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External validation of SAPS II score reported to the Norwegian Intensive Care and Pandemic Registry (NIPaR) 向挪威重症监护和大流行登记处(NIPaR)报告的SAPS II评分的外部验证
Q3 Medicine Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5618
Eirik Alnes Buanes, Øyvind Bruserud, Sergio Carracedo Huroz, Andreas Barratt-Due, Hans Flaatten, Reidar Kvåle
Background: Simplified Acute Physiology Score II (SAPS II) is a mortality prediction model widely usedto compensate for differences between intensive care units (ICU) in benchmarking and research. Accuracyof SAPS II is sparsely documented. We investigate accuracy by comparing patient journal SAPS II valueswith registry SAPS II values in the Norwegian Intensive Care and Pandemic Registry (NIPaR).Method: NIPaR personnel collected data from the patient journal during visitations to ICUs in ten differenthospitals between 2017 and 2022 while blinded for registry SAPS II data. The patient journal SAPS II valueswere subsequently compared with the registry SAPS II values.Results: Difference of means for SAPS II score between patient journal and registry data was 5.2 points(95% CI 2.8–7.6; p < 0.001). SAPS II score depended significantly on ICU (p < 0.001) and data origin (p =0.006), whereas the interaction term for these two variables was not significant.Conclusion: We find low accuracy of SAPS II score in a registry setting.
背景:简化急性生理评分II (SAPS II)是一种死亡率预测模型,广泛用于弥补重症监护病房(ICU)在基准和研究方面的差异。SAPS II的准确性文献很少。我们通过比较患者日记的SAPS II值与挪威重症监护和流行病登记处(NIPaR)的SAPS II值来调查准确性。方法:NIPaR工作人员在2017年至2022年期间从10家不同医院的icu就诊患者日记中收集数据,采用盲法获取注册SAPS II数据。随后将患者日记的SAPS II值与注册表的SAPS II值进行比较。结果:患者日记和登记数据之间SAPS II评分的均值差异为5.2分(95% CI 2.8-7.6;p & lt;0.001)。SAPS II评分与ICU有显著相关性(p <0.001)和数据来源(p =0.006),而这两个变量的相互作用项不显著。结论:我们发现在注册表设置中SAPS II评分的准确性较低。
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引用次数: 0
Et lederperspektiv – nytten av medisinske kvalitetsregistre og hvordan vi bruker disse i forbedringsarbeid og praksisendring 管理视角--医疗质量登记册的益处以及我们如何在改进工作和实践变革中使用登记册
Q3 Medicine Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5605
Bjørn Egil Vikse, Panchakulasingam Kandiah
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引用次数: 0
Resultater fra Norsk diabetesregister for voksne 挪威成人糖尿病登记结果
Q3 Medicine Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5608
Grethe Åstrøm Ueland, Tone Vonheim Madsen, Karianne Fjeld Løvaas, John Graham Cooper
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引用次数: 0
Norsk Parkinsonregister og biobank 挪威帕金森病登记和生物库
Q3 Medicine Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5611
Kenn Freddy Pedersen, Johannes Lange, Eldbjørg Fiske
SAMMENDRAGNorsk Parkinsonregister og biobank fikk status som nasjonalt medisinsk kvalitetsregister av Helsedirektorateti 2016 og startet datainnsamling fra pasienter med Parkinsons sykdom og atypisk nevrodegenerativparkinsonisme i desember 2018. Registerets hovedmål er å sikre kvalitet og enhetlig diagnostikk, behandlingog oppfølging av pasientgruppen. Dette gjøres ved å samle inn kliniske data, gjennomføre kvalitetsforbedringav behandlingstilbudet og drive forskning på årsaksforhold og sykdomsmekanismer ved å kombinereregisterdata og biobankmateriale. Registeret har i løpet av de første fire årene med datainnsamling møtt påen rekke utfordringer knyttet til koronapandemi og ressursknapphet i helsetjenesten. Flere tiltak har blittgjennomført for å løse dette og vi ser nå tydelig effekt av disse. Ved utgangen av 2022 hadde registeret endekningsgrad på nesten 22 %.ENGLISH SUMMARYThe Norwegian Parkinson’s Registry and Biobank was granted status as a National Quality Registry by theNorwegian Directorate of Health in 2016 and startet registration of patients with Parkinson’s disease andatypical neurodegenerative parkinsonism in December 2018. The main aim of the registry is to ensure qualityand uniform diagnostics, treatment and follow-up of the patient group by collecting clinical data, implementingquality offers of treatment and conducting research into causal relationships and disease mechanisms bycombining registry data and biobank material. During the first four years of data collection, the Parkinson’sRegistry has encountered a number of challenges related to coronavirus pandemic and resource scarcity inthe health service. Several measures have been implemented to solve these challenges, and we are nowstarting to see the effect of these measures. At the end of 2022, a coverage rate of nearly 22 % was achieved.
摘要挪威帕金森病登记和生物库于2016年被挪威卫生局授予国家医疗质量登记处的地位,并于2018年12月开始收集帕金森病和非典型神经退行性帕金森病患者的数据。该登记处的主要目标是确保对患者群体进行高质量和标准化的诊断、治疗和随访。具体做法是收集临床数据,提高治疗质量,并结合登记处数据和生物库材料开展病因和疾病机制研究。在数据收集的头四年,登记处面临着与冠状病毒大流行和医疗服务资源短缺有关的一系列挑战。为此,我们采取了多项措施,目前已取得明显成效。截至2022年底,登记处的覆盖率接近22%。挪威帕金森病登记处和生物库于2016年被挪威卫生局授予国家质量登记处的地位,并于2018年12月开始登记帕金森病和典型神经退行性帕金森病患者。登记的主要目的是通过收集临床数据,实施高质量的治疗方案,并结合登记数据和生物库材料对因果关系和疾病机制进行研究,从而确保对患者群体进行高质量和统一的诊断、治疗和随访。在收集数据的头四年中,帕金森病登记处遇到了与冠状病毒流行和医疗服务资源短缺有关的一系列挑战。为解决这些问题,我们采取了多项措施,目前已初见成效。到 2022 年底,覆盖率已接近 22%。
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引用次数: 0
I starten var det Hofteregisteret – så ble vi flere 一开始是嘻哈注册--后来我们变得更加
Q3 Medicine Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5613
Ove Furnes, Jan-Erik Gjertsen, Eivind Inderhaug, Trude Gundersen, Anne Marie Fenstad, Stein Atle Lie, Geir Hallan
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引用次数: 0
Norsk hjertestansregister 挪威心脏骤停登记册
Q3 Medicine Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5607
Ingvild B.M. Tjelmeland, Kristin Alm-Kruse, Johannes Nordsteien Svensøy, Gry Landbø, Jo Kramer-Johansen
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引用次数: 0
Nasjonalt kvalitetsregister for melanom bidrar til å styrke kvaliteten på helsehjelpen som gis til melanompasienter 国家黑色素瘤质量登记册有助于提高黑色素瘤患者的医疗质量
Q3 Medicine Pub Date : 2023-10-20 DOI: 10.5324/nje.v31i1-2.5614
Hilde Hedemann Brenn, Trude Eid Robsahm, Liv Marit Dørum, Henrik Løvendahl Svendsen
Nasjonalt kvalitetsregister for melanom (heretter Melanomregisteret) skal bidra til å sikre at utredning ogbehandling av melanompasienter skjer i henhold til anbefalte retningslinjer og er av så høy kvalitet som mulig,uavhengig av hvor i landet man bor. Melanomregisteret er derfor avhengig av innrapporterte data fra sykehusenhetenesom utreder og behandler melanompasientene for å kunne måle kvaliteten på helsehjelpen som gis.Dette, sammen med data fra flere kilder, gir grunnlag for målinger som blir presentert som kvalitetsindikatorerbestemt av fagrådet, sammenfattet i en årlig rapport. Hensikten med årsrapportene er at sykehusene brukerresultatene som bakgrunn for å iverksette kvalitetsforbedrende tiltak slik at utredning- og behandlingstilbudettil pasienter med melanom blir så godt som mulig. Melanomregisteret inneholder også pasientrapporterte datasiden 2021. Vi ser frem til å få ytterligere kunnskap om hvordan kreftsykdommen og behandlingen påvirkerhelse og livskvalitet over tid, sammen med pasientenes egne erfaringer med helsetjenesten
国家黑色素瘤质量登记处(以下简称 "黑色素瘤登记处")将有助于确保对黑色素瘤患者的评估和治疗符合推荐的指南,并尽可能达到最高质量,无论患者居住在国内何处。因此,黑色素瘤登记处依靠检查和治疗黑色素瘤患者的医院单位提供的报告数据来衡量所提供医疗服务的质量。这些数据与来自多个来源的数据一起,为专业委员会确定的质量指标提供了衡量依据,并在年度报告中进行总结。年度报告的目的是让医院将结果作为实施质量改进措施的基础,以确保为黑色素瘤患者提供尽可能好的评估和治疗。自 2021 年起,黑色素瘤注册中心还包含患者报告的数据。我们期待着进一步了解癌症和治疗如何随着时间的推移影响健康和生活质量,以及患者自身的医疗服务体验。
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引用次数: 0
Gratulerer til en sprek 70-åring! 祝贺一位70岁的老人!
Q3 Medicine Pub Date : 2022-10-12 DOI: 10.5324/nje.v30i1-2.4970
Ingvild Kjerkol
Kreftsaken vekker et sterkt engasjement hos mange av oss. Det berører oss som venner, pårørende eller som pasienter. Kreftregisteret har ivaretatt det store engasjementet for kreftsaken og omsatt det til innsats. Det er derfor med stor glede jeg hilser Kreftregisteret på 70-års dagen.
癌症引起了我们许多人的强烈参与。它以朋友、亲人或病人的身份打动我们。癌症司机保留了癌症病例的巨大参与,并将其转化为努力。这就是为什么我很高兴在这个70岁的日子向Kreftregister问好。
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引用次数: 0
Samle, telle, regne, fortolke – tilbakeblikk på Kreftregisterets statistikkproduksjon og forskning gjennom 70 år
Q3 Medicine Pub Date : 2022-10-12 DOI: 10.5324/nje.v30i1-2.4989
T. K. Grimsrud
The Cancer Registry of Norway was established 1952 with important initiatives and impetus from WHO and The Norwegian Cancer Society. The main purpose of the Registry has been to describe and explain trends and frequencies in cancer incidence, to analyse the need for cancer prevention and therapy, inclusive of aetiological research, and to study the effects of cancer control. The first report on cancer incidence covering 1953–1954 was published in 1959. In the 1950s, stomach cancer was the most common cancer among men and women combined, breast cancer was the most frequent cancer in women, and lung cancer was rising in men (observed in the mortality rates). Identification and the full understanding of different aspects of smoking and cancer remained a challenge from the 1950s through the 1980s, nationally and internationally. From 1977 to 1989, the Cancer Registry produced incidence reports every year with tables presenting absolute numbers and crude rates. In the 1990s, age-standardisation appeared in routine data, both in national, county, and historical rates. During the initial decades, important scientific support was received from Denmark, UK and the USA. Nordic co-operation has always been vital for exchange of experience, for comparisons, and for addressing rare cancer forms. Studies of occupational cancer emerged from the early 1970s, starting with nickel refiners and asbestos cement workers. The number of scientific publications and defended doctoral theses rose markedly during the 1990s and after, with projects directed towards aetiology (lifestyle, medication, occupation, environmental exposures), early diagnosis and screening, clinical issues, predictions, survival, biomarkers, and socio-economic factors.  
挪威癌症登记处于1952年在世卫组织和挪威癌症协会的重要倡议和推动下成立。登记处的主要目的是描述和解释癌症发病率的趋势和频率,分析癌症预防和治疗的必要性,包括病因学研究,以及研究癌症控制的效果。第一份关于1953-1954年癌症发病率的报告发表于1959年。在20世纪50年代,胃癌是男性和女性中最常见的癌症,乳腺癌是女性中最常见的癌症,肺癌在男性中呈上升趋势(在死亡率中观察到)。从20世纪50年代到80年代,无论是在国内还是在国际上,对吸烟和癌症的不同方面的识别和充分了解仍然是一项挑战。从1977年到1989年,癌症登记处每年都会制作发病率报告,其中包含绝对数字和粗略发病率的表格。在20世纪90年代,年龄标准化出现在常规数据中,包括国家、县和历史数据。在最初的几十年里,丹麦、英国和美国给予了重要的科学支持。北欧的合作对于经验交流、比较和应对罕见的癌症形式一直至关重要。对职业性癌症的研究始于20世纪70年代初,从镍精炼厂和石棉水泥工人开始。在20世纪90年代和之后,科学出版物和辩护博士论文的数量显著增加,项目针对病因学(生活方式、药物、职业、环境暴露)、早期诊断和筛查、临床问题、预测、生存、生物标志物和社会经济因素。
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引用次数: 1
The Norwegian Breast Cancer Registry (NBCR): A clinical register that monitors surgical care with the intention to increase the quality of treatment given to breast cancer patients in Norway 挪威乳腺癌登记处(NBCR):一个监测外科护理的临床登记处,旨在提高挪威乳腺癌患者的治疗质量
Q3 Medicine Pub Date : 2022-10-12 DOI: 10.5324/nje.v30i1-2.4976
H. Skjerven, C. B. Trewin-Nybråten, Kjersti Kjersti
Increased focus on quality indicators and the use of clinical registries for breast cancer has shown higher compliance with recommended treatment in several studies. Norwegian Breast Cancer Registry (NBCR) has presented data on quality indicators since 2015. The registry is 95% complete for surgical treatment during 2015-2021. Over time, increased compliance to recommended surgical therapy has been observed. The completeness of data is, unfortunately, a problem, particularly for breast radiology outside the Norwegian mammography screening program, and for data on oncological treatment. Automation of data capture is a priority at the Cancer Registry of Norway (CRN), with the ongoing INSPIRE (INcreaSe PharmaceutIcal REporting) and SNOMED CT (Systematized Nomenclature of Medicine – Clinical Terms) projects. These projects may add important data and improve the completeness and quality of the NBCR, which is useful for improving the quality of care given to Norwegian breast cancer patients.
在几项研究中,越来越多地关注癌症的质量指标和临床登记的使用表明,对推荐治疗的依从性更高。挪威癌症乳腺登记处(NBCR)自2015年以来一直提供质量指标数据。2015-2021年期间,手术治疗的登记已完成95%。随着时间的推移,观察到对推荐手术治疗的依从性增加。不幸的是,数据的完整性是一个问题,尤其是对于挪威乳房X光检查计划之外的乳腺放射学和肿瘤学治疗数据来说。数据采集自动化是挪威癌症注册中心(CRN)的优先事项,正在进行INSPIRE(INcreasePharmaceutIcal REporting)和SNOMED CT(系统化医学术语-临床术语)项目。这些项目可能会增加重要数据,提高NBCR的完整性和质量,这有助于提高挪威癌症患者的护理质量。
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引用次数: 0
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Norsk Epidemiologi
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