within the community.

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引用次数: 0
A Narrative Persuasion Approach to Promoting COVID-19- Related Policy Support.
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-01-29 DOI: 10.1080/10810730.2025.2459119
Emma Cox, Christopher Calabrese, Erin Ash, Kathryn E Anthony, Joshua B Hill

Communication scholars warn against focusing on individual behaviors when discussing health issues, arguing that doing so can reduce affect and policy support. Although COVID-19 outcomes are linked to structural barriers to treatment, policy interventions appear to improve outcomes for vulnerable groups. Thus, strategic messages must promote public understanding of social determinants and policy support related to COVID-19. Using concepts from attribution theory and narrative persuasion, we employed an experiment (N = 435) testing the effects of personal responsibility (high, moderate, and low) on affective engagement and COVID-19 policy support. Namely, the manuscript examines (a) affective responses to characters displaying varying levels of personal responsibility for COVID-19 prevention, (b) the impact of these affective responses on policy support, and (c) the moderating role of audience political ideology on these effects. Analyses revealed that a highly responsible protagonist elicited empathy and perceived similarity, increasing policy support. While participants' political ideology moderated protagonist responsibility on perceived similarity, a more responsible protagonist evoked empathy independently of political leaning. Theoretical and practical implications are offered.

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引用次数: 0
Finding My Way: Black Doulas' Communication with Other Birthing Care Providers in an Interprofessional Work Environment.
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-01-24 DOI: 10.1080/10810730.2025.2455953
Mary Bresnahan, Krista Walker, Jie Zhuang

Black women suffer more complications and birthing harms compared to other race-ethnic groups. Even when birthing equity initiatives are implemented, many Black families choose to work with a Black doula to reduce harms linked to obstetric racism. Most Black doulas described their role as helping women have the kind of birth they want; however, problems doulas experience in communicating with other birthing team members are not well understood. Situated in the interprofessional team communication model, this study asked fifty Black doulas to respond to two open-ended questions about their communication experiences with other birthing care providers. Thematic analysis identified six themes including efforts to establish legitimacy as a doula, responding to provider use of power strategies, negotiating roles and responsibilities on the birthing team, conflict from difference in birthing philosophies, impact of hospital regulation of doulas on their practice, and how doula advocacy was conducted. While Black doulas reported successful communication with other providers, they also described microaggressions experienced from members of predominantly White birthing teams. Preemptive communication strategies that doulas used to encourage other birthing team members to accept them onto the team were identified. Suggestions for how Black doulas can be more fully integrated into birthing teams were also presented.

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引用次数: 0
Information Service "My Cancer Navigator" to Support Shared Decision-Making: An Online Survey Among Patients with Cancer and Their Caregivers. 信息服务“我的癌症导航员”支持共同决策:癌症患者及其护理人员的在线调查。
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-01-17 DOI: 10.1080/10810730.2025.2450618
Jorn Hermans, Gabry Kuijten, Liese Vandeborne, Klara Rombauts, Guy Buyens, Manuel Bollue, Patrick Deroost, Isabelle Huys, Rosanne Janssens

The personalized information service My Cancer Navigator (MCN) answers therapy-related questions of patients with cancer and their caregivers, to address information needs and contribute to shared decision-making (SDM). An explorative and descriptive cross-sectional study using online surveys was conducted to assess whether users perceived a change in factors contributing to SDM after using the service. Of 253 invited MCN users, 109 (43.1%) filled out the survey (64.2% patients and 35.8% caregivers). Most participants experienced a positive change in their emotional well-being (72.5%) and knowledge level (86.3%). The majority (68.5%) of patients reported being able to cope better with their disease while 76.4% of caregivers felt more able to support the patient throughout the disease process. Discussing treatment preferences and making decisions with health-care professionals (HCPs) became easier for 48.5% and 44.0% of patients, respectively. Of all participants, 52.0% reported a change in disease management. These findings suggest that most participants perceived MCN as impactful. The service facilitated the implementation of SDM from the patient perspective by improving communication with HCPs, increasing knowledge level, improving emotional well-being, and helping them cope better with the disease. Further research should explore how this type of service can be integrated in the care pathway.

个性化信息服务“我的癌症导航员”(MCN)为癌症患者及其护理人员解答与治疗相关的问题,以满足信息需求并促进共同决策(SDM)。使用在线调查进行了一项探索性和描述性横断面研究,以评估用户在使用该服务后是否感知到影响SDM的因素发生了变化。在253名受邀的MCN用户中,109名(43.1%)填写了调查(64.2%的患者和35.8%的护理人员)。大多数参与者在情绪健康(72.5%)和知识水平(86.3%)方面经历了积极的变化。大多数(68.5%)患者报告能够更好地应对他们的疾病,而76.4%的护理人员感到更有能力在整个疾病过程中支持患者。分别有48.5%和44.0%的患者更容易与卫生保健专业人员(HCPs)讨论治疗偏好和做出决定。在所有参与者中,52.0%的人报告疾病管理发生了变化。这些发现表明,大多数参与者认为MCN是有影响力的。该服务通过改善与医护人员的沟通,提高知识水平,改善情绪健康,帮助他们更好地应对疾病,从患者的角度促进了SDM的实施。进一步的研究应该探索如何将这种类型的服务整合到护理途径中。
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引用次数: 0
For Myself or for Others? The Influence of Family Communication Patterns on Family Health History Communication and Online Health Information Seeking. 为自己还是为别人?家庭沟通方式对家庭健康史交流及在线健康信息查询的影响。
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-01-13 DOI: 10.1080/10810730.2025.2450617
Yulei Feng

With innovations in health information technology, there are increasing opportunities to search for health information online, with the potential to reduce health care costs and improve health outcomes for the family. This study aims to investigate how family communication processes influence online health information seeking for oneself (self OHIS) and for another person (surrogate OHIS). An online survey was conducted among 325 adults in China. The results showed that family conversation orientation was positively related to family health history (FHH) communication intentions, whereas family conformity orientation was negatively related to FHH communication intentions. Family conversation orientation was positively related to self and surrogate OHIS through the partial and masking mediation effects of FHH communication intentions, respectively. Family conformity orientation was negatively related to self OHIS through the full mediating effect of FHH communication intentions, while FHH communication intentions played a masking mediating role between conformity orientation and surrogate OHIS. Implications for extending family communication patterns research to health communication and cultural forces on OHIS are discussed.

随着保健信息技术的创新,网上搜索保健信息的机会越来越多,有可能降低保健费用并改善家庭的保健结果。本研究旨在探讨家庭沟通过程如何影响在线健康信息寻求自己(自我健康信息健康顾问)和他人(代理健康信息健康顾问)。这项在线调查共有325名中国成年人参与。结果显示,家庭对话取向与家庭健康史(family health history, FHH)沟通意向呈显著正相关,家庭从众取向与家庭健康史(family health history, FHH)沟通意向呈显著负相关。家庭谈话倾向分别通过FHH交际意图的部分中介作用和掩盖中介作用与自我和替代OHIS呈正相关。家庭从众倾向通过家庭成员沟通意向的完全中介作用与自我职业健康满意度呈负相关,家庭成员沟通意向在从众倾向与替代职业健康满意度之间起掩面中介作用。讨论了将家庭沟通模式研究扩展到健康沟通和文化力量对OHIS的影响。
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引用次数: 0
Pornography Use and Coitus Interruptus: Is There a Link? 色情内容的使用和性交中断:有联系吗?
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-01-11 DOI: 10.1080/10810730.2025.2450248
Paul J Wright, Debby Herbenick

Coitus interruptus - colloquially referred to as withdrawal - is an attempt at contraception wherein the penis is removed from the vagina prior to ejaculation, with ejaculation occurring somewhere outside the vagina. Although withdrawal can reduce the risk of pregnancy, it is less efficacious than methods such as consistent condom use and hormonal birth control. Consequently, it is of public health importance to identify sociocultural influences that either increase or decrease the likelihood of withdrawal as a contraceptive technique. Multiple content analyses have identified external ejaculation as common in popular pornography, yet no study appears to have assessed whether more frequent pornography consumption increases the likelihood of withdrawal behavior. Using national probability data, the present study examined whether pornography use and withdrawal were correlated among U.S. women aged 15-49. Women who consumed pornography more frequently were more likely to report using withdrawal as a contraceptive method than women who consumed pornography less frequently, but this association was moderated by perceptions of pornography's utility and women's marital status. Results are discussed through the lens of the sexual script acquisition, activation, application model (3AM) of sexual media socialization.

性交中断——通俗地称为退出——是一种避孕方法,在射精前将阴茎从阴道中取出,射精发生在阴道外的某个地方。虽然停药可以降低怀孕的风险,但效果不如坚持使用避孕套和激素避孕。因此,确定增加或减少退出避孕技术可能性的社会文化影响对公共卫生具有重要意义。多项内容分析已经确定,在流行的色情作品中,外部射精是常见的,但似乎没有研究评估更频繁的色情消费是否会增加戒断行为的可能性。利用全国概率数据,本研究调查了15-49岁的美国女性中色情作品的使用和戒断是否相关。经常观看色情作品的女性比不经常观看色情作品的女性更有可能使用戒断作为避孕方法,但这种联系被色情作品的效用和女性婚姻状况的看法所缓和。本文从性媒介社会化的性脚本获取、激活、应用模型(3AM)的角度对结果进行了探讨。
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引用次数: 0
Validation of a Cancer-Focused Information Seeking Experience (ISEE) Scale. 以癌症为中心的信息寻求体验(ISEE)量表的验证。
IF 3.1 2区 医学 Q1 COMMUNICATION Pub Date : 2025-01-10 DOI: 10.1080/10810730.2025.2449972
Ashley B Murray, Neha Trivedi, Roxanne E Jensen, Gordon Willis, Richard P Moser, Kelly D Blake

Background: Searching for health information is critical for maintaining one's health and reducing risk of disease, including cancer. However, some people are more likely to experience challenges in finding and comprehending health information; therefore, it is important to measure health information-seeking behavior. In order to add to prior research conducted with the scale, this study provides the first formal evaluation of the validity and reliability of the four-item, cancer-focused Information Seeking Experience (ISEE) scale in a cross-sectional, nationally representative health survey of U.S. adults.

Results: Results indicated that the four ISEE scale items were within limits of normality (skew range = -.44-.11; kurtosis range = -1.07 - -.71), exhibited medium to strong pairwise correlations (r's = .54-.72), and indicated a strong internal consistency (Cronbach's α = .85). The scale was unidimensional (CFI = .997, TLI = .992, SRMR = .012), and the scale demonstrated construct validity with known sociodemographic characteristics. As predicted, the ISEE scale had relatively weak relationships with the Patient Health Questionnaire for Depression and Anxiety, Patient-Centered Communication Scale, and the Patient-Reported Outcomes Measurement Information System (PROMIS) Instrumental Support 4a, demonstrating discriminant validity.

Conclusions: Tracking information-seeking experience in the population is critical, especially to inform efforts that ensure individuals have accessible, understandable, and reliable information about cancer. The ISEE scale was found to assess various aspects of cancer information-seeking in a reliable and valid manner and may be used in future surveys to track information support needs of those who seek health and cancer information.

背景:搜索健康信息对于保持一个人的健康和降低疾病(包括癌症)的风险至关重要。然而,有些人更有可能在寻找和理解卫生信息方面遇到挑战;因此,测量健康信息寻求行为是很重要的。为了补充先前使用该量表进行的研究,本研究首次在美国成年人的横断面、全国代表性健康调查中对四项癌症信息寻求经验(ISEE)量表的效度和可靠性进行了正式评估。结果:结果表明,ISEE量表的4个条目均在正态性范围内(偏度范围= - 0.44 - 0.11;峰度范围= -1.07 - - 0.71),表现出中等到强的两两相关性(r's = 0.54 - 0.72),并显示出很强的内部一致性(Cronbach's α = 0.85)。量表为单维量表(CFI =。[qh] [qh]992, SRMR = .012),量表具有已知社会人口学特征的结构效度。正如预测的那样,ISEE量表与患者抑郁焦虑健康问卷、以患者为中心的沟通量表和患者报告结果测量信息系统(PROMIS)工具支持4a的关系相对较弱,具有判别效度。结论:跟踪人群的信息寻求经验至关重要,特别是对于确保个人获得可获取、可理解和可靠的癌症信息的工作。发现ISEE量表以可靠和有效的方式评估寻求癌症信息的各个方面,并可在今后的调查中使用,以跟踪寻求健康和癌症信息的人的信息支持需求。
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Journal of Health Communication
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