Abstract:The article traces the role that desire plays within Marni Jackson’s Pain: The Science and Culture of Why We Hurt (2002) and Melanie Thernstrom’s (2010) The Pain Chronicles: Cures, Myths, Mysteries, Prayers, Diaries, Brain Scans, Healing, and the Science of Suffering. The argument is that the specific ways stories present pain as a problem and enact its solutions offers crucial insights into the biopolitics shaping cultural understandings of pain. Approaching Thernstrom and Jackson’s texts as case studies, the article reveals how each text offers descriptions of chronic pain as perversely desirable and uses this desirability to explain pain’s chronic presence. The article then maps how the texts integrate the curative power of heteronormativity with biomedical authority to effect solutions to the problem pain poses. The contention is that Thernstrom’s and Jackson’s use of desire reinforces notions of personal responsibility for pain’s persistence, perpetuates a paternalistic approach to pain, and obscures structural inequalities within understandings of and treatment for chronic pain. A crip and queer lens that reads this desire critically, then, unveils the gendered biopolitics of pain at work within the cultural landscape that the narratives reflect.
{"title":"Good Doctors, Bad Lovers, and the Desire for Biomedical Authority in The Pain Chronicles and Pain: The Science and Culture of Why We Hurt","authors":"Alyson Patsavas","doi":"10.3828/jlcds.2023.15","DOIUrl":"https://doi.org/10.3828/jlcds.2023.15","url":null,"abstract":"Abstract:The article traces the role that desire plays within Marni Jackson’s Pain: The Science and Culture of Why We Hurt (2002) and Melanie Thernstrom’s (2010) The Pain Chronicles: Cures, Myths, Mysteries, Prayers, Diaries, Brain Scans, Healing, and the Science of Suffering. The argument is that the specific ways stories present pain as a problem and enact its solutions offers crucial insights into the biopolitics shaping cultural understandings of pain. Approaching Thernstrom and Jackson’s texts as case studies, the article reveals how each text offers descriptions of chronic pain as perversely desirable and uses this desirability to explain pain’s chronic presence. The article then maps how the texts integrate the curative power of heteronormativity with biomedical authority to effect solutions to the problem pain poses. The contention is that Thernstrom’s and Jackson’s use of desire reinforces notions of personal responsibility for pain’s persistence, perpetuates a paternalistic approach to pain, and obscures structural inequalities within understandings of and treatment for chronic pain. A crip and queer lens that reads this desire critically, then, unveils the gendered biopolitics of pain at work within the cultural landscape that the narratives reflect.","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"199 - 215"},"PeriodicalIF":0.0,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47054418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abstract:Despite the historical absence, there has been a small but significant uptick in recent years in cinema about women with chronic and long term illness and/or pain. A prominent theme which unites this small corpus is that of time. Characters talk of losing the time of one’s life, of being lost in time, or of feelings of disjunction in relation to normative temporal structures. The article explores how narrative film about women with chronic illness and/or pain navigates the representation of bodies which may not adhere to normative, heavily gendered life, and cinematic rhythms and trajectories. Drawing on critical disability studies and queer feminist theories of temporality, the work demonstrates how the temporal and cinematic challenges posed by the figure of the chronically ill woman often results in the decentring of this subject and the foregrounding of male, able-bodied characters. In contrast, it is seen how documentary cinema by disabled women filmmakers recovers the chronically ill female body from normative temporal, cinematic regimes and offers alternative modes of representing a life based on the temporal and ontological experience of the chronically ill body.
{"title":"“I Know That Nothing Lasts for Ever. I Just Thought I Would Have More Time”: Representations of Time in Film about Chronically Ill Women","authors":"T. Heath","doi":"10.3828/jlcds.2023.14","DOIUrl":"https://doi.org/10.3828/jlcds.2023.14","url":null,"abstract":"Abstract:Despite the historical absence, there has been a small but significant uptick in recent years in cinema about women with chronic and long term illness and/or pain. A prominent theme which unites this small corpus is that of time. Characters talk of losing the time of one’s life, of being lost in time, or of feelings of disjunction in relation to normative temporal structures. The article explores how narrative film about women with chronic illness and/or pain navigates the representation of bodies which may not adhere to normative, heavily gendered life, and cinematic rhythms and trajectories. Drawing on critical disability studies and queer feminist theories of temporality, the work demonstrates how the temporal and cinematic challenges posed by the figure of the chronically ill woman often results in the decentring of this subject and the foregrounding of male, able-bodied characters. In contrast, it is seen how documentary cinema by disabled women filmmakers recovers the chronically ill female body from normative temporal, cinematic regimes and offers alternative modes of representing a life based on the temporal and ontological experience of the chronically ill body.","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"179 - 197"},"PeriodicalIF":0.0,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48969938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Decade of Disability Studies","authors":"Kay Ross","doi":"10.3828/jlcds.2023.19","DOIUrl":"https://doi.org/10.3828/jlcds.2023.19","url":null,"abstract":"","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"258 - 261"},"PeriodicalIF":0.0,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49404354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Extraordinary Bodies in Octavia E. Butler's Kindred and Fledgling","authors":"Sreelakshmy Mohan","doi":"10.3828/jlcds.2023.8","DOIUrl":"https://doi.org/10.3828/jlcds.2023.8","url":null,"abstract":"","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"117 - 121"},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42175138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abstract:This article examines the 2015 revival of Spring Awakening on Broadway by director Michael Arden, which restaged the musical for both a deaf and hearing audience. The performance of Deaf identity in the musical is read through Tobin Siebers's concept the "disability masquerade," whereby the "overvisibility" of ASL reclaims Deaf identity, as well as through elements of Deaf Gain, namely the bilingual structure of the musical and what can be learned from the Deaf experience of music. The integration of ASL into the choreography amplifies the kinesthetic quality of the performance and engages the audience physically, producing what Matthew Reason and Dee Reynolds have termed "kinesthetic empathy," while the bilingual structure accentuates the underlying themes of interpersonal communication. The combination of the affirmative disability masquerade with aspects of Deaf Gain produces a performance that reimagines bilingual access and inclusive aesthetics, and confronts its hearing audience with their own kinesthetic relationship to the world, communication, and music.
{"title":"Performing Deaf Identity and Deaf Gain in Michael Arden's 2015 Spring Awakening","authors":"C. Tovey","doi":"10.3828/jlcds.2023.5","DOIUrl":"https://doi.org/10.3828/jlcds.2023.5","url":null,"abstract":"Abstract:This article examines the 2015 revival of Spring Awakening on Broadway by director Michael Arden, which restaged the musical for both a deaf and hearing audience. The performance of Deaf identity in the musical is read through Tobin Siebers's concept the \"disability masquerade,\" whereby the \"overvisibility\" of ASL reclaims Deaf identity, as well as through elements of Deaf Gain, namely the bilingual structure of the musical and what can be learned from the Deaf experience of music. The integration of ASL into the choreography amplifies the kinesthetic quality of the performance and engages the audience physically, producing what Matthew Reason and Dee Reynolds have termed \"kinesthetic empathy,\" while the bilingual structure accentuates the underlying themes of interpersonal communication. The combination of the affirmative disability masquerade with aspects of Deaf Gain produces a performance that reimagines bilingual access and inclusive aesthetics, and confronts its hearing audience with their own kinesthetic relationship to the world, communication, and music.","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"77 - 93"},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46031336","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abstract:The article explores the disabled female gaze through the titular character in Hans Christian Andersen's fairy tale "The Little Mermaid" (1837), arguing that sight is a strategy of empowerment that challenges the able-bodied male gaze. Andersen's fairy tale—and its accompanying visual forms, including sculpture and illustration—is placed in dialogue with Literary Disability Studies, examining how the little mermaid is depicted as an objectified spectacle. Throughout the narrative, she contends with gendered constraints and bodily impairment as a result of her transition from mermaid to human. However, the article also suggests that the little mermaid's gaze is an implicit, interrogative device for female emancipation because she challenges the able-bodied male gaze. Existing scholarship has considered gender and disability in "The Little Mermaid," but the gaze is yet to be addressed in relation to these arguments. Examining the intersections between femininity, disability, and the gaze disrupts and reimagines critical traditions of the gaze, and Andersen's representation of the little mermaid character does in part uphold feminine and ableist norms. However, this representation also offers a tantalising glimpse into how new approaches toward the female disabled gaze (in contrast to the highly theorized male gaze) can be derived from nineteenth-century children's literature.
{"title":"\"My Dear Mute Foundling with Those Telling Eyes of Yours\": Female Agency, Visual Forms, and the Disabled Gaze in \"The Little Mermaid\"","authors":"H. Helm","doi":"10.3828/jlcds.2023.2","DOIUrl":"https://doi.org/10.3828/jlcds.2023.2","url":null,"abstract":"Abstract:The article explores the disabled female gaze through the titular character in Hans Christian Andersen's fairy tale \"The Little Mermaid\" (1837), arguing that sight is a strategy of empowerment that challenges the able-bodied male gaze. Andersen's fairy tale—and its accompanying visual forms, including sculpture and illustration—is placed in dialogue with Literary Disability Studies, examining how the little mermaid is depicted as an objectified spectacle. Throughout the narrative, she contends with gendered constraints and bodily impairment as a result of her transition from mermaid to human. However, the article also suggests that the little mermaid's gaze is an implicit, interrogative device for female emancipation because she challenges the able-bodied male gaze. Existing scholarship has considered gender and disability in \"The Little Mermaid,\" but the gaze is yet to be addressed in relation to these arguments. Examining the intersections between femininity, disability, and the gaze disrupts and reimagines critical traditions of the gaze, and Andersen's representation of the little mermaid character does in part uphold feminine and ableist norms. However, this representation also offers a tantalising glimpse into how new approaches toward the female disabled gaze (in contrast to the highly theorized male gaze) can be derived from nineteenth-century children's literature.","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"23 - 40"},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42517746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abstract:The article adds nuances to "crip modernisms" and the terrain of "cripistemology" by scrutinizing the negative representations of disability/disfigurement in Virginia Woolf's The Voyage Out. While critical attention has been devoted to Woolf's eugenic modernism, criticism tends to either undermine or over-interpret her eugenic sentiments as prostheses of her aestheticism. Alternatively, the article confronts Woolf's eugenicist attitude where she directly but precariously engages with a critical disability discourse. The argument is that Woolf subverts her own eugenic and ableist rhetoric via a narrative shift that occurs in chapter 25. As pain becomes the focalizer of the chapter, Woolf deflects pain onto affective imperfections that do not quite fit into common documentations of disability. Disassociating pain from imperfections of bodyminds, Woolf suggests that the pain directed towards disability/disfigurement betokens a variation of what Anna Mollow calls an "undocumented disability" that medical narratives fail to diagnose (185). But rather than being "invisible," Woolf's work elucidates that some undocumented disabilities are perhaps "too visible." Debunking pain as a proxy of the failure to understand others, Woolf suggests that undocumented disabilities hide under the plain sight of the normal business of living.
{"title":"Survival of the Unfit: Virginia Woolf's Crip and Eugenic Modernisms in The Voyage Out","authors":"C. Leung","doi":"10.3828/jlcds.2023.3","DOIUrl":"https://doi.org/10.3828/jlcds.2023.3","url":null,"abstract":"Abstract:The article adds nuances to \"crip modernisms\" and the terrain of \"cripistemology\" by scrutinizing the negative representations of disability/disfigurement in Virginia Woolf's The Voyage Out. While critical attention has been devoted to Woolf's eugenic modernism, criticism tends to either undermine or over-interpret her eugenic sentiments as prostheses of her aestheticism. Alternatively, the article confronts Woolf's eugenicist attitude where she directly but precariously engages with a critical disability discourse. The argument is that Woolf subverts her own eugenic and ableist rhetoric via a narrative shift that occurs in chapter 25. As pain becomes the focalizer of the chapter, Woolf deflects pain onto affective imperfections that do not quite fit into common documentations of disability. Disassociating pain from imperfections of bodyminds, Woolf suggests that the pain directed towards disability/disfigurement betokens a variation of what Anna Mollow calls an \"undocumented disability\" that medical narratives fail to diagnose (185). But rather than being \"invisible,\" Woolf's work elucidates that some undocumented disabilities are perhaps \"too visible.\" Debunking pain as a proxy of the failure to understand others, Woolf suggests that undocumented disabilities hide under the plain sight of the normal business of living.","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"4 1","pages":"41 - 57"},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82869279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Medical Humanities and the Fantastic: Neurodiversity and Disability, University of Glasgow (Online)","authors":"Christina E. Stimson","doi":"10.3828/jlcds.2023.7","DOIUrl":"https://doi.org/10.3828/jlcds.2023.7","url":null,"abstract":"","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"111 - 116"},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42996597","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"About the Contributors","authors":"","doi":"10.3828/jlcds.2023.10","DOIUrl":"https://doi.org/10.3828/jlcds.2023.10","url":null,"abstract":"","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"115 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136252171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abstract:The article examines how resonance has anchored deaf self-representation in the eighteenth century and the present. Through an interdisciplinary framework that foregrounds Deaf and sound studies in the context of the eighteenth century, the article conducts a close reading of writing from two of the first published deaf authors, Pierre Desloges and Charles Shirreff. The argument is that synchronous vibration figures centrally into their sentimental self-fashioning at a time when organized deaf education was first being implemented in Europe. The article also reveals personal stakes in examining resonance alongside John Bulwer's seventeenth-century multisensory model of perception in Philocophus: or the Deafe and Dumbe Man's Friend (1648). Along the way, the article introduces the term deaf resonance to theorize the transhistorical, transformative possibilities that inhere in deaf sociability, and to affirm the multimodal character of sound and communication in deaf self-representation.
摘要：本文探讨了共鸣是如何在十八世纪和现在锚定聋人自我表征的。本文通过一个跨学科框架，将聋人和声音研究置于18世纪的背景下，仔细阅读了两位最早发表的聋人作家Pierre Desloges和Charles Shirreff的作品。争论的焦点是，在欧洲首次实施有组织的聋人教育时，同步振动集中在他们感性的自我塑造中。这篇文章还揭示了在《Philocophus:or The Deafe and Dumbe Man’s Friend》（1648）中，与约翰·布尔沃（John Bulwer）17世纪的多感官感知模型一起研究共鸣的个人利害关系。在此过程中，文章引入了“聋人共鸣”一词，以理论化聋人社交中存在的跨历史、变革的可能性，并肯定聋人自我表征中声音和交流的多模态特征。
{"title":"Feeling for Deaf Resonance in the Eighteenth Century and Beyond","authors":"J. S. Farr","doi":"10.3828/jlcds.2023.1","DOIUrl":"https://doi.org/10.3828/jlcds.2023.1","url":null,"abstract":"Abstract:The article examines how resonance has anchored deaf self-representation in the eighteenth century and the present. Through an interdisciplinary framework that foregrounds Deaf and sound studies in the context of the eighteenth century, the article conducts a close reading of writing from two of the first published deaf authors, Pierre Desloges and Charles Shirreff. The argument is that synchronous vibration figures centrally into their sentimental self-fashioning at a time when organized deaf education was first being implemented in Europe. The article also reveals personal stakes in examining resonance alongside John Bulwer's seventeenth-century multisensory model of perception in Philocophus: or the Deafe and Dumbe Man's Friend (1648). Along the way, the article introduces the term deaf resonance to theorize the transhistorical, transformative possibilities that inhere in deaf sociability, and to affirm the multimodal character of sound and communication in deaf self-representation.","PeriodicalId":37229,"journal":{"name":"Journal of Literary and Cultural Disability Studies","volume":"17 1","pages":"1 - 21"},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43714938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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