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Journal of Cleft Lip Palate and Craniofacial Anomalies最新文献

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Epidemiological study of patients with cleft lip and palate at Specialized National Hospital in Venezuela 委内瑞拉国立专科医院唇腭裂患者流行病学研究
Pub Date : 2023-07-01 DOI: 10.4103/jclpca.jclpca_6_23
Katherine Moleiro, Hans Cordsen, Carlos Manresa, Olaisa Garcia, Javianna Ferrer, Henry Guevara, Maria Viamonte
Aims: The aims of the study are to describe the epidemiological characteristics of the patients with cleft lip and palate (CLP) treated at Specialized National Hospital in Venezuela. Materials and Methods: This was a retrospective, epidemiological, and cross-sectional study. Sample involved medical records from patients with diagnosis of any CLP treated from 2011 to 2021. The variables analyzed were age, gender, origin, anatomical structures involved, syndromes, other associated conditions, and sequelae, which were collected and analyzed. A descriptive analysis of each variable was carried out. Results: Data from 641 patients were analyzed, with an average age of 1 year old (±3 months–9 years of age), showing an equitable distribution in relation to gender. Of the facial clefts, the most common was the complete bilateral alveolar cleft (16.2%), followed by the complete left cleft lip (10.5%). The study yielded few cases of patients with some syndrome or associated condition (3.7% for each one, respectively). Geographically, there was a distribution of cases in all the states of the Bolivarian Republic of Venezuela, with the largest number of cases being in the capital region. Conclusions: It was observed that the prevalence of CLP has increased in recent years; these epidemiological figures vary by region, age, and gender. However, greater knowledge from health professionals is necessary to understand the clinical and epidemiological aspects of the orofacial cleft, which is essential to improve the understanding of the pathogenesis, promote preventive strategies, and guide multidisciplinary clinical care.
目的:本研究旨在描述在委内瑞拉国立专科医院接受治疗的唇腭裂患者的流行病学特征。材料与方法:这是一项回顾性、流行病学和横断面研究。样本包括 2011 年至 2021 年期间接受过任何唇腭裂诊断治疗的患者的医疗记录。分析的变量包括年龄、性别、籍贯、涉及的解剖结构、综合征、其他相关病症和后遗症。对每个变量进行了描述性分析。结果分析了 641 名患者的数据,他们的平均年龄为 1 岁(±3 个月-9 岁),性别分布公平。在面部裂隙中,最常见的是完全性双侧齿槽裂隙(16.2%),其次是完全性左唇裂(10.5%)。研究发现,少数患者患有某些综合征或相关疾病(各占 3.7%)。从地域上看,病例分布在委内瑞拉玻利瓦尔共和国的所有州,其中首都地区的病例最多。结论据观察,近年来中耳炎的发病率有所上升;这些流行病学数据因地区、年龄和性别而异。然而,医疗专业人员有必要进一步了解口面裂的临床和流行病学方面的知识,这对提高对发病机理的认识、推广预防策略和指导多学科临床护理至关重要。
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引用次数: 0
A feeding obturator appliance in infants with isolated cleft palate: A case series 用于孤立性腭裂婴儿的喂食闭合器:病例系列
Pub Date : 2023-07-01 DOI: 10.4103/jclpca.jclpca_22_23
Kamaljit Kaur, A. Kapur, B. Soni, Manojkumar Jaiswal
Feeding a child with cleft lip with or without cleft palate (CL/P) is a matter of concern for both the parents and the physician. Early knowledge about various available options and timely intervention can overcome undue anxiety in parents of children with CL/P. A feeding obturator separates the oral cavity from the nasal cavity and is one of the means to aid in adequate nutrition to the affected child. The present article describes two cases of successful use of a feeding obturator in infants with an isolated CL/P.
唇裂伴或不伴腭裂(CL/P)患儿的喂养是父母和医生都关心的问题。及早了解各种可供选择的方案并及时进行干预,可以消除唇裂伴腭裂患儿家长的过度焦虑。进食闭锁器将口腔与鼻腔分开,是帮助患儿获得充足营养的方法之一。本文介绍了两个成功使用喂食闭塞器治疗孤立性 CL/P 婴儿的病例。
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引用次数: 0
The Birth Prevalence of Cleft Lip and/or Palate Patients in Korea and Orthodontic and Orthopedic Treatment for Congenital Defects Supported by National Health System 韩国唇腭裂出生患病率与国家卫生系统支持的先天性缺陷正畸矫形治疗
Pub Date : 2023-06-30 DOI: 10.31136/kjclp.2023.26.1.1
M. Hong
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引用次数: 0
The Severity of Cleft Lip and Palate and Postsurgical Outcome in Non-syndromic Complete Unilateral Cleft Lip and Palate: A Pilot Study Based on Surgeon’s Perception 非综合征完全性单侧唇腭裂的严重程度和术后预后:一项基于外科医生感知的初步研究
Pub Date : 2023-06-30 DOI: 10.31136/kjclp.2023.26.1.13
Marques de Moura Pollyana, Seaward James, Kane Alex, Yong Jong Park
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引用次数: 0
Evaluation of Lip Symmetry after Unilateral Cheiloplasty by Rotation-Advancement Principle 旋转推进法评价单侧唇部成形术后唇部对称性
Pub Date : 2023-06-30 DOI: 10.31136/kjclp.2023.26.1.7
Y. W. Park
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引用次数: 0
Efficacy of CPAP Therapy in Reducing Hypernasality in a Case with Repaired Submucous Cleft Palate CPAP治疗腭裂修复后鼻音增高1例疗效观察
Pub Date : 2023-06-30 DOI: 10.31136/kjclp.2023.26.1.27
S. Ha
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引用次数: 0
Primary Cleft Palate Operation: Cases of Two Elderly Patients 老年原发性腭裂手术2例
Pub Date : 2023-06-30 DOI: 10.31136/kjclp.2023.26.1.22
Ja-Yean Son, Dongjae Lee, Min A Kang
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引用次数: 0
A retrospective study on clinical and epidemiological profile of nonsyndromic cleft lip and palate patients admitted in a large Comprehensive Cleft Care Centre in West Bengal, India 对印度西孟加拉邦一家大型综合性唇腭裂护理中心收治的非综合征性唇腭裂患者的临床和流行病学资料进行回顾性研究
Pub Date : 2023-01-01 DOI: 10.4103/jclpca.jclpca_19_22
Nupur Saha, M. Das, Shabnam Zahir, Arnab Santra
Aim: The aim of this study is to observe the clinical and epidemiological profile of nonsyndromic cleft lip (CL) and/or palate patients admitted to a cleft care center in West Bengal from May 2021 to April 2022. Materials and Methods: A retrospective epidemiological study had been done by preparing a master data sheet to record the patient's data from a Comprehensive Cleft Care Centre in West Bengal. The study variables included were patient's age reporting at the hospital, type of cleft, sex distribution of patients, residential address of the parents, socioeconomic status through parents' education, occupation, and monthly income, and consanguineous marriage history of the family. Results: A total of 276 nonsyndromic cleft patients during the time period (May 2021 to April 2022) were considered. Among these, 164 were male and 112 were female patients. The mean age of patients reporting to this hospital on average was 13–18 months. CL with palate patients (62%) predominated than any other type and was mostly seen in male patients (69.59%); isolated CL (22%) cases were more in females (56.25%), whereas isolated cleft palate (16%) cases were seen more in males (62.79%); unilateral (77%) and left-sided cleft (67%) were found predominantly than bilateral cases (23%) and seen mostly in females, whereas bilateral cleft cases were more in males. Most of the patients belonged to North 24 Parganas District which is an adjacent district of Kolkata, and most of the families belonged to a low socioeconomic group, and interestingly, most of them had consanguineous marriage history (61%) with at least one generation. Conclusion: The results of this study provided that CL with palate type is more common among all types of clefts and predominantly found in males than females in West Bengal. The unilateral left-sided cleft is predominant among all other varieties. Most of the parents belonged to low socioeconomic status and are having consanguineous marriage history. We need to spread awareness among the public through ads and banners, social media, and medical free camps about the deformity of CL and/or palate and also possible preventive measures, make arrangements for free treatment among the CL and/or CL and palate population for better life of cleft patients and their parents.
目的:本研究的目的是观察2021年5月至2022年4月在西孟加拉邦一家唇裂护理中心入院的非综合征性唇裂(CL)和/或腭裂患者的临床和流行病学概况。材料和方法:通过编制主数据表记录西孟加拉邦一家综合性唇腭裂护理中心的患者数据,进行了回顾性流行病学研究。研究变量包括患者在医院的报告年龄、唇裂类型、患者的性别分布、父母的居住地址、父母的教育程度、职业、月收入等社会经济地位、家庭近亲婚姻史等。结果:共考虑了276例非综合征性唇裂患者(2021年5月至2022年4月)。其中男性164例,女性112例。到该院就诊的患者平均年龄为13-18个月。腭部CL以62%居多,男性居多(69.59%);女性单纯性腭裂发生率为22%(56.25%),男性单纯性腭裂发生率为16% (62.79%);单侧(77%)和左侧(67%)唇裂的发生率高于双侧(23%),多见于女性,而双侧唇裂的发生率高于男性。大多数患者来自与加尔各答相邻的北24 Parganas区,大多数家庭属于低社会经济群体,有趣的是,大多数患者至少有一代近亲婚姻史(61%)。结论:本研究结果表明,腭裂合并腭裂在西孟加拉邦所有类型的腭裂中更为常见,男性多于女性。单侧左侧唇裂在所有其他品种中占主导地位。大多数父母属于低社会经济地位,有近亲婚姻史。我们需要通过广告、横幅、社交媒体、医疗免费营等方式向公众宣传腭裂和/或腭裂的畸形以及可能的预防措施,安排腭裂和/或腭裂人群的免费治疗,让腭裂患者及其父母过上更好的生活。
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引用次数: 0
Feeding interventions among cleft lip/palate infants: A systematic review and meta-synthesis 唇腭裂婴儿的喂养干预:一项系统综述和综合研究
Pub Date : 2023-01-01 DOI: 10.4103/jclpca.jclpca_27_22
Manjubala Dash, D. Mohapatra, K. Dash, Sasmita Nayak
Cleft lip and palate (CLP) affect about one baby of every 700 newborn due to alterations in the normal development of the primary and/or secondary palate. The prevalence of clefts in India is between 27,000 and 33,000/year. Searches were undertaken in PubMed, Cochrane database, Web of Science, Scopus, and Google Scholar databases, for primary research studies that report on feeding interventions/feeding techniques/feeding methods, challenges faced by mother/care taker/health personnel as they include most of the publications in this area. Papers were independently reviewed by two authors and Thomas et al's assessment criteria checklist (2003) was used to assess the methodological quality. This systematic review was registered in PROSPERO under number CRD42020208437. The review included 25 studies: 21 quantitative, 2 qualitative, and two mixed methods study, involving 1564 infants and children (age ranging from 1 week to 5 years old) and 790 mothers of Infants with CLP from 13 countries. While comparing the efficacy of the three feeding techniques such as paladai fed, bottle fed, and spoon fed in improving the weight gain pattern the result showed mean weight gain among paladai feeding was better than the bottle or spoon-feeding. Common feeding problems observed were nasal regurgitation, vomiting, and choking, etc. Infants with cleft palate had some major challenges such as aspiration, choking, and inadequate growth. Beyond the esthetic and psychologic implications of the presence of orofacial clefts, the feeding of the child is usually the next concern of the parents and caregivers, a factor which can result in considerable stress to the mother. A prompt diagnosis, especially of a CP, and visit by the cleft team immediately after the birth so that the family can be supported and taught the skills of feeding, is essential.
由于初级和/或次级腭的正常发育发生变化,大约每700名新生儿中就有一名患有唇腭裂。印度的裂隙流行率在每年27000至33000之间。在PubMed、Cochrane数据库、Web of Science、Scopus和Google Scholar数据库中进行了搜索,以获取关于喂养干预/喂养技术/喂养方法、母亲/看护人/卫生人员面临的挑战的主要研究报告,因为这些研究包括该领域的大多数出版物。论文由两位作者独立审查,Thomas等人的评估标准清单(2003)用于评估方法质量。该系统审查在PROSPERO注册,编号CRD42020208437。该综述包括25项研究:21项定量研究、2项定性研究和两项混合方法研究,涉及来自13个国家的1564名婴儿和儿童(年龄从1周到5岁不等)以及790名患有CLP的婴儿母亲。通过比较paladai喂养、瓶式喂养和勺式喂养三种喂养技术在改善增重模式方面的效果,结果表明paladai饲养的平均增重效果优于瓶式或勺式喂养。观察到的常见喂养问题有鼻塞、呕吐和窒息等。腭裂婴儿面临一些主要挑战,如误吸、窒息和发育不良。除了口唇腭裂的美学和心理影响之外,孩子的喂养通常是父母和照顾者的下一个关注点,这一因素可能会给母亲带来相当大的压力。及时诊断,尤其是CP,并在出生后立即由腭裂团队进行检查,以便为家庭提供支持并教授喂养技能,这是至关重要的。
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引用次数: 0
Hearing-related problems in children with cleft palate: A single-center cross-sectional study in the sub-Himalayan population 腭裂儿童的听力相关问题:喜马拉雅地区人口的单中心横断面研究
Pub Date : 2023-01-01 DOI: 10.4103/jclpca.jclpca_12_22
V. Mago, Arush Pasricha, Hiteswar Sarma, P. Jayaprakash, M. Vathulya, D. Chattopadhyay
Purpose: Cleft palate is known to cause recurrent otitis media with hearing loss. Various studies have stated the incidence of middle ear disease in patients with cleft palate is around 90%. The anomalous position of the Eustachian tubes in patients with cleft palate leads to otitis media with effusion. If left uncorrected this leads to complications such as cholesteatoma, retraction pockets, and atelectasis leading to permanent hearing loss. In this study, we evaluated the children presenting to our institute with cleft palate for hearing-related issues. Materials and Methods: The study was conducted in our institute from January 2017 to September 2020. It was a cross-sectional study, where 45 children with cleft palate were compared with 36 children with cleft lip who were considered the control group. Hearing of all children was assessed using tympanometry, otoscopy, and brainstem evoked response audiometry (BERA). Results: About 93.3% of children in the cleft palate group had an abnormal tympanic membrane on otoscopy, whereas in the control group only 11.1% of children had an abnormal tympanic membrane on otoscopy. About 97.8% of children in the cleft palate group had a hearing threshold greater than 25 decibels, whereas only 13.9% of children in the control group had a hearing threshold of above 25 decibels. More children in the cleft palate group had an abnormal tympanogram (42.2% had a type B tympanogram and 46.7% had a type C tympanogram) compared to the control group (5.6% had a type B tympanogram and 2.8% had a type C tympanogram). Conclusion: Our study adds to the evidence that there is a high incidence of hearing impairment in children with cleft palate. Hence, we advocate that early identification by screening measures such as otoscopy, tympanometry, auditory brainstem response, and pure tone audiometry during the first visit itself in these children so that early treatment can be initiated.
目的:众所周知,腭裂会导致复发性中耳炎伴听力损失。各种研究表明,腭裂患者中耳疾病的发生率约为90%。腭裂患者咽鼓管位置异常可导致渗出性中耳炎。如果不进行矫正,会导致胆脂瘤、缩孔和肺不张等并发症,从而导致永久性听力损失。在这项研究中,我们评估了在我们研究所就诊的腭裂儿童的听力相关问题。材料与方法:本研究于2017年1月至2020年9月在我所进行。这是一项横断面研究,将45名腭裂儿童与36名唇腭裂儿童作为对照组进行了比较。所有儿童的听力均采用鼓室镜、耳镜和脑干诱发反应听力计(BERA)进行评估。结果:腭裂组约93.3%的儿童在耳镜检查中鼓膜异常,而对照组仅11.1%的儿童在耳镜检查中鼓室异常。腭裂组中约97.8%的儿童的听力阈值大于25分贝,而对照组中只有13.9%的儿童的听觉阈值高于25分贝。与对照组(5.6%的儿童有B型鼓室图,2.8%的儿童有C型鼓室图)相比,腭裂组有更多的儿童有异常鼓室图(42.2%有B型鼓膜图,46.7%有C型鼓膜图)。结论:我们的研究进一步证明腭裂儿童听力障碍的发生率很高。因此,我们主张在这些儿童的首次就诊期间,通过耳镜检查、鼓室镜检查、听性脑干反应和纯音测听等筛查措施进行早期识别,以便开始早期治疗。
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引用次数: 0
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Journal of Cleft Lip Palate and Craniofacial Anomalies
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