First-person representations of illness have been studied as key to the cultural fabric disrupting dominant practices of ill health or disease regimes. However, the role that digital platforms play in shaping this fabric in contemporary societies has been mostly overlooked. We address this gap by investigating how mainstream social media, as mundane spaces modelled by corporate-driven techno-commercial structures, frame specific forms of visuality or ways to see ill health. We reflect on how these forms of visuality relate to existing disease regimes. The article presents an investigation of popular images of BReast CAncer (BRCA) hereditary cancer syndromes posted on Instagram, Twitter (now X) or Facebook over the course of 12 months. By combining cultural analytics, visual network analysis and interpretive techniques, we explore the emergence of platform-specific visual vernaculars and the visual genres of ill health emerging from these vernaculars. Our analysis suggests that, in the context of BRCA hereditary cancer syndromes, popular social media images primarily exacerbate existing racialised and gendered practices. Where alternative views emerge, in their being shaped by platforms' attention economies, they often operate in what we define as a 'liminal space' of imagination - one that hints at renewed, but not necessarily disruptive and certainly not radical ways to imagine ill health.
{"title":"Contemporary visualities of ill health: On the social (media) construction of disease regimes.","authors":"Stefania Vicari, Hannah Ditchfield, Yuning Chuang","doi":"10.1111/1467-9566.13846","DOIUrl":"https://doi.org/10.1111/1467-9566.13846","url":null,"abstract":"<p><p>First-person representations of illness have been studied as key to the cultural fabric disrupting dominant practices of ill health or disease regimes. However, the role that digital platforms play in shaping this fabric in contemporary societies has been mostly overlooked. We address this gap by investigating how mainstream social media, as mundane spaces modelled by corporate-driven techno-commercial structures, frame specific forms of visuality or ways to see ill health. We reflect on how these forms of visuality relate to existing disease regimes. The article presents an investigation of popular images of BReast CAncer (BRCA) hereditary cancer syndromes posted on Instagram, Twitter (now X) or Facebook over the course of 12 months. By combining cultural analytics, visual network analysis and interpretive techniques, we explore the emergence of platform-specific visual vernaculars and the visual genres of ill health emerging from these vernaculars. Our analysis suggests that, in the context of BRCA hereditary cancer syndromes, popular social media images primarily exacerbate existing racialised and gendered practices. Where alternative views emerge, in their being shaped by platforms' attention economies, they often operate in what we define as a 'liminal space' of imagination - one that hints at renewed, but not necessarily disruptive and certainly not radical ways to imagine ill health.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-09-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142294511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christina Weis, Georgia Spiliopoulos, Agnieszka Ignatowicz, Simon Conroy, Russell Mannion, Daniel Lasserson, Carolyn Tarrant
In this article we explore how people who experienced a stroke, transient ischaemic attack, or heart attack sought health care during the COVID-19 lockdown periods. Semi-structured interviews were conducted with 27 patients admitted to hospital between March 2020 and May 2021, and one carer who was recruited from cardiac and stroke rehabilitation services in two large acute NHS trusts in England. Drawing on concepts of candidacy, illness and moral work, we discuss how people's sense-making about their symptoms fundamentally shaped both their decisions about seeking help and the impact of COVID-19 on help seeking. Risk perception and interactional ritual chain theory allow further exploration of constructing symbols of national identity in times of crises, managing risk and levels of acceptable risk and critique of ambiguous national messaging over accessing health-care services for people with emergency health-care needs. Our findings have wider implications for supporting access into health care for those with life-threatening conditions under highly publicised strain on the health system, including winter pressure and staff strikes, as well as policymaking and public messaging.
{"title":"Help-seeking and access to care for stroke and heart attack during the COVID-19 pandemic: A qualitative study.","authors":"Christina Weis, Georgia Spiliopoulos, Agnieszka Ignatowicz, Simon Conroy, Russell Mannion, Daniel Lasserson, Carolyn Tarrant","doi":"10.1111/1467-9566.13848","DOIUrl":"https://doi.org/10.1111/1467-9566.13848","url":null,"abstract":"<p><p>In this article we explore how people who experienced a stroke, transient ischaemic attack, or heart attack sought health care during the COVID-19 lockdown periods. Semi-structured interviews were conducted with 27 patients admitted to hospital between March 2020 and May 2021, and one carer who was recruited from cardiac and stroke rehabilitation services in two large acute NHS trusts in England. Drawing on concepts of candidacy, illness and moral work, we discuss how people's sense-making about their symptoms fundamentally shaped both their decisions about seeking help and the impact of COVID-19 on help seeking. Risk perception and interactional ritual chain theory allow further exploration of constructing symbols of national identity in times of crises, managing risk and levels of acceptable risk and critique of ambiguous national messaging over accessing health-care services for people with emergency health-care needs. Our findings have wider implications for supporting access into health care for those with life-threatening conditions under highly publicised strain on the health system, including winter pressure and staff strikes, as well as policymaking and public messaging.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-09-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142294512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Understanding baby loss: The sociology of life, death, and post‐mortem. By K.Reed, J.Ellis, and E.Whitby, Manchester University Press. 2023. pp. 246. £80.00 (Hardcover). ISBN: 978‐1‐5261‐6318‐9","authors":"Jung Chen","doi":"10.1111/1467-9566.13841","DOIUrl":"https://doi.org/10.1111/1467-9566.13841","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"17 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142260844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Motherhood: Contemporary transitions and generational change. By T.Miller, Cambridge: Cambridge University Press. 2024. pp. 187. £22.99 (hbk). ISBN: 9781009413312","authors":"Sarah Spain","doi":"10.1111/1467-9566.13837","DOIUrl":"https://doi.org/10.1111/1467-9566.13837","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"29 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142260845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Entanglements of rare diseases in the Baltic Sea region. By RajtarMałgorzata, and Katarzyna E.Król (Eds.), London: Lexington Books. 2024. pp. 224. $100 (pbk); $45 (ebk). ISBN: 978‐1‐66694‐238‐5/239‐2","authors":"Anastasia Novkunskaya","doi":"10.1111/1467-9566.13838","DOIUrl":"https://doi.org/10.1111/1467-9566.13838","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"26 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142260846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
At a time when national identities are being reasserted in Western Europe alongside moral and intellectual visions of a cosmopolitan order more inclusive than nationalism, what does belonging mean for immigrants who are non‐Europeans, particularly for women from South Asia, Africa and the Middle East? Based on the lived experiences of 23 women of diverse backgrounds, who are first‐generation immigrants, regarding their experiences while accessing the healthcare system in Zurich, Switzerland, I illustrate through migrant experiences how Othering and belonging are experienced within the web of chaotic meanings and social space one navigates. By employing a phenomenological–sociological approach, I present how embodied migrant experiences can capture the experiences of being an 'Other', as well as how moral emotions such as shame and humiliation can influence one's moral self and its significance to everyday moral discourse. While much of the academic discourse around belonging focuses on a place and its related connectedness to one's racial, gender and ethnic identity, here, I analyse cosmopolitanism's possibilities through Othering/belonging experiences within the healthcare context, and beyond. I conclude this paper with the key contributions of the ethics of belonging to the normative discourse on migration health.
{"title":"Othering and ethics of belonging in migrants' embodied healthcare experiences","authors":"Supriya Subramani","doi":"10.1111/1467-9566.13829","DOIUrl":"https://doi.org/10.1111/1467-9566.13829","url":null,"abstract":"At a time when national identities are being reasserted in Western Europe alongside moral and intellectual visions of a cosmopolitan order more inclusive than nationalism, what does belonging mean for immigrants who are non‐Europeans, particularly for women from South Asia, Africa and the Middle East? Based on the lived experiences of 23 women of diverse backgrounds, who are first‐generation immigrants, regarding their experiences while accessing the healthcare system in Zurich, Switzerland, I illustrate through migrant experiences how Othering and belonging are experienced within the web of chaotic meanings and social space one navigates. By employing a phenomenological–sociological approach, I present how embodied migrant experiences can capture the experiences of being an 'Other', as well as how moral emotions such as shame and humiliation can influence one's moral self and its significance to everyday moral discourse. While much of the academic discourse around belonging focuses on a place and its related connectedness to one's racial, gender and ethnic identity, here, I analyse cosmopolitanism's possibilities through Othering/belonging experiences within the healthcare context, and beyond. I conclude this paper with the key contributions of the ethics of belonging to the normative discourse on migration health.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"92 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142184639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"National Health Services of Western Europe. Challenges, reforms and future perspectives. By G.Giarelli and M.Saks, Abingdon/New York: Routledge. 2024. pp. 340. £108.00 (hbk); £31.99 (ebk). ISBN: 9780367689599","authors":"Andy Eric Castillo Patton","doi":"10.1111/1467-9566.13836","DOIUrl":"https://doi.org/10.1111/1467-9566.13836","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"11 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142184637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Shiva Chandra, Alex Broom, Damien Ridge, Michelle Peterie, Lise Lafferty, Jennifer Broom, Katherine Kenny, Carla Treloar, Tanya Applegate
In this article, we examine the current management of sexually transmitted infections (STIs), in the context of rising antimicrobial resistance (AMR), through the lens of 'treatment cultures'. Prevailing treatment cultures-including the prominence of syndromic care for STIs-foster certain possibilities and foreclose others, with important consequences for countering AMR. Drawing on qualitative interviews with STI professionals, experts and industry representatives, we unpack these stakeholders' accounts of STI treatment cultures, drawing out the importance of socio-historical (i.e. taboo and stigma), political-economic (i.e. perceptions of significance, profit-making and prioritisation) and subjective (i.e. patient contexts and reflexivity) dimensions therein. In developing this critical account of how treatment cultures are formed, reproduced and indeed resisted, we reveal how such discourses and practices render the reining in of AMR and shifting antibiotic use difficult, and yet, how productive engagement remains key to any proposed solutions. As such, the article contributes to our understanding of AMR as a highly diversified field, through our exploration of the bio-social dimensions of resistance as they relate to the case of STIs.
在本文中,我们通过 "治疗文化 "的视角,探讨了在抗菌药耐药性(AMR)不断上升的背景下,目前对性传播感染(STI)的管理。流行的治疗文化--包括对性传播疾病的综合症治疗--促进了某些可能性,同时也排除了其他可能性,这对抗击 AMR 产生了重要影响。通过对性传播感染专业人士、专家和行业代表的定性访谈,我们解读了这些利益相关者对性传播感染治疗文化的描述,指出了其中社会历史(即禁忌和污名化)、政治经济(即对重要性、盈利和优先性的认识)和主观(即患者背景和反思性)层面的重要性。在对治疗文化如何形成、复制和抵制进行批判性阐述的过程中,我们揭示了这些论述和实践如何使控制 AMR 和改变抗生素使用方式变得困难,以及如何使富有成效的参与成为任何拟议解决方案的关键。因此,这篇文章通过探讨抗药性的生物-社会层面与性传播感染的关系,有助于我们了解 AMR 是一个高度多样化的领域。
{"title":"Treatment 'cultures', sexually transmitted infections and the rise of antimicrobial resistance.","authors":"Shiva Chandra, Alex Broom, Damien Ridge, Michelle Peterie, Lise Lafferty, Jennifer Broom, Katherine Kenny, Carla Treloar, Tanya Applegate","doi":"10.1111/1467-9566.13832","DOIUrl":"https://doi.org/10.1111/1467-9566.13832","url":null,"abstract":"<p><p>In this article, we examine the current management of sexually transmitted infections (STIs), in the context of rising antimicrobial resistance (AMR), through the lens of 'treatment cultures'. Prevailing treatment cultures-including the prominence of syndromic care for STIs-foster certain possibilities and foreclose others, with important consequences for countering AMR. Drawing on qualitative interviews with STI professionals, experts and industry representatives, we unpack these stakeholders' accounts of STI treatment cultures, drawing out the importance of socio-historical (i.e. taboo and stigma), political-economic (i.e. perceptions of significance, profit-making and prioritisation) and subjective (i.e. patient contexts and reflexivity) dimensions therein. In developing this critical account of how treatment cultures are formed, reproduced and indeed resisted, we reveal how such discourses and practices render the reining in of AMR and shifting antibiotic use difficult, and yet, how productive engagement remains key to any proposed solutions. As such, the article contributes to our understanding of AMR as a highly diversified field, through our exploration of the bio-social dimensions of resistance as they relate to the case of STIs.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142111622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01Epub Date: 2024-05-30DOI: 10.1111/1467-9566.13797
Kevin Dew, Kerry Chamberlain, Richard Egan, Alex Broom, Elizabeth Dennett, Chris Cunningham
Although a diagnosis of a life-limiting cancer is likely to evoke emotions, such as fear, panic and anxiety, for some people it can also provide an opportunity to live life differently. This article is based on research undertaken in Aotearoa New Zealand on the topic of exceptional cancer trajectories. Eighty-one participants who had been identified as living with a cancer diagnosis longer than clinically expected were interviewed, along with 25 people identified by some of the participants as supporters in their journey. For some participants the diagnosis provided the opportunity to rethink their lives, to undertake lifestyle and consumption changes, to be culturally adventurous, to take up new skills, to quit work and to change relationships with others. The concepts of biographical disruption and posttraumatic growth are considered in relation to these accounts, and it is argued that the event of a cancer diagnosis can give license for people to breach social norms.
{"title":"Disruption, discontinuity and a licence to live: Responding to cancer diagnoses.","authors":"Kevin Dew, Kerry Chamberlain, Richard Egan, Alex Broom, Elizabeth Dennett, Chris Cunningham","doi":"10.1111/1467-9566.13797","DOIUrl":"10.1111/1467-9566.13797","url":null,"abstract":"<p><p>Although a diagnosis of a life-limiting cancer is likely to evoke emotions, such as fear, panic and anxiety, for some people it can also provide an opportunity to live life differently. This article is based on research undertaken in Aotearoa New Zealand on the topic of exceptional cancer trajectories. Eighty-one participants who had been identified as living with a cancer diagnosis longer than clinically expected were interviewed, along with 25 people identified by some of the participants as supporters in their journey. For some participants the diagnosis provided the opportunity to rethink their lives, to undertake lifestyle and consumption changes, to be culturally adventurous, to take up new skills, to quit work and to change relationships with others. The concepts of biographical disruption and posttraumatic growth are considered in relation to these accounts, and it is argued that the event of a cancer diagnosis can give license for people to breach social norms.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1477-1492"},"PeriodicalIF":2.7,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141176308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-01Epub Date: 2024-09-02DOI: 10.1111/1467-9566.13835
Karen Lowton, Flis Henwood
{"title":"Understanding grief and care at end of life.","authors":"Karen Lowton, Flis Henwood","doi":"10.1111/1467-9566.13835","DOIUrl":"10.1111/1467-9566.13835","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"1303-1305"},"PeriodicalIF":4.6,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142111623","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}