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Enhancing sibling support in oncology: Collaborative care for families facing cancer in young people. 加强肿瘤学方面的兄弟姐妹支持:为面对青少年癌症的家庭提供协作护理。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342196
Charlotte Gélinas-Gagné, Miranda D'Amico

Purpose: This study investigates the support systems and needs of siblings of young people with cancer, shedding light on the emotional and informational challenges siblings face. This topic area has had relatively little attention.

Design and methods: Qualitative interviews were conducted, and thematic analysis was employed to gain in-depth insights into the experiences and perspectives of siblings. While the study's relatively small sample size and participant homogeneity are acknowledged limitations, the approach offers several strengths, including relevance and participant diversity across age cohorts.

Results: The findings underscore the essential role of healthcare professionals, particularly nurses, in providing emotional and informational support to siblings. Family-centred care, psychosocial support, tailored interventions, and ongoing research and education are recommended to address the unique needs of siblings effectively.

Conclusion: Overall, this study highlights the importance of recognizing and addressing the support needs of siblings in pediatric oncology care, emphasizing their role as a vital component of the family system and advocating for holistic support throughout the cancer journey and beyond.

目的:本研究调查了癌症青少年兄弟姐妹的支持系统和需求,揭示了兄弟姐妹在情感和信息方面所面临的挑战。这一主题领域受到的关注相对较少:研究采用定性访谈和主题分析的方法,以深入了解兄弟姐妹的经历和观点。虽然研究的样本量相对较小和参与者的同质性是公认的局限性,但这种方法也有一些优点,包括相关性和不同年龄段参与者的多样性:研究结果表明,医护人员(尤其是护士)在为兄弟姐妹提供情感和信息支持方面发挥着重要作用。建议采取以家庭为中心的护理、社会心理支持、有针对性的干预措施以及持续的研究和教育,以有效满足兄弟姐妹的独特需求:总之,本研究强调了在儿科肿瘤护理中认识和满足兄弟姐妹支持需求的重要性,强调了他们作为家庭系统重要组成部分的作用,并倡导在整个癌症治疗过程中及之后提供全面支持。
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引用次数: 0
"Never say never" to transplant in aplastic anemia! A case study. 再生障碍性贫血患者的移植 "永不言败"!案例研究。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01
Zoe Evans, Katie McNamara, James Smith, Rajat Kumar
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引用次数: 0
How nurses can promote resilience among adolescents receiving active cancer treatment: A scoping review. 护士如何提高接受积极癌症治疗的青少年的适应能力:范围综述。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342173
Pascal Bernier

Objective: Explore knowledge on resilience-promoting interventions among adolescents receiving active cancer treatment. The question used to guide the research was: How can nurses promote resilience among adolescents receiving active cancer treatment?

Introduction: Adolescence is a very turbulent stage of development (Young, 2014). A cancer diagnosis at this age contributes to emotional distress and reduces quality of life (Sodergren et al., 2017). However, some youth develop positive coping mechanisms that lead to increased resilience (Bellizzi et al., 2012; Sodergren et al., 2017). Because nurses often care for these patients over an extended period of time, they can play an important role in fostering this resilience.

Method: Three databases (CINAHL, PubMed and PsycArticles) were consulted in February 2023, using research limiters "2013-2023" and "adolescents" (teenagers) both in French and in English. Potentially relevant sources were selected based on the guidelines identified by Pollock et al., (2021). Data were extracted, analyzed and presented using the Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews checklist (Tricco et al., 2018). The results were categorized, using deductive reasoning, as either protective factors or risk factors, in line with the Resilience in Illness Model (RIM; (Haase et al., 2014, 2017). Finally, potential interventions were identified where nurses can foster resilience among adolescents actively undergoing cancer treatment.

Results: The method used returned 86 studies, 17 of which met the selection criteria. Of these, 10 were quantitative in nature, three were qualitative, three were theoretical (including literature reviews and meta-analyses) and one was an editorial. The majority (n = 15) were published in the United States. There have been no studies specifically examining the role of nurses in promoting resilience among adolescents undergoing active cancer treatment since 2013.

Conclusion: Based on the findings of this paper, considering that information has been published on the role nurses serve in caring for adolescents who have a chronic illness other than cancer, the conclusion is that pediatric oncology nurses can be key players in promoting resilience among patients at this stage of development. Studies focusing specifically on this topic would be useful in determining how to facilitate adaptation and foster resilience effectively among adolescents receiving active cancer treatment.

目标:探索在接受积极癌症治疗的青少年中开展促进复原力干预措施的相关知识。用于指导研究的问题是护士如何提高接受积极癌症治疗的青少年的抗逆力?青春期是一个非常动荡的发展阶段(Young,2014 年)。在这个年龄段被诊断出癌症会导致情绪困扰并降低生活质量(Sodergren 等人,2017 年)。然而,一些青少年发展出积极的应对机制,从而增强了复原力(Bellizzi 等人,2012 年;Sodergren 等人,2017 年)。由于护士经常长期照顾这些患者,因此她们在培养这种复原力方面可以发挥重要作用:2023 年 2 月,使用 "2013-2023 "和 "青少年"(teenagers)这两个研究限定词,用法语和英语查阅了三个数据库(CINAHL、PubMed 和 PsycArticles)。根据 Pollock 等人(2021 年)确定的指南选择了可能相关的资料来源。数据的提取、分析和呈现采用了《系统性综述和Meta分析首选报告项目扩展范围综述清单》(Tricco等人,2018年)。根据疾病中的复原力模型(RIM;Haase 等人,2014 年,2017 年),利用演绎推理将结果归类为保护因素或风险因素。最后,确定了潜在的干预措施,即护士可以培养正在接受癌症治疗的青少年的复原力:采用的方法共收集到 86 项研究,其中 17 项符合筛选标准。其中,10 项为定量研究,3 项为定性研究,3 项为理论研究(包括文献综述和荟萃分析),1 项为社论。大多数研究(n = 15)发表于美国。自2013年以来,还没有研究专门探讨护士在促进正在接受癌症治疗的青少年的抗逆力方面所起的作用:根据本文的研究结果,并考虑到已发表的有关护士在护理患有癌症以外慢性疾病的青少年方面所扮演角色的信息,结论是儿科肿瘤护士可以成为促进处于这一发展阶段的患者恢复能力的关键角色。专门针对这一主题的研究将有助于确定如何有效促进正在接受癌症治疗的青少年的适应性和复原力。
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引用次数: 0
Soutien des frères et sœurs d’un jeune touché de cancer: soins collaboratifs pour les familles. 支持年轻癌症患者的兄弟姐妹:为家庭提供协作护理。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342205
Charlotte Gélinas-Gagné, Miranda D'Amico
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引用次数: 0
Decision support for breast cancer screening decisions: A single case pre-/post-test study. 乳腺癌筛查决策支持:单例前后测试研究。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342151
Mia McDonald, Dawn Stacey

Canadian guidelines recommend shared decision making for women less than 50 years old who are considering breast cancer screening. Nurses can support women in making these decisions. This single case pre-/post-test study measured change in decisional conflict after decision support for a woman less than 50 years old considering whether or not to initiate mammography screening. At baseline, a 44-year-old female at average risk of breast cancer was experiencing decisional conflict. She scored 1 out of 4 on the SURE test indicating feeling uninformed, unclear values, and inadequate support. After receiving decision coaching with a breast cancer screening decision aid by a nurse trained in decision coaching, she scored 4 on the SURE test indicating no decisional conflict. She reached an informed decision consistent with her values about mammography screening. Providing decisional support improved her knowledge, reduced her decisional conflict, and enhanced her confidence in making an informed decision that was consistent with her values.

加拿大指南建议,考虑进行乳腺癌筛查的 50 岁以下妇女应共同做出决定。护士可以帮助妇女做出这些决定。这项单个病例的前后测试研究测量了在为一名考虑是否开始乳房 X 线照相筛查的 50 岁以下女性提供决策支持后,其决策冲突的变化情况。基线时,一名 44 岁、乳腺癌风险处于平均水平的女性正在经历决策冲突。她在 SURE 测试中得了 1 分(满分 4 分),表明她感到不知情、价值观不明确和支持不足。接受过决策辅导培训的护士用乳腺癌筛查决策辅助工具对她进行决策辅导后,她在 SURE 测试中得到了 4 分,表明没有决策冲突。她做出的知情决定符合她对乳房 X 光筛查的价值观。提供决策支持提高了她的知识水平,减少了她的决策冲突,增强了她做出符合其价值观的知情决策的信心。
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引用次数: 0
Regards sur les séquelles psychosociales des cancers pédiatriques sur le parcours de réintégration des jeunes survivants devenus adultes: étude qualitative exploratoire. 儿科癌症对成年后年轻幸存者重新融入社会的社会心理后遗症:一项探索性定性研究。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342187
Shanelle Racine, Otto Sanchez, Manon Lemonde, Michael S Taccone, Fiona Schulte
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引用次数: 0
Supportive care services in New Brunswick, Canada: An environmental scan. 加拿大新不伦瑞克省的支持性护理服务:环境扫描。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342215
Charlotte Schwarz, Alison Luke, Lauren Renée Ashfield, Julie Easley, Stephanie McIntosh-Lawrence, Danie Beaulieu, Shelley Doucet

Cancer diagnosis and treatment often have significant physical and psychological implications for both the survivor and their family/caregivers. Necessary services extend beyond medical treatment and include a variety of supportive care services (SCS) that address individuals' physical, social, educational, and emotional needs. This study seeks to map the SCS available in the province of New Brunswick (NB), Canada, for cancer survivors, their families, and their caregivers. An environmental scan was conducted to assess current SCS available in NB. While some SCS exist in NB, they are not always easily accessible or identifiable, and gaps in services were prevalent. In particular, a gap in services was found for individuals who are no longer actively receiving cancer treatment, as well as for family members and caregivers.

癌症的诊断和治疗通常会对幸存者及其家人/照顾者产生重大的生理和心理影响。必要的服务不仅包括医疗,还包括各种支持性护理服务 (SCS),以满足个人在身体、社会、教育和情感方面的需求。本研究旨在绘制加拿大新不伦瑞克省(NB)为癌症幸存者、其家人和照顾者提供的支持性护理服务地图。我们进行了一次环境扫描,以评估新不伦瑞克省目前可用的 SCS。虽然新不伦瑞克省存在一些 SCS,但它们并不总是很容易获得或识别,而且服务差距也很普遍。特别是,针对不再积极接受癌症治疗的个人以及家庭成员和护理人员的服务存在缺口。
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引用次数: 0
Soins de soutien au Nouveau-Brunswick (Canada): analyse de l’environnement. 加拿大新不伦瑞克省的支持性护理:环境扫描。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342223
Charlotte Schwarz, Alison Luke, Lauren Renée Ashfield, Julie Easley, Stephanie McIntosh-Lawrence, Danie Beaulieu, Shelley Doucet
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引用次数: 0
Unveiling perspectives on the psychosocial impacts of childhood cancer survival on young adult survivors' reassimilation journey: A qualitative exploration. 揭示儿童癌症生存对年轻成年幸存者重新融入社会历程的社会心理影响:定性探索。
Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI: 10.5737/23688076342179
Shanelle Racine, Otto Sanchez, Manon Lemonde, Michael S Taccone, Fiona Schulte

Background: Approximately 82% of children with childhood cancer survive more than five years after diagnosis. Living as a cancer survivor elicits a new reality that can include psychosocial impacts. These psychosocial impacts interact collectively, especially regarding reassimilation, and are rarely explored.

Objective: To explore the psychosocial impacts of surviving childhood cancer and reassimilation back into society in young adult survivors of childhood cancer.

Methodology: Individual in-depth semi-structured interviews were conducted with childhood cancer survivors and explored psychosocial aspects associated with returning to work, school, and social environments after remission. Interpretive phenomenological analysis was conducted once interviews were manually transcribed. A group interview with survivors was held to discuss the study's findings and interpretation.

Results: Individual interviews and the group interview revealed three major themes: outlook on reassimilating, outlook on coping, and outlook on cancer.

Conclusions: This work is a first step to understanding how survivors' personal outlook on coping and healthcare system barriers play influential roles in reassimilation following cancer treatment. Survivors expressed the need for reliable survivorship information and improved communication with healthcare providers regarding what to expect, so they could feel prepared for life post-cancer. These aspects need to be explored more deeply through other qualitative studies.

背景:约有 82% 的儿童癌症患者在确诊后存活五年以上。癌症幸存者的生活会带来新的现实,包括社会心理影响。这些社会心理影响相互影响,尤其是在重新融入社会方面,但很少有人对此进行探讨:目的:探讨儿童癌症幸存对社会心理的影响,以及儿童癌症年轻成年幸存者重新融入社会的问题:对儿童癌症幸存者进行了深入的半结构式个人访谈,探讨了缓解后重返工作、学校和社会环境的相关社会心理问题。访谈内容经人工转录后,进行了解释现象学分析。与幸存者进行了小组访谈,讨论研究结果和解释:个人访谈和小组访谈揭示了三大主题:对重新融入社会的看法、对应对的看法和对癌症的看法:这项工作是了解幸存者的个人应对观和医疗系统障碍如何在癌症治疗后重新融入社会中发挥影响作用的第一步。幸存者表示需要获得可靠的幸存者信息,并与医疗服务提供者就预期事项加强沟通,这样他们才能为癌症后的生活做好准备。这些方面需要通过其他定性研究进行更深入的探讨。
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引用次数: 0
CANO/ACIO Annual Conference Workshop Abstracts CANO/ACIO 年会研讨会摘要
Pub Date : 2024-02-06 DOI: 10.5737/2368807634182
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引用次数: 0
期刊
Canadian Oncology Nursing Journal
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