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Contemporary visualities of ill health: On the social (media) construction of disease regimes. 健康不佳的当代视觉:疾病制度的社会(媒体)构建。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-20 DOI: 10.1111/1467-9566.13846
Stefania Vicari, Hannah Ditchfield, Yuning Chuang

First-person representations of illness have been studied as key to the cultural fabric disrupting dominant practices of ill health or disease regimes. However, the role that digital platforms play in shaping this fabric in contemporary societies has been mostly overlooked. We address this gap by investigating how mainstream social media, as mundane spaces modelled by corporate-driven techno-commercial structures, frame specific forms of visuality or ways to see ill health. We reflect on how these forms of visuality relate to existing disease regimes. The article presents an investigation of popular images of BReast CAncer (BRCA) hereditary cancer syndromes posted on Instagram, Twitter (now X) or Facebook over the course of 12 months. By combining cultural analytics, visual network analysis and interpretive techniques, we explore the emergence of platform-specific visual vernaculars and the visual genres of ill health emerging from these vernaculars. Our analysis suggests that, in the context of BRCA hereditary cancer syndromes, popular social media images primarily exacerbate existing racialised and gendered practices. Where alternative views emerge, in their being shaped by platforms' attention economies, they often operate in what we define as a 'liminal space' of imagination - one that hints at renewed, but not necessarily disruptive and certainly not radical ways to imagine ill health.

对疾病的第一人称表述一直被认为是破坏健康不良或疾病制度主流做法的文化结构的关键。然而,数字平台在当代社会中塑造这种结构的作用却大多被忽视了。为了填补这一空白,我们研究了主流社交媒体作为以企业驱动的技术商业结构为模型的世俗空间,是如何构建特定形式的视觉性或看待疾病的方式的。我们反思了这些视觉形式与现有疾病制度之间的关系。文章对 12 个月内发布在 Instagram、Twitter(现为 X)或 Facebook 上的有关 BReast CAncer(BRCA)遗传性癌症综合征的流行图片进行了调查。通过将文化分析、视觉网络分析和解释性技术相结合,我们探索了特定平台视觉白话的出现,以及从这些白话中产生的健康不良的视觉流派。我们的分析表明,就 BRCA 遗传性癌症综合征而言,流行的社交媒体图像主要加剧了现有的种族化和性别化做法。在出现替代性观点时,由于这些观点是由平台的注意力经济所塑造的,因此它们往往是在我们定义为 "边缘空间 "的想象中运作的--它暗示了新的,但不一定是破坏性的,当然也不是激进的想象健康问题的方式。
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引用次数: 0
Help-seeking and access to care for stroke and heart attack during the COVID-19 pandemic: A qualitative study. COVID-19 大流行期间中风和心脏病发作的求助和就医情况:定性研究。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-20 DOI: 10.1111/1467-9566.13848
Christina Weis, Georgia Spiliopoulos, Agnieszka Ignatowicz, Simon Conroy, Russell Mannion, Daniel Lasserson, Carolyn Tarrant

In this article we explore how people who experienced a stroke, transient ischaemic attack, or heart attack sought health care during the COVID-19 lockdown periods. Semi-structured interviews were conducted with 27 patients admitted to hospital between March 2020 and May 2021, and one carer who was recruited from cardiac and stroke rehabilitation services in two large acute NHS trusts in England. Drawing on concepts of candidacy, illness and moral work, we discuss how people's sense-making about their symptoms fundamentally shaped both their decisions about seeking help and the impact of COVID-19 on help seeking. Risk perception and interactional ritual chain theory allow further exploration of constructing symbols of national identity in times of crises, managing risk and levels of acceptable risk and critique of ambiguous national messaging over accessing health-care services for people with emergency health-care needs. Our findings have wider implications for supporting access into health care for those with life-threatening conditions under highly publicised strain on the health system, including winter pressure and staff strikes, as well as policymaking and public messaging.

本文探讨了在 COVID-19 封锁期间,中风、短暂性脑缺血发作或心脏病发作患者是如何寻求医疗服务的。我们对 2020 年 3 月至 2021 年 5 月期间入院的 27 名患者和一名护理者进行了半结构式访谈,护理者是从英格兰两家大型急症 NHS 信托基金会的心脏和中风康复服务机构招募的。借鉴候选资格、疾病和道德工作的概念,我们讨论了人们对自身症状的感知如何从根本上影响了他们的求助决定以及 COVID-19 对求助的影响。通过风险感知和互动仪式链理论,我们可以进一步探讨在危机时期如何构建国家身份的象征,如何管理风险和可接受的风险水平,以及如何批评在为有紧急医疗保健需求的人提供医疗保健服务方面含糊不清的国家信息。我们的研究结果对于在医疗系统压力(包括冬季压力和员工罢工)备受关注的情况下,支持有生命危险的人获得医疗服务,以及政策制定和公共信息传播都有更广泛的意义。
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引用次数: 0
Understanding baby loss: The sociology of life, death, and post‐mortem. By K.Reed, J.Ellis, and E.Whitby, Manchester University Press. 2023. pp. 246. £80.00 (Hardcover). ISBN: 978‐1‐5261‐6318‐9 了解失去婴儿:生死与死后社会学》。作者:K.Reed、J.Ellis 和 E.Whitby,曼彻斯特大学出版社。第 246 页。80.00英镑(精装)。ISBN: 978-1-5261-6318-9
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-19 DOI: 10.1111/1467-9566.13841
Jung Chen
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引用次数: 0
Motherhood: Contemporary transitions and generational change. By T.Miller, Cambridge: Cambridge University Press. 2024. pp. 187. £22.99 (hbk). ISBN: 9781009413312 母性:当代转型与世代变迁》。T.Miller 著,剑桥:2024. pp.2024. pp.ISBN: 9781009413312
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-18 DOI: 10.1111/1467-9566.13837
Sarah Spain
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引用次数: 0
Entanglements of rare diseases in the Baltic Sea region. By RajtarMałgorzata, and Katarzyna E.Król (Eds.), London: Lexington Books. 2024. pp. 224. $100 (pbk); $45 (ebk). ISBN: 978‐1‐66694‐238‐5/239‐2 波罗的海地区罕见疾病的纠葛》。RajtarMałgorzata 和 Katarzyna E.Król(编辑)著,伦敦:Lexington Books.2024 年。第 224 页。100 美元(平装本);45 美元(电子书)。ISBN: 978-1-66694-238-5/239-2
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-14 DOI: 10.1111/1467-9566.13838
Anastasia Novkunskaya
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引用次数: 0
Othering and ethics of belonging in migrants' embodied healthcare experiences 移民体现性医疗体验中的他者化和归属伦理
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-10 DOI: 10.1111/1467-9566.13829
Supriya Subramani
At a time when national identities are being reasserted in Western Europe alongside moral and intellectual visions of a cosmopolitan order more inclusive than nationalism, what does belonging mean for immigrants who are non‐Europeans, particularly for women from South Asia, Africa and the Middle East? Based on the lived experiences of 23 women of diverse backgrounds, who are first‐generation immigrants, regarding their experiences while accessing the healthcare system in Zurich, Switzerland, I illustrate through migrant experiences how Othering and belonging are experienced within the web of chaotic meanings and social space one navigates. By employing a phenomenological–sociological approach, I present how embodied migrant experiences can capture the experiences of being an 'Other', as well as how moral emotions such as shame and humiliation can influence one's moral self and its significance to everyday moral discourse. While much of the academic discourse around belonging focuses on a place and its related connectedness to one's racial, gender and ethnic identity, here, I analyse cosmopolitanism's possibilities through Othering/belonging experiences within the healthcare context, and beyond. I conclude this paper with the key contributions of the ethics of belonging to the normative discourse on migration health.
在西欧,国家身份认同与比民族主义更具包容性的世界大同秩序的道德和思想愿景同时得到重新确认,那么对于非欧洲移民,尤其是来自南亚、非洲和中东的妇女来说,归属感意味着什么?基于 23 位不同背景的第一代移民妇女在瑞士苏黎世就医时的亲身经历,我通过移民的经历来说明,在混乱的意义和社会空间网络中,"他者化 "和 "归属感 "是如何被体验的。通过采用现象学-社会学方法,我介绍了体现性移民体验如何捕捉到作为 "他者 "的体验,以及羞耻和屈辱等道德情感如何影响一个人的道德自我及其对日常道德话语的意义。围绕归属感的学术讨论大多集中在一个地方及其与一个人的种族、性别和民族身份的相关联系上,而在这里,我通过医疗保健背景下的他者/归属感体验来分析世界主义的可能性。最后,我总结了归属伦理对移民健康规范论述的主要贡献。
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引用次数: 0
National Health Services of Western Europe. Challenges, reforms and future perspectives. By G.Giarelli and M.Saks, Abingdon/New York: Routledge. 2024. pp. 340. £108.00 (hbk); £31.99 (ebk). ISBN: 9780367689599 西欧国家卫生服务。挑战、改革和未来展望。G.Giarelli 和 M.Saks 著,阿宾顿/纽约:Routledge.2024. pp.340.108.00 英镑(平装本);31.99 英镑(电子书)。ISBN: 9780367689599
IF 2.9 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-02 DOI: 10.1111/1467-9566.13836
Andy Eric Castillo Patton
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引用次数: 0
Treatment 'cultures', sexually transmitted infections and the rise of antimicrobial resistance. 治疗 "文化"、性传播感染和抗菌药耐药性的增加。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-02 DOI: 10.1111/1467-9566.13832
Shiva Chandra, Alex Broom, Damien Ridge, Michelle Peterie, Lise Lafferty, Jennifer Broom, Katherine Kenny, Carla Treloar, Tanya Applegate

In this article, we examine the current management of sexually transmitted infections (STIs), in the context of rising antimicrobial resistance (AMR), through the lens of 'treatment cultures'. Prevailing treatment cultures-including the prominence of syndromic care for STIs-foster certain possibilities and foreclose others, with important consequences for countering AMR. Drawing on qualitative interviews with STI professionals, experts and industry representatives, we unpack these stakeholders' accounts of STI treatment cultures, drawing out the importance of socio-historical (i.e. taboo and stigma), political-economic (i.e. perceptions of significance, profit-making and prioritisation) and subjective (i.e. patient contexts and reflexivity) dimensions therein. In developing this critical account of how treatment cultures are formed, reproduced and indeed resisted, we reveal how such discourses and practices render the reining in of AMR and shifting antibiotic use difficult, and yet, how productive engagement remains key to any proposed solutions. As such, the article contributes to our understanding of AMR as a highly diversified field, through our exploration of the bio-social dimensions of resistance as they relate to the case of STIs.

在本文中,我们通过 "治疗文化 "的视角,探讨了在抗菌药耐药性(AMR)不断上升的背景下,目前对性传播感染(STI)的管理。流行的治疗文化--包括对性传播疾病的综合症治疗--促进了某些可能性,同时也排除了其他可能性,这对抗击 AMR 产生了重要影响。通过对性传播感染专业人士、专家和行业代表的定性访谈,我们解读了这些利益相关者对性传播感染治疗文化的描述,指出了其中社会历史(即禁忌和污名化)、政治经济(即对重要性、盈利和优先性的认识)和主观(即患者背景和反思性)层面的重要性。在对治疗文化如何形成、复制和抵制进行批判性阐述的过程中,我们揭示了这些论述和实践如何使控制 AMR 和改变抗生素使用方式变得困难,以及如何使富有成效的参与成为任何拟议解决方案的关键。因此,这篇文章通过探讨抗药性的生物-社会层面与性传播感染的关系,有助于我们了解 AMR 是一个高度多样化的领域。
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引用次数: 0
Disruption, discontinuity and a licence to live: Responding to cancer diagnoses. 中断、不连续性和生存许可:应对癌症诊断。
IF 2.7 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-01 Epub Date: 2024-05-30 DOI: 10.1111/1467-9566.13797
Kevin Dew, Kerry Chamberlain, Richard Egan, Alex Broom, Elizabeth Dennett, Chris Cunningham

Although a diagnosis of a life-limiting cancer is likely to evoke emotions, such as fear, panic and anxiety, for some people it can also provide an opportunity to live life differently. This article is based on research undertaken in Aotearoa New Zealand on the topic of exceptional cancer trajectories. Eighty-one participants who had been identified as living with a cancer diagnosis longer than clinically expected were interviewed, along with 25 people identified by some of the participants as supporters in their journey. For some participants the diagnosis provided the opportunity to rethink their lives, to undertake lifestyle and consumption changes, to be culturally adventurous, to take up new skills, to quit work and to change relationships with others. The concepts of biographical disruption and posttraumatic growth are considered in relation to these accounts, and it is argued that the event of a cancer diagnosis can give license for people to breach social norms.

虽然确诊患上危及生命的癌症可能会让人产生恐惧、惊慌和焦虑等情绪,但对某些人来说,这也可能为他们提供一个以不同方式生活的机会。本文基于在新西兰奥特亚罗瓦进行的关于特殊癌症轨迹的研究。研究人员对 81 名被确诊为癌症的患者进行了访谈,这些患者的生存期比临床预期的要长,同时还访谈了 25 名被部分患者视为支持者的人。对一些参与者来说,确诊为他们提供了重新思考生活、改变生活方式和消费、进行文化冒险、学习新技能、辞去工作以及改变与他人关系的机会。我们结合这些叙述,对生物中断和创伤后成长的概念进行了思考,并认为癌症诊断事件可以允许人们违反社会规范。
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引用次数: 0
Understanding grief and care at end of life. 了解生命终结时的悲伤和护理。
IF 4.6 2区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-09-01 Epub Date: 2024-09-02 DOI: 10.1111/1467-9566.13835
Karen Lowton, Flis Henwood
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引用次数: 0
期刊
Sociology of health & illness
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