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Adapting the World Café method to explore interprofessional and interdisciplinary collaboration in geriatric oncology: Reflections from virtual and in-person sessions. 适应世界咖啡馆的方法,探索老年肿瘤学的跨专业和跨学科合作:来自虚拟和面对面会议的反思。
Pub Date : 2025-05-01 eCollection Date: 2025-01-01
Fay J Strohschein, Kristen Haase, Manon Lemonde, Sophie Pilleron, Susie Monginot, Fay Bennie, Michelle Hannan, Vanya Slavova-Boneva, Cassandra Vonnes, Caitríona Barrett, Martine Puts
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引用次数: 0
Bridging gaps in cancer care for young adults: A collaborative e-learning initiative for oncology nurses. 弥合年轻人癌症护理的差距:肿瘤护士的协作电子学习倡议。
Pub Date : 2025-05-01 eCollection Date: 2025-01-01 DOI: 10.5737/23688076353496
Karine Bilodeau, Pegah Torabi, Charlotte Gélinas-Gagné, Billy Vinette, Pascale Rousseau, Benedicta Hartono, Ludovic Tamaro, Nicolas Fernandez

Background: The global incidence of cancer in young adults aged 18 to 39 has risen significantly, presenting unique challenges that permeate many aspects of their lives, from education to careers and finances. Despite expressing a desire for psychological support, many young adults are reluctant to share their concerns with nurses. As a result, these young adults may feel that their unique experience is not properly acknowledged and that their complex needs are not satisfied.

Objectives: This project aims to share the experience of developing an e-learning training for continuous nursing education, focusing on enhancing nurses' awareness, knowledge, and support for young adults with hematological cancer through a collaborative approach.

Methods: Utilizing verbatim data from co-design workshops, literature reviews, and The Leukemia & Lymphoma Society of Canada (LLSC) podcasts and resources, a multidisciplinary team developed three modules on understanding young adults, exploring psychosocial challenges, and providing effective support. Pedagogical approaches, inspired by Adult Learning Theory, were combined for a comprehensive and engaging learning experience.

Findings: The collaborative e-learning initiative provides a tailored educational experience for nurses that addresses young adults' unique needs and challenges. The program's innovation consists of collaboration with patient-partners and community organizations to design, develop and evaluate its content and its structure. The preliminary evaluation highlights the program's strong potential to enhance nurses' awareness in addressing the unique psychosocial needs of young adults.

背景:全球18至39岁年轻人的癌症发病率显著上升,从教育到职业和财务,他们生活的许多方面都面临着独特的挑战。尽管表达了对心理支持的渴望,但许多年轻人不愿与护士分享他们的担忧。因此,这些年轻人可能会觉得他们独特的经历没有得到适当的承认,他们复杂的需求没有得到满足。目的:本项目旨在分享为继续护理教育开发电子学习培训的经验,重点是通过合作的方式提高护士对血液病青年癌症的认识、知识和支持。方法:利用来自共同设计研讨会、文献综述、加拿大白血病和淋巴瘤协会(LLSC)播客和资源的逐字数据,一个多学科团队开发了三个模块,分别是了解年轻人、探索社会心理挑战和提供有效支持。受成人学习理论启发的教学方法结合在一起,提供全面而引人入胜的学习体验。研究结果:协作式电子学习计划为护士提供了量身定制的教育体验,解决了年轻人的独特需求和挑战。该项目的创新包括与患者合作伙伴和社区组织合作设计、开发和评估其内容和结构。初步评估强调了该方案的强大潜力,以提高护士的意识,在解决年轻人独特的社会心理需求。
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引用次数: 0
Solid reasons to equitably screen. 公平筛选的充分理由。
Pub Date : 2025-05-01 eCollection Date: 2025-01-01
Nav Persaud, Aisha Lofters

Preventive care can address inequities, or avoidable disparities in health outcomes. Preventive care, including screening for cardiovascular disease and cancer, and health promotion including offering counselling and preventive treatments, remains a routine part of primary care for good reasons. Here, we provide a fresh perspective on preventive care that focuses on health equity and we explain how centering on health equity can bring into focus the demonstrated benefits of screening in the context of other primary care interventions, the importance of patient preferences, and the relative magnitude of screening harms. Informed patients often prefer screening, and this should be offered where reasonable and the potential implications of negative screening recommendations for health equity should be carefully considered. The evidence for screening is better than the evidence of many other routine and uncontroversial aspects of care and the downsides of screening are sometimes overstated.

预防性保健可以解决卫生结果方面的不公平现象或可避免的差异。预防保健,包括心血管疾病和癌症筛查,以及促进健康,包括提供咨询和预防性治疗,仍然是初级保健的常规组成部分,这是有充分理由的。在这里,我们提供了一个关注健康公平的预防保健的新视角,我们解释了以健康公平为中心如何在其他初级保健干预措施的背景下关注筛查的已证明的好处,患者偏好的重要性,以及筛查危害的相对程度。知情的患者往往更喜欢筛查,应在合理的情况下提供筛查,并应仔细考虑阴性筛查建议对健康公平的潜在影响。筛查的证据比许多其他常规和无争议的护理方面的证据更好,筛查的缺点有时被夸大了。
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引用次数: 0
Informal cancer caregivers' perceptions on dyadic exercise with their care recipients. 非正式癌症照护者对与其照护对象进行二元运动的看法。
Pub Date : 2025-05-01 eCollection Date: 2025-01-01 DOI: 10.5737/23688076353446
Thomas Christensen, Colleen Cuthbert, Melanie R Keats

Purpose: To explore the needs, preferences, and opinions of informal cancer caregivers regarding exercise programs.

Methods: Guided by an interpretative description approach, semi-structured interviews with eight informal cancer caregivers were conducted. Interviews were transcribed verbatim and analyzed using an iterative approach.

Results: A throughline of missed opportunities to support informal cancer caregiver health with dyadic exercise programs under-pinned three themes in the data: (1) No Time for Exercise, (2) Lack of Oncology Care Team Support, and (3) Do It for Them. Each theme was characterized by opposing barriers and opportunities to participating in dyadic exercise programs.

Conclusions: Informal cancer caregivers appear ready and willing to participate in dyadic exercise programs with their care recipient, yet opportunities and supports to do so are limited. Oncology nurses may play an important role in supporting their patients to be physically active through referrals to exercise programs led by qualified exercise professionals.

目的:探讨非正式癌症护理人员对运动项目的需求、偏好和意见。方法:在解释性描述方法的指导下,对8名非正式癌症护理人员进行了半结构化访谈。访谈被逐字记录下来,并使用迭代方法进行分析。结果:通过二元运动项目支持非正式癌症护理人员健康的一系列错失机会,支撑了数据中的三个主题:(1)没有时间锻炼,(2)缺乏肿瘤护理团队支持,(3)为他们做。每个主题的特点是对立的障碍和机会参加二元运动项目。结论:非正式的癌症护理人员似乎已经准备好并愿意与他们的护理对象一起参加二元运动项目,然而这样做的机会和支持是有限的。肿瘤护士可以通过推荐患者参加由合格的运动专业人员领导的运动项目,在支持患者进行身体活动方面发挥重要作用。
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引用次数: 0
Determinants of supportive care experiences for women living with breast cancer in rural communities of British Columbia. 不列颠哥伦比亚省农村地区乳腺癌妇女支持性护理经验的决定因素
Pub Date : 2025-05-01 eCollection Date: 2025-01-01 DOI: 10.5737/23688076353413
Melba Sheila D'Souza, Ruby Gidda, Subrahmanya N Karkada, Ashwin Nairy

Background: Enabling women with breast cancer to actively participate in their care requires a better understanding of the interplay between contextual factors and mediators. This research explored the determinants of supportive care experiences for women living with breast cancer in rural communities of British Columbia.

Methods: The study used a quantitative, descriptive, cross-sectional design. A survey regarding demographic, health, decision support, and breast cancer supportive care experiences was administered to 100 participants.

Results: The combination of being less than 40 years old, having an undergraduate education, and being three to five years post-diagnosis is associated with higher (more positive) total survey scores. A linear combination of undergraduate school and health problems post-treatment showed higher medical treatment scores, with R2 = 23%.

Conclusion: The findings emphasize the growing need for psychosocial and emotional supportive care for cancer survivors. The results highlight the potential benefits of informed decision-support tools to fortify supportive care, emphasizing the need to facilitate better supportive care services for women battling breast cancer.

Recommendation: Supportive care plays a crucial role in guiding individuals' experiences with cancer through the healthcare system. Increasing supportive care centres, especially in rural areas, could improve patient-reported outcomes, and experiences, and ensure timely access to care.

背景:使乳腺癌妇女积极参与她们的护理需要更好地了解环境因素和介质之间的相互作用。本研究探讨了不列颠哥伦比亚省农村地区乳腺癌妇女支持性护理经验的决定因素。方法:本研究采用定量、描述性、横断面设计。对100名参与者进行了一项关于人口统计、健康、决策支持和乳腺癌支持性护理经验的调查。结果:年龄小于40岁、受过本科教育、诊断后3 - 5年与更高(更积极)的总调查得分相关。本科学业与治疗后健康问题的线性组合显示更高的医疗得分,R2 = 23%。结论:研究结果强调了癌症幸存者越来越需要心理社会和情感支持护理。结果强调了知情决策支持工具加强支持性护理的潜在益处,强调了为与乳腺癌作斗争的妇女提供更好的支持性护理服务的必要性。建议:支持性护理在通过医疗保健系统指导个人癌症经历方面起着至关重要的作用。增加支持性护理中心,特别是在农村地区,可以改善患者报告的结果和经验,并确保及时获得护理。
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引用次数: 0
Breast and colorectal cancer survivors' experience with transition to primary care provider follow-up care : A qualitative study on cancer type and sex. 乳腺癌和结直肠癌幸存者过渡到初级保健提供者随访护理的经历:癌症类型和性别的定性研究
Pub Date : 2025-05-01 eCollection Date: 2025-01-01 DOI: 10.5737/23688076353463
Lauriane Giguère, Brittany Mutsaers, Dina Babiker, Paola Garcia, Tori Langmuir, Carrie MacDonald-Liska, Justin Presseau, Gail Larocque, Cheryl Harris, Marie-Hélène Chomienne, Kednapa Thavorn, Sophie Lebel

As of 2024, 64% of cancer survivors live five years or longer after their treatment. However, this growing population, with its specific follow-up care needs, has struggled with the transition from active cancer treatment to follow-up in primary care. More information is required on what facilitates or hinders this transition. Potential factors that influence how cancer survivors experience this transition include sex and cancer type. Using secondary thematic and content analysis of 30 colorectal and breast cancer survivors interviews, we examined the impact of sex and cancer type on survivorship experiences. Themes extracted showed that sex and cancer type influenced survivors' experience of transition both intersectionally and separately. Colorectal cancer survivors reported more late and long-term side effects than breast cancer survivors, with differently described and experienced quality of life (QOL) and unmet needs. Males relied more on their wives to manage their follow-up care and were more distant with their healthcare providers, while females took charge of their own follow-up care and reported closeness to their healthcare providers, which favorably impacted their follow-up care transition.

截至2024年,64%的癌症幸存者在接受治疗后存活了五年或更长时间。然而,这一不断增长的人口,由于其特殊的随访护理需求,一直在努力从积极的癌症治疗过渡到初级保健的随访。需要更多的信息来说明是什么促进或阻碍了这种转变。影响癌症幸存者如何经历这种转变的潜在因素包括性别和癌症类型。通过对30名结直肠癌和乳腺癌幸存者访谈的次要主题和内容分析,我们研究了性别和癌症类型对幸存者经历的影响。提取的主题表明,性别和癌症类型对幸存者的过渡经历既有交叉影响,也有单独影响。结直肠癌幸存者报告的晚期和长期副作用比乳腺癌幸存者更多,生活质量(QOL)和未满足需求的描述和体验不同。男性更多地依赖妻子来管理他们的后续护理,与他们的医疗保健提供者的距离更远,而女性负责自己的后续护理,并报告与他们的医疗保健提供者的亲密关系,这有利于他们的后续护理过渡。
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引用次数: 0
Call to widen our perspectives in our practice. 呼吁在实践中拓宽视野。
Pub Date : 2025-05-01 eCollection Date: 2025-01-01
Margaret Fitch
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引用次数: 0
Advancing health equity for underserved and priority populations: CANO/ACIO and Canadian Cancer Society (CCS) Joint Symposium. 促进服务不足和重点人群的卫生公平:CANO/ACIO和加拿大癌症协会(CCS)联合研讨会。
Pub Date : 2025-03-01 eCollection Date: 2025-01-01
Joanne Crawford, Elizabeth Holmes, Jagbir Kaur, Allison Wiens, Gabriella Wong Ken

Advancing health equity is imperative to reducing the current social and health inequities that impact those at risk of or diagnosed with cancer. The CANO/ACIO National Underserved and Priority Population (UPP) Working Group and the Canadian Cancer Society (CCS) partnered to create a forum for dialogue at a joint symposium during the 35th Annual Conference. The symposium began with a presentation of findings from a CCS-led nationwide project that focused on advancing equity for 10 underserved communities or groups. The aim of the CCS project was to understand gaps, barriers and challenges that underserved communities face in accessing information, support and care; the report is foundational to guide engagement efforts and strategies for key underserved groups across Canada. To situate the goals of advancing health equity, oncology nurses shared experiences of community engagement, partnerships and tools used in practice. This paper will provide a synthesis of the CCS report along with panel members' experience on ways in which healthy equity was advanced in their communities and settings.

促进卫生公平对于减少当前影响癌症风险人群或被诊断为癌症患者的社会和卫生不公平现象至关重要。CANO/ACIO国家服务不足和优先人群(UPP)工作组与加拿大癌症协会(CCS)合作,在第35届年会期间的联合研讨会上建立了一个对话论坛。研讨会首先介绍了一个由ccs牵头的全国性项目的调查结果,该项目的重点是促进10个服务不足的社区或群体的公平。CCS项目的目的是了解服务不足的社区在获取信息、支持和护理方面面临的差距、障碍和挑战;该报告是指导加拿大主要服务不足群体参与工作和战略的基础。为了实现促进卫生公平的目标,肿瘤科护士分享了社区参与、伙伴关系和实践中使用的工具的经验。本文将综合介绍CCS报告以及小组成员关于如何在其社区和环境中促进健康公平的经验。
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引用次数: 0
Correlation of COOP/WONCA charts with the Spanish version of the Nottingham Health Profile for oncology patients and the Beck Inventories: Clinical implications. COOP/WONCA图表与西班牙版肿瘤患者诺丁汉健康概况和贝克量表的相关性:临床意义
Pub Date : 2025-03-01 eCollection Date: 2025-01-01 DOI: 10.5737/23688076352285
Esther Soler Climent, Matilde Miguel Manzanera, Vanesa Pavia Miralles, Aitor Serrano Saez

Background: The rising prevalence of cancer presents a major public health challenge in Spain and globally. In 2023, the Spanish Society of Medical Oncology (SEOM) projected 279,260 new cancer cases in Spain, with colon, breast, lung, prostate, and bladder cancers being predominant. Cancer remains a leading cause of death worldwide, with 18.1 million new cases and 9.5 million deaths in 2018, expected to rise significantly by 2040. Given these alarming statistics, there is an urgent need to address the complex needs of cancer patients. This study assesses the psychometric properties of the COOP/WONCA charts and Nottingham Health Profile (NHP) in oncology patients, evaluating their correlation with the Beck Anxiety Inventory (BAI) and Beck Depression Inventory-II (BDI-2).

Methods: An analytical observational cohort study included oncology patients from the General Hospital of Elche, Spain, undergoing chemotherapy and/or radiotherapy. The COOP/WONCA charts, NHP, BAI, and BDI-2 assessed health-related quality of life (HRQoL) and psychological states at baseline, 15 days after treatment initiation, monthly during treatment, and at the end of treatment. Correlations were analyzed using Pearson and Spearman coefficients.

Results: Among 75 patients (36% men, 64% women), significant correlations were observed between COOP/WONCA charts and NHP dimensions, including energy (rho = 0.560), pain (rho = 0.520), physical movement (rho = 0.718), emotional reaction (rho = 0.662), sleep (rho = 0.486), social isolation (rho = 0.674), and functionality (rho = 0.778), all p < 0.001. HRQoL improvements were significantly correlated with reductions in anxiety and depression.

Conclusion: The COOP/WONCA charts are effective tools for assessing HRQoL in oncology patients, correlating strongly with the NHP and psychological states measured by BAI and BDI-2. Future research should explore their applicability in diverse clinical settings and the development of personalized interventions integrating HRQoL assessments.

背景:在西班牙和全球范围内,癌症患病率的上升是一个重大的公共卫生挑战。2023年,西班牙肿瘤医学协会(SEOM)预计西班牙将有279,260例新发癌症病例,其中结肠癌、乳腺癌、肺癌、前列腺癌和膀胱癌占主导地位。癌症仍然是全球死亡的主要原因,2018年有1810万新病例和950万死亡病例,预计到2040年将大幅上升。鉴于这些令人震惊的统计数据,迫切需要解决癌症患者的复杂需求。本研究评估了肿瘤患者的COOP/WONCA量表和诺丁汉健康档案(NHP)的心理测量特性,并评估了它们与贝克焦虑量表(BAI)和贝克抑郁量表- ii (BDI-2)的相关性。方法:一项分析性观察性队列研究纳入了来自西班牙埃尔切总医院接受化疗和/或放疗的肿瘤患者。COOP/WONCA图表、NHP、BAI和BDI-2在基线、治疗开始后15天、治疗期间和治疗结束时每月评估与健康相关的生活质量(HRQoL)和心理状态。使用Pearson和Spearman系数分析相关性。结果:75例患者(男性占36%,女性占64%)中,COOP/WONCA量表与NHP维度(能量(rho = 0.560)、疼痛(rho = 0.520)、身体运动(rho = 0.718)、情绪反应(rho = 0.662)、睡眠(rho = 0.486)、社会隔离(rho = 0.674)、功能(rho = 0.778)均有显著相关性,p < 0.001。HRQoL的改善与焦虑和抑郁的减少显著相关。结论:COOP/WONCA量表是评估肿瘤患者HRQoL的有效工具,与NHP和BAI、BDI-2测量的心理状态密切相关。未来的研究应探索其在不同临床环境中的适用性,并结合HRQoL评估开发个性化干预措施。
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引用次数: 0
Moral distress among family caregivers of people with cancer in palliative care: A qualitative study. 姑息治疗中癌症患者家庭照顾者的道德困扰:一项定性研究。
Pub Date : 2025-03-01 eCollection Date: 2025-01-01 DOI: 10.5737/23688076352361
Ana Júlia Rozo, Milena Schneiders, Mateus Rodrigo Palombit, Kassiano Carlos Sinski, Rafael de Lima Carmo, Ana Cláudia Mesquita Garcia, Jeferson Santos Araújo, Júlia Valéria de Oliveira Vargas Bitencourt, Rosana Aparecida Spadoti Dantas, Vander Monteiro da Conceição

The study aimed to understand the triggering events of moral distress according to the family caregivers of people with cancer in palliative care. This is a longitudinal qualitative approach study, using the concept of moral distress as an interpretative reference. Ten family caregivers participated in in-depth interviews. The data were analyzed according to the inductive thematic analysis technique, and two themes were identified. In the first theme, entitled "The repercussions following diagnosis," participants reported the uncertainties they experienced following their family member's cancer diagnosis. In the second theme, entitled "The transformation of daily life", participants expressed how providing care for the family member with cancer changed their daily lives. While experiencing the role of a caregiver, they faced dilemmas and uncertainties that led them to feel moral distress, since this situation will follow them continuously until the outcome of the disease.

本研究旨在了解姑息治疗中癌症患者的家庭照顾者道德困扰的触发事件。这是一项纵向定性研究,使用道德困境的概念作为解释性参考。10名家庭照顾者参与了深度访谈。根据归纳主题分析技术对数据进行分析,确定了两个主题。在第一个名为“诊断后的影响”的主题中,参与者报告了他们在家庭成员被诊断出癌症后所经历的不确定性。在题为“日常生活的转变”的第二个主题中,与会者表达了照顾患有癌症的家庭成员如何改变了他们的日常生活。在经历照顾者的角色时,他们面临两难和不确定性,导致他们感到道德上的痛苦,因为这种情况将持续伴随着他们,直到疾病的结果。
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引用次数: 0
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Canadian Oncology Nursing Journal
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