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Ethnic inequalities in age-related patterns of multiple long-term conditions in England: Analysis of primary care and nationally representative survey data. 英格兰多种长期疾病年龄相关模式中的种族不平等:初级保健和全国代表性调查数据分析。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-01 Epub Date: 2023-10-25 DOI: 10.1111/1467-9566.13724
Brenda Hayanga, Mai Stafford, Catherine L Saunders, Laia Bécares

Little is known about the patterning of multiple long-term conditions (MLTCs) by age, ethnicity and across conceptualisations of MLTCs (e.g. MLTCs with/without mental health conditions [MHCs]). We examined ethnic inequalities in age-related patterns of MLTCs, and combinations of physical and MHCs using the English GP Patient Survey and Clinical Practice Research Datalink. We described the association between MLTCs and age using multilevel regression models adjusting for sex and area-level deprivation with patients nested within GP practices. Similar analyses were repeated for MLTCs that include MHCs. We observed ethnic inequalities from middle-age onwards such as older Pakistani, Indian, Black Caribbean and Other ethnic people had increased risk of MLTCs compared to white British people, even after adjusting for area-level deprivation. Compared to white British people, Gypsy and Irish Travellers had higher levels of MLTCs across the age groups, and Chinese people had lower levels. Pakistani and Bangladeshi people aged 50-74 years were more likely than white people to report MLTCs that included MHCs. We find clear evidence of ethnic inequalities in MLTCs. The lower prevalence of MLTCs that include MHCs among some minoritised ethnic groups may be an underestimation due to underdiagnosis and/or inadequate primary care and requires further scrutiny.

关于按年龄、种族和MLTC概念划分的多种长期疾病(MLTC)的模式(例如,有/没有心理健康状况的MLTC[MHCs]),我们知之甚少。我们使用英国全科医生患者调查和临床实践研究数据链接,研究了MLTC年龄相关模式以及身体和MHC组合中的种族不平等。我们使用多水平回归模型描述了MLTC与年龄之间的关系,该模型对嵌套在全科医生实践中的患者的性别和区域剥夺进行了调整。对包括MHC的MLTC重复了类似的分析。我们观察到,从中年开始的种族不平等,如年长的巴基斯坦人、印度人、加勒比黑人和其他种族的人,与英国白人相比,即使在调整了地区层面的贫困后,也会增加MLTC的风险。与英国白人相比,吉普赛人和爱尔兰游民在各个年龄段的MLTC水平较高,而中国人的MLTCs水平较低。50-74岁的巴基斯坦和孟加拉国人比白人更有可能报告包括MHC在内的MLTC。我们在MLTC中发现了种族不平等的明确证据。在一些少数民族中,包括MHC在内的MLTC的患病率较低,这可能是由于诊断不足和/或初级保健不足而被低估的,需要进一步审查。
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引用次数: 0
Epistemic injustice in experiences of young people with parents with mental health challenges. 父母有心理健康问题的年轻人经历中的认知不公正。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-01 Epub Date: 2023-11-22 DOI: 10.1111/1467-9566.13730
Scott Yates, Brenda Gladstone, Kim Foster, Anneli Silvén Hagström, Andrea Reupert, Lotti O'Dea, Rose Cuff, Violette McGaw, Rochelle Hine

Amongst the impacts of growing up with a parent with mental health challenges is the experience of stigma-by-association, in which children and young people experience impacts of stigmatisation due to their parent's devalued identity. This article seeks to expand our understanding of this issue through an abductive analysis of qualitative data collected through a codesign process with young people. Results indicate that young people's experiences of stigmatisation can be effectively understood as experiences of epistemic injustice. Participants expressed that their experiences comprised 'more than' stigma, and their responses suggest the centrality to their experiences of being diminished and dismissed in respect of their capacity to provide accurate accounts of their experiences of marginalisation and distress. Importantly, this diminishment stems not only from their status as children, and as children of parents with mental health challenges but operates through a range of stigmatised identities and devalued statuses, including their own mental health status, sexual minoritisation, disability and social class. Forms of epistemic injustice thus play out across the social and institutional settings they engage with. The psychological and social impacts of this injustice are explored, and the implications for our understanding of stigma around family mental health discussed.

与患有精神健康问题的父母一起成长的影响之一是联想耻辱的经历,其中儿童和年轻人由于父母的身份被贬低而遭受耻辱的影响。本文试图通过与年轻人共同设计过程中收集的定性数据的溯因分析来扩大我们对这一问题的理解。结果表明,年轻人的污名化经历可以有效地理解为认知不公正的经历。参与者表示,他们的经历“不仅仅”是耻辱,他们的回答表明,他们被贬低和被解雇的经历的中心是他们提供边缘化和痛苦经历的准确描述的能力。重要的是,这种贬低不仅源于他们作为儿童的地位,以及作为有精神健康挑战的父母的子女,而且通过一系列被污名化的身份和被贬低的地位,包括他们自己的精神健康状况、性少数化、残疾和社会阶层来实现。因此,认知不公正的形式在他们参与的社会和制度环境中发挥作用。探讨了这种不公正的心理和社会影响,并讨论了对我们理解家庭心理健康方面的耻辱的影响。
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引用次数: 0
Multimorbidity as chronic crisis: 'Living on' with multiple long-term health conditions in a socially disadvantaged London borough. 多重疾病作为慢性危机:伦敦一个社会弱势自治市镇的多重长期健康状况“继续生活”。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-01 Epub Date: 2023-11-13 DOI: 10.1111/1467-9566.13729
Esca van Blarikom, Nina Fudge, Deborah Swinglehurst

Contemporary health services are primarily designed around single diseases. People with multimorbidity (multiple long-term health conditions) often become burdened by accumulated treatments. Through multimodal fieldwork in a socially disadvantaged London borough, we explore how people living with multimorbidity navigate conditions of 'chronic crisis', encompassing ill-health, overmedicalisation, polypharmacy and social exclusion. Participants in our study frequently experience 'existential stuckness', exacerbated by processes of social exclusion. We argue that diagnoses and treatments should account for people's unique aetiologies, and prioritise the notion of 'flourishing' over 'cure' as the absence of disease is not always achievable. To foster this emphasis on flourishing, we advocate for a dialogical turn in diagnostic processes that better support patients' existential needs in the context of long-term illness.

当代保健服务主要是围绕单一疾病设计的。患有多种疾病(多种长期健康状况)的人往往因累积治疗而负担沉重。通过在伦敦一个社会弱势区进行的多模式田野调查,我们探索了患有多种疾病的人们如何应对“慢性危机”,包括不健康、过度医疗、多种药物治疗和社会排斥。在我们的研究中,参与者经常经历“存在的停滞”,而社会排斥的过程又加剧了这种停滞。我们认为诊断和治疗应该考虑到人们独特的病因,并且优先考虑“繁荣”而不是“治愈”的概念,因为没有疾病并不总是可以实现的。为了促进对蓬勃发展的重视,我们提倡在诊断过程中进行对话,以更好地支持患者在长期疾病背景下的生存需求。
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引用次数: 0
Value-based health care in translation: From global popularity to primary care for Dutch elderly patients. 基于价值的医疗保健翻译:从全球流行到荷兰老年患者的初级保健。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-01 Epub Date: 2023-11-15 DOI: 10.1111/1467-9566.13728
Gijs Steinmann, Hester van de Bovenkamp, Antoinette de Bont, Diana Delnoij

In this article we examine the fragmented interpretation and implementation of a remarkably popular concept, value-based health care (VBHC). By building on a case study of a project team working on the development of value-based primary care services for elderly patients, we shed new light on the way in which VBHC transitions from theory to practice. The concept of 'translation' is used to theoretically frame our analysis. Between June 2021 and May 2022, we gathered data through participant observation (50 h), semi-structured interviews (n = 20) and document analysis (n = 16). Our findings show how VBHC inspired new ways of working, and that, in line with previous studies, parts of the original concept have been neglected, while others have been modified. We identified three reasons for VBHC's locally varied applications: VBHC transforms to enable a growing support base, the originally radical idea is applied conservatively and the concept tends to get mixed up with other policy objectives. In all, VBHC appears to be successful in catalysing cross-disciplinary interaction aimed at improving value for patients.

在本文中,我们研究了一个非常流行的概念,基于价值的医疗保健(VBHC)的碎片化解释和实施。通过对一个致力于为老年患者开发基于价值的初级保健服务的项目团队的案例研究,我们对VBHC从理论到实践的转变方式有了新的认识。“翻译”的概念是我们分析的理论框架。在2021年6月至2022年5月期间,我们通过参与者观察(50小时)、半结构化访谈(n = 20)和文献分析(n = 16)收集数据。我们的研究结果表明,VBHC如何激发了新的工作方式,而且,与之前的研究一致,部分原始概念被忽略了,而其他概念则被修改了。我们确定了VBHC在当地不同应用的三个原因:VBHC转变为支持不断增长的支持基础,最初激进的想法被保守地应用,这个概念往往与其他政策目标混淆。总之,VBHC似乎成功地催化了跨学科的互动,旨在提高患者的价值。
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引用次数: 0
Doing and undoing transgender health care: The ordering of 'gender dysphoria' in clinical practice. 做和取消跨性别医疗保健:临床实践中“性别焦虑症”的排序。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-01 Epub Date: 2023-10-28 DOI: 10.1111/1467-9566.13727
Wolter de Boer, Bert C Molewijk, Marijke A Bremmer, Baudewijntje P C Kreukels, Eileen M Moyer, Karl Gerritse

A formal Gender Dysphoria classification- as outlined in the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders- is a prerequisite for the reimbursement of both gender-affirming medical care and transgender mental health care in the Netherlands. Gender Dysphoria and its conceptual precursors have always been moving targets: moving due to research, policy, care practices and activism both within and outside of medicine. This raises the question of what Gender Dysphoria is exactly. To elucidate this question, we turn to the people who use the concept in clinical practice to come to a diagnosis and treatment indication: mental health professionals working in gender-affirming medical care and transgender mental health care. Using a material semiotics approach, we reflect upon how Gender Dysphoria is done in clinical practice. Based on an analysis of seventeen practice-based interviews with clinicians as well as an examination of clinical guidelines and texts, we describe four modes in which Gender Dysphoria is ordered. These modes of ordering illustrate that Gender Dysphoria is not one, but multiple. We illustrate how in the mode of isolating, Gender Dysphoria is something which is carefully isolated from mental disorders, while in the modes doing the future and narrating, Gender Dysphoria is done as a continuous and predictable object of care. Such orderings of Gender Dysphoria potentially conflict with a fourth mode of ordering: the doing of diversity in transgender health care. The study's findings provide empirical insights into how transgender health care is currently done in The Netherlands and provide a foundation on which ethical debates on what good transgender health care should entail.

根据《精神障碍诊断和统计手册》第五版的规定,正式的性别障碍分类是荷兰报销性别确认医疗和跨性别心理健康护理的先决条件。性别障碍及其概念前兆一直是移动的目标:由于医学内外的研究、政策、护理实践和行动主义而移动。这就提出了一个问题,即究竟什么是性别斜视。为了阐明这个问题,我们求助于在临床实践中使用这一概念来获得诊断和治疗指征的人:从事性别确认医疗护理和跨性别心理健康护理的心理健康专业人员。使用材料符号学方法,我们反思了临床实践中如何进行性别斜视。基于对临床医生17次基于实践的访谈的分析,以及对临床指南和文本的检查,我们描述了四种导致性别斜视的模式。这些排序模式说明性别斜视不是一种,而是多种。我们展示了在隔离模式下,性别斜视是如何与精神障碍仔细隔离的,而在未来和叙事模式下,两性斜视是作为一个持续和可预测的护理对象进行的。这种性别障碍的排序可能与第四种排序模式相冲突:跨性别医疗保健的多样性。这项研究的发现为荷兰目前如何进行跨性别医疗提供了经验见解,并为关于什么是好的跨性别医疗的伦理辩论提供了基础。
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引用次数: 0
Multimorbidity: Inequalities, lived experience and the need for service redesign. 多病症:不平等、生活经验和重新设计服务的必要性。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-01 Epub Date: 2024-05-13 DOI: 10.1111/1467-9566.13788
Karen Lowton
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引用次数: 0
How a 'good parent' decides on childhood vaccination. Demonstrating independence and deliberation during Dutch healthcare visits. 一个“好父母”如何决定儿童接种疫苗。在荷兰医疗保健访问期间表现出独立和深思熟虑。
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-01 Epub Date: 2023-11-14 DOI: 10.1111/1467-9566.13725
Robert Prettner, Hedwig Te Molder, Bogdana Humă

Childhood vaccination consultations are considered an important phase in parents' decision-making process. To date, only a few empirical studies conducted in the United States have investigated real-life consultations. To address this gap, we recorded Dutch vaccination conversations between healthcare providers and parents during routine health consultations for their newborns. The data were analysed using Conversation Analysis and Discursive Psychology. We found that the topic of vaccination was often initiated with 'Have you already thought about vaccination?' (HYATAV), and that this formulation was consequential for parental identity work. Exploring the interactional trajectories engendered by this initiation format we show that: (1) interlocutors treat the question as consisting of two types of queries, (2) conversational trajectories differ according to which of the queries is attended to and that (3) parents work up a 'good parent' identity in response to HYATAV, by demonstrating that they think about their child's vaccination beforehand and make their decisions independently. Our findings shed new light on the interactional unfolding of parental vaccination decisions.

儿童疫苗接种咨询被认为是父母决策过程中的一个重要阶段。迄今为止,只有少数在美国进行的实证研究调查了现实生活中的咨询。为了解决这一差距,我们记录了卫生保健提供者和父母在新生儿常规健康咨询期间的荷兰疫苗接种对话。使用会话分析和话语心理学对数据进行分析。我们发现,关于疫苗接种的话题通常是以“你已经考虑过接种疫苗了吗?”(HYATAV),而这一构想对父母身份认同的工作产生了重要影响。探索由这种启动格式产生的互动轨迹,我们表明:(1)对话者将问题视为由两种类型的问题组成,(2)对话轨迹根据所关注的问题而不同,(3)父母通过表明他们事先考虑孩子的疫苗接种并独立做出决定,在回应HYATAV时建立了“好父母”的身份。我们的研究结果揭示了父母接种疫苗决定的相互作用。
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引用次数: 0
Making health public: A manifesto for a new social contract. By P.Littlejohns, D. J.Hunter, A.Weale, J.Johnson, and T.Khatun, Bristol: Bristol University Press. 2024. pp. 120. £40 (hbk); £14.99 (ebook). ISBN: 9781447371267 让健康公共化:新社会契约宣言》。作者:P.Littlejohns、D.J.Hunter、A.Weale、J.Johnson 和 T.Khatun,布里斯托尔:布里斯托尔大学出版社。2024. pp.40英镑(精装本);14.99英镑(电子书)。ISBN: 9781447371267
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-26 DOI: 10.1111/1467-9566.13782
Hayley Redman
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引用次数: 0
Genres of listening: An ethnography of psychoanalysis in Buenos Aires. By XochitlMarsilli‐Vargas, Durham and London: Duke University Press. 2022. pp. 248. $25.95 US. ISBN: 9781478015918 倾听的流派:布宜诺斯艾利斯精神分析民族志》。作者:XochitlMarsilli-Vargas,杜伦和伦敦:杜克大学出版社。2022年。248页。25.95 美元。ISBN: 9781478015918
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-19 DOI: 10.1111/1467-9566.13780
Marcos Azevedo
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引用次数: 0
Hospital corridors as lived spaces: The reconfiguration of social boundaries during the early stages of the Covid pandemic 作为生活空间的医院走廊:科威德大流行初期社会界限的重构
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-15 DOI: 10.1111/1467-9566.13777
Alice Faux‐Nightingale, Mihaela Kelemen, Simon Lilley, Kerry Robinson, Caroline Stewart
This article explores the meanings and uses of a hospital corridor through 98 diary entries produced by the staff of an English specialist hospital during the early stages of the COVID‐19 pandemic. Drawing on Lefebvre's (1991, The production of space. Blackwell) threefold theorisation of space, corridors are seen as conceived, perceived and lived spaces, produced through and enabling the reconfiguration and reinterpretation of social interactions. The diaries depict two distinct versions of the central hospital corridor: its ‘normal’ operation prior to the pandemic when it was perceived as a social and symbolic space for collective sensemaking and the ‘COVID‐19 empty corridor’ described as a haunting place that divided hospital staff along ostensibly new social and moral boundaries that impacted negatively on lived work experiences and staff relationships. The mobilisation of the central hospital corridor in the daily social construction of meaning and experience during a period of organisational and societal crisis suggests that corridors should not be only seen as a material backdrop for work relationships but as social entities that come into being and are maintained and reproduced through the (lack of) performance of social relations.
本文通过英国一家专科医院员工在 COVID-19 大流行初期所写的 98 篇日记,探讨了医院走廊的含义和用途。借鉴列斐伏尔(1991 年,《空间的生产》,布莱克威尔)的空间三重理论,走廊被视为构想、感知和生活空间,通过社会互动的重新配置和重新诠释而产生。日记描绘了两个不同版本的中心医院走廊:大流行之前的 "正常 "运行,当时它被视为集体感知的社会和象征性空间;"COVID-19 空走廊 "被描述为一个令人不安的地方,它将医院员工按照表面上新的社会和道德界限分割开来,对生活工作经验和员工关系产生了负面影响。在组织和社会危机时期,中心医院走廊在意义和经验的日常社会建构中的动员表明,走廊不应仅被视为工作关系的物质背景,而应被视为通过(缺乏)社会关系的表现而产生、维持和再生产的社会实体。
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引用次数: 0
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Sociology of health & illness
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