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Objective Monitoring of Tablet Use-Related Optical Exposure and Its Association With Axial Length in Preschool Children: Cross-Sectional Intelligent Monitoring Study. 目的监测学龄前儿童片剂使用相关光暴露及其与眼轴长度的关系:横断面智能监测研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-28 DOI: 10.2196/79266
Yidong Zhu, Hao Chen, Senlin Lin, Hong Jiang, Mingdao Zhang, Yi Sun, Chenshu Li, Yingnan Jia

Background: In recent years, the global prevalence of myopia among children has continued to rise. The preschool years represent a critical period for visual development, and the widespread adoption of electronic screens among young children has brought increasing attention to pediatric visual health. However, the association between visual environmental exposures related to screen use-such as screen brightness and ambient illuminance-and the risk of myopia in preschool children has not been thoroughly investigated.

Objective: This monitoring study aimed to investigate the association between electronic screen brightness, ambient illuminance, and axial length in preschool children to provide evidence-based support for developing screen brightness usage recommendations for this population.

Methods: This cross-sectional monitoring study was conducted between March and July 2023 in Shanghai, China, involving 2 representative samples of kindergarten children aged 3 to 6 years. Each participant was provided with a tablet preinstalled with intelligent monitoring software, which continuously and objectively recorded real-time data on screen time and screen brightness over a consecutive 7-day period. In addition, comprehensive data collection encompassed standardized ophthalmic assessments, high-precision ambient illuminance measurements, simulated laboratory lighting evaluations, and parental questionnaires. Associations between ambient illuminance, screen brightness, and axial length were analyzed using multivariable linear regression and restricted cubic spline models.

Results: Of the 199 children included in the total sample, 124 (62.3%) were boys, and 75 (37.7%) were girls. After adjustment for demographic characteristics, parental myopia, and screen use behaviors, the median ambient illuminance during tablet use was significantly inversely associated with axial length (β=-0.13, 95% CI -0.22 to -0.04; P=.006). A nonlinear dose-response relationship was identified between median screen brightness and axial length (Pnonlinearity=.004), with axial elongation accelerating beyond approximately 27 cd/m² and peaking around 56 cd/m². Boys (P<.001) and greater height (P=.33) were also significantly associated with longer axial length.

Conclusions: Higher ambient illuminance during tablet use is associated with shorter axial length in preschoolers, whereas screen brightness exhibits a nonlinear effect on axial elongation. This study highlights the importance of optimizing both environmental lighting and device settings to protect visual health in young children, providing empirical support for guidelines on safe digital device use and ambient lighting conditions in early childhood.

背景:近年来,全球儿童近视患病率持续上升。学龄前是儿童视觉发育的关键时期,随着电子屏幕在幼儿中的广泛应用,儿童视觉健康受到越来越多的关注。然而,与屏幕使用相关的视觉环境暴露(如屏幕亮度和环境照度)与学龄前儿童近视风险之间的关系尚未得到彻底调查。目的:本监测研究旨在调查学龄前儿童电子屏幕亮度、环境照度和轴长之间的关系,为制定针对这一人群的屏幕亮度使用建议提供循证支持。方法:本横断面监测研究于2023年3月至7月在中国上海进行,涉及2个具有代表性的3 - 6岁幼儿园儿童样本。每位参与者配备一台预装智能监控软件的平板电脑,连续7天连续客观记录屏幕时间和屏幕亮度的实时数据。此外,综合数据收集包括标准化眼科评估、高精度环境照度测量、模拟实验室照明评估和家长问卷调查。使用多变量线性回归和限制三次样条模型分析了环境照度、屏幕亮度和轴向长度之间的关系。结果:199例儿童中,男孩124例(62.3%),女孩75例(37.7%)。在调整了人口统计学特征、父母近视和屏幕使用行为后,平板电脑使用期间的中位环境照度与眼轴长度呈显著负相关(β=-0.13, 95% CI -0.22至-0.04;P= 0.006)。中位屏幕亮度与轴向长度之间存在非线性剂量-响应关系(p非线性= 0.004),轴向伸长率在27 cd/m²左右加速,在56 cd/m²左右达到峰值。结论:使用平板电脑时较高的环境照度与学龄前儿童较短的轴向长度有关,而屏幕亮度对轴向伸长呈非线性影响。本研究强调了优化环境照明和设备设置以保护幼儿视觉健康的重要性,为儿童早期安全使用数字设备和环境照明条件的指南提供了经验支持。
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引用次数: 0
Redesign of Bedside Supply Carts to Improve Emergency Department Workflows: Mixed Methods Participatory Design. 重新设计床边供应车以改善急诊科工作流程:混合方法参与式设计。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-28 DOI: 10.2196/80861
Kat Hefter, Sammy Dreibelbis, Theresa Haupt, Amelia McIver, Agnes Wang, Julia Dwight, Ogechi Nwodim, Neil Ray

Background: Emergency departments are often chaotic environments where delays can significantly impact patient care. Key items are stored in supply carts in or near patient rooms to promote efficiency and enable nurses to spend more time assisting patients. However, disorganization, lack of standardization, and lack of stocking can cause significant delays and negatively impact the quality of care.

Objective: This study utilized human-centered and participatory design to improve the workflow for supply acquisition in an emergency department.

Methods: Using a mixed methods, participatory design approach following the double diamond framework, the team worked with nursing staff and physicians in an urban emergency department to understand the root causes of frustrations with the current supply carts. Qualitative findings about bedside nursing workflows were integrated with quantitative observations of inventory and supply usage to drive a rapid-cycle prototyping process to optimize supply management in the bedside cart.

Results: A lack of clinical staffing exacerbates preexisting challenges with restocking the medical supplies in the bedside carts. This problem is compounded by the misallocation of supplies, with high-frequency items underrepresented and low-frequency items overrepresented in the bedside carts. This leads to wastage of the seldom-used supplies and a lack of access to the most used supplies. The reorganization of the cart through co-design with nursing staff sped up supply acquisition by approximately 20% overall, tripled the availability of the most important supplies, and reduced the need for restocking from once per shift to once per 3 shifts, thus producing tangible improvements even within institutional limitations.

Conclusions: A participatory design process, using human factors principles in tandem with extensive input from end users, enables improvements to stocking. Implications for practice include (1) lack of easy access to appropriate supplies negatively impacts patient care and contributes to nurse burnout and frustration, (2) human factors engineering can improve access to patient care supplies through redesigning the layout of hospital supply carts to better align with workflows, and (3) co-design with frequent collaboration from stakeholders and end users ensures that solutions address the issues that matter most in a sustainable way.

背景:急诊科通常是混乱的环境,延误会严重影响病人的护理。关键物品存放在病房内或附近的供应车中,以提高效率,使护士能够花更多的时间帮助病人。然而,组织混乱、缺乏标准化和缺乏储备会导致严重的延误,并对护理质量产生负面影响。目的:应用以人为本的参与式设计改进急诊科物资采购工作流程。方法:采用混合方法,遵循双菱形框架的参与式设计方法,团队与城市急诊科的护理人员和医生合作,了解当前供应车受挫的根本原因。关于床边护理工作流程的定性发现与库存和供应使用的定量观察相结合,以驱动快速循环原型流程,以优化床边推车的供应管理。结果:临床人员的缺乏加剧了在床边推车中补充医疗用品的先前存在的挑战。这一问题由于物资分配不当而变得更加复杂,在床边推车中高频物品的比例不足,而低频物品的比例过高。这导致了很少使用的供应品的浪费,以及无法获得最常用的供应品。通过与护理人员共同设计对推车进行重组,使物资采购总体上加快了约20%,将最重要物资的可用性提高了两倍,并将补货需求从每班一次减少到每3班一次,从而即使在制度限制下也能产生切实的改进。结论:参与式设计过程,利用人为因素原则与最终用户的广泛投入相结合,可以改善库存。对实践的影响包括:(1)难以获得适当的供应品对患者护理产生负面影响,并导致护士倦怠和沮丧;(2)人为因素工程可以通过重新设计医院供应车的布局来改善患者护理供应品的获取,以更好地与工作流程保持一致;(3)与利益相关者和最终用户的频繁协作共同设计,确保解决方案以可持续的方式解决最重要的问题。
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引用次数: 0
Acceptability of a Digital Care App in Patients Undergoing Hip and Knee Arthroplasty: Prospective Cohort Study. 数字化护理应用程序在髋关节和膝关节置换术患者中的可接受性:前瞻性队列研究
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-27 DOI: 10.2196/79682
Yacine Louni, Matthew Laroche, Abdulrhman Alnasser, Mohammad Abuhaneya, Eric Belzile, Sandhya Baskaran, Jennifer Mutch, Anthony Albers

Background: Mobile health (mHealth) apps have become more commonly used in orthopedics. However, for these apps to be efficient, patients should be willing to use them, making it essential to understand patients' perspectives of mHealth interventions.

Objective: The aim of this single-center, intent-to-treat, preoperative single-cohort study of 100 patients was to evaluate the acceptability of mymobility (Zimmer-Biomet), an mHealth app designed for the postoperative care of total hip arthroplasty (THA) and total knee arthroplasty (TKA).

Methods: We measured acceptability using the theoretical framework for acceptability (TFA) preoperatively and at 3 months post operation. We also measured satisfaction with app use postoperatively using the Usefulness, Satisfaction, and Ease of Use questionnaire as well as patient-reported outcome measures preoperatively and postoperatively using the Oxford hip and knee scores and the visual analog scale for pain. Patients included were 18 years or older; underwent unilateral primary total hip, total knee, or partial knee arthroplasty; spoke and read French or English; and had a smartphone with internet access. Participants used mymobility in addition to standard government-funded physiotherapy.

Results: The preoperative overall TFA result was 4.2 out of 5, but results decreased significantly postoperatively. There was higher self-efficacy in preoperative TFAs with higher education, and lower acceptability in postoperative TFAs with TKA. The Usefulness, Satisfaction, and Ease of Use questionnaire revealed a good level of satisfaction with the use of the app. Patient-reported outcome measures showed earlier improvement in THA (31.2 d) than in TKA (89.4 d), whereas the visual analog scale showed a rapid decrease in pain with both procedures. Only 1 patient expressed privacy concerns with the use of the app.

Conclusions: There was a good level of acceptability with the use of mymobility for the postoperative management of THA and TKA, although acceptability decreased postoperatively. This decrease could signify high expectations toward the app preoperatively or higher than expected difficulty and pain in the early postoperative period. Acceptability tended to increase with higher education and decrease with TKA. These trends are consistent with prior literature and constitute a potential gap to address for app developers. The influence of the natural recovery process on acceptability remains unclear. Future studies could explore this gap by comparing results in cohorts using the app to cohorts with standard care.

背景:移动健康(mHealth)应用程序在骨科领域的应用越来越普遍。然而,要使这些应用程序高效,患者应该愿意使用它们,因此了解患者对移动医疗干预措施的看法至关重要。目的:这项单中心、意向治疗、术前单队列研究的目的是评估mymobility (zimmero - biomet)的可接受性,mymobility是一款专为全髋关节置换术(THA)和全膝关节置换术(TKA)术后护理设计的移动健康应用程序。方法:术前和术后3个月采用可接受性理论框架(TFA)测量可接受性。我们还使用有用性、满意度和易用性问卷调查来测量术后应用程序使用的满意度,以及术前和术后患者报告的结果测量,使用牛津髋关节和膝关节评分和疼痛视觉模拟量表。纳入的患者年龄≥18岁;接受单侧原发性全髋关节、全膝关节或部分膝关节置换术;能说和读法语或英语;有一部可以上网的智能手机。除了标准的政府资助的物理治疗外,参与者还使用了mymobility。结果:术前TFA总分4.2(满分5分),术后TFA总分明显下降。术前学历较高的tfa患者自我效能感较高,术后学历较高的tfa患者可接受性较低。有用性、满意度和易用性问卷显示了对应用程序使用的良好满意度。患者报告的结果测量显示THA (31.2 d)比TKA (89.4 d)更早改善,而视觉模拟量表显示两种手术的疼痛都迅速减少。只有1名患者表达了使用该应用程序的隐私问题。结论:使用mymobility进行THA和TKA术后管理具有良好的可接受性,尽管可接受性在术后有所下降。这种减少可能表明术前对应用程序的期望很高,或者术后早期的困难和疼痛高于预期。接受度随学历的升高而升高,随学历的高低而降低。这些趋势与之前的文献一致,并构成了应用开发者需要解决的潜在缺口。自然恢复过程对可接受性的影响尚不清楚。未来的研究可以通过比较使用该应用程序的队列与使用标准护理的队列的结果来探索这一差距。
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引用次数: 0
Exploring Video Consultations Across the Public and Private Sectors in Norway: Semistructured Interview Study. 探索挪威公共和私营部门的视频咨询:半结构化访谈研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-26 DOI: 10.2196/80812
Mari Skoge, Sofie Ragnhild Aminoff, Henrik Myhre Ihler, Kari Jorunn Kværner, Linn Nathalie Støme, Kristin Lie Romm

Background: Delivering therapy through video consultations can increase the reach and impact of mental health care services. However, adoption varies, and there is a lack of professional consensus about the usefulness of video consultations in therapy settings.

Objective: This study aimed to explore mental health professionals' experiences with and attitudes toward video consultations across different clinical environments in the private and public health care sectors in Norway to inform the design of future digitalized services.

Methods: In this qualitative study, we recruited leaders and clinicians from public hospitals and private clinics. We conducted semistructured interviews that mapped individual experiences and attitudes concerning video consultations, as well as contextual aspects concerning the participants' professional environments. We used reflexive thematic analysis with an inductive, essentialist, and experiential orientation to analyze the data.

Results: A total of 24 mental health professionals (16 from public hospitals and 8 from private clinics) participated. Variations in their attitudes did not follow patterns reflecting the type of service or sector they worked in. Rather, attitudes seemed related to higher-level assumptions rooted in professional culture, societal values, and previous experiences. We generated six themes capturing and structuring the professional perspectives: (1) meta-perspectives on the digitalization of therapeutic rooms, (2) the "how" of service integration, (3) challenging therapist culture, (4) negotiating the limits of the digital therapy room, (5) creating clinical value from the digital format, and (6) adapting techniques and technology in digital therapy sessions.

Conclusions: To strengthen the adoption and impact of video consultations, we should direct attention toward higher-level societal and cultural aspects that shape attitudes and practices. We suggest incorporating digitalized therapy in education, facilitating personal experiences with video consultations, increasing the sharing of knowledge between clinical environments, and sparking innovation of both service models and technology.

背景:通过视频咨询提供治疗可以增加精神卫生保健服务的覆盖面和影响。然而,采用情况各不相同,并且在治疗设置中缺乏关于视频咨询有用性的专业共识。目的:本研究旨在探讨挪威私营和公共卫生保健部门不同临床环境中心理健康专业人员对视频咨询的经验和态度,为未来数字化服务的设计提供信息。方法:在定性研究中,我们从公立医院和私立诊所招募领导和临床医生。我们进行了半结构化访谈,绘制了关于视频咨询的个人经验和态度,以及参与者专业环境的背景方面。我们使用反身性主题分析,以归纳、本质和经验为导向来分析数据。结果:共有24名精神卫生专业人员参与调查,其中公立医院16名,私立诊所8名。他们态度的变化并不符合反映他们所从事的服务类型或部门的模式。相反,态度似乎与植根于职业文化、社会价值观和以往经历的更高层次的假设有关。我们生成了六个主题,以捕捉和构建专业视角:(1)关于治疗室数字化的元视角,(2)服务整合的“方式”,(3)挑战治疗师文化,(4)协商数字治疗室的局限性,(5)从数字格式创造临床价值,(6)在数字治疗过程中适应技术和技术。结论:为了加强视频咨询的采用和影响,我们应该把注意力转向塑造态度和做法的更高层次的社会和文化方面。我们建议将数字化治疗纳入教育,通过视频咨询促进个人体验,增加临床环境之间的知识共享,并激发服务模式和技术创新。
{"title":"Exploring Video Consultations Across the Public and Private Sectors in Norway: Semistructured Interview Study.","authors":"Mari Skoge, Sofie Ragnhild Aminoff, Henrik Myhre Ihler, Kari Jorunn Kværner, Linn Nathalie Støme, Kristin Lie Romm","doi":"10.2196/80812","DOIUrl":"10.2196/80812","url":null,"abstract":"<p><strong>Background: </strong>Delivering therapy through video consultations can increase the reach and impact of mental health care services. However, adoption varies, and there is a lack of professional consensus about the usefulness of video consultations in therapy settings.</p><p><strong>Objective: </strong>This study aimed to explore mental health professionals' experiences with and attitudes toward video consultations across different clinical environments in the private and public health care sectors in Norway to inform the design of future digitalized services.</p><p><strong>Methods: </strong>In this qualitative study, we recruited leaders and clinicians from public hospitals and private clinics. We conducted semistructured interviews that mapped individual experiences and attitudes concerning video consultations, as well as contextual aspects concerning the participants' professional environments. We used reflexive thematic analysis with an inductive, essentialist, and experiential orientation to analyze the data.</p><p><strong>Results: </strong>A total of 24 mental health professionals (16 from public hospitals and 8 from private clinics) participated. Variations in their attitudes did not follow patterns reflecting the type of service or sector they worked in. Rather, attitudes seemed related to higher-level assumptions rooted in professional culture, societal values, and previous experiences. We generated six themes capturing and structuring the professional perspectives: (1) meta-perspectives on the digitalization of therapeutic rooms, (2) the \"how\" of service integration, (3) challenging therapist culture, (4) negotiating the limits of the digital therapy room, (5) creating clinical value from the digital format, and (6) adapting techniques and technology in digital therapy sessions.</p><p><strong>Conclusions: </strong>To strengthen the adoption and impact of video consultations, we should direct attention toward higher-level societal and cultural aspects that shape attitudes and practices. We suggest incorporating digitalized therapy in education, facilitating personal experiences with video consultations, increasing the sharing of knowledge between clinical environments, and sparking innovation of both service models and technology.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"13 ","pages":"e80812"},"PeriodicalIF":3.0,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12887556/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146054158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perspectives of Frontline Clinicians and End-Line Users on Smartphone-Based Photography for Assessing Traumatic Dental Injuries: Focus Group Interview Study and Thematic Analysis. 一线临床医生和终端用户对基于智能手机的摄影评估创伤性牙齿损伤的观点:焦点小组访谈研究和主题分析。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-26 DOI: 10.2196/82668
Emily C Schultz, Boyen Huang, Margaret Shenouda, Mohamed Estai, Sarbin Ranjitkar, Jeffrey P Louie, Patimaporn Pungchanchaikul

Background: Mobile health (mHealth) is increasingly used in teledentistry for telediagnosis and other services; yet, the perceptions of frontline clinicians and end-line users regarding these technologies remain unexplored.

Objective: This study examined the acceptability, feasibility, and usability of an mHealth model for telediagnosis from the perspectives of frontline clinicians and end-line users.

Methods: A qualitative study using focus group interviews was conducted with 15 participants, including frontline clinicians and end-line users. Frontline clinicians captured dental images via a smartphone app, while end-line users assessed them through an mHealth platform. Interview transcriptions were thematically analyzed using consensus coding.

Results: Thematic analysis identified 9 key themes: feasibility and perceived ease of use, perceived usefulness, compatibility, self-image and social influences, self-efficacy, voluntariness and behavior intention, anxiety, facilitating conditions, and attitudes toward a behavior. Participants considered smartphone-based photography acceptable and feasible for remote dental assessment. Facilitators and barriers to implementing the mHealth model were highlighted, and recommendations for improvements were proposed.

Conclusions: Cyclical education and professional development are essential to enhancing user confidence and technology usability. Addressing patient and clinician resistance through targeted education, improved communication, and operational upgrades such as camera grids, system integration, and simplified login can support adoption. This study highlights mHealth's potential in emergency dental assessment and screening, particularly for underserved populations, and underscores opportunities for interprofessional collaboration. Future research should explore broader clinical applications across oral health conditions.

背景:移动医疗(mHealth)越来越多地用于远程牙科,用于远程诊断和其他服务;然而,一线临床医生和终端用户对这些技术的看法仍未得到探索。目的:本研究从一线临床医生和终端用户的角度考察了移动健康远程诊断模型的可接受性、可行性和可用性。方法:采用焦点小组访谈法对15名一线临床医生和终端用户进行定性研究。一线临床医生通过智能手机应用程序捕获牙齿图像,而终端用户通过移动健康平台对其进行评估。访谈记录使用共识编码进行主题分析。结果:主题分析确定了9个关键主题:可行性和感知易用性、感知有用性、兼容性、自我形象和社会影响、自我效能、自愿性和行为意图、焦虑、促进条件和对行为的态度。参与者认为基于智能手机的摄影对于远程牙科评估是可以接受和可行的。强调了实施移动医疗模式的促进因素和障碍,并提出了改进建议。结论:循环教育和专业发展对增强用户信心和技术可用性至关重要。通过有针对性的教育、改善沟通和操作升级(如摄像头网格、系统集成和简化登录)来解决患者和临床医生的阻力,可以支持采用。这项研究强调了移动健康在紧急牙科评估和筛查方面的潜力,特别是对于服务不足的人群,并强调了跨专业合作的机会。未来的研究应探索在口腔健康状况方面更广泛的临床应用。
{"title":"Perspectives of Frontline Clinicians and End-Line Users on Smartphone-Based Photography for Assessing Traumatic Dental Injuries: Focus Group Interview Study and Thematic Analysis.","authors":"Emily C Schultz, Boyen Huang, Margaret Shenouda, Mohamed Estai, Sarbin Ranjitkar, Jeffrey P Louie, Patimaporn Pungchanchaikul","doi":"10.2196/82668","DOIUrl":"10.2196/82668","url":null,"abstract":"<p><strong>Background: </strong>Mobile health (mHealth) is increasingly used in teledentistry for telediagnosis and other services; yet, the perceptions of frontline clinicians and end-line users regarding these technologies remain unexplored.</p><p><strong>Objective: </strong>This study examined the acceptability, feasibility, and usability of an mHealth model for telediagnosis from the perspectives of frontline clinicians and end-line users.</p><p><strong>Methods: </strong>A qualitative study using focus group interviews was conducted with 15 participants, including frontline clinicians and end-line users. Frontline clinicians captured dental images via a smartphone app, while end-line users assessed them through an mHealth platform. Interview transcriptions were thematically analyzed using consensus coding.</p><p><strong>Results: </strong>Thematic analysis identified 9 key themes: feasibility and perceived ease of use, perceived usefulness, compatibility, self-image and social influences, self-efficacy, voluntariness and behavior intention, anxiety, facilitating conditions, and attitudes toward a behavior. Participants considered smartphone-based photography acceptable and feasible for remote dental assessment. Facilitators and barriers to implementing the mHealth model were highlighted, and recommendations for improvements were proposed.</p><p><strong>Conclusions: </strong>Cyclical education and professional development are essential to enhancing user confidence and technology usability. Addressing patient and clinician resistance through targeted education, improved communication, and operational upgrades such as camera grids, system integration, and simplified login can support adoption. This study highlights mHealth's potential in emergency dental assessment and screening, particularly for underserved populations, and underscores opportunities for interprofessional collaboration. Future research should explore broader clinical applications across oral health conditions.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"13 ","pages":"e82668"},"PeriodicalIF":3.0,"publicationDate":"2026-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12887554/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146054080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating User Engagement and Satisfaction With Digital Mental Health Interventions: Randomized Controlled Trial of a Text Messaging Program and e-Mental Health Resources. 评估用户对数字心理健康干预的参与度和满意度:短信程序和电子心理健康资源的随机对照试验。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-21 DOI: 10.2196/76587
Gloria Obuobi-Donkor, Reham Shalaby, Belinda Agyapong, Samuel Obeng Nkrumah, Medard Kofi Adu, Ejemai Eboreime, Lori Wozney, Vincent Israel Opoku Agyapong

Background: Digital mental health tools, such as SMS text messaging and online resources, are increasingly used to support well-being. However, user satisfaction across these formats remains insufficiently explored.

Objective: The study assessed participants' engagement, perceived impact, and overall satisfaction with the Text4Support program and the e-mental health resources.

Methods: This randomized controlled study was conducted in Nova Scotia, Canada. Participants were assigned to either the Text4Support group, which received daily supportive text messages, or the control group, which received a single text message with a link to the Nova Scotia Mental Health and Addiction Program e-mental health resources. Responses to various aspects of the interventions were evaluated using a 5-point Likert scale, while overall satisfaction was measured on a scale from 0 to 10. The chi-square test and Fisher exact test were employed for data analysis.

Results: A total of 69 participants in the control group and 130 in the Text4Support group completed the satisfaction survey. The overall mean (SD) satisfaction score in the control group was 5.1 (2.3), and the overall mean (SD) satisfaction score for the Text4Support group was 7.1 (2.2). Compared to the control group, participants in the Text4Support group reported greater engagement and positive program impact. While 53.8% (70/130) of Text4Support recipients always read the messages, only 39.1% (27/69) of the control group rarely accessed the eHealth resources. When compared to the control group, participants allocated to the Text4Support group were reported to sometimes take positive action upon reading the messages (42.3% vs 33.3%). A significantly higher proportion of Text4Support users strongly agreed or agreed that the messages were supportive (81.4% vs 41.5%), positive (88.4% vs 49.2%), and helpful in coping with stress (44.2% vs 11.9%), loneliness (40.3% vs 13.4%), and improving mental well-being (51.2% vs 17.9%). In contrast, the majority of responses from the control group were largely neutral.

Conclusions: Results showed that Text4Support group participants were significantly more satisfied with the program than those receiving standard eHealth resources. This highlights that daily supportive SMS text messaging is an effective, low-cost adjunct to care delivery and mental health improvement. These findings suggest that aggregate, brief, and low-cost text-based interventions have great potential for increasing health access and engagement, particularly among traditionally disadvantaged populations with limited access to traditional services.

背景:数字心理健康工具,如短信和在线资源,越来越多地用于支持健康。然而,这些格式的用户满意度仍然没有得到充分的研究。目的:本研究评估了参与者对Text4Support项目和电子心理健康资源的参与度、感知影响和总体满意度。方法:这项随机对照研究在加拿大新斯科舍省进行。参与者被分配到Text4Support组,他们每天收到支持性短信,或者对照组,他们收到一条带有新斯科舍省心理健康和成瘾计划电子心理健康资源链接的短信。对干预措施的各个方面的反应使用5分李克特量表进行评估,而总体满意度在0到10的范围内进行测量。数据分析采用卡方检验和Fisher精确检验。结果:对照组共69人,Text4Support组共130人完成满意度调查。对照组的总体平均(SD)满意度评分为5.1 (2.3),Text4Support组的总体平均(SD)满意度评分为7.1(2.2)。与对照组相比,Text4Support小组的参与者报告了更高的参与度和积极的项目影响。53.8%(70/130)的Text4Support接收者总是阅读信息,而只有39.1%(27/69)的对照组很少访问电子健康资源。与对照组相比,分配到Text4Support组的参与者在阅读消息后有时会采取积极行动(42.3%对33.3%)。明显较高比例的Text4Support用户强烈同意或同意这些信息是支持性的(81.4%对41.5%),积极的(88.4%对49.2%),有助于应对压力(44.2%对11.9%),孤独感(40.3%对13.4%)和改善心理健康(51.2%对17.9%)。相比之下,控制组的大多数回答基本上是中立的。结论:结果表明,Text4Support小组的参与者对该计划的满意度明显高于接受标准电子健康资源的参与者。这突出表明,每天的支持性短信是提供护理和改善心理健康的一种有效、低成本的辅助手段。这些研究结果表明,综合、简短和低成本的基于文本的干预措施在增加获得卫生服务的机会和参与方面具有巨大潜力,特别是在获得传统服务机会有限的传统弱势群体中。
{"title":"Evaluating User Engagement and Satisfaction With Digital Mental Health Interventions: Randomized Controlled Trial of a Text Messaging Program and e-Mental Health Resources.","authors":"Gloria Obuobi-Donkor, Reham Shalaby, Belinda Agyapong, Samuel Obeng Nkrumah, Medard Kofi Adu, Ejemai Eboreime, Lori Wozney, Vincent Israel Opoku Agyapong","doi":"10.2196/76587","DOIUrl":"10.2196/76587","url":null,"abstract":"<p><strong>Background: </strong>Digital mental health tools, such as SMS text messaging and online resources, are increasingly used to support well-being. However, user satisfaction across these formats remains insufficiently explored.</p><p><strong>Objective: </strong>The study assessed participants' engagement, perceived impact, and overall satisfaction with the Text4Support program and the e-mental health resources.</p><p><strong>Methods: </strong>This randomized controlled study was conducted in Nova Scotia, Canada. Participants were assigned to either the Text4Support group, which received daily supportive text messages, or the control group, which received a single text message with a link to the Nova Scotia Mental Health and Addiction Program e-mental health resources. Responses to various aspects of the interventions were evaluated using a 5-point Likert scale, while overall satisfaction was measured on a scale from 0 to 10. The chi-square test and Fisher exact test were employed for data analysis.</p><p><strong>Results: </strong>A total of 69 participants in the control group and 130 in the Text4Support group completed the satisfaction survey. The overall mean (SD) satisfaction score in the control group was 5.1 (2.3), and the overall mean (SD) satisfaction score for the Text4Support group was 7.1 (2.2). Compared to the control group, participants in the Text4Support group reported greater engagement and positive program impact. While 53.8% (70/130) of Text4Support recipients always read the messages, only 39.1% (27/69) of the control group rarely accessed the eHealth resources. When compared to the control group, participants allocated to the Text4Support group were reported to sometimes take positive action upon reading the messages (42.3% vs 33.3%). A significantly higher proportion of Text4Support users strongly agreed or agreed that the messages were supportive (81.4% vs 41.5%), positive (88.4% vs 49.2%), and helpful in coping with stress (44.2% vs 11.9%), loneliness (40.3% vs 13.4%), and improving mental well-being (51.2% vs 17.9%). In contrast, the majority of responses from the control group were largely neutral.</p><p><strong>Conclusions: </strong>Results showed that Text4Support group participants were significantly more satisfied with the program than those receiving standard eHealth resources. This highlights that daily supportive SMS text messaging is an effective, low-cost adjunct to care delivery and mental health improvement. These findings suggest that aggregate, brief, and low-cost text-based interventions have great potential for increasing health access and engagement, particularly among traditionally disadvantaged populations with limited access to traditional services.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"13 ","pages":"e76587"},"PeriodicalIF":3.0,"publicationDate":"2026-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12822869/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146019994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using the Theoretical Domains Framework to Identify Barriers to and Enablers of Patient Telemedicine Services Use in China: Qualitative Study. 使用理论领域框架识别中国患者远程医疗服务使用的障碍和推动因素:定性研究。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-21 DOI: 10.2196/78457
Ke Liu, Yuting Yang, Zixuan Song, Huixian Li, Yanli Lyu, Ke Zhang, Xinxia Wu, Zheng Hou, Yipei Wang

Background: Telemedicine has rapidly expanded worldwide due to its convenience and accessibility. In China, an increasing number of hospitals have begun offering telemedicine services; however, patient utilization remains relatively low. Limited research has examined patients' behaviors during the process of adopting telemedicine services.

Objective: This study aimed to identify barriers to and enablers for patients using telemedicine services and to formulate implementation strategies.

Methods: We conducted semistructured qualitative interviews based on the Theoretical Domains Framework (TDF) to identify barriers and enablers to telemedicine utilization. Twenty-one patients who had used Peking University Third Hospital's telemedicine services were included in the interviews. Data were analyzed using NVivo 12.0 with deductive thematic analysis guided by the TDF. Moreover, a group of experts was assembled to devise potential intervention strategies.

Results: A total of 28 themes were identified, including 14 barriers and 14 enablers across 5 of the 14 TDF domains. The most frequently reported barriers were operational challenges, prolonged waiting periods from asynchronous communication, and doubts about therapeutic efficacy, whereas the most frequently mentioned enablers were the convenience of telemedicine, time conservation, and support from hospitals. On the basis of these factors, we devised 6 intervention strategies.

Conclusions: This study demonstrated that patients' utilization of telemedicine services was affected by several barriers and enablers, including system architecture and design, patient interactions using telemedicine, and external assistance. To enhance the utilization, these factors must be meticulously considered. This study also suggests strategies to enhance the utilization of telemedicine.

背景:远程医疗因其便利性和可及性在全球范围内迅速发展。在中国,越来越多的医院开始提供远程医疗服务;然而,患者的使用率仍然相对较低。有限的研究调查了患者在接受远程医疗服务过程中的行为。目的:本研究旨在找出患者使用远程医疗服务的障碍和促进因素,并制定实施策略。方法:我们基于理论领域框架(TDF)进行了半结构化定性访谈,以确定远程医疗利用的障碍和推动因素。21例使用北京大学第三医院远程医疗服务的患者纳入访谈。数据分析采用NVivo 12.0软件,在TDF的指导下进行演绎主题分析。此外,还召集了一组专家来制定可能的干预策略。结果:共确定了28个主题,包括14个TDF领域中的5个领域的14个障碍和14个促进因素。报告中最常见的障碍是操作方面的挑战、异步通信带来的长时间等待以及对治疗效果的怀疑,而最常提到的促成因素是远程医疗的便利性、节省时间和医院的支持。基于这些因素,我们设计了6种干预策略。结论:本研究表明,患者对远程医疗服务的利用受到几个障碍和推动因素的影响,包括系统架构和设计、患者使用远程医疗的互动以及外部援助。为了提高利用率,必须仔细考虑这些因素。本研究还提出了提高远程医疗利用率的策略。
{"title":"Using the Theoretical Domains Framework to Identify Barriers to and Enablers of Patient Telemedicine Services Use in China: Qualitative Study.","authors":"Ke Liu, Yuting Yang, Zixuan Song, Huixian Li, Yanli Lyu, Ke Zhang, Xinxia Wu, Zheng Hou, Yipei Wang","doi":"10.2196/78457","DOIUrl":"10.2196/78457","url":null,"abstract":"<p><strong>Background: </strong>Telemedicine has rapidly expanded worldwide due to its convenience and accessibility. In China, an increasing number of hospitals have begun offering telemedicine services; however, patient utilization remains relatively low. Limited research has examined patients' behaviors during the process of adopting telemedicine services.</p><p><strong>Objective: </strong>This study aimed to identify barriers to and enablers for patients using telemedicine services and to formulate implementation strategies.</p><p><strong>Methods: </strong>We conducted semistructured qualitative interviews based on the Theoretical Domains Framework (TDF) to identify barriers and enablers to telemedicine utilization. Twenty-one patients who had used Peking University Third Hospital's telemedicine services were included in the interviews. Data were analyzed using NVivo 12.0 with deductive thematic analysis guided by the TDF. Moreover, a group of experts was assembled to devise potential intervention strategies.</p><p><strong>Results: </strong>A total of 28 themes were identified, including 14 barriers and 14 enablers across 5 of the 14 TDF domains. The most frequently reported barriers were operational challenges, prolonged waiting periods from asynchronous communication, and doubts about therapeutic efficacy, whereas the most frequently mentioned enablers were the convenience of telemedicine, time conservation, and support from hospitals. On the basis of these factors, we devised 6 intervention strategies.</p><p><strong>Conclusions: </strong>This study demonstrated that patients' utilization of telemedicine services was affected by several barriers and enablers, including system architecture and design, patient interactions using telemedicine, and external assistance. To enhance the utilization, these factors must be meticulously considered. This study also suggests strategies to enhance the utilization of telemedicine.</p>","PeriodicalId":36351,"journal":{"name":"JMIR Human Factors","volume":"13 ","pages":"e78457"},"PeriodicalIF":3.0,"publicationDate":"2026-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12823017/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146019945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How to Evaluate the Accuracy of Symptom Checkers and Diagnostic Decision Support Systems: Symptom Checker Accuracy Reporting Framework (SCARF). 如何评估症状检查器和诊断决策支持系统的准确性:症状检查器准确性报告框架(SCARF)。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-16 DOI: 10.2196/76168
Marvin Kopka, Markus A Feufel

Unlabelled: Symptom checkers are apps and websites that assist medical laypeople in diagnosing their symptoms and determining which course of action to take. When evaluating these tools, previous studies primarily used an approach introduced a decade ago that lacked any type of quality control. Numerous studies have criticized this approach, and several empirical studies have sought to improve specific aspects of evaluations. However, even after a decade, a high-quality methodological framework for standardizing the evaluation of symptom checkers is still lacking. This paper synthesizes empirical studies to outline the Symptom Checker Accuracy Reporting Framework (SCARF) and a corresponding checklist for standardizing evaluations based on representative case selection, an externally and internally valid evaluation design, and metrics that increase cross-study comparability. This approach is supported by several open access resources to facilitate implementation. Ultimately, it should enhance the quality and comparability of future evaluations of online and artificial intelligence (AI)-based symptom checkers, diagnostic decision support systems, and large language models to enable meta-analyses and help stakeholders make more informed decisions.

无标签:症状检查器是帮助非专业医疗人员诊断症状并决定采取何种行动的应用程序和网站。在评估这些工具时,以前的研究主要使用十年前引入的方法,缺乏任何类型的质量控制。许多研究批评了这种方法,一些实证研究试图改进评价的具体方面。然而,即使在十年之后,仍然缺乏一个高质量的方法框架来标准化评估症状检查者。本文综合实证研究,概述了症状检查者准确性报告框架(Symptom Checker Accuracy Reporting Framework, SCARF)和相应的清单,用于基于代表性病例选择、外部和内部有效的评估设计以及增加交叉研究可比性的指标的标准化评估。这种方法得到了一些开放访问资源的支持,以促进实现。最终,它应该提高在线和基于人工智能(AI)的症状检查器、诊断决策支持系统和大型语言模型的未来评估的质量和可比性,以实现元分析并帮助利益相关者做出更明智的决策。
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引用次数: 0
An Internet-Delivered Intervention to Reduce LGBTQ+ Prejudice Among Romanian Teachers: Randomized Controlled Trial. 网络干预减少罗马尼亚教师对LGBTQ+的偏见:随机对照试验。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-16 DOI: 10.2196/63787
Nastasia Sălăgean, Ioana Maria Latu, Torill Marie Bogsnes Larsen, Andreea Bogdana Isbășoiu, Florin Alin Sava
<p><strong>Background: </strong>Discrimination can greatly impact both physical and mental health due to frequent stressors. Younger individuals, particularly those under the age of 17 years, are more adversely affected by victimization. Within the European Union, Romania exhibits poor rankings concerning LGBTQ+ (lesbian, gay, bisexual, transgender/transsexual, queer, and other minority sexual orientations and gender identities) inclusion, with large numbers of LGBTQ+ teenagers experiencing bullying due to their sexual orientation. Given that much of this discrimination and harassment occurs within schools, teachers and counselors are vital in affecting institutional change.</p><p><strong>Objective: </strong>This study aims to investigate the impact of an intervention on reducing prejudice against the LGBTQ+ community among Romanian teachers and counselors. Most prior interventions of this nature target Western, educated, industrialized, rich, and democratic populations.</p><p><strong>Methods: </strong>In this randomized controlled trial, we recruited 175 Romanian teachers via a national closed online user group and assigned them to either the experimental or control condition. Participants in the experimental condition received the intervention first and then completed the web-based outcome measures, while those in the control condition completed the measures first and then received the intervention. The intervention, designed for internet-based delivery, consisted of a 1-hour video session led by a pair of researchers. It blended educational information with testimonials of LGBTQ+ people, perspective-taking tasks, and a self-efficacy exercise. We measured LGBTQ+ prejudice (using Attitudes Toward Lesbians and Gay Men Scale, Homophobia Scale, and Attitudes Toward Homosexuals Scale), behavioral intentions, self-efficacy, perspective taking, intergroup disgust sensitivity, intergroup anxiety, empathy, factual knowledge about LGBTQ+ issues, as well as participants' feelings toward lesbian, gay, and bisexual individuals.</p><p><strong>Results: </strong>Participants in the experimental group (n=89) showed significant reductions in prejudice when using the Attitudes Toward Lesbians and Gay Men Scale (F1,173=7.22; P=.008) when compared to the control group (n=86), but not when using the other 2 attitudinal scales. We also found that the experimental group had warmer feelings (F1,173=4.40; P=.04; d=0.32), were more likely to engage in supportive behaviors (F1,173=13.96; P<.001; d=0.56), displayed more self-efficacy (F1,173=9.14; P=.001; d=0.33), had more factual knowledge (F1,173=11.98; P=.001; d=0.52), and had a higher ability to take the LGBTQ+ perspective after controlling for contact (F1,172=4.77; P=.03; d=0.28). We did not observe significant differences in terms of intergroup disgust sensitivity (F1,173=0.816; P=.37), intergroup anxiety for either positive (F1,173=.383; P=.54) or negative emotions (F1,173=0.51; P=.48), or empathy (F1,173=0.02; P=.8
背景:由于频繁的压力源,歧视会极大地影响身心健康。年轻人,特别是17岁以下的人受到受害的不利影响更大。在欧盟内部,罗马尼亚在LGBTQ+(女同性恋、男同性恋、双性恋、变性人/变性人、酷儿和其他少数性取向和性别认同)包容性方面的排名很低,大量LGBTQ+青少年因性取向而遭受欺凌。鉴于这种歧视和骚扰大多发生在学校内部,教师和辅导员在影响制度变革方面至关重要。目的:本研究旨在探讨一项干预措施对减少罗马尼亚教师和辅导员对LGBTQ+社区的偏见的影响。大多数这种性质的先前干预针对的是受过教育、工业化、富裕和民主的西方人群。方法:在这个随机对照试验中,我们通过一个全国封闭的在线用户组招募了175名罗马尼亚教师,并将他们分配到实验条件或对照条件。实验条件下的参与者先接受干预,然后完成基于网络的结果测量,而对照组的参与者先完成测量,然后接受干预。这项干预是为基于互联网的传播而设计的,包括由两位研究人员主持的一小时视频会议。它将教育信息与LGBTQ+人群的证言、换位思考任务和自我效能练习混合在一起。我们测量了LGBTQ+偏见(使用对男女同性恋态度量表、同性恋恐惧症量表和对同性恋态度量表)、行为意图、自我效能感、观点接受、群体间厌恶敏感性、群体间焦虑、同理心、关于LGBTQ+问题的事实知识,以及参与者对女同性恋、男同性恋和双性恋个体的感受。结果:实验组(n=89)在使用男女同性恋态度量表(f1173 =7.22; P= 0.008)时,与对照组(n=86)相比,偏见有显著减少,但在使用其他两种态度量表时,偏见没有显著减少。我们还发现实验组有更温暖的感觉(f1173 =4.40; P= 0.04; d=0.32),更有可能参与支持行为(f1173 =13.96; P)。结论:干预为教育工作者和高中辅导员提供了一个具有成本效益和便携的在线资源的有效性提供了初步证据,特别是在对LGBTQ+社区的负面态度突出的地区。结果表明,整合混合的认知(信息)、情感(间接接触和视角)和行为(自我效能和赋权)方法是在学校环境中产生与LGBTQ+问题相关的积极结果的有希望的干预途径。
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引用次数: 0
Privacy Fact Sheets for Mitigating Disease-Related Privacy Concerns and Facilitating Equal Access to the Electronic Health Record: Randomized Controlled Trial. 减轻与疾病相关的隐私问题和促进平等获取电子健康记录的隐私情况说明书:随机对照试验。
IF 3 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2026-01-15 DOI: 10.2196/71124
Niklas von Kalckreuth, Markus A Feufel

Background: The German electronic health record (EHR) aims to enhance patient care and reduce costs, but users often worry about data privacy and security. To mitigate disease-related privacy concerns, for instance, surrounding stigmatized diseases, we test the effect of privacy fact sheets (PFSs)-a concise but comprehensive transparency feature designed to increase users' perceived control over their data-on increasing EHR use in a simulated online study.

Objective: The study aimed to investigate whether displaying a PFS shortly before upload decisions must be made mitigates disease-related privacy concerns and makes uploads more likely.

Methods: In an online survey study, 393 German participants from the recruitment platform Prolific were asked to interact with a randomly assigned medical report that varied systematically in terms of disease-related stigma (high vs low) and time course (TC; acute vs chronic). They were then asked to decide whether to upload the report to an EHR click dummy, while we systematically varied the presentation of privacy information (PFS vs no PFS). Participants were randomly (single-blinded) assigned to one of the 2×2×2 conditions (stigma, TC, privacy information).

Results: All 393 participants were randomly assigned to one of the following groups: low, acute, no PFS (n=52, 13.2%); low, chronic, no PFS (n=45, 11.5%); high, acute, no PFS (n=46, 11.7%); high, chronic, no PFS (n=55, 14%); low, acute, PFS (n=44, 11.2%); low, chronic, PFS (n=41, 10.4%); high, acute, PFS (n=56, 14.2%); and high, chronic, PFS (n=54, 13.7%). The results show that, in general, upload behavior is negatively influenced by disease-related stigma (odds ratio [OR] 0.130; P<.001) and positively influenced when a PFS is given (OR 4.527; P<.001). This increase was particularly pronounced for stigmatized diseases (OR 5.952; P=.006), but independent of the TC of the diseases.

Conclusions: Our results demonstrate that PFSs may help to increase EHR uploads in people interacting with a realistic EHR click dummy, by mitigating privacy concerns in scenarios involving stigmatized diseases. Results further indicate that a PFS is mainly relevant and effective for people with increased privacy risk perceptions, whereas they neither benefit nor hurt others. Thus, implementing PFSs may increase the likelihood that users who perceive high privacy risks when confronted with sensitive or stigmatized health information decide to upload their data to the EHR, ultimately increasing digital health equity.

背景:德国的电子健康记录(EHR)旨在提高患者护理和降低成本,但用户经常担心数据隐私和安全。为了减轻与疾病相关的隐私问题,例如,围绕污名性疾病,我们在模拟在线研究中测试了隐私情况说明书(pfs)的效果-一种简洁但全面的透明功能,旨在增加用户对其数据的感知控制-增加电子病历的使用。目的:该研究旨在调查在上传决定之前不久显示PFS是否减轻了与疾病相关的隐私问题,并使上传更有可能。方法:在一项在线调查研究中,来自招聘平台的393名德国参与者被要求与随机分配的医疗报告互动,该报告在疾病相关的耻辱(高与低)和时间过程(TC;急性与慢性)方面系统地变化。然后他们被要求决定是否将报告上传到电子病历点击假人,而我们系统地改变了隐私信息的呈现方式(PFS与无PFS)。参与者被随机(单盲)分配到2×2×2条件之一(耻辱,TC,隐私信息)。结果:所有393名参与者被随机分为以下两组:低、急性、无PFS (n=52, 13.2%);低,慢性,无PFS (n=45, 11.5%);高,急性,无PFS (n=46, 11.7%);高,慢性,无PFS (n= 55,14 %);低急性PFS (n=44, 11.2%);低、慢性PFS (n=41, 10.4%);急性高PFS (n=56, 14.2%);高慢性PFS (n=54, 13.7%)。结果表明,总体而言,上传行为会受到与疾病相关的耻辱感的负面影响(比值比[OR] 0.130; p)。结论:我们的研究结果表明,在与真实的电子病历点击假人互动时,pfs可能有助于通过减轻涉及耻辱感疾病的场景中的隐私问题来增加人们的电子病历上传。结果进一步表明,PFS主要与隐私风险感知增加的人相关和有效,而他们既不会给他人带来好处,也不会伤害他人。因此,实施pfs可能会增加用户在面对敏感或污名化的健康信息时感受到高度隐私风险的可能性,从而决定将其数据上传到EHR,最终增加数字健康公平。
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