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Co-Designing Digital Health Intervention for Monitoring Medication and Consultation Among Transgender People in Underserved Communities: Collaborative Approach. 共同设计数字健康干预措施,以监测服务不足社区变性人的用药和咨询情况:合作方法。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-12 DOI: 10.2196/45826
Emmanuel Oluwatosin Oluokun, Festus Fatai Adedoyin, Huseyin Dogan, Nan Jiang
<p><strong>Background: </strong>In many parts of the world, men who have sex with men and transgender individuals face criminalization and discrimination. As a result, they are less likely to seek medical help, despite experiencing higher rates of HIV/AIDS, mental health issues, and other health problems. Reaching key populations (KPs) with essential testing, care, and treatment services can be challenging, as they often have a higher likelihood of contracting and spreading the virus. They have limited access to antiretroviral (ARV) therapy (ART) services, which means that KPs may continue to serve as reservoirs for new HIV infections if they do not receive effective HIV programming. This ongoing issue complicates efforts to control the epidemic. Therefore, modeling a digital health system to track ARV medication access and use is crucial. This paper advocates for the use of digital interventions to manage the health of KPs in underserved regions, using Nigeria as a case study.</p><p><strong>Objective: </strong>This study aims to assess digital health interventions for monitoring medication and consultations among transgender people in underserved communities. It also sought to determine whether a system exists that could support ART adherence in Nigeria. Additionally, the study evaluated design strategies to address privacy and confidentiality concerns, aiming to reduce nonadherence to ARV medications among KPs in Nigeria.</p><p><strong>Methods: </strong>A qualitative approach was adopted for this research, involving a thematic analysis of information collected from interviews with clinicians and other health practitioners who work directly with these communities, as well as from an interactive (virtual) workshop.</p><p><strong>Results: </strong>The findings from the thematic analysis indicate a need to increase attendance at ART therapy sessions through the implementation of an intensive care web app. Unlike previous solutions, this study highlights the importance of incorporating a reminder feature that integrates with an in-app telemedicine consultancy platform. This platform would facilitate discussions about client challenges, such as adverse drug effects, counseling sessions with clinical psychologists, and the impact of identity discrimination on mental health. Other data-driven health needs identified in the study are unique drug request nodes, client-led viral load calculators, remote requests, and drug delivery features within the web app. Participants also emphasized the importance of monitoring medication compliance and incorporating user feedback mechanisms, such as ratings and encouragement symbols (eg, stars, checkmarks), to motivate adherence.</p><p><strong>Conclusions: </strong>The study concludes that technology-driven solutions could enhance ART adherence and reduce HIV transmission among transgender people. It also recommends that local governments and international organizations collaborate and invest in health management se
背景:在世界许多地方,男男性行为者和变性者都面临着刑事定罪和歧视。因此,尽管艾滋病毒/艾滋病、精神健康问题和其他健康问题的发病率较高,他们却不太可能寻求医疗帮助。向关键人群(KPs)提供基本的检测、护理和治疗服务可能具有挑战性,因为他们感染和传播病毒的可能性通常更高。他们获得抗逆转录病毒(ARV)治疗(ART)服务的机会有限,这意味着如果关键人群得不到有效的艾滋病防治计划,他们可能会继续成为新的艾滋病病毒感染者的储库。这一持续存在的问题使控制疫情的工作变得更加复杂。因此,建立一个数字医疗系统来跟踪抗逆转录病毒药物的获取和使用情况至关重要。本文以尼日利亚为例,提倡使用数字干预措施来管理服务不足地区的 KPs 健康:本研究旨在评估用于监测服务不足社区变性人用药和就诊情况的数字健康干预措施。研究还试图确定尼日利亚是否存在可支持坚持抗逆转录病毒疗法的系统。此外,该研究还评估了解决隐私和保密问题的设计策略,旨在减少尼日利亚 KPs 不坚持抗逆转录病毒药物治疗的情况:本研究采用了定性方法,包括对从与这些社区直接工作的临床医生和其他医疗从业人员的访谈中以及从互动(虚拟)研讨会中收集的信息进行专题分析:专题分析的结果表明,有必要通过实施强化护理网络应用程序来提高抗逆转录病毒疗法疗程的出勤率。与以往的解决方案不同,本研究强调了将提醒功能与应用内远程医疗咨询平台相结合的重要性。该平台将有助于讨论客户面临的挑战,如药物不良反应、与临床心理学家的咨询会议以及身份歧视对心理健康的影响。研究中发现的其他数据驱动型健康需求包括独特的药物申请节点、客户主导的病毒载量计算器、远程申请以及网络应用中的药物交付功能。参与者还强调了监测用药依从性和纳入用户反馈机制的重要性,如评级和鼓励符号(如星星、对号),以激励用户坚持用药:这项研究得出结论,技术驱动的解决方案可以提高抗逆转录病毒疗法的依从性,减少跨性别者中的艾滋病毒传播。研究还建议地方政府和国际组织合作并投资于健康管理服务,将健康需求置于身份认同之上。
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引用次数: 0
User Experience of a Large-Scale Smartphone-Based Observational Study in Multiple Sclerosis: Global, Open-Access, Digital-Only Study. 基于智能手机的大规模多发性硬化症观察研究的用户体验:全球开放式数字研究。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-11 DOI: 10.2196/57033
Adriano Galati, Lito Kriara, Michael Lindemann, Rea Lehner, J B Jones
<p><strong>Background: </strong>The Floodlight Open app is a digital health technology tool (DHTT) that comprises remote, smartphone sensor-based tests (daily activities) for assessing symptoms of multiple sclerosis (MS). User acquisition, engagement, and retention remain a barrier to successfully deploying such tools.</p><p><strong>Objective: </strong>This study aims to quantitatively and qualitatively investigate key user experience (UX) factors associated with the Floodlight Open app.</p><p><strong>Methods: </strong>Floodlight Open is a global, open-access, digital-only study designed to understand the drivers and barriers in deploying a DHTT in a naturalistic setting without supervision and onboarding by a clinician. Daily activities included tests assessing cognition (Information Processing Speed and Information Processing Speed Digit-Digit), hand-motor function (Pinching Test and Draw a Shape Test), and postural stability and gait (Static Balance Test, U-Turn Test, and Two-Minute Walk Test [2MWT]). All daily activities except the 2MWT were taken in a fixed sequence. Qualitative UX was studied through semistructured interviews in a substudy of US participants with MS. The quantitative UX analysis investigated the impact of new UX design features on user engagement and retention in US participants for 3 separate test series: all daily activities included in the fixed sequence (DA), all daily activities included in the fixed sequence except the Static Balance Test and U-Turn Test (DA<sub>x</sub>), and the 2MWT.</p><p><strong>Results: </strong>The qualitative UX substudy (N=22) revealed the need for 2 new UX design features: a more seamless user journey during the activation process that eliminates the requirement of switching back and forth between the app and the email that the participants received upon registration, and configurable reminders and push notifications to help plan and remind the participants to complete their daily activities. Both UX design features were assessed in the quantitative UX analysis. Introducing the more seamless user journey (original user journey: n=608; more seamless user journey: n=481) improved the conversion rate of participants who enrolled in the study and proceeded to successfully activate the app from 53.9% (328/608) to 74.6% (359/481). Introducing reminders and push notifications (with reminders and notifications: n=350; without reminders and notifications: n=172) improved continuous usage time (proportion of participants with ≥3 consecutive days of usage: DA and DA<sub>x</sub>: ~30% vs ~12%; 2MWT: ~30% vs ~20%); test completion rates (maximum number of test series completed: DA: 279 vs 64; DA<sub>x</sub>: 283 vs 126; 2MWT: 302 vs 76); and user retention rates (at day 30: DA: 53/172, 30.8% vs 34/350, 9.7%; DA<sub>x</sub>: 53/172, 30.8% vs 60/350, 17.1%; 2MWT: 39/172, 22.6% vs 22/350, 6.2%). Inactivity times remained comparable.</p><p><strong>Conclusions: </strong>The remote assessment of MS with DHTTs i
背景介绍Floodlight Open应用程序是一种数字健康技术工具(DHTT),它包括基于智能手机传感器的远程测试(日常活动),用于评估多发性硬化症(MS)的症状。用户获取、参与和保留仍然是成功部署此类工具的障碍:本研究旨在定量和定性地调查与 Floodlight Open 应用程序相关的关键用户体验(UX)因素:Floodlight Open 是一项全球性、开放式、纯数字研究,旨在了解在没有临床医生监督和指导的自然环境中部署 DHTT 的驱动因素和障碍。日常活动包括评估认知能力(信息处理速度和信息处理速度数字-数字)、手部运动功能(捏紧测试和画图测试)以及姿势稳定性和步态(静态平衡测试、掉头测试和两分钟步行测试 [2MWT])的测试。除 2MWT 外,所有日常活动均按固定顺序进行。在一项针对美国多发性硬化症患者的子研究中,通过半结构式访谈对用户体验进行了定性研究。用户体验定量分析调查了新的用户体验设计功能对美国参与者参与和保留 3 个独立测试系列的影响:固定顺序(DA)中包含的所有日常活动、除静态平衡测试和掉头测试(DAx)外固定顺序中包含的所有日常活动以及 2MWT 测试:用户体验定性子研究(N=22)显示需要两个新的用户体验设计功能:在激活过程中提供一个更加无缝的用户旅程,消除在应用程序和参与者注册时收到的电子邮件之间来回切换的要求;以及可配置的提醒和推送通知,以帮助计划和提醒参与者完成日常活动。这两项用户体验设计功能都在用户体验定量分析中进行了评估。引入更无缝的用户旅程(原始用户旅程:n=608;更无缝的用户旅程:n=481)提高了注册研究并成功激活应用程序的参与者的转换率,从 53.9%(328/608)提高到 74.6%(359/481)。引入提醒和推送通知(有提醒和通知:n=350;无提醒和通知:n=172)提高了连续使用时间(连续使用≥3 天的参与者比例:DA和DAx:~30% vs ~12%;2MWT:~30% vs ~20%);测试完成率(完成测试系列的最大数量:DA:279 vs 64;DAx:283 vs 126;2MWT:302 vs 76);用户保留率(第 30 天:DA:53/172,30.8% vs 34/350,9.7%;DAx:53/172,30.8% vs 60/350,17.1%;2MWT:39/172,22.6% vs 22/350,6.2%)。结论:使用 DHTT 对多发性硬化症进行远程评估的效果非常明显:使用 DHTTs 对多发性硬化症进行远程评估是一个相对新兴但不断发展的研究领域。对用户体验设计功能的持续评估和改进对新的 DHTTs 的长期成功应用起着至关重要的作用。
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引用次数: 0
Usability, Ergonomics, and Educational Value of a Novel Telestration Tool for Surgical Coaching: Usability Study. 用于外科手术指导的新型远程穿刺工具的可用性、人体工程学和教育价值:可用性研究。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-10 DOI: 10.2196/57243
Parmiss Kiani, Roberta Dolling-Boreham, Mohamed Saif Hameed, Caterina Masino, Andras Fecso, Allan Okrainec, Amin Madani

Background: Telementoring studies found technical challenges in achieving accurate and stable annotations during live surgery using commercially available telestration software intraoperatively. To address the gap, a wireless handheld telestration device was developed to facilitate dynamic user interaction with live video streams.

Objective: This study aims to find the perceived usability, ergonomics, and educational value of a first-generation handheld wireless telestration platform.

Methods: A prototype was developed with four core hand-held functions: (1) free-hand annotation, (2) cursor navigation, (3) overlay and manipulation (rotation) of ghost (avatar) instrumentation, and (4) hand-held video feed navigation on a remote monitor. This device uses a proprietary augmented reality platform. Surgeons and trainees were invited to test the core functions of the platform by performing standardized tasks. Usability and ergonomics were evaluated with a validated system usability scale and a 5-point Likert scale survey, which also evaluated the perceived educational value of the device.

Results: In total, 10 people (9 surgeons and 1 senior resident; 5 male and 5 female) participated. Participants strongly agreed or agreed (SA/A) that it was easy to perform annotations (SA/A 9, 90% and neutral 0, 0%), video feed navigation (SA/A 8, 80% and neutral 1, 10%), and manipulation of ghost (avatar) instruments on the monitor (SA/A 6, 60% and neutral 3, 30%). Regarding ergonomics, 40% (4) of participants agreed or strongly agreed (neutral 4, 40%) that the device was physically comfortable to use and hold. These results are consistent with open-ended comments on the device's size and weight. The average system usability scale was 70 (SD 12.5; median 75, IQR 63-84) indicating an above average usability score. Participants responded favorably to the device's perceived educational value, particularly for postoperative coaching (agree 6, 60%, strongly agree 4, 40%).

Conclusions: This study presents the preliminary usability results of a novel first-generation telestration tool customized for use in surgical coaching. Favorable usability and perceived educational value were reported. Future iterations of the device should focus on incorporating user feedback and additional studies should be conducted to evaluate its effectiveness for improving surgical education. Ultimately, such tools can be incorporated into pedagogical models of surgical coaching to optimize feedback and training.

背景:Telementoring研究发现,在术中使用市售的telestration软件进行实时手术时,要实现准确、稳定的注释存在技术挑战。为了弥补这一不足,我们开发了一种无线手持式远程描记设备,以促进用户与实时视频流的动态互动:本研究旨在了解第一代手持式无线透视平台的可用性、人体工程学和教育价值:开发的原型具有四种核心手持功能:(1) 自由手写注释;(2) 光标导航;(3) 叠加和操作(旋转)幽灵(化身)仪器;(4) 在远程显示器上进行手持视频导航。该设备使用专有的增强现实平台。外科医生和受训人员受邀通过执行标准化任务来测试该平台的核心功能。使用经过验证的系统可用性量表和 5 点李克特量表调查对可用性和人体工程学进行了评估,同时还对该设备的教育价值进行了评估:共有 10 人(9 名外科医生和 1 名高级住院医师;5 名男性和 5 名女性)参与了调查。参与者非常同意或同意(SA/A)进行注释(SA/A 9,90%;中性 0,0%)、视频导航(SA/A 8,80%;中性 1,10%)以及在显示器上操作幽灵(化身)器械(SA/A 6,60%;中性 3,30%)很容易。在人体工程学方面,40%(4 人)的参与者同意或非常同意(中性 4 人,40%)该设备在使用和握持时感觉舒适。这些结果与关于设备大小和重量的开放式意见一致。系统可用性评分的平均值为 70(标准差 12.5;中位数 75,IQR 63-84),表明可用性得分高于平均水平。参与者对该设备的教育价值,尤其是术后指导的教育价值反应良好(同意 6 人,占 60%;非常同意 4 人,占 40%):本研究介绍了为手术指导定制的第一代新型远程穿刺工具的初步可用性结果。报告显示,该工具具有良好的可用性和可感知的教育价值。该设备未来的迭代应侧重于纳入用户反馈,并应开展更多研究来评估其在改善手术教育方面的有效性。最终,此类工具可纳入手术指导的教学模式,以优化反馈和培训。
{"title":"Usability, Ergonomics, and Educational Value of a Novel Telestration Tool for Surgical Coaching: Usability Study.","authors":"Parmiss Kiani, Roberta Dolling-Boreham, Mohamed Saif Hameed, Caterina Masino, Andras Fecso, Allan Okrainec, Amin Madani","doi":"10.2196/57243","DOIUrl":"10.2196/57243","url":null,"abstract":"<p><strong>Background: </strong>Telementoring studies found technical challenges in achieving accurate and stable annotations during live surgery using commercially available telestration software intraoperatively. To address the gap, a wireless handheld telestration device was developed to facilitate dynamic user interaction with live video streams.</p><p><strong>Objective: </strong>This study aims to find the perceived usability, ergonomics, and educational value of a first-generation handheld wireless telestration platform.</p><p><strong>Methods: </strong>A prototype was developed with four core hand-held functions: (1) free-hand annotation, (2) cursor navigation, (3) overlay and manipulation (rotation) of ghost (avatar) instrumentation, and (4) hand-held video feed navigation on a remote monitor. This device uses a proprietary augmented reality platform. Surgeons and trainees were invited to test the core functions of the platform by performing standardized tasks. Usability and ergonomics were evaluated with a validated system usability scale and a 5-point Likert scale survey, which also evaluated the perceived educational value of the device.</p><p><strong>Results: </strong>In total, 10 people (9 surgeons and 1 senior resident; 5 male and 5 female) participated. Participants strongly agreed or agreed (SA/A) that it was easy to perform annotations (SA/A 9, 90% and neutral 0, 0%), video feed navigation (SA/A 8, 80% and neutral 1, 10%), and manipulation of ghost (avatar) instruments on the monitor (SA/A 6, 60% and neutral 3, 30%). Regarding ergonomics, 40% (4) of participants agreed or strongly agreed (neutral 4, 40%) that the device was physically comfortable to use and hold. These results are consistent with open-ended comments on the device's size and weight. The average system usability scale was 70 (SD 12.5; median 75, IQR 63-84) indicating an above average usability score. Participants responded favorably to the device's perceived educational value, particularly for postoperative coaching (agree 6, 60%, strongly agree 4, 40%).</p><p><strong>Conclusions: </strong>This study presents the preliminary usability results of a novel first-generation telestration tool customized for use in surgical coaching. Favorable usability and perceived educational value were reported. Future iterations of the device should focus on incorporating user feedback and additional studies should be conducted to evaluate its effectiveness for improving surgical education. Ultimately, such tools can be incorporated into pedagogical models of surgical coaching to optimize feedback and training.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"11 ","pages":"e57243"},"PeriodicalIF":2.6,"publicationDate":"2024-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11422725/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142297405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Design and Implementation of an Opioid Scorecard for Hospital System-Wide Peer Comparison of Opioid Prescribing Habits: Observational Study. 设计和实施阿片类药物记分卡,用于医院系统内阿片类药物处方习惯的同行比较:观察研究。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-09 DOI: 10.2196/44662
Benjamin Heritier Slovis, Soonyip Huang, Melanie McArthur, Cara Martino, Tasia Beers, Meghan Labella, Jeffrey M Riggio, Edmund deAzevedo Pribitkin

Background: Reductions in opioid prescribing by health care providers can lead to a decreased risk of opioid dependence in patients. Peer comparison has been demonstrated to impact providers' prescribing habits, though its effect on opioid prescribing has predominantly been studied in the emergency department setting.

Objective: The purpose of this study is to describe the development of an enterprise-wide opioid scorecard, the architecture of its implementation, and plans for future research on its effects.

Methods: Using data generated by the author's enterprise vendor-based electronic health record, the enterprise analytics software, and expertise from a dedicated group of informaticists, physicians, and analysts, the authors developed an opioid scorecard that was released on a quarterly basis via email to all opioid prescribers at our institution. These scorecards compare providers' opioid prescribing habits on the basis of established metrics to those of their peers within their specialty throughout the enterprise.

Results: At the time of this study's completion, 2034 providers have received at least 1 scorecard over a 5-quarter period ending in September 2021. Poisson regression demonstrated a 1.6% quarterly reduction in opioid prescribing, and chi-square analysis demonstrated pre-post reductions in the proportion of prescriptions longer than 5 days' duration and a morphine equivalent daily dose of >50.

Conclusions: To our knowledge, this is the first peer comparison effort with high-quality evidence-based metrics of this scale published in the literature. By sharing this process for designing the metrics and the process of distribution, the authors hope to influence other health systems to attempt to curb the opioid pandemic through peer comparison. Future research examining the effects of this intervention could demonstrate significant reductions in opioid prescribing, thus potentially reducing the progression of individual patients to opioid use disorder and the associated increased risk of morbidity and mortality.

背景:医疗服务提供者减少阿片类药物处方可降低患者对阿片类药物产生依赖的风险。同行比较已被证明会影响医疗服务提供者的处方习惯,但其对阿片类药物处方的影响主要是在急诊科环境中进行研究:本研究旨在介绍企业范围内阿片类药物记分卡的开发、实施架构以及未来研究其效果的计划:利用作者所在企业供应商提供的电子病历、企业分析软件生成的数据,以及由信息学家、医生和分析师组成的专门小组提供的专业知识,作者开发了阿片类药物记分卡,每季度通过电子邮件向本机构的所有阿片类药物处方者发布一次。这些记分卡根据既定指标,将医疗服务提供者的阿片类药物处方习惯与其所在专科的同行进行比较:结果:在本研究完成时,2034 名医疗服务提供者在截至 2021 年 9 月的 5 个季度内至少收到了 1 张记分卡。泊松回归结果显示,阿片类药物处方量每季度减少了 1.6%,卡方分析表明,持续时间超过 5 天的处方比例和每日吗啡当量大于 50 的处方比例在研究前和研究后都有所下降:据我们所知,这是首次在文献中发表的具有高质量循证指标的同行比较工作。作者希望通过分享这一指标的设计过程和分发过程,影响其他医疗系统尝试通过同行比较来遏制阿片类药物的流行。未来对这一干预措施效果的研究可能会证明阿片类药物处方的显著减少,从而有可能减少个别患者发展为阿片类药物使用障碍以及相关的发病和死亡风险的增加。
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引用次数: 0
Evaluating the Usability and Quality of a Clinical Mobile App for Assisting Physicians in Head Computed Tomography Scan Ordering: Mixed Methods Study. 评估用于协助医生订购头部计算机断层扫描片的临床移动应用程序的可用性和质量:混合方法研究。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-09 DOI: 10.2196/55790
Zahra Meidani, Aydine Omidvar, Hossein Akbari, Fatemeh Asghari, Reza Khajouei, Zahra Nazemi, Ehsan Nabovati, Felix Holl

Background: Among the numerous factors contributing to health care providers' engagement with mobile apps, including user characteristics (eg, dexterity, anatomy, and attitude) and mobile features (eg, screen and button size), usability and quality of apps have been introduced as the most influential factors.

Objective: This study aims to investigate the usability and quality of the Head Computed Tomography Scan Appropriateness Criteria (HAC) mobile app for physicians' computed tomography scan ordering.

Methods: Our study design was primarily based on methodological triangulation by using mixed methods research involving quantitative and qualitative think-aloud usability testing, quantitative analysis of the Mobile Apps Rating Scale (MARS) for quality assessment, and debriefing across 3 phases. In total, 16 medical interns participated in quality assessment and testing usability characteristics, including efficiency, effectiveness, learnability, errors, and satisfaction with the HAC app.

Results: The efficiency and effectiveness of the HAC app were deemed satisfactory, with ratings of 97.8% and 96.9%, respectively. MARS assessment scale indicated the overall favorable quality score of the HAC app (82 out of 100). Scoring 4 MARS subscales, Information (73.37 out of 100) and Engagement (73.48 out of 100) had the lowest scores, while Aesthetics had the highest score (87.86 out of 100). Analysis of the items in each MARS subscale revealed that in the Engagement subscale, the lowest score of the HAC app was "customization" (63.6 out of 100). In the Functionality subscale, the HAC app's lowest value was "performance" (67.4 out of 100). Qualitative think-aloud usability testing of the HAC app found notable usability issues grouped into 8 main categories: lack of finger-friendly touch targets, poor search capabilities, input problems, inefficient data presentation and information control, unclear control and confirmation, lack of predictive capabilities, poor assistance and support, and unclear navigation logic.

Conclusions: Evaluating the quality and usability of mobile apps using a mixed methods approach provides valuable information about their functionality and disadvantages. It is highly recommended to embrace a more holistic and mixed methods strategy when evaluating mobile apps, because results from a single method imperfectly reflect trustworthy and reliable information regarding the usability and quality of apps.

背景:在导致医疗服务提供者使用移动应用程序的众多因素中,包括用户特征(如灵巧性、解剖学和态度)和移动功能(如屏幕和按钮大小),应用程序的可用性和质量被认为是最具影响力的因素:本研究旨在调查《头部计算机断层扫描适宜性标准》(HAC)移动应用程序的可用性和质量,以便医生进行计算机断层扫描下单:我们的研究设计主要基于方法学三角测量法,采用混合方法研究,包括定量和定性的思考-朗读可用性测试、用于质量评估的移动应用程序评分量表(MARS)的定量分析以及三个阶段的汇报。共有 16 名医学实习生参与了质量评估和可用性特征测试,包括 HAC 应用程序的效率、有效性、可学性、错误和满意度:结果:HAC 应用程序的效率和效果令人满意,评分分别为 97.8% 和 96.9%。MARS 评估量表显示,HAC 应用程序的总体质量得分较高(82 分,满分 100 分)。在 MARS 的 4 个分量表中,信息(73.37 分,满分 100 分)和参与(73.48 分,满分 100 分)得分最低,而美学得分最高(87.86 分,满分 100 分)。对 MARS 各分量表项目的分析表明,在 "参与 "分量表中,HAC 应用程序得分最低的是 "定制"(63.6 分,满分 100 分)。在功能性分量表中,HAC 应用程序的最低值是 "性能"(67.4 分,满分 100 分)。对 HAC 应用程序的定性思考-朗读可用性测试发现了明显的可用性问题,主要分为 8 个类别:缺乏手指友好触摸目标、搜索能力差、输入问题、数据展示和信息控制效率低、控制和确认不明确、缺乏预测能力、辅助和支持差以及导航逻辑不清晰:结论:使用混合方法评估移动应用程序的质量和可用性可提供有关其功能和缺点的宝贵信息。强烈建议在评估移动应用程序时采用更全面的混合方法策略,因为单一方法得出的结果并不能完美地反映应用程序可用性和质量方面可信和可靠的信息。
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引用次数: 0
Lessons Learned From Developing Dashboards to Support Decision-Making for Community Opioid Response by Community Stakeholders: Mixed Methods and Multisite Study. 从社区利益相关者开发仪表板以支持社区阿片类药物应对决策中汲取的经验教训:混合方法和多站点研究。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-09 DOI: 10.2196/51525
Naleef Fareed, Ramona G Olvera, Yiting Wang, Michael Hayes, Elizabeth Liz Larimore, Peter Balvanz, Ronald Langley, Corinna A Noel, Peter Rock, Daniel Redmond, Jessica Neufeld, Sarah Kosakowski, Daniel Harris, Marc LaRochelle, Timothy R Huerta, LaShawn Glasgow, Emmanuel Oga, Jennifer Villani, Elwin Wu

Background: Data dashboards are published tools that present visualizations; they are increasingly used to display data about behavioral health, social determinants of health, and chronic and infectious disease risks to inform or support public health endeavors. Dashboards can be an evidence-based approach used by communities to influence decision-making in health care for specific populations. Despite widespread use, evidence on how to best design and use dashboards in the public health realm is limited. There is also a notable dearth of studies that examine and document the complexity and heterogeneity of dashboards in community settings.

Objective: Community stakeholders engaged in the community response to the opioid overdose crisis could benefit from the use of data dashboards for decision-making. As part of the Communities That HEAL (CTH) intervention, community data dashboards were created for stakeholders to support decision-making. We assessed stakeholders' perceptions of the usability and use of the CTH dashboards for decision-making.

Methods: We conducted a mixed methods assessment between June and July 2021 on the use of CTH dashboards. We administered the System Usability Scale (SUS) and conducted semistructured group interviews with users in 33 communities across 4 states of the United States. The SUS comprises 10 five-point Likert-scale questions measuring usability, each scored from 0 to 4. The interview guides were informed by the technology adoption model (TAM) and focused on perceived usefulness, perceived ease of use, intention to use, and contextual factors.

Results: Overall, 62 users of the CTH dashboards completed the SUS and interviews. SUS scores (grand mean 73, SD 4.6) indicated that CTH dashboards were within the acceptable range for usability. From the qualitative interview data, we inductively created subthemes within the 4 dimensions of the TAM to contextualize stakeholders' perceptions of the dashboard's usefulness and ease of use, their intention to use, and contextual factors. These data also highlighted gaps in knowledge, design, and use, which could help focus efforts to improve the use and comprehension of dashboards by stakeholders.

Conclusions: We present a set of prioritized gaps identified by our national group and list a set of lessons learned for improved data dashboard design and use for community stakeholders. Findings from our novel application of both the SUS and TAM provide insights and highlight important gaps and lessons learned to inform the design of data dashboards for use by decision-making community stakeholders.

Trial registration: ClinicalTrials.gov NCT04111939; https://clinicaltrials.gov/study/NCT04111939.

背景:数据仪表盘是一种可视化的发布工具;它们越来越多地用于显示有关行为健康、健康的社会决定因素以及慢性病和传染病风险的数据,为公共卫生工作提供信息或支持。仪表板可作为一种循证方法,被社区用于影响特定人群的医疗保健决策。尽管仪表盘被广泛使用,但有关如何在公共卫生领域以最佳方式设计和使用仪表盘的证据却很有限。此外,研究和记录社区环境中仪表盘的复杂性和异质性的研究也明显不足:参与社区应对阿片类药物过量危机的社区利益相关者可以从使用数据仪表盘进行决策中获益。作为 "健康社区"(Communities That HEAL,CTH)干预措施的一部分,我们为利益相关者创建了社区数据仪表盘,以支持决策。我们评估了利益相关者对 CTH 仪表板在决策中的可用性和使用情况的看法:我们在 2021 年 6 月至 7 月期间采用混合方法对 CTH 面板的使用情况进行了评估。我们采用了系统可用性量表(SUS),并对美国 4 个州 33 个社区的用户进行了半结构化小组访谈。访谈指南参考了技术采用模型(TAM),重点关注感知有用性、感知易用性、使用意向和环境因素:共有 62 名普通话仪表盘用户完成了 SUS 和访谈。SUS评分(总平均分73分,标准差4.6分)表明,CTH仪表盘的可用性在可接受范围内。从定性访谈数据中,我们归纳出了 TAM 的 4 个维度中的子主题,以便将利益相关者对仪表盘的实用性和易用性的看法、他们的使用意向以及背景因素具体化。这些数据还强调了在知识、设计和使用方面存在的差距,这有助于集中精力改善利益相关者对仪表盘的使用和理解:我们介绍了全国小组确定的一系列优先差距,并列出了一系列经验教训,以改进社区利益相关者对数据仪表盘的设计和使用。从我们对 SUS 和 TAM 的新颖应用中得出的结论为设计供决策社区利益相关者使用的数据仪表盘提供了启示,并强调了重要的差距和经验教训:ClinicalTrials.gov NCT04111939; https://clinicaltrials.gov/study/NCT04111939.
{"title":"Lessons Learned From Developing Dashboards to Support Decision-Making for Community Opioid Response by Community Stakeholders: Mixed Methods and Multisite Study.","authors":"Naleef Fareed, Ramona G Olvera, Yiting Wang, Michael Hayes, Elizabeth Liz Larimore, Peter Balvanz, Ronald Langley, Corinna A Noel, Peter Rock, Daniel Redmond, Jessica Neufeld, Sarah Kosakowski, Daniel Harris, Marc LaRochelle, Timothy R Huerta, LaShawn Glasgow, Emmanuel Oga, Jennifer Villani, Elwin Wu","doi":"10.2196/51525","DOIUrl":"10.2196/51525","url":null,"abstract":"<p><strong>Background: </strong>Data dashboards are published tools that present visualizations; they are increasingly used to display data about behavioral health, social determinants of health, and chronic and infectious disease risks to inform or support public health endeavors. Dashboards can be an evidence-based approach used by communities to influence decision-making in health care for specific populations. Despite widespread use, evidence on how to best design and use dashboards in the public health realm is limited. There is also a notable dearth of studies that examine and document the complexity and heterogeneity of dashboards in community settings.</p><p><strong>Objective: </strong>Community stakeholders engaged in the community response to the opioid overdose crisis could benefit from the use of data dashboards for decision-making. As part of the Communities That HEAL (CTH) intervention, community data dashboards were created for stakeholders to support decision-making. We assessed stakeholders' perceptions of the usability and use of the CTH dashboards for decision-making.</p><p><strong>Methods: </strong>We conducted a mixed methods assessment between June and July 2021 on the use of CTH dashboards. We administered the System Usability Scale (SUS) and conducted semistructured group interviews with users in 33 communities across 4 states of the United States. The SUS comprises 10 five-point Likert-scale questions measuring usability, each scored from 0 to 4. The interview guides were informed by the technology adoption model (TAM) and focused on perceived usefulness, perceived ease of use, intention to use, and contextual factors.</p><p><strong>Results: </strong>Overall, 62 users of the CTH dashboards completed the SUS and interviews. SUS scores (grand mean 73, SD 4.6) indicated that CTH dashboards were within the acceptable range for usability. From the qualitative interview data, we inductively created subthemes within the 4 dimensions of the TAM to contextualize stakeholders' perceptions of the dashboard's usefulness and ease of use, their intention to use, and contextual factors. These data also highlighted gaps in knowledge, design, and use, which could help focus efforts to improve the use and comprehension of dashboards by stakeholders.</p><p><strong>Conclusions: </strong>We present a set of prioritized gaps identified by our national group and list a set of lessons learned for improved data dashboard design and use for community stakeholders. Findings from our novel application of both the SUS and TAM provide insights and highlight important gaps and lessons learned to inform the design of data dashboards for use by decision-making community stakeholders.</p><p><strong>Trial registration: </strong>ClinicalTrials.gov NCT04111939; https://clinicaltrials.gov/study/NCT04111939.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"11 ","pages":"e51525"},"PeriodicalIF":2.6,"publicationDate":"2024-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11420584/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Influence of TikTok on Body Satisfaction Among Generation Z in Indonesia: Mixed Methods Approach. TikTok 对印度尼西亚 Z 世代身体满意度的影响:混合方法
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-06 DOI: 10.2196/58371
Hanifa Ariana, Ikmal Almuhtadi, Nikita Jacey Natania, Putu Wuri Handayani, Stéphane Bressan, Pramitha Dwi Larasati

Background: As social media platforms gain popularity, their usage is increasingly associated with cyberbullying and body shaming, causing devastating effects.

Objective: This study aims to investigate the impact of social media on Generation Z users' body image satisfaction. More specifically, it examines the impact of TikTok on body image satisfaction among TikTok users aged between 17 years and 26 years in Indonesia.

Methods: The methodology used mixed-method approaches. Quantitative data were obtained from 507 responses to a questionnaire and analyzed using covariance-based structural equation modeling. Qualitative data were obtained from the interviews of 32 respondents and analyzed through content analysis.

Results: This study reveals that upward appearance comparison is influenced by video-based activity and appearance motivation. Conversely, thin-ideal internalization is influenced by appearance motivation and social media literacy. Upward appearance comparisons and thin-ideal internalization comparisons detrimentally impact users' body image satisfaction.

Conclusions: The results of this study are expected to provide valuable insights for social media providers, regulators, and educators in their endeavors to establish a positive and healthy social media environment for users.

背景:随着社交媒体平台的普及,其使用与网络欺凌和身体羞辱的关系日益密切,造成了破坏性影响:本研究旨在调查社交媒体对 Z 世代用户身体形象满意度的影响。更具体地说,本研究探讨了 TikTok 对印度尼西亚 17 岁至 26 岁 TikTok 用户身体形象满意度的影响:方法:采用混合方法。定量数据来自 507 份问卷的回复,并使用基于协方差的结构方程模型进行分析。定性数据来自对 32 名受访者的访谈,并通过内容分析法进行分析:本研究揭示了向上外观比较受基于视频的活动和外观动机的影响。相反,瘦身理想的内在化则受外貌动机和社交媒体素养的影响。向上的外貌比较和瘦的理想内化比较会对用户的身体形象满意度产生不利影响:本研究的结果有望为社交媒体提供商、监管机构和教育工作者提供有价值的见解,帮助他们为用户建立积极健康的社交媒体环境。
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引用次数: 0
The Utilization of Mobile Healthcare Among Medical Professionals in the Sichuan-Chongqing Region: A Cross-sectional Survey. 川渝地区医务人员对移动医疗的使用情况:横断面调查
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-05 DOI: 10.2196/59153
Yan Tang, Juan Yang, Ni Wang, Xin Wang, Wenli Hu

Background: The emergence and integration of mobile healthcare technology have fundamentally transformed the healthcare industry, providing unprecedented opportunities to improve healthcare services and professional practice. Despite its immense potential, the adoption of mobile healthcare technology among healthcare professionals remains uneven, particularly in developing regions.

Objective: This study aims to explore the usage and influencing factors of mobile healthcare among healthcare professionals in the Sichuan-Chongqing region of China and make recommendations.

Methods: Convenience sampling was used in a cross-sectional study conducted from November 8th to November 14th, 2023, to survey frontline clinical healthcare professionals at five district-level secondary public hospitals in the Sichuan-Chongqing region. An online questionnaire was used to investigate the usage of mobile healthcare and its influencing factors among the participants. Descriptive analysis and logistic regression analysis were employed in the study.

Results: A total of 550 valid questionnaires were completed. Among the surveyed healthcare professionals, only 18.7% used mobile healthcare, with a satisfaction rate of only 50.5%. 81.3% did not use any form of mobile healthcare. The age group of 30-39 was found to be a significant factor influencing the use of mobile healthcare by healthcare professionals (P =.03). The main reasons for not using mobile healthcare among healthcare professionals were: lack of appropriate technical training and support (59.5%), lack of suitable management-specific apps (45.6%), and concerns about increased workload (40.3%). There were significant differences in the single-factor analysis of the reasons for non-use of mobile healthcare among healthcare professionals from different specialties (P=.04). Logistic regression analysis indicated that age was the only significant factor influencing the use of mobile healthcare by healthcare professionals (P =.04).

Conclusions: The utilization rate of mobile healthcare among healthcare professionals in the Sichuan-Chongqing region is low. Age is a significant factor that influences whether healthcare professionals use mobile healthcare. Providing appropriate technical training and support may help improve the enthusiasm of healthcare professionals in using mobile healthcare.

Clinicaltrial:

背景:移动医疗技术的出现和整合从根本上改变了医疗行业,为改善医疗服务和专业实践提供了前所未有的机遇。尽管移动医疗技术潜力巨大,但医护人员对其的采用仍不均衡,尤其是在发展中地区:本研究旨在探讨中国川渝地区医护人员对移动医疗的使用情况和影响因素,并提出建议:方法:本研究于 2023 年 11 月 8 日至 11 月 14 日在川渝地区的 5 家区级二级公立医院对一线临床医护人员进行了横断面调查,采用了方便抽样法。研究采用在线问卷调查的方式,调查参与者对移动医疗的使用情况及其影响因素。研究采用了描述性分析和逻辑回归分析:共完成了 550 份有效问卷。在接受调查的医护人员中,只有 18.7% 的人使用移动医疗,满意度仅为 50.5%。81.3%的人不使用任何形式的移动医疗。研究发现,30-39 岁年龄段是影响医护人员使用移动医疗的一个重要因素(P =.03)。医护人员不使用移动医疗的主要原因是:缺乏适当的技术培训和支持(59.5%)、缺乏合适的管理专用应用程序(45.6%)以及担心工作量增加(40.3%)。在对不同专业的医护人员不使用移动医疗的原因进行的单因素分析中,存在明显差异(P=0.04)。逻辑回归分析表明,年龄是影响医护人员使用移动医疗的唯一重要因素(P=.04):结论:川渝地区医护人员的移动医疗使用率较低。年龄是影响医护人员是否使用移动医疗的重要因素。提供适当的技术培训和支持有助于提高医护人员使用移动医疗的积极性:
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引用次数: 0
Integrating Health and Disability Data Into Academic Information Systems: Workflow Optimization Study. 将健康和残疾数据纳入学术信息系统:工作流程优化研究。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-04 DOI: 10.2196/54859
Abdulrahman Jabour

Background: Integrating health information into university information systems holds significant potential for enhancing student support and well-being. Despite the growing body of research highlighting issues faced by university students, including stress, depression, and disability, little has been done in the informatics field to incorporate health technologies at the institutional level.

Objective: This study aims to investigate the current state of health information integration within university systems and provide design recommendations to address existing gaps and opportunities.

Methods: We used a user-centered approach to conduct interviews and focus group sessions with stakeholders to gather comprehensive insights and requirements for the system. The methodology involved data collection, analysis, and the development of a suggested workflow.

Results: The findings of this study revealed the shortcomings in the current process of handling health and disability data within university information systems. In our results, we discuss some requirements identified for integrating health-related information into student information systems, such as privacy and confidentiality, timely communication, task automation, and disability resources. We propose a workflow that separates the process into 2 distinct components: a health and disability system and measures of quality of life and wellness. The proposed workflow highlights the vital role of academic advisors in facilitating support and enhancing coordination among stakeholders.

Conclusions: To streamline the workflow, it is vital to have effective coordination among stakeholders and redesign the university information system. However, implementing the new system will require significant capital and resources. We strongly emphasize the importance of increased standardization and regulation to support the information system requirements for health and disability. Through the adoption of standardized practices and regulations, we can ensure the smooth and effective implementation of the required support system.

背景:将健康信息整合到大学信息系统中,对于增强学生支持和福祉具有巨大的潜力。尽管越来越多的研究强调了大学生面临的压力、抑郁和残疾等问题,但信息学领域在机构层面整合健康技术方面却鲜有建树:本研究旨在调查大学系统内健康信息整合的现状,并针对现有差距和机遇提出设计建议:我们采用以用户为中心的方法,与利益相关者进行访谈和焦点小组会议,以收集对系统的全面见解和要求。方法:我们采用以用户为中心的方法,与利益相关者进行访谈和焦点小组会议,收集他们对系统的全面见解和要求。方法包括数据收集、分析和制定建议的工作流程:本研究的结果揭示了当前大学信息系统在处理健康和残疾数据过程中存在的不足。在研究结果中,我们讨论了将健康相关信息整合到学生信息系统中的一些要求,如隐私和保密、及时沟通、任务自动化和残疾资源。我们提出了一个工作流程,将这一过程分为两个不同的组成部分:健康和残疾系统以及生活质量和健康措施。建议的工作流程强调了学术顾问在促进支持和加强利益相关者之间协调方面的重要作用:要简化工作流程,利益相关者之间的有效协调和大学信息系统的重新设计至关重要。然而,实施新系统需要大量资金和资源。我们大力强调加强标准化和监管的重要性,以支持健康和残疾信息系统的要求。通过采用标准化的做法和规章制度,我们可以确保顺利有效地实施所需的支持系统。
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引用次数: 0
Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study. 在血友病护理中实现个性化护理和患者赋权以及对个人健康记录的看法:定性访谈研究。
IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-03 DOI: 10.2196/48359
Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna G van der Bom, Marjon H Cnossen, Karin Fijnvandraat, Samantha C Gouw

Background: To enable personalized treatment and shared decision-making in chronic care, relevant health information is collected. However, health information is often fragmented across hospital information systems, digital health apps, and questionnaire portals. This also pertains to hemophilia care, in which scattered information hampers integrated care. We intend to co-design a nationwide digital personal health record (PHR) for patients to help manage their health information. For this, user perspectives are crucial.

Objective: This study aims to assess patients' and health care providers' perspectives regarding the use of a PHR in hemophilia care in the Netherlands, required functionalities, and expectations and concerns.

Methods: In this semistructured interview study, 19 pediatric and adult persons with hemophilia, parents, and women with other inherited bleeding disorders, as well as 18 health care providers working within and outside of hemophilia treatment centers, participated. Perspectives of patients and providers were explored separately. To explore requirements, participants were asked to prioritize functionalities.

Results: Participants expected a PHR would increase the transparency of health information, improve patients' understanding of their illness, and help the coordination of care between health care providers and institutions. Prioritized functionalities included the integration of relevant health information and patient-entered data. Formulated expectations and concerns focused on 4 themes: usability, safety, inclusiveness, and implementation. While patients expressed worries over medicalization (ie, more confrontational reminders of their illness), providers were concerned about an increased workload.

Conclusions: People with hemophilia, their parents, and health care providers welcomed the development of a PHR, as they expected it would result in better coordinated care. Formulated expectations and concerns will contribute to the successful development of a PHR for persons with hemophilia, and ultimately, for all persons with a chronic condition.

背景:为了在慢性病护理中实现个性化治疗和共同决策,需要收集相关的健康信息。然而,健康信息往往分散在医院信息系统、数字健康应用程序和问卷门户网站中。血友病护理也是如此,分散的信息阻碍了综合护理。我们打算为患者共同设计一个全国性的数字个人健康记录(PHR),以帮助管理他们的健康信息。为此,用户的观点至关重要:本研究旨在评估患者和医疗服务提供者对在荷兰血友病治疗中使用个人健康记录的看法、所需功能以及期望和担忧:在这项半结构式访谈研究中,19 名患有血友病的儿童和成人患者、父母和患有其他遗传性出血性疾病的妇女,以及 18 名在血友病治疗中心内外工作的医疗服务提供者参加了访谈。我们分别探讨了患者和医疗服务提供者的观点。为了探究需求,参与者被要求对功能进行优先排序:结果:参与者希望个人健康记录系统能提高健康信息的透明度,增进患者对自身疾病的了解,并帮助医疗服务提供者和机构之间协调护理工作。优先考虑的功能包括整合相关健康信息和患者输入的数据。所提出的期望和担忧集中在四个主题上:可用性、安全性、包容性和实施。患者对医疗化表示担忧(即更多的对抗性疾病提醒),而医疗服务提供者则担心工作量增加:结论:血友病患者、他们的父母和医疗服务提供者都对开发个人健康记录系统表示欢迎,因为他们期望该系统能更好地协调医疗服务。他们的期望和担忧将有助于为血友病患者成功开发个人健康记录系统,并最终为所有慢性病患者成功开发个人健康记录系统。
{"title":"Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study.","authors":"Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna G van der Bom, Marjon H Cnossen, Karin Fijnvandraat, Samantha C Gouw","doi":"10.2196/48359","DOIUrl":"10.2196/48359","url":null,"abstract":"<p><strong>Background: </strong>To enable personalized treatment and shared decision-making in chronic care, relevant health information is collected. However, health information is often fragmented across hospital information systems, digital health apps, and questionnaire portals. This also pertains to hemophilia care, in which scattered information hampers integrated care. We intend to co-design a nationwide digital personal health record (PHR) for patients to help manage their health information. For this, user perspectives are crucial.</p><p><strong>Objective: </strong>This study aims to assess patients' and health care providers' perspectives regarding the use of a PHR in hemophilia care in the Netherlands, required functionalities, and expectations and concerns.</p><p><strong>Methods: </strong>In this semistructured interview study, 19 pediatric and adult persons with hemophilia, parents, and women with other inherited bleeding disorders, as well as 18 health care providers working within and outside of hemophilia treatment centers, participated. Perspectives of patients and providers were explored separately. To explore requirements, participants were asked to prioritize functionalities.</p><p><strong>Results: </strong>Participants expected a PHR would increase the transparency of health information, improve patients' understanding of their illness, and help the coordination of care between health care providers and institutions. Prioritized functionalities included the integration of relevant health information and patient-entered data. Formulated expectations and concerns focused on 4 themes: usability, safety, inclusiveness, and implementation. While patients expressed worries over medicalization (ie, more confrontational reminders of their illness), providers were concerned about an increased workload.</p><p><strong>Conclusions: </strong>People with hemophilia, their parents, and health care providers welcomed the development of a PHR, as they expected it would result in better coordinated care. Formulated expectations and concerns will contribute to the successful development of a PHR for persons with hemophilia, and ultimately, for all persons with a chronic condition.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"11 ","pages":"e48359"},"PeriodicalIF":2.6,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11408883/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142126881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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JMIR Human Factors
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