Nancy Marshall, Kirsebom Damon, Kendra, Russel, Clara
This study (extracted from a larger doctoral-level dissertation project) adopts a Critical Autism Studies (CAS) framework, and transformative mixed methods design, to examine lived experiences of Applied Behavior analysis (ABA) and to guide improvements in autism services. Autistic people have shared their lived experiences of the ways ABA has caused them harm due to the rigidly applied positive reinforcement and punishment procedures used to make them appear less autistic. Increasingly, ABA practitioners and researchers have responded by attempting to transform their practices to be more accepting of autistic ways of being. The four-staged methodology (surveys—interviews—analysis—participatory dissemination) responds to Milton's (2014) call for “interactional expertise” between non-autistic researchers and autistic people. The survey stage yielded 68 completed surveys from autistic people in Canada—22 respondents had received ABA and 46 had not but wished to express their views. Four participants who had received ABA—two with positive experiences and two with negative experiences—participated in semi-structured interviews and authorship of recommendations. Findings revealed diverse perspectives on ABA practices. Implications for policy and practice highlight the importance of authentically engaging with autistic communities to develop supports that are helpful and not harmful.
{"title":"Autistic Experiences of Applied Behavior Analysis (ABA): Toward Improved Autistic-Centered Supports","authors":"Nancy Marshall, Kirsebom Damon, Kendra, Russel, Clara","doi":"10.1111/josi.70037","DOIUrl":"https://doi.org/10.1111/josi.70037","url":null,"abstract":"<p>This study (extracted from a larger doctoral-level dissertation project) adopts a Critical Autism Studies (CAS) framework, and transformative mixed methods design, to examine lived experiences of Applied Behavior analysis (ABA) and to guide improvements in autism services. Autistic people have shared their lived experiences of the ways ABA has caused them harm due to the rigidly applied positive reinforcement and punishment procedures used to make them appear less autistic. Increasingly, ABA practitioners and researchers have responded by attempting to transform their practices to be more accepting of autistic ways of being. The four-staged methodology (surveys—interviews—analysis—participatory dissemination) responds to Milton's (2014) call for “interactional expertise” between non-autistic researchers and autistic people. The survey stage yielded 68 completed surveys from autistic people in Canada—22 respondents had received ABA and 46 had not but wished to express their views. Four participants who had received ABA—two with positive experiences and two with negative experiences—participated in semi-structured interviews and authorship of recommendations. Findings revealed diverse perspectives on ABA practices. Implications for policy and practice highlight the importance of authentically engaging with autistic communities to develop supports that are helpful and not harmful.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70037","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Autistic individuals encounter distinct barriers within the criminal-legal system, such as misinterpretations of their behaviors, a lack of accommodations, and systemic biases. Despite growing understanding of these challenges, research on how defense attorneys understand and advocate for autistic clients remains limited. This study explores how defense attorneys in the United States conceptualize autism and apply neurodiversity-informed strategies in their advocacy. Semi-structured interviews with 31 defense attorneys revealed that while most attorneys view autism through a medicalized lens, they acknowledge the need for better strategies to secure accommodations in court. Findings suggest that attorneys often rely on expert testimony and recognize the courtroom as primarily designed for neurotypical individuals. Gaps in training and understanding about neurodiversity may hinder effective defense strategies and limit access to justice for autistic defendants. This research highlights the urgent need for enhanced legal training and systemic reform to improve representation and legal experiences for autistic individuals.
{"title":"Legal Defense of Autistic Defendants in the United States: A Qualitative Analysis of the Experiences of Legal Professionals","authors":"Carolina R. Caliman, Colleen M. Berryessa","doi":"10.1111/josi.70034","DOIUrl":"https://doi.org/10.1111/josi.70034","url":null,"abstract":"<p>Autistic individuals encounter distinct barriers within the criminal-legal system, such as misinterpretations of their behaviors, a lack of accommodations, and systemic biases. Despite growing understanding of these challenges, research on how defense attorneys understand and advocate for autistic clients remains limited. This study explores how defense attorneys in the United States conceptualize autism and apply neurodiversity-informed strategies in their advocacy. Semi-structured interviews with 31 defense attorneys revealed that while most attorneys view autism through a medicalized lens, they acknowledge the need for better strategies to secure accommodations in court. Findings suggest that attorneys often rely on expert testimony and recognize the courtroom as primarily designed for neurotypical individuals. Gaps in training and understanding about neurodiversity may hinder effective defense strategies and limit access to justice for autistic defendants. This research highlights the urgent need for enhanced legal training and systemic reform to improve representation and legal experiences for autistic individuals.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70034","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This article will outline a genealogy of neurodiversity, highlighting the power structures and systems that brought about the neurodiversity movement and their implications. Understanding the neurodiversity paradigm from the politicized perspective of genealogy, it builds on this to conduct an intersectional analysis of the categories of neurodiversity in the present day. It draws attention to their “entangled” relations with other types of identity and political movements. In so doing, this paper proposes the concept of “neuroliberalism.” Finally, it applies this perspective to UK education and healthcare policy, critiquing policies, such as performance-related pay.
{"title":"A Genealogy of Neurodiversity and Its Entangled Politics","authors":"Tom Walters","doi":"10.1111/josi.70036","DOIUrl":"https://doi.org/10.1111/josi.70036","url":null,"abstract":"<p>This article will outline a genealogy of neurodiversity, highlighting the power structures and systems that brought about the neurodiversity movement and their implications. Understanding the neurodiversity paradigm from the politicized perspective of genealogy, it builds on this to conduct an intersectional analysis of the categories of neurodiversity in the present day. It draws attention to their “entangled” relations with other types of identity and political movements. In so doing, this paper proposes the concept of “neuroliberalism.” Finally, it applies this perspective to UK education and healthcare policy, critiquing policies, such as performance-related pay.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70036","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rachel Mukwezwa Tapera, Karen Brewer, Dr Anneka Anderson
Neurodiversity, a complex phenomenon acknowledging natural variations in human brain function and behaviour, is predominantly conceptualised through a Western-centric lens. This narrow perspective excludes diverse understandings across different communities and contexts, significantly impacting equity and inclusivity for neurodivergent individuals. This paper, grounded in the African philosophy of Ubuntu, investigates the social effects of neurodiversity on African migrants and their families in Aotearoa, New Zealand. Key findings underscore the critical importance of relationality, connectedness, and diverse perspectives in understanding neurodiversity. The research reveals complex lived realities and challenges in accessing services and supports. Importantly, it highlights the profound impact of intersectionality on the everyday experiences of neurodivergent African migrants. This study argues for the urgent prioritisation of these intersectional experiences in conceptualising and implementing neurodiversity-affirming approaches across research, policy, and practice. Such inclusion is vital for creating truly equitable and inclusive societies where all neurodivergent individuals can thrive.
{"title":"Positioning Neurodiversity: The Perspectives of Neurodivergent African Migrants in Aotearoa, New Zealand","authors":"Rachel Mukwezwa Tapera, Karen Brewer, Dr Anneka Anderson","doi":"10.1111/josi.70039","DOIUrl":"https://doi.org/10.1111/josi.70039","url":null,"abstract":"<p>Neurodiversity, a complex phenomenon acknowledging natural variations in human brain function and behaviour, is predominantly conceptualised through a Western-centric lens. This narrow perspective excludes diverse understandings across different communities and contexts, significantly impacting equity and inclusivity for neurodivergent individuals. This paper, grounded in the African philosophy of Ubuntu, investigates the social effects of neurodiversity on African migrants and their families in Aotearoa, New Zealand. Key findings underscore the critical importance of relationality, connectedness, and diverse perspectives in understanding neurodiversity. The research reveals complex lived realities and challenges in accessing services and supports. Importantly, it highlights the profound impact of intersectionality on the everyday experiences of neurodivergent African migrants. This study argues for the urgent prioritisation of these intersectional experiences in conceptualising and implementing neurodiversity-affirming approaches across research, policy, and practice. Such inclusion is vital for creating truly equitable and inclusive societies where all neurodivergent individuals can thrive.</p>","PeriodicalId":17008,"journal":{"name":"Journal of Social Issues","volume":"81 4","pages":""},"PeriodicalIF":4.7,"publicationDate":"2025-10-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://spssi.onlinelibrary.wiley.com/doi/epdf/10.1111/josi.70039","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145406712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}