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"He's shouting so loud but nobody's hearing him": A multi-informant study of autistic pupils' experiences of school non-attendance and exclusion. “他喊得很大声,但没有人听到”:一项针对自闭症学生不上学和被排斥经历的多信息研究。
IF 2.5 Q1 EDUCATION, SPECIAL Pub Date : 2023-10-18 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231207816
Laura Gray, Vivian Hill, Elizabeth Pellicano

Background and aims: Children and young people on the autism spectrum frequently report a range of negative educational experiences and face disproportionally high rates of school non-attendance, including school avoidance and permanent exclusion, which can have a significant impact on their well-being as well as educational and broader life outcomes. To date, few studies have examined the full range of proximal (child, parent/family, school levels) and distal (community and society levels) barriers to ensuring the school attendance and the inclusion of autistic pupils. The current study sought to do just that by examining autistic young peoples' school non-attendance and exclusion experiences from the perspectives of multiple informants.

Methods: We recruited 12 autistic pupils, who had previously experienced school avoidance and/or exclusion, from one local authority in England, United Kingdom. We conducted semi-structured interviews with the young people themselves, ten of their parents, eight of their current teachers and nine local authority professionals, including six educational psychologists and three specialist autism teachers. We analyzed interviewees' responses using reflexive thematic analysis.

Results: Interviewees gave overwhelmingly negative accounts of autistic pupils' school non-attendance and exclusion experiences. Our analysis identified a range of school-related factors they felt led to, or exacerbated, negative experiences in their former mainstream schools, and which ultimately led to their or their children's school non-attendance. It also went further to identify distal factors, including fragmented educational experiences, parents "fighting" against a complex bureaucratic system to secure appropriate education for their children, and limited professional involvement.

Conclusions: Our findings emphasize the importance of examining the broader context in which autistic pupils are embedded and demonstrate that such pupils are able to successfully attend-and even enjoy-school when they receive the appropriate care and support.

Implications: Schools and local authority professionals should seek to work in partnership with parents and autistic pupils to secure the necessary support for their inclusion in mainstream education. Government policy should support the provision of sufficient local authority professionals to adopt a more proactive approach to mitigate autistic pupils' avoidance of and exclusion from school.

背景和目的:自闭症谱系的儿童和年轻人经常报告一系列负面的教育经历,并面临着不成比例的高失学率,包括逃学和永久排斥,这可能对他们的幸福感以及教育和更广泛的生活结果产生重大影响。迄今为止,很少有研究对确保自闭症学生入学和融入社会的近端(儿童、家长/家庭、学校层面)和远端(社区和社会层面)障碍进行全面调查。目前的研究试图通过从多个信息来源的角度调查自闭症年轻人的失学和排斥经历来做到这一点。方法:我们从英国英格兰的一个地方当局招募了12名自闭症学生,他们以前曾经历过学校回避和/或排斥。我们对这些年轻人自己、他们的十位父母、他们现在的八位老师和九位地方当局的专业人士进行了半结构化的采访,其中包括六位教育心理学家和三位自闭症专家老师。我们使用反射性主题分析法分析了受访者的回答。结果:受访者对自闭症学生的旷课和被排斥经历给出了绝大多数负面的描述。我们的分析确定了一系列与学校相关的因素,他们认为这些因素导致或加剧了他们在前主流学校的负面经历,并最终导致他们或他们的孩子不上学。它还进一步确定了远端因素,包括分散的教育经历、父母为确保孩子接受适当教育而与复杂的官僚系统“斗争”,以及有限的专业参与。结论:我们的研究结果强调了研究自闭症学生所处的更广泛背景的重要性,并证明了当这些学生得到适当的照顾和支持时,他们能够成功上学,甚至享受学校的乐趣。影响:学校和地方当局的专业人员应寻求与家长和自闭症学生合作,确保他们融入主流教育所需的支持。政府政策应支持提供足够的地方当局专业人员,以采取更积极主动的方法,减轻自闭症学生逃避和被排斥在学校之外的情况。
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引用次数: 0
‘It's really important to be collaborating’: Experiences of participatory research for Chinese and Vietnamese parents of autistic children “合作真的很重要”:中国和越南自闭症儿童父母的参与式研究经验
Q1 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1177/23969415231210482
Jodie Smith, Aspasia Stacey Rabba, Poulomee Datta, Emma Dresens, Rena Wang, Lin Cong, Ngoc Dang, Gabrielle Hall, Melanie Heyworth, Wenn Lawson, Patricia Lee, Rozanna Lilley, Emily Ma, Hau T T Nguyen, Kim-Van Nguyen, Phuc Nguyen, Chong Tze Yeow, Elizabeth Pellicano
Background and aims Participatory research involves academic partners working together with the community that is affected by research to make decisions about that research. Such approaches often result in research that is more respectful of, and responsive to, community preferences – and is vital in the context of autism research with culturally and linguistically diverse (CALD) communities. Whilst participatory approaches are becoming more commonplace within CALD autism research, no studies have explored the experiences of being involved in autism research from the perspectives of CALD community partners over the course of a study. This paper intended to address this gap by reporting on the experiences of CALD parents of autistic children who were community partners in a 1-year Australian research project exploring home–school partnerships for CALD parents of autistic children. We aimed to: (1) report on how parents’ involvement in the research process shaped the home–school partnerships study over time and (2) understand their experiences of being community partners on the home–school partnerships project. Methods Using key principles of participatory approaches, we established Chinese and Vietnamese parent advisory groups to contribute to a project exploring home–school partnerships for parents of autistic children from CALD backgrounds in Australia. Advisory groups included parents of autistic children from Chinese/Vietnamese backgrounds, as well as interpreters, professionals and researchers. We documented how parents’ participation as community partners shaped the home–school partnerships study over the course of the project. We also elicited parents’ own views and experiences of being community partners through informal, open-ended questions at the beginning and end of the study. Results We found that parents’ input fundamentally shaped the broader home–school partnership study, from meaningful, accurate translation of interview schedules through to making decisions regarding community-specific recommendations and dissemination plans. Parents themselves reported being keen to collaborate and to hear and share opinions for the purpose of the home–school partnership study – although they noted how emotionally difficult sharing their stories could be. While they initially had some concerns about combining being involved as a community partner with their existing responsibilities, ultimately, parents were surprised by the scope of the home–school partnership study and their level of involvement as community partners. Through hearing others’ stories and sharing their own in advisory group meetings, parents reported ancillary benefits of their involvement, including increased self-advocacy and well-being. Conclusions These findings show how research that is conducted in partnership with diverse members of the autism community has the capacity to improve the quality of the research and benefit community partners. Implications This study clearly
背景和目的参与式研究涉及学术合作伙伴与受研究影响的社区共同努力,对该研究做出决策。这种方法往往导致研究更加尊重和响应社区偏好,这在文化和语言多样化(CALD)社区的自闭症研究背景下至关重要。虽然参与式方法在CALD自闭症研究中变得越来越普遍,但没有研究在研究过程中从CALD社区合作伙伴的角度探讨参与自闭症研究的经验。本文旨在通过报道自闭症儿童的CALD父母的经历来解决这一差距,这些父母是澳大利亚一个为期一年的研究项目的社区合作伙伴,探索自闭症儿童的CALD父母的家-学校合作关系。我们的目的是:(1)报告父母在研究过程中的参与是如何影响家校合作研究的;(2)了解他们作为家校合作项目社区合作伙伴的经历。方法采用参与式方法的关键原则,我们建立了中国和越南的家长咨询小组,为澳大利亚CALD背景的自闭症儿童的家长探索家校合作伙伴关系的项目做出贡献。咨询小组包括来自中国/越南背景的自闭症儿童的父母,以及口译员、专业人员和研究人员。我们记录了在整个项目过程中,家长作为社区伙伴的参与是如何影响家校合作研究的。我们还在研究的开始和结束时通过非正式的、开放式的问题引出了家长自己对社区合作伙伴的看法和经历。结果我们发现,从有意义的、准确的访谈时间表翻译到针对社区具体建议和传播计划的决策,家长的投入从根本上塑造了更广泛的家校合作研究。家长们自己报告说,为了家校合作研究的目的,他们渴望合作,倾听和分享意见——尽管他们注意到分享他们的故事在情感上是多么困难。虽然他们最初对作为社区伙伴参与到他们现有的责任中有一些担忧,但最终,家长们对家庭-学校伙伴关系研究的范围和他们作为社区伙伴的参与程度感到惊讶。通过倾听别人的故事,并在咨询小组会议上分享自己的故事,家长们报告了他们参与的附带好处,包括增强了自我宣传和幸福感。这些发现表明,与自闭症社区的不同成员合作进行的研究如何能够提高研究质量并使社区合作伙伴受益。本研究清楚地记录了CALD社区参与式方法的好处和潜在挑战。这些发现向研究人员和资助者强调了在预算中包括额外时间和资金的重要性,以便进行有意义的研究,尊重和响应社区。
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引用次数: 0
“I’m able to function better when I know there's a beginning and an end time”: Autistic adolescents’ experiences of lockdowns during the COVID-19 pandemic “当我知道有开始和结束的时间时,我就能更好地工作”:自闭症青少年在COVID-19大流行期间的封锁经历
Q1 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1177/23969415231159552
Lorna G. Hamilton, L. Kelly, S. Mesa
Survey research indicates that autistic children and young people experienced high levels of anxiety and isolation during lockdowns in response to the coronavirus disease 2019 (COVID-19) pandemic. Meanwhile, qualitative studies suggest that there may have been some benefits in the switch to home learning for this population. However, the majority of evidence to date comes from parent reports; the current study aimed to triangulate the perspectives of autistic youth and their parents in order to more fully understand the impact of periods of lockdown on education, relationships, and wellbeing. Thirteen semistructured interviews were conducted (six with adolescents, seven with parents) to explore the experiences of a group of autistic youth aged 13–14 years (Year 9 of mainstream education in England) during a period of intermittent lockdown. Data were analysed using reflexive thematic analysis. Two broad themes capturing commonality and diversity in the adolescents’ experiences of lockdown were developed. (1) “Different stress, not less stress” encapsulates the finding that, despite the enforced removal from the school environment providing short-term relief, new stressors contributed to consistently high levels of anxiety for the young people throughout lockdown periods. Stressors included managing home-school within the family unit, navigating time without boundaries, and anxiety about the virus. (2) “A shrunken world” reflects the heightened impact of losing access to meaningful social relationships, extracurricular pursuits, and health-promoting activities for autistic youth. The early stages of the global response to the COVID-19 pandemic caused serious disruption to education for many children and young people globally,;our findings provide further evidence that the impact was particularly salient for autistic youth in terms of social isolation, lost learning, and heightened anxiety. These findings underscore the necessity of long-term support for the education, social needs, and mental health of autistic young people in the aftermath of lockdowns in response to COVID-19.
调查研究表明,在应对2019年冠状病毒病(COVID-19)大流行的封锁期间,自闭症儿童和年轻人经历了高度的焦虑和孤立。与此同时,定性研究表明,对这一人群来说,转向在家学习可能有一些好处。然而,迄今为止,大多数证据来自父母的报告;目前的研究旨在对自闭症青少年及其父母的观点进行三角测量,以便更全面地了解禁闭期对教育、人际关系和幸福感的影响。进行了13次半结构化访谈(6次与青少年,7次与父母),以探索一组13-14岁(英国主流教育9年级)的自闭症青少年在间歇性封锁期间的经历。数据分析采用反身性主题分析。制定了两个广泛的主题,反映了青少年禁闭经历的共性和多样性。(1)“不同的压力,而不是更少的压力”概括了这一发现,即尽管强制离开学校环境提供了短期缓解,但新的压力源导致年轻人在整个封锁期间一直处于高度焦虑状态。压力源包括在家庭单位内管理家庭学校,没有边界的时间安排,以及对病毒的焦虑。(2)“萎缩的世界”反映了自闭症青少年失去有意义的社会关系、课外活动和促进健康活动的机会所带来的更大影响。全球应对COVID-19大流行的早期阶段对全球许多儿童和年轻人的教育造成了严重干扰。我们的研究结果进一步证明,在社会孤立、学习能力丧失和焦虑加剧方面,自闭症青年受到的影响尤为突出。这些发现强调了在为应对COVID-19而实施封锁之后,为自闭症年轻人的教育、社会需求和心理健康提供长期支持的必要性。
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引用次数: 1
Quality of life and coping strategies used by parents of children with autism spectrum disorder in Oman. 阿曼自闭症谱系障碍儿童父母的生活质量和应对策略。
Q1 EDUCATION, SPECIAL Pub Date : 2022-11-29 eCollection Date: 2022-01-01 DOI: 10.1177/23969415221142262
Alya Mohammed Said ALBusaidi, Salima Ali Saud ALMasroori, Balqees Mohammed Said Awladthani, Sumaiya Abdullah ALKhaldi, Noof Al Alawi, Asma Ali Al Salmani

Objective: Raising a child with autism spectrum disorder (ASD) can have a significant impact on quality of life (QOL). This study was conducted to assess the QOL and coping strategies of parents of children with ASD in Oman.

Method: This descriptive cross-sectional study was conducted at Al-Masarra psychiatric hospital. Telephone interviews were conducted with the parents of all children diagnosed with ASD and attending Al-Masarra Hospital between January 2018 and October 2021. Data were collected using the Ways of Coping Checklist-Revised and World Health Organization Quality of Life Assessment-Brief.

Results: A total of 304 parents participated in the study (response rate: 100%), of which 59.5% were female. The mean age of the parents and children with ASD was 40.4 ± 6.9 and 8.4 ± 2.3 years, respectively. Most children with ASD were male (78.3%) and entirely dependent upon their parents (18.1%). Seeking social support was the most common coping strategy (75.53 ± 13.99), while escape avoidance was the least common (51.78 ± 8.04). Most parents (48.7%) rated their QOL as good to very good, with acceptable scores in the psychological (70.92 ± 11.22) and social (73.27 ± 11.46) domains, borderline in the physical health domain (63.51 ± 7.77), and poor in the environmental domain (58.31 ± 11.00).

Conclusions: Omani parents of children with ASD utilize various coping strategies, with coping skills considered a positive index for mental health in general. No significant differences were observed between Omani fathers and mothers in terms of QOL or coping strategies.

目的:孤独症谱系障碍(ASD)儿童的抚养对其生活质量(QOL)有显著影响。本研究旨在评估阿曼ASD患儿家长的生活质量和应对策略。方法:本描述性横断面研究在Al-Masarra精神病院进行。在2018年1月至2021年10月期间,对所有被诊断为ASD并在Al-Masarra医院就诊的儿童的父母进行了电话采访。数据的收集采用了修订后的应对方法和世界卫生组织生活质量评估简报。结果:共有304名家长参与研究,回复率为100%,其中女性家长占59.5%。父母和患儿的平均年龄分别为40.4±6.9岁和8.4±2.3岁。大多数自闭症儿童为男性(78.3%),完全依赖父母(18.1%)。寻求社会支持是最常见的应对策略(75.53±13.99),逃避最不常见(51.78±8.04)。大多数家长(48.7%)认为自己的生活质量为“好”至“很好”,心理(70.92±11.22)和社交(73.27±11.46)得分尚可,身体健康(63.51±7.77)得分处于边缘,环境(58.31±11.00)得分较差。结论:阿曼自闭症儿童的父母采用多种应对策略,应对技能被认为是总体心理健康的积极指标。阿曼父亲和母亲在生活质量或应对策略方面没有显著差异。
{"title":"Quality of life and coping strategies used by parents of children with autism spectrum disorder in Oman.","authors":"Alya Mohammed Said ALBusaidi,&nbsp;Salima Ali Saud ALMasroori,&nbsp;Balqees Mohammed Said Awladthani,&nbsp;Sumaiya Abdullah ALKhaldi,&nbsp;Noof Al Alawi,&nbsp;Asma Ali Al Salmani","doi":"10.1177/23969415221142262","DOIUrl":"https://doi.org/10.1177/23969415221142262","url":null,"abstract":"<p><strong>Objective: </strong>Raising a child with autism spectrum disorder (ASD) can have a significant impact on quality of life (QOL). This study was conducted to assess the QOL and coping strategies of parents of children with ASD in Oman.</p><p><strong>Method: </strong>This descriptive cross-sectional study was conducted at Al-Masarra psychiatric hospital. Telephone interviews were conducted with the parents of all children diagnosed with ASD and attending Al-Masarra Hospital between January 2018 and October 2021. Data were collected using the Ways of Coping Checklist-Revised and World Health Organization Quality of Life Assessment-Brief.</p><p><strong>Results: </strong>A total of 304 parents participated in the study (response rate: 100%), of which 59.5% were female. The mean age of the parents and children with ASD was 40.4 ± 6.9 and 8.4 ± 2.3 years, respectively. Most children with ASD were male (78.3%) and entirely dependent upon their parents (18.1%). Seeking social support was the most common coping strategy (75.53 ± 13.99), while escape avoidance was the least common (51.78 ± 8.04). Most parents (48.7%) rated their QOL as good to very good, with acceptable scores in the psychological (70.92 ± 11.22) and social (73.27 ± 11.46) domains, borderline in the physical health domain (63.51 ± 7.77), and poor in the environmental domain (58.31 ± 11.00).</p><p><strong>Conclusions: </strong>Omani parents of children with ASD utilize various coping strategies, with coping skills considered a positive index for mental health in general. No significant differences were observed between Omani fathers and mothers in terms of QOL or coping strategies.</p>","PeriodicalId":36716,"journal":{"name":"Autism and Developmental Language Impairments","volume":" ","pages":"23969415221142262"},"PeriodicalIF":0.0,"publicationDate":"2022-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/51/93/10.1177_23969415221142262.PMC9716633.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35253228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Early years autism and bilingualism: An interpretative phenomenological analysis of parent perceptions during lockdown. 早期自闭症和双语:禁闭期间父母感知的解释性现象学分析。
Q1 EDUCATION, SPECIAL Pub Date : 2022-11-20 eCollection Date: 2022-01-01 DOI: 10.1177/23969415221138704
Sarah Oudet, Katie Howard, Stephanie Durrleman

Aim: This study explores how bilingual parents of autistic children made language decisions for their families, how the event of the SARS-CoV-2 pandemic and subsequent lockdown impacted the communication environment of their households, and whether these experiences affected their language habits.

Method: Semi-structured interviews were conducted with five bilingual parents of autistic children who lived through lockdown in France. Data were analysed using interpretative phenomenological analysis. Demographic and background information was collected using an adapted version of the Questionnaire for Parents of Bilingual Children.

Results: Participants reported conflicting advice given by a range of practitioners. Parents expressed differing beliefs about the impact of language choices on their children. Parents described active engagement with their children's home-learning as generally positive. Parents identified an increase in children's exposure to their first language during the lockdown. Parents reported an increase in children's overall communication abilities.

Conclusion: Parents believed that their children's positive communication development during lockdown was related to increased exposure to their first language(s), and direct involvement in their children's learning programs.

目的:本研究探讨自闭症儿童的双语父母如何为他们的家庭做出语言决定,SARS-CoV-2大流行和随后的封锁事件如何影响他们的家庭沟通环境,以及这些经历是否影响了他们的语言习惯。方法:采用半结构化访谈的方法,对5名在法国经历封锁时期的自闭症儿童的双语父母进行访谈。数据分析采用解释性现象学分析。人口统计和背景资料的收集使用了《双语儿童父母问卷》的改编版本。结果:参与者报告了一系列从业人员给出的相互矛盾的建议。对于语言选择对孩子的影响,家长们表达了不同的看法。家长们认为积极参与孩子的家庭学习总体上是积极的。家长们发现,在封锁期间,孩子们接触第一语言的机会增加了。家长们报告说,孩子的整体沟通能力有所提高。结论:家长认为,在封锁期间,孩子的积极沟通发展与增加母语接触和直接参与孩子的学习计划有关。
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引用次数: 0
Naturalistic parent-child reading frequency and language development in toddlers with and without autism. 有和没有自闭症的幼儿自然亲子阅读频率与语言发展。
Q1 EDUCATION, SPECIAL Pub Date : 2022-11-10 eCollection Date: 2022-01-01 DOI: 10.1177/23969415221136740
Janine Mathée-Scott, Susan Ellis Weismer

Background and aims: The efficacy of parent-child reading for supporting language development has been well-established in the neurotypical (NT) literature. For children with autism spectrum disorder, (ASD) who may be at risk for delays in language development, prior research has shown promise for shared book-reading interventions. Yet there has been limited research on naturalistic parent-child reading with autistic children to date. The present study aimed to fill this missing link in the current literature.

Methods: Fifty-seven autistic toddlers participated at two developmental time points: Time 1 (Mage = 30.4 months) and Time 2 (Mage = 43.8 months). An NT control group (N = 31) was matched on age to a subset of the ASD group (N = 33). We assessed group differences in parent-child reading frequency between age-matched NT and autistic groups. Using a one-year follow-up design, we evaluated the relationship between parent-child reading and autistic children's language development.

Results: Cross-group comparisons revealed that parents of age-matched NT children reported significantly more frequent weekly parent-child reading than parents of autistic toddlers. After a one-year follow-up with the autistic group, within-group analyses revealed that greater frequency of parent-child reading (controlling for maternal education, books in the home, and autism symptom severity) was associated with larger growth in autistic toddlers' receptive and expressive language skills.

Conclusions and implications: These findings have important clinical implications as they emphasize the potential of parent-child reading for supporting autistic children's language development. Findings demonstrate that frequency of parent-child reading is associated with language development over one year. Findings also demonstrate that parents of autistic children engage in less frequent parent-child reading than parents of age-matched NT peers, suggesting these parents may face more barriers to implementing parent-child reading than parents of NT children.

背景和目的:亲子阅读对语言发展的支持作用已在神经典型(NT)文献中得到证实。对于患有自闭症谱系障碍(ASD)的儿童来说,他们可能有语言发育迟缓的风险,先前的研究表明,共享阅读干预是有希望的。然而,迄今为止,关于自闭症儿童自然亲子阅读的研究还很有限。本研究旨在填补当前文献中缺失的这一环节。方法:57名自闭症幼儿在时间1(年龄30.4个月)和时间2(年龄43.8个月)两个发展时间点参与研究。NT对照组(N = 31)与ASD组的一个子集(N = 33)在年龄上匹配。我们评估了年龄匹配的NT和自闭症组之间亲子阅读频率的组间差异。采用为期一年的随访设计,我们评估亲子阅读与自闭症儿童语言发展之间的关系。结果:跨组比较显示,年龄匹配的自闭症儿童的父母比自闭症幼儿的父母报告的每周亲子阅读频率明显更高。在对自闭症组进行了一年的随访后,组内分析显示,亲子阅读的频率越高(控制了母亲的教育、家里的书和自闭症症状的严重程度),自闭症幼儿的接受和表达语言技能的增长就越大。结论和意义:这些发现具有重要的临床意义,因为它们强调了亲子阅读对支持自闭症儿童语言发展的潜力。研究结果表明,在一年的时间里,亲子阅读的频率与语言发展有关。研究结果还表明,自闭症儿童的父母参与亲子阅读的频率低于年龄匹配的NT儿童的父母,这表明这些父母在实施亲子阅读时可能比NT儿童的父母面临更多的障碍。
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引用次数: 0
Conducting oral and written language adapted tele-assessments with early elementary-age children with autism spectrum disorder. 对患有自闭症谱系障碍的小学早期儿童进行口头和书面语言适应性远程评估。
Q1 EDUCATION, SPECIAL Pub Date : 2022-11-04 eCollection Date: 2022-01-01 DOI: 10.1177/23969415221133268
Carlin Conner, Alyssa R Henry, Emily J Solari, Matthew C Zajic

Background and aims: Due to the COVID-19 pandemic, tele-health has gained popularity for both providing services and delivering assessments to children with disabilities. In this manuscript, we discuss the process of collecting standardized oral language, reading, and writing tele-assessment data with early elementary children with autism spectrum disorder (ASD) and offer preliminary findings related to child and parent engagement and technology issues.

Methods: The data presented are from pretest assessments during an efficacy study examining the electronic delivery of a listening comprehension intervention for children with ASD. Pretest sessions included a battery of standardized language, reading, and writing assessments, conducted over Zoom. The authors operationalized and developed a behavioral codebook of three overarching behavioral categories (parent involvement, child disengagement, and technology issues). Researchers coded videos offline to record frequencies of indicated behaviors across participants and assessment subtests.

Results: Involvement from parents accounted for the highest number of codes. Children showed some disengagement during assessment sessions. Technology issues were minimal. Behavioral categories appeared overall limited but varied across participants and assessments.

Conclusions: Parent involvement behaviors made up approximately two-thirds of the coded behaviors. Child disengagement behaviors made up approximately one-fourth of the coded behaviors, and these behaviors occurred more frequently across many different participants (with lower frequencies but greater coverage across children). Technology problems specific to responding to assessment items were relatively uncommon.

Implications: Clear guidelines including assessment preparation, modification of directions, and guidelines for parents who remain present are among the implications discussed. We also provide practical implications for continued successful adapted tele-assessments for children with ASD.

背景和目的:由于2019冠状病毒病大流行,远程保健在为残疾儿童提供服务和进行评估方面越来越受欢迎。在这篇文章中,我们讨论了收集自闭症谱系障碍(ASD)早期小学儿童标准化口语、阅读和写作远程评估数据的过程,并提供了与儿童和家长参与和技术问题相关的初步发现。方法:所提供的数据来自于一项有效性研究中的测试前评估,该研究检验了ASD儿童听力理解干预的电子传递。预测试阶段包括一系列标准化的语言、阅读和写作评估,通过Zoom进行。作者将三个主要的行为类别(父母参与、儿童脱离和技术问题)操作并开发了一个行为守则。研究人员对离线视频进行编码,以记录参与者和评估子测试中指示行为的频率。结果:家长参与的编码最多。孩子们在评估过程中表现出一些不投入。技术问题很少。行为类别总体上有限,但在参与者和评估中有所不同。结论:父母参与行为约占编码行为的三分之二。儿童脱离行为约占编码行为的四分之一,这些行为在许多不同的参与者中发生得更频繁(在儿童中频率较低,但覆盖范围较大)。响应评估项目的具体技术问题相对不常见。含义:明确的指导方针,包括评估准备,修改指导方针,并指导家长谁留在讨论的含义。我们还为持续成功地对ASD儿童进行适应性远程评估提供了实际意义。
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引用次数: 2
Experientially based narrative instruction: A neurocognitive perspective. 基于经验的叙事教学:神经认知视角。
Q1 EDUCATION, SPECIAL Pub Date : 2022-10-05 eCollection Date: 2022-01-01 DOI: 10.1177/23969415221129139
Megan Israelsen-Augenstein, Sandi Gillam, Jamie Mecham, Hailey Ashcroft

Background: The purpose of this study was to evaluate the feasibility of a personal narrative intervention based on neurocognitive principles and experientially based learning for improving the personal narrative language abilities of a school-age child with Down's syndrome.

Method: A single-case design using contemporary statistical techniques was employed to complete this study. The participant was 8 years 8 months at the time of the study and he participated in a 14-week personal narrative intervention. Personal narrative samples were collected at the beginning of each intervention session prior to instruction. Narrative samples were scored for narrative quality, language productivity, and lexical diversity.

Results: As a result of the intervention, the participant demonstrated moderate-significant increases in narrative abilities for narrative quality, language productivity, and lexical diversity.

Conclusions: The use of a personal narrative based on neurocognitive principles and experientially based learning may be feasible for improving the personal narrative language abilities of school-age children with Down's syndrome.

背景:本研究的目的是评估基于神经认知原理和经验学习的个人叙事干预对提高学龄期唐氏综合征儿童个人叙事语言能力的可行性。方法:采用单病例设计,采用当代统计技术完成本研究。参与者在研究时年龄为8岁8个月,他参加了为期14周的个人叙事干预。个人叙述样本在每次干预课程开始前收集。对叙事样本的叙事质量、语言生产力和词汇多样性进行评分。结果:作为干预的结果,参与者在叙事质量、语言生产力和词汇多样性方面的叙事能力表现出中等到显著的提高。结论:运用基于神经认知原理的个人叙事和基于经验的学习对提高学龄期唐氏综合征儿童的个人叙事语言能力是可行的。
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引用次数: 0
FOXP2 down expression is associated with executive dysfunctions and electrophysiological abnormalities of brain in Autism spectrum disorder; a neuroimaging genetic study. FOXP2下调表达与自闭症谱系障碍脑执行功能障碍和脑电生理异常相关一项神经影像遗传研究。
Q1 EDUCATION, SPECIAL Pub Date : 2022-09-22 eCollection Date: 2022-01-01 DOI: 10.1177/23969415221126391
Arvin Haghighatfard, Elham Yaghoubi Asl, Rosita Azar Bahadori, Rojina Aliabadian, Mahdi Farhadi, Fatemeh Mohammadpour, Zeinab Tabrizi

Background and aims: Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by language impairment, and challenges with social interaction, communication, and repetitive behaviors. Although genetics are a primary cause of ASD, the exact genes and molecular mechanisms involved in its pathogenesis are not completely clear. The FOXP2 gene encodes a transcription factor that is known for its major role in language development and severe speech problems. The present study aimed to evaluate the role of FOXP2 in ASD etiology, executive functions, and brain activities.

Methods: In the present study, we recruited 450 children with ASD and 490 neurotypical control children. Three domains of executive functions (working memory, response inhibition, and vigilance) were assessed. In addition, five-minute eyes closed electroencephalography was obtained from some of the children with ASD and neurotypical children. DNA sequence and expression level of FOXP2 in blood samples of children with ASD and the control group were evaluated by using sequencing and Real-time PCR, respectively.

Results: The results showed no mutations but a significant down expression of FOXP2 genes in children with ASD vs. neurotypical children. Several cognitive and executive function deficiencies were detected in children with ASD. Low alpha and gamma bands in the frontal lobe and high theta bands in the occipital lobe were revealed in children with ASD. We also found several correlations between FOXP2 expression levels and clinical assessments.

Conclusions: Our finding revealed the down expression of FOXP2, which could be considered as a biomarker for ASD as well as cognitive and executive dysfunction. Based on brain mapping data, FOXP2 may be related to the theta wave abnormality of children with ASD. FOXP2 may be considered a target of novel treatment to improve memory and executive functions.

Implications: Our findings highlight the role of FOXP2 mRNA level in ASD etiology, executive functions, and brain wave frequencies.

背景与目的:自闭症谱系障碍(Autism spectrum disorder, ASD)是一种以语言障碍、社交障碍、沟通障碍和重复性行为障碍为特征的神经发育障碍。虽然遗传是ASD的主要原因,但其发病机制的确切基因和分子机制尚不完全清楚。FOXP2基因编码一种转录因子,这种转录因子在语言发育和严重言语问题中起着重要作用。本研究旨在评估FOXP2在ASD病因、执行功能和大脑活动中的作用。方法:在本研究中,我们招募了450名ASD儿童和490名神经正常的对照组儿童。执行功能的三个领域(工作记忆、反应抑制和警觉性)被评估。此外,对部分ASD患儿和神经正常患儿进行了5分钟闭眼脑电图。采用测序法和Real-time PCR法分别检测ASD患儿和对照组血液样本中FOXP2的DNA序列和表达水平。结果:与正常儿童相比,ASD患儿FOXP2基因无突变,但表达明显下调。在ASD儿童中发现了一些认知和执行功能缺陷。ASD患儿额叶α和γ波段低,枕叶θ波段高。我们还发现FOXP2表达水平与临床评估之间存在一些相关性。结论:我们的发现揭示了FOXP2的低表达,FOXP2可以被认为是ASD以及认知和执行功能障碍的生物标志物。基于脑图数据,FOXP2可能与ASD患儿的θ波异常有关。FOXP2可能被认为是改善记忆和执行功能的新治疗靶点。意义:我们的研究结果强调了FOXP2 mRNA水平在ASD病因学、执行功能和脑电波频率中的作用。
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引用次数: 3
Strategies in supporting inclusive education for autistic students-A systematic review of qualitative research results. 支持自闭症学生全纳教育的策略——质性研究结果的系统回顾。
Q1 EDUCATION, SPECIAL Pub Date : 2022-09-21 eCollection Date: 2022-01-01 DOI: 10.1177/23969415221123429
Linda Petersson-Bloom, Mona Holmqvist

Background and aim: Strategies to modify and adjust the educational setting in mainstream education for autistic students are under-researched. Hence, this review aims to identify qualitative research results of adaptation and modification strategies to support inclusive education for autistic students at school and classroom levels.

Method: In this systematic review, four databases were searched. Following the preferred PRISMA approach, 108 studies met the inclusion criteria, and study characteristics were reported. Synthesis of key findings from included studies was conducted to provide a more comprehensive and holistic understanding.

Main contribution: This article provides insights into a complex area via aggregating findings from qualitative research a comprehensive understanding of the phenomena is presented. The results of the qualitative analysis indicate a focus on teachers' attitudes and students' social skills in research. Only 16 studies were at the classroom level, 89 were at the school level, and three studies were not categorized at either classroom or school level. A research gap was identified regarding studies focusing on the perspectives of autistic students, environmental adaptations to meet the students' sensitivity difficulties, and how to enhance the students' inclusion regarding content taught and knowledge development from a didactic perspective.

Conclusions and implications: Professional development that includes autism-specific understanding and strategies for adjusting and modifying to accommodate autistic students is essential. This conclusion may direct school leaders when implementing professional development programs. A special didactical perspective is needed to support teachers' understanding of challenges in instruction that autistic students may encounter.

背景与目的:自闭症学生主流教育环境的改变与调整策略尚处于研究阶段。因此,本综述旨在从学校和课堂层面确定适应和修正策略的定性研究结果,以支持自闭症学生的全纳教育。方法:检索4个数据库。按照首选的PRISMA方法,108项研究符合纳入标准,并报告了研究特征。对纳入研究的主要发现进行综合,以提供更全面和整体的理解。主要贡献:本文通过汇总定性研究的结果,提供了对一个复杂领域的见解,并提出了对这一现象的全面理解。定性分析的结果表明,在研究中教师的态度和学生的社交技能是重点。只有16项研究属于课堂水平,89项属于学校水平,还有3项研究既不属于课堂也不属于学校水平。在关注自闭症学生视角的研究、适应环境以满足学生敏感性困难的研究以及如何从教学角度增强学生对教学内容和知识发展的包容方面存在研究空白。结论和启示:专业发展包括自闭症特定的理解和调整策略,以适应自闭症学生是必不可少的。这一结论可以指导学校领导实施专业发展计划。需要一个特殊的教学视角来支持教师理解自闭症学生在教学中可能遇到的挑战。
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引用次数: 3
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Autism and Developmental Language Impairments
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