{"title":"Dr William Felton Ross. 9 May 1927–3 March 2022","authors":"Jim Oehrig","doi":"10.47276/lr.93.2.175","DOIUrl":"https://doi.org/10.47276/lr.93.2.175","url":null,"abstract":"","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46423164","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
SummaryAim To develop an integrated, contextual, and holistic, minimum essential data collection tool to reliably assess, and obtain a broad overview of issues needing attention among people suffering with WHO Grade 2 leprosy disability and WHO Grade 3 and above lymphatic filariasis (LF) disability in India, to enable the design of integrated and customized interventions to improve their situations. Process A review of universal tools measuring activity limitations, stigma, participation restrictions, mental wellbeing, quality of life, and community stigma, was carried out for their applicability to leprosy and LF disability. A focus group discussion was conducted with field staff who had used these tools, to learn from their experiences. Questions for the minimum essential data tool were formulated based on their applicability and relevance to people with severe leprosy and LF disabilities, their context, and to our aim. A hybrid quantitative and qualitative minimum essential data tool was developed, integrating leprosy and LF disability related issues to holistically assess situations, capture lived experiences, and enable living with leprosy and LF disability within the cultural and environmental context of rural India.
{"title":"The need for an integrated, contextual, and holistic, minimum essential data collection tool for leprosy and lymphatic filariasis disability in India","authors":"Shyamala Anand, A. John, R. Singh","doi":"10.47276/lr.93.1.38","DOIUrl":"https://doi.org/10.47276/lr.93.1.38","url":null,"abstract":"SummaryAim To develop an integrated, contextual, and holistic, minimum essential data collection tool to reliably assess, and obtain a broad overview of issues needing attention among people suffering with WHO Grade 2 leprosy disability and WHO Grade 3 and above lymphatic filariasis (LF) disability in India, to enable the design of integrated and customized interventions to improve their situations. Process A review of universal tools measuring activity limitations, stigma, participation restrictions, mental wellbeing, quality of life, and community stigma, was carried out for their applicability to leprosy and LF disability. A focus group discussion was conducted with field staff who had used these tools, to learn from their experiences. Questions for the minimum essential data tool were formulated based on their applicability and relevance to people with severe leprosy and LF disabilities, their context, and to our aim. A hybrid quantitative and qualitative minimum essential data tool was developed, integrating leprosy and LF disability related issues to holistically assess situations, capture lived experiences, and enable living with leprosy and LF disability within the cultural and environmental context of rural India.","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46717313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brahmaiah Upputuri, Navya Vulchi, R. Singh, Radhika Mamidi, Naveen Satle, Michael Sukumar Pallapati, A. Srikantam
{"title":"Prevalence and risk factors for grade 2 disability among newly diagnosed leprosy in children and adolescents: a record-based analysis from India","authors":"Brahmaiah Upputuri, Navya Vulchi, R. Singh, Radhika Mamidi, Naveen Satle, Michael Sukumar Pallapati, A. Srikantam","doi":"10.47276/lr.93.1.79","DOIUrl":"https://doi.org/10.47276/lr.93.1.79","url":null,"abstract":"","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47658279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Louise Pierneef, A. T. van 't Noordende, Mamta Bista, Usha Singh, Manon B. Scheltema, A. K. Joshi, Mukesh Pant, Labhi Shakya, M. Waltz, W. V. van Brakel
{"title":"Factors influencing the mental wellbeing of persons affected by leprosy in Far-Western Nepal","authors":"Louise Pierneef, A. T. van 't Noordende, Mamta Bista, Usha Singh, Manon B. Scheltema, A. K. Joshi, Mukesh Pant, Labhi Shakya, M. Waltz, W. V. van Brakel","doi":"10.47276/lr.93.1.12","DOIUrl":"https://doi.org/10.47276/lr.93.1.12","url":null,"abstract":"","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45416515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Swapna Muthusamy, S. A. Vilvanathan, S. P. Dhandapany, V. Bhagat, V. Chadha, Elavarasan Sivashanmugam, A. Kamalanathan, Srimathi Lakshmanan, Maheswaran Mani
{"title":"Molecular search for M. lepromatosis among clinically diagnosed leprosy patients in a tertiary care centre in South India","authors":"Swapna Muthusamy, S. A. Vilvanathan, S. P. Dhandapany, V. Bhagat, V. Chadha, Elavarasan Sivashanmugam, A. Kamalanathan, Srimathi Lakshmanan, Maheswaran Mani","doi":"10.47276/lr.93.1.89","DOIUrl":"https://doi.org/10.47276/lr.93.1.89","url":null,"abstract":"","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42310708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lubna Bhat, N. Khan, Nahid Vaida, I. Hassan, M. T. Banday
{"title":"A field study of counselling for improving social participation of leprosy affected persons in Jammu and Kashmir","authors":"Lubna Bhat, N. Khan, Nahid Vaida, I. Hassan, M. T. Banday","doi":"10.47276/lr.93.1.63","DOIUrl":"https://doi.org/10.47276/lr.93.1.63","url":null,"abstract":"","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45796980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
T. Dahiru, Z. Iliyasu, Aliyu T. Mande, A. T. van 't Noordende, M. Aliyu
SummaryAim This study explored community perceptions about leprosy and the extent, root causes, and drivers of stigma in Kano State, northern Nigeria. Methodology The study used a cross-sectional design with a qualitative approach. Semi-structured in-depth interviews were conducted with community members unaffected by leprosy. Participants were selected using stratified purposive sampling. Thematic analysis was performed based on the “Framework Approach”. Results A total of 21 community members were included in this study. We found that the majority of the participants perceived persons affected by leprosy negatively, they were considered dirty, incurable, and inferior. Participants indicated that they avoid touching, social interactions, and sharing meals with persons affected by leprosy. In addition, leprosy was said to negatively impact employment opportunities and the marriage prospects of persons affected and their family members. Marriage prospects were considered worse for women affected by leprosy. We identified four main drivers of stigmatization: (1) local beliefs and misconceptions about leprosy (e.g. the belief affected. Our findings underscore the importance of community education and behavior change as key to transforming perceptions and behavior towards persons affected.
{"title":"Community perspectives on leprosy and related stigma in northern Nigeria: a qualitative study","authors":"T. Dahiru, Z. Iliyasu, Aliyu T. Mande, A. T. van 't Noordende, M. Aliyu","doi":"10.47276/lr.93.1.48","DOIUrl":"https://doi.org/10.47276/lr.93.1.48","url":null,"abstract":"SummaryAim This study explored community perceptions about leprosy and the extent, root causes, and drivers of stigma in Kano State, northern Nigeria. Methodology The study used a cross-sectional design with a qualitative approach. Semi-structured in-depth interviews were conducted with community members unaffected by leprosy. Participants were selected using stratified purposive sampling. Thematic analysis was performed based on the “Framework Approach”. Results A total of 21 community members were included in this study. We found that the majority of the participants perceived persons affected by leprosy negatively, they were considered dirty, incurable, and inferior. Participants indicated that they avoid touching, social interactions, and sharing meals with persons affected by leprosy. In addition, leprosy was said to negatively impact employment opportunities and the marriage prospects of persons affected and their family members. Marriage prospects were considered worse for women affected by leprosy. We identified four main drivers of stigmatization: (1) local beliefs and misconceptions about leprosy (e.g. the belief affected. Our findings underscore the importance of community education and behavior change as key to transforming perceptions and behavior towards persons affected.","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45236759","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Czarina Chavez, Miyahra Haniko P. Lopez, Christine E. De Guia, M. B. Tapales, Abelaine Venida-Tablizo
SummaryBackground/Objectives The drivers of stigma may vary from one society or country to another; thus, it is necessary to identify these drivers so that stigma elimination programs would be locally relevant. This study aimed to determine the current knowledge and attitudes on leprosy of healthcare workers in a tertiary government hospitalinthePhilippineswhichwillserveasthebasisforourfutureleprosyawarenesscampaigns. Methods We conducted a descriptive cross-sectional study among 265 healthcare workers in Rizal Medical Center (RMC), Philippines from January to March 2020 using a self-administered questionnaire. Descriptive statistics were used to describe the demographics and study variables. Results A majority had high (36.2%) or medium (35.5%) knowledge on leprosy. A majority (62.3%) had positive attitudes towards leprosy. However, only 18.5% knew that leprosy is transmitted through inhalation and a majority thought that it is transmitted either through body fluids and secretions (52.8%) or open wounds (27.5%). Only about half knew that a patient on treatment can no longer transmit the disease and does not need to be isolated, and that a patient who has completed treatment but still exhibits manifestations of the disease can no longer transmit the disease. majority high or medium knowledge leprosy and a positive attitude towards leprosy, identified misconceptions knowledge gaps centered on its mode of transmission and transmissibility which can lead to inappropriate fear of acquiring the disease from patients.
{"title":"Knowledge and attitudes on leprosy of healthcare workers in a tertiary government hospital in the Philippines","authors":"Czarina Chavez, Miyahra Haniko P. Lopez, Christine E. De Guia, M. B. Tapales, Abelaine Venida-Tablizo","doi":"10.47276/lr.93.1.26","DOIUrl":"https://doi.org/10.47276/lr.93.1.26","url":null,"abstract":"SummaryBackground/Objectives The drivers of stigma may vary from one society or country to another; thus, it is necessary to identify these drivers so that stigma elimination programs would be locally relevant. This study aimed to determine the current knowledge and attitudes on leprosy of healthcare workers in a tertiary government hospitalinthePhilippineswhichwillserveasthebasisforourfutureleprosyawarenesscampaigns. Methods We conducted a descriptive cross-sectional study among 265 healthcare workers in Rizal Medical Center (RMC), Philippines from January to March 2020 using a self-administered questionnaire. Descriptive statistics were used to describe the demographics and study variables. Results A majority had high (36.2%) or medium (35.5%) knowledge on leprosy. A majority (62.3%) had positive attitudes towards leprosy. However, only 18.5% knew that leprosy is transmitted through inhalation and a majority thought that it is transmitted either through body fluids and secretions (52.8%) or open wounds (27.5%). Only about half knew that a patient on treatment can no longer transmit the disease and does not need to be isolated, and that a patient who has completed treatment but still exhibits manifestations of the disease can no longer transmit the disease. majority high or medium knowledge leprosy and a positive attitude towards leprosy, identified misconceptions knowledge gaps centered on its mode of transmission and transmissibility which can lead to inappropriate fear of acquiring the disease from patients.","PeriodicalId":18196,"journal":{"name":"Leprosy review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43349482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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