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How Other Specialists See Palliative Care Uncovering Their Deep Metaphors to Improve Our Initial Outreach Strategies. 其他专家如何看待姑息关怀 发现他们的深层隐喻,以改进我们最初的推广策略。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-10-07 DOI: 10.1089/jpm.2024.0248
Anthony L Back, Sanaya S Shikari, MaryGrace S King, Kathy C Shaw, Marian S Grant, Lindsay Zaltman

Many patients who could benefit from palliative care (PC) do not access it because of the timing and tenor of the introduction provided by their specialist. A barrier to improving specialists' (from disciplines other than PC) engagement with PC services may be an inadequate understanding of how those specialists view PC. As part of a larger project to develop public messaging for advance care planning, PC, and hospice, we conducted a qualitative market research study aimed at identifying the "deep metaphors" held by specialists about PC to provide an empirical foundation for more effective outreach and messaging. To identify deep metaphors, we used the qualitative Zaltman Metaphor Elicitation Technique to uncover thought patterns from participants' images and interview responses, revealing deeper emotional meanings and unconscious mental orientations. We enrolled 20 provider-level clinicians from a variety of professional disciplines and specialties to participate in a one-hour semi-structured interview that required prework. The interviews were videorecorded and transcribed and were analyzed along with images brought by participants using a variation of the constant comparative method. The themes included: Having to tell patients the "right" information and path; Not allowing myself to make mistakes; Depending on algorithms so I can give my patients the best care; Putting the patient in charge can challenge clinical algorithms; Observing that PC seems to lack an objectively "right" decision; Consulting PC invites subjectivity best contained at the end of the algorithm. These themes can inform strategies for outreach and messaging to other serious illness specialist clinicians to lower reluctance to consult PC, increasing patient access.

许多本可从姑息关怀(PC)中获益的患者,却因专科医生介绍的时机和主旨而无法获得姑息关怀。提高专科医生(来自姑息关怀以外的学科)参与姑息关怀服务的一个障碍可能是对这些专科医生如何看待姑息关怀缺乏足够的了解。我们开展了一项定性市场调查研究,旨在识别专科医生对个体化护理所持有的 "深层隐喻",从而为更有效的宣传和信息传递提供实证基础。为了识别深层隐喻,我们使用了定性的扎特曼隐喻激发技术,从参与者的图像和访谈回答中发现思维模式,揭示更深层的情感含义和无意识的心理取向。我们招募了 20 名来自不同专业学科和专科的医疗服务提供者级别的临床医生,让他们参加一个小时的半结构化访谈,访谈前需要进行预习。我们对访谈进行了录像和转录,并采用恒定比较法的变体对访谈内容和参与者提供的图像进行了分析。主题包括必须告诉患者 "正确 "的信息和路径;不允许自己犯错;依赖于算法,这样我才能给患者提供最好的护理;让患者做主可以挑战临床算法;观察到 PC 似乎缺乏客观 "正确 "的决定;咨询 PC 引发的主观性最好包含在算法的末尾。这些主题可以为向其他重症专科临床医生进行宣传和传递信息的策略提供参考,从而降低他们对咨询 PC 的不情愿程度,增加患者的就医机会。
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引用次数: 0
Managing Pruritus in Advanced Chronic Disease. 管理晚期慢性病患者的瘙痒症。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-07-09 DOI: 10.1089/jpm.2024.0048
Ebru Kaya, Gord McDonald, Romayne Gallagher

Even though pruritus affects a significant number of people with chronic disease, it is rarely adequately treated. Drug therapies often rely on antihistamines, which have not shown to be beneficial in systemic pruritus. Hydroxyzine is frequently used to treat pruritus associated with kidney failure. Since Canada's sole manufacturer of hydroxyzine is no longer making this product, this is an ideal time to review the mechanisms of itch in advanced organ failure and the specific therapies that give relief. Although there is literature describing itch in patients with cancer, this article is limited to pathogenesis and treatment of systemic itch secondary to chronic, noncancer diseases. We summarize recent systematic reviews, although the studies included in these reviews are often small, and mostly cohort studies.

尽管瘙痒症影响着大量慢性病患者,但却很少得到充分治疗。药物疗法通常依赖于抗组胺药,但这对全身性瘙痒症并无益处。羟嗪常用于治疗与肾衰竭相关的瘙痒症。由于加拿大唯一的羟嗪生产商已不再生产该产品,因此现在是回顾晚期器官衰竭瘙痒机制和缓解瘙痒的具体疗法的理想时机。虽然有文献描述了癌症患者的瘙痒,但本文仅限于慢性非癌症疾病继发的全身性瘙痒的发病机制和治疗。我们总结了近期的系统性综述,尽管这些综述所包含的研究通常规模较小,而且大多是队列研究。
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引用次数: 0
Letter to the Editor: A Triple Ripple: Palliative ECHO® Program Has Reverberations for Junior Faculty, Regional Health Care Colleagues, and Specialty Clinicians. 致编辑的信三重涟漪:姑息性 ECHO® 计划对青年教师、地区医疗保健同事和专科临床医生产生了影响。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-09-27 DOI: 10.1089/jpm.2024.0347
Alexandra C Steinbaugh, Ashley E Johnson, Kathleen Broglio, Robin J Larson, Janet Miller Haines
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引用次数: 0
Making Every Minute Matter: Practical Strategies to Enhance High-Quality, Time-Efficient Hospice and Palliative Care Visits. 分秒必争:提高安宁疗护和姑息关怀访视的质量和时间效率的实用策略》(Making Minute Matter: Practical Strategies to Enhance High Quality, Time-Efficient Hospice and Palliative Care Visits)。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-09-05 DOI: 10.1089/jpm.2024.0199
Andrew J Lawton, Bethany-Rose Daubman, Sudha Natarajan, April Zehm, Leah B Rosenberg

Therapeutic clinical relationships and skilled communication are foundational elements of high-quality hospice and palliative care. Both require that we draw on the most valuable, yet limited, resource in our practice: clinician time. As the demand for serious illness care continues to outpace the supply of trained palliative care clinicians, we must consider time-efficiency as a key component of clinical effectiveness. Equally, many skilled interventions, including serious illness communication, can occur during time-efficient encounters, which still preserve compassion and authentic presence. This report invites clinicians to reevaluate the meaning and use of time in modern palliative care practice and offers six strategies to enhance time-efficiency in daily clinical care.

治疗性临床关系和熟练的沟通是高质量安宁与姑息关怀的基本要素。两者都要求我们在实践中利用最宝贵但有限的资源:临床医生的时间。由于重病关怀的需求持续超过训练有素的姑息关怀临床医生的供应,我们必须将时间效率作为临床有效性的一个关键组成部分。同样,许多熟练的干预措施,包括重病沟通,都可以在节省时间的情况下进行,同时还能保持同情心和真实的存在感。本报告邀请临床医生重新评估现代姑息关怀实践中时间的意义和使用,并提供了六项策略来提高日常临床关怀中的时间效率。
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引用次数: 0
More Than We Expected: Five Years with a Remarkable Child. 超出我们的预期:与一个了不起的孩子相处的五年
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-07-25 DOI: 10.1089/jpm.2024.0223
Nicholas Samel, Sarah Norris
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引用次数: 0
Song for My Soul. 我的灵魂之歌
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-09-24 DOI: 10.1089/jpm.2024.0296
Carolyn S Phillips, Kristin L Davidson
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引用次数: 0
Palliative Care and Psychedelics on a Long Strange Trip, Revisited. 姑息治疗和迷幻药的漫长奇异之旅,重温。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-10-28 DOI: 10.1089/jpm.2024.0437
Stacy M Fischer, Beth Patterson
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引用次数: 0
Mortality Review Committee: Understanding Inpatient and 30-Day Mortality at a Comprehensive Cancer Center. 死亡率审查委员会:了解综合癌症中心的住院病人和 30 天死亡率。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-09-30 DOI: 10.1089/jpm.2024.0158
Allison Soucise, Rohil Shekher, Julia Faller, Daniel Keppel, Greta Anthony, Elisabeth Dexter, Varun Kumar Chowdhry

Background: The Triple Aim of health care involves the simultaneous pursuit of improving the individual experience of care, population health, and reducing per capita costs of care. Our institution established a Mortality Review Committee (MRC) to review instances of inpatient mortality as part of continuing quality improvement with the goal of improving goal concordant care. In this article, we report the experience of MRC. Measures/Interventions: In April 2022, an MRC was formed to evaluate inpatient and 30-day hospital mortality mortalities at our institution. The committee was formed with representation across the entire medical staff. The primary feature of each review was to characterize if the episode of care surrounding the mortality had a learning and/or improvement opportunity associated with the episode of care. Opportunities included improvements in documentation, communication between patients and/or care team, medically futile treatments or procedures, and consideration of interventions, adverse medical and surgical complications. Results: Patients with goals of care (GOC) discussion or palliative care visit prior to admission were significantly less likely to have a learning opportunity (29% vs. 51%, p < 0.001) and (37% vs. 48%, p < 0.001), respectively. The frequency of GOC conversations remained stable throughout the course of this intervention, although an increase in hospice referrals ensued. Discussion: The MRC promoted open conversation across an interdisciplinary team to understand how the health system could have better served patients who experienced hospital associated mortality. These meetings frequently gravitated toward documentation and communication with a particular focus on earlier GOC discussions and shared decision making across a patient's disease course. Our MRC committee has helped foster a cultural shift of the integration of advanced care/end of life planning at earlier stages of patients' treatment courses.

背景:医疗保健的 "三重目标 "是指同时追求改善个人医疗体验、人口健康和降低人均医疗成本。我院成立了死亡率审查委员会(MRC),审查住院病人的死亡率,作为持续质量改进的一部分,目的是改善目标一致的护理。本文将报告 MRC 的经验。措施/干预:2022 年 4 月,我院成立了 MRC,以评估住院病人死亡率和 30 天住院死亡率。委员会由全体医务人员组成。每次审查的主要目的是确定与死亡事件相关的护理过程中是否存在学习和/或改进的机会。改进机会包括文件记录、患者和/或护理团队之间的沟通、医学上的无用治疗或程序,以及对干预措施、不良医疗和手术并发症的考虑。结果:入院前进行过护理目标(GOC)讨论或姑息治疗访视的患者获得学习机会的几率明显较低(分别为 29% 对 51%,p < 0.001)和(37% 对 48%,p < 0.001)。在整个干预过程中,GOC对话的频率保持稳定,但安宁疗护转诊随之增加。讨论:医疗研究中心促进了跨学科团队之间的公开对话,以了解医疗系统如何才能更好地为经历医院相关死亡的患者提供服务。这些会议经常围绕文件记录和沟通展开,尤其关注患者病程中的早期 GOC 讨论和共同决策。我们的 MRC 委员会帮助促进了一种文化转变,即在患者治疗过程的早期阶段整合晚期护理/生命终结规划。
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引用次数: 0
Impact of Baduanjin Qigong Exercise on Fatigue in Patients with Lung Cancer: A Randomized Controlled Trial. 八段锦气功锻炼对肺癌患者疲劳的影响:随机对照试验
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-11-25 DOI: 10.1089/jpm.2024.0194
Yirui Liu, Xinjun Liang, Bin Yang, Yuan Wu, Yu Qian

Background: Patients report fatigue as the most distressing symptom associated with cancer and treatment. Baduanjin has beneficial effects on reducing fatigue. However, no relevant randomized controlled trials comparing the effects of Baduanjin exercise with routine exercise in patients with lung cancer and fatigue have been reported. Methods: This blinded trial aimed to compare the effect of Baduanjin versus routine exercise on fatigue for patients with lung cancer. Participants in the intervention group received Baduanjin training and performed Baduanjin every week, while those in the control group performed routine exercise at the same frequency. Results: A total of 73 patients were analyzed. After the intervention, patients in the Baduanjin group experienced significant improvement in fatigue and pain (p < 0.05), while no significant difference in Edmonton Symptom Assessment System items were observed among patients in the exercise group. Conclusion: Our study showed that Baduanjin was a better exercise than routine activity in relieving their fatigue.

背景:患者称疲劳是与癌症和治疗相关的最令人痛苦的症状。八段锦具有减轻疲劳的功效。然而,目前还没有相关的随机对照试验比较八段锦运动与常规运动对肺癌和疲劳患者的影响。研究方法这项盲法试验旨在比较八段锦与常规运动对肺癌患者疲劳的影响。干预组的参与者接受八段锦训练并每周进行八段锦锻炼,而对照组的参与者则以相同频率进行常规锻炼。结果共对 73 名患者进行了分析。干预后,八段锦组患者在疲劳和疼痛方面有明显改善(P < 0.05),而运动组患者在埃德蒙顿症状评估系统的项目上无明显差异。结论我们的研究表明,在缓解疲劳方面,八段锦运动比常规活动效果更好。
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引用次数: 0
Top Ten Tips Palliative Care Clinicians Should Know About the Psychiatric Manifestations of Nonpsychiatric Serious Illness and Treatments. 姑息关怀临床医生应了解的关于非精神病性重症的精神表现和治疗方法的十大提示。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 Epub Date: 2024-05-10 DOI: 10.1089/jpm.2024.0135
Gregg A Robbins-Welty, Paul A Riordan, Daniel Shalev, Danielle Chammas, Paul Noufi, Keri O Brenner, Joshua Briscoe, William E Rosa, Jason A Webb

Mental health issues are widespread and significant among individuals with serious illness. Among patients receiving palliative care (PC), psychiatric comorbidities are common and impact patient quality of life. Despite their prevalence, PC clinicians face challenges in effectively addressing the intricate relationship between medical and psychiatric disorders due to their complex, intertwined and bidirectionally influential nature. This article, created collaboratively with a team of psychiatric-palliative care experts, is the second in a two-part series examining the bidirectional relationship between medical and psychiatric illness in PC. This article explores 10 prevalent psychiatric manifestations associated with severe illness and its treatment. Building upon the first article, which focused on 10 common physical manifestations of psychiatric illness among patients receiving PC, these two articles advocate for an integrated approach to PC that prioritizes mental and emotional wellbeing across the continuum of serious illness.

心理健康问题在重病患者中十分普遍和严重。在接受姑息关怀(PC)的病人中,精神疾病合并症很常见,并影响病人的生活质量。尽管精神疾病普遍存在,但由于其复杂、交织和双向影响的性质,姑息关怀临床医生在有效处理医疗和精神疾病之间错综复杂的关系方面面临着挑战。本文是与精神科姑息治疗专家团队合作撰写的,是探讨 PC 中医疗和精神疾病之间双向关系的两部分系列文章中的第二篇。本文探讨了与重症及其治疗相关的 10 种常见精神表现。第一篇文章重点探讨了接受重症监护的患者中精神疾病的 10 种常见躯体表现,在此基础上,这两篇文章倡导对重症监护采取综合方法,优先考虑重症患者的心理和情感健康。
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引用次数: 0
期刊
Journal of palliative medicine
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