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The diversity of speech-perception difficulties among autistic individuals. 自闭症患者语言感知困难的多样性。
IF 2.5 Q1 EDUCATION, SPECIAL Pub Date : 2024-01-27 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241227074
George J Bendo, Alexandra Sturrock, Graham Hanks, Christopher J Plack, Emma Gowen, Hannah Guest

Background & aims: Communicative and sensory differences are core autistic traits, yet speech-perception abilities and difficulties among autistic individuals remain poorly understood. Laboratory studies have produced mixed and inconclusive results, in part because of the lack of input from autistic individuals in defining the hypotheses and shaping the methods used in this field of research. Little in-depth qualitative research on autistic experiences of speech perception has been published, yet such research could form the basis for better laboratory research, for improved understanding of autistic experiences, and for the development of interventions. Existing qualitative research describes widespread autistic listening differences with significant impacts, but these results rely on data gathered via oral interviews in a small sample. The present study addresses these limitations and employs a mixed-methods approach to explore autistic listening experiences.

Methods: We gathered survey data from 79 autistic individuals aged 18-55 without diagnosed hearing loss. The questionnaire included 20 closed-set questions on listening abilities and difficulties and three free-text questions on listening experiences. The free-text questions underwent deductive content analysis using a framework composed of themes from previous interview data on listening experiences (including auditory differences, contributing factors, impacts, and coping strategies). Concepts in the free-text data that were not part of the analysis framework were analyzed inductively.

Results: In the closed-set data, participants reported listening difficulties in most specified environments, but complex background sounds and particularly background voices caused the most difficulty. Those who reported listening difficulties expressed having substantially greater difficulties than other people the same age. Participants indicated multiple impacts from listening difficulties, most prominently in their social lives. Concepts in the free-text data strongly supported previous interview data on listening differences and factors that affect listening ability, especially the diversity of types of listening difficulties. Consistent with the closed-set data, background-sound complexity and concurrent voices were especially troubling. Some concepts in the free-text data were novel, particularly difficulties with remote, broadcast, and recorded audio, prompting the creation of new themes.

Conclusions: Both forms of data indicate widespread listening differences-predominantly listening difficulties-affecting most autistic adults. Diverse types of listening difficulty are evident, potentially indicating heterogeneous underlying mechanisms, and complexity of background noise is consistently identified as an important factor. Listening difficulties are said to have substantial and varied impacts. Autistic adults a

背景与目的:沟通和感官差异是自闭症的核心特征,但人们对自闭症患者的言语感知能力和困难仍然知之甚少。实验室研究结果参差不齐,没有定论,部分原因是自闭症患者在确定研究假设和方法时缺乏参与。有关自闭症患者言语感知经验的深入定性研究鲜有发表,但此类研究可为更好的实验室研究、加深对自闭症患者经验的理解以及制定干预措施奠定基础。现有的定性研究描述了自闭症患者普遍存在的听力差异,并对其产生了重大影响,但这些结果依赖于小样本口头访谈收集的数据。本研究针对这些局限性,采用混合方法探索自闭症患者的倾听体验:我们收集了 79 名年龄在 18-55 岁之间、未确诊听力损失的自闭症患者的调查数据。问卷包括 20 个有关倾听能力和困难的封闭式问题,以及 3 个有关倾听体验的自由文本问题。自由文本问题采用演绎式内容分析方法,分析框架由以前有关倾听经历的访谈数据主题组成(包括听觉差异、诱因、影响和应对策略)。对自由文本数据中不属于分析框架的概念进行了归纳分析:在封闭集数据中,参与者表示在大多数特定环境中都有听力困难,但复杂的背景声音,尤其是背景声音造成的困难最大。与其他同龄人相比,那些报告听力困难的人所遇到的困难要大得多。参与者表示,听力困难对他们的社交生活造成了多重影响。自由文本数据中的概念有力地支持了之前关于倾听差异和影响倾听能力因素的访谈数据,尤其是倾听困难类型的多样性。与封闭式数据一致,背景声音的复杂性和同时出现的声音尤其令人困扰。自由文本数据中的一些概念很新颖,尤其是在远程、广播和录制音频方面的困难,这促使我们创建了新的主题:两种形式的数据都表明,听力差异--主要是听力困难--影响着大多数患有自闭症的成年人。听力障碍的类型多种多样,这可能表明其潜在机制各不相同,背景噪声的复杂性一直被认为是一个重要因素。据说倾听困难会产生巨大而多样的影响。成年自闭症患者热衷于分享应对策略,这些策略多种多样,通常都是自己设计的:根据定量和定性结果,我们提出了改进未来研究和支持自闭症群体的建议。这些数据揭示了倾听困难的类型,可以指导我们更好地对其潜在机制进行定量研究。此类研究应考虑到倾听困难的潜在异质性。我们还提出了优化自我报告数据收集的建议。此外,我们的研究结果还可用于提高社会对自闭症患者听力差异的认识,并为自闭症患者制定有益的干预措施。此外,鉴于自闭症群体愿意分享应对策略,系统整理这些策略可为自助和临床指导奠定基础。
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引用次数: 0
Examining gender effects in autistic written language skills: A small sample exploratory study. 自闭症书面语言技能中的性别影响:小样本探索性研究
Q1 EDUCATION, SPECIAL Pub Date : 2024-01-23 eCollection Date: 2024-01-01 DOI: 10.1177/23969415241227071
Johanna R Price, Emily C Biebesheimer, Kong Chen

Background and aims: Gender differences in the written language of autistic individuals are an overlooked but important area of research. We contend that the gender differences in spoken language of autistic individuals may extend to written language, mirroring the gender differences of writing in the general population and reflecting the shared dimensionality of oral and written language. Our research question was: Do autistic adolescent females demonstrate written language characteristics, across persuasive, expository, and narrative genres, that are distinct from those of autistic adolescent males and non-autistic (NA) adolescent females?

Methods: We performed a secondary, exploratory analysis on writing samples collected from 18 participants (11 autistic males, three autistic females, and four NA females) from a larger investigation of autistic adolescents' writing skills. Each participant completed three writing samples-one persuasive, one expository, and one narrative (for a total of 54 writing samples). We compared sample length (total number of words), writing productivity (words written per minute), syntactic length (mean length of T-unit in words), vocabulary diversity (type-token ratio), and macrostructure of autistic females' samples to autistic males' and NA females' samples.

Results: Based on non-parametric analyses using variable medians, autistic males, but not autistic females, wrote significantly shorter expository samples than NA females. Autistic males' writing productivity was significantly lower in the persuasive and expository genres than both autistic females and NA females. Several other comparisons of sample length, productivity, vocabulary diversity, and persuasive and narrative macrostructure yielded large effect sizes but were not statistically significant.

Conclusions: Though our small sample sizes prevent us from drawing generalizable conclusions, we observed that some gender-specific findings of the current study differ from previous findings based on a single autistic group (females and males combined). Combining data of autistic females with autistic males may cloud the distinct written language characteristics of each group.

Implications: Our findings, especially when situated in the context of relevant literature, suggest that larger-scale investigation of gender differences in written language is essential in order to more fully describe the unique characteristics of autistic females. Clinicians should be prepared to support autistic writers' needs for producing written language to meet their developmental, academic, social, and employment-related goals.

背景和目的:自闭症患者书面语言中的性别差异是一个被忽视但却很重要的研究领域。我们认为,自闭症患者口语中的性别差异可能会延伸到书面语言中,这反映了普通人群写作中的性别差异,也反映了口语和书面语言的共同维度。我们的研究问题是自闭症青少年女性在说服性、说明性和叙述性体裁方面是否表现出与自闭症青少年男性和非自闭症(NA)青少年女性不同的书面语言特征?我们对一项针对自闭症青少年写作技巧的大型调查中收集的 18 名参与者(11 名自闭症男性、3 名自闭症女性和 4 名非自闭症女性)的写作样本进行了二次探索性分析。每位参与者都完成了三篇写作样本--一篇劝说性写作、一篇说明性写作和一篇记叙性写作(共 54 篇写作样本)。我们比较了自闭症女性样本与自闭症男性和非自闭症女性样本的样本长度(总字数)、写作效率(每分钟写作字数)、句法长度(以字数为单位的 T 单元平均长度)、词汇多样性(类型-标记词比率)和宏观结构:根据使用变量中位数进行的非参数分析,自闭症男性(而非自闭症女性)的说明文写作篇幅明显短于非自闭症女性。自闭症男性在说服性和说明性体裁方面的写作效率明显低于自闭症女性和非自闭症女性。其他几项关于样本长度、写作效率、词汇多样性以及劝说性和叙事性宏观结构的比较产生了较大的效应大小,但在统计学上并不显著:虽然我们的样本量较小,无法得出具有普遍意义的结论,但我们注意到,当前研究的一些性别特异性结果与以往基于单一自闭症群体(女性和男性的总和)的研究结果有所不同。将女性自闭症患者和男性自闭症患者的数据结合起来,可能会掩盖每个群体独特的书面语言特征:我们的研究结果,尤其是结合相关文献的研究结果表明,为了更全面地描述女性自闭症患者的独特特征,有必要对书面语言的性别差异进行更大规模的调查。临床医生应做好准备,支持自闭症作家创作书面语言,以实现其发展、学业、社交和就业相关目标。
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引用次数: 0
Developing a new questionnaire of positive contributions to Chinese families by children with autism spectrum disorder. 编制自闭症谱系障碍儿童对中国家庭积极贡献的新问卷。
Q1 EDUCATION, SPECIAL Pub Date : 2024-01-03 eCollection Date: 2024-01-01 DOI: 10.1177/23969415231221520
Shulan Zeng, Afsheen Sardar, Amoneeta Beckstein, Noor Hassline Mohamed, Renhong Shen, Yunhui Xiu
<p><strong>Background and aims: </strong>A literature review of both Eastern and Western literature regarding families of children with autism spectrum disorder (ASD) revealed limited empirical research that examines ASD in China. Furthermore, most research in this area comes from a deficit model and there is a lack of research that comes from a strengths background. No previous study in China has looked at the positive contributions of children with ASD to their families. The present study came from a strengths-based perspective and aimed to develop a new questionnaire to evaluate the positive contributions made to families by children who have ASD in China and are raised by their respective families. It considered the severity level of the children's disorder and the impact this had on the parents. Besides examining the children's impairment levels, the study also examined positive contributions and their relationship with socio-demographic elements such as family income and employment status of the parents, which also seem to be related to the positive contributions experienced by the parents.</p><p><strong>Methods: </strong>First, based on the literature review, an initial qualitative interview protocol was developed and administered to 10 parents of children with ASD. Then, based on the analyses of the interviews, a quantitative questionnaire was developed to assess the positive contributions of children with ASD to their families. The questionnaire was then administered to 156 parents of children with ASD. The internal structure of the questionnaire was analyzed by factor analysis. The questionnaire's reliability and validity were also examined. The data were then analyzed with multiple correlation comparisons and an independent sample T-test.</p><p><strong>Results: </strong>Six factors emerged for families of children with ASD. The results showed that the cumulative explanatory variance of the six dimensions of the questionnaire was 65.42%. The Cronbach's coefficient of each dimension was between 0.7 and 0.9, and the combined Cronbach's coefficient of the total questionnaire was 0.945. This study found that the overall average positive contribution to families by children with ASD was 3.32, which is at a medium level, and all six dimensions were at a medium-to-high level. This study also found that the family's monthly income contributed to the <i>overall positive contribution, intimacy and happiness,</i> and <i>gaining more special knowledge through experience</i> dimensions. Furthermore, it was found that moderate severity of ASD, high income, and parental employment were all associated with more positive contributions.</p><p><strong>Conclusion: </strong>This new questionnaire appears to have good reliability and validity and seems suitable for assessing the positive contributions to families by children with ASD in China.</p><p><strong>Implications: </strong>The present study may be helpful for the parents of children with ASD and will
背景与目的:通过对东西方有关自闭症谱系障碍(ASD)儿童家庭的文献进行回顾,发现对中国自闭症谱系障碍的实证研究十分有限。此外,该领域的大多数研究都是从缺陷模式出发,缺乏从优势背景出发的研究。中国以往的研究也没有关注过 ASD 儿童对其家庭的积极贡献。本研究从基于优势的视角出发,旨在开发一份新的调查问卷,以评估在中国由各自家庭抚养的患有 ASD 的儿童对家庭所做的积极贡献。研究考虑了儿童障碍的严重程度以及对父母的影响。除了考察儿童的障碍程度,研究还考察了积极贡献及其与社会人口学因素的关系,如家庭收入和父母的就业状况,这些因素似乎也与父母所经历的积极贡献有关:首先,根据文献综述,制定了初步的定性访谈协议,并对 10 位 ASD 儿童的家长进行了访谈。然后,根据对访谈的分析,编制了一份定量问卷,以评估 ASD 儿童对其家庭的积极贡献。然后,对 156 位 ASD 儿童的家长进行了问卷调查。问卷的内部结构通过因子分析进行了分析。问卷的信度和效度也得到了检验。然后通过多重相关比较和独立样本 T 检验对数据进行分析:ASD 儿童家庭出现了六个因子。结果显示,问卷六个维度的累积解释方差为 65.42%。各维度的克朗巴赫系数介于 0.7 和 0.9 之间,总问卷的综合克朗巴赫系数为 0.945。本研究发现,自闭症儿童对家庭的积极贡献的总体平均值为 3.32,处于中等水平,六个维度均处于中等至高等水平。本研究还发现,家庭的月收入对总体积极贡献度、亲密感和幸福感以及通过体验获得更多特殊知识都有贡献。此外,研究还发现,中等严重程度的自闭症、高收入和父母就业都与更多的积极贡献相关:结论:这一新问卷具有良好的信度和效度,适用于评估中国 ASD 儿童对家庭的积极贡献:本研究可能对患有 ASD 儿童的家长有所帮助,有助于他们关注孩子的优点而非缺点。这项研究还可能使咨询师和研究人员受益,他们可以使用新的问卷来评估 ASD 儿童对家庭的积极贡献。
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引用次数: 0
Predictors of Picture Exchange Communication System (PECS) outcomes. 图片交流沟通系统(PECS)成果的预测因素。
Q1 EDUCATION, SPECIAL Pub Date : 2023-12-21 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231221516
Julie Koudys, Adrienne Perry, Carly Magnacca, Kristen McFee

Background & aims: Although the Picture Exchange Communication System (PECS) has been demonstrated to be an effective intervention to teach people diagnosed with autism spectrum disorder a functional communication system, the research indicates variability in PECS outcomes across people and studies. Therefore, the purpose of the current study was to explore child characteristics and treatment variables that may explain the variation in, and potentially predict, PECS outcomes.

Method: A total of 22 children and youth diagnosed with autism or a related developmental disorder, all of whom scored substantially below average on standardized measures of cognitive and adaptive abilities, participated in a PECS intervention.

Results: Participants who achieved high phases of PECS (≥PECS phase IIIb) differed significantly from those who mastered lower PECS phases (≤PECS phase IIIa) in terms of overall, verbal, and nonverbal mental age, matching abilities, and adaptive behavior level. Stimulus generalization was also associated with significant variation in PECS outcome. PECS outcomes could be predicted with good accuracy using a combination of these child characteristics and treatment variables.

Conclusions: The findings from the current study suggest that children with relatively higher cognitive and adaptive skill levels are more likely to achieve higher phases of PECS; further, approaches to generalization training also play a role. Factors such as autism symptom severity and parental ratings of maladaptive behavior were not associated with significant differences in PECS outcomes. However, more research is needed.

Implications: Gaining a better understanding of predictors of PECS outcomes is important to inform intervention, provide more accurate outcome expectations for families, and guide PECS teaching procedures. Although participants were more likely to achieve higher phases of PECS if they had a higher mental age, adaptive skill level, and matching skills, the average scores for these measures were well below those expected for same age peers. These results indicate that PECS is appropriate for use with children with clinically significant deficits in cognitive and/or adaptive abilities. Further, results suggest that even children who demonstrate more severe symptoms of autism and exhibit more challenging behavior can achieve higher phases of PECS.

背景与目的:尽管图片交流沟通系统(PECS)已被证明是一种有效的干预措施,可以教被诊断患有自闭症谱系障碍的人学习功能性沟通系统,但研究表明,不同的人和不同的研究在 PECS 的结果上存在差异。因此,本研究的目的是探讨可解释 PECS 结果差异并可能预测 PECS 结果的儿童特征和治疗变量:共有 22 名被诊断患有自闭症或相关发育障碍的儿童和青少年参加了 PECS 干预,他们在认知和适应能力的标准化测量中的得分都远远低于平均水平:结果:达到 PECS 高阶段(≥PECS 阶段 IIIb)的参与者与掌握 PECS 低阶段(≤PECS 阶段 IIIa)的参与者在总体、语言和非语言智力年龄、匹配能力和适应行为水平方面存在显著差异。刺激泛化也与 PECS 结果的显著差异有关。综合这些儿童特征和治疗变量,PECS 结果的预测准确性较高:本研究的结果表明,认知和适应技能水平相对较高的儿童更有可能达到较高的 PECS 阶段;此外,泛化训练的方法也起到了一定的作用。自闭症症状严重程度和家长对适应不良行为的评价等因素与 PECS 结果的显著差异无关。然而,还需要进行更多的研究:启示:更好地了解 PECS 结果的预测因素对于提供干预信息、为家庭提供更准确的结果预期以及指导 PECS 教学程序非常重要。尽管如果参与者的心理年龄、适应技能水平和匹配技能较高,则更有可能达到较高的 PECS 阶段,但这些测量指标的平均得分远低于同龄同伴的预期得分。这些结果表明,PECS 适合用于在认知和/或适应能力方面存在临床重大缺陷的儿童。此外,结果表明,即使自闭症症状更严重、行为更具挑战性的儿童也能达到较高的 PECS 阶段。
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引用次数: 0
Understanding the experiences and needs in autism education: A semi-structured interview among Chinese American parents of autistic children. 了解自闭症教育的经验和需求:对美籍华裔自闭症儿童父母的半结构化访谈。
Q1 EDUCATION, SPECIAL Pub Date : 2023-11-30 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231217191
Xihan Yang, Eileen T Crehan

Background and aims: The diversity of the autistic population seeking professional services and education in the United States has increased. As the diagnosis of autism increases among the Chinese American immigrant population, there is also an increasing need to learn about this population and provide appropriate intervention and education for this group. However, current education and intervention provided for autistic individuals tend to be culturally blind. Gaps were found in our understanding of the cultural context and its relationship with the education mechanisms among Chinese American autistic families. The current study intends to investigate how Chinese American parents perceive the education materials and intervention strategies received by their autistic children as well as their experiences and needs in the education process.

Method: Semi-structured interviews were conducted among 10 Chinese American parents (one father and nine mothers) online. They all had children who had a formal diagnosis of autism spectrum disorder and received some intervention or education. Thematic analysis was used to analyse the results.

Results: The study suggested that most Chinese American parents were satisfied with the current education materials and intervention strategies provided to their autistic children. Due to cultural-related stigma, parents differ in their perceptions of children's autism diagnosis and characteristics as well as their expectations of children's culturally sensitive education. A theoretical model was created to provide culture-centered interpretation of the interconnected relationship between their pre- and post-immigration contexts and parenting attitudes.

Conclusions: Culture plays a critical role in understanding Chinese American parents' experiences, needs, and expectations of culturally sensitive education for their autistic children. Interconnected relationships were found between contexts and parenting attitudes, which were largely influenced by cultural-related stigma.

Implications: Suggestions and implications were provided for institutions and professionals working with Chinese American families and children. It is critical for them to learn about the experiences, needs, and attitudes of Chinese American parents to provide Chinese American autistic children with more appropriate and culturally sensitive education.

背景和目的:在美国,寻求专业服务和教育的自闭症人群的多样性有所增加。随着美籍华人移民中自闭症诊断的增加,也越来越需要了解这一人群,并为这一群体提供适当的干预和教育。然而,目前为自闭症患者提供的教育和干预往往是文化盲的。我们对美籍华人自闭症家庭的文化背景及其与教育机制的关系的理解存在空白。本研究旨在探讨美籍华人父母对自闭症儿童所接受的教育材料和干预策略的看法,以及他们在教育过程中的经验和需求。方法:对10名美籍华人父母(1名父亲,9名母亲)进行半结构化在线访谈。他们的孩子都被正式诊断为自闭症谱系障碍,并接受了一些干预或教育。采用主题分析法对结果进行分析。结果:大多数美籍华人家长对目前自闭症儿童的教育材料和干预策略感到满意。由于与文化相关的污名,父母对儿童自闭症的诊断和特征的看法以及对儿童文化敏感教育的期望存在差异。建立了一个理论模型,以文化为中心解释他们移民前后的环境和养育态度之间的相互关系。结论:文化在理解美籍华人父母对自闭症儿童文化敏感教育的经历、需求和期望方面起着至关重要的作用。环境和养育态度之间存在相互联系,这在很大程度上受到与文化相关的污名的影响。启示:为从事美国华裔家庭和儿童工作的机构和专业人员提供建议和启示。了解美籍华人父母的经历、需求和态度,为美籍华人自闭症儿童提供更合适和文化敏感的教育是至关重要的。
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引用次数: 0
Influence of the COVID-19 pandemic on children with autism spectrum disorder and their mothers in Japan. 新冠肺炎疫情对日本自闭症谱系障碍儿童及其母亲的影响
Q1 EDUCATION, SPECIAL Pub Date : 2023-11-08 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231212347
Hiroshi Asaoka, Shoji Okamura, Chitose Baba, Natsumi Fujimoto, Yuka Ishizuka, Tomoya Takahashi

Background and aims: Research on the psychological impact of the coronavirus disease 2019 pandemic has highlighted its negative and positive effects on children with autism spectrum disorder and their families. However, little is known about the neutral effects that remain the same, even in particular circumstances, and how children with autism spectrum disorder and their parents perceive each other. We explored how children with autism spectrum disorder and their mothers perceived and experienced the pandemic in Japan.

Methods: A mixed-methods design was employed. Thirteen children with autism spectrum disorder and 12 mothers participated. Data were collected through online semi-structured interviews and analyzed using thematic analysis. Similarities and differences in perceptions were compared.

Results: The results revealed six broad themes and 27 categories. Regarding neutral effects, some mothers reported no substantial impact because there were no changes in their jobs or other dramatic life changes. In addition, some children were not affected because they had had no social contact before the pandemic or because their lives had not changed dramatically. Regarding the perceptions of children/mothers, most expressed that they/their children enjoyed spending time with their families. At home, mothers made various efforts to interact with their children. However, mothers and children differed in their perceptions, such as regarding the emergence of anxiety about conducting school events and the resolution of study-related concerns.

Conclusions: There were negative, neutral, and positive effects on both children with autism spectrum disorder and their mothers; specifically, they were striving to move forward to overcome the problems posed by the pandemic. Both parties tapped into their resilience by enhancing family interactions, such as cooking together or discussing children's interests.

Implications: These findings have important implications for developing more creative solutions to the challenges of coping and resilience in future crises.

背景与目的:关于2019冠状病毒病大流行对心理影响的研究强调了其对自闭症谱系障碍儿童及其家庭的负面和积极影响。然而,即使在特殊情况下,仍然保持不变的中性效应,以及患有自闭症谱系障碍的儿童和他们的父母如何看待彼此,我们所知甚少。我们探索了患有自闭症谱系障碍的儿童和他们的母亲如何感知和经历日本的大流行。方法:采用混合方法设计。13名患有自闭症谱系障碍的儿童和12名母亲参与了研究。通过在线半结构化访谈收集数据,并采用主题分析方法进行分析。比较了认知的异同。结果:结果揭示了六大主题和27个类别。至于中性影响,一些母亲报告说没有实质性的影响,因为她们的工作没有变化,生活也没有发生其他戏剧性的变化。此外,一些儿童没有受到影响,因为他们在大流行之前没有任何社会接触,或者他们的生活没有发生重大变化。关于孩子/母亲的看法,大多数人表示他们/他们的孩子喜欢与家人共度时光。在家里,母亲们做出各种努力与孩子互动。然而,母亲和孩子在他们的看法上存在差异,例如关于学校活动焦虑的出现和学习相关问题的解决。结论:对自闭症谱系障碍患儿及其母亲均存在消极、中性和积极的影响;具体来说,他们正在努力向前迈进,以克服这一流行病造成的问题。双方都通过加强家庭互动,比如一起做饭或讨论孩子的兴趣,来挖掘他们的弹性。启示:这些发现对于制定更具创造性的解决方案来应对未来危机的挑战和恢复力具有重要意义。
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引用次数: 0
Peer mediation in play settings for minimally verbal students with autism Spectrum disorder. 自闭症谱系障碍言语最少的学生在游戏环境中的同伴调解。
Q1 EDUCATION, SPECIAL Pub Date : 2023-10-19 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231204837
Gaëtan Briet, Gaïd Le Maner-Idrissi, Tanguy Seveno, Olivier Le Marec, Sandrine Le Sourn-Bissaoui

Background and aims: Peer-mediated interventions (PMIs) are effective strategies to foster socialization of children with autism spectrum disorder (ASD) in natural settings. However, research examining the efficacy of peer mediation for students with ASD who have the greatest cognitive and language impairments remains limited. Additionally, previous studies essentially targeted communicative abilities of participants. To address this gap, the present study evaluated the effects of a play-based PMI on three socio-communicative skills (play, social engagement and imitation) of minimally verbal students with ASD who also have a comorbidity of intellectual disability (ID).

Methods: Seven children with ASD attending ordinary school settings and 14 typically developing (TD) preschoolers participated. Seven single-sex groups were formed, and children played together during two 30 min weekly sessions. TD children were trained according to the principles of the integrated play group model. We used a multiple-baseline design across participants to measure the effects of the intervention on play skills, social engagement and motor imitation of students with ASD.

Results: Outcomes revealed an intervention effect for most of the participants, despite some variations across children. After the peer training, four children increased their duration of functional/symbolic play, six children improved their duration of interactive play and five children increased their rates of motor imitation. Concerning maintenance gains, inter-individual differences are also important.

Conclusions and implications: These findings suggest that a play-based PMI may be a feasible option for targeting inclusive education and improving socio-communicative skills of some minimally verbal students with ASD who also have an ID. However, variations across children invite further research to clarify how individual factors can moderate the effects of PMIs in children with ASD who are the most impaired.

背景和目的:同伴介导干预(PMIs)是促进自闭症谱系障碍(ASD)儿童在自然环境中社交的有效策略。然而,研究同伴调解对认知和语言障碍最严重的自闭症谱系障碍学生的疗效仍然有限。此外,先前的研究主要针对参与者的交际能力。为了解决这一差距,本研究评估了基于游戏的PMI对患有自闭症谱系障碍(ASD)的轻度言语障碍学生的三种社会交际技能(游戏、社交参与和模仿)的影响,这些学生也患有智力残疾(ID)共病。方法:7名就读于普通学校的ASD儿童和14名典型发育(TD)学龄前儿童参与了研究。组成了七个单性小组,孩子们在两个30岁的时候一起玩耍 每周至少一次。TD儿童按照综合游戏小组模式的原则进行训练。我们对参与者进行了多基线设计,以衡量干预对自闭症谱系障碍学生的游戏技能、社交参与和运动模仿的影响。结果:结果显示,尽管儿童之间存在一些差异,但大多数参与者都有干预效果。同伴训练后,四名儿童的功能/象征游戏持续时间增加,六名儿童的互动游戏持续时间提高,五名儿童的运动模仿率增加。关于维护收益,个体间的差异也很重要。结论和启示:这些发现表明,基于游戏的PMI可能是一个可行的选择,可以针对包容性教育,提高一些同样有ID的ASD最低语言水平学生的社会沟通技能。然而,儿童之间的差异需要进一步的研究来阐明个体因素如何调节自闭症谱系障碍儿童的PMIs影响,这些儿童是最受损的。
{"title":"Peer mediation in play settings for minimally verbal students with autism Spectrum disorder.","authors":"Gaëtan Briet,&nbsp;Gaïd Le Maner-Idrissi,&nbsp;Tanguy Seveno,&nbsp;Olivier Le Marec,&nbsp;Sandrine Le Sourn-Bissaoui","doi":"10.1177/23969415231204837","DOIUrl":"10.1177/23969415231204837","url":null,"abstract":"<p><strong>Background and aims: </strong>Peer-mediated interventions (PMIs) are effective strategies to foster socialization of children with autism spectrum disorder (ASD) in natural settings. However, research examining the efficacy of peer mediation for students with ASD who have the greatest cognitive and language impairments remains limited. Additionally, previous studies essentially targeted communicative abilities of participants. To address this gap, the present study evaluated the effects of a play-based PMI on three socio-communicative skills (play, social engagement and imitation) of minimally verbal students with ASD who also have a comorbidity of intellectual disability (ID).</p><p><strong>Methods: </strong>Seven children with ASD attending ordinary school settings and 14 typically developing (TD) preschoolers participated. Seven single-sex groups were formed, and children played together during two 30 min weekly sessions. TD children were trained according to the principles of the integrated play group model. We used a multiple-baseline design across participants to measure the effects of the intervention on play skills, social engagement and motor imitation of students with ASD.</p><p><strong>Results: </strong>Outcomes revealed an intervention effect for most of the participants, despite some variations across children. After the peer training, four children increased their duration of functional/symbolic play, six children improved their duration of interactive play and five children increased their rates of motor imitation. Concerning maintenance gains, inter-individual differences are also important.</p><p><strong>Conclusions and implications: </strong>These findings suggest that a play-based PMI may be a feasible option for targeting inclusive education and improving socio-communicative skills of some minimally verbal students with ASD who also have an ID. However, variations across children invite further research to clarify how individual factors can moderate the effects of PMIs in children with ASD who are the most impaired.</p>","PeriodicalId":36716,"journal":{"name":"Autism and Developmental Language Impairments","volume":"8 ","pages":"23969415231204837"},"PeriodicalIF":0.0,"publicationDate":"2023-10-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/ca/29/10.1177_23969415231204837.PMC10588431.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49692728","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"He's shouting so loud but nobody's hearing him": A multi-informant study of autistic pupils' experiences of school non-attendance and exclusion. “他喊得很大声,但没有人听到”:一项针对自闭症学生不上学和被排斥经历的多信息研究。
IF 2.5 Q1 EDUCATION, SPECIAL Pub Date : 2023-10-18 eCollection Date: 2023-01-01 DOI: 10.1177/23969415231207816
Laura Gray, Vivian Hill, Elizabeth Pellicano

Background and aims: Children and young people on the autism spectrum frequently report a range of negative educational experiences and face disproportionally high rates of school non-attendance, including school avoidance and permanent exclusion, which can have a significant impact on their well-being as well as educational and broader life outcomes. To date, few studies have examined the full range of proximal (child, parent/family, school levels) and distal (community and society levels) barriers to ensuring the school attendance and the inclusion of autistic pupils. The current study sought to do just that by examining autistic young peoples' school non-attendance and exclusion experiences from the perspectives of multiple informants.

Methods: We recruited 12 autistic pupils, who had previously experienced school avoidance and/or exclusion, from one local authority in England, United Kingdom. We conducted semi-structured interviews with the young people themselves, ten of their parents, eight of their current teachers and nine local authority professionals, including six educational psychologists and three specialist autism teachers. We analyzed interviewees' responses using reflexive thematic analysis.

Results: Interviewees gave overwhelmingly negative accounts of autistic pupils' school non-attendance and exclusion experiences. Our analysis identified a range of school-related factors they felt led to, or exacerbated, negative experiences in their former mainstream schools, and which ultimately led to their or their children's school non-attendance. It also went further to identify distal factors, including fragmented educational experiences, parents "fighting" against a complex bureaucratic system to secure appropriate education for their children, and limited professional involvement.

Conclusions: Our findings emphasize the importance of examining the broader context in which autistic pupils are embedded and demonstrate that such pupils are able to successfully attend-and even enjoy-school when they receive the appropriate care and support.

Implications: Schools and local authority professionals should seek to work in partnership with parents and autistic pupils to secure the necessary support for their inclusion in mainstream education. Government policy should support the provision of sufficient local authority professionals to adopt a more proactive approach to mitigate autistic pupils' avoidance of and exclusion from school.

背景和目的:自闭症谱系的儿童和年轻人经常报告一系列负面的教育经历,并面临着不成比例的高失学率,包括逃学和永久排斥,这可能对他们的幸福感以及教育和更广泛的生活结果产生重大影响。迄今为止,很少有研究对确保自闭症学生入学和融入社会的近端(儿童、家长/家庭、学校层面)和远端(社区和社会层面)障碍进行全面调查。目前的研究试图通过从多个信息来源的角度调查自闭症年轻人的失学和排斥经历来做到这一点。方法:我们从英国英格兰的一个地方当局招募了12名自闭症学生,他们以前曾经历过学校回避和/或排斥。我们对这些年轻人自己、他们的十位父母、他们现在的八位老师和九位地方当局的专业人士进行了半结构化的采访,其中包括六位教育心理学家和三位自闭症专家老师。我们使用反射性主题分析法分析了受访者的回答。结果:受访者对自闭症学生的旷课和被排斥经历给出了绝大多数负面的描述。我们的分析确定了一系列与学校相关的因素,他们认为这些因素导致或加剧了他们在前主流学校的负面经历,并最终导致他们或他们的孩子不上学。它还进一步确定了远端因素,包括分散的教育经历、父母为确保孩子接受适当教育而与复杂的官僚系统“斗争”,以及有限的专业参与。结论:我们的研究结果强调了研究自闭症学生所处的更广泛背景的重要性,并证明了当这些学生得到适当的照顾和支持时,他们能够成功上学,甚至享受学校的乐趣。影响:学校和地方当局的专业人员应寻求与家长和自闭症学生合作,确保他们融入主流教育所需的支持。政府政策应支持提供足够的地方当局专业人员,以采取更积极主动的方法,减轻自闭症学生逃避和被排斥在学校之外的情况。
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引用次数: 0
‘It's really important to be collaborating’: Experiences of participatory research for Chinese and Vietnamese parents of autistic children “合作真的很重要”:中国和越南自闭症儿童父母的参与式研究经验
Q1 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1177/23969415231210482
Jodie Smith, Aspasia Stacey Rabba, Poulomee Datta, Emma Dresens, Rena Wang, Lin Cong, Ngoc Dang, Gabrielle Hall, Melanie Heyworth, Wenn Lawson, Patricia Lee, Rozanna Lilley, Emily Ma, Hau T T Nguyen, Kim-Van Nguyen, Phuc Nguyen, Chong Tze Yeow, Elizabeth Pellicano
Background and aims Participatory research involves academic partners working together with the community that is affected by research to make decisions about that research. Such approaches often result in research that is more respectful of, and responsive to, community preferences – and is vital in the context of autism research with culturally and linguistically diverse (CALD) communities. Whilst participatory approaches are becoming more commonplace within CALD autism research, no studies have explored the experiences of being involved in autism research from the perspectives of CALD community partners over the course of a study. This paper intended to address this gap by reporting on the experiences of CALD parents of autistic children who were community partners in a 1-year Australian research project exploring home–school partnerships for CALD parents of autistic children. We aimed to: (1) report on how parents’ involvement in the research process shaped the home–school partnerships study over time and (2) understand their experiences of being community partners on the home–school partnerships project. Methods Using key principles of participatory approaches, we established Chinese and Vietnamese parent advisory groups to contribute to a project exploring home–school partnerships for parents of autistic children from CALD backgrounds in Australia. Advisory groups included parents of autistic children from Chinese/Vietnamese backgrounds, as well as interpreters, professionals and researchers. We documented how parents’ participation as community partners shaped the home–school partnerships study over the course of the project. We also elicited parents’ own views and experiences of being community partners through informal, open-ended questions at the beginning and end of the study. Results We found that parents’ input fundamentally shaped the broader home–school partnership study, from meaningful, accurate translation of interview schedules through to making decisions regarding community-specific recommendations and dissemination plans. Parents themselves reported being keen to collaborate and to hear and share opinions for the purpose of the home–school partnership study – although they noted how emotionally difficult sharing their stories could be. While they initially had some concerns about combining being involved as a community partner with their existing responsibilities, ultimately, parents were surprised by the scope of the home–school partnership study and their level of involvement as community partners. Through hearing others’ stories and sharing their own in advisory group meetings, parents reported ancillary benefits of their involvement, including increased self-advocacy and well-being. Conclusions These findings show how research that is conducted in partnership with diverse members of the autism community has the capacity to improve the quality of the research and benefit community partners. Implications This study clearly
背景和目的参与式研究涉及学术合作伙伴与受研究影响的社区共同努力,对该研究做出决策。这种方法往往导致研究更加尊重和响应社区偏好,这在文化和语言多样化(CALD)社区的自闭症研究背景下至关重要。虽然参与式方法在CALD自闭症研究中变得越来越普遍,但没有研究在研究过程中从CALD社区合作伙伴的角度探讨参与自闭症研究的经验。本文旨在通过报道自闭症儿童的CALD父母的经历来解决这一差距,这些父母是澳大利亚一个为期一年的研究项目的社区合作伙伴,探索自闭症儿童的CALD父母的家-学校合作关系。我们的目的是:(1)报告父母在研究过程中的参与是如何影响家校合作研究的;(2)了解他们作为家校合作项目社区合作伙伴的经历。方法采用参与式方法的关键原则,我们建立了中国和越南的家长咨询小组,为澳大利亚CALD背景的自闭症儿童的家长探索家校合作伙伴关系的项目做出贡献。咨询小组包括来自中国/越南背景的自闭症儿童的父母,以及口译员、专业人员和研究人员。我们记录了在整个项目过程中,家长作为社区伙伴的参与是如何影响家校合作研究的。我们还在研究的开始和结束时通过非正式的、开放式的问题引出了家长自己对社区合作伙伴的看法和经历。结果我们发现,从有意义的、准确的访谈时间表翻译到针对社区具体建议和传播计划的决策,家长的投入从根本上塑造了更广泛的家校合作研究。家长们自己报告说,为了家校合作研究的目的,他们渴望合作,倾听和分享意见——尽管他们注意到分享他们的故事在情感上是多么困难。虽然他们最初对作为社区伙伴参与到他们现有的责任中有一些担忧,但最终,家长们对家庭-学校伙伴关系研究的范围和他们作为社区伙伴的参与程度感到惊讶。通过倾听别人的故事,并在咨询小组会议上分享自己的故事,家长们报告了他们参与的附带好处,包括增强了自我宣传和幸福感。这些发现表明,与自闭症社区的不同成员合作进行的研究如何能够提高研究质量并使社区合作伙伴受益。本研究清楚地记录了CALD社区参与式方法的好处和潜在挑战。这些发现向研究人员和资助者强调了在预算中包括额外时间和资金的重要性,以便进行有意义的研究,尊重和响应社区。
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引用次数: 0
“I’m able to function better when I know there's a beginning and an end time”: Autistic adolescents’ experiences of lockdowns during the COVID-19 pandemic “当我知道有开始和结束的时间时,我就能更好地工作”:自闭症青少年在COVID-19大流行期间的封锁经历
Q1 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1177/23969415231159552
Lorna G. Hamilton, L. Kelly, S. Mesa
Survey research indicates that autistic children and young people experienced high levels of anxiety and isolation during lockdowns in response to the coronavirus disease 2019 (COVID-19) pandemic. Meanwhile, qualitative studies suggest that there may have been some benefits in the switch to home learning for this population. However, the majority of evidence to date comes from parent reports; the current study aimed to triangulate the perspectives of autistic youth and their parents in order to more fully understand the impact of periods of lockdown on education, relationships, and wellbeing. Thirteen semistructured interviews were conducted (six with adolescents, seven with parents) to explore the experiences of a group of autistic youth aged 13–14 years (Year 9 of mainstream education in England) during a period of intermittent lockdown. Data were analysed using reflexive thematic analysis. Two broad themes capturing commonality and diversity in the adolescents’ experiences of lockdown were developed. (1) “Different stress, not less stress” encapsulates the finding that, despite the enforced removal from the school environment providing short-term relief, new stressors contributed to consistently high levels of anxiety for the young people throughout lockdown periods. Stressors included managing home-school within the family unit, navigating time without boundaries, and anxiety about the virus. (2) “A shrunken world” reflects the heightened impact of losing access to meaningful social relationships, extracurricular pursuits, and health-promoting activities for autistic youth. The early stages of the global response to the COVID-19 pandemic caused serious disruption to education for many children and young people globally,;our findings provide further evidence that the impact was particularly salient for autistic youth in terms of social isolation, lost learning, and heightened anxiety. These findings underscore the necessity of long-term support for the education, social needs, and mental health of autistic young people in the aftermath of lockdowns in response to COVID-19.
调查研究表明,在应对2019年冠状病毒病(COVID-19)大流行的封锁期间,自闭症儿童和年轻人经历了高度的焦虑和孤立。与此同时,定性研究表明,对这一人群来说,转向在家学习可能有一些好处。然而,迄今为止,大多数证据来自父母的报告;目前的研究旨在对自闭症青少年及其父母的观点进行三角测量,以便更全面地了解禁闭期对教育、人际关系和幸福感的影响。进行了13次半结构化访谈(6次与青少年,7次与父母),以探索一组13-14岁(英国主流教育9年级)的自闭症青少年在间歇性封锁期间的经历。数据分析采用反身性主题分析。制定了两个广泛的主题,反映了青少年禁闭经历的共性和多样性。(1)“不同的压力,而不是更少的压力”概括了这一发现,即尽管强制离开学校环境提供了短期缓解,但新的压力源导致年轻人在整个封锁期间一直处于高度焦虑状态。压力源包括在家庭单位内管理家庭学校,没有边界的时间安排,以及对病毒的焦虑。(2)“萎缩的世界”反映了自闭症青少年失去有意义的社会关系、课外活动和促进健康活动的机会所带来的更大影响。全球应对COVID-19大流行的早期阶段对全球许多儿童和年轻人的教育造成了严重干扰。我们的研究结果进一步证明,在社会孤立、学习能力丧失和焦虑加剧方面,自闭症青年受到的影响尤为突出。这些发现强调了在为应对COVID-19而实施封锁之后,为自闭症年轻人的教育、社会需求和心理健康提供长期支持的必要性。
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引用次数: 1
期刊
Autism and Developmental Language Impairments
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