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Stigma and the Inverse Care Law: Experiences of 'Care' for People Living in Marginalised Conditions. 污名和反护理法:生活在边缘化条件下的人的“护理”经验。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-01 DOI: 10.1111/1467-9566.70000
Michelle Addison, Steph Scott, Clare Bambra, Monique Lhussier

This paper explores the connection between stigma and the Inverse Care Law (ICL) by focussing on the idea that people who have the greatest needs often have the least support from healthcare services. Twenty-four semi-structured interviews were undertaken with people who used class A & B illicit drugs, in the northeast of England. Many of the people in this study who used illicit drugs were not able to access quality healthcare in a timely way to meet their needs because of structural and relational stigma. We discuss four themes: (i) pressure on health services and long waiting lists, (ii) sensitivity to compassion fatigue from staff and impacts on engagement, (iii) complex systems that are difficult to navigate and (iv) stigma and drug use. These themes illuminate the harms of stigma and support Tudor Hart's ICL. Stigma is a key contributor to the inverse experience of good quality healthcare and requires greater attention from policymakers and practitioners. The structural and relational aspects of stigma embedded in healthcare are central to the ICL and reproduce inequities in access to and experience of good quality healthcare, which in turn impacts health inequalities.

本文探讨了耻辱和反护理法(ICL)之间的联系,重点关注的想法是,谁有最大的需求的人往往从医疗保健服务的支持最少。在英格兰东北部,对使用A类和B类非法药物的人进行了24次半结构化访谈。在这项研究中,许多使用非法药物的人由于结构和关系上的耻辱而无法及时获得高质量的医疗保健以满足他们的需求。我们讨论了四个主题:(i)对卫生服务的压力和漫长的等待名单,(ii)对工作人员同情疲劳的敏感性和对参与的影响,(iii)难以导航的复杂系统和(iv)耻辱和吸毒。这些主题阐明了耻辱的危害,并支持了都铎·哈特的ICL。耻辱感是对高质量医疗保健产生负面影响的一个关键因素,需要政策制定者和从业人员给予更多关注。医疗保健中潜藏的耻辱的结构和关系方面是ICL的核心,并再现了在获得和体验优质医疗保健方面的不平等,这反过来又影响了健康不平等。
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引用次数: 0
Treatment 'cultures', sexually transmitted infections and the rise of antimicrobial resistance. 治疗 "文化"、性传播感染和抗菌药耐药性的增加。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2025-01-01 Epub Date: 2024-09-02 DOI: 10.1111/1467-9566.13832
Shiva Chandra, Alex Broom, Damien Ridge, Michelle Peterie, Lise Lafferty, Jennifer Broom, Katherine Kenny, Carla Treloar, Tanya Applegate

In this article, we examine the current management of sexually transmitted infections (STIs), in the context of rising antimicrobial resistance (AMR), through the lens of 'treatment cultures'. Prevailing treatment cultures-including the prominence of syndromic care for STIs-foster certain possibilities and foreclose others, with important consequences for countering AMR. Drawing on qualitative interviews with STI professionals, experts and industry representatives, we unpack these stakeholders' accounts of STI treatment cultures, drawing out the importance of socio-historical (i.e. taboo and stigma), political-economic (i.e. perceptions of significance, profit-making and prioritisation) and subjective (i.e. patient contexts and reflexivity) dimensions therein. In developing this critical account of how treatment cultures are formed, reproduced and indeed resisted, we reveal how such discourses and practices render the reining in of AMR and shifting antibiotic use difficult, and yet, how productive engagement remains key to any proposed solutions. As such, the article contributes to our understanding of AMR as a highly diversified field, through our exploration of the bio-social dimensions of resistance as they relate to the case of STIs.

在本文中,我们通过 "治疗文化 "的视角,探讨了在抗菌药耐药性(AMR)不断上升的背景下,目前对性传播感染(STI)的管理。流行的治疗文化--包括对性传播疾病的综合症治疗--促进了某些可能性,同时也排除了其他可能性,这对抗击 AMR 产生了重要影响。通过对性传播感染专业人士、专家和行业代表的定性访谈,我们解读了这些利益相关者对性传播感染治疗文化的描述,指出了其中社会历史(即禁忌和污名化)、政治经济(即对重要性、盈利和优先性的认识)和主观(即患者背景和反思性)层面的重要性。在对治疗文化如何形成、复制和抵制进行批判性阐述的过程中,我们揭示了这些论述和实践如何使控制 AMR 和改变抗生素使用方式变得困难,以及如何使富有成效的参与成为任何拟议解决方案的关键。因此,这篇文章通过探讨抗药性的生物-社会层面与性传播感染的关系,有助于我们了解 AMR 是一个高度多样化的领域。
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引用次数: 0
Medicalising agents? Teachers' uncertainty and emerging expertise in the age of inclusion policy and medicalisation in Israel. 医疗代理?以色列全纳政策和医疗化时代教师的不确定性和新兴专业知识。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-09-27 DOI: 10.1111/1467-9566.13849
Galia Plotkin-Amrami, Yariv Feniger, Yam Umansky

Attention deficit hyperactivity disorder (ADHD) is a paradigmatic case for childhood medicalisation. Critical studies of medicalisation have pointed to the increasing clinical role of schools, with teachers tending to rely on medical treatment of students with ADHD and are perceived as a primary source of diagnostic information. Based on 27 semi-structured interviews with teachers working in two Israeli elementary and middle schools, this research explored how teachers mediate the medicalisation process and understand their responsibilities in the classroom amidst the emphasis on inclusion in contemporary Israel. We found that teachers offer a wide range of explanations of the disorder and its prevalence, and their attitudes to medication are ambivalent. We argue that teachers develop pedagogical (lay) expertise in the field of ADHD in parallel with and in opposition to medical solutions. Such expertise is based on practical experience and close interaction with students. A top-down ideological imperative of inclusion, combined with uncertainty about ADHD, has generated a bottom-up set of preformative practices of 'containment' of troubled students. Teachers' emerging knowledge and practices raise questions about the relationship between medicalisation, policy, expertise and the pragmatic value of medical categories when applied outside the medical establishment.

注意缺陷多动障碍(ADHD)是儿童医疗化的典型案例。对医疗化的批判性研究指出,学校的临床角色日益重要,教师倾向于依赖医疗手段治疗多动症学生,并被视为诊断信息的主要来源。本研究通过对在以色列两所中小学工作的教师进行 27 次半结构式访谈,探讨了在当代以色列强调全纳教育的背景下,教师如何调解医疗化过程,以及如何理解自己在课堂上的责任。我们发现,教师对失调症及其普遍性做出了多种解释,他们对药物治疗的态度也很矛盾。我们认为,教师在多动症领域发展的教学(非专业)专业知识与医疗解决方案并行不悖。这种专业知识是建立在实践经验和与学生密切互动的基础上的。自上而下的全纳意识形态,加上对多动症的不确定性,产生了一套自下而上的 "遏制 "问题学生的预制实践。教师的新知识和新实践提出了医疗化、政策、专业知识之间的关系,以及在医疗机构之外应用医疗类别的实用价值等问题。
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引用次数: 0
COVID companions: Exploring pets as social support. COVID 伴侣:探索作为社会支持的宠物
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-07-28 DOI: 10.1111/1467-9566.13820
Lynn Sudbury-Riley

This paper investigates the social support provided by domestic animals to humans during the COVID-19 pandemic. The study comprises interviews with 39 British and American pet owners during March 2021, the point at which the UK had recently emerged from the third national lockdown and US states were under various restrictions. A thematic network approach to data analysis revealed four global themes, illustrating how pets provided buffers to the stress of the pandemic, facilitated ontological security by maintaining a sense of routine and purpose, offered myriad types of emotional support and enhanced and enabled wider social support. Taken together, these results reinforce and extend knowledge pertaining to the importance of companion animals for social support.

本文调查了在 COVID-19 大流行期间家养动物为人类提供的社会支持。研究包括在 2021 年 3 月期间对 39 位英国和美国宠物主人进行的访谈,当时英国刚刚摆脱第三次全国封锁,而美国各州正在实施各种限制措施。数据分析的主题网络方法揭示了四个全球性主题,说明了宠物如何为大流行病带来的压力提供缓冲,如何通过保持常规感和目的感来促进本体安全,如何提供多种类型的情感支持,以及如何增强和实现更广泛的社会支持。总之,这些结果加强并扩展了与伴侣动物对社会支持的重要性有关的知识。
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引用次数: 0
'Becoming restrained': Conceptualising restrictive practices in the care of people living with dementia in acute hospital settings. 成为限制":对急症医院中痴呆症患者护理中的限制性做法进行概念化。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-07-04 DOI: 10.1111/1467-9566.13812
Shadreck Mwale, Andy Northcott, Imogen Lambert, Katie Featherstone

The use of restrictive practices within health and social care has attracted policy and practice attention, predominantly focusing on children and young people with mental health conditions, learning disabilities and autism. However, despite growing appreciation of the need to improve care quality for people living with dementia (PLWD), the potentially routine use of restrictive practices in their care has received little attention. PLWD are at significant risk of experiencing restrictive practices during unscheduled acute hospital admissions. In everyday routine hospital care of PLWD, concerns about subtle and less visible forms of restrictive practices and their impacts remain. This article draws on Deleuze's concepts of 'assemblage' and 'event' to conceptualise restrictive practices as institutional, interconnection social and political attitudes and organisational cultural practices. We argue that this approach illuminates the diverse ways restrictive practices are used, legitimatised and perpetuated in the care of PLWD. We examine restrictive practices in acute care contexts, understanding their use requires examining the wider socio-political, organisational cultures and professional practice contexts in which clinical practices occurs. Whereas 'events' and 'assemblages' have predominantly been used to examine embodied entanglements in diverse health contexts, examining restrictive practices as a structural assemblage extends the application of this theoretical framework.

在医疗和社会护理中使用限制性措施已经引起了政策和实践的关注,主要集中在患有精神疾病、学习障碍和自闭症的儿童和青少年身上。然而,尽管人们越来越认识到需要提高对痴呆症患者(PLWD)的护理质量,但在对他们的护理过程中可能经常使用的限制性措施却很少受到关注。在非计划的急诊入院期间,痴呆症患者遭受限制性措施的风险很大。在对 PLWD 的日常例行医院护理中,人们仍然关注微妙的和不太明显的限制性措施及其影响。本文借鉴德勒兹的 "组合 "和 "事件 "概念,将限制性实践概念化为制度性的、相互联系的社会和政治态度以及组织文化实践。我们认为,这种方法揭示了在对 PLWD 的护理过程中,限制性实践被使用、合法化和延续的各种方式。我们研究了急症护理中的限制性措施,要了解这些措施的使用情况,就需要研究临床实践所处的更广泛的社会政治、组织文化和专业实践环境。虽然 "事件 "和 "组合 "主要用于研究不同健康背景下的体现性纠葛,但将限制性实践作为结构性组合进行研究则扩展了这一理论框架的应用范围。
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引用次数: 0
Talking about borderline personality disorder, shaping care: The multiple doings of narratives. 谈论边缘型人格障碍,塑造关怀:叙事的多重作用。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-06-05 DOI: 10.1111/1467-9566.13804
Emma-Louise Seal, Renata Kokanović, Jacinthe Flore, Tamara Borovica, Jillian H Broadbear, Louise McCutcheon, Sharon Lawn

This article focuses on the narratives that circulate about borderline personality disorder (BPD) in health-care settings in Australia and the effects such narratives can have on how people practice and seek out care. People with a BPD diagnosis frequently access health-care services, often encountering stigma and discrimination. Drawing on narrative theory, we critically unpack the circulation and capacities of BPD narratives and the ways they can often contribute to poor and troubling experiences. This article is based on qualitative interviews with people living with a BPD diagnosis, as well as health practitioners who work with people with a BPD diagnosis. Our findings identified insidious and powerful BPD narratives that circulate in health-care settings, particularly in short-term, acute, or non-specialist contexts, such as emergency departments and in-patient units. These narratives influenced the ways that participants both practiced and sought out care. To improve health service quality for people with a BPD diagnosis, or those experiencing mental distress, it is important to challenge the sociocultural-political norms and relations that can influence approaches to care and practice. Disrupting and reframing negative BPD narratives and raising awareness about the impact of stories that are told about BPD have the potential to generate social change.

本文重点介绍澳大利亚医疗机构中流传的关于边缘型人格障碍(BPD)的说法,以及这些说法可能对人们如何实践和寻求医疗服务产生的影响。被诊断出患有边缘型人格障碍的人在获得医疗保健服务时,经常会遭遇羞辱和歧视。借鉴叙事理论,我们批判性地解读了BPD叙事的循环和能力,以及它们通常会导致不良和令人不安的经历的方式。本文基于对被诊断为 BPD 的患者以及为被诊断为 BPD 的患者提供服务的医疗从业人员的定性访谈。我们的研究结果发现,在医疗机构中,尤其是在短期、急性或非专业的环境中,如急诊科和住院部,存在着一些阴险而有力的 BPD 叙事。这些叙事影响了参与者实践和寻求护理的方式。为了提高为那些被诊断为 BPD 的人或那些经历过精神痛苦的人提供的医疗服务质量,重要的是要挑战那些可能会影响护理和实践方法的社会文化-政治规范和关系。打破和重构关于 BPD 的负面叙述,提高人们对 BPD 故事影响的认识,都有可能带来社会变革。
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引用次数: 0
Parental illness work across the attention deficit hyperactivity disorder diagnostic journey. 注意力缺陷多动障碍诊断过程中的父母疾病工作。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-07-18 DOI: 10.1111/1467-9566.13817
Tom Nicholson, Richard Lee

The process of referral, assessment, and diagnosis of attention deficit hyperactivity disorder (ADHD) within the UK is often protracted. Given that parents are frequently the instigators of the diagnostic process, understanding the experience of parents is important. Drawing on findings from a longitudinal study, this article explores how the parental experience of the ADHD diagnostic journey includes three significant and distinct forms of 'illness work'. Twenty-one semi-structured serial interviews were conducted over a 2-year period with seven parents of children on the ADHD diagnostic journey in North East England. We present three significant forms of parental illness work: (1) The 'diagnostic quest', parental work recognising and fighting for their children's needs and selfhood, seeking diagnosis and engaging with systems, (2) 'self-biographical illness work', the personal parental biographical response to the diagnostic journey and (3) 'child biographical illness work and recontextualizing the child', parental biographical adjustment and recontextualisation of their children. We advance Rasmussen et al.'s (2021) model by demonstrating its usefulness in understanding how parents with a personal ADHD diagnosis experience biographical disruption or cohesion in response to their children's diagnosis. That a child's diagnosis leads parents with ADHD to experience a self-biographical cohesive or disruptive response is a unique and significant finding.

在英国,注意力缺陷多动障碍(ADHD)的转诊、评估和诊断过程往往旷日持久。鉴于家长往往是诊断过程的推动者,了解家长的经历就显得尤为重要。本文利用一项纵向研究的结果,探讨了家长在多动症诊断过程中的经历如何包括三种重要而独特的 "疾病工作 "形式。在为期两年的时间里,我们对英格兰东北部七名患有多动症儿童的家长进行了 21 次半结构式系列访谈。我们介绍了父母疾病工作的三种重要形式:(1) "诊断探索",父母认识到并争取孩子的需求和自我身份、寻求诊断并与系统接触的工作;(2) "自我传记疾病工作",父母对诊断过程的个人传记反应;(3) "儿童传记疾病工作和儿童重新语境化",父母对其子女的传记调整和重新语境化。我们推进了 Rasmussen 等人(2021 年)的模型,证明该模型有助于理解被诊断出患有多动症的父母在应对子女的诊断过程中是如何经历传记中断或凝聚的。孩子的诊断会导致患有多动症的父母体验到自我传记的凝聚性或破坏性反应,这是一个独特而重要的发现。
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引用次数: 0
'When all you have is a hammer, everything has to be a nail': Managing diagnostic uncertainty in urinary tract infection. 当你只有一把锤子时,一切都会变成钉子":处理尿路感染诊断的不确定性。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-06-03 DOI: 10.1111/1467-9566.13803
Eleanor Kashouris

Diagnosis of urinary tract infections (UTI) is a routine part of medical work and yet is well recognised to be an area of high clinical uncertainty. Meanwhile, diagnosis of UTI is becoming increasingly important to policymakers globally due to concerns about antibiotic over-prescription. Drawing on Mol's concept of ontological multiplicity in clinical work, I explore how diagnostic uncertainty is co-ordinated into certainty by a UK national diagnostic algorithm for UTI. The diagnosis of UTI is produced or withheld as a post hoc rationalisation of a prior decision whether to prescribe antibiotics or not. Work in the sociology of diagnosis has already noted that diagnostic steps are often re-ordered by health-care professionals taking diverse actions in the best interest of their patients. This article contributes an argument that ordering diagnostic work around antimicrobial stewardship agendas has the effect of narrowing possible actions. Exploring the consequences and effects of doing diagnosis in this way for different groups, I argue that a greater creativity about what could be done to care for painful bladders could be found in a return to more clinical ways of working.

尿路感染(UTI)的诊断是医疗工作的常规部分,但临床上却公认其不确定性很高。同时,由于人们对抗生素用药过量的担忧,UTI 诊断对全球政策制定者来说也变得越来越重要。借鉴莫尔在临床工作中提出的本体论多重性概念,我探讨了英国国家尿毒症诊断算法如何将诊断的不确定性协调为确定性。对尿毒症的诊断是作为事先决定是否处方抗生素的事后合理化而产生或保留的。诊断社会学方面的研究已经注意到,医护人员为了病人的最佳利益采取各种行动时,往往会重新安排诊断步骤。本文提出的论点是,围绕抗菌药物管理议程安排诊断工作会缩小可能采取的行动范围。在探讨以这种方式进行诊断对不同群体的后果和影响时,我认为,在回归更临床的工作方式时,可以发现在治疗膀胱疼痛方面可以采取的措施具有更大的创造性。
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引用次数: 0
'You're just a Guinea pig': Exploring the barriers and impacts of living with long COVID-19: A view from the undiagnosed. 你只是一只几内亚猪":探索长期患有 COVID-19 的障碍和影响:来自未确诊患者的观点。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-06-08 DOI: 10.1111/1467-9566.13795
Jordan Mullard, Ghazala Mir, Chantal Herbert, Sophie Evans

The COVID-19 pandemic had a disproportionate impact on ethnically minoritised and other marginalised communities, yet little is known about the impacts of long COVID-19 (LC) on this group. Living with LC takes its toll both physically, emotionally and financially and even more so when a diagnosis is hard to come by. By using qualitative interviews centring the view of undiagnosed and marginalised communities already classed as 'underserved' in the medical literature, we show the range of barriers and impacts faced by these groups in the UK, and the strategies of resilience they use. Whether trapped on a 'diagnostic odyssey' at the level of primary care, struggling to maintain employment and businesses, or managing family commitments, we argue many minoritised communities are caught in a liminal space of misrecognition, invalidation and ambiguity. We show how these impacts are generated by tensions and challenges in the process and categorisation of diagnosis, and how this effects the daily lives of many individuals already on the receiving end of health inequity. We also offer some examples and suggestions for best practices.

COVID-19 大流行对少数民族和其他边缘化群体的影响尤为严重,但人们对长期 COVID-19 (LC)对这一群体的影响却知之甚少。长期慢性阻塞性肺病对患者的身体、情感和经济都造成了极大的伤害,而在难以获得诊断的情况下更是如此。通过定性访谈,我们以医学文献中已被归类为 "服务不足 "的未确诊和边缘化群体为中心,展示了英国这些群体所面临的一系列障碍和影响,以及他们所采用的复原策略。无论是被困在初级医疗层面的 "诊断奥德赛 "中,还是为维持就业和生意而挣扎,抑或是处理家庭事务,我们都认为许多少数群体陷入了误认、无效和模糊的边缘空间。我们展示了这些影响是如何由诊断过程和分类中的紧张关系和挑战产生的,以及这如何影响了许多已经处于健康不公平接受端的个人的日常生活。我们还提供了一些最佳实践的实例和建议。
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引用次数: 0
A third indeterminacy of labour power: Worker health investment and the indeterminacy of labour health. 劳动能力的第三种不确定性:工人健康投资与劳动健康的不确定性。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-11-01 Epub Date: 2024-06-30 DOI: 10.1111/1467-9566.13807
Geraint Harvey, James Wallace

This article identifies the health of the worker as a third source of labour power indeterminacy to be added to the indeterminacy of labour effort and the indeterminacy of labour mobility. The paper clearly differentiates worker health from effort as a distinct source of labour power indeterminacy-something that cannot be guaranteed and that varies for an individual over time. It considers the relationship between worker health as a new source of indeterminacy and the two extant sources of labour power indeterminacy, focussing on the way in which health moderates the relationship between effort and output. The paper also considers the way in which worker health investment moderates the indeterminacy of labour effort and labour mobility, independently of its impact on the health of the worker. The paper documents the potential value of worker health investment to the organisation and also considers the boundary conditions for investment in worker health.

本文认为,除了劳动努力的不确定性和劳动力流动的不确定性之外,工人的健康也是劳动能力不确定性的第三个来源。本文明确地将工人健康与劳动努力区分开来,将其作为劳动能力不确定性的一个独特来源--这种来源无法保证,而且个人的劳动能力会随着时间的推移而变化。论文探讨了作为新的不确定性来源的工人健康与劳动能力不确定性的两个现有来源之间的关系,重点关注健康如何调节努力与产出之间的关系。本文还考虑了工人健康投资如何调节劳动努力和劳动力流动的不确定性,而不考虑其对工人健康的影响。论文记录了工人健康投资对组织的潜在价值,还考虑了工人健康投资的边界条件。
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引用次数: 0
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Sociology of health & illness
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