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Natural language acquisition and gestalt language processing: A critical analysis of their application to autism and speech language therapy. 自然语言习得和格式塔语言处理:对其在自闭症和言语治疗中应用的批判性分析。
Q1 EDUCATION, SPECIAL Pub Date : 2024-05-22 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241249944
Tiffany L Hutchins, Sophie E Knox, E Cheryl Fletcher

Background and aim: Recently, there has been a lot of interest surrounding the term gestalt language processor (GLP) which is associated with Natural Language Acquisition (NLA): a protocol intended to support the language development of autistic people. In NLA, delayed echolalia is presumed raw source material that GLPs use to acquire language in a stage-like progression from delayed echolalia to spontaneous speech. The aim of this article is to evaluate NLA in light of relevant literatures to allow scrutiny of NLA claims.

Main contributions: First, we review the notion of gestalt language and situate it in the broader literature on language styles to update understanding of its significance. We then review the links from gestalt language processing to autism and identify definitional and conceptual problems and clarify the construct 'episodic memory'. We discuss the 'raw material view of delayed echolalia' and identify theoretical and empirical shortcomings. Finally, we review Blanc's language stages and their accompanying assessment and language support recommendations and challenge their validity.

Conclusions & implications: The term 'gestalt language processor' is definitionally and conceptually troubled, the assertion that autistic people are GLPs is misleading and unhelpful, and evidence is lacking that GLP represents a legitimate clinical entity. The theoretical basis of NLA lacks empirical support. NLA stages are implausible and their accompanying assessment and support recommendations lack justification. We recommend the use of alternate, individualized, theoretically-sound, evidence-based, neurodiversity-affirming supports that are sensitive and responsive to the heterogeneity that defines autism.

背景和目的:最近,人们对与自然语言习得(NLA)相关的格式塔语言处理器(GLP)这个术语产生了浓厚的兴趣。在自然语言习得(NLA)中,延迟回声语被认为是 GLP 从延迟回声语到自发言语的阶段性进展中习得语言的原始材料。本文的目的是根据相关文献对 NLA 进行评估,以便对 NLA 的主张进行审查:首先,我们回顾了格式塔语言的概念,并将其置于更广泛的语言风格文献中,以更新对其意义的理解。然后,我们回顾了格式塔语言处理与自闭症之间的联系,指出了定义和概念上的问题,并澄清了 "外显记忆 "这一概念。我们讨论了 "延迟回声的原材料观点",并指出了理论和经验上的不足。最后,我们回顾了布兰克的语言阶段及其相应的评估和语言支持建议,并对其有效性提出质疑:格式塔语言处理器 "一词在定义和概念上存在问题,认为自闭症患者是格式塔语言处理器的说法具有误导性且无益,缺乏证据表明格式塔语言处理器是一个合法的临床实体。NLA 的理论基础缺乏经验支持。NLA 阶段是不可信的,其附带的评估和支持建议也缺乏合理性。我们建议使用其他的、个性化的、有理论依据的、以证据为基础的、肯定神经多样性的支持,这些支持对定义自闭症的异质性敏感并做出反应。
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引用次数: 0
Factors associated with receptive and expressive language in autistic children and siblings: A systematic review. 自闭症儿童和兄弟姐妹接受性和表达性语言的相关因素:系统综述。
Q1 EDUCATION, SPECIAL Pub Date : 2024-05-13 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241253554
Marjolein Muès, Sarah Schaubroeck, Ellen Demurie, Herbert Roeyers

Background & aims: Language abilities of autistic children and children at elevated likelihood for autism (EL-siblings) are highly heterogeneous, and many of them develop language deficits. It is as of yet unclear why language abilities of autistic children and EL-siblings vary, although an interaction of multiple influential factors is likely at play. In this review, we describe research articles that identify one or multiple of such factors associated with the receptive or expressive language abilities of autistic children and EL-siblings since the introduction of the DSM-5. Our aim was to identify and summarize factors that are linked to language development in autistic children and siblings in the recent literature to ultimately gain insight into the heterogeneity of language abilities in these children.

Methods: The search strategy of this review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. The following databases were consulted: Embase, MEDLINE, Web of Science Core Collection, and Scopus. Inclusion criteria for studies were the presence of a sample of autistic children no older than 7 years old who were diagnosed with autism spectrum disorder per the criteria of the DSM-5. Intervention studies and studies without an explicitly reported language measure were excluded. Risk of bias assessment was completed using the Newcastle-Ottawa Scales. Ultimately, 55 articles were included in this review.

Main contribution: Fifty-six factors were identified to be related to receptive or expressive language abilities of autistic children and EL-siblings. They were grouped into three main categories: biological factors; psychosocial and environmental factors; and age-related and developmental factors, each with different subcategories. Although many of the identified variables were only examined in one article, some well-researched associated factors were reported across multiple studies and were present in both autistic children and EL-siblings, in particular joint attention, nonverbal cognitive abilities and frontal EEG power. Better insight in these factors associated with language abilities in autistic children and siblings at elevated likelihood can inform future intervention strategies to reduce language deficits and its corresponding negative consequences in these children.

Conclusions: Our results confirm that multiple different factors likely underlie language deficits in autism. Important aspects that should be considered are, among others, social factors such as joint attention, child characteristics such as nonverbal cognition, and neurocognitive factors.

背景与目的:自闭症儿童和自闭症高发儿童(EL-siblings)的语言能力存在很大差异,其中许多儿童出现语言障碍。目前尚不清楚自闭症儿童和 EL 兄妹的语言能力为何不同,但多种影响因素的相互作用很可能在起作用。在本综述中,我们介绍了自 DSM-5 推出以来,与自闭症儿童和 EL 兄妹的接受或表达语言能力相关的一种或多种因素的研究文章。我们的目的是找出并总结近期文献中与自闭症儿童和兄弟姐妹语言发展相关的因素,最终深入了解这些儿童语言能力的异质性:本综述的检索策略遵循《系统综述和元分析首选报告项目》指南。查阅了以下数据库Embase、MEDLINE、Web of Science Core Collection 和 Scopus。研究的纳入标准为:根据 DSM-5 诊断标准,自闭症谱系障碍儿童样本的年龄不超过 7 岁。干预研究和没有明确报告语言测量方法的研究均被排除在外。使用纽卡斯尔-渥太华量表完成了偏倚风险评估。最终,55 篇文章被纳入本综述:研究发现了 56 个与自闭症儿童和 EL 兄弟姐妹的接受或表达语言能力相关的因素。这些因素被分为三大类:生物因素、社会心理和环境因素以及年龄和发育因素,每一类又有不同的子类别。虽然许多已确定的变量仅在一篇文章中进行了研究,但一些经过深入研究的相关因素在多项研究中均有报道,并且在自闭症儿童和英语学习者兄弟姐妹中均存在,特别是联合注意力、非语言认知能力和额叶脑电图功率。更好地了解这些与自闭症儿童和兄弟姐妹语言能力相关的因素,可以为未来的干预策略提供参考,从而减少这些儿童的语言障碍及其相应的负面影响:我们的研究结果证实,自闭症儿童的语言障碍可能是多种不同因素造成的。结论:我们的研究结果证实,自闭症儿童的语言障碍可能是由多种不同因素造成的,其中应考虑的重要因素包括共同注意等社会因素、非语言认知等儿童特征以及神经认知因素。
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引用次数: 0
Empowering Hong Kong Chinese families with autism: A preliminary study of the online Hanen More Than Words Program. 增强香港华人自闭症家庭的能力:对在线 "Hanen More Than Words Program "的初步研究。
Q1 EDUCATION, SPECIAL Pub Date : 2024-04-18 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241245096
Xin Qi, Qiwei Zhao, Carol K S To

Purpose: Parent involvement is crucial for tailored early intervention programs. The Hanen More Than Words (HMTW) program is a parent-implemented language intervention for autistic children. The current study examined the effectiveness of the HMTW program delivered online among Chinese families.

Methods: Using a randomized controlled trial design, 22 Chinese families of autistic children in Hong Kong completed the trial. Baseline and post-intervention assessments were conducted to measure changes in parent-child interaction, parents' use of linguistic facilitation techniques (LFTs), and children's communication skills. Additionally, the influence of parental self-efficacy and parenting stress on treatment outcomes was explored.

Results: The intervention group demonstrated significant improvements in parent-child attention synchrony. Although the treatment effect on children's spontaneous communication was not significant, the intervention group showed a larger effect size compared to the controls. The treatment outcomes were mainly influenced by the parents' initial levels of self-efficacy but not by parenting stress.

Conclusion: These findings provide preliminary evidence of the effectiveness of the online-delivered HMTW program for Chinese parents of autistic children. Further research involving a larger sample and focusing on long-term effects is needed.

目的:家长的参与对于量身定制的早期干预计划至关重要。Hanen More Than Words(HMTW)项目是一项由家长实施的自闭症儿童语言干预项目。本研究考察了在中国家庭中在线实施 HMTW 项目的有效性:采用随机对照试验设计,22 个香港的中国自闭症儿童家庭完成了试验。研究人员进行了基线和干预后评估,以衡量亲子互动、父母使用语言促进技巧(LFTs)和儿童沟通技巧的变化。此外,还探讨了父母自我效能感和养育压力对治疗结果的影响:结果:干预组在亲子注意力同步性方面有明显改善。虽然对儿童自发交流的治疗效果不显著,但干预组比对照组显示出更大的效应量。治疗结果主要受家长初始自我效能感水平的影响,而不受养育压力的影响:这些研究结果初步证明了在线HMTW项目对中国自闭症儿童家长的有效性。我们还需要对更多的样本和长期效果进行进一步的研究。
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引用次数: 0
The suitability and acceptability of a co-designed prototype psychoeducational activity book for autistic children aged five-eleven years. 为 5 至 11 岁自闭症儿童共同设计的心理教育活动手册原型的适用性和可接受性。
IF 2.5 Q1 EDUCATION, SPECIAL Pub Date : 2024-02-28 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241234648
Lauren Powell, Gemma Wheeler, Chris Redford, Jonathan Stott

Background and aims: Evidence suggests that autistic children and young people (CAYP) can benefit from age-appropriate psychoeducation. Co-design is a methodology that iteratively involves end users and stakeholders in producing an intervention which may increase engagement and impact. Few age-appropriate co-designed psychoeducation resources for autistic CAYP exist. Therefore, a paper-based resource was co-designed for autistic CAYP who attend mainstream primary education. The resource aims to educate CAYP about their autism and provide strategies to support them to live well with their autism.

Methods: This paper describes the evaluation of the prototype resource through online workshops with 12 families and input from four specialist clinicians. The suitability and acceptability of the resource was explored, and sketch notes were taken for respondent validity and engagement purposes.

Results: A reflexive thematic analysis identified six themes and two subthemes: (1) content appropriateness (subtheme: strategies and unpredictability); (2) relating to content, (3) feelings and emotions, (4) terminology (subtheme: literal thinking); (5) positivity, and (6) communication aid. Suggested improvements were also identified. Results suggest the resource is suitable and acceptable.

Conclusions: Future intervention development research may consider individual differences of autistic CAYP and the co-design of resources for other age groups of neurodiverse populations.

背景和目的:有证据表明,自闭症儿童和青少年(CAYP)可以从与年龄相适应的心理教育中受益。共同设计是一种让最终用户和利益相关者反复参与干预措施制作的方法,可提高参与度和影响力。适合自闭症儿童的共同设计心理教育资源很少。因此,我们为接受主流小学教育的自闭症儿童共同设计了一种纸质资源。该资源旨在向自闭症儿童提供有关自闭症的教育,并为他们提供策略,帮助他们与自闭症和谐相处:本文介绍了通过与 12 个家庭的在线研讨会以及四位专业临床医生的意见,对原型资源进行的评估。本文探讨了该资源的适用性和可接受性,并为受访者的有效性和参与目的做了草图记录:反思性主题分析确定了六个主题和两个次主题:(1) 内容适当性(次主题:策略和不可预测性);(2) 与内容相关;(3) 感受和情绪;(4) 术语(次主题:文字思维);(5) 积极性;(6) 沟通辅助。此外,还提出了改进建议。结果表明,该资源是合适的、可接受的:未来的干预开发研究可能会考虑到自闭症 CAYP 的个体差异,并为其他年龄组的神经多样性人群共同设计资源。
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引用次数: 0
The importance and challenges of observing social interactions in autistic preschoolers during inclusive educational settings: A scoping review. 在全纳教育环境中观察学龄前自闭症儿童社交互动的重要性和挑战:范围综述。
Q1 EDUCATION, SPECIAL Pub Date : 2024-02-28 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241227077
Stella Tsamitrou, Marie-Hélène Plumet
<p><strong>Background and aims: </strong>A growing number of autistic children have access to inclusive education programs as early as kindergarten. However, little is known about how they actually participate in social interactions and develop their communicative skills according to the parameters of this environment. The aim of this article is to review observational studies on this topic and critically analyze their methodological choices by arguing on the aspects of communication skills noted in the observation grids. Disparities in the information collected depending on the method used have implications for understanding and supporting autistic children in an inclusive school environment.</p><p><strong>Methods: </strong>Observational studies on social interactions of autistic preschoolers within inclusive preschool settings were scoped. The studies were analyzed according to the following parameters: aims of observation, method used for coding, communication partners considered (adults and peers), type of children's social engagement (initiatives and responses), diversity of communicative forms and communication functions, distinction and comparison of interactional contexts related to the activities, and whether changes linked to developmental variables are studied on an interindividual or longitudinal basis.</p><p><strong>Results: </strong>Seventeen studies using the observation method in inclusive preschool settings were identified. Recordingmethods are mostly based on video recording. The coding grids mainly focus on autistic children while partners' behaviors (adults, peers) are often coded in less detail, thus providing littleinformation on their dynamic role in the interactions. Overall, autistic children were found to initiate interactions much less often than they respond to it. The data generally distinguish thecommunicative forms used by children and indicate a predominance of nonverbal means at preschool level. However, a few studies coded communicative functions, whether they areaddressed to children or produced by them. In addition, very few studies compare interactions across activity contexts. In addition, very few studies compare interactions across activity contexts.Results of some studies showed that children initiated interaction more frequently during free play than during work activity, but results are heterogeneous. Developmental trajectories in socialskills seem to be associated with the severity of autism and language skills, but longitudinal designs are still rare.</p><p><strong>Conclusions and implications: </strong>Direct and fine-grained observation in the classroom is a key source of information about how communication takes place in preschool-inclusive settings. The data, despite some methodological challenges, offer opportunities for better adjustment based on professional objectives. Our review highlights the importance of offering occasions for initiatives to autistic children and training of neurotypical pe
背景和目的:越来越多的自闭症儿童从幼儿园起就开始接受全纳教育。然而,人们对他们在这种环境下如何实际参与社会交往和发展交际能力却知之甚少。本文旨在回顾有关这一主题的观察性研究,并通过论证观察网格中记录的沟通技能方面,批判性地分析这些研究的方法选择。不同方法收集到的信息存在差异,这对在全纳学校环境中理解和支持自闭症儿童具有重要意义:对有关自闭症学龄前儿童在全纳学前环境中的社交互动的观察研究进行了范围界定。根据以下参数对这些研究进行了分析:观察目的、编码方法、考虑的交流伙伴(成人和同伴)、儿童的社会参与类型(主动和回应)、交流形式和交流功能的多样性、与活动相关的互动情境的区分和比较,以及是否在个体间或纵向基础上研究了与发展变量相关的变化:结果:共发现 17 项在全纳学前环境中使用观察法的研究。记录方法大多基于视频记录。编码网格主要集中在自闭症儿童身上,而对伙伴(成人、同伴)行为的编码往往不太详细,因此几乎没有提供关于他们在互动中的动态角色的信息。总体而言,自闭症儿童发起互动的频率远远低于他们对互动的反应。数据普遍区分了儿童使用的交流形式,并表明在学龄前阶段,非语言手段占主导地位。然而,只有少数研究对交流功能进行了编码,无论这些功能是向儿童发出的还是由儿童产生的。此外,很少有研究对不同活动情境中的互动进行比较。一些研究结果表明,儿童在自由游戏中比在工作活动中更频繁地开始互动,但结果不尽相同。社交技能的发展轨迹似乎与自闭症的严重程度和语言技能有关,但纵向设计仍然罕见:在课堂上进行直接和细致的观察是了解学前全纳环境中如何进行交流的重要信息来源。尽管在方法上存在一些挑战,但这些数据为根据专业目标进行更好的调整提供了机会。我们的综述强调了为自闭症儿童提供主动交流机会的重要性,以及培训神经正常的同伴更好地与自闭症儿童互动和促进语言交流的重要性。我们需要进一步开展观察研究,使用更多微观分析方法来衡量自闭症儿童社会交往的功能质量,包括对不同伙伴(成人与同伴)和不同情境(如游戏与结构化发展)进行联合比较,以便在全纳学前环境中提出适当的策略。
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引用次数: 0
The diversity of speech-perception difficulties among autistic individuals. 自闭症患者语言感知困难的多样性。
IF 2.5 Q1 EDUCATION, SPECIAL Pub Date : 2024-01-27 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241227074
George J Bendo, Alexandra Sturrock, Graham Hanks, Christopher J Plack, Emma Gowen, Hannah Guest
<p><strong>Background & aims: </strong>Communicative and sensory differences are core autistic traits, yet speech-perception abilities and difficulties among autistic individuals remain poorly understood. Laboratory studies have produced mixed and inconclusive results, in part because of the lack of input from autistic individuals in defining the hypotheses and shaping the methods used in this field of research. Little in-depth qualitative research on autistic experiences of speech perception has been published, yet such research could form the basis for better laboratory research, for improved understanding of autistic experiences, and for the development of interventions. Existing qualitative research describes widespread autistic listening differences with significant impacts, but these results rely on data gathered via oral interviews in a small sample. The present study addresses these limitations and employs a mixed-methods approach to explore autistic listening experiences.</p><p><strong>Methods: </strong>We gathered survey data from 79 autistic individuals aged 18-55 without diagnosed hearing loss. The questionnaire included 20 closed-set questions on listening abilities and difficulties and three free-text questions on listening experiences. The free-text questions underwent deductive content analysis using a framework composed of themes from previous interview data on listening experiences (including auditory differences, contributing factors, impacts, and coping strategies). Concepts in the free-text data that were not part of the analysis framework were analyzed inductively.</p><p><strong>Results: </strong>In the closed-set data, participants reported listening difficulties in most specified environments, but complex background sounds and particularly background voices caused the most difficulty. Those who reported listening difficulties expressed having substantially greater difficulties than other people the same age. Participants indicated multiple impacts from listening difficulties, most prominently in their social lives. Concepts in the free-text data strongly supported previous interview data on listening differences and factors that affect listening ability, especially the diversity of types of listening difficulties. Consistent with the closed-set data, background-sound complexity and concurrent voices were especially troubling. Some concepts in the free-text data were novel, particularly difficulties with remote, broadcast, and recorded audio, prompting the creation of new themes.</p><p><strong>Conclusions: </strong>Both forms of data indicate widespread listening differences-predominantly listening difficulties-affecting most autistic adults. Diverse types of listening difficulty are evident, potentially indicating heterogeneous underlying mechanisms, and complexity of background noise is consistently identified as an important factor. Listening difficulties are said to have substantial and varied impacts. Autistic adults a
背景与目的:沟通和感官差异是自闭症的核心特征,但人们对自闭症患者的言语感知能力和困难仍然知之甚少。实验室研究结果参差不齐,没有定论,部分原因是自闭症患者在确定研究假设和方法时缺乏参与。有关自闭症患者言语感知经验的深入定性研究鲜有发表,但此类研究可为更好的实验室研究、加深对自闭症患者经验的理解以及制定干预措施奠定基础。现有的定性研究描述了自闭症患者普遍存在的听力差异,并对其产生了重大影响,但这些结果依赖于小样本口头访谈收集的数据。本研究针对这些局限性,采用混合方法探索自闭症患者的倾听体验:我们收集了 79 名年龄在 18-55 岁之间、未确诊听力损失的自闭症患者的调查数据。问卷包括 20 个有关倾听能力和困难的封闭式问题,以及 3 个有关倾听体验的自由文本问题。自由文本问题采用演绎式内容分析方法,分析框架由以前有关倾听经历的访谈数据主题组成(包括听觉差异、诱因、影响和应对策略)。对自由文本数据中不属于分析框架的概念进行了归纳分析:在封闭集数据中,参与者表示在大多数特定环境中都有听力困难,但复杂的背景声音,尤其是背景声音造成的困难最大。与其他同龄人相比,那些报告听力困难的人所遇到的困难要大得多。参与者表示,听力困难对他们的社交生活造成了多重影响。自由文本数据中的概念有力地支持了之前关于倾听差异和影响倾听能力因素的访谈数据,尤其是倾听困难类型的多样性。与封闭式数据一致,背景声音的复杂性和同时出现的声音尤其令人困扰。自由文本数据中的一些概念很新颖,尤其是在远程、广播和录制音频方面的困难,这促使我们创建了新的主题:两种形式的数据都表明,听力差异--主要是听力困难--影响着大多数患有自闭症的成年人。听力障碍的类型多种多样,这可能表明其潜在机制各不相同,背景噪声的复杂性一直被认为是一个重要因素。据说倾听困难会产生巨大而多样的影响。成年自闭症患者热衷于分享应对策略,这些策略多种多样,通常都是自己设计的:根据定量和定性结果,我们提出了改进未来研究和支持自闭症群体的建议。这些数据揭示了倾听困难的类型,可以指导我们更好地对其潜在机制进行定量研究。此类研究应考虑到倾听困难的潜在异质性。我们还提出了优化自我报告数据收集的建议。此外,我们的研究结果还可用于提高社会对自闭症患者听力差异的认识,并为自闭症患者制定有益的干预措施。此外,鉴于自闭症群体愿意分享应对策略,系统整理这些策略可为自助和临床指导奠定基础。
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引用次数: 0
Examining gender effects in autistic written language skills: A small sample exploratory study. 自闭症书面语言技能中的性别影响:小样本探索性研究
Q1 EDUCATION, SPECIAL Pub Date : 2024-01-23 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241227071
Johanna R Price, Emily C Biebesheimer, Kong Chen

Background and aims: Gender differences in the written language of autistic individuals are an overlooked but important area of research. We contend that the gender differences in spoken language of autistic individuals may extend to written language, mirroring the gender differences of writing in the general population and reflecting the shared dimensionality of oral and written language. Our research question was: Do autistic adolescent females demonstrate written language characteristics, across persuasive, expository, and narrative genres, that are distinct from those of autistic adolescent males and non-autistic (NA) adolescent females?

Methods: We performed a secondary, exploratory analysis on writing samples collected from 18 participants (11 autistic males, three autistic females, and four NA females) from a larger investigation of autistic adolescents' writing skills. Each participant completed three writing samples-one persuasive, one expository, and one narrative (for a total of 54 writing samples). We compared sample length (total number of words), writing productivity (words written per minute), syntactic length (mean length of T-unit in words), vocabulary diversity (type-token ratio), and macrostructure of autistic females' samples to autistic males' and NA females' samples.

Results: Based on non-parametric analyses using variable medians, autistic males, but not autistic females, wrote significantly shorter expository samples than NA females. Autistic males' writing productivity was significantly lower in the persuasive and expository genres than both autistic females and NA females. Several other comparisons of sample length, productivity, vocabulary diversity, and persuasive and narrative macrostructure yielded large effect sizes but were not statistically significant.

Conclusions: Though our small sample sizes prevent us from drawing generalizable conclusions, we observed that some gender-specific findings of the current study differ from previous findings based on a single autistic group (females and males combined). Combining data of autistic females with autistic males may cloud the distinct written language characteristics of each group.

Implications: Our findings, especially when situated in the context of relevant literature, suggest that larger-scale investigation of gender differences in written language is essential in order to more fully describe the unique characteristics of autistic females. Clinicians should be prepared to support autistic writers' needs for producing written language to meet their developmental, academic, social, and employment-related goals.

背景和目的:自闭症患者书面语言中的性别差异是一个被忽视但却很重要的研究领域。我们认为,自闭症患者口语中的性别差异可能会延伸到书面语言中,这反映了普通人群写作中的性别差异,也反映了口语和书面语言的共同维度。我们的研究问题是自闭症青少年女性在说服性、说明性和叙述性体裁方面是否表现出与自闭症青少年男性和非自闭症(NA)青少年女性不同的书面语言特征?我们对一项针对自闭症青少年写作技巧的大型调查中收集的 18 名参与者(11 名自闭症男性、3 名自闭症女性和 4 名非自闭症女性)的写作样本进行了二次探索性分析。每位参与者都完成了三篇写作样本--一篇劝说性写作、一篇说明性写作和一篇记叙性写作(共 54 篇写作样本)。我们比较了自闭症女性样本与自闭症男性和非自闭症女性样本的样本长度(总字数)、写作效率(每分钟写作字数)、句法长度(以字数为单位的 T 单元平均长度)、词汇多样性(类型-标记词比率)和宏观结构:根据使用变量中位数进行的非参数分析,自闭症男性(而非自闭症女性)的说明文写作篇幅明显短于非自闭症女性。自闭症男性在说服性和说明性体裁方面的写作效率明显低于自闭症女性和非自闭症女性。其他几项关于样本长度、写作效率、词汇多样性以及劝说性和叙事性宏观结构的比较产生了较大的效应大小,但在统计学上并不显著:虽然我们的样本量较小,无法得出具有普遍意义的结论,但我们注意到,当前研究的一些性别特异性结果与以往基于单一自闭症群体(女性和男性的总和)的研究结果有所不同。将女性自闭症患者和男性自闭症患者的数据结合起来,可能会掩盖每个群体独特的书面语言特征:我们的研究结果,尤其是结合相关文献的研究结果表明,为了更全面地描述女性自闭症患者的独特特征,有必要对书面语言的性别差异进行更大规模的调查。临床医生应做好准备,支持自闭症作家创作书面语言,以实现其发展、学业、社交和就业相关目标。
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引用次数: 0
Developing a new questionnaire of positive contributions to Chinese families by children with autism spectrum disorder. 编制自闭症谱系障碍儿童对中国家庭积极贡献的新问卷。
Q1 EDUCATION, SPECIAL Pub Date : 2024-01-03 eCollection Date: 2024-01-01 DOI: 10.1177/23969415231221520
Shulan Zeng, Afsheen Sardar, Amoneeta Beckstein, Noor Hassline Mohamed, Renhong Shen, Yunhui Xiu
<p><strong>Background and aims: </strong>A literature review of both Eastern and Western literature regarding families of children with autism spectrum disorder (ASD) revealed limited empirical research that examines ASD in China. Furthermore, most research in this area comes from a deficit model and there is a lack of research that comes from a strengths background. No previous study in China has looked at the positive contributions of children with ASD to their families. The present study came from a strengths-based perspective and aimed to develop a new questionnaire to evaluate the positive contributions made to families by children who have ASD in China and are raised by their respective families. It considered the severity level of the children's disorder and the impact this had on the parents. Besides examining the children's impairment levels, the study also examined positive contributions and their relationship with socio-demographic elements such as family income and employment status of the parents, which also seem to be related to the positive contributions experienced by the parents.</p><p><strong>Methods: </strong>First, based on the literature review, an initial qualitative interview protocol was developed and administered to 10 parents of children with ASD. Then, based on the analyses of the interviews, a quantitative questionnaire was developed to assess the positive contributions of children with ASD to their families. The questionnaire was then administered to 156 parents of children with ASD. The internal structure of the questionnaire was analyzed by factor analysis. The questionnaire's reliability and validity were also examined. The data were then analyzed with multiple correlation comparisons and an independent sample T-test.</p><p><strong>Results: </strong>Six factors emerged for families of children with ASD. The results showed that the cumulative explanatory variance of the six dimensions of the questionnaire was 65.42%. The Cronbach's coefficient of each dimension was between 0.7 and 0.9, and the combined Cronbach's coefficient of the total questionnaire was 0.945. This study found that the overall average positive contribution to families by children with ASD was 3.32, which is at a medium level, and all six dimensions were at a medium-to-high level. This study also found that the family's monthly income contributed to the <i>overall positive contribution, intimacy and happiness,</i> and <i>gaining more special knowledge through experience</i> dimensions. Furthermore, it was found that moderate severity of ASD, high income, and parental employment were all associated with more positive contributions.</p><p><strong>Conclusion: </strong>This new questionnaire appears to have good reliability and validity and seems suitable for assessing the positive contributions to families by children with ASD in China.</p><p><strong>Implications: </strong>The present study may be helpful for the parents of children with ASD and will
背景与目的:通过对东西方有关自闭症谱系障碍(ASD)儿童家庭的文献进行回顾,发现对中国自闭症谱系障碍的实证研究十分有限。此外,该领域的大多数研究都是从缺陷模式出发,缺乏从优势背景出发的研究。中国以往的研究也没有关注过 ASD 儿童对其家庭的积极贡献。本研究从基于优势的视角出发,旨在开发一份新的调查问卷,以评估在中国由各自家庭抚养的患有 ASD 的儿童对家庭所做的积极贡献。研究考虑了儿童障碍的严重程度以及对父母的影响。除了考察儿童的障碍程度,研究还考察了积极贡献及其与社会人口学因素的关系,如家庭收入和父母的就业状况,这些因素似乎也与父母所经历的积极贡献有关:首先,根据文献综述,制定了初步的定性访谈协议,并对 10 位 ASD 儿童的家长进行了访谈。然后,根据对访谈的分析,编制了一份定量问卷,以评估 ASD 儿童对其家庭的积极贡献。然后,对 156 位 ASD 儿童的家长进行了问卷调查。问卷的内部结构通过因子分析进行了分析。问卷的信度和效度也得到了检验。然后通过多重相关比较和独立样本 T 检验对数据进行分析:ASD 儿童家庭出现了六个因子。结果显示,问卷六个维度的累积解释方差为 65.42%。各维度的克朗巴赫系数介于 0.7 和 0.9 之间,总问卷的综合克朗巴赫系数为 0.945。本研究发现,自闭症儿童对家庭的积极贡献的总体平均值为 3.32,处于中等水平,六个维度均处于中等至高等水平。本研究还发现,家庭的月收入对总体积极贡献度、亲密感和幸福感以及通过体验获得更多特殊知识都有贡献。此外,研究还发现,中等严重程度的自闭症、高收入和父母就业都与更多的积极贡献相关:结论:这一新问卷具有良好的信度和效度,适用于评估中国 ASD 儿童对家庭的积极贡献:本研究可能对患有 ASD 儿童的家长有所帮助,有助于他们关注孩子的优点而非缺点。这项研究还可能使咨询师和研究人员受益,他们可以使用新的问卷来评估 ASD 儿童对家庭的积极贡献。
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引用次数: 0
Predictors of Picture Exchange Communication System (PECS) outcomes. 图片交流沟通系统(PECS)成果的预测因素。
Q1 EDUCATION, SPECIAL Pub Date : 2023-12-21 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231221516
Julie Koudys, Adrienne Perry, Carly Magnacca, Kristen McFee

Background & aims: Although the Picture Exchange Communication System (PECS) has been demonstrated to be an effective intervention to teach people diagnosed with autism spectrum disorder a functional communication system, the research indicates variability in PECS outcomes across people and studies. Therefore, the purpose of the current study was to explore child characteristics and treatment variables that may explain the variation in, and potentially predict, PECS outcomes.

Method: A total of 22 children and youth diagnosed with autism or a related developmental disorder, all of whom scored substantially below average on standardized measures of cognitive and adaptive abilities, participated in a PECS intervention.

Results: Participants who achieved high phases of PECS (≥PECS phase IIIb) differed significantly from those who mastered lower PECS phases (≤PECS phase IIIa) in terms of overall, verbal, and nonverbal mental age, matching abilities, and adaptive behavior level. Stimulus generalization was also associated with significant variation in PECS outcome. PECS outcomes could be predicted with good accuracy using a combination of these child characteristics and treatment variables.

Conclusions: The findings from the current study suggest that children with relatively higher cognitive and adaptive skill levels are more likely to achieve higher phases of PECS; further, approaches to generalization training also play a role. Factors such as autism symptom severity and parental ratings of maladaptive behavior were not associated with significant differences in PECS outcomes. However, more research is needed.

Implications: Gaining a better understanding of predictors of PECS outcomes is important to inform intervention, provide more accurate outcome expectations for families, and guide PECS teaching procedures. Although participants were more likely to achieve higher phases of PECS if they had a higher mental age, adaptive skill level, and matching skills, the average scores for these measures were well below those expected for same age peers. These results indicate that PECS is appropriate for use with children with clinically significant deficits in cognitive and/or adaptive abilities. Further, results suggest that even children who demonstrate more severe symptoms of autism and exhibit more challenging behavior can achieve higher phases of PECS.

背景与目的:尽管图片交流沟通系统(PECS)已被证明是一种有效的干预措施,可以教被诊断患有自闭症谱系障碍的人学习功能性沟通系统,但研究表明,不同的人和不同的研究在 PECS 的结果上存在差异。因此,本研究的目的是探讨可解释 PECS 结果差异并可能预测 PECS 结果的儿童特征和治疗变量:共有 22 名被诊断患有自闭症或相关发育障碍的儿童和青少年参加了 PECS 干预,他们在认知和适应能力的标准化测量中的得分都远远低于平均水平:结果:达到 PECS 高阶段(≥PECS 阶段 IIIb)的参与者与掌握 PECS 低阶段(≤PECS 阶段 IIIa)的参与者在总体、语言和非语言智力年龄、匹配能力和适应行为水平方面存在显著差异。刺激泛化也与 PECS 结果的显著差异有关。综合这些儿童特征和治疗变量,PECS 结果的预测准确性较高:本研究的结果表明,认知和适应技能水平相对较高的儿童更有可能达到较高的 PECS 阶段;此外,泛化训练的方法也起到了一定的作用。自闭症症状严重程度和家长对适应不良行为的评价等因素与 PECS 结果的显著差异无关。然而,还需要进行更多的研究:启示:更好地了解 PECS 结果的预测因素对于提供干预信息、为家庭提供更准确的结果预期以及指导 PECS 教学程序非常重要。尽管如果参与者的心理年龄、适应技能水平和匹配技能较高,则更有可能达到较高的 PECS 阶段,但这些测量指标的平均得分远低于同龄同伴的预期得分。这些结果表明,PECS 适合用于在认知和/或适应能力方面存在临床重大缺陷的儿童。此外,结果表明,即使自闭症症状更严重、行为更具挑战性的儿童也能达到较高的 PECS 阶段。
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引用次数: 0
Understanding the experiences and needs in autism education: A semi-structured interview among Chinese American parents of autistic children. 了解自闭症教育的经验和需求:对美籍华裔自闭症儿童父母的半结构化访谈。
Q1 EDUCATION, SPECIAL Pub Date : 2023-11-30 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231217191
Xihan Yang, Eileen T Crehan

Background and aims: The diversity of the autistic population seeking professional services and education in the United States has increased. As the diagnosis of autism increases among the Chinese American immigrant population, there is also an increasing need to learn about this population and provide appropriate intervention and education for this group. However, current education and intervention provided for autistic individuals tend to be culturally blind. Gaps were found in our understanding of the cultural context and its relationship with the education mechanisms among Chinese American autistic families. The current study intends to investigate how Chinese American parents perceive the education materials and intervention strategies received by their autistic children as well as their experiences and needs in the education process.

Method: Semi-structured interviews were conducted among 10 Chinese American parents (one father and nine mothers) online. They all had children who had a formal diagnosis of autism spectrum disorder and received some intervention or education. Thematic analysis was used to analyse the results.

Results: The study suggested that most Chinese American parents were satisfied with the current education materials and intervention strategies provided to their autistic children. Due to cultural-related stigma, parents differ in their perceptions of children's autism diagnosis and characteristics as well as their expectations of children's culturally sensitive education. A theoretical model was created to provide culture-centered interpretation of the interconnected relationship between their pre- and post-immigration contexts and parenting attitudes.

Conclusions: Culture plays a critical role in understanding Chinese American parents' experiences, needs, and expectations of culturally sensitive education for their autistic children. Interconnected relationships were found between contexts and parenting attitudes, which were largely influenced by cultural-related stigma.

Implications: Suggestions and implications were provided for institutions and professionals working with Chinese American families and children. It is critical for them to learn about the experiences, needs, and attitudes of Chinese American parents to provide Chinese American autistic children with more appropriate and culturally sensitive education.

背景和目的:在美国,寻求专业服务和教育的自闭症人群的多样性有所增加。随着美籍华人移民中自闭症诊断的增加,也越来越需要了解这一人群,并为这一群体提供适当的干预和教育。然而,目前为自闭症患者提供的教育和干预往往是文化盲的。我们对美籍华人自闭症家庭的文化背景及其与教育机制的关系的理解存在空白。本研究旨在探讨美籍华人父母对自闭症儿童所接受的教育材料和干预策略的看法,以及他们在教育过程中的经验和需求。方法:对10名美籍华人父母(1名父亲,9名母亲)进行半结构化在线访谈。他们的孩子都被正式诊断为自闭症谱系障碍,并接受了一些干预或教育。采用主题分析法对结果进行分析。结果:大多数美籍华人家长对目前自闭症儿童的教育材料和干预策略感到满意。由于与文化相关的污名,父母对儿童自闭症的诊断和特征的看法以及对儿童文化敏感教育的期望存在差异。建立了一个理论模型,以文化为中心解释他们移民前后的环境和养育态度之间的相互关系。结论:文化在理解美籍华人父母对自闭症儿童文化敏感教育的经历、需求和期望方面起着至关重要的作用。环境和养育态度之间存在相互联系,这在很大程度上受到与文化相关的污名的影响。启示:为从事美国华裔家庭和儿童工作的机构和专业人员提供建议和启示。了解美籍华人父母的经历、需求和态度,为美籍华人自闭症儿童提供更合适和文化敏感的教育是至关重要的。
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Autism and Developmental Language Impairments
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