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The Psychological Impact of COVID-19: A Comparative Analysis of Pre-Lockdown and During-Lockdown Periods Among Saudi General Population. COVID-19 的心理影响:沙特普通民众封锁前和封锁期间的对比分析。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-04 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S464037
Junaid Amin, Ammar Ahmed Siddiqui, Muhammad Ilyas, Salman Amin, Mishal M Aldaihan, Hamayun Zafar

Background: Prior research has revealed substantial psychological impacts of COVID-19 among the general population. However, there is a noticeable gap in studies addressing the enduring anxiety levels before and during lockdown periods of the COVID-19 pandemic.

Objective: The study assessed and compared the psychological impact of the COVID-19 pandemic before and during lockdown periods among the general population in Saudi Arabia.

Methods: A validated and reliable General Anxiety Disorder (GAD)-7 instrument was used to quantify stress levels by measuring anxiety. Nonprobability snowball sampling was used to collect data from 516 participants residing in Saudi Arabia. The difference in scores for each of the seven related questions of GAD-7 was determined using a non-parametric Wilcoxon rank test.

Results: A mild level of anxiety was consistently observed both before and during the lockdown, as indicated by GAD-7 scores of 6.17 (SD = 5.5) before the lockdown and 6.42 (SD = 5.7) during the lockdown. There were no differences in GAD-7 scores before 6.17 (SD = 5.5) and during 6.42 (SD = 5.7) the lockdown periods. However, levels of moderate anxiety increased by 5% during the lockdown period. Anxiety levels before and during lockdown were significantly associated with gender (χ2 (3, n = 516) =11.23 p = 0.01) and employment status (χ2 (3, n = 516) = 9.41 p = 0.024). Among the GAD-7 questionnaire items, item number 1 ("Feeling nervous, anxious, or on edge") (p= 0.00) and item number 7 ("Feeling afraid as if something awful might happen") (p= 0.025) showed a significant association with anxiety levels before and during the lockdown periods.

Conclusion: The enduring prevalence of mild anxiety, persisting both before and during the lockdown periods, underscores the profound impact of COVID-19 on the mental health of the general population in Saudi Arabia.

背景:先前的研究显示,COVID-19 对普通人群造成了严重的心理影响。然而,针对 COVID-19 大流行之前和封锁期间的持久焦虑水平的研究明显不足:本研究评估并比较了 COVID-19 大流行对沙特阿拉伯普通人群在封锁前和封锁期间的心理影响:方法: 使用经过验证的可靠的一般焦虑症 (GAD)-7 工具,通过测量焦虑程度来量化压力水平。采用非概率滚雪球抽样法从居住在沙特阿拉伯的 516 名参与者中收集数据。采用非参数 Wilcoxon 秩序检验确定了 GAD-7 七个相关问题中每个问题的得分差异:封锁前和封锁期间的 GAD-7 得分分别为 6.17(标准差 = 5.5)和 6.42(标准差 = 5.7),由此可见,封锁前和封锁期间的焦虑程度都比较轻。在 6.17 (SD = 5.5) 分之前和 6.42 (SD = 5.7) 分期间,GAD-7 分数没有差异。然而,在封锁期间,中度焦虑水平增加了 5%。封锁前和封锁期间的焦虑水平与性别(χ2 (3, n = 516) =11.23 p = 0.01)和就业状况(χ2 (3, n = 516) = 9.41 p = 0.024)有显著相关性。在 GAD-7 问卷项目中,第 1 项("感到紧张、焦虑或紧张不安")(p= 0.00)和第 7 项("感到害怕,好像有什么可怕的事情会发生")(p= 0.025)与封锁前和封锁期间的焦虑水平有显著关联:轻度焦虑在封锁前和封锁期间都持续存在,这凸显了 COVID-19 对沙特阿拉伯普通民众心理健康的深远影响。
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引用次数: 0
Evaluating the Outcomes in Patients with Colorectal Cancer Using the Malnutrition Universal Screening Tool: A Systematic Review. 使用营养不良通用筛查工具评估结直肠癌患者的疗效:系统回顾。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-03 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S474215
Calin Muntean, Andiana Roxana Blidari, Alaviana Monique Faur, Razvan Ovidiu Curca, Catalin Vladut Ionut Feier

Background: The current systematic review aimed to evaluate the Malnutrition Universal Screening Tool (MUST) for its effectiveness in determining patient outcomes (length of hospital stay, postoperative complications, infection rates, and survival) for colorectal cancer.

Methods: Utilizing a comprehensive search strategy, this review mined literature up to December 2023 from the PubMed, Scopus, and Embase databases. The focus was on identifying studies that scrutinize the prognostic value of MUST in relation to hospital outcomes in colorectal cancer contexts. Adherence to PRISMA guidelines ensured a systematic approach, encompassing various study designs and outcome measures.

Results: Among the seven studies incorporating 1950 patients, a significant correlation emerged between MUST scores and key hospital outcomes. Specifically, patients categorized as high MUST risk faced longer hospital stays, with a mean length of stay for high-risk patients extending up to 26.6 days compared to 14 days for those at lower risk. The prevalence of postoperative complications was substantially higher in the high-risk group, with up to 41.4% of high MUST risk patients experiencing severe complications (Clavien-Dindo 3-5) compared to 8.5% in the low-risk category. Notably, the review found that high MUST scores were strongly predictive of increased postoperative complications and a prolonged hospital stay, underscoring the tool's critical predictive utility for quality of life and use in clinical settings.

Conclusions: Therefore, MUST's capability to predict longer hospital stays and a higher incidence of postoperative complications among high-risk patients highlights its essential function in preoperative evaluations and supports the integration of MUST into routine clinical assessments.

背景:本系统综述旨在评估营养不良通用筛查工具(MUST)在确定结直肠癌患者预后(住院时间、术后并发症、感染率和存活率)方面的有效性:本综述采用综合检索策略,从 PubMed、Scopus 和 Embase 数据库中检索了截至 2023 年 12 月的文献。重点是确定那些仔细研究 MUST 与结直肠癌住院结果相关的预后价值的研究。对 PRISMA 指南的遵守确保了研究方法的系统性,包括各种研究设计和结果测量:结果:在纳入 1950 名患者的七项研究中,MUST 评分与主要住院结果之间存在显著相关性。具体而言,MUST高风险患者的住院时间更长,高风险患者的平均住院时间长达26.6天,而低风险患者的平均住院时间为14天。高风险组的术后并发症发生率要高得多,高达 41.4% 的 MUST 高风险患者会出现严重并发症(Clavien-Dindo 3-5),而低风险组仅为 8.5%。值得注意的是,该研究发现,MUST 的高分可强烈预测术后并发症的增加和住院时间的延长,这强调了该工具对生活质量和临床应用的重要预测作用:因此,MUST 能够预测高风险患者住院时间的延长和术后并发症发生率的升高,这凸显了它在术前评估中的重要作用,并支持将 MUST 纳入常规临床评估中。
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引用次数: 0
Towards a Region-Wide Glycaemic Management System: Strategies and Applications for Glycaemic Management of Patients with Diabetes During Hospitalisation. 建立全地区血糖管理系统:糖尿病患者住院期间血糖管理的策略和应用。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-02 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S468929
Min He, Huinan Wu, Guanrong Lin, Yongqin Wang, Longling Shi, Chaoling Huang, Qingyun Xu, Zhenxing Li, Shanbo Huang, Yanni Chen, Na Li

Objective: This study proposes a region-wide blood glucose management system to solve the problem of blood glucose management in patients with diabetes.

Methods: A professional team of doctors, nurses and dietitians jointly developed a region-wide blood glucose management system. The system operates through a collaborative approach where each team member utilises their specialised role, such as data monitoring, algorithm development or patient support, to contribute to a comprehensive blood glucose management network. This integration ensures accurate glucose tracking, personalised feedback and timely adjustments to treatment plans. The system allows the patient to have a good treatment plan, giving comprehensive medical guidance, and the physician team is responsible for the patient's health status.

Results: The region-wide blood glucose management system increased the overall blood glucose monitoring rate of patients and reduced the hospitalisation time (from 11.27 days to 9.52 days) and hospitalisation costs (from 12,173.8 yuan to 9502.4 yuan). At the same time, the system effectively counted the incidence and occurrence time of hyperglycaemia and hypoglycaemia adverse events, which can provide a reference for clinical prevention of adverse events.

Conclusion: A region-wide blood glucose management system can improve medical efficiency, save medical resources and provide a strong guarantee for the health of patients with diabetes. Compared with the traditional diabetes management mode, the region-wide blood glucose management system is more systematic and standardised, meaning it can better meet the needs of patients with diabetes.

研究目的本研究提出了一个全区血糖管理系统,以解决糖尿病患者的血糖管理问题:由医生、护士和营养师组成的专业团队共同开发了全区血糖管理系统。该系统通过协作方式运行,团队中的每个成员都利用自己的专长,如数据监测、算法开发或患者支持,为全面的血糖管理网络做出贡献。这种整合确保了准确的血糖跟踪、个性化反馈和治疗计划的及时调整。通过该系统,患者可以获得良好的治疗方案,得到全面的医疗指导,而医生团队则对患者的健康状况负责:全区血糖管理系统提高了患者整体血糖监测率,缩短了住院时间(从 11.27 天缩短至 9.52 天),降低了住院费用(从 12173.8 元降低至 9502.4 元)。同时,该系统有效统计了高血糖和低血糖不良事件的发生率和发生时间,可为临床预防不良事件的发生提供参考:全区血糖管理系统能够提高医疗效率,节约医疗资源,为糖尿病患者的健康提供有力保障。与传统的糖尿病管理模式相比,全区血糖管理系统更加系统化、规范化,能够更好地满足糖尿病患者的需求。
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引用次数: 0
Predicting Non-Mass Breast Cancer Utilizing Ultrasound and Molybdenum Target X-Ray Characteristics. 利用超声波和钼靶 X 射线特征预测非肿块型乳腺癌
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-02 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S473370
Zhuoran Wang, Xufeng Cao, Chunmei Jia, Na Mi, Tingting Li, Jingjie Wang, Ruiqi Fan, Jiayu Quan

Objective: The aim of this study is to investigate the influence of ultrasound and molybdenum target X-ray characteristics in predicting non-mass breast cancer.

Methods: A retrospective analysis was conducted on the clinical data of 185 patients presenting with non-mass breast lesions between September 2019 and 2021. The non-mass lesions were categorized into benign and malignant types based on ultrasonographic findings, which included lamellar hypoechoic, ductal alteration, microcalcification, and structural disorder types. Furthermore, an examination was undertaken to discern variances in molybdenum target X-ray parameters, ultrasonographic manifestations, and characteristics among individuals diagnosed with non-mass breast lesions.

Results: The ultrasonographic depiction of microcalcified lesions and the identification of suspicious malignancy through molybdenum target X-ray evaluation exhibited independent associations with non-mass breast cancer, yielding statistically significant differences (p < 0.05). Subsequently, the logistic regression model was formulated as follows: Logit (P) =-1.757+2.194* microcalcification type on ultrasound + 1.520* suspicious malignancy on molybdenum target X-ray evaluation. The respective areas under the receiver operating characteristic curves for microcalcification type on ultrasound, suspicious malignancy on molybdenum target X-ray, and the integrated diagnostic model were 0.733, 0.667, and 0.827, respectively, demonstrating discriminative capacities.

Conclusion: Using both ultrasound and molybdenum target X-ray diagnostics can increase the accuracy of non-mass breast cancer detection. The findings of this study have the potential to augment the detection rate of non-lumpy breast cancer and provide an imaging basis for enhancing the prognosis of individuals with breast cancer.

研究目的本研究旨在探讨超声和钼靶X射线特征对预测非肿块型乳腺癌的影响:对2019年9月至2021年期间185例非肿块乳腺病变患者的临床资料进行回顾性分析。根据超声检查结果将非肿块病变分为良性和恶性类型,其中包括片状低回声、导管改变、微钙化和结构紊乱类型。此外,还对被诊断为非肿块性乳腺病变的个体进行了检查,以发现钼靶 X 射线参数、超声表现和特征的差异:结果:微钙化病灶的超声描绘和通过钼靶X射线评估确定可疑恶性肿瘤与非肿块型乳腺癌有独立关联,差异有统计学意义(P < 0.05)。随后,建立了如下逻辑回归模型:Logit(P)=-1.757+2.194*超声检查微钙化类型+1.520*钼靶 X 射线评估可疑恶性程度。超声微钙化类型、钼靶 X 射线可疑恶性程度和综合诊断模型的接收者操作特征曲线下面积分别为 0.733、0.667 和 0.827,显示了鉴别能力:结论:同时使用超声波和钼靶 X 射线诊断可提高非肿块型乳腺癌检测的准确性。该研究结果有望提高非肿块型乳腺癌的检出率,并为改善乳腺癌患者的预后提供影像学依据。
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引用次数: 0
Tools and Strategies to Integrate Multi-Domain Information for Personalized Decision-Making in Oncological Care Pathways: A Scoping Review 在肿瘤治疗路径中整合多领域信息以进行个性化决策的工具和策略:范围综述
IF 3.3 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-08-31 DOI: 10.2147/jmdh.s460499
Thanee M Uittenhout, Jesse Jansen, Kon-Siong Jie, Lieke Welling, Barbara L van Leeuwen, Leti van Bodegom-Vos, Anne M Stiggelbout, Trudy van der Weijden
Introduction: There is a growing interest in personalized decision-making in oncology. According to the Integrated Oncological Decision-Making Model (IODM), decisions should be based on information from three domains: (1) medical technical information, (2) patients’ general health status and (3) patients’ preferences and goals. Little is known about what kind of tool/strategy is used to collect the information, by whom this is collected (nurse, clinician) when this is collected (moment in the care pathway), and how this information should be collected and integrated within decision-making in oncological care pathways, and what its impact is.
Methods: We searched PUBMED, Embase and Web of Science in October 2023 for studies looking at tools to collect and integrate information from the three domains of the IODM. We extracted data on the content and implementation of these tools, and on decision and patient outcomes.
Results: The search yielded 2576 publications, of which only seven studies described collection of information from all three domains (inclusion criteria). In the seven included studies, information on the three domains was collected through dialogue, questionnaires, and assessments (what) by a nurse (2 out of 7 studies) or by other members of the Multi-Disciplinary Team (by whom) (5 out of 7 studies). Members of the Multi-Disciplinary Team subsequently integrated the information (5 out 7 studies) during their meeting (when), with patients and family attending this meeting in 2 studies (how). In terms of decision outcomes, 5 out of 7 studies compared the treatment recommendations before and after implementation of the tools, showing a modification of the treatment plan in 3% to 53% of cases. The limited data on patient outcomes suggest positive effects on well-being and fewer complications (3 out of 7 studies).
Conclusion: The seven studies identified that integrated information from the three IODM domains into treatment decision-making lacked comprehensive information regarding the strategies, process, timing and individuals involved in implementing the tools. Nevertheless, the few studies that looked at patient outcomes showed promising findings.

Keywords: person centred care, patient centred care, patient preferences, treatment decision-making, multi-disciplinary team, oncology
简介人们对肿瘤学中的个性化决策越来越感兴趣。根据综合肿瘤决策模型(IODM),决策应基于三个领域的信息:(1)医疗技术信息;(2)患者的总体健康状况;(3)患者的偏好和目标。关于使用何种工具/策略收集信息、由谁收集(护士、临床医生)、何时收集(护理路径中的某一时刻)、如何收集这些信息并将其纳入肿瘤护理路径的决策中,以及这些信息的影响,目前所知甚少:我们在 2023 年 10 月对 PUBMED、Embase 和 Web of Science 进行了检索,以了解有关收集和整合 IODM 三个领域信息的工具的研究。我们提取了有关这些工具的内容和实施情况以及决策和患者结果的数据:结果:搜索结果显示有 2576 篇出版物,其中只有七项研究描述了从所有三个领域收集信息的情况(纳入标准)。在纳入的七项研究中,护士(七项研究中的两项)或多学科团队的其他成员(由谁)(七项研究中的五项)通过对话、问卷调查和评估(什么)收集这三个领域的信息。多学科团队成员随后在会议上(何时)整合信息(7 项研究中的 5 项),2 项研究中的患者和家属参加了会议(如何)。在决策结果方面,7 项研究中有 5 项对工具使用前后的治疗建议进行了比较,结果显示 3% 至 53% 的病例修改了治疗方案。有关患者结果的有限数据表明,这些结果对患者的健康和减少并发症产生了积极影响(7 项研究中的 3 项):所发现的七项将三个 IODM 领域的信息纳入治疗决策的研究缺乏有关实施工具的策略、过程、时间和个人的全面信息。关键词:以人为本的护理、以患者为中心的护理、患者偏好、治疗决策、多学科团队、肿瘤学
{"title":"Tools and Strategies to Integrate Multi-Domain Information for Personalized Decision-Making in Oncological Care Pathways: A Scoping Review","authors":"Thanee M Uittenhout, Jesse Jansen, Kon-Siong Jie, Lieke Welling, Barbara L van Leeuwen, Leti van Bodegom-Vos, Anne M Stiggelbout, Trudy van der Weijden","doi":"10.2147/jmdh.s460499","DOIUrl":"https://doi.org/10.2147/jmdh.s460499","url":null,"abstract":"<strong>Introduction:</strong> There is a growing interest in personalized decision-making in oncology. According to the Integrated Oncological Decision-Making Model (IODM), decisions should be based on information from three domains: (1) medical technical information, (2) patients’ general health status and (3) patients’ preferences and goals. Little is known about what kind of tool/strategy is used to collect the information, by whom this is collected (nurse, clinician) when this is collected (moment in the care pathway), and how this information should be collected and integrated within decision-making in oncological care pathways, and what its impact is.<br/><strong>Methods:</strong> We searched PUBMED, Embase and Web of Science in October 2023 for studies looking at tools to collect and integrate information from the three domains of the IODM. We extracted data on the content and implementation of these tools, and on decision and patient outcomes.<br/><strong>Results:</strong> The search yielded 2576 publications, of which only seven studies described collection of information from all three domains (inclusion criteria). In the seven included studies, information on the three domains was collected through dialogue, questionnaires, and assessments (what) by a nurse (2 out of 7 studies) or by other members of the Multi-Disciplinary Team (by whom) (5 out of 7 studies). Members of the Multi-Disciplinary Team subsequently integrated the information (5 out 7 studies) during their meeting (when), with patients and family attending this meeting in 2 studies (how). In terms of decision outcomes, 5 out of 7 studies compared the treatment recommendations before and after implementation of the tools, showing a modification of the treatment plan in 3% to 53% of cases. The limited data on patient outcomes suggest positive effects on well-being and fewer complications (3 out of 7 studies).<br/><strong>Conclusion:</strong> The seven studies identified that integrated information from the three IODM domains into treatment decision-making lacked comprehensive information regarding the strategies, process, timing and individuals involved in implementing the tools. Nevertheless, the few studies that looked at patient outcomes showed promising findings.<br/><br/><strong>Keywords:</strong> person centred care, patient centred care, patient preferences, treatment decision-making, multi-disciplinary team, oncology<br/>","PeriodicalId":16357,"journal":{"name":"Journal of Multidisciplinary Healthcare","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142207134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Improving Delphi Process in Acupuncture Decision Making: Overall Descriptions and Quality Assessment of Delphi Reports. 改进针灸决策中的德尔菲过程:德尔菲报告的总体描述和质量评估。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-08-30 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S481947
Yi-Yang Sun, Peng-Fei Wang, Gui-Rong Yang, Dong-Qing Du, Chun-Jing Li, Zi-Jun Mu, Yu-Xia Ma, Na Zhang

Background: Clinical acupuncture decisions are highly operator-dependent and require physician-patient interactions. The Delphi method allows subjective factors such as expert experience and preference of patients to be taken into account in clinical decision making, which is particularly applicable to acupuncture. Currently, the Delphi method is widely used to support clinical decisions in acupuncture. Therefore, it is necessary to provide high-quality and complete descriptions of the Delphi process when making clinical decisions. This study aims to evaluate the quality of the Delphi process in acupuncture, facilitate its standardization and rigor for further clinical decision making in acupuncture.

Methods: Articles sourced from six databases were searched systematically to assess the quality of the Delphi consensus process based on the standards for conducting and reporting Delphi studies (CREDES). Descriptive statistics and analysis were presented according to the percentage of each item. Five-score Likert scale was used to evaluate the reporting quality of four domains as well as each item in CREDES by two independent researchers, combined with ICC-value to assess the consistency.

Results: A total of 37 qualified articles were included according to eligibility criteria. As for the low reporting rate, the item "External validation" was reported as the lowest positive rate at 32.43% and the item "Prevention of bias" was 48.65%. The item "Adequacy of conclusions", "Definition and attainment of consensus", and "Discussion of limitations" were reported at a positive ratio of 62.16%, 64.86%, and 67.57% individually. The average scores of the four domains based on CREDES from highest to lowest were, respectively, as follows: planning and design (68.75%), reporting (66.07%), rationale for the choice of the Delphi technique (65.54%), study conduct (45.10%).

Conclusion: The reporting quality of the Delphi consensus process in acupuncture is acceptable currently, but the reporting rate on some items is still low. Further standardization, including either clearer checklists or study reports, should be developed and strengthened to guide clinical decisions in acupuncture.

背景:针灸临床决策高度依赖于操作者,需要医患互动。德尔菲法可在临床决策中考虑专家经验和患者偏好等主观因素,尤其适用于针灸。目前,德尔菲法被广泛应用于针灸临床决策支持。因此,在进行临床决策时,有必要对德尔菲法过程进行高质量的完整描述。本研究旨在评估针灸中德尔菲过程的质量,促进其标准化和严谨性,以进一步推动针灸临床决策的制定:方法:系统检索了六个数据库中的文章,根据德尔菲研究的开展和报告标准(CREDES)评估德尔菲共识过程的质量。根据每个项目的百分比进行描述性统计和分析。两位独立研究人员采用五分李克特量表对 CREDES 中四个领域和每个项目的报告质量进行评估,并结合 ICC 值评估一致性:结果:共有 37 篇符合资格标准的文章被纳入研究。在低报告率方面,"外部验证 "项目的阳性率最低,为 32.43%,"防止偏倚 "项目的阳性率为 48.65%。结论的充分性"、"定义和达成共识 "和 "局限性讨论 "三项的阳性率分别为 62.16%、64.86% 和 67.57%。基于 CREDES 的四个领域的平均得分从高到低分别为:规划与设计(68.75%)、报告(66.07%)、选择德尔菲技术的理由(65.54%)、研究实施(45.10%):结论:目前针灸德尔菲共识过程的报告质量可以接受,但某些项目的报告率仍然较低。应制定和加强进一步的标准化,包括更清晰的核对表或研究报告,以指导针灸临床决策。
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引用次数: 0
Barriers and Facilitators of Early Palliative Care in the Trajectory of People Living with Chronic Condition: A Mini Review Using Socio-ecological Framework to Inform Public Health Strategy. 慢性病患者轨迹中早期姑息关怀的障碍和促进因素:利用社会生态框架为公共卫生战略提供信息的小型回顾。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-08-29 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S473457
Hartiah Haroen, Sidik Maulana, Alia Rahmi Harlasgunawan, Sri Rahmawati, Alvi Riansyah, Faizal Musthofa, Jerico Franciscus Pardosi

The increasing incidence of chronic conditions on a global scale requires a comprehensive approach to palliative care, which is recognized as an essential element of the continuum of care for people with life-threatening conditions. It has been argued that the integration of early palliative care for people with chronic conditions is beneficial. Nevertheless, barriers to integrating early palliative care have been extensively not reviewed. This review aimed to explore the barriers and facilitators of integrating early palliative care for people living with chronic conditions, employing a socio-ecological framework to provide a critical understanding of the influencing factors at multiple levels. The method was a mini review. This review emphasizes the complex and diverse factors that either hinder or facilitate progress in four areas: individual (such as gaps in knowledge and emotional reactions), interpersonal (such as support from family caregiver), healthcare professionals and policy (such as barriers in education, guidelines, and collaboration among professionals), and community (such as societal knowledge and attitudes). Each level presents unique challenges and opportunities for enhancing early palliative care integration, from addressing misconceptions and fears at the individual level, to fostering supportive policies and community awareness. In conclusion, the effective management of early palliative care requires a comprehensive strategy that spans various dimensions, including educational initiatives, policy adjustments, and active involvements of the community. Healthcare systems are supposed to enhance the integration of early palliative care into the trajectory of chronic conditions and enhance the quality of life of affected persons and their families by recognizing and addressing the socio-ecological elements involved.

慢性病在全球范围内的发病率越来越高,这就需要一种全面的姑息关怀方法,因为姑息关怀已被公认为是为生命垂危者提供持续关怀的一个基本要素。有观点认为,为慢性病患者整合早期姑息关怀是有益的。然而,对整合早期姑息关怀的障碍还没有进行广泛的综述。本综述旨在探讨为慢性病患者整合早期姑息关怀的障碍和促进因素,并采用社会生态学框架来提供对多层次影响因素的关键性理解。采用的方法是微型综述。该综述强调了阻碍或促进以下四个领域进展的复杂而多样的因素:个人(如知识和情绪反应方面的差距)、人际(如来自家庭照顾者的支持)、医疗保健专业人员和政策(如教育、指南和专业人员间合作方面的障碍)以及社区(如社会知识和态度)。从解决个人层面的误解和恐惧,到促进支持性政策和社区意识,每个层面都为加强早期姑息关怀整合带来了独特的挑战和机遇。总之,早期姑息关怀的有效管理需要跨多个层面的综合策略,包括教育倡议、政策调整和社区的积极参与。医疗保健系统应该通过认识和解决相关的社会生态因素,加强将早期姑息关怀纳入慢性病的治疗轨迹,并提高患者及其家庭的生活质量。
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引用次数: 0
The Effect of Empathy Training on Bullying Behavior in Juvenile Prisoners: A Quasi Experiment. 移情训练对少年犯欺凌行为的影响:一项准实验
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-08-29 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S479364
Rohman Hikmat, Suryani Suryani, Iyus Yosep, Rohani Jeharsae, Iqbal Pramukti, Aat Sriati, Imas Rafiyah, Heni Purnama

Purpose: The purpose of this study was to determine the effect of empathy training on bullying behavior in juvenile prisoners at the Bandung City Special Development Institute for Children.

Methods: This study used a quantitative method with a quasi-experimental design with pre and post-test with control group. The sampling technique used purposive sampling and obtained a sample of 100 respondents (50 intervention group and 50 control group). Empathy training was conducted for 3 months as many as 4 sessions consisting of education, role play, watching movies, and reflection. Data collection used the Indonesian version of the Olweus Bully/Victim Questionnaire. Univariate analysis used mean, min-max, and standard deviation values. Bivariate analysis used Wilcoxon test and Mann-Whitney test.

Results: The results showed that in the intervention group, most respondents had high bullying behavior before the intervention (70%) and had low bullying behavior after the intervention (64%). In the control group, most respondents showed a high level of bullying behavior (80%) at pre-test and had high level of bullying behavior (78%) at post-test. The results of the Wilcoxon test showed ap value of <0.001, indicating that there was a significant effect on reducing bullying behavior in prisoners in LPKA Bandung City after being given empathy training. The results of the Mann-Whitney test showed a value of p<0.001 which means that there is a difference in the level of bullying behavior between the control and intervention groups.

Conclusion: Empathy training is a recommendation for community nurses in Bandung City Special Development Institute for Children to implement community-based nursing interventions in preventing bullying in children and adolescents, especially adolescents in prison.

目的:本研究旨在确定移情训练对万隆市儿童特殊发展研究所少年犯欺凌行为的影响:本研究采用定量方法,设计了带有对照组的前测和后测的准实验。抽样技术采用目的性抽样,获得了 100 个受访者样本(50 个干预组和 50 个对照组)。移情培训为期 3 个月,共 4 次课程,包括教育、角色扮演、观看电影和反思。数据收集使用了印尼语版的奥尔维斯欺凌/受害者问卷。单变量分析采用平均值、最小-最大值和标准偏差值。双变量分析采用 Wilcoxon 检验和 Mann-Whitney 检验:结果显示,在干预组中,大多数受访者在干预前的欺凌行为较重(70%),干预后的欺凌行为较轻(64%)。在对照组中,大多数受访者在测试前表现出高水平的欺凌行为(80%),在测试后表现出高水平的欺凌行为(78%)。Wilcoxon 检验的结果显示,ap 值为结论:建议万隆市儿童特殊发展研究所的社区护士开展移情培训,以实施社区护理干预措施,预防儿童和青少年(尤其是监狱中的青少年)遭受欺凌。
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引用次数: 0
Healthcare Stakeholder Perspectives on a Value Assessment Approach for Duchenne Muscular Dystrophy Therapies. 医疗利益相关者对杜兴氏肌肉萎缩症疗法价值评估方法的看法。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-08-29 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S458181
Ryan Fischer, Pat Furlong, Annie Kennedy, Kelly Maynard, Marissa Penrod, Debra Miller, Chamindra G Laverty, Linda P Lowes, Nancy L Kuntz, Perry B Shieh, Jane Kondejewski, Peter J Neumann, Jason Shafrin, Richard J Willke

Purpose: Traditional value assessment frameworks are challenged in comprehensively assessing the societal value new therapies bring to individuals with rare, progressive, genetic, fatal, neuromuscular diseases such as Duchenne muscular dystrophy (DMD). The objective of this study was to identify how value assessment frameworks may need to be adapted to measure the value to society of DMD therapies.

Patients and methods: Three stakeholder groups (6 patient advocates, 4 clinicians, 3 health economists; N = 13) participated in semi-structured interviews around the International Society for Pharmacoeconomics and Outcomes Research's Value Flower, which includes elements to consider within value assessments of healthcare technologies.

Results: All stakeholders agreed that traditional value assessment frameworks based on the quality-adjusted life year (QALY) are narrow and will undervalue new DMD therapies. All stakeholders expressed some level of concern that using the QALY as a key metric of value discriminates against patients with severe progressive diseases and disabilities. Some stakeholders saw value in using the QALY for cross-disease comparisons in resource-constrained environments if the methodology was appropriate. All stakeholders recommended considering additional elements of value in decision-making around new DMD therapies. These elements reflect: economic and humanistic costs incurred by patients, caregivers, and families with Duchenne, such as indirect out-of-pocket costs, lost productivity, and family spillovers; meaningful attributes for individuals with disabilities and high unmet need, such as severity of disease, value of hope, and real option value; and factors that contribute to improvements in population health, such as insurance value, equity, and scientific spillovers.

Conclusion: These findings highlight the need to expand traditional value assessment frameworks and take a holistic approach that incorporates the perspectives of individuals with Duchenne, caregivers, clinicians, and health economists when assessing the societal value of new DMD therapies. Broadening value assessment will prevent restricted or delayed access to therapies for individuals with Duchenne.

目的:传统的价值评估框架在全面评估新疗法为杜氏肌营养不良症(DMD)等罕见、进展性、遗传性、致命性神经肌肉疾病患者带来的社会价值方面面临挑战。本研究的目的是确定如何调整价值评估框架,以衡量 DMD 疗法的社会价值:三组利益相关者(6 名患者权益倡导者、4 名临床医生、3 名卫生经济学家;N = 13)参加了围绕国际药物经济学与结果研究学会价值之花进行的半结构化访谈,该价值之花包括医疗保健技术价值评估中应考虑的要素:所有利益相关者都认为,基于质量调整生命年 (QALY) 的传统价值评估框架过于狭隘,会低估 DMD 新疗法的价值。所有利益相关者都表达了某种程度的担忧,即使用 QALY 作为价值的关键指标会歧视严重进展性疾病和残疾患者。一些利益相关者认为,如果方法适当,在资源有限的环境中使用 QALY 进行跨疾病比较是有价值的。所有利益相关者都建议在围绕 DMD 新疗法进行决策时考虑更多价值要素。这些要素反映了:杜氏综合征患者、照护者和家庭的经济和人文成本,如间接自付成本、生产力损失和家庭溢出效应;对残疾人和高需求未得到满足的个体有意义的属性,如疾病的严重程度、希望的价值和实际选择价值;以及有助于改善人口健康的因素,如保险价值、公平性和科学溢出效应:这些研究结果突出表明,在评估 DMD 新疗法的社会价值时,有必要扩展传统的价值评估框架,并采取综合方法,纳入杜兴氏症患者、护理人员、临床医生和卫生经济学家的观点。扩大价值评估范围将防止杜兴氏症患者在获得疗法方面受到限制或延误。
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引用次数: 0
A Bibliometric Analysis of Post-COVID-19 Syndrome. 后 COVID-19 综合症的文献计量分析。
IF 2.7 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-08-29 eCollection Date: 2024-01-01 DOI: 10.2147/JMDH.S477256
Hongtao Liu, Zhaoyu Li, Su Yan, Shaopeng Ming

Objective: The goal of this study is to explore the research advancements on Post-COVID-19 syndrome, through bibliometric analysis, thus summarizing our current comprehension of the subject and suggesting directions for future research strategies.

Methods: We acquired literature data from the Web of Science Core Collection (WoSCC) and conducted keyword and country analyses utilizing CiteSpace and R-project tools.

Results: Until November 2, 2022, a total of 3633 publications were cataloged from WoSCC. The key terms commonly associated with Post-COVID-19 syndrome symptoms included: immune response, posttraumatic stress disorder, depression, acute lung injury, mental health, and quality of life. The United States emerged as leading in both producing the most research and fostering international cooperation. It was observed that the output of publications from a country is directly proportional to the cumulative number of COVID-19 cases and deaths therein.

Conclusion: Utilizing bibliometric analysis, the study highlights the detrimental impact of mental health issues on Post-COVID-19 patients' quality of life, emphasizing the urgency for further research and treatment. The sheer scale of COVID-19 cases underscores this need, while international collaboration emerges as a pivotal tool for advancing our understanding and addressing this challenge.

研究目的本研究的目的是通过文献计量分析,探讨有关后COVID-19综合征的研究进展,从而总结我们目前对该主题的理解,并为未来的研究策略提出方向性建议:方法:我们从科学网核心库(WoSCC)获取文献数据,并利用 CiteSpace 和 R-project 工具进行关键词和国家分析:截至 2022 年 11 月 2 日,WoSCC 共收录了 3633 篇出版物。与COVID-19后综合征症状相关的关键词包括:免疫反应、创伤后应激障碍、抑郁症、急性肺损伤、心理健康和生活质量。美国的研究成果最多,在促进国际合作方面也处于领先地位。据观察,一个国家的出版物产出与该国 COVID-19 病例和死亡人数的累积成正比:通过文献计量分析,本研究强调了心理健康问题对 COVID-19 后患者生活质量的不利影响,并强调了进一步研究和治疗的紧迫性。COVID-19病例的规模之大凸显了这一需求,而国际合作则成为促进我们了解和应对这一挑战的关键工具。
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引用次数: 0
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Journal of Multidisciplinary Healthcare
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