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Parents of children with atopic diseases - experiences with care and the interaction with healthcare professionals over time. 特应性疾病患儿的父母--长期护理经验以及与医护人员的互动。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-03 DOI: 10.1080/02813432.2024.2357794
Gitte Færk, Elisabeth Søndergaard, Lone Skov, Jacob Pontoppidan Thyssen, Kirsten Skamstrup Hansen, Susanne Reventlow

Objective: To explore how the parents of children with atopic dermatitis and allergic diseases such as food allergy, allergic rhinoconjunctivitis, and asthma experience interactions with the Danish healthcare system over time.

Design and methods: A qualitative design with individual in-depth interviews. The analysis was inspired by Systematic Text Condensation.

Subjects: Eleven parents of children with atopic dermatitis and allergic diseases who received treatment at hospitals in the Capital Region of Denmark. The families had experiences of cross-sectoral patient care.

Results: Despite having the same diseases, the children's care pathways were very different. Mapping demonstrated the intricacy of care pathways for this group of children. We identified three aspects that impacted interaction with healthcare: responsibility, tasks, and roles. The families experienced care when the distribution of tasks and responsibilities associated with treatment and system navigation were consistent with both their expectations and their actual experiences. At the same time, families frequently experienced limited collaboration between healthcare professionals resulting in perceived fragmented care and an extended role for parents as care coordinators. Families felt cared for when healthcare professionals knew both their biomedical and biographical circumstances, and adjusted the level of support and care in accordance with the families' particular needs, expectations, and evolving competences.

Conclusion: We suggest that a possible pathway to improve care may be through a partnership approach as part of family-centered care, with general practitioners having a key role in helping to articulate the individual needs and expectations of each family.

目的探讨特应性皮炎和过敏性疾病(如食物过敏、过敏性鼻结膜炎和哮喘)患儿的父母如何与丹麦医疗系统进行长期互动:采用定性设计,进行个别深入访谈。受试者:11 位患有特应性皮肤炎的儿童家长:十一名特应性皮炎和过敏性疾病患儿的父母,他们曾在丹麦首都地区的医院接受治疗。这些家庭都经历过跨部门病人护理:结果:尽管患儿所患疾病相同,但他们的治疗路径却大相径庭。绘制地图显示了这组儿童护理路径的复杂性。我们确定了影响与医疗保健互动的三个方面:责任、任务和角色。当与治疗和系统导航相关的任务和责任分配与其期望和实际经历相一致时,家庭就会体验到护理。与此同时,家庭经常会遇到医疗保健专业人员之间合作有限的情况,导致他们认为护理工作支离破碎,家长作为护理协调者的角色被扩大。当医疗保健专业人员了解他们的生物医学和个人经历情况,并根据家庭的特殊需求、期望和不断发展的能力调整支持和护理水平时,家庭就会感受到关怀:我们认为,作为以家庭为中心的护理的一部分,改善护理的一个可行途径可能是通过合作方式,而全科医生在帮助阐明每个家庭的个人需求和期望方面发挥着关键作用。
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引用次数: 0
Improving cardiovascular control in a hypertensive population in primary care. Results from a staff training intervention. 改善基层医疗机构高血压患者的心血管控制。员工培训干预的结果。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-03-08 DOI: 10.1080/02813432.2024.2326470
Rebecka Quester, Staffan Björck, Karin Manhem, Jonatan Nåtman, Susanne Andersson, Per Hjerpe

Objective: A pilot study to evaluate a staff training intervention implementing a nurse-led hypertension care model.

Design and setting: Clinical and laboratory data from all primary care centres (PCCs) in the Swedish region Västra Götaland (VGR), retrieved from regional registers. Intervention started 2018 in 11 PCCs. A total of 190 PCCs served as controls. Change from baseline was assessed 2 years after start of intervention.

Intervention: Training of selected personnel, primarily in drug choice, team-based care, measurement techniques, and use of standardized medical treatment protocols.

Patients: Hypertensive patients without diabetes or ischemic heart disease were included. The intervention and control groups contained approximately 10,000 and 145,000 individuals, respectively.

Main outcome measures: Blood pressure (BP) <140/90 mmHg, LDL-cholesterol (LDL-C) <3.0 mmol/L, BP ending on -0 mmHg (digit preference, an indirect sign of manual measuring technique), choice of antihypertensive drugs, cholesterol lowering therapy and attendance patterns were measured.

Results: In the intervention group, the percentage of patients reaching the BP target did not change significantly, 56%-61% (control 50%-52%), non-significant. However, the percentage of patients with LDL-C < 3.0 mmol/L increased from 34%-40% (control 36%-36%), p = .043, and digit preference decreased, 39%-27% (control 41%-35%), p = 0.000. The number of antihypertensive drugs was constant, 1.63 - 1.64 (control 1.62 - 1.62), non-significant, but drug choice changed in line with recommendations.

Conclusion: Although this primary care intervention based on staff training failed to improve BP control, it resulted in improved cardiovascular control by improved cholesterol lowering treatment.

目的一项试点研究,旨在评估以护士为主导的高血压护理模式的员工培训干预措施:从地区登记册中检索瑞典韦斯特拉哥达兰地区(VGR)所有初级医疗中心(PCC)的临床和实验室数据。2018年开始在11个初级保健中心进行干预。共有 190 个初级保健中心作为对照。干预开始 2 年后评估与基线相比的变化:对选定人员进行培训,主要内容包括药物选择、团队护理、测量技术和标准化医疗方案的使用:患者:包括无糖尿病或缺血性心脏病的高血压患者。干预组和对照组分别约有 10,000 人和 145,000 人:主要结果指标:血压在干预组中,血压达标患者的比例变化不大,为 56%-61%(对照组为 50%-52%),无显著性变化。然而,低密度脂蛋白胆固醇(LDL-C)p = 0.043 和数字偏好的患者比例有所下降,为 39%-27%(对照组为 41%-35%),p = 0.000。降压药物的数量保持不变,为 1.63 - 1.64(对照组为 1.62 - 1.62),无显著性差异,但药物选择的变化符合建议:结论:虽然这项基于人员培训的初级保健干预未能改善血压控制,但通过改善降胆固醇治疗,改善了心血管控制。
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引用次数: 0
The durability of previous examinations for cancer: Danish nationwide cohort study. 既往癌症检查的持久性:丹麦全国性队列研究。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-01-22 DOI: 10.1080/02813432.2024.2305942
Jesper Lykkegaard, Jonas Kanstrup Olsen, Sonja Wehberg, Dorte Ejg Jarbøl

Objective: Patients previously examined for cancer with a negative result may present in general practice with ongoing or new symptoms or signs suggestive of cancer. This paper explores the potential existence of a relatively safe period for cancer occurrence after receiving negative examination results for specific types of cancer, including lung (CT thorax), upper gastrointestinal (gastroscopy), colorectal (colonoscopy), bladder (cystoscopy), and breast (clinical mammography).

Design: Register-based time-to-event analyses.

Setting: Denmark.

Subjects: All 3.3 million citizens aged 30-85 years who on January first, 2017, had not previously been diagnosed with the specific type of cancer were categorized based on the time since their most recent examination.

Main outcome measures: Using 1-year follow-up, we calculated the age- and sex-adjusted hazard ratios of being diagnosed with the related cancer, with non-examined individuals as reference. Negative examination results were defined as the absence of a cancer diagnosis within 6 months following the examination.

Results: Previous negative examination results were common, also among those diagnosed with cancer during follow-up. For 10 years after a negative colonoscopy the risk of diagnosing a colorectal cancer was nearly halved. However, already 1 year after a clinical mammography and 2 years after a CT thorax the risk of diagnosing the related cancers was significantly higher among those with a previous negative result compared to non-examined individuals.

Conclusion: This study did not identify a post-examination period in which the cancer risk, compared to non-examined individuals, was sufficiently low to confidently rule out any of the investigated cancers.

目的:曾接受过癌症检查但结果为阴性的患者可能会在全科诊疗中出现持续或新的癌症症状或体征。本文探讨了特定类型癌症(包括肺癌(胸部 CT)、上消化道癌(胃镜)、结直肠癌(结肠镜)、膀胱癌(膀胱镜)和乳腺癌(临床乳房 X 线照相术))的检查结果呈阴性后,可能存在一段相对安全的癌症发生期:环境:丹麦:背景:丹麦:所有 330 万年龄在 30-85 岁之间、在 2017 年 1 月 1 日之前未被诊断出患有特定类型癌症的公民,根据他们最近一次检查后的时间进行分类:通过 1 年的随访,我们计算出了经年龄和性别调整后的被确诊为相关癌症的危险比,并以未接受过检查的人为参照。阴性检查结果的定义是检查后 6 个月内未确诊癌症:在随访期间确诊为癌症的患者中,之前的阴性检查结果也很常见。结肠镜检查阴性后 10 年内,诊断出结直肠癌的风险几乎降低了一半。然而,在临床乳房 X 射线照相检查 1 年后和胸部 CT 检查 2 年后,与未接受检查的人相比,之前检查结果为阴性的人诊断出相关癌症的风险明显更高:本研究没有发现在检查后的一段时间内,与未接受检查的人相比,癌症风险低到可以有把握地排除任何已调查癌症的可能性。
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引用次数: 0
Adjudications and tinkering with care for socially vulnerable patients with type 2 diabetes in general practice. 全科医生对社会弱势 2 型糖尿病患者的裁定和护理调整。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-03-04 DOI: 10.1080/02813432.2024.2317825
Ann Dorrit Guassora, Nina Tvistholm, Frida Greek Kofod, Sofie A Rogvi, Gitte Wind, Ulla Christensen

Objective: To analyse the mechanisms at play in the adjudications made by professionals and socially vulnerable patients with type 2 diabetes about their eligibility for care.

Design, setting and subjects: The study included 14 patients and 10 health professionals in seven general practice surgeries in deprived areas in Greater Copenhagen. The study data consist of 17 semi-structured interviews with patients and 22 with health professionals immediately after observation of 23 consultations. Our analytical approach was inspired by Systematic Text Condensation and the concept of 'candidacy' for access to health care.

Results: Adjudications of patients not being candidates for services were common, but we also found that both patients and health professionals worked to align the services to the needs of the patients. This could include using services differently than was intended by the providers or by changing routines to make it easier for patients to use the services. We discuss these processes as 'tinkering'. This usually implies that the best individual solution for the patient is aimed for, and in this study, the best solution sometimes meant not focusing on diabetes.

Conclusion: The study adds to existing knowledge about access to services for socially vulnerable patients by demonstrating that both patients and professionals in general practice engage in tinkering processes to make services work.

目的分析专业人员和社会弱势群体2型糖尿病患者对其护理资格的判断机制:研究对象包括大哥本哈根地区贫困地区 7 家全科诊所的 14 名患者和 10 名医疗专业人员。研究数据包括对患者进行的 17 次半结构化访谈和对医务人员进行的 22 次半结构化访谈。我们的分析方法受到了系统文本浓缩和 "候选资格 "概念的启发:结果:判定患者不适合接受服务的情况很常见,但我们也发现,患者和医护人员都在努力使服务符合患者的需求。这可能包括以不同于服务提供者预期的方式使用服务,或通过改变常规做法使患者更容易使用服务。我们将这些过程称为 "修补"。这通常意味着要为患者寻求最佳的个人解决方案,而在本研究中,最佳解决方案有时意味着不以糖尿病为重点:本研究通过证明全科医生中的患者和专业人员都参与了使服务发挥作用的修补过程,补充了有关社会弱势患者获得服务的现有知识。
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引用次数: 0
Outcomes of antibiotic treatment for respiratory infections in children an observational study in primary care. 儿童呼吸道感染抗生素治疗的结果:一项初级医疗观察研究。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-01-24 DOI: 10.1080/02813432.2024.2305929
Linn Karin Tjalvin Alvsåker, Maria Fehn Stensen, Anders Batman Mjelle, Steinar Hunskaar, Ingrid Keilegavlen Rebnord

Background: Antibiotic resistance is an increasing global threat, accelerated by both misuse and overuse of antibiotics. Most antibiotics to humans are prescribed in primary care, commonly for respiratory symptoms, and there is a need for research on the usage of and outcomes after antibiotic treatment to counteract antibiotic resistance.

Objective: To evaluate symptom duration, treatment length, and adverse events of antibiotic treatment in children.

Design and setting: Observational study at four out-of-hours services and one paediatric emergency clinic in Norwegian emergency primary care.

Subjects: 266 children aged 0 to 6 years with fever or respiratory symptoms.

Main outcome measures: Duration of symptoms and absenteeism from kindergarten/school, treatment length, and reported adverse events.

Results: There were no differences in duration of symptoms, fever or absenteeism when comparing the groups prescribed (30.8%) and not prescribed (69.2%) antibiotics. This lack of difference remained when analysing the subgroup with otitis media.In the group prescribed antibiotics, 84.5% of parents reported giving antibiotics for 5-7 days, and 50.7% reported no difficulties. Adverse events of antibiotics were reported in 42.3% of the cases, the vast majority being gastrointestinal disturbances.

Conclusion: Children with fever or respiratory symptoms experience similar duration of symptoms and absenteeism regardless of antibiotic treatment. A substantial number of parents reported adverse events when the child received antibiotics. Several parents experienced additional difficulties with the treatment, some ending treatment within day 4.

Trial registration number: NCT02496559; Results.

背景:抗生素耐药性是一个日益严重的全球性威胁,滥用和过度使用抗生素加速了耐药性的产生。人类使用的大多数抗生素都是在初级医疗机构处方的,通常用于治疗呼吸道症状,因此需要对抗生素的使用情况和治疗后的效果进行研究,以应对抗生素耐药性:评估儿童抗生素治疗的症状持续时间、治疗时间和不良反应:研究对象:266名患有发烧或呼吸道症状的0至6岁儿童:主要结果测量指标:症状持续时间和幼儿园/学校缺勤率、治疗时间和报告的不良事件:抗生素处方组(30.8%)和未处方组(69.2%)在症状持续时间、发烧或缺勤方面没有差异。在开具抗生素处方的群体中,84.5%的家长表示使用抗生素的时间为 5-7 天,50.7%的家长表示没有困难。42.3%的病例报告了抗生素不良反应,其中绝大多数为肠胃不适:结论:无论采用何种抗生素治疗,有发烧或呼吸道症状的儿童的症状持续时间和旷课情况都相似。相当多的家长表示,孩子在接受抗生素治疗时出现了不良反应。一些家长在治疗过程中遇到了额外的困难,有些家长在第 4 天就结束了治疗:试验注册号:NCT02496559;结果:NCT02496559。
{"title":"Outcomes of antibiotic treatment for respiratory infections in children an observational study in primary care.","authors":"Linn Karin Tjalvin Alvsåker, Maria Fehn Stensen, Anders Batman Mjelle, Steinar Hunskaar, Ingrid Keilegavlen Rebnord","doi":"10.1080/02813432.2024.2305929","DOIUrl":"10.1080/02813432.2024.2305929","url":null,"abstract":"<p><strong>Background: </strong>Antibiotic resistance is an increasing global threat, accelerated by both misuse and overuse of antibiotics. Most antibiotics to humans are prescribed in primary care, commonly for respiratory symptoms, and there is a need for research on the usage of and outcomes after antibiotic treatment to counteract antibiotic resistance.</p><p><strong>Objective: </strong>To evaluate symptom duration, treatment length, and adverse events of antibiotic treatment in children.</p><p><strong>Design and setting: </strong>Observational study at four out-of-hours services and one paediatric emergency clinic in Norwegian emergency primary care.</p><p><strong>Subjects: </strong>266 children aged 0 to 6 years with fever or respiratory symptoms.</p><p><strong>Main outcome measures: </strong>Duration of symptoms and absenteeism from kindergarten/school, treatment length, and reported adverse events.</p><p><strong>Results: </strong>There were no differences in duration of symptoms, fever or absenteeism when comparing the groups prescribed (30.8%) and not prescribed (69.2%) antibiotics. This lack of difference remained when analysing the subgroup with otitis media.In the group prescribed antibiotics, 84.5% of parents reported giving antibiotics for 5-7 days, and 50.7% reported no difficulties. Adverse events of antibiotics were reported in 42.3% of the cases, the vast majority being gastrointestinal disturbances.</p><p><strong>Conclusion: </strong>Children with fever or respiratory symptoms experience similar duration of symptoms and absenteeism regardless of antibiotic treatment. A substantial number of parents reported adverse events when the child received antibiotics. Several parents experienced additional difficulties with the treatment, some ending treatment within day 4.</p><p><strong>Trial registration number: </strong>NCT02496559; Results.</p>","PeriodicalId":21521,"journal":{"name":"Scandinavian Journal of Primary Health Care","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11003315/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139542643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Good cancer follow-up for socially disadvantaged patients in general practice? Perspectives from patients and general practitioners. 全科医生为社会处境不利的患者提供良好的癌症随访?患者和全科医生的观点。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-02-20 DOI: 10.1080/02813432.2024.2317843
Lotte Lykke Larsen, Camilla Hoffmann Merrild

One of the core principles of providing care in general practice is giving more to those who need it most. We investigate some of the complexities of this ambition in the context of cancer care for patients defined as socially disadvantaged by their general practitioner (GP). We do this by exploring how care is sought, how it is offered, and what expectations patients and GPs carry with them when receiving and providing cancer care in the Danish welfare state. We carried out semi-structured interviews with eight GPs and seven socially disadvantaged cancer patients living with different types and stages of cancer. The interviews focused on needs and challenges in cancer follow-up in general practice and were thematically coded. Drawing on theoretical concepts of morality and Nordic individualism, we point to how one of the main challenges in cancer care and follow-up is to figure out how the doctor-patient relationship should be established, practiced, and maintained. Both GPs and patients stressed the importance of the relationship, but how it should be practiced amidst social norms about being a patient, a citizen and how care-seeking should unfold seems less clear. In conclusion we argue that giving more to those who need it the most is a difficult and ill-defined task that is shaped by the cultural, social, and political expectations of both GPs and patients.

全科医疗的核心原则之一是为最需要的人提供更多服务。我们以全科医生(GP)定义为社会弱势群体的患者的癌症护理为背景,研究了这一目标的一些复杂性。为此,我们探讨了在丹麦福利国家中,患者和全科医生在接受和提供癌症治疗时,是如何寻求治疗、如何提供治疗以及对治疗的期望。我们对八名全科医生和七名患有不同类型和阶段癌症的社会弱势癌症患者进行了半结构化访谈。访谈的重点是全科医生在癌症后续治疗中的需求和挑战,并进行了主题编码。根据道德和北欧个人主义的理论概念,我们指出癌症护理和随访的主要挑战之一是如何建立、实践和维护医患关系。全科医生和患者都强调了医患关系的重要性,但如何在有关患者、公民和如何寻求护理的社会规范中实践医患关系似乎并不明确。总之,我们认为,为最需要的人提供更多服务是一项艰巨而不明确的任务,它受到全科医生和患者的文化、社会和政治期望的影响。
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引用次数: 0
Men's views on causes and consequences of erectile dysfunction or premature ejaculation in a primary care population: a qualitative study. 初级保健人群中男性对勃起功能障碍或早泄的原因和后果的看法:一项定性研究。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-03-31 DOI: 10.1080/02813432.2024.2327501
Elin Gahm, Magnus Peterson, Kjerstin Larsson

Objective: To explore men's views on the causes and consequences of two common sexual dysfunctions - erectile dysfunction and premature ejaculation - and how this affects physical and mental health as well as social life and intimate or close relations.

Design: A qualitative design with semi-structured interviews using open-ended questions was employed. Individual interviews were conducted, audio recorded and transcribed, and a qualitative content analysis of the text was performed.

Setting: Informants were recruited from an outpatient primary care clinic in Sweden that offers consultation about sexual health to primarily younger men, age 20 years and above.

Subjects: A total of 18 participants were included in the study, ten with erectile dysfunction and eight with premature ejaculation or both.

Main outcome measures: Using the content analysis, different views and strategies of erectile dysfunction and premature ejaculation were presented to illustrate a range of perceptions.

Results: The main theme emerged as 'Striving to understand and deal with the problem', which was divided into four categories: 'Reasons for seeking healthcare', 'Own perceptions/images about the problem and its cause', 'Experienced consequences on sex life' and 'Relationship qualities'.Participants experienced their problems in relation to a partner. Feelings of shame and fear of not being fit for desired sexual practices were common. They thought that underlying physical illness or previous sexual activities could have caused their problems. Decreased sexual desire and low self-esteem were seen as consequences, and participants wished for both medical treatment and counselling as support.

Conclusion: Sexual dysfunction impairs general health and relationships with partners. While counselling is the basic treatment, those who are offered pharmaceutical treatment need follow-up concerning effectiveness and potential concerns.

目的探讨男性对勃起功能障碍和早泄这两种常见性功能障碍的原因和后果的看法,以及这对身心健康、社交生活和亲密关系的影响:采用半结构式访谈的定性设计,使用开放式问题。进行了个人访谈、录音和转录,并对文本进行了定性内容分析:受访者来自瑞典一家初级保健门诊部,该门诊部主要为 20 岁及以上的年轻男性提供性健康咨询:主要结果指标:主要结果测量:采用内容分析法,展示了对勃起功能障碍和早泄的不同看法和策略,以说明各种看法:结果:主要的主题是 "努力理解和处理问题",分为四类:"寻求医疗保健的原因"、"自己对问题及其原因的看法/想象"、"对性生活造成的后果 "和 "关系质量"。羞耻感和担心自己不适合进行理想的性行为是普遍现象。他们认为,潜在的身体疾病或以前的性活动可能会导致他们的问题。性欲减退和自卑被认为是性功能障碍的后果,参与者希望得到医疗和心理咨询的支持:结论:性功能障碍会损害一般健康和与伴侣的关系。虽然心理咨询是基本的治疗方法,但接受药物治疗的人需要对治疗效果和潜在问题进行跟踪。
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引用次数: 0
Put on the sidelines of palliative care: a qualitative study of important barriers to GPs' participation in palliative care and guideline implementation in Norway. 被置于姑息关怀的边缘:关于挪威全科医生参与姑息关怀和指南实施的重要障碍的定性研究。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-01-30 DOI: 10.1080/02813432.2024.2306241
Anne Fasting, Irene Hetlevik, Bente Prytz Mjølstad

Background: Demographic changes, the evolvement of modern medicine and new treatments for severe diseases, increase the need for palliative care services. Palliative care includes all patients with life-limiting conditions, irrespective of diagnosis. In Norway, palliative care rests on a decentralised model where patient care can be delivered close to the patient's home, and the Norwegian guideline for palliative care describes a model of care resting on extensive collaboration. Previous research suggests that this guideline is not well implemented among general practitioners (GPs). In this study, we aim to investigate barriers to GPs' participation in palliative care and implementation of the guideline.

Methods: We interviewed 25 GPs in four focus groups guided by a semi-structured interview guide. The interviews were recorded and transcribed verbatim. Data were analysed qualitatively with reflexive thematic analysis.

Results: We identified four main themes as barriers to GPs' participation in palliative care and to implementation of the guideline: (1) different established local cultures and practices of palliative care, (2) discontinuity of the GP-patient relationship, (3) unclear clinical handover and information gaps and (4) a mismatch between the guideline and everyday general practice.

Conclusion: Significant structural and individual barriers to GPs' participation in palliative care exist, which hamper the implementation of the guideline. GPs should be involved as stakeholders when guidelines involving them are created. Introduction of new professionals in primary care needs to be actively managed to avoid inappropriate collaborative practices. Continuity of the GP-patient relationship must be maintained throughout severe illness and at end-of-life.

背景:人口结构的变化、现代医学的发展以及对严重疾病的新疗法,增加了对姑息关怀服务的需求。姑息关怀包括所有患有危及生命疾病的病人,无论其诊断结果如何。在挪威,姑息关怀采用的是一种分散式模式,可以就近为病人提供关怀,挪威姑息关怀指南描述了一种建立在广泛合作基础上的关怀模式。以往的研究表明,该指南在全科医生(GPs)中并未得到很好的执行。在这项研究中,我们旨在调查全科医生参与姑息关怀和实施该指南的障碍:在半结构化访谈指南的指导下,我们在四个焦点小组中对 25 名全科医生进行了访谈。我们对访谈进行了录音和逐字记录。采用反思性主题分析法对数据进行定性分析:我们确定了四大主题作为全科医生参与姑息关怀和实施该指南的障碍:(1)不同的地方文化和姑息关怀实践;(2)全科医生与患者关系的不连续性;(3)临床交接不明确和信息缺口;(4)指南与日常全科实践不匹配:结论:全科医生在参与姑息关怀方面存在严重的结构性和个人障碍,阻碍了该指南的实施。在制定涉及全科医生的指南时,他们应作为利益相关者参与其中。在初级医疗中引入新的专业人员需要积极管理,以避免不恰当的合作实践。在重病和临终关怀期间,必须保持全科医生与患者关系的连续性。
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引用次数: 0
Management and documentation of pneumonia - a comparison of patients consulting primary care and emergency care. 肺炎的管理和记录--初级保健和急诊患者的比较。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-03-09 DOI: 10.1080/02813432.2024.2326469
Louise Arntsberg, Sara Fernberg, Ann-Sofie Berger, Katarina Hedin, Anna Moberg

Objective: To compare management and documentation of vital signs, symptoms and infection severity in pneumonia patients seeking primary care and emergency care without referral.

Design: Medical record review of vital signs, examination findings and severity of pneumonia.

Setting: Primary and emergency care.

Subjects: Two hundred and forty patients diagnosed with pneumonia.

Main outcome measures: Vital signs, examination findings and severity of pneumonia. Assessments of pneumonia severity according to the reviewers, the traffic light score and CRB-65.

Results: Respiratory rate, blood pressure, heart rate and oxygen saturation were less often documented in primary care (p < .001). Chest X-ray was performed in 5% of primary care patients vs. 88% of emergency care patients (p < .01). Primary care patients had longer symptom duration, higher oxygen saturation and lower respiratory rate. In total, the reviewers assessed 63% of all pneumonias as mild and 9% as severe. The traffic light scoring model identified 11 patients (9%) in primary care and 53 patients (44%) in emergency care at high risk of severe infection.

Conclusions: Vital signs were documented less often in primary care than in emergency care. Patients in primary care appear to have a less severe pneumonia, indicating attendance to the correct care level. The traffic light scoring model identified more patients at risk of severe infection than CRB-65, where the parameters were documented to a limited extent.

摘要比较初级医疗机构和急诊机构对未经转诊的肺炎患者的生命体征、症状和感染严重程度的管理和记录:设计:对生命体征、检查结果和肺炎严重程度进行病历回顾:研究对象: 240 名确诊为肺炎的患者:主要结果测量指标:生命体征、检查结果和肺炎严重程度:生命体征、检查结果和肺炎严重程度。主要结果指标:生命体征、检查结果和肺炎严重程度,根据评审员、交通灯评分和 CRB-65 评估肺炎严重程度:结果:基层医疗机构较少记录呼吸频率、血压、心率和血氧饱和度(p p 结论:基层医疗机构较少记录生命体征:基层医疗机构记录生命体征的频率低于急诊医疗机构。基层医疗机构患者的肺炎程度似乎较轻,这表明患者得到了正确的护理。与CRB-65相比,交通灯评分模型能识别出更多有严重感染风险的患者,而CRB-65对参数的记录有限。
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引用次数: 0
Dealing with fibromyalgia in the family context: a qualitative description study. 在家庭背景下处理纤维肌痛:一项定性描述研究。
IF 2.1 3区 医学 Q2 Medicine Pub Date : 2024-06-01 Epub Date: 2024-03-06 DOI: 10.1080/02813432.2024.2322103
Luz de Myotanh Vázquez Canales, Inmaculada Pereiró Berenguer, Eduardo Aguilar García-Iturrospe, Charo Rodríguez

Headings purpose: Fibromyalgia (FM) is a chronic, nondegenerative disease with important limitations in patients. Its average global prevalence is 1.78%, and women are more affected than men (3:1). Due to the lack of objective diagnostic tools, it is a complex medical condition that is frequently unseen by patients' relatives and doctors, which might nonetheless have a noticeable impact on the patient's entourage.

Material and Methods: This qualitative descriptive study aimed to elicit family members' views on how FM affects their lives. It was conducted in two community health centers (one rural and one urban) from the Sagunto Health Department (Valencia Community, Spain). We included seven focus groups with 41 family members. We analyzed the data gathered with an inductive thematic semantic analysis approach using NVivo 12 software.

Results: We identified four major themes: (1) fibromyalgia as a nosological entity or an invention that is always burdensome; (2) children and spouses as caregivers (or not); (3) adverse effects of fibromyalgia on the couple's sexual life; and (4) harmful consequences of FM on the family economy. The findings showed a negative impact of the disease within the family context. Family members face complex and changing roles and difficulties when living with women with fibromyalgia.

Conclusions: Relatives' better understanding of the disease, greater acceptance of new family roles, and improvement of patients' work conditions are all interventions that may help reduce the negative impact of FM in the family context.

标题目的:纤维肌痛(FM)是一种慢性、非退行性疾病,对患者的影响很大。其全球平均发病率为 1.78%,女性患者多于男性(3:1)。由于缺乏客观的诊断工具,这是一种复杂的病症,患者亲属和医生经常看不到它,但它可能会对患者的随行人员产生明显的影响:这项定性描述性研究旨在了解家庭成员对 FM 如何影响其生活的看法。研究在萨贡托卫生局(西班牙巴伦西亚社区)的两个社区医疗中心(一个在农村,一个在城市)进行。其中包括 7 个焦点小组,共有 41 名家庭成员参加。我们使用 NVivo 12 软件对收集到的数据进行了归纳式主题语义分析:我们确定了四大主题:(1) 纤维肌痛是一种病理实体,还是一种总是造成负担的发明;(2) 作为照顾者(或不作为照顾者)的子女和配偶;(3) 纤维肌痛对夫妻性生活的不利影响;(4) 调频对家庭经济的有害影响。研究结果表明,纤维肌痛对家庭产生了负面影响。家庭成员在与纤维肌痛女性患者共同生活时面临着复杂多变的角色和困难:结论:亲属更好地了解疾病、更多地接受新的家庭角色以及改善患者的工作条件,这些干预措施可能有助于减少纤维肌痛对家庭的负面影响。
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Scandinavian Journal of Primary Health Care
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