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The impact of diabetes technology advances on quality of life: addressing the barriers to uptake 糖尿病技术进步对生活质量的影响:解决吸收障碍
Q3 Medicine Pub Date : 2023-09-01 DOI: 10.1002/pdi.2476
Anne Kilvert, Charles Fox
Abstract One hundred years after insulin was first used to treat diabetes, technology is advancing rapidly, with insulin pumps and continuous glucose monitoring devices established in clinical care. Hybrid closed loop systems have been successfully piloted in the UK and the National Institute for Health and Care Excellence is developing a guideline for access for people with type 1 diabetes. Initial studies of diabetes technology focused on glycaemic benefits, but many now include measures of quality of life/person reported outcome measures and diabetes‐specific and technology‐specific questionnaires have been validated. Focus groups and semi‐structured interviews can add insights to the personal experience. The quality of life evidence for technology is positive overall, but for some people the burdens of technology outweigh the benefits and create barriers to uptake. Health care professionals have a pivotal role in exploring individual barriers and priorities, managing expectations and providing education and support to help people achieve quality of life benefits as well as enhanced glycaemic control. They should take care to ensure equality of access for all by avoiding personal bias. Developers of the technology should involve stakeholders to ensure their needs are met. Copyright © 2023 John Wiley & Sons.
胰岛素首次用于治疗糖尿病一百多年后,技术发展迅速,胰岛素泵和连续血糖监测装置在临床护理中建立起来。混合闭环系统已经在英国成功试点,国家健康和护理卓越研究所正在制定1型糖尿病患者获取指南。最初对糖尿病技术的研究侧重于降糖益处,但现在许多研究包括生活质量测量/人员报告结果测量以及糖尿病特异性和技术特异性问卷调查已得到验证。焦点小组和半结构化访谈可以增加对个人经验的见解。总的来说,技术对生活质量的影响是积极的,但对一些人来说,技术的负担超过了好处,并造成了接受技术的障碍。卫生保健专业人员在探索个人障碍和优先事项,管理期望以及提供教育和支持以帮助人们获得生活质量益处以及加强血糖控制方面发挥着关键作用。他们应该注意避免个人偏见,确保所有人都能平等获得教育。该技术的开发人员应该让利益相关者参与进来,以确保满足他们的需求。版权所有©2023 John Wiley &儿子。
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引用次数: 1
An educational programme and patient‐reported outcomes using flash glucose monitoring and automated bolus calculation in type 1 diabetes 1型糖尿病患者使用瞬时血糖监测和自动剂量计算的教育计划和患者报告的结果
Q3 Medicine Pub Date : 2023-09-01 DOI: 10.1002/pdi.2474
Linda H Raimond, Anna L Secher, Merete M Andersen, Adelaide EK Linddal, Anne G Skouboe, Kirsten Nørgaard
Abstract Introduction: Our primary aim was to describe the educational programme and user's guide for decision support for persons with type 1 diabetes who commence carbohydrate counting with automated bolus calculator (ABC) and flash (intermittently scanned) glucose monitoring (isCGM). The programme was developed for the ABC Flash trial, conducted in The Capital Region of Denmark in 2018–2020. We also aimed to evaluate the impact of the programme and the combined interventions on patient‐reported outcome parameters. Methods: The programme and user's guide are described in detail. In total, 35 adults with type 1 diabetes and sub‐optimal HbA 1c treated with multiple daily insulin injections completed the 26‐week educational programme on initiating ABC and isCGM. Patient‐reported outcomes were self‐evaluated before and after (Audit of Diabetes Dependent Quality of Life questionnaire, Diabetes Treatment Satisfaction Questionnaire, Problem Areas in Diabetes and Diabetes Empowerment Scale). Changes over time in the different sub‐areas of diabetes‐related burden on quality of life, treatment satisfaction, diabetes‐related distress and psychosocial self‐efficacy were analysed. Results: During participation in the educational programme on initiating ABC and isCGM, diabetes‐related burden on work and sex life and several treatment satisfaction and psychosocial self‐efficacy sub‐areas improved. Conclusion: Implementation of the educational programme and initiating combined intervention with carbohydrate counting with ABC and isCGM improve treatment satisfaction and different psychosocial areas among persons with type 1 diabetes. Copyright © 2023 John Wiley & Sons.
摘要简介:我们的主要目的是描述1型糖尿病患者开始使用自动丸计算器(ABC)和闪烁(间歇性扫描)血糖监测(isCGM)进行碳水化合物计数的教育计划和决策支持的用户指南。该方案是为ABC Flash试验开发的,该试验于2018-2020年在丹麦首都地区进行。我们还旨在评估该方案和联合干预措施对患者报告的结果参数的影响。方法:详细介绍程序和使用指南。总共有35名接受每日多次胰岛素注射治疗的成人1型糖尿病患者完成了为期26周的ABC和isCGM启动教育计划。患者报告的结果在治疗前后进行自我评估(糖尿病依赖生活质量问卷审计、糖尿病治疗满意度问卷、糖尿病问题领域和糖尿病授权量表)。我们分析了糖尿病相关生活质量负担、治疗满意度、糖尿病相关痛苦和心理社会自我效能的不同子区域随时间的变化。结果:在参与ABC和isCGM教育项目期间,糖尿病相关的工作和性生活负担以及一些治疗满意度和心理社会自我效能分领域均有所改善。结论:教育方案的实施和碳水化合物计数与ABC和isCGM相结合的联合干预提高了1型糖尿病患者的治疗满意度和不同的心理社会领域。版权所有©2023 John Wiley &儿子。
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引用次数: 0
The growing use of continuous glucose monitors in people without diabetes: an evidence‐free zone 持续血糖监测仪在非糖尿病人群中的应用:无证据区
Q3 Medicine Pub Date : 2023-09-01 DOI: 10.1002/pdi.2475
Nicola Guess
Abstract The use of continuous glucose monitors (CGMs) is growing among people without diabetes, and is being encouraged by CGM manufacturers and personalised nutrition companies alike. This article critically discusses the issues that may arise from this new trend, including pathologising normal post‐prandial glucose excursions, the unnecessary avoidance of healthful foods and the risk of a glucocentric approach to nutrition which could inadvertently increase the risk of cardiometabolic diseases a person is trying to avoid. The theoretical benefits of CGMs in people without diabetes will be discussed, and recommendations for the evidence needed to help realise their potential will be made. Copyright © 2023 John Wiley & Sons.
连续血糖监测仪(CGM)的使用在非糖尿病人群中越来越多,并受到CGM制造商和个性化营养公司的鼓励。本文批判性地讨论了这种新趋势可能引起的问题,包括将正常的餐后血糖升高,不必要地避免健康食品,以及以糖为中心的营养方法的风险,这种方法可能会无意中增加人们试图避免的心脏代谢疾病的风险。将讨论无糖尿病人群中cgm的理论益处,并就帮助实现其潜力所需的证据提出建议。版权所有©2023 John Wiley &儿子。
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引用次数: 0
Using virtual reality based learning to provide education on the management of diabetes emergencies for doctors in training 利用基于虚拟现实的学习为培训中的医生提供糖尿病急诊管理教育
Q3 Medicine Pub Date : 2023-09-01 DOI: 10.1002/pdi.2473
Ritwika Mallik, Jack Pottle, Ben Atkinson, Partha Kar, Mayank Patel
Abstract It is essential that all doctors in training feel confident in their ability to manage diabetes emergencies occurring in hospital settings. This is particularly pertinent when specialist expertise is not always immediately available, as well as at a time when diabetes prevalence in hospitals is rising. The project team created interactive, immersive scenarios and ran ‘DEVICE’ (Diabetes Emergencies: Virtual Interactive Clinical Education), a pilot study to test the feasibility of using virtual reality (VR) as a safe‐space learning medium for training medical staff on diabetes emergency management. Each study participant worked through two emergency scenarios, under the supervision of a consultant trainer. Analysis of the participants’ performance metrics showed improved clinical approaches and increased confidence in handling diabetes emergencies by these non‐specialist participants. Here we describe this pilot study development in more detail, as well as provide an update following the national roll‐out of these training resources across seven national postgraduate medical deaneries. The DEVICE initiative was found to be scalable and sustainable, with VR‐based learning deemed to be a popular, safe, and effective teaching tool for diabetes. We are now developing VR‐based training cases for use by other health care professionals within primary and secondary care. Copyright © 2023 John Wiley & Sons.
所有接受培训的医生对自己处理医院发生的糖尿病紧急情况的能力有信心是至关重要的。在不能立即获得专业知识的情况下,以及在医院糖尿病患病率上升的情况下,这一点尤为重要。项目团队创建了互动的沉浸式场景,并进行了“DEVICE”(糖尿病紧急情况:虚拟互动临床教育),这是一项试点研究,旨在测试使用虚拟现实(VR)作为安全空间学习媒介培训医务人员糖尿病紧急情况管理的可行性。每个研究参与者都在顾问培训师的监督下经历了两种紧急情况。对参与者表现指标的分析显示,这些非专业参与者改善了临床方法,增加了处理糖尿病紧急情况的信心。在这里,我们更详细地描述了这一试点研究的发展,并提供了在七个国家研究生医学学院推出这些培训资源后的最新情况。研究发现,DEVICE计划具有可扩展性和可持续性,基于VR的学习被认为是一种流行、安全、有效的糖尿病教学工具。我们现在正在开发基于虚拟现实的培训案例,供其他初级和二级医疗保健专业人员使用。版权所有©2023 John Wiley &儿子。
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引用次数: 0
The accuracy of capillary blood glucose testing versus real time and intermittently scanned continuous glucose monitoring 毛细管血糖检测与实时、间歇扫描连续血糖监测的准确性比较
Q3 Medicine Pub Date : 2023-09-01 DOI: 10.1002/pdi.2479
Souha El‐Abd, Ruth Poole
In this sixth article in our ‘Test Tips’ series, Dr Souha El‐Abd and Dr Ruth Poole examine the benefits and limitations of traditional capillary blood glucose testing and the more technologically advanced continuous glucose monitoring in the management of glycaemic control.
在我们“测试提示”系列的第六篇文章中,Souha El - Abd博士和Ruth Poole博士研究了传统毛细血管血糖测试和技术更先进的连续血糖监测在血糖控制管理中的优点和局限性。
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引用次数: 0
Who owns health data anyway? 到底谁拥有健康数据?
Q3 Medicine Pub Date : 2023-09-01 DOI: 10.1002/pdi.2472
Louise R Curtis
Data driven technologies have revolutionised the management of diabetes allowing people to take a greater role in their care; however, use of such systems creates tremendous quantities of data. We have become accustomed to the sharing of data within the health care professional relationship. For example, someone with type 1 diabetes who experiences hypoglycaemia may explore their glucose profile with their diabetes specialist team. This is acceptable to both parties as there is an implicit trust underpinned by confidentiality and a shared goal. What happens when a third party with their own business interest is introduced to that relationship? Who owns that data? There is an increasingly insistent call for people to take control of ‘their’ data framed as the right of ownership with quotes such as ‘Who owns the data owns the future’ becoming well-worn clichés where the alternatives include the risk of exploitation by ‘surveillance capitalism’.1 Health data is far more than that held in clinical records with collective health data being greater than the sum of its parts. All data can be seen as health data with an estimated 80–90% generated outside of the clinical setting.2 From grocery shopping to sleep habits, walking speed to typing speed, patient-generated health data (PGHD) combines all factors that can reflect an individual's health. Despite the concept of personal ownership of one's data coming into the public awareness following the Cambridge Analytica scandal,3 there has been a proliferation and ubiquity in data intensive software generating PGHD such as health and wellness apps, heart rate wrist monitors and nutrition programmes. This ‘self- tracking’ is marketed as a means to gain self-awareness and improved wellbeing.4 It has been shown that motion data from a smartphone can predict behaviour and mental state of the user,5 so how much more might the tremendous volume of data from continuous glucose monitoring, bolus advisors and insulin requirements in a hybrid closed-loop system predict? Cross reference this with an online calendar, geolocation, spending patterns, sleep and menstrual cycle and you gain an in-depth understanding into someone's life beyond the remit of their diabetes care. Ensuring that the collection, use and access of these data meets the expectations of the public is essential to maintain the professional relationship.6 From the perspective of UK law, health data does not have an extensive system of specific rules like those that govern intellectual property. Arguably, even if this were developed, the advantages of a property framework to govern health information may be limited. The monetary value of one person's data points is likely to be insignificant as value lies in collective data from a population. It is also unclear whether legal ownership would provide patients access to the data economy. Perhaps more pertinently from a health perspective is whether legal ownership of health data would enhance self-care and
数据倡议将每个患者与NHS提供商联系的数据链接起来,以计划和设计服务。由于未能充分解决公众对健康数据隐私的担忧,该计划随后于2016年暂停在过去十年中,探索公众对数据二次使用的态度或可接受性的研究数量稳步增加。令人惊讶的是,英国公众通常并不关心他们的数据去了哪里,这可能是由于他们的数据所购买的服务很方便。在引起关注的地方,与行为存在差异;例如,尽管零售商收集了丰富的数据集,但商店忠诚卡的使用率很高。然而,就健康数据而言,一致的主题是担心这些信息可以追溯到个人,从而导致歧视或剥削Wellcome Trust开展了关于商业获取健康数据的公众意见的广泛工作,发现公众普遍表示他们不希望他们的健康记录与私人公司共享,因为他们认为这个行业完全是由利润驱动的。“这是一面单向镜子;他们知道你的一切,但我们不知道他们用这些做什么。15一些与会者认为,私营部门的参与暗示了NHS私有化的更广泛议程。更多的知识、学科接触、教育程度、对数据使用的认识和社会等级都与接受商业访问有关具体来说,当研讨会讨论第三方受数据保护立法的约束,他们的商业利益包括开发、维护和支持他们的产品,从而使人们受益时,人们更容易接受。如果认为对个人或公共健康没有好处,则认为商业途径是不可接受的,保险和营销被视为对个人最有害对25项调查公众对共享或联系卫生数据态度的定性研究进行的系统审查发现,在研究中使用数据得到广泛支持;然而,为了获得公众的接受,提出了一些条件在所有讲习班中,与会者都表示相信,数据的有效利用应能够为人民和社区带来更广泛、积极的社会成果,而不仅仅是给个人和服务提供者带来好处有人建议采取保障措施,确保这是为了公共利益、可选、非剥削和互惠。在临床试验未发表或非数据共享的情况下,获取透明度是不可接受的使用方式的一个意想不到的例子,因为这违反了参与者关于研究将有助于医学知识的假设。18 .虽然保密受到保护,但同意讨论和表格很少披露调查人员关于共享去识别数据或公布试验结果的意图最近的O 'Shaughnessy报告对英国商业临床试验进行了委托,因为在过去五年中,NHS招募的患者几乎减少了一半,导致总直接成本在3.6亿英镑左右。报告强调了未能充分利用国民保健服务庞大的数据资产以及投资卫生数据基础设施的必要性。数字平台和制药公司之间的合作所带来的分散临床试验机会被强调为一种创新方法。数据可以从参与者舒适的家中收集,减少旅行的需要,并使患者群体更加多样化可以说,1型糖尿病的研究非常适合这种模式,因为患者、数字平台和临床医生之间的合作关系已经融入了日常实践。CamAPS FX™混合闭环系统的真实证据分析使用了这种分散的方法。超过1800名系统用户同意在分析中使用他们的数据,其中终点是应用程序常规收集的葡萄糖指标。来自这一大型队列的数据增加了对实际疗效的信心,与报告的随机对照试验数据一致在英国成为科技超级大国的愿望之前,政府承诺在2022年投入2亿英镑,通过投资于数据基础设施,改善研究卫生数据的获取卫生和社会保障部目前的数据战略“数据拯救生命”有七项关键原则:增进信任;利用数据改善护理;告知国家决策者;与行业合作伙伴进行研究;赋予创新者权力,同时确保数据伙伴关系的公平条款;让公众在如何使用数据方面有更大的发言权;改善公众获取他们自己数据的途径这意味着卫生数据被决策者视为有利于社会的集体资源。 虽然隐私和匿名是核心,但个人数据所有权的概念似乎并不是优先考虑的。从政府高层到数据生成方,都渴望将健康数据用于共同的社会利益。然而,考虑到先前国家政策的隐私问题,积极寻求和解决糖尿病患者的意见至关重要。23 .总而言之,健康数据类似于核废料:如果能在管理良好、高度安全的设施中处理,它就很有价值,但如果处理不当,或者更糟的是任其泄漏到环境中,它就很危险没有宣布任何利益冲突。参考资料可在实用糖尿病在线:https://wchh.onlinelibrary.wiley.com。
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引用次数: 0
Digital enabled learning for people with diabetes post COVID‐19 pandemic COVID - 19大流行后糖尿病患者的数字化学习
Q3 Medicine Pub Date : 2023-09-01 DOI: 10.1002/pdi.2477
Joan RS McDowell, Salma Mehar, Raj S Chandok, Wendy A Watson
Abstract The COVID‐19 pandemic was the catalyst for a rapid increase in digital learning for people with diabetes. This paper aims to discuss the research on digital learning and the impact and synergy of COVID‐19 on health inequalities, and present some digital educational resources. Copyright © 2023 John Wiley & Sons.
COVID - 19大流行是糖尿病患者数字学习快速增长的催化剂。本文旨在讨论数字学习研究以及COVID - 19对健康不平等的影响和协同作用,并介绍一些数字教育资源。版权所有©2023 John Wiley &儿子。
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引用次数: 0
Health literacy, self‐management and glycaemic control in persons living with type 2 diabetes mellitus: a cross‐sectional study 2型糖尿病患者的健康素养、自我管理和血糖控制:一项横断面研究
IF 0.6 Q3 Medicine Pub Date : 2023-07-01 DOI: 10.1002/pdi.2467
Tiffany Lori Nugent, A. Galea, R. Sammut
Aims. The aim of this study was to explore the relationship between health literacy and diabetes self‐management and control among adults living with type 2 diabetes.
目标本研究旨在探讨成人2型糖尿病患者的健康素养与糖尿病自我管理和控制之间的关系。
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引用次数: 0
Predicting gestational diabetes mellitus by first trimester HbA1c: a retrospective study in women with moderate to severe obesity 通过妊娠早期HbA1c预测妊娠糖尿病:一项对中度至重度肥胖妇女的回顾性研究
IF 0.6 Q3 Medicine Pub Date : 2023-07-01 DOI: 10.1002/pdi.2466
J. Balani, S. Hyer, Antoinette Johnson, H. Shehata
This study aimed to investigate the utility of first trimester HbA1c in predicting gestational diabetes mellitus (GDM) in obese women with Grade II–III obesity. HbA1c was measured during the first trimester in 160 obese women. A 75g oral glucose tolerance test (OGTT) was performed between 24–28 weeks gestation and GDM diagnosed by WHO criteria.
本研究旨在探讨妊娠早期HbA1c在预测II-III级肥胖女性妊娠糖尿病(GDM)中的应用。在160名肥胖妇女的妊娠早期测量了HbA1c。在妊娠24-28周和WHO标准诊断的GDM之间进行75g口服葡萄糖耐量试验(OGTT)。
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引用次数: 0
Action4Diabetes: a non‐profit organisation bridging the type 1 diabetes gap in Southeast Asia Action4Diabetes:一个在东南亚弥合1型糖尿病鸿沟的非营利性组织
IF 0.6 Q3 Medicine Pub Date : 2023-07-01 DOI: 10.1002/pdi.2463
Sze May Ng
Global incidence and challenges of type 1 diabetes Type 1 diabetes (T1D) is a chronic disease that affects millions of people around the world. The International Diabetes Federation (IDF) reports that the global incidence of T1D is estimated to be around 15 cases per 100,000 population per year.1 There has been a global increase in the incidence of T1D over the past few decades, particularly in children under the age of five. The reasons for this increase in incidence are not well understood, but it is thought to be due to a combination of genetic and environmental factors. In the UK, around 400,000 people are affected by T1D and life expectancy is reduced in people with T1D.2 Diabetes remains a leading cause of blindness in people of working age, the leading cause of renal failure and second most common cause of lower limb amputation. While the condition can be managed with proper treatment and care, those living in low-middle income countries (LMICs) often lack access to the necessary resources, resulting in poor health outcomes for many living with T1D.1 In LMICs, T1D is often diagnosed late due to limited access to health care services and diagnostic tools. This delay in diagnosis can result in high mortality rates from diabetic ketoacidosis (DKA). Once diagnosed, managing T1D in LMICs can be a challenge. The cost of insulin and other medications can be prohibitively expensive, and many people do not have access to blood glucose monitoring devices, blood glucose strips or other essential diabetes supplies. As a result, many people with T1D in these countries must rely on inadequate treatment options putting their health at risk of lifelong complications such as nerve damage, blindness, and kidney failure.3
1型糖尿病(T1D)是一种影响全球数百万人的慢性疾病。国际糖尿病联合会(IDF)报告称,全球T1D发病率估计为每年每10万人中约有15例1在过去的几十年里,T1D的发病率在全球范围内呈上升趋势,尤其是在5岁以下的儿童中。发病率增加的原因尚不清楚,但人们认为这是遗传和环境因素共同作用的结果。在英国,大约有40万人受到T1D的影响,T1D患者的预期寿命缩短糖尿病仍然是导致工作年龄人群失明的主要原因,是肾衰竭的主要原因,也是导致下肢截肢的第二大常见原因。虽然这种疾病可以通过适当的治疗和护理得到控制,但生活在中低收入国家的患者往往无法获得必要的资源,导致许多t1d患者的健康状况不佳在中低收入国家,由于获得保健服务和诊断工具的机会有限,T1D往往诊断较晚。这种诊断延误可导致糖尿病酮症酸中毒(DKA)的高死亡率。一旦确诊,中低收入人群的T1D治疗可能是一项挑战。胰岛素和其他药物的成本可能高得令人望而却步,而且许多人无法获得血糖监测设备、血糖试纸或其他必要的糖尿病用品。因此,这些国家的许多T1D患者必须依赖不充分的治疗方案,使他们的健康面临终身并发症的风险,如神经损伤、失明和肾衰竭
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引用次数: 0
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Practical Diabetes
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