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An approach to anxiety during watch-and-wait for Chronic Lymphocytic Leukemia: Monitor and move on. 慢性淋巴细胞白血病观察和等待期间的焦虑处理方法:监测并继续前进。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01
Nanette Cox-Kennett

Chronic Lymphocytic Leukemia (CLL) is the most frequently diagnosed hematologic malignancy with the majority of patients at diagnosis in the "watch and wait" stage of treatment - language that gives the perception of an axe waiting to fall, belying the fact that up to 30% of patients will never need treatment in their lifetime. While receiving active surveillance, patients report anxiety, distress, and depression, yet there is little research capturing the experience of this patient population, nor describing interventions to improve their experience (Damen, 2022). In an effort to "do something," patients may turn to often expensive and unproven alternative therapies. At each clinic visit, there is an opportunity to provide relevant and understandable information, resources to address anxiety, and response to unmet needs to increase the patient's experience of shared decision making. Reframing the experience to a more proactive perspective such as 'Monitor and Move On' versus "Watch and Wait' may empower patients with CLL along their trajectory.

慢性淋巴细胞白血病(CLL)是最常见的血液系统恶性肿瘤,大多数患者在确诊时处于 "观察和等待 "的治疗阶段--这种语言给人一种等待斧头落下的感觉,而事实上,多达 30% 的患者终生都不需要治疗。在接受积极监测期间,患者会感到焦虑、痛苦和抑郁,但很少有研究能反映出这部分患者的经历,也很少有研究能描述改善他们经历的干预措施(Damen,2022 年)。为了 "有所作为",患者可能会求助于昂贵且未经证实的替代疗法。在每次就诊时,都有机会提供相关且易于理解的信息、解决焦虑的资源以及对未满足需求的回应,以增加患者共同决策的体验。从 "监测和继续"(Monitor and Move On)与 "观察和等待"(Watch and Wait)等更积极主动的角度重新构建就诊体验,可增强 CLL 患者的能力。
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引用次数: 0
Leucémie lymphoïde chronique et anxiété: « surveiller et continuer à vivre » plutôt qu’« observer et attendre ». 慢性淋巴细胞白血病与焦虑:"监测并继续生活 "而非 "观察并等待"。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01
Nanette Cox-Kennett
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引用次数: 0
Partenariats en soins infirmiers oncologiques: une occasion de façonner l’avenir du soutien à la prise en charge des effets toxiques après les heures ouvrables. 肿瘤护理合作:塑造下班后毒性管理支持未来的机会。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01
Lorraine Martelli, Sherry Hnatyshyn-Webster, Bo Green
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引用次数: 0
Oncology nursing partnerships shape the future of after-hours toxicity management support. 肿瘤护理合作塑造了下班后毒性管理支持的未来。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01
Lorraine Martelli, Sherry Hnatyshyn-Webster, Bo Green

Emergency department (ED) visits and hospitalizations are common among patients receiving cancer treatments. Recognizing the need for appropriate toxicity management for cancer patients in Ontario, a Toxicity Management Advisory Committee (TMAC) was established by Ontario Health - Cancer Care Ontario (OH-CCO) in December 2016. The TMAC's recommendations included ensuring patients have access to remote toxicity and symptom management advice (i.e., tele-triage) from a knowledgeable provider. Following the initial success of an after-hours pilot, OH-CCO entered into a partnership with Bayshore HealthCare Limited to launch the provincial after-hours toxicity management telephone support line - CareChart Digital Health - for patients on cancer treatment. The goals of the partnership were to decrease ED utilization through enhanced toxicity management, and to enhance coordination and communication to improve person-centred care. Since 2018, a team of specialized oncology nurses have supported patients across 72 hospitals after hours (e.g., evenings, weekends, and holidays) utilizing evidence-based tele-triage tools including the pan-Canadian Oncology Symptom Triage and Remote Support (COSTaRS) practice guides. Nurses managed most of the calls with self-management strategies and 24% of the callers were referred to the ED. There was an estimated annualized 5,211 ED visits saved, resulting in provincial cost-savings of $3.8 million. Patient experience surveys revealed more than 90% of patients who completed the survey agreed or strongly agreed that they had a good experience with this service and expressed high satisfaction with the quality of the service on all parameters asked.

急诊科(ED)就诊和住院治疗在接受癌症治疗的患者中很常见。认识到安大略省癌症患者需要适当的毒性管理,安大略省卫生厅-安大略省癌症护理中心(OH-CCO)于 2016 年 12 月成立了毒性管理咨询委员会(TMAC)。TMAC 的建议包括确保患者能够获得知识丰富的医疗服务提供者提供的远程毒性和症状管理建议(即远程分诊)。在下班后试点取得初步成功后,OH-CCO 与 Bayshore HealthCare Limited 建立了合作伙伴关系,为癌症治疗患者开通了省级下班后毒性管理电话支持热线 CareChart Digital Health。合作的目标是通过加强毒性管理减少急诊室的使用率,并加强协调和沟通,改善以人为本的护理。自 2018 年以来,肿瘤专科护士团队利用循证远程分诊工具(包括泛加拿大肿瘤症状分诊和远程支持(COSTaRS)实践指南),在下班后(如晚上、周末和节假日)为 72 家医院的患者提供支持。护士通过自我管理策略处理了大部分呼叫,24% 的呼叫者被转诊至急诊室。据估计,每年可减少 5,211 次急诊室就诊,为省节约成本 380 万美元。病人体验调查显示,超过 90% 的病人在填写调查问卷时表示同意或非常同意他们在使用这项服务时有良好的体验,并对服务质量的所有参数表示高度满意。
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引用次数: 0
Building bridges between clinic and community: Supporting patients and caregivers living in rural and remote Canada. 在诊所和社区之间架起桥梁:为居住在加拿大农村和偏远地区的病人和护理人员提供支持。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01
Reanne Booker

Advances in the detection, diagnosis, and treatment of cancer have paralleled significant developments in the understanding of tumour biology, pathophysiology, and genomics. In spite of this, cancer remains the leading cause of death in Canada, with an estimated two in five Canadians expected to be diagnosed with cancer and one in four Canadians expected to die of cancer in their lifetime. Although Canada has a publicly funded, universal healthcare system, profound inequities exist across the country. Such inequities are often due to a multitude of intersecting factors. The focus of this paper is to review the impact of rurality on cancer care. People residing in rural and remote regions are known to have reduced access to and availability of cancer care, from prevention through diagnosis, treatment, follow-up, and palliative care. Potential strategies to mitigate the challenges associated with rurality will be discussed, including an overview of the role that nurses can play in addressing the needs of patients in rural regions. Oncology nurses are well suited to help support patients, their loved ones, and healthcare colleagues in rural settings with a view to helping improve equity in access to care, quality of care, and outcomes of care for all Canadians.

在检测、诊断和治疗癌症方面取得进展的同时,人们对肿瘤生物学、病理生理学和基因组学的认识也有了重大发展。尽管如此,癌症仍然是加拿大人的主要死因,估计每五个加拿大人中就有两人会被诊断出患有癌症,每四个加拿大人中就有一人会在一生中死于癌症。尽管加拿大拥有一个由政府资助的全民医疗保健系统,但全国各地仍存在严重的不平等现象。这种不平等往往是由多种交叉因素造成的。本文的重点是回顾农村地区对癌症治疗的影响。众所周知,居住在农村和偏远地区的人们从预防到诊断、治疗、随访和姑息治疗,获得癌症护理的机会和可用性都较低。我们将讨论减轻农村地区相关挑战的潜在策略,包括概述护士在满足农村地区患者需求方面可以发挥的作用。肿瘤学护士非常适合帮助支持农村地区的患者、其亲人和医疗保健同事,以期帮助改善所有加拿大人在获得护理、护理质量和护理效果方面的公平性。
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引用次数: 0
Cancer and social justice: What's advocacy got to do with it? 癌症与社会正义:宣传有什么用?
Pub Date : 2023-11-01 eCollection Date: 2023-01-01
Andrea Knox, Joanne Crawford, Gabriella Wong Ken

Advocating for all people affected by cancer has been identified as a priority for CANO/ ACIO in its 2021-2025 Strategic Plan (CANO/ACIO, 2022). Acknowledging the need to address social injustices and health inequities in cancer care for underserved and/or vulnerable populations, CANO/ ACIO convened a national Underserved and Priority Population (UPP) Working Group to create guiding principles and actions related to CANO/ACIO's activities. To support achieving its mandate, the working group hosted a workshop at the 2022 CANO/ACIO Annual Conference where members explored cancer as a social justice issue and the role of nursing advocacy as a tool for advancing social justice in oncology. Video case studies were used to facilitate large and small group discussion, which included an exploration of barriers to advocacy and mitigation strategies at the individual, interpersonal, and organizational levels. Findings from the workshop discussions and post-workshop reflection will be used to inform the ongoing work of the UPP Working Group, which includes creating actionable recommendations for CANO/ACIO's advocacy activities. This work is an important step towards ensuring those affected by cancer have the resources and tools needed to access high-quality care at any point of their cancer journey.

在其 2021-2025 年战略计划(CANO/ACIO,2022 年)中,倡导所有癌症患者已被确定为 CANO/ ACIO 的优先事项。由于认识到有必要解决在癌症护理中对服务不足和/或弱势群体的社会不公正和健康不平等问题,加澳新癌症组织召集了一个全国服务不足和重点人群(UPP)工作组,以制定与加澳新癌症组织活动相关的指导原则和行动。为支持工作组完成其任务,工作组在 2022 年 CANO/ACIO 年会期间举办了一次研讨会,与会成员探讨了癌症作为一个社会正义问题以及护理宣传作为促进肿瘤学社会正义的工具所发挥的作用。工作小组利用视频案例研究促进大组和小组讨论,包括探讨个人、人际和组织层面的宣传障碍和缓解策略。研讨会的讨论结果和会后反思将用于为 UPP 工作组正在进行的工作提供信息,其中包括为 CANO/ACIO 的宣传活动提出可行的建议。这项工作是确保癌症患者在癌症治疗过程中的任何阶段都能获得高质量护理所需的资源和工具的重要一步。
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引用次数: 0
Revue intégrative sur le rôle de l’infirmière pivot en oncologie dans le contexte canadien. 综合评述加拿大肿瘤科护士导航员的作用。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01 DOI: 10.5737/23688076334400
Jessica Katerenchuk, Anna Santos Salas
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引用次数: 0
Looking beyond our own realities. 超越现实
Pub Date : 2023-11-01 eCollection Date: 2023-01-01
Margaret I Fitch
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引用次数: 0
A retrospective chart review to identify the involvement of palliative care with glioblastoma multiforme patients. 通过回顾性病历,确定姑息治疗在多形性胶质母细胞瘤患者中的应用。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01 DOI: 10.5737/23688076334436
Júlia Drummond de Camargo, Fernanda Avallone Machado Laureano de Souza, Ivy de Carvalho Ramalho de Oliveira, Jéssica Anastacia Silva Barbosa

Background: Glioblastoma Multiforme is a deadly brain cancer that is very challenging for patients and their families. It is associated with rapid progression, cognitive decline, and a low survival rate.

Objective: To determine whether deceased Glioblastoma Multiforme patients had received follow-up service from the palliative care team before their death, whether invasive measures had been reduced, and whether the last antineoplastic treatment was given within 14-30 days before death.

Method: A retrospective study utilizing chart data from January 2020 to March 2022 from an institutional project. Data were gathered to reflect selected indicators of quality of care for palliative care patients.

Results: Of the 30 hospitalized patients with Glioblastoma Multiforme who had died while in hospital, 50% had received support from the palliative care team. Two patients (6.7%) had undergone antineoplastic treatment in the last 14 days of life and 13 (43.3%) had an order limiting invasive measures defined in the last two weeks of life.

Conclusion: In half of the patients monitored by a palliative care team, antineoplastic treatment and limitation of invasive measures occurred in the last 14 days of life. This may be associated with increased suffering of patients, family members, and professionals. Discussions about end-of-life care-related choices and goals of care need to be respected.

背景介绍多形性胶质母细胞瘤是一种致命的脑癌,对患者及其家庭来说是一项巨大的挑战。它与病情进展快、认知能力下降和存活率低有关:目的:确定多形性胶质母细胞瘤死亡患者在死前是否接受过姑息治疗团队的后续服务,是否减少了侵入性措施,以及是否在死前14-30天内接受了最后一次抗肿瘤治疗:一项回顾性研究利用了一个机构项目 2020 年 1 月至 2022 年 3 月的病历数据。收集的数据反映了姑息治疗患者护理质量的部分指标:在30名住院期间死亡的多形性胶质母细胞瘤患者中,50%的患者得到了姑息治疗团队的支持。两名患者(6.7%)在生命的最后14天接受了抗肿瘤治疗,13名患者(43.3%)在生命的最后两周收到了限制侵入性措施的指令:在由姑息治疗小组监控的患者中,有一半在生命的最后14天接受了抗肿瘤治疗和限制侵入性措施。这可能与患者、家属和专业人员的痛苦增加有关。关于临终关怀相关选择和护理目标的讨论需要得到尊重。
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引用次数: 0
Essai clinique randomisé par grappes portant sur le dépistage des symptômes et l’aiguillage automatique vers les soins de soutien chez les patients atteints de cancer gastro-intestinal sous traitement. 对正在接受治疗的胃肠道癌症患者进行症状筛查和自动转诊至支持性护理的分组随机临床试验。
Pub Date : 2023-11-01 eCollection Date: 2023-01-01 DOI: 10.5737/23688076334463
Philippa Hawley, Narsis Afghari, Catherine Courteau
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引用次数: 0
期刊
Canadian Oncology Nursing Journal
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