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Lack of Supportive Systems for Parents of Children with Thalassemia: Forgotten Part of Health System 缺乏对地中海贫血儿童父母的支持系统:卫生系统中被遗忘的部分
Pub Date : 2022-10-24 DOI: 10.5812/jjcdc-123191
H. Heidari, A. Ahmadi
Background: Families of children with thalassemia may become exhausted due to the frequent hospitalizations of the child for blood injections and because of spending a great deal of time learning about and managing this disease. Objectives: The aim of this research was to explain supportive systems for parents of children with thalassemia. Methods: This study was done at Hajar hospital in Shahrekord in 2017. Content analysis was used. Ten samples consisting of 5 mothers, one grandmother, two fathers, and two nurses were selected purposely in this study. A semi-structured, face-to-face interview was used. Results: Based on data analysis, three categories of the need for supporters, lack of consultative services, and economic problems were obtained. Conclusions: Since thalassemia is a chronic disease, the parents of these children need support and consultative services throughout their life. It is necessary for authorities and healthcare planners to take measures in order to support parents of children with thalassemia (the forgotten part of the health system). The consultant-trained nurse has an important role in supporting these families.
背景:地中海贫血儿童的家庭可能会因为儿童频繁住院接受血液注射和花费大量时间学习和管理这种疾病而变得疲惫不堪。目的:本研究的目的是解释地中海贫血儿童父母的支持系统。方法:本研究于2017年在Shahrekord的Hajar医院进行。采用内容分析法。本研究有意选取5名母亲、1名祖母、2名父亲和2名护士共10个样本。采用了半结构化的面对面访谈。结果:通过数据分析,得出了支持需求、咨询服务缺失和经济问题三大类。结论:由于地中海贫血是一种慢性疾病,这些儿童的父母一生都需要支持和咨询服务。当局和卫生保健规划人员有必要采取措施,支持地中海贫血儿童的父母(卫生系统中被遗忘的部分)。受过咨询培训的护士在支持这些家庭方面发挥着重要作用。
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引用次数: 1
The Effect of Reminiscence on Depression in Elderly People with Suicidal Ideation: A Randomized Controlled Trial 回忆对老年自杀意念患者抑郁的影响:一项随机对照试验
Pub Date : 2022-10-17 DOI: 10.5812/jjcdc-130420
Mohammad-Rafi Bazrafshan, Zohreh Faramarzian, Mozhgan Jokar, Hamed Delam, A. Mansouri, O. Soufi, Esmaeil Kavi
Background: Considering the problems, multiple diseases, disabilities, and the increased likelihood of suicidal ideation aroused by mental disorders among the elderly, the present study aimed to study the effects of reminiscence on depression in elderly people with suicidal ideation living in a nursing home. Methods: This is a clinical trial study. Considering the inclusion criteria, 30 elderly persons were selected regarding the inclusion criteria and then assigned to two intervention (n = 15) and control (n = 15) groups using the simple random method. An educational program on reminiscence protocol was held in eight sessions. The participants were asked to complete the suicidal ideation, depression, and mental status questionnaires before, immediately after, and one month after the intervention. chi-squared, Mann-Whitney, and Friedman tests were used to analyze the data with SPSS software version 25. Results: The experimental and control groups were homogenous in terms of marital status, age, gender, psychological status, suicidal ideation, and level of education (P > 0.05). Comparison of the mean scores of depression showed a significant difference between the experimental and control groups immediately after (P = 0.037) and one month after the intervention (P = 0.030). However, before the intervention, no significant difference was observed between the two groups (P = 0.899) Conclusions: According to the findings of this study, reminiscence as a nursing intervention can improve depression in the elderly with suicidal ideation. Accordingly, holding group reminiscing sessions in places such as nursing homes can be effective in reducing depression symptoms and preventing suicidal ideation in the elderly.
背景:考虑到老年人精神障碍所引起的问题、多重疾病、残疾以及自杀意念的可能性增加,本研究旨在研究回忆对生活在养老院的有自杀意念的老年人抑郁的影响。方法:临床试验研究。根据纳入标准,选取30名老年人,采用简单随机法分为干预组(n = 15)和对照组(n = 15)。纪念礼仪教育活动分8期举行。参与者被要求在干预前、干预后和干预后一个月分别填写自杀意念、抑郁和精神状态问卷。采用卡方检验、Mann-Whitney检验和Friedman检验,采用SPSS软件25版对数据进行分析。结果:实验组与对照组在婚姻状况、年龄、性别、心理状态、自杀意念、文化程度等方面均无统计学差异(P > 0.05)。干预后即刻(P = 0.037)和干预后1个月(P = 0.030),实验组与对照组抑郁均分比较差异有统计学意义。结论:根据本研究结果,回忆作为一种护理干预可以改善有自杀意念老年人的抑郁。因此,在养老院等场所举行集体回忆会,可以有效地减轻老年人的抑郁症状,防止自杀意念。
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引用次数: 0
Investigation of Resilience in Patients with Epilepsy Referred to Medical Centers in Isfahan in 2021 2021年伊斯法罕医疗中心转介癫痫患者恢复力调查
Pub Date : 2022-10-12 DOI: 10.5812/jjcdc-130167
Moein Motioleslami, Malek Fereidooni-Moghadam, A. Yazdannik, M. Etemadifar
Background: Epilepsy is a worldwide common neurological disorder characterized by an enduring predisposition to epileptic seizures. Protective elements are circumstances that help an individual cope with stressful events more effectively. Resilience may act as a protective factor against the subjective experience of hardship, especially when receiving a probable negative medical diagnosis. Objectives: The purpose of this study was to explore resilience among patients with epilepsy. Methods: This descriptive-analytical study was performed in 2021 on 250 patients with epilepsy referred to selected medical centers in Isfahan, who were selected by the simple random sampling method. Data collection tools included a demographic information questionnaire and Connor- Davidson Resilience Scale (CD-RISC). Data were analyzed in SPSS software version 26 using descriptive statistics such as the mean and standard deviation for quantitative variables and frequency and percentage for qualitative variables. Stepwise regression tests were used to examine the relationship between independent variables and dependent variables while controlling contextual and confounding variables. Results: In this study, the mean (standard deviation) of the resilience score in epileptic patients was 60.34 ± 19.86. The socioeconomic status and the level of education, but not martial status and gender, were found to correlate significantly with resilience (P = 0.445 and P = 0.396, respectively). Duration of epilepsy, age, and job status inversely correlated with resilience (P = -0.269, P = -0.131, P = -0.155, respectively). Conclusions: According to the results of this study, increasing knowledge and understanding of the relationship between epilepsy and resilience may help obviate this problem in patients with epilepsy.
背景:癫痫是一种世界范围内常见的神经系统疾病,其特征是易发生癫痫发作。保护性因素是帮助个人更有效地应对压力事件的环境。适应力可作为一种保护因素,防止主观痛苦经历,特别是在接受可能为阴性的医学诊断时。目的:探讨癫痫患者的心理恢复能力。方法:采用简单随机抽样方法,于2021年对伊斯法罕选定医疗中心的250例癫痫患者进行描述性分析研究。数据收集工具包括人口统计信息问卷和Connor- Davidson弹性量表(CD-RISC)。在SPSS软件26版中对数据进行分析,定量变量采用均值和标准差,定性变量采用频率和百分比等描述性统计。逐步回归检验用于检验自变量和因变量之间的关系,同时控制上下文和混杂变量。结果:本组癫痫患者恢复力评分均值(标准差)为60.34±19.86。社会经济地位和受教育程度与心理弹性显著相关(P = 0.445和P = 0.396),而军事地位和性别与心理弹性显著相关(P = 0.445和P = 0.396)。癫痫持续时间、年龄和工作状态与恢复力呈负相关(P = -0.269, P = -0.131, P = -0.155)。结论:根据本研究的结果,增加对癫痫和恢复力之间关系的认识和理解可能有助于消除癫痫患者的这一问题。
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引用次数: 0
Artificial Neural Network-Based Prediction of Death Anxiety in HIV-Positive Cases through Social Support and Distress Tolerance 基于社会支持和痛苦耐受的人工神经网络预测hiv阳性患者死亡焦虑
Pub Date : 2022-10-04 DOI: 10.5812/jjcdc-131002
F. Asadi, S. Bakhtiarpour
Background: Distress tolerance has increasingly been used as an important construct to develop a novel insight into the onset and persistence of psychological traumas as well as prevention and treatment. Objectives: The present study investigated the relationship between social support and distress tolerance with death anxiety using artificial neural networks (ANN) in human immunodeficiency virus (HIV)-positive cases. Methods: The research method was descriptive-correlational. The statistical population included all the HIV-positive cases of Ahvaz in 2021. The convenience sampling method was employed to select 91 participants as the research sample. The research instruments included the Death Anxiety Scale (DAS), the Social Support Survey (SSS), and the Distress Tolerance Scale (DTS). The Pearson correlation coefficient, simultaneous regression, and ANN were used for data analysis. Results: The mean and standard deviation (SD) of death anxiety, social support, and distress tolerance were 9.07 ± 2.76, 63.78 ± 18.05, and 37.49 ± 12.91, respectively. The results showed a negative correlation between death anxiety, social support, and distress tolerance. Also, there was a significant negative relationship between social support and death anxiety (β = -0.31, P < 0.001). There was also a significant negative relationship between distress tolerance and death anxiety in HIV-positive cases (β = -0.53, P < 0.001). Conclusions: It is now more necessary than ever before to consider the effects of social support and distress tolerance on death anxiety in HIV-positive cases. Apparently, their death anxiety is affected by other factors and their interactive effects.
背景:痛苦耐受已经越来越多地被用作一个重要的结构,以发展对心理创伤的发生和持续以及预防和治疗的新见解。目的:利用人工神经网络(ANN)研究人类免疫缺陷病毒(HIV)阳性患者的社会支持、痛苦耐受与死亡焦虑之间的关系。方法:采用描述性相关法。统计人口包括2021年阿瓦士所有艾滋病毒阳性病例。采用方便抽样法,选取91名参与者作为研究样本。研究工具包括死亡焦虑量表(DAS)、社会支持量表(SSS)和痛苦容忍量表(DTS)。采用Pearson相关系数、同时回归和人工神经网络进行数据分析。结果:死亡焦虑、社会支持和痛苦耐受的均值和标准差分别为9.07±2.76、63.78±18.05和37.49±12.91。结果显示,死亡焦虑、社会支持和痛苦耐受力之间呈负相关。社会支持与死亡焦虑呈显著负相关(β = -0.31, P < 0.001)。hiv阳性患者的痛苦耐受性与死亡焦虑之间也存在显著负相关(β = -0.53, P < 0.001)。结论:现在比以往任何时候都更有必要考虑社会支持和痛苦容忍对艾滋病毒阳性病例死亡焦虑的影响。显然,他们的死亡焦虑受到其他因素及其相互作用的影响。
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引用次数: 1
Happiness, Hope, and Adherence to Treatment Regimen Among Iranian Older Adults with Chronic Diseases During the COVID-19 Pandemic 2019冠状病毒病大流行期间伊朗老年慢性病患者的幸福、希望和治疗依从性
Pub Date : 2022-10-04 DOI: 10.5812/jjcdc-129410
Mahin Gheibizadeh, Sorur Javanmardifard, M. Azar, M. Fazeli, Marzieh Beigom Bigdeli Shamloo, Hadis Ashrafizadeh
Background: Coronavirus disease 2019 (COVID-19) severity and mortality have been found to be directly associated with age, chronic diseases, and immune system deficiency. Therefore, older adults suffering from chronic diseases are at a higher risk of the serious complications of COVID-19 and receive less social support, compared to younger age groups, which usually results from complicated treatment regimens. Moreover, the increase in age is accompanied by changes in the quality of psychological well-being. Considering this group’s higher vulnerability, it is essential to identify the factors related to their psychological well-being, such as happiness and hope. Objectives: Therefore, the present study aimed to determine the relationships between happiness and hope with adherence to the treatment regimen among older adults with chronic diseases during the COVID-19 pandemic in 2020. Methods: This descriptive-analytical study was conducted on 216 older adults over 55 years of age who suffered from chronic diseases in comprehensive centers for the elderly. The data were collected using validated instruments, such as the Morisky Medication Adherence Scale, Oxford Happiness Questionnaire, and Herth Hope Index. Then, the data were entered into SPSS software (version 24) and were analyzed using descriptive statistics, dispersion indices, and regression. Results: The mean age of the study participants was 70.64 ± 10.56 years. The mean scores of adherence to treatment, hope, and happiness were 65.72 ± 7.1, 73.91 ± 29.3, and 47.74 ± 34.10, respectively. Based on the results, good adherence to treatment was observed in 128 (59.3%) participants. The results revealed no significant relationship between the mean scores of hope and adherence to the treatment regimen (b = 0.037, P = 0.222). However, a significant relationship was observed between the mean scores of happiness and adherence to the treatment regimen (b = 0.036, P = 0.001). Conclusions: Interventions aiming at increasing such patients’ happiness levels might be effective in their health-related behaviors, including adherence to treatment regimens, improvement of the disease process, and enhancement of quality of life.
背景:研究发现,2019冠状病毒病(COVID-19)的严重程度和死亡率与年龄、慢性疾病和免疫系统缺陷直接相关。因此,与年轻群体相比,患有慢性疾病的老年人患COVID-19严重并发症的风险更高,获得的社会支持也更少,这通常是复杂的治疗方案造成的。此外,年龄的增长伴随着心理健康质量的变化。考虑到这一群体的脆弱性较高,有必要确定与他们的心理健康相关的因素,如快乐和希望。因此,本研究旨在确定2020年COVID-19大流行期间老年慢性病患者的幸福和希望与坚持治疗方案之间的关系。方法:本研究采用描述性分析方法,对216例55岁以上老年综合中心慢性疾病患者进行研究。数据收集使用有效的工具,如莫里斯基药物依从性量表,牛津幸福问卷和赫斯希望指数。然后,将数据输入SPSS软件(version 24),采用描述性统计、离散度指数和回归分析。结果:研究参与者的平均年龄为70.64±10.56岁。治疗依从性、希望、快乐的平均得分分别为65.72±7.1分、73.91±29.3分、47.74±34.10分。根据结果,128名(59.3%)参与者观察到良好的治疗依从性。结果显示,希望平均得分与治疗方案依从性之间无显著关系(b = 0.037, P = 0.222)。然而,幸福感的平均得分与治疗方案的依从性之间存在显著关系(b = 0.036, P = 0.001)。结论:旨在提高患者幸福水平的干预措施可能对其健康相关行为有效,包括坚持治疗方案、改善疾病进程和提高生活质量。
{"title":"Happiness, Hope, and Adherence to Treatment Regimen Among Iranian Older Adults with Chronic Diseases During the COVID-19 Pandemic","authors":"Mahin Gheibizadeh, Sorur Javanmardifard, M. Azar, M. Fazeli, Marzieh Beigom Bigdeli Shamloo, Hadis Ashrafizadeh","doi":"10.5812/jjcdc-129410","DOIUrl":"https://doi.org/10.5812/jjcdc-129410","url":null,"abstract":"Background: Coronavirus disease 2019 (COVID-19) severity and mortality have been found to be directly associated with age, chronic diseases, and immune system deficiency. Therefore, older adults suffering from chronic diseases are at a higher risk of the serious complications of COVID-19 and receive less social support, compared to younger age groups, which usually results from complicated treatment regimens. Moreover, the increase in age is accompanied by changes in the quality of psychological well-being. Considering this group’s higher vulnerability, it is essential to identify the factors related to their psychological well-being, such as happiness and hope. Objectives: Therefore, the present study aimed to determine the relationships between happiness and hope with adherence to the treatment regimen among older adults with chronic diseases during the COVID-19 pandemic in 2020. Methods: This descriptive-analytical study was conducted on 216 older adults over 55 years of age who suffered from chronic diseases in comprehensive centers for the elderly. The data were collected using validated instruments, such as the Morisky Medication Adherence Scale, Oxford Happiness Questionnaire, and Herth Hope Index. Then, the data were entered into SPSS software (version 24) and were analyzed using descriptive statistics, dispersion indices, and regression. Results: The mean age of the study participants was 70.64 ± 10.56 years. The mean scores of adherence to treatment, hope, and happiness were 65.72 ± 7.1, 73.91 ± 29.3, and 47.74 ± 34.10, respectively. Based on the results, good adherence to treatment was observed in 128 (59.3%) participants. The results revealed no significant relationship between the mean scores of hope and adherence to the treatment regimen (b = 0.037, P = 0.222). However, a significant relationship was observed between the mean scores of happiness and adherence to the treatment regimen (b = 0.036, P = 0.001). Conclusions: Interventions aiming at increasing such patients’ happiness levels might be effective in their health-related behaviors, including adherence to treatment regimens, improvement of the disease process, and enhancement of quality of life.","PeriodicalId":271852,"journal":{"name":"Jundishapur Journal of Chronic Disease Care","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115514589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Death Anxiety and Associated Factors in the Hospitalized and Non-hospitalized Elderly with Chronic Diseases in Ahvaz 阿瓦士地区住院和非住院老年慢性病患者的死亡焦虑及相关因素
Pub Date : 2022-08-03 DOI: 10.5812/jjcdc-121525
A. Tadi, Mahin Gheibizadeh, Saeed Ghanbari Chah Anjiri
Background: Elderly people can be exposed to a number of psychological disorders, including death anxiety, due to the many changes they experience during the aging process, which affects their quality of life. Objectives: The present study aimed to determine death anxiety and associated factors in the hospitalized and non-hospitalized elderly in Ahvaz in 2019. Methods: This descriptive cross-section study enrolled a convenience sample of 195 hospitalized and non-hospitalized elderlies in Ahwaz. Data collection tools included the demographic characteristics form and death anxiety questionnaire. Independent t-test, chi-square, and ANOVA analyzed data in SPSS v.16 software. Data collection was instituted after approval of the research ethics committee, and all ethical considerations such as informed consent were met. Results: This study was undertaken on 195 elderlies with a mean age of 66.06 ± 5.59 years (60 to 88 years), most of whom were male (61%). The mean death anxiety score was 111.98 ± 19.27 for hospitalized elderlies and 100.002 ± 25.12 for non-hospitalized ones. Statistical tests revealed that the two groups significantly differed in the total score of death anxiety and all its subscales except for the death of acquaintances (P < 0.05). Death anxiety had a statistically significant relationship with education level, gender, and marital status. Conclusions: The hospitalized, female, and low-educated elderly and those living alone had more death anxiety. Thus, it is imperative to offer social support to this vulnerable elderly group, perform periodical psychiatric evaluations, and utilize psychological interventions to improve the elderly's quality of life.
背景:由于老年人在衰老过程中经历了许多变化,从而影响了他们的生活质量,因此老年人可能会出现许多心理障碍,包括死亡焦虑。目的:本研究旨在确定2019年阿瓦士住院和非住院老年人的死亡焦虑及其相关因素。方法:本描述性横断面研究纳入了195名住院和非住院的阿瓦士老年人。数据收集工具包括人口统计学特征表和死亡焦虑问卷。采用SPSS v.16软件进行独立t检验、卡方检验和方差分析。数据收集是在研究伦理委员会批准后开始的,并满足了知情同意等所有伦理考虑。结果:本研究纳入195例老年人,平均年龄66.06±5.59岁(60 ~ 88岁),以男性居多(61%)。住院老年人平均死亡焦虑评分为111.98±19.27分,非住院老年人平均死亡焦虑评分为100.002±25.12分。统计检验显示,两组死亡焦虑总分及除熟人死亡外各分量表得分差异均有统计学意义(P < 0.05)。死亡焦虑与受教育程度、性别、婚姻状况有统计学显著相关。结论:住院老年人、女性、低文化程度老年人和独居老年人存在较多的死亡焦虑。因此,为这一弱势老年人群体提供社会支持,定期进行精神病学评估,并利用心理干预措施提高老年人的生活质量是当务之急。
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引用次数: 2
Hospital Mortality in COVID-19 Patients with Chronic Diseases: A Retrospective Cohort Study in Sirjan, Iran, in 2021 2019冠状病毒病慢性病患者的住院死亡率:2021年在伊朗锡尔詹进行的回顾性队列研究
Pub Date : 2022-08-02 DOI: 10.5812/jjcdc-124027
Mohammad-Rafi Bazrafshan, Reza Sadeghi, Rahimeh Khajoei, M. Mohseni, Mohammad Moqaddasi Amiri, Behnam Masmouei, O. Soufi, Mahmood Reza Masoudi
Background: The news of several people being affected by unusual pneumonia at the beginning of the year 2020 in China led to the introduction of a new type of coronavirus as the cause of a new respiratory disease. With the rapid spread of the disease in China and then to other parts of the world, the new coronavirus became scientifically known as severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) and the resulting disease as coronavirus disease 2019 (COVID-19). This disease has a variety of symptoms and can cause SARS. Objectives: This study aimed to investigate the chronic diseases affecting the mortality rate of this disease. Methods: This retrospective cohort study was performed on 7222 eligible patients admitted to hospitals in Sirjan, Iran, from March 2020 to June 2021 with a positive polymerase chain reaction for COVID-19. The researcher extracted information from the patients' files using the questionnaire of demographic characteristics, clinical signs and symptoms, and the history of underlying diseases. The data were analyzed by the SPSS software using descriptive and analytical statistical tests, namely chi-squared, independent samples t-test, and univariate and multivariate logistic regression tests. Results: Out of 7,222 patients with COVID-19, 294 died, of whom 152 were male and 142 were female (OR = 1.23, CI: 0.97 - 1.55). Moreover, 220 people out of 294 dead cases were over 60 years old (OR = 8.92, CI: 6.82 - 11.67). The most common diseases were hypertension (OR = 3.63, CI: 2.81 - 4.69) and diabetes (OR = 3.16, CI: 2.38 - 4.20). The most common symptoms among those who died were respiratory distress (51.4%) and cough (34.7%). Conclusions: The mortality rate is directly related to the underlying diseases in COVID-19, and the most common underlying disease in the statistical population of this study was hypertension. In addition, respiratory distress is a common symptom in dead patients, which can be used as a predictor of death.
背景:2020年初,中国有多人感染不寻常肺炎的消息,导致一种新型冠状病毒被引入,成为一种新型呼吸道疾病的病因。随着该疾病在中国和世界其他地区的迅速传播,这种新型冠状病毒在科学上被称为“严重急性呼吸综合征-冠状病毒-2”(SARS-CoV-2),并由此产生的疾病被称为“2019冠状病毒病”(COVID-19)。这种疾病有多种症状,可引起SARS。目的:探讨影响本病死亡率的慢性疾病。方法:本回顾性队列研究对2020年3月至2021年6月在伊朗锡尔扬医院就诊的7222例符合条件的COVID-19聚合酶链反应阳性患者进行了研究。研究人员利用人口统计学特征、临床体征和症状以及基础疾病史等问卷从患者档案中提取信息。数据采用SPSS软件进行描述性和分析性统计检验,即卡方检验、独立样本t检验、单因素和多因素logistic回归检验。结果:7222例新冠肺炎患者中,294例死亡,其中男性152例,女性142例(OR = 1.23, CI: 0.97 ~ 1.55)。294例死亡病例中60岁以上的有220例(OR = 8.92, CI: 6.82 ~ 11.67)。最常见的疾病是高血压(OR = 3.63, CI: 2.81 - 4.69)和糖尿病(OR = 3.16, CI: 2.38 - 4.20)。死亡中最常见的症状是呼吸窘迫(51.4%)和咳嗽(34.7%)。结论:COVID-19的死亡率与基础疾病有直接关系,本研究统计人群中最常见的基础疾病为高血压。此外,呼吸窘迫是死亡患者的常见症状,可作为死亡的预测指标。
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引用次数: 0
The Relationship Between Multiple Sclerosis Severity and Fear of Falling Through the Mediating Role of Disability: A Correlational Study 残疾对多发性硬化严重程度与跌倒恐惧的中介作用:一项相关研究
Pub Date : 2022-07-31 DOI: 10.5812/jjcdc-127519
A. Kohestani, Seyedeh Zahra Sadati, S. Abolghasemi
Background: Problems with balance and controlling the body’s position are the most common challenges experienced by patients with multiple sclerosis (MS) who experience a high rate of falls. Objectives: The present study aimed to investigate the relationship between the severity and fear of falling (FOF) mediated by disability in patients with MS. Methods: This was a correlational study based on structural equation modeling (SEM). The statistical population consisted of all patients with MS who visited the neurology centers of hospitals in Sari, Iran, of whom 200 cases were selected as the sample using convenience sampling. The research instruments included the Falls Efficacy Scale-International (FES-I), MS Severity Scale, and the Expanded Disability Status Scale (EDSS). The data were analyzed using SEM by SPSS AMOS 25. Results: The participants included 200 patients with MS aged 33.67 ± 6.42 years. In addition, 41.5% were male, and 58.5% of female. The results of SEM indicated that the proposed model had a good fit. There was a direct and positive relationship between the severity of MS and FOF (β = 0.69; P = 0.002). Moreover, there was a direct relationship between disability and FOF (β = 0.71; P = 0.011), and between the severity of MS and disability (β = 0.63; P = 0.001) in patients with MS. The findings confirmed the relationship between the severity of MS and FOF mediated by disability in patients with MS (P < 0.001). Conclusions: Based on the results, FOF was markedly higher in patients with severer MS. Due to the consequences of FOF, counseling training programs should be offered to patients with MS who visit medical centers to improve their health and level of activity and mitigate their FOF.
背景:平衡和控制身体位置的问题是多发性硬化症(MS)患者最常见的挑战,他们经历了很高的跌倒率。目的:探讨残疾介导的ms患者跌倒恐惧(FOF)与严重程度的关系。方法:采用结构方程模型(SEM)进行相关研究。统计人群为在伊朗Sari市医院神经病学中心就诊的所有MS患者,采用方便抽样法选取200例作为样本。研究工具包括国际Falls疗效量表(FES-I)、MS严重程度量表和扩展残疾状态量表(EDSS)。用SPSS AMOS 25对数据进行扫描电镜分析。结果:纳入200例MS患者,年龄33.67±6.42岁。男性占41.5%,女性占58.5%。扫描电镜结果表明,该模型具有较好的拟合性。MS严重程度与FOF呈直接正相关(β = 0.69;P = 0.002)。此外,残疾与FOF有直接关系(β = 0.71;P = 0.011), MS严重程度与残疾之间(β = 0.63;P = 0.001)。研究结果证实了MS严重程度与MS患者残疾介导的FOF之间的关系(P < 0.001)。结论:基于研究结果,重度MS患者的FOF明显更高。由于FOF的后果,应向就诊的MS患者提供咨询培训计划,以改善他们的健康状况和活动水平,减轻他们的FOF。
{"title":"The Relationship Between Multiple Sclerosis Severity and Fear of Falling Through the Mediating Role of Disability: A Correlational Study","authors":"A. Kohestani, Seyedeh Zahra Sadati, S. Abolghasemi","doi":"10.5812/jjcdc-127519","DOIUrl":"https://doi.org/10.5812/jjcdc-127519","url":null,"abstract":"Background: Problems with balance and controlling the body’s position are the most common challenges experienced by patients with multiple sclerosis (MS) who experience a high rate of falls. Objectives: The present study aimed to investigate the relationship between the severity and fear of falling (FOF) mediated by disability in patients with MS. Methods: This was a correlational study based on structural equation modeling (SEM). The statistical population consisted of all patients with MS who visited the neurology centers of hospitals in Sari, Iran, of whom 200 cases were selected as the sample using convenience sampling. The research instruments included the Falls Efficacy Scale-International (FES-I), MS Severity Scale, and the Expanded Disability Status Scale (EDSS). The data were analyzed using SEM by SPSS AMOS 25. Results: The participants included 200 patients with MS aged 33.67 ± 6.42 years. In addition, 41.5% were male, and 58.5% of female. The results of SEM indicated that the proposed model had a good fit. There was a direct and positive relationship between the severity of MS and FOF (β = 0.69; P = 0.002). Moreover, there was a direct relationship between disability and FOF (β = 0.71; P = 0.011), and between the severity of MS and disability (β = 0.63; P = 0.001) in patients with MS. The findings confirmed the relationship between the severity of MS and FOF mediated by disability in patients with MS (P < 0.001). Conclusions: Based on the results, FOF was markedly higher in patients with severer MS. Due to the consequences of FOF, counseling training programs should be offered to patients with MS who visit medical centers to improve their health and level of activity and mitigate their FOF.","PeriodicalId":271852,"journal":{"name":"Jundishapur Journal of Chronic Disease Care","volume":"40 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130735066","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
The Effect of Vitamin D Deficiency Treatment on Hemoglobin Levels in Hemodialysis Patients: A Double-blind, Randomized Controlled Trial 维生素D缺乏治疗对血透患者血红蛋白水平的影响:一项双盲、随机对照试验
Pub Date : 2022-06-26 DOI: 10.5812/jjcdc-119008
F. Ghasemian, Shahla Ahmadi Halili, F. Hayati, S. S. Beladi-Mousavi, Shokouh Shayanpour, Leila Sabetnia
Background: The role of vitamin D deficiency and inflammation levels in renal anemia is well established. However, few studies with inconsistent findings have examined the relationship between vitamin D supplementation and the prevalence and severity of anemia in the chronic kidney disease. Objectives: The present study aimed to evaluate the effect of vitamin D deficiency treatment on hemoglobin levels in hemodialysis patients. Methods: The present study was a double-blind, randomized controlled trial on 60 hemodialysis patients aged 18 - 83 years, who were undergoing weekly dialysis and receiving erythropoietin. These patients with vitamin D (< 30 ng/mL) referred to the dialysis wards of Imam Khomeini, Razi, and Sina hospitals in Ahvaz in 2019 and were assigned into two groups. One group was treated with 500 mg oral calcium-D tablets three times a day, and another group was treated with 50,000 units of D-Pearls weekly. The two groups were treated for 12 weeks. Then they were re-evaluated in terms of response to treatment and the rate of improvement in hemoglobin levels and erythropoietin dose. Results: In each intervention group, vitamin D levels increased significantly (P < 0.001). D-Pearls improved vitamin D deficiency; however, the difference was not statistically significant. This study also showed a significant increase in hemoglobin (> 1 unit) in the Calcium-D group; however, such a change was not observed in the D-Pearls group (P = 0.3824). Moreover, there was no difference between the two groups in terms of erythropoietin consumption (P = 0.98), blood calcium level (P = 0.57), parathyroid level (P = 0.20), and phosphorus (P = 0.99). Conclusions: Despite its significant limitations, this study revealed vitamin D supplements compensated for vitamin D deficiency, and Calcium-D tablets could improve hemoglobin levels in patients.
背景:维生素D缺乏和炎症水平在肾性贫血中的作用已得到证实。然而,很少有研究结果不一致,研究了维生素D补充与慢性肾病中贫血的患病率和严重程度之间的关系。目的:探讨维生素D缺乏治疗对血液透析患者血红蛋白水平的影响。方法:本研究是一项双盲、随机对照试验,研究对象为60例血液透析患者,年龄18 ~ 83岁,每周透析并接受促红细胞生成素治疗。这些维生素D (< 30 ng/mL)的患者于2019年转至阿瓦士伊玛目霍梅尼、拉齐和新浪医院的透析病房,并被分为两组。一组服用500毫克口服d钙片,每天三次,另一组每周服用5万单位D-Pearls。两组均治疗12周。然后重新评估他们对治疗的反应以及血红蛋白水平和促红细胞生成素剂量的改善率。结果:各干预组维生素D水平均显著升高(P < 0.001)。D-珍珠改善维生素D缺乏症;然而,差异无统计学意义。本研究还显示,钙d组血红蛋白显著升高(>.1单位);然而,D-Pearls组没有观察到这种变化(P = 0.3824)。此外,两组在促红细胞生成素消耗(P = 0.98)、血钙水平(P = 0.57)、甲状旁腺水平(P = 0.20)和磷水平(P = 0.99)方面均无差异。结论:尽管存在明显的局限性,但该研究表明,维生素D补充剂可以弥补维生素D缺乏症,钙D片可以改善患者的血红蛋白水平。
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引用次数: 1
Relationship Between Quality of Life and Health Literacy in Patients with Sickle Cell Disease 镰状细胞病患者生活质量与健康素养的关系
Pub Date : 2022-06-20 DOI: 10.5812/jjcdc-123281
M. Azar, S. Haghighi, E. Maraghi, Farzaneh Mohammadnejad, Hadis Ashrafizadeh
Background: Disease management approach is an effective means in genetic disorders, such as sickle cell disease (SCD). This disease is a neglected chronic disease of increasing global health importance. In this process, acquiring knowledge and information related to the disease plays a critical role in self-efficacy and self-care. Therefore, one of the determinants of health and criteria for enhanced quality of life is health literacy. Objectives: Therefore, the present study aimed to determine the relationship between the quality of life and health literacy associated with disease management among patients with SCD. Methods: This descriptive-correlational study was conducted on 150 patients with SCD in Ahvaz. These patients have been referred to the thalassemia clinic and the thalassemia ward of Shahid Baghaei-2 Hospital and selected via accessible sampling. The study data were collected using WHOQOL-EREF-26 items and a researcher-made questionnaire about information resources whose reliability and validity were confirmed. Then, the data were entered into the SPSS software and analyzed via descriptive statistics, chi-square, regression, and correlation tests. Results: The mean age of the participants was 27.56 ± 9.14 years. The most important resource for increasing knowledge was the physician in 83.3% of the patients. In addition, they had acquired the highest amount of knowledge about the causes and symptoms of the disease. Moreover, the highest and lowest mean scores of quality of life were related to physical health (50.80 ± 9.94) and (45.23 ± 19.91) social health dimensions, respectively. The results showed statistically significant differences between the place of residence with the dimension of social health (P = 0.037, b = -11.05) and sources of knowledge enhancement with the dimension of social health quality of life (P = 0.010, b = -14.96). Conclusions: Since quality of life is a subjective and multifactorial concept, its effective factors have to be explored. The present study results indicated that the patients were eager to acquire knowledge about their disease. The higher the patients’ knowledge level, the higher their ability in disease management, self-care, and social health dimension of quality of life would be.
背景:疾病管理方法是治疗镰状细胞病(SCD)等遗传性疾病的有效手段。这种疾病是一种被忽视的慢性病,对全球卫生的重要性日益增加。在这个过程中,获取与疾病相关的知识和信息对自我效能感和自我保健起着至关重要的作用。因此,健康的决定因素之一和提高生活质量的标准是卫生知识普及。目的:因此,本研究旨在确定SCD患者的生活质量和与疾病管理相关的健康素养之间的关系。方法:对阿瓦士地区150例SCD患者进行描述性相关研究。这些病人被转诊到沙希德·巴格伊-2医院的地中海贫血门诊和地中海贫血病房,并通过可获得的抽样选择。采用WHOQOL-EREF-26问卷和自编信息资源调查问卷收集研究数据,并对问卷进行信度和效度验证。然后,将数据输入SPSS软件,通过描述性统计、卡方检验、回归检验和相关检验进行分析。结果:参与者平均年龄27.56±9.14岁。83.3%的患者认为医生是增加知识的最重要的资源。此外,他们还获得了有关该疾病的原因和症状的最多的知识。生活质量平均得分最高和最低的分别与身体健康(50.80±9.94)和社会健康(45.23±19.91)相关。居住地与社会健康维度(P = 0.037, b = -11.05)、知识提升来源与社会健康生活质量维度(P = 0.010, b = -14.96)差异均有统计学意义。结论:由于生活质量是一个主观的、多因素的概念,其影响因素还有待探讨。目前的研究结果表明,患者渴望获得有关其疾病的知识。患者知识水平越高,疾病管理能力、自我保健能力和生活质量社会健康维度越高。
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引用次数: 0
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Jundishapur Journal of Chronic Disease Care
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