Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.06.008
Chunfeng Wang , Yong Wu , Rong Hu
Objectives
This study aimed to generate a theoretical framework based on empirical data to explain the behavioral patterns closely related to young and middle-aged patients with lymphoma throughout the disease.
Methods
This study followed the classic grounded theory methodology, involving procedures such as theoretical sampling, substantive coding, theoretical coding, constant comparison, and memo writing and sorting. Multiple data types were used based on the principle of “all is data,” including 34 participants providing interview data along with observation notes and 40 relevant secondary texts from the “Lymphoma House” network platform and the “Lymphoma House 086” public account. Two autobiographical books written by lymphoma patients were also selected as data resources. Data collection and analysis were conducted in an iterative process until theoretical saturation was reached. The COREQ checklist was followed to report this study.
Results
The main concern of middle-aged and young patients with lymphoma was identified as restoring normality, while managing uncertainty was the main behavioral pattern for restoring normality. Uncertainty consists of two interrelated types: inherent uncertainty of illness and perceived uncertainty of patients. Four strategies are used to manage uncertainty: reconstructing certainty, adaptive coping, defensive buffering, and compensatory changing. Managing uncertainty is influenced by disease characteristics and perceptions, social resources, and cultural concepts. The consequence of managing uncertainty is reaching a new normality.
Conclusions
Pervasive uncertainty significantly affects the daily lives of young and middle-aged patients with lymphoma. Consequently, strategies for managing disease-related uncertainty to sustain normality are commonly observed in this population. This theoretical framework for addressing uncertainty can serve as a foundation for understanding and developing tailored interventions to manage uncertainty. Future research should focus on managing uncertainty to help patients restore normality.
{"title":"Managing uncertainty: A grounded theory study of restoring normality in young and middle-aged patients with lymphoma","authors":"Chunfeng Wang , Yong Wu , Rong Hu","doi":"10.1016/j.ijnss.2025.06.008","DOIUrl":"10.1016/j.ijnss.2025.06.008","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to generate a theoretical framework based on empirical data to explain the behavioral patterns closely related to young and middle-aged patients with lymphoma throughout the disease.</div></div><div><h3>Methods</h3><div>This study followed the classic grounded theory methodology, involving procedures such as theoretical sampling, substantive coding, theoretical coding, constant comparison, and memo writing and sorting. Multiple data types were used based on the principle of “all is data,” including 34 participants providing interview data along with observation notes and 40 relevant secondary texts from the “Lymphoma House” network platform and the “Lymphoma House 086” public account. Two autobiographical books written by lymphoma patients were also selected as data resources. Data collection and analysis were conducted in an iterative process until theoretical saturation was reached. The COREQ checklist was followed to report this study.</div></div><div><h3>Results</h3><div>The main concern of middle-aged and young patients with lymphoma was identified as restoring normality, while managing uncertainty was the main behavioral pattern for restoring normality. Uncertainty consists of two interrelated types: inherent uncertainty of illness and perceived uncertainty of patients. Four strategies are used to manage uncertainty: reconstructing certainty, adaptive coping, defensive buffering, and compensatory changing. Managing uncertainty is influenced by disease characteristics and perceptions, social resources, and cultural concepts. The consequence of managing uncertainty is reaching a new normality.</div></div><div><h3>Conclusions</h3><div>Pervasive uncertainty significantly affects the daily lives of young and middle-aged patients with lymphoma. Consequently, strategies for managing disease-related uncertainty to sustain normality are commonly observed in this population. This theoretical framework for addressing uncertainty can serve as a foundation for understanding and developing tailored interventions to manage uncertainty. Future research should focus on managing uncertainty to help patients restore normality.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 393-400"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144723609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.06.001
Yohanes Andy Rias , Ratsiri Thato , Margareta Teli , Ferry Efendi
Objectives
This study aimed to determine the effectiveness of an individual and family self-management (IFSM) education program on triglyceride-glucose (TyG) index, self-management, and diabetes distress among adults with uncontrolled diabetes mellitus type 2 (T2DM).
Methods
A multicentre randomized controlled trial was employed. The study included 68 dyads (adults with uncontrolled T2DM and one family member) that were randomly allocated to the intervention (n = 34) and control groups (n = 34) from March to September 2024. Participants in the intervention group received an 8-week IFSM education program, whereas those in the control group received standard routine care. An automated hematology analyzer XP-100 was used to evaluate triglyceride and fasting blood glucose levels. The Diabetes Distress Scale and Diabetes Self-Management Questionnaire were used to measure diabetes distress and self-management, respectively.
Results
A total of 67 participants completed the intervention. The generalized estimating equation demonstrated a significant interaction between group and time. The IFSM education intervention group had a higher diabetes self-management (β = 16.68; 95 %CI = 15.23, 18.09; P < 0.001), lower diabetes distress (β = −30.74; 95 %CI = −32.57, −28.90; P < 0.001), and lower TyG index (β = −1.97; 95 %CI = −2.41, −1.53; P < 0.001) than the control group.
Conclusions
The findings documented the capacity of IFSM education to reduce TyG and diabetes distress, which could potentially escalate diabetes self-management among individuals with T2DM.
目的本研究旨在确定个人和家庭自我管理（IFSM）教育计划对未控制的2型糖尿病（T2DM）成人甘油三酯-葡萄糖（TyG）指数、自我管理和糖尿病困扰的有效性。方法采用多中心随机对照试验。该研究包括68对夫妇（未控制T2DM的成年人和一名家庭成员），于2024年3月至9月随机分配到干预组（n = 34）和对照组（n = 34）。干预组接受为期8周的IFSM教育计划，而对照组接受标准的常规护理。使用全自动血液学分析仪XP-100评估甘油三酯和空腹血糖水平。采用糖尿病困扰量表和糖尿病自我管理问卷分别测量糖尿病困扰和自我管理。结果共有67名参与者完成了干预。广义估计方程表明群体与时间之间存在显著的交互作用。IFSM教育干预组糖尿病自我管理水平较高(β = 16.68；95% ci = 15.23, 18.09；P & lt;0.001)，较低的糖尿病窘迫(β = - 30.74；95% ci =−32.57,−28.90；P & lt;0.001)， TyG指数较低(β = - 1.97；95% ci =−2.41,−1.53；P & lt;0.001)，高于对照组。结论：研究结果证明了IFSM教育能够减少TyG和糖尿病困扰，这可能会提高T2DM患者的糖尿病自我管理水平。
{"title":"Effectiveness of a theory-based tailored individual and family self-management education in adults with uncontrolled diabetes: A randomized controlled trial","authors":"Yohanes Andy Rias , Ratsiri Thato , Margareta Teli , Ferry Efendi","doi":"10.1016/j.ijnss.2025.06.001","DOIUrl":"10.1016/j.ijnss.2025.06.001","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to determine the effectiveness of an individual and family self-management (IFSM) education program on triglyceride-glucose (TyG) index, self-management, and diabetes distress among adults with uncontrolled diabetes mellitus type 2 (T2DM).</div></div><div><h3>Methods</h3><div>A multicentre randomized controlled trial was employed. The study included 68 dyads (adults with uncontrolled T2DM and one family member) that were randomly allocated to the intervention (<em>n</em> = 34) and control groups (<em>n</em> = 34) from March to September 2024. Participants in the intervention group received an 8-week IFSM education program, whereas those in the control group received standard routine care. An automated hematology analyzer XP-100 was used to evaluate triglyceride and fasting blood glucose levels. The Diabetes Distress Scale and Diabetes Self-Management Questionnaire were used to measure diabetes distress and self-management, respectively.</div></div><div><h3>Results</h3><div>A total of 67 participants completed the intervention. The generalized estimating equation demonstrated a significant interaction between group and time. The IFSM education intervention group had a higher diabetes self-management (<em>β</em> = 16.68; 95 %<em>CI =</em> 15.23, 18.09; <em>P</em> < 0.001), lower diabetes distress (<em>β</em> = −30.74; 95 %<em>CI</em> = −32.57, −28.90; <em>P</em> < 0.001), and lower TyG index (<em>β</em> = −1.97; 95 %<em>CI</em> = −2.41, −1.53; <em>P</em> < 0.001) than the control group.</div></div><div><h3>Conclusions</h3><div>The findings documented the capacity of IFSM education to reduce TyG and diabetes distress, which could potentially escalate diabetes self-management among individuals with T2DM.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 320-327"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144723595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.06.009
Yuanyuan Li , Jinhui Tian , Luying Cheng , Jing Ni , Lin Li , Jiaoyan Zhang , Liang Zhao , Jingjie Zou , Wentao Wei , Duanying Cai
Objectives
This study employed evidence mapping to systematically evaluate clinical practice guidelines (CPGs) for neurogenic bladder (NB) care. We aimed to identify research trends, evidence gaps, and consensus patterns to inform evidence-based nursing practices and support the formulation of high-quality CPGs.
Methods
A systematic search of electronic databases and guideline repositories was conducted, included PubMed, Web of Science, Embase, Guidelines International Network (GIN), ect. Eligible NB guidelines underwent dual-researcher screening and extraction, and methodological and recommendation quality were assessed using the Appraisal of Guidelines for Research and Evaluation II (AGREE II) and Evaluation-Recommendations Excellence (AGREE-REX) instruments. Five researchers independently evaluated recommendation specificity, evidence grading systems, and implementation consistency. Discrepancies were resolved through consensus discussion or third-party arbitration.
Results
Analysis of 19 CPGs (2006–2023) from 11 countries/regions revealed that 78.95 % (15/19) incorporated evidence grading systems and 68.42 % (13/19) specified recommendation strength. The AGREE II evaluation identified critical methodological deficiencies, with three domains scoring below the acceptable thresholds: Rigor of Development (41.70 %), Editorial Independence (43.30 %), and Applicability (30.00 %). The AGREE-REX results showed moderate performance in Clinical Applicability (55.56 %) and implantability (41.67 %) but severe gaps in Values and Preferences (25.00 %). A systematic synthesis identified 40 recommendations: 90 % (36/40) demonstrated consensus and 10 % (4/40) contradictions. These studies addressed the following six clinical themes: 1) nursing assessment, 2) manipulation-assisted voiding, 3) behavioral therapy, 4) intermittent catheterization, 5) indwelling catheterization, and 6) other therapies.
Conclusions
The methodologies and recommendations of the CPGs for NB in nursing demonstrated substantial variability. Therefore, there is an urgent need to improve the quality of the NB-related CPGs. More in-depth research and timely updates are required to enhance the practical utility of CPGs and narrow the gap between CPGs and clinical practice.
目的本研究采用证据图谱法系统评价神经源性膀胱（NB）护理的临床实践指南（CPGs）。我们旨在确定研究趋势、证据差距和共识模式，为循证护理实践提供信息，并支持制定高质量的CPGs。方法系统检索PubMed、Web of Science、Embase、Guidelines International Network （GIN）等电子数据库和指南库。通过双研究员筛选和提取符合条件的NB指南，并使用研究和评估指南评估II （AGREE II）和评估建议卓越性（AGREE- rex）工具评估方法和推荐质量。五名研究人员独立评估了推荐的特异性、证据分级系统和实施的一致性。差异通过协商一致或第三方仲裁解决。结果来自11个国家/地区的19份cpg（2006-2023）分析显示，78.95%（15/19）纳入了证据分级系统，68.42%（13/19）明确了推荐强度。AGREE II评估确定了关键的方法学缺陷，三个领域的得分低于可接受的阈值：开发的严谨性（41.70%），编辑独立性（43.30%）和适用性（30.00%）。结果显示，在临床适用性（55.56%）和植入式（41.67%）方面表现一般，但在价值和偏好方面存在严重差距（25.00%）。系统综合确定了40项建议：90%（36/40）表现出共识，10%（4/40）表现出矛盾。这些研究涉及以下六个临床主题：1)护理评估，2)操作辅助排尿，3)行为治疗，4)间歇导尿，5)留置导尿，6)其他治疗。结论CPGs在NB护理中的方法和建议存在很大的差异。因此，迫切需要提高与nb相关的cpg的质量。为了提高CPGs的实用性，缩小CPGs与临床的差距，需要更深入的研究和及时的更新。
{"title":"Nursing management of the neurogenic bladder: Evidence map of quality and recommendations from clinical practice guidelines","authors":"Yuanyuan Li , Jinhui Tian , Luying Cheng , Jing Ni , Lin Li , Jiaoyan Zhang , Liang Zhao , Jingjie Zou , Wentao Wei , Duanying Cai","doi":"10.1016/j.ijnss.2025.06.009","DOIUrl":"10.1016/j.ijnss.2025.06.009","url":null,"abstract":"<div><h3>Objectives</h3><div>This study employed evidence mapping to systematically evaluate clinical practice guidelines (CPGs) for neurogenic bladder (NB) care. We aimed to identify research trends, evidence gaps, and consensus patterns to inform evidence-based nursing practices and support the formulation of high-quality CPGs.</div></div><div><h3>Methods</h3><div>A systematic search of electronic databases and guideline repositories was conducted, included PubMed, Web of Science, Embase, Guidelines International Network (GIN), ect. Eligible NB guidelines underwent dual-researcher screening and extraction, and methodological and recommendation quality were assessed using the Appraisal of Guidelines for Research and Evaluation II (AGREE II) and Evaluation-Recommendations Excellence (AGREE-REX) instruments. Five researchers independently evaluated recommendation specificity, evidence grading systems, and implementation consistency. Discrepancies were resolved through consensus discussion or third-party arbitration.</div></div><div><h3>Results</h3><div>Analysis of 19 CPGs (2006–2023) from 11 countries/regions revealed that 78.95 % (15/19) incorporated evidence grading systems and 68.42 % (13/19) specified recommendation strength. The AGREE II evaluation identified critical methodological deficiencies, with three domains scoring below the acceptable thresholds: Rigor of Development (41.70 %), Editorial Independence (43.30 %), and Applicability (30.00 %). The AGREE-REX results showed moderate performance in Clinical Applicability (55.56 %) and implantability (41.67 %) but severe gaps in Values and Preferences (25.00 %). A systematic synthesis identified 40 recommendations: 90 % (36/40) demonstrated consensus and 10 % (4/40) contradictions. These studies addressed the following six clinical themes: 1) nursing assessment, 2) manipulation-assisted voiding, 3) behavioral therapy, 4) intermittent catheterization, 5) indwelling catheterization, and 6) other therapies.</div></div><div><h3>Conclusions</h3><div>The methodologies and recommendations of the CPGs for NB in nursing demonstrated substantial variability. Therefore, there is an urgent need to improve the quality of the NB-related CPGs. More in-depth research and timely updates are required to enhance the practical utility of CPGs and narrow the gap between CPGs and clinical practice.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 415-423"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144724119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study aimed to classify young breast cancer patients into distinct ambivalence over emotional expression and to explore the factors influencing the level of ambivalence over emotional expression.
Methods
A total of 217 young breast cancer patients were enrolled from a tertiary Grade A oncology hospital in Tianjin, China, using the convenience sampling method. All participants completed the general questionnaire, Ambivalence over Emotion Expression Questionnaire (AEQ), and Family Adapt-Ability and Cohesion Evaluation Scales-Chinese Version (FACES-CV). We employed exploratory latent profile analysis for ambivalence over emotional expression profiling and logistic regression analysis to identify the influential factors
Results
The results of the latent profile analysis supported the models of four latent profiles, which were defined as “low conflict-low expression reflection” (19.2 %), “high conflict-high inhibition expression” (43.9 %), “moderate conflict-high regret expression” (18.1 %), and “moderate conflict-desire understand” (18.8 %). Logistic regression revealed that family cohesion, marital status, residence, per capita monthly income, and cancer stage were the influencing factors of ambivalence over emotional expression in young breast cancer patients (P < 0.05)
Conclusions
Levels of ambivalence over emotional expression ameast cancer patients with breast cancer were highly heterogeneous. Medical staff should provide psychological counseling and health education tailored to the unique characteristics of emotional expression ambivalence in different patient groups to promote healthy emotional expression among patients.
{"title":"Latent profiles of ambivalence over emotional expression in young breast cancer patients: A cross-sectional study","authors":"Xiaocen Chen, Zhao Wang, Sibo Wang, Fang Zhang, Xueyu Li, Jing Zhao","doi":"10.1016/j.ijnss.2025.06.005","DOIUrl":"10.1016/j.ijnss.2025.06.005","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to classify young breast cancer patients into distinct ambivalence over emotional expression and to explore the factors influencing the level of ambivalence over emotional expression.</div></div><div><h3>Methods</h3><div>A total of 217 young breast cancer patients were enrolled from a tertiary Grade A oncology hospital in Tianjin, China, using the convenience sampling method. All participants completed the general questionnaire, Ambivalence over Emotion Expression Questionnaire (AEQ), and Family Adapt-Ability and Cohesion Evaluation Scales-Chinese Version (FACES-CV). We employed exploratory latent profile analysis for ambivalence over emotional expression profiling and logistic regression analysis to identify the influential factors</div></div><div><h3>Results</h3><div>The results of the latent profile analysis supported the models of four latent profiles, which were defined as “low conflict-low expression reflection” (19.2 %), “high conflict-high inhibition expression” (43.9 %), “moderate conflict-high regret expression” (18.1 %), and “moderate conflict-desire understand” (18.8 %). Logistic regression revealed that family cohesion, marital status, residence, per capita monthly income, and cancer stage were the influencing factors of ambivalence over emotional expression in young breast cancer patients (<em>P</em> < 0.05)</div></div><div><h3>Conclusions</h3><div>Levels of ambivalence over emotional expression ameast cancer patients with breast cancer were highly heterogeneous. Medical staff should provide psychological counseling and health education tailored to the unique characteristics of emotional expression ambivalence in different patient groups to promote healthy emotional expression among patients.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 379-385"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144724236","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.06.010
Huiyue Zhang , Min Yin , Xue Nan , Xin Liu , Rujia Zhang
Objective
To clarify the concept of in-home respite care in dementia care and identify changes in the service content over time to help providers and users better understand this sustainable service.
Method
A literature search was conducted through Chinese databases China National Knowledge Infrastructure (CNKI), Wanfang, VIP, and SinoMed, as well as English databases PubMed, the Cochrane Library, Web of Sciences, and Embase. Articles published from January 1980 to December 2024 were identified. Rogers’ conceptual analysis of evolution was used for this concept analysis, including six steps: identifying the concept and its context, selecting appropriate databases, determining relevant literature, identifying the concept’s attributes, antecedents, and consequences, choosing a concept exemplar if appropriate, and defining hypotheses and implications for further concept development.
Results
Thirty-one articles were included. This conceptual analysis revealed the evolution of in-home respite care service content over time and summarized three key attributes. The antecedents included factors related to people with dementia, family caregivers, and the social environment (aging society, government support). The consequences of in-home respite services include delayed institutional placement and reduced security risk events for people with dementia. For family caregivers, consequences include reduced caregiving stress, improved quality of life, and perceived benefits from rest periods.
Conclusion
In-home respite care can be interpreted as family-centered home care that provides temporary relief from family caregivers’ responsibilities in caring for people with dementia to reduce caregiver burden. The trend of service specialization and attention on dementia families’ needs in service provision are future research focus.
目的明确居家暂歇护理在老年痴呆症护理中的概念，识别服务内容随时间的变化，帮助提供者和使用者更好地理解这种可持续服务。方法通过中文数据库中国知网（CNKI）、万方、维普、中国医学信息网（SinoMed）以及英文数据库PubMed、Cochrane Library、Web of Sciences和Embase进行文献检索。文章发表于1980年1月至2024年12月。这个概念分析使用了罗杰斯的进化概念分析，包括六个步骤：确定概念及其背景，选择适当的数据库，确定相关文献，确定概念的属性，前因和后果，选择适当的概念范例，并为进一步的概念发展定义假设和含义。结果共纳入31篇文献。这一概念分析揭示了家庭暂托服务内容随时间的演变，并总结了三个关键属性。前因包括痴呆症患者、家庭照顾者和社会环境（老龄化社会、政府支持）相关因素。家庭暂托服务的后果包括延迟机构安置和减少痴呆症患者的安全风险事件。对家庭照顾者来说，结果包括减轻照顾压力，提高生活质量，并从休息时间中获益。结论居家暂托可以理解为以家庭为中心的居家护理，使家庭照顾者暂时减轻照顾痴呆患者的责任，减轻照顾者的负担。服务专业化的趋势和在服务提供中对痴呆家庭需求的关注是未来研究的重点。
{"title":"In-home respite care in dementia: An evolutionary concept analysis","authors":"Huiyue Zhang , Min Yin , Xue Nan , Xin Liu , Rujia Zhang","doi":"10.1016/j.ijnss.2025.06.010","DOIUrl":"10.1016/j.ijnss.2025.06.010","url":null,"abstract":"<div><h3>Objective</h3><div>To clarify the concept of in-home respite care in dementia care and identify changes in the service content over time to help providers and users better understand this sustainable service.</div></div><div><h3>Method</h3><div>A literature search was conducted through Chinese databases China National Knowledge Infrastructure (CNKI), Wanfang, VIP, and SinoMed, as well as English databases PubMed, the Cochrane Library, Web of Sciences, and Embase. Articles published from January 1980 to December 2024 were identified. Rogers’ conceptual analysis of evolution was used for this concept analysis, including six steps: identifying the concept and its context, selecting appropriate databases, determining relevant literature, identifying the concept’s attributes, antecedents, and consequences, choosing a concept exemplar if appropriate, and defining hypotheses and implications for further concept development.</div></div><div><h3>Results</h3><div>Thirty-one articles were included. This conceptual analysis revealed the evolution of in-home respite care service content over time and summarized three key attributes. The antecedents included factors related to people with dementia, family caregivers, and the social environment (aging society, government support). The consequences of in-home respite services include delayed institutional placement and reduced security risk events for people with dementia. For family caregivers, consequences include reduced caregiving stress, improved quality of life, and perceived benefits from rest periods.</div></div><div><h3>Conclusion</h3><div>In-home respite care can be interpreted as family-centered home care that provides temporary relief from family caregivers’ responsibilities in caring for people with dementia to reduce caregiver burden. The trend of service specialization and attention on dementia families’ needs in service provision are future research focus.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 352-360"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144724583","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.06.012
Anabel Ramírez-García , Alba Torné-Ruiz , Aida Bonet , Olga Monistrol , Marta Banqué , Judith Roca
Objective
This study aimed to summarize the quality of life experiences of individuals with physical frailty undergoing hemodialysis or peritoneal dialysis and to identify the difficulties and resources that enable better person-centered health care.
Methods
The study described is a qualitative meta-synthesis literature review. The search was performed in databases such as CINAHL, Scopus, PubMed, Web of Science, the Cochrane Library, and Cuiden Plus through Medical Subject Headings and free terms. Qualitative and mixed studies were included on individuals undergoing hemodialysis or peritoneal dialysis, 18 years of age or older, published in English or Spanish, between January 2013 and January 2024. The Mixed Methods Appraisal Tool was used to assess the methodological quality. The information was analyzed and coded through a socioecological model and the social determinants of health.
Results
Fourteen qualitative and two mixed articles were selected. A total of 256 individuals participated in the study. Seventeen themes and 25 sub-themes were identified and grouped into two blocks (difficulties and resources). The difficulties that stood out were a low tolerance for activities of daily living and physical activity, loss of self-control over life and social roles, and lack of community and public resources. As for the resources, the following was found: the positive meaning of dialysis, the safety offered by close individuals and the healthcare team, the activation of specific programs, and person-centered policies.
Conclusions
The analysis and interpretation of the identified difficulties and resources revealed key elements to consider when designing and implementing health programs for individuals undergoing dialysis. Future research should explore these dimensions in diverse cultural and geographical contexts to enhance generalizability and support health equity.
目的本研究旨在总结接受血液透析或腹膜透析的身体虚弱个体的生活质量体验，并确定其困难和资源，以实现更好的以人为本的卫生保健。方法采用定性综合方法进行文献综述。通过医学主题词和免费术语在CINAHL、Scopus、PubMed、Web of Science、Cochrane Library和Cuiden Plus等数据库中进行搜索。定性和混合研究纳入了2013年1月至2024年1月期间以英语或西班牙语发表的18岁或以上接受血液透析或腹膜透析的个体。使用混合方法评估工具评估方法学质量。通过社会生态模型和健康的社会决定因素对这些信息进行了分析和编码。结果选取定性文献14篇，混合文献2篇。共有256人参与了这项研究。确定了17个主题和25个分主题，并将其分为两个部分（困难和资源）。突出的困难是对日常生活活动和体力活动的容忍度低，对生活和社会角色失去自我控制，缺乏社区和公共资源。在资源方面，我们发现透析的积极意义、亲密个体和医疗团队提供的安全性、特定项目的激活以及以人为本的政策。结论通过对已确定的困难和资源的分析和解释，揭示了为透析患者设计和实施健康方案时需要考虑的关键因素。未来的研究应在不同的文化和地理背景下探索这些维度，以增强概括性并支持卫生公平。
{"title":"Quality of life experience in physically frail people on renal dialysis: A qualitative meta-synthesis on the difficulties and resources for better health care","authors":"Anabel Ramírez-García , Alba Torné-Ruiz , Aida Bonet , Olga Monistrol , Marta Banqué , Judith Roca","doi":"10.1016/j.ijnss.2025.06.012","DOIUrl":"10.1016/j.ijnss.2025.06.012","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to summarize the quality of life experiences of individuals with physical frailty undergoing hemodialysis or peritoneal dialysis and to identify the difficulties and resources that enable better person-centered health care.</div></div><div><h3>Methods</h3><div>The study described is a qualitative meta-synthesis literature review. The search was performed in databases such as CINAHL, Scopus, PubMed, Web of Science, the Cochrane Library, and Cuiden Plus through Medical Subject Headings and free terms. Qualitative and mixed studies were included on individuals undergoing hemodialysis or peritoneal dialysis, 18 years of age or older, published in English or Spanish, between January 2013 and January 2024. The Mixed Methods Appraisal Tool was used to assess the methodological quality. The information was analyzed and coded through a socioecological model and the social determinants of health.</div></div><div><h3>Results</h3><div>Fourteen qualitative and two mixed articles were selected. A total of 256 individuals participated in the study. Seventeen themes and 25 sub-themes were identified and grouped into two blocks (difficulties and resources). The difficulties that stood out were a low tolerance for activities of daily living and physical activity, loss of self-control over life and social roles, and lack of community and public resources. As for the resources, the following was found: the positive meaning of dialysis, the safety offered by close individuals and the healthcare team, the activation of specific programs, and person-centered policies<em>.</em></div></div><div><h3>Conclusions</h3><div>The analysis and interpretation of the identified difficulties and resources revealed key elements to consider when designing and implementing health programs for individuals undergoing dialysis. Future research should explore these dimensions in diverse cultural and geographical contexts to enhance generalizability and support health equity.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 344-351"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144723607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This study aimed to determine the effect of a culture-specific behavior modification program on glycated hemoglobin (HbA1c) and blood pressure among adults with diabetes and hypertension.
Methods
This study was a single-blind randomized controlled trial design. From January to May 2024, a total of 60 patients with uncontrolled type 2 diabetes and hypertension from the primary care unit of a hospital in northeastern (Isan) Thailand were recruited. The intervention group received the usual care supplemented by a culture-specific behavior modification programm implemented through interactive classes and online web application consisting of information, motivation, and behavioral skills (diet, exercise, and medication use), the control group received the usual care. HbA1c and blood pressure measurements were collected at both baseline and at 12 weeks.
Results
A total of 51 patients completed the study, the intervention group (n = 26) and control group (n = 25), respectively. After 12 weeks, 23.1 % of patients in the intervention group could maintain their HbA1c < 7.0 %; those with poorly controlled HbA1c decreased from 7.7 % at baseline to 3.8 % at 12 weeks. After 12 weeks, 69.2 % of intervention group participants could maintain systolic blood pressure <130 mmHg and 53.8 % could keep diastolic blood pressure <80 mmHg. Analysis revealed that HbA1c, systolic and diastolic blood pressure levels in the intervention group were lower than the control group after the intervention (P < 0.05). There was a statistically significant difference a linear combination of HbA1c and blood pressure (systolic and diastolic BP levels) between time and group (P < 0.05).
Conclusion
These results suggest that healthcare providers can incorporate elements of this program to manage blood glucose and blood pressure effectively. Future studies should consider a longitudinal design with a larger sample size and include outcomes of lipid levels to confirm long-term motivation.
{"title":"Effects of a culture-specific behavior modification program on glycated hemoglobin and blood pressure among adults with diabetes and hypertension: A randomized controlled trial","authors":"Patcharee Numsang , Sureeporn Thanasilp , Ratsiri Thato","doi":"10.1016/j.ijnss.2025.06.013","DOIUrl":"10.1016/j.ijnss.2025.06.013","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to determine the effect of a culture-specific behavior modification program on glycated hemoglobin (HbA1c) and blood pressure among adults with diabetes and hypertension.</div></div><div><h3>Methods</h3><div>This study was a single-blind randomized controlled trial design. From January to May 2024, a total of 60 patients with uncontrolled type 2 diabetes and hypertension from the primary care unit of a hospital in northeastern (Isan) Thailand were recruited. The intervention group received the usual care supplemented by a culture-specific behavior modification programm implemented through interactive classes and online web application consisting of information, motivation, and behavioral skills (diet, exercise, and medication use), the control group received the usual care. HbA1c and blood pressure measurements were collected at both baseline and at 12 weeks.</div></div><div><h3>Results</h3><div>A total of 51 patients completed the study, the intervention group (<em>n</em> = 26) and control group (<em>n</em> = 25), respectively. After 12 weeks, 23.1 % of patients in the intervention group could maintain their HbA1c < 7.0 %; those with poorly controlled HbA1c decreased from 7.7 % at baseline to 3.8 % at 12 weeks. After 12 weeks, 69.2 % of intervention group participants could maintain systolic blood pressure <130 mmHg and 53.8 % could keep diastolic blood pressure <80 mmHg. Analysis revealed that HbA1c, systolic and diastolic blood pressure levels in the intervention group were lower than the control group after the intervention (<em>P</em> < 0.05). There was a statistically significant difference a linear combination of HbA1c and blood pressure (systolic and diastolic BP levels) between time and group (<em>P</em> < 0.05).</div></div><div><h3>Conclusion</h3><div>These results suggest that healthcare providers can incorporate elements of this program to manage blood glucose and blood pressure effectively. Future studies should consider a longitudinal design with a larger sample size and include outcomes of lipid levels to confirm long-term motivation.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 328-334"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144723596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.04.011
Marian Elaine Reven , Roger Carpenter , Mary Jane Smith , Amanda Newhouse , Kesheng Wang
Objectives
This study had two aims. Aim one is to evaluate the feasibility and acceptability of using an aroma-based, self-managed intervention for adults in outpatient treatment for substance use disorder. Aim two is to examine the effects of a Citrus bergamia (Bergamot) essential oil intervention on the variables of comfort, ease, and stress.
Methods
A randomized controlled trial was conducted (NCT05660434). Adults in treatment for substance use disorder were randomized to either control group (standard care) (n = 55) or intervention group (standard care plus Citrus bergamia [Bergamot] essential oil intervention), three times a day for seven days (n = 45). All data were analyzed using an intention-to-treat method. Outcomes were measured using valid and reliable measures.
Results
One hundred participants were recruited over 11 months. Reasons for non or limited participation included feeling overwhelmed by the demands of treatment and everyday living. Data analysis showed psychological variable improvement with a significant increase in ease reported (P = 0.022) and DASS-21 subscales for depression (P = 0.007) and anxiety (P = 0.013) in the intervention group. Post-satisfaction survey results were positive, with overall enjoyment, perception of the aroma, and intention to continue to use the aroma inhaler post-trial, which was high.
Conclusions
Results from this study provide data to support the feasibility and acceptability of using essential oil via inhalation to help this population. Findings from this study will inform a more extensive study designed to examine effects within and between groups using a placebo.
{"title":"Using an aromatherapy intervention with Citrus bergamia (bergamot) essential oil in adults in treatment for substance use disorder: A randomized controlled trial","authors":"Marian Elaine Reven , Roger Carpenter , Mary Jane Smith , Amanda Newhouse , Kesheng Wang","doi":"10.1016/j.ijnss.2025.04.011","DOIUrl":"10.1016/j.ijnss.2025.04.011","url":null,"abstract":"<div><h3>Objectives</h3><div>This study had two aims. Aim one is to evaluate the feasibility and acceptability of using an aroma-based, self-managed intervention for adults in outpatient treatment for substance use disorder. Aim two is to examine the effects of a <em>Citrus bergamia</em> (Bergamot) essential oil intervention on the variables of comfort, ease, and stress.</div></div><div><h3>Methods</h3><div>A randomized controlled trial was conducted (NCT05660434). Adults in treatment for substance use disorder were randomized to either control group (standard care) (<em>n =</em> 55) or intervention group (standard care plus <em>Citrus bergamia</em> [Bergamot] essential oil intervention), three times a day for seven days (<em>n =</em> 45). All data were analyzed using an intention-to-treat method. Outcomes were measured using valid and reliable measures.</div></div><div><h3>Results</h3><div>One hundred participants were recruited over 11 months. Reasons for non or limited participation included feeling overwhelmed by the demands of treatment and everyday living. Data analysis showed psychological variable improvement with a significant increase in ease reported (<em>P =</em> 0.022) and DASS-21 subscales for depression (<em>P =</em> 0.007) and anxiety (<em>P =</em> 0.013) in the intervention group. Post-satisfaction survey results were positive, with overall enjoyment, perception of the aroma, and intention to continue to use the aroma inhaler post-trial, which was high.</div></div><div><h3>Conclusions</h3><div>Results from this study provide data to support the feasibility and acceptability of using essential oil via inhalation to help this population. Findings from this study will inform a more extensive study designed to examine effects within and between groups using a placebo.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 311-319"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144723594","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.06.006
Lihua Zhao , Jing Ye , Zhuo Zhao , Lei Yang , Yimei Zheng
Objectives
This study aimed to assess the impact of exercise rehabilitation during the vulnerable period on cardiac recovery (CR) outcomes in patients with acute decompensated heart failure (ADHF).
Methods
Multiple databases including PubMed, Web of Science, Embase, the Cochrane Library, CINAHL, China National Knowledge Infrastructure (CNKI), Chinese Science and Technology Periodical Database (VIP), Wanfang database, SinoMed, ClinicalTrials.gov, and American Heart Association (AHA) and European Society of Cardiology (ESC) were searched for RCTs on exercise rehabilitation in ADHF patients’ vulnerable period from inception to April 2, 2025. The risk of bias was assessed with Cochrane Risk of Bias 2.0, and data were analyzed in RevMan 5.3.
Results
A total of seven RCTs involving 946 patients were included. The results demonstrated that exercise rehabilitation training during the vulnerable period in patients with ADHF significantly increased the 6-min walk test distance (6-MWTD) (SMD = 0.37; 95 %CI: 0.09, 0.65; P = 0.01), short physical performance battery (SPPB) score (MD = 1.26; 95 %CI: 0.82, 1.70; P < 0.001) and peak oxygen consumption (VO2peak) (SMD = 1.43; 95 %CI: 0.53, 2.34; P = 0.002), improved quality of life (QoL) (SMD = 0.85; 95 %CI: 0.07, 1.64, P = 0.03), reduced depression score (MD = −0.73; 95 %CI: 1.27, −0.18; P = 0.009), frailty (MD = −0.22; 95 %CI: −0.48, 0.05; P = 0.11), and decreased 6-month all-cause readmission (OR = 0.67; 95 %CI: 0.49, 0.91; P = 0.01). However, no statistically significant differences were observed between the two groups in left ventricular ejection fraction (LVEF) (MD = 0.96; 95 %CI: −1.84, 3.77; P = 0.50), 6-month heart failure (HF)-related readmission (OR = 1.01; 95 %CI: 0.66, 1.53; P = 0.98), and all-cause mortality (OR = 0.63; 95 %CI: 0.18, 2.24; P = 0.47). There were no adverse events reported.
Conclusions
Exercise rehabilitation during the vulnerable phase improves exercise tolerance, QoL, and depressive symptoms while reducing 6-month all-cause readmissions in ADHF patients, with no reported adverse events. Although trends toward improved LVEF, HF-related readmissions, and all-cause mortality were observed. Large-scale, high-quality studies are warranted to explore individualized responses and long-term outcomes.
{"title":"Efficacy and safety of exercise rehabilitation in the vulnerable phase in patients with acute decompensated heart failure: A systematic review and meta-analysis","authors":"Lihua Zhao , Jing Ye , Zhuo Zhao , Lei Yang , Yimei Zheng","doi":"10.1016/j.ijnss.2025.06.006","DOIUrl":"10.1016/j.ijnss.2025.06.006","url":null,"abstract":"<div><h3>Objectives</h3><div>This study aimed to assess the impact of exercise rehabilitation during the vulnerable period on cardiac recovery (CR) outcomes in patients with acute decompensated heart failure (ADHF).</div></div><div><h3>Methods</h3><div>Multiple databases including PubMed, Web of Science, Embase, the Cochrane Library, CINAHL, China National Knowledge Infrastructure (CNKI), Chinese Science and Technology Periodical Database (VIP), Wanfang database, SinoMed, ClinicalTrials.gov, and American Heart Association (AHA) and European Society of Cardiology (ESC) were searched for RCTs on exercise rehabilitation in ADHF patients’ vulnerable period from inception to April 2, 2025. The risk of bias was assessed with Cochrane Risk of Bias 2.0, and data were analyzed in RevMan 5.3.</div></div><div><h3>Results</h3><div>A total of seven RCTs involving 946 patients were included. The results demonstrated that exercise rehabilitation training during the vulnerable period in patients with ADHF significantly increased the 6-min walk test distance (6-MWTD) (<em>SMD</em> = 0.37; 95 %<em>CI</em>: 0.09, 0.65; <em>P =</em> 0.01), short physical performance battery (SPPB) score (<em>MD</em> = 1.26; 95 %<em>CI:</em> 0.82, 1.70; <em>P</em> < 0.001) and peak oxygen consumption (VO<sub>2</sub>peak) (<em>SMD</em> = 1.43; 95 %<em>CI:</em> 0.53, 2.34; <em>P</em> = 0.002), improved quality of life (QoL) (<em>SMD</em> = 0.85; 95 %<em>CI:</em> 0.07, 1.64, <em>P</em> = 0.03), reduced depression score (<em>MD</em> = −0.73; 95 %<em>CI:</em> 1.27, −0.18; <em>P</em> = 0.009), frailty (<em>MD</em> = −0.22; 95 %<em>CI:</em> −0.48, 0.05; <em>P</em> = 0.11), and decreased 6-month all-cause readmission (<em>OR</em> = 0.67; 95 %<em>CI:</em> 0.49, 0.91; <em>P</em> = 0.01). However, no statistically significant differences were observed between the two groups in left ventricular ejection fraction (LVEF) (<em>MD</em> = 0.96; 95 %<em>CI:</em> −1.84, 3.77; <em>P</em> = 0.50), 6-month heart failure (HF)-related readmission (<em>OR</em> = 1.01; 95 %<em>CI:</em> 0.66, 1.53; <em>P</em> = 0.98), and all-cause mortality (<em>OR</em> = 0.63; 95 %<em>CI:</em> 0.18, 2.24; <em>P</em> = 0.47). There were no adverse events reported.</div></div><div><h3>Conclusions</h3><div>Exercise rehabilitation during the vulnerable phase improves exercise tolerance, QoL, and depressive symptoms while reducing 6-month all-cause readmissions in ADHF patients, with no reported adverse events. Although trends toward improved LVEF, HF-related readmissions, and all-cause mortality were observed. Large-scale, high-quality studies are warranted to explore individualized responses and long-term outcomes.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 408-414"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144723610","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-07-01DOI: 10.1016/j.ijnss.2025.06.007
Qingyu Wang , Junyi Gu , Zheng Lin , Sha Li , Meijing Zhou , Jiefeng Yang , Hantian Cheng , Jiali Chen , Yang Lei
Objectives
The study aimed to explore social alienation types in patients with inflammatory bowel diseases (IBD) and identify influencing factors.
Methods
This cross-sectional study was conducted using purposive sampling among patients with IBD from July 2022 to July 2023. Patients were assessed using the Generalized Social Alienation Scale (GSAS), the Brief Illness Perception Questionnaire (B-IPQ), the Hospital Anxiety and Depression Scale (HADS), and the Medical Coping Modes Questionnaire (MCMQ). Demographic and disease-related characteristics were also collected. Latent profile analysis (LPA) was used to identify potential subgroups of social alienation. Univariate analysis and multicollinearity analysis were conducted to explore the influencing factors, followed by multiple regression analysis to evaluate the effect of influencing factors on social alienation.
Results
Three distinct profiles of social alienation were identified: integrated-low alienation group (n = 61, 20.20 %), accommodative-moderate alienation group (n = 195, 64.57 %), and maladaptive-high alienation group (n = 46, 15.23 %). Seven characteristics were associated with the profile’s membership: self-perceived financial stress, malnutrition risk, disease duration, illness comprehensibility, anxiety, depression, and acceptance-resignation coping mode.
Conclusions
Patients with IBD were categorized into three subgroups based on social alienation levels. Financial stress, malnutrition risk, disease duration, illness comprehensibility, anxiety, depression, and acceptance-resignation coping mode were key predictors of the subgroup membership. Targeted interventions should be developed to mitigate the negative effects of social alienation, with a focus on improving illness perception, alleviating anxiety and depression, and promoting effective coping strategies.
{"title":"Social alienation in patients with inflammatory bowel diseases: A latent profile analysis","authors":"Qingyu Wang , Junyi Gu , Zheng Lin , Sha Li , Meijing Zhou , Jiefeng Yang , Hantian Cheng , Jiali Chen , Yang Lei","doi":"10.1016/j.ijnss.2025.06.007","DOIUrl":"10.1016/j.ijnss.2025.06.007","url":null,"abstract":"<div><h3>Objectives</h3><div>The study aimed to explore social alienation types in patients with inflammatory bowel diseases (IBD) and identify influencing factors.</div></div><div><h3>Methods</h3><div>This cross-sectional study was conducted using purposive sampling among patients with IBD from July 2022 to July 2023. Patients were assessed using the Generalized Social Alienation Scale (GSAS), the Brief Illness Perception Questionnaire (B-IPQ), the Hospital Anxiety and Depression Scale (HADS), and the Medical Coping Modes Questionnaire (MCMQ). Demographic and disease-related characteristics were also collected. Latent profile analysis (LPA) was used to identify potential subgroups of social alienation. Univariate analysis and multicollinearity analysis were conducted to explore the influencing factors, followed by multiple regression analysis to evaluate the effect of influencing factors on social alienation.</div></div><div><h3>Results</h3><div>Three distinct profiles of social alienation were identified: integrated-low alienation group (<em>n</em> = 61, 20.20 %), accommodative-moderate alienation group (<em>n</em> = 195, 64.57 %), and maladaptive-high alienation group (<em>n</em> = 46, 15.23 %). Seven characteristics were associated with the profile’s membership: self-perceived financial stress, malnutrition risk, disease duration, illness comprehensibility, anxiety, depression, and acceptance-resignation coping mode.</div></div><div><h3>Conclusions</h3><div>Patients with IBD were categorized into three subgroups based on social alienation levels. Financial stress, malnutrition risk, disease duration, illness comprehensibility, anxiety, depression, and acceptance-resignation coping mode were key predictors of the subgroup membership. Targeted interventions should be developed to mitigate the negative effects of social alienation, with a focus on improving illness perception, alleviating anxiety and depression, and promoting effective coping strategies.</div></div>","PeriodicalId":37848,"journal":{"name":"International Journal of Nursing Sciences","volume":"12 4","pages":"Pages 335-343"},"PeriodicalIF":3.1,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144723606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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