Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.23
Catherine Charlwood, Linda Clare
This article introduces different free resources for people with dementia, carers and professionals working within dementia care. All were produced as part of the IDEAL research programme, drawing on the wealth of evidence created as part of this large cohort longitudinal study. Explaining the background, the creation process and where to find each resource, the article directs readers towards resources readily available for use, as well as information about forthcoming resources.Four ready-to-use resources are described in detail. The Living with Dementia Toolkit is a comprehensive suite of resources for people with dementia and carers. It also features lots of different people with dementia and carers sharing their stories in their own words. The Toolkit is being widely used in NHS and third-sector settings, as well as by community groups. My Life Questionnaire is a new measure of living well which was co-produced with people living with mild-to-moderate dementia and scientifically validated with the IDEAL cohort. ‘The World Turned Upside Down’ began as a play and became a documentary film which can be used to raise awareness, promote discussion and within educational or continuing professional development settings. ‘The Bridge’ is an opera about the experience of living with dementia through the diagnostic process and how a husband and wife manage following diagnosis. Both artistic productions involved people with lived experience advising the performers on how to portray dementia authentically.
{"title":"Doing dementia differently: A range of co-produced resources from the IDEAL programme","authors":"Catherine Charlwood, Linda Clare","doi":"10.53841/bpsfpop.2024.1.165.23","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.23","url":null,"abstract":"This article introduces different free resources for people with dementia, carers and professionals working within dementia care. All were produced as part of the IDEAL research programme, drawing on the wealth of evidence created as part of this large cohort longitudinal study. Explaining the background, the creation process and where to find each resource, the article directs readers towards resources readily available for use, as well as information about forthcoming resources.Four ready-to-use resources are described in detail. The Living with Dementia Toolkit is a comprehensive suite of resources for people with dementia and carers. It also features lots of different people with dementia and carers sharing their stories in their own words. The Toolkit is being widely used in NHS and third-sector settings, as well as by community groups. My Life Questionnaire is a new measure of living well which was co-produced with people living with mild-to-moderate dementia and scientifically validated with the IDEAL cohort. ‘The World Turned Upside Down’ began as a play and became a documentary film which can be used to raise awareness, promote discussion and within educational or continuing professional development settings. ‘The Bridge’ is an opera about the experience of living with dementia through the diagnostic process and how a husband and wife manage following diagnosis. Both artistic productions involved people with lived experience advising the performers on how to portray dementia authentically.","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"356 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139821344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.4
Bob Woods, Robin Morris
{"title":"Peter Britton 1940–2023: Reflections on an inspirational pioneer","authors":"Bob Woods, Robin Morris","doi":"10.53841/bpsfpop.2024.1.165.4","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.4","url":null,"abstract":"","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"31 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139888592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.28
Heather Eason, Mark Judd, Rebecca Judd, Sally Stapleton
People living with dementia have the right to access dementia-friendly information about issues that concern them. This article builds on prior work by organisations such as the Dementia Engagement and Empowerment Project (DEEP), the Alzheimer’s Society, and AbilityNet. The article includes insights from people living with dementia. We have grouped findings into three categories explaining how to plan, design, and write dementia-friendly documents in English. We discuss using technology to access information and how adapting academic, corporate, and language norms can enhance accessibility. The article also higldiglds the need for further work on UK indigenous and community languages to provide a comprehensive approach to dementia-friendly information.
{"title":"When words matter: Building on the DEEP guidance for Dementia-friendly documents","authors":"Heather Eason, Mark Judd, Rebecca Judd, Sally Stapleton","doi":"10.53841/bpsfpop.2024.1.165.28","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.28","url":null,"abstract":"People living with dementia have the right to access dementia-friendly information about issues that concern them. This article builds on prior work by organisations such as the Dementia Engagement and Empowerment Project (DEEP), the Alzheimer’s Society, and AbilityNet. The article includes insights from people living with dementia. We have grouped findings into three categories explaining how to plan, design, and write dementia-friendly documents in English. We discuss using technology to access information and how adapting academic, corporate, and language norms can enhance accessibility. The article also higldiglds the need for further work on UK indigenous and community languages to provide a comprehensive approach to dementia-friendly information.","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"146 6","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139813005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.77
Alice Plummer, Julie Griffin, Carolien Lamers
Trauma and traumatic experiences can have a negative impact on people’s wellbeing, quality of life, their social interactions and feelings of connectedness. This paper introduces the Trauma-Informed Wales Framework (2022), highlight some of the opportunities and barriers in embedding trauma interventions and trauma-informed ways of thinking and acting when working with older people in mental health services, and, to stimulate further discussion.
{"title":"Trauma-informed ideas and trauma interventions when working with older people","authors":"Alice Plummer, Julie Griffin, Carolien Lamers","doi":"10.53841/bpsfpop.2024.1.165.77","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.77","url":null,"abstract":"Trauma and traumatic experiences can have a negative impact on people’s wellbeing, quality of life, their social interactions and feelings of connectedness. This paper introduces the Trauma-Informed Wales Framework (2022), highlight some of the opportunities and barriers in embedding trauma interventions and trauma-informed ways of thinking and acting when working with older people in mental health services, and, to stimulate further discussion.","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"37 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139817899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.4
Bob Woods, Robin Morris
{"title":"Peter Britton 1940–2023: Reflections on an inspirational pioneer","authors":"Bob Woods, Robin Morris","doi":"10.53841/bpsfpop.2024.1.165.4","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.4","url":null,"abstract":"","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"121 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139828353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.23
Catherine Charlwood, Linda Clare
This article introduces different free resources for people with dementia, carers and professionals working within dementia care. All were produced as part of the IDEAL research programme, drawing on the wealth of evidence created as part of this large cohort longitudinal study. Explaining the background, the creation process and where to find each resource, the article directs readers towards resources readily available for use, as well as information about forthcoming resources.Four ready-to-use resources are described in detail. The Living with Dementia Toolkit is a comprehensive suite of resources for people with dementia and carers. It also features lots of different people with dementia and carers sharing their stories in their own words. The Toolkit is being widely used in NHS and third-sector settings, as well as by community groups. My Life Questionnaire is a new measure of living well which was co-produced with people living with mild-to-moderate dementia and scientifically validated with the IDEAL cohort. ‘The World Turned Upside Down’ began as a play and became a documentary film which can be used to raise awareness, promote discussion and within educational or continuing professional development settings. ‘The Bridge’ is an opera about the experience of living with dementia through the diagnostic process and how a husband and wife manage following diagnosis. Both artistic productions involved people with lived experience advising the performers on how to portray dementia authentically.
{"title":"Doing dementia differently: A range of co-produced resources from the IDEAL programme","authors":"Catherine Charlwood, Linda Clare","doi":"10.53841/bpsfpop.2024.1.165.23","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.23","url":null,"abstract":"This article introduces different free resources for people with dementia, carers and professionals working within dementia care. All were produced as part of the IDEAL research programme, drawing on the wealth of evidence created as part of this large cohort longitudinal study. Explaining the background, the creation process and where to find each resource, the article directs readers towards resources readily available for use, as well as information about forthcoming resources.Four ready-to-use resources are described in detail. The Living with Dementia Toolkit is a comprehensive suite of resources for people with dementia and carers. It also features lots of different people with dementia and carers sharing their stories in their own words. The Toolkit is being widely used in NHS and third-sector settings, as well as by community groups. My Life Questionnaire is a new measure of living well which was co-produced with people living with mild-to-moderate dementia and scientifically validated with the IDEAL cohort. ‘The World Turned Upside Down’ began as a play and became a documentary film which can be used to raise awareness, promote discussion and within educational or continuing professional development settings. ‘The Bridge’ is an opera about the experience of living with dementia through the diagnostic process and how a husband and wife manage following diagnosis. Both artistic productions involved people with lived experience advising the performers on how to portray dementia authentically.","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"29 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139881118","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.2
Carolien Lamers
{"title":"How to organise the FPOP conference!","authors":"Carolien Lamers","doi":"10.53841/bpsfpop.2024.1.165.2","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.2","url":null,"abstract":"","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"20 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139882231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-02-01DOI: 10.53841/bpsfpop.2024.1.165.53
Amber Scotting, Lewis Slade
The Greenwich and Bexley dementia Care Home Team is a novel test-and-learn service designed to upskill care home staff and support residents living with dementia with behaviours that challenge. Clinical outcomes and qualitative feedback suggest a positive impact on care home staffs’ self-efficacy in the application of biopsychosocial approaches in reducing or understanding behaviours that challenge. Limitations and future directions are discussed.
{"title":"Supporting care homes with behaviour that challenges: A psychosocial approach","authors":"Amber Scotting, Lewis Slade","doi":"10.53841/bpsfpop.2024.1.165.53","DOIUrl":"https://doi.org/10.53841/bpsfpop.2024.1.165.53","url":null,"abstract":"The Greenwich and Bexley dementia Care Home Team is a novel test-and-learn service designed to upskill care home staff and support residents living with dementia with behaviours that challenge. Clinical outcomes and qualitative feedback suggest a positive impact on care home staffs’ self-efficacy in the application of biopsychosocial approaches in reducing or understanding behaviours that challenge. Limitations and future directions are discussed.","PeriodicalId":306496,"journal":{"name":"FPOP Bulletin: Psychology of Older People","volume":"299 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139884403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}