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Doing dementia differently: A range of co-produced resources from the IDEAL programme 以不同的方式对待痴呆症:来自 IDEAL 计划的一系列共同制作资源
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.23
Catherine Charlwood, Linda Clare
This article introduces different free resources for people with dementia, carers and professionals working within dementia care. All were produced as part of the IDEAL research programme, drawing on the wealth of evidence created as part of this large cohort longitudinal study. Explaining the background, the creation process and where to find each resource, the article directs readers towards resources readily available for use, as well as information about forthcoming resources.Four ready-to-use resources are described in detail. The Living with Dementia Toolkit is a comprehensive suite of resources for people with dementia and carers. It also features lots of different people with dementia and carers sharing their stories in their own words. The Toolkit is being widely used in NHS and third-sector settings, as well as by community groups. My Life Questionnaire is a new measure of living well which was co-produced with people living with mild-to-moderate dementia and scientifically validated with the IDEAL cohort. ‘The World Turned Upside Down’ began as a play and became a documentary film which can be used to raise awareness, promote discussion and within educational or continuing professional development settings. ‘The Bridge’ is an opera about the experience of living with dementia through the diagnostic process and how a husband and wife manage following diagnosis. Both artistic productions involved people with lived experience advising the performers on how to portray dementia authentically.
本文介绍了为痴呆症患者、照护者和痴呆症照护专业人员提供的各种免费资源。所有这些资源都是作为 IDEAL 研究计划的一部分而制作的,并借鉴了这项大型队列纵向研究中产生的大量证据。文章解释了每种资源的背景、创建过程和查找位置,并引导读者查找现成可用的资源以及即将发布的资源信息。与痴呆症共存工具包》是一套面向痴呆症患者和照护者的综合资源。它还收录了许多不同的痴呆症患者和照护者用自己的语言分享的故事。该工具包被广泛应用于国家医疗服务体系、第三部门以及社区团体。我的生活问卷 "是一项新的衡量生活质量的指标,由轻度至中度痴呆症患者共同制作,并在 IDEAL 群体中进行了科学验证。颠倒的世界》最初是一出戏剧,后来成为一部纪录片,可用于提高认识、促进讨论,以及在教育或持续专业发展环境中使用。桥》是一部歌剧,讲述了痴呆症患者在诊断过程中的生活经历,以及一对夫妻在确诊后如何处理问题。这两部艺术作品都有亲身经历者参与其中,就如何真实地描绘痴呆症向表演者提供建议。
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引用次数: 0
Peter Britton 1940–2023: Reflections on an inspirational pioneer 彼得-布里顿 1940-2023对鼓舞人心的先驱的思考
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.4
Bob Woods, Robin Morris
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引用次数: 0
When words matter: Building on the DEEP guidance for Dementia-friendly documents 当文字变得重要时以 "关爱痴呆症文档"(DEEP)指南为基础
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.28
Heather Eason, Mark Judd, Rebecca Judd, Sally Stapleton
People living with dementia have the right to access dementia-friendly information about issues that concern them. This article builds on prior work by organisations such as the Dementia Engagement and Empowerment Project (DEEP), the Alzheimer’s Society, and AbilityNet. The article includes insights from people living with dementia. We have grouped findings into three categories explaining how to plan, design, and write dementia-friendly documents in English. We discuss using technology to access information and how adapting academic, corporate, and language norms can enhance accessibility. The article also higldiglds the need for further work on UK indigenous and community languages to provide a comprehensive approach to dementia-friendly information.
痴呆症患者有权获取与他们相关的痴呆症友好信息。本文以痴呆症参与和赋权项目(DEEP)、阿尔茨海默氏症协会和 AbilityNet 等组织的前期工作为基础。文章中包含了痴呆症患者的见解。我们将研究结果分为三类,解释了如何规划、设计和撰写对痴呆症友好的英文文档。我们讨论了使用技术获取信息,以及调整学术、企业和语言规范如何提高无障碍程度。文章还强调了进一步研究英国本土语言和社区语言的必要性,以便为痴呆症友好信息提供全面的方法。
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引用次数: 0
Trauma-informed ideas and trauma interventions when working with older people 与老年人一起工作时的创伤知情理念和创伤干预措施
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.77
Alice Plummer, Julie Griffin, Carolien Lamers
Trauma and traumatic experiences can have a negative impact on people’s wellbeing, quality of life, their social interactions and feelings of connectedness. This paper introduces the Trauma-Informed Wales Framework (2022), highlight some of the opportunities and barriers in embedding trauma interventions and trauma-informed ways of thinking and acting when working with older people in mental health services, and, to stimulate further discussion.
创伤和创伤经历会对人们的福祉、生活质量、社会交往和联系感产生负面影响。本文介绍了威尔士创伤知情框架(2022),强调了在心理健康服务中与老年人合作时,嵌入创伤干预措施和创伤知情思维与行动方式的一些机会和障碍,并希望引发进一步的讨论。
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引用次数: 0
Una Holden winner 乌娜-霍尔登获胜者
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.7
Emily Corcoran
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引用次数: 0
Peter Britton 1940–2023: Reflections on an inspirational pioneer 彼得-布里顿 1940-2023对鼓舞人心的先驱的思考
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.4
Bob Woods, Robin Morris
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引用次数: 0
Bill Downes winner 比尔-唐斯获奖者
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.8
Anna Crabtree
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引用次数: 0
Doing dementia differently: A range of co-produced resources from the IDEAL programme 以不同的方式对待痴呆症:来自 IDEAL 计划的一系列共同制作资源
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.23
Catherine Charlwood, Linda Clare
This article introduces different free resources for people with dementia, carers and professionals working within dementia care. All were produced as part of the IDEAL research programme, drawing on the wealth of evidence created as part of this large cohort longitudinal study. Explaining the background, the creation process and where to find each resource, the article directs readers towards resources readily available for use, as well as information about forthcoming resources.Four ready-to-use resources are described in detail. The Living with Dementia Toolkit is a comprehensive suite of resources for people with dementia and carers. It also features lots of different people with dementia and carers sharing their stories in their own words. The Toolkit is being widely used in NHS and third-sector settings, as well as by community groups. My Life Questionnaire is a new measure of living well which was co-produced with people living with mild-to-moderate dementia and scientifically validated with the IDEAL cohort. ‘The World Turned Upside Down’ began as a play and became a documentary film which can be used to raise awareness, promote discussion and within educational or continuing professional development settings. ‘The Bridge’ is an opera about the experience of living with dementia through the diagnostic process and how a husband and wife manage following diagnosis. Both artistic productions involved people with lived experience advising the performers on how to portray dementia authentically.
本文介绍了为痴呆症患者、照护者和痴呆症照护专业人员提供的各种免费资源。所有这些资源都是作为 IDEAL 研究计划的一部分而制作的,并借鉴了这项大型队列纵向研究中产生的大量证据。文章解释了每种资源的背景、创建过程和查找位置,并引导读者查找现成可用的资源以及即将发布的资源信息。与痴呆症共存工具包》是一套面向痴呆症患者和照护者的综合资源。它还收录了许多不同的痴呆症患者和照护者用自己的语言分享的故事。该工具包被广泛应用于国家医疗服务体系、第三部门以及社区团体。我的生活问卷 "是一项新的衡量生活质量的指标,由轻度至中度痴呆症患者共同制作,并在 IDEAL 群体中进行了科学验证。颠倒的世界》最初是一出戏剧,后来成为一部纪录片,可用于提高认识、促进讨论,以及在教育或持续专业发展环境中使用。桥》是一部歌剧,讲述了痴呆症患者在诊断过程中的生活经历,以及一对夫妻在确诊后如何处理问题。这两部艺术作品都有亲身经历者参与其中,就如何真实地描绘痴呆症向表演者提供建议。
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引用次数: 0
How to organise the FPOP conference! 如何组织 FPOP 会议!
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.2
Carolien Lamers
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引用次数: 0
Supporting care homes with behaviour that challenges: A psychosocial approach 为有行为挑战的护理院提供支持:社会心理方法
Pub Date : 2024-02-01 DOI: 10.53841/bpsfpop.2024.1.165.53
Amber Scotting, Lewis Slade
The Greenwich and Bexley dementia Care Home Team is a novel test-and-learn service designed to upskill care home staff and support residents living with dementia with behaviours that challenge. Clinical outcomes and qualitative feedback suggest a positive impact on care home staffs’ self-efficacy in the application of biopsychosocial approaches in reducing or understanding behaviours that challenge. Limitations and future directions are discussed.
格林威治和贝克斯利痴呆症护理院团队是一项新颖的 "测试-学习 "服务,旨在提高护理院员工的技能,并为有挑战行为的痴呆症患者提供支持。临床结果和定性反馈表明,在应用生物心理社会方法减少或理解挑战行为方面,该服务对护理院员工的自我效能产生了积极影响。本文还讨论了局限性和未来发展方向。
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引用次数: 0
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FPOP Bulletin: Psychology of Older People
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