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Fostering equity in education and academic outcomes in children with sickle cell disease. 促进镰状细胞病儿童在教育和学业成绩方面的公平。
IF 3.9 Pub Date : 2022-02-01 Epub Date: 2021-07-05 DOI: 10.1080/13854046.2021.1945147
Meghan Miller, Rachel Landsman, J Paul Scott, Amy K Heffelfinger

ObjectiveChildren with Sickle Cell Disease (SCD), who are predominantly Black, face academic disparities in part because of the impact of longstanding racially biased education systems. Adverse systemic factors in addition to neurologic complications put children with SCD at risk for poor academic outcomes. Providing caregivers with information on how to select quality schools and advocate for their child's specific educational needs may influence academic outcomes and reduce educational disparities. We aimed to provide information to caregivers of children with SCD on school selection/quality, enrollment, and special education options.MethodsForty-six caregivers of children with SCD between the ages of 2 and 5:11 years participated in a structured informational session. Caregivers' sense of empowerment regarding educational options for their child was assessed via survey before and after the structured informational session.ResultsCaregivers reported feeling more informed and empowered following their participation in an informational session on school selection/quality, enrollment, and special education options for their child than before the informational session.ConclusionsIt is essential that families of children with SCD have the knowledge, skills, and sense of empowerment to access quality schools beginning in early childhood. Future research will determine if this intervention will improve children's access to academic support and academic outcomes. We theorize improvements in academic outcomes along with addressing systemic disparities may ultimately create a positive impact on vocational and quality of life outcomes in the lives of children with SCD.

患有镰状细胞病(SCD)的儿童主要是黑人,他们面临着学业上的差异,部分原因是长期存在种族偏见的教育系统的影响。除神经系统并发症外,不良的全身因素使SCD患儿的学业成绩差。向照顾者提供有关如何选择优质学校和倡导其子女特殊教育需求的信息,可能会影响学业成绩并减少教育差距。我们的目的是为SCD儿童的照顾者提供有关学校选择/质量,入学和特殊教育选择的信息。方法对46名年龄在2 ~ 5:11岁的SCD儿童的照料者进行结构化的信息交流。在结构化信息会议之前和之后,通过调查评估了照顾者对孩子教育选择的赋权感。结果:在参加了关于学校选择/质量、入学和孩子特殊教育选择的信息会议后,照顾者报告说他们比参加信息会议前更了解情况,更有权力。结论SCD儿童的家庭在儿童早期就具备进入优质学校的知识、技能和赋权意识是至关重要的。未来的研究将确定这种干预是否会改善儿童获得学术支持和学术成果的机会。我们的理论是,在解决系统差异的同时,学习成绩的改善可能最终对SCD儿童的职业和生活质量产生积极影响。
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引用次数: 4
Relationships among illness representations and depressive symptom severity in predominantly African-American and Caribbean-American people with epilepsy. 主要是非裔美国人和加勒比裔美国人癫痫患者疾病表现与抑郁症状严重程度之间的关系。
IF 3.9 Pub Date : 2022-02-01 Epub Date: 2021-05-22 DOI: 10.1080/13854046.2021.1923802
Sugandha K Gupta, Seth A Margolis, Arthur C Grant, Jeffrey S Gonzalez, Luba Nakhutina

Objective: Depression is the most common psychiatric comorbidity among people with epilepsy (PWE) and tends to be more prevalent among people of color (POC) and those with intractable seizures. However, the extent to which illness-related perceptions are associated with depressive symptom severity among POC with intractable seizures is unclear. Method: This cross-sectional study examined relationships among illness representations and self-rated depressive symptoms in 55 PWE (M Age = 41; 61.8% female) with intractable seizures (M seizures per month = 2) who identified as Black/African-American (52.7%), Black/Caribbean-American (27.3%), and/or Hispanic/Latino (21.8%). Epilepsy-related illness perceptions were assessed with the Illness Perception Questionnaire-Revised and depression was measured via the Neurological Disorders Depression Inventory for Epilepsy (NDDI-E). Results: Nearly half of the sample (41.8%) scored above the NDDI-E depression cut-off. PWE endorsing more severe depressive symptoms indicated that their epilepsy had more negative consequences, was hard to comprehend, was insufficiently controlled by treatment, and had a negative emotional impact (p's ≤ 0.02). Controlling for sex, these four illness representations accounted for 48% of the variance in depression severity. Interestingly, participants with probable major depressive episodes were more likely to endorse several psychological causes of seizures compared to non-depressed PWE. Conclusions: Worse depression symptom severity was associated with negative illness perceptions and a tendency to attribute one's epilepsy to psychological causes. Future research is needed to understand how the relationship between negative illness perceptions and depression symptoms unfold over time and whether interventions aimed at modifying illness representations reduce psychological distress in diverse PWE.

目的:抑郁症是癫痫患者(PWE)中最常见的精神合并症,在有色人种(POC)和难治性癫痫患者中更为普遍。然而,在顽固性癫痫发作的POC中,疾病相关认知与抑郁症状严重程度的关联程度尚不清楚。方法:本横断面研究探讨了55名PWE(年龄= 41;61.8%女性)患有难治性癫痫发作(每月发作M次= 2次),确定为黑人/非裔美国人(52.7%),黑人/加勒比裔美国人(27.3%)和/或西班牙裔/拉丁裔(21.8%)。癫痫相关疾病知觉用疾病知觉问卷进行评估,抑郁程度通过癫痫神经障碍抑郁量表(NDDI-E)进行测量。结果:近一半的样本(41.8%)得分高于NDDI-E抑郁分界点。PWE赞同更严重的抑郁症状表明,他们的癫痫有更多的负面后果,难以理解,治疗控制不足,并有负面的情绪影响(p≤0.02)。在性别因素的控制下,这四种疾病表现占抑郁症严重程度差异的48%。有趣的是,与非抑郁PWE相比,可能有重度抑郁发作的参与者更有可能认同癫痫发作的几种心理原因。结论:抑郁症状的严重程度与消极的疾病认知和将癫痫归因于心理原因的倾向有关。未来的研究需要了解消极疾病感知和抑郁症状之间的关系如何随着时间的推移而展开,以及旨在改变疾病表征的干预措施是否会减少不同PWE的心理困扰。
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引用次数: 2
Removing the noose item from the Boston naming test: A step toward antiracist neuropsychological assessment. 从波士顿命名测试中移除套索项目:迈向反种族主义神经心理学评估的一步。
IF 3.9 Pub Date : 2022-02-01 Epub Date: 2021-06-21 DOI: 10.1080/13854046.2021.1933187
Sarah K Salo, Janice C Marceaux, Karin J M McCoy, Robin C Hilsabeck

Objective: The Boston Naming Test-Second Edition (BNT-2), the "gold-standard" assessment of confrontation naming used to diagnosis disorders such as dementia, includes aculturally insensitive item, the noose. Given calls to stop structural racism in psychology, this study examined changes in scores and performance classification if the noose item were omitted from the BNT-2. Methods: Participants were 291 Black, White, and Latinx adults who were administered the BNT-2 within a comprehensive neuropsychological evaluation. Ethnoracial differences in BNT-2 scores with and without the noose item and percentages of participants answering the noose item incorrectly were investigated. Results: Significant differences were found between ethnoracial groups in BNT-2 raw scores, T-scores, and percentage of participants incorrectly answering the noose item. Follow-up analyses revealed White participants obtained significantly higher raw scores and had significantly fewer participants answer the noose item incorrectly than Black and Latinx groups, who did not differ significantly. For T-scores, Black participants obtained significantly higher scores than White participants who obtained significantly higher scores than Latinx participants. Despite these differences, giving credit for the omitted noose item changed performance classification for only 10 participants (3.4%). Conclusions: Performance classification did not change significantly for the vast majority of a large ethnoculturally diverse sample when giving credit for the noose item as if it were not administered. Therefore, the non-noose BNT-2remains accurate while reducing cultural insensitivity towards Black populations, emphasizing a step in working towards anti-racism and fostering culturally-competent services within psychology.

目的:波士顿命名测试第二版(BNT-2)是用于诊断痴呆等疾病的对抗命名的“金标准”评估,其中包括文化不敏感项目——套索。考虑到制止心理学中的结构性种族主义的呼声,本研究考察了如果从BNT-2中省略套索项目,分数和表现分类的变化。方法:参与者是291名黑人、白人和拉丁裔成年人,他们在综合神经心理学评估中接受了BNT-2测试。调查了有和没有套索项目的BNT-2分数的种族差异,以及不正确回答套索项目的参与者的百分比。结果:不同种族之间在BNT-2原始分数、t分数和错误回答套索项目的参与者百分比上发现了显著差异。后续分析显示,与黑人和拉丁裔组相比,白人参与者获得了明显更高的原始分数,并且有明显更少的参与者回答错了套索项目,两者之间没有显著差异。在t得分上,黑人显著高于白人,黑人显著高于拉丁裔。尽管存在这些差异,但只改变了10名参与者(3.4%)的表现分类。结论:在一个种族文化多样化的大样本中,当给套索项目评分时,表现分类并没有显著变化,就好像它不是被管理的一样。因此,非套索的bnt -2在减少对黑人群体的文化不敏感的同时仍然是准确的,强调了在反种族主义和促进心理学文化主管服务方面的一步。
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引用次数: 6
Gendered racism and subjective cognitive complaints among older black women: The role of depression and coping. 性别种族主义与老年黑人妇女的主观认知抱怨:抑郁和应对的作用。
IF 3.9 Pub Date : 2022-02-01 Epub Date: 2021-05-17 DOI: 10.1080/13854046.2021.1923804
Tanisha G Hill-Jarrett, Martinque K Jones

Objective: Psychosocial stress is a risk factor for cognitive impairment and a potential pathway through which disparities in cognitive functioning emerge and disproportionately disadvantage older Black adults. Gendered racism is a psychosocial stressor that has negative implications for Black women's mental and physical health. This study tested the association between lifetime experiences of gendered racism and subjective cognitive complaints, taking into account the extent to which depressive symptoms and coping styles may explain this association. Method: Data from 75 older Black women (Mage = 62.43, SD = 6.23 years) were collected using an online survey assessing lifetime experiences of gendered racism, depressive symptoms, coping styles (i.e. spirituality, social support, problem-oriented/engagement, and disengagement), and subjective cognitive complaints (i.e. memory, attention, executive functioning, language, and overall cognition). The association between gendered racism and subjective cognitive complaints was examined with simple linear regression. Two mediation models examined depressive symptoms and coping styles as independent mediators of this association. Results: More gendered racism across the lifetime was associated with more subjective cognitive complaints separately through depressive symptoms and disengagement coping, but no other coping styles. Conclusion: Gendered racism is linked to increased subjective cognitive complaints via depressive symptoms and disengagement coping. The study highlights the importance of taking into account lived experiences (gendered racism) that are inextricably linked to social positioning (race and gender) within neuropsychology. Results evidence the negative impact of psychosocial stress, specifically gendered racism, on older Black women's subjective cognitive functioning, and illuminate avenues for clinical intervention and social justice advocacy.

目的:心理社会压力是认知功能障碍的危险因素,也是认知功能差异出现的潜在途径,对老年黑人成年人造成了不成比例的不利影响。性别种族主义是一种社会心理压力源,对黑人妇女的身心健康产生负面影响。本研究测试了性别种族主义的一生经历与主观认知抱怨之间的联系,并考虑了抑郁症状和应对方式在多大程度上可以解释这种联系。方法:通过在线调查收集75名老年黑人妇女(年龄= 62.43,SD = 6.23岁)的数据,评估性别种族主义、抑郁症状、应对方式(即精神、社会支持、问题导向/参与和脱离参与)和主观认知抱怨(即记忆、注意力、执行功能、语言和整体认知)的一生经历。性别种族主义与主观认知投诉之间的关系用简单的线性回归检验。两个中介模型检验了抑郁症状和应对方式作为这种关联的独立中介。结果:一生中性别种族主义程度越高,抑郁症状和脱离参与应对与主观认知抱怨程度越高相关,而其他应对方式与主观认知抱怨无关。结论:性别种族主义通过抑郁症状和脱离参与应对与主观认知抱怨增加有关。该研究强调了将生活经历(性别种族主义)考虑在内的重要性,这与神经心理学中的社会定位(种族和性别)有着千丝万缕的联系。结果表明,社会心理压力,特别是性别种族主义对老年黑人妇女主观认知功能的负面影响,并为临床干预和社会正义倡导提供了途径。
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引用次数: 9
Mild cognitive impairment from a nearly international perspective 从几乎国际的角度来看轻度认知障碍
Pub Date : 2022-01-11 DOI: 10.1080/13854046.2021.2022213
Anthony Rinaldi
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引用次数: 0
Update on Third Party Observers in Neuropsychological Evaluation: An Interorganizational Position Paper. 神经心理学评估中第三方观察者的最新进展:一份跨组织立场文件。
Pub Date : 2021-08-01 Epub Date: 2021-05-19 DOI: 10.1080/13854046.2021.1901992
Tannahill Glen, Mark Barisa, Rebecca Ready, Edward Peck, Tresa Roebuck Spencer

Objective: The National Academy of Neuropsychology (NAN), the American Academy of Clinical Neuropsychology (AACN), and the American College of Professional Neuropsychology (ACPN) collaborated to publish an update to their original position statements, confirming the organizations' opposition to third party observers (TPO).

Method: A review of literature addressing TPO effects, ethical standards, professional organization position statements, test publisher policies and new telemedicine developments was completed to obtain consensus on relevant issues in TPO and recording of neuropsychological evaluations.

Results: TPO has been shown to impact the cognitive functions most often assessed in forensic or medicolegal settings. Third party observation, whether in person, recorded or electronically, remains a potential threat to the validity and reliability of evaluation results, and violates test security guidelines, ethical principles and standards of conduct in the field. Demands for TPO in the context of medicolegal or forensic settings have become a tactic designed to limit the ability of the consulting neuropsychologist to perform assessment and provide information to the trier of fact.

Conclusions: The field of neuropsychology opposes the presence of TPO in the setting of medicolegal or forensic neuropsychological evaluations.

目的:美国国家神经心理学学会(NAN)、美国临床神经心理学学会(AACN)和美国专业神经心理学学院(ACPN)合作发布了一份对其原始立场声明的更新,确认了这些组织对第三方观察员(TPO)的反对。方法:通过对TPO效应、伦理标准、专业组织立场声明、测试出版商政策和远程医疗新发展等方面的文献综述,就TPO相关问题和神经心理学评估记录达成共识。结果:TPO已被证明影响认知功能,最常评估在法医或医学法律设置。第三方观察,无论是亲自观察、记录观察还是电子观察,都对评估结果的有效性和可靠性构成潜在威胁,并且违反了该领域的测试安全指导方针、道德原则和行为标准。在医学或法医环境下对TPO的要求已经成为一种策略,旨在限制咨询神经心理学家进行评估和向事实审判者提供信息的能力。结论:神经心理学领域反对在法医或法医神经心理学评估中出现TPO。
{"title":"Update on Third Party Observers in Neuropsychological Evaluation: An Interorganizational Position Paper.","authors":"Tannahill Glen, Mark Barisa, Rebecca Ready, Edward Peck, Tresa Roebuck Spencer","doi":"10.1080/13854046.2021.1901992","DOIUrl":"10.1080/13854046.2021.1901992","url":null,"abstract":"<p><strong>Objective: </strong>The National Academy of Neuropsychology (NAN), the American Academy of Clinical Neuropsychology (AACN), and the American College of Professional Neuropsychology (ACPN) collaborated to publish an update to their original position statements, confirming the organizations' opposition to third party observers (TPO).</p><p><strong>Method: </strong>A review of literature addressing TPO effects, ethical standards, professional organization position statements, test publisher policies and new telemedicine developments was completed to obtain consensus on relevant issues in TPO and recording of neuropsychological evaluations.</p><p><strong>Results: </strong>TPO has been shown to impact the cognitive functions most often assessed in forensic or medicolegal settings. Third party observation, whether in person, recorded or electronically, remains a potential threat to the validity and reliability of evaluation results, and violates test security guidelines, ethical principles and standards of conduct in the field. Demands for TPO in the context of medicolegal or forensic settings have become a tactic designed to limit the ability of the consulting neuropsychologist to perform assessment and provide information to the trier of fact.</p><p><strong>Conclusions: </strong>The field of neuropsychology opposes the presence of TPO in the setting of medicolegal or forensic neuropsychological evaluations.</p>","PeriodicalId":197334,"journal":{"name":"The Clinical neuropsychologist","volume":" ","pages":"1107-1116"},"PeriodicalIF":0.0,"publicationDate":"2021-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39009394","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
American Academy of Clinical Neuropsychology (AACN) 2021 consensus statement on validity assessment: Update of the 2009 AACN consensus conference statement on neuropsychological assessment of effort, response bias, and malingering. 美国临床神经心理学学会(AACN) 2021年效度评估共识声明:更新2009年AACN共识会议关于努力、反应偏差和装病的神经心理学评估声明。
Pub Date : 2021-08-01 Epub Date: 2021-04-06 DOI: 10.1080/13854046.2021.1896036
Jerry J Sweet, Robert L Heilbronner, Joel E Morgan, Glenn J Larrabee, Martin L Rohling, Kyle B Boone, Michael W Kirkwood, Ryan W Schroeder, Julie A Suhr

Objective: Citation and download data pertaining to the 2009 AACN consensus statement on validity assessment indicated that the topic maintained high interest in subsequent years, during which key terminology evolved and relevant empirical research proliferated. With a general goal of providing current guidance to the clinical neuropsychology community regarding this important topic, the specific update goals were to: identify current key definitions of terms relevant to validity assessment; learn what experts believe should be reaffirmed from the original consensus paper, as well as new consensus points; and incorporate the latest recommendations regarding the use of validity testing, as well as current application of the term 'malingering.' Methods: In the spring of 2019, four of the original 2009 work group chairs and additional experts for each work group were impaneled. A total of 20 individuals shared ideas and writing drafts until reaching consensus on January 21, 2021. Results: Consensus was reached regarding affirmation of prior salient points that continue to garner clinical and scientific support, as well as creation of new points. The resulting consensus statement addresses definitions and differential diagnosis, performance and symptom validity assessment, and research design and statistical issues. Conclusions/Importance: In order to provide bases for diagnoses and interpretations, the current consensus is that all clinical and forensic evaluations must proactively address the degree to which results of neuropsychological and psychological testing are valid. There is a strong and continually-growing evidence-based literature on which practitioners can confidently base their judgments regarding the selection and interpretation of validity measures.

目的:2009年AACN效度评估共识声明的引用和下载数据表明,该主题在随后的几年中保持了很高的关注度,在此期间,关键术语不断演变,相关实证研究激增。总的目标是为临床神经心理学社区提供有关这一重要主题的当前指导,具体的更新目标是:确定与效度评估相关的术语的当前关键定义;了解专家认为应该从原始共识文件中重申的内容,以及新的共识点;并纳入有关有效性测试使用的最新建议,以及术语“装病”的当前应用。方法:在2019年春季,对2009年原工作组主席中的4名和每个工作组的额外专家进行了小组讨论。共有20人分享想法并撰写草稿,直到2021年1月21日达成共识。结果:对既往重点的肯定和新重点的创造达成了共识,这些重点将继续获得临床和科学的支持。由此产生的共识声明涉及定义和鉴别诊断,性能和症状有效性评估,以及研究设计和统计问题。结论/重要性:为了提供诊断和解释的依据,目前的共识是,所有临床和法医评估都必须主动解决神经心理学和心理测试结果的有效性。有一个强大的和不断增长的基于证据的文献,从业人员可以自信地基于他们的判断,关于有效性措施的选择和解释。
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引用次数: 0
Normative performance of older individuals on the Hopkins Verbal Learning Test-Revised (HVLT-R) according to ethno-racial group, gender, age and education level. 不同种族、性别、年龄和教育程度的老年人霍普金斯语言学习测验(HVLT-R)的规范性表现
IF 3.9 Pub Date : 2021-08-01 Epub Date: 2020-02-26 DOI: 10.1080/13854046.2020.1730444
Joanne Ryan, Robyn L Woods, Anne M Murray, Raj C Shah, Carlene J Britt, Christopher M Reid, Rory Wolfe, Mark R Nelson, Jessica E Lockery, Suzanne G Orchard, Ruth E Trevaks, Trevor J Chong, John J McNeil, Elsdon Storey

Objective: The Hopkins Verbal Learning Test-Revised (HVLT-R) provides a measure of verbal learning and memory. The aim of this study was to provide normative performance data on the HVLT-R for community-dwelling older individuals according to ethno-racial group, age, gender, and years of completed education, in Australia and the U.S.

Method: The ASPirin in Reducing Events in the Elderly (ASPREE) study recruited 19,114 generally healthy community dwelling individuals aged 70 years and over (65 years and over for U.S minorities), who were without a diagnosis of dementia and scored above 77 on the modified Mini-Mental State (3MS) examination. Included in the analysis presented here were 16,251 white Australians, and in the U.S. 1,082 white, 894 African American and 314 Hispanic/Latino individuals at baseline.

Results: Performance on each of the components of the HVLT-R (trials 1-3, total, learning, delayed recall, delayed recognition, percentage retention and recognition discrimination index [RDI]) differed by demographic variables. In country and ethno-racial stratified analyses, female gender, younger age and higher education were significantly associated with better total recall, delayed recall and RDI. Among white Australians these characteristics were also associated with better retention. Age, education and gender-specific reference values across ethno-racial categories were determined.

Conclusions: Ethno-racial, age, gender and education-stratified normative data from this large cohort of community-dwelling older individuals will serve as important reference standards in Australia and the U.S. to assess cognition in older individuals.

目的:改进的霍普金斯语言学习测验(HVLT-R)提供了一种衡量语言学习和记忆的方法。本研究的目的是根据澳大利亚和美国的种族、年龄、性别和完成教育年限,为社区居住的老年人提供HVLT-R的规范性表现数据。阿司匹林在减少老年人事件中的作用(ASPREE)研究招募了19,114名年龄在70岁及以上的健康社区居民(美国少数民族为65岁及以上),他们没有诊断为痴呆,在修改的迷你精神状态(3MS)检查中得分在77分以上。本研究的分析对象包括16251名澳大利亚白人、1082名美国白人、894名非洲裔美国人和314名西班牙裔/拉丁裔人。结果:在HVLT-R的各组成部分(试验1-3、总数、学习、延迟回忆、延迟识别、保留率和识别歧视指数[RDI])上的表现因人口统计学变量而异。在国家和民族-种族分层分析中,女性性别、年轻年龄和高等教育程度与更好的总回忆、延迟回忆和RDI显著相关。在澳大利亚白人中,这些特征也与更好的记忆力有关。确定了各族裔和种族类别的年龄、教育和性别特定参考值。结论:来自这一大型社区居住老年人队列的民族-种族、年龄、性别和教育分层的规范性数据将作为澳大利亚和美国老年人认知评估的重要参考标准。
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引用次数: 21
Feedback with patients who produce invalid testing: Professional values and reported practices. 对产生无效检测的患者的反馈:专业价值和报告的做法。
IF 3.9 Pub Date : 2021-08-01 Epub Date: 2020-02-07 DOI: 10.1080/13854046.2020.1722243
Phillip K Martin, Ryan W Schroeder

Objective: Providing feedback to clinical patients who produce invalid neuropsychological test data presents with several potential challenges. Given the limited guidance available on the topic, neuropsychologists most likely utilize approaches that idiosyncratically incorporate professional values related to both assessment and patient care to address overarching feedback goals. The current article discusses professional values believed to inform feedback decisions and presents survey results regarding how neuropsychologists would approach feedback across various clinical scenarios where testing is invalid.

Method: Participants were 209 adult-focused clinical neuropsychologists recruited via professional listservs, the majority of whom reported being board certified. Respondents were provided three case vignettes of clinical patients who produced invalid test data and were asked how they would provide feedback to each patient. Open-ended responses were coded to determine the relative frequency of feedback approaches, explicit statements, and implied goals.

Results: Nearly all respondents (98%) indicated that feedback would include some description of the invalid findings, and most respondents indicated that they would provide explanations for the reasons of invalidity (67%) and statements regarding the impact of invalidity on test interpretation (75%). There was little agreement across respondents, however, regarding specific feedback approach. Feedback goals included to Inform, Investigate, Treat, Educate, and Correct, with the presence of these implied goals also varying across respondents.

Conclusions: The findings indicate that there is minimal consensus regarding feedback approaches provided to patients who produce invalid test data and underscore a need for further development and validation of specific feedback methods. The results are discussed within the context of the potentially competing professional values of evidence-based assessment, patient-doctor collaboration, and aspirational principles of beneficence and fidelity.

目的:为临床患者提供无效的神经心理测试数据提供反馈,提出了几个潜在的挑战。鉴于在这个话题上可用的指导有限,神经心理学家最有可能利用一些特殊的方法,将与评估和患者护理相关的专业价值观结合起来,以解决总体反馈目标。当前的文章讨论了被认为是反馈决策的专业价值,并提出了关于神经心理学家如何在测试无效的各种临床场景中处理反馈的调查结果。方法:参与者是209名以成人为中心的临床神经心理学家,他们通过专业列表服务招募,其中大多数人报告获得了委员会认证。受访者提供了三个病例的临床病人谁产生无效的测试数据,并被问及他们将如何提供反馈给每个病人。对开放式回答进行编码,以确定反馈方法、明确陈述和隐含目标的相对频率。结果:几乎所有的被调查者(98%)表示他们的反馈会包括一些无效发现的描述,大多数被调查者表示他们会提供无效原因的解释(67%)和关于无效对测试解释的影响的陈述(75%)。然而,对于具体的反馈方法,受访者几乎没有达成一致意见。反馈目标包括告知、调查、治疗、教育和纠正,这些隐含目标的存在也因受访者而异。结论:研究结果表明,对于提供给产生无效测试数据的患者的反馈方法,存在最小的共识,并强调需要进一步开发和验证特定的反馈方法。研究结果在潜在竞争的专业价值的背景下进行了讨论,以证据为基础的评估,医患合作,以及慈善和忠诚的理想原则。
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引用次数: 6
Do parents implement pediatric neuropsychological report recommendations? 家长是否执行儿童神经心理学报告的建议?
IF 3.9 Pub Date : 2021-08-01 Epub Date: 2020-02-03 DOI: 10.1080/13854046.2020.1720298
John Elias, Eric Zimak, Andrea Sherwood, Beatriz MacDonald, Nubia Lozano, Jason Long, A Denise Larsen

Objective: We explored parent-reported implementation rates of medical, home/community, and school recommendations following a pediatric neuropsychological evaluation, as well as demographic group differences in, and potential barriers to, recommendation implementation.

Method: Participants were 55 parents of children and adolescents who completed an outpatient neuropsychological evaluation in a university-based hospital neuropsychology clinic within 4 to 6 months prior to study participation. Participants were contacted by phone to complete a short interview regarding implementation of report recommendations.

Results: Slightly over half (52%) of all recommendations were implemented, with higher implementation rates of school (62%) and home/community recommendations (53%) than medical recommendations (40%). Results indicated significantly lower recommendation implementation for households with low income (particularly for medical recommendations). Reported reasons for not implementing recommendations included lack of time, lack of resources (geographical and financial), ambivalence about the need to implement the recommendation, not remembering the recommendation, confusion about how to implement the recommendation, and resistance from schools and teachers.

Conclusions: The results for this study provide information for pediatric neuropsychologists regarding rates of recommendation implementation, with differences identified based on type of recommendation and demographic factors. Further empirical investigation is indicated in order to determine practical, concrete steps to improve recommendation implementation.

目的:通过儿童神经心理学评估,探讨家长报告的医疗建议、家庭/社区建议和学校建议的执行率,以及建议执行的人口统计学差异和潜在障碍。方法:参与者是55名儿童和青少年的父母,他们在参加研究前4到6个月内在大学医院神经心理学诊所完成了门诊神经心理学评估。通过电话与参与者联系,以完成关于报告建议执行情况的简短访谈。结果:所有建议的执行率略高于一半(52%),学校建议(62%)和家庭/社区建议(53%)的执行率高于医疗建议(40%)。结果表明,低收入家庭的建议执行情况明显较低(特别是医疗建议)。报告的不执行建议的原因包括缺乏时间、缺乏资源(地理和财政)、对是否需要执行建议的矛盾心理、不记得建议、对如何执行建议感到困惑,以及来自学校和教师的抵制。结论:本研究的结果为儿科神经心理学家提供了关于推荐执行率的信息,根据推荐类型和人口因素确定了差异。进一步的实证调查表明,以确定实际的,具体的步骤,以提高建议的执行。
{"title":"Do parents implement pediatric neuropsychological report recommendations?","authors":"John Elias,&nbsp;Eric Zimak,&nbsp;Andrea Sherwood,&nbsp;Beatriz MacDonald,&nbsp;Nubia Lozano,&nbsp;Jason Long,&nbsp;A Denise Larsen","doi":"10.1080/13854046.2020.1720298","DOIUrl":"https://doi.org/10.1080/13854046.2020.1720298","url":null,"abstract":"<p><strong>Objective: </strong>We explored parent-reported implementation rates of medical, home/community, and school recommendations following a pediatric neuropsychological evaluation, as well as demographic group differences in, and potential barriers to, recommendation implementation.</p><p><strong>Method: </strong>Participants were 55 parents of children and adolescents who completed an outpatient neuropsychological evaluation in a university-based hospital neuropsychology clinic within 4 to 6 months prior to study participation. Participants were contacted by phone to complete a short interview regarding implementation of report recommendations.</p><p><strong>Results: </strong>Slightly over half (52%) of all recommendations were implemented, with higher implementation rates of school (62%) and home/community recommendations (53%) than medical recommendations (40%). Results indicated significantly lower recommendation implementation for households with low income (particularly for medical recommendations). Reported reasons for not implementing recommendations included lack of time, lack of resources (geographical and financial), ambivalence about the need to implement the recommendation, not remembering the recommendation, confusion about how to implement the recommendation, and resistance from schools and teachers.</p><p><strong>Conclusions: </strong>The results for this study provide information for pediatric neuropsychologists regarding rates of recommendation implementation, with differences identified based on type of recommendation and demographic factors. Further empirical investigation is indicated in order to determine practical, concrete steps to improve recommendation implementation.</p>","PeriodicalId":197334,"journal":{"name":"The Clinical neuropsychologist","volume":" ","pages":"1117-1133"},"PeriodicalIF":3.9,"publicationDate":"2021-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13854046.2020.1720298","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"37601162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 9
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The Clinical neuropsychologist
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