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Fertility stakeholders’ concerns regarding payment for egg and sperm donation in New Zealand and Australia 生育利益相关者对新西兰和澳大利亚卵子和精子捐赠支付的担忧
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2021.07.006
Sonja Goedeke , Daniel Shepherd , Iolanda S. Rodino

New Zealand and Australia are countries which currently prohibit donor payment and require open-identity forms of donation. This study explored the concerns of fertility stakeholders regarding payment which would constitute financial reward for gamete donation, and factors predicting such concerns. A total of 434 participants from across New Zealand and Australia completed an online survey anonymously. Participants included those with infertility and treatment experience, donors, recipients, donor-conceived people and clinic professionals. Results indicated that participants’ concerns related to their assumptions about the type of donor motivated by financial reward, and the possibility that, if paid, donors might conceal information relevant to treatment and the donor-conceived person. Furthermore, participants were concerned about increasing recipient costs. Participants with personal experience of infertility held stronger concerns overall. Professionals expressed concerns of clinical relevance, such as the withholding of donor information relevant to treatment outcomes. The lowest levels of concern were expressed in relation to payment devaluing the meaning of human life. Qualitatively, themes highlighted concerns regarding payment enticing the ‘wrong’ type of donor, increased cost to recipients, and concern about the wellbeing of donor-offspring. Collectively, such concerns must be understood against the New Zealand and Australia open-identity donation context which enables the possibility of contact between donors and offspring. These findings indicate that donor recruitment campaigns need to account for different stakeholder concerns, and consider ways to address donor shortages effectively while remaining compliant with legislative requirements.

新西兰和澳大利亚是目前禁止向捐赠者付款并要求公开身份形式的捐赠的国家。本研究探讨了生育利益相关者对支付的担忧,这将构成配子捐赠的经济奖励,以及预测这种担忧的因素。共有来自新西兰和澳大利亚的434名参与者匿名完成了一项在线调查。参与者包括有不孕症和治疗经验的人、捐赠者、接受者、捐赠者怀孕的人以及诊所专业人员。结果表明,参与者的担忧与他们对受经济奖励激励的捐赠者类型的假设有关,以及如果获得报酬,捐赠者可能会隐瞒与治疗和捐赠者受孕有关的信息的可能性。此外,与会者还担心接受者成本的增加。总体而言,有不孕经历的参与者的担忧更强。专业人员表达了对临床相关性的担忧,例如隐瞒与治疗结果相关的供体信息。最不关心的是付款会使人的生命的意义贬值。从质量上讲,主题强调了关于付款吸引“错误”类型的捐赠者,增加接受者的成本以及对捐赠者后代福祉的担忧。总的来说,这些问题必须在新西兰和澳大利亚的开放身份捐赠背景下加以理解,这使得捐赠者和后代之间有可能接触。这些发现表明,捐助者招募活动需要考虑到不同利益相关者的关切,并考虑如何在遵守立法要求的同时有效地解决捐助者短缺问题。
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引用次数: 2
Reproductive travel to, from and within sub-Saharan Africa: A scoping review 往返撒哈拉以南非洲和撒哈拉以南非洲内部的生殖旅行:范围审查
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2021.12.003
Tessa Moll , Trudie Gerrits , Karin Hammarberg , Lenore Manderson , Andrea Whittaker

Scholarly interest in reproductive travel has increased in recent years, but travel within, to and from the African continent has received much less attention. We reviewed the literature on cross-border reproductive travel to and from countries of sub-Saharan Africa in order to understand the local forms of this trade. Access to fertility care remains deeply stratified, which is an ongoing concern in a region with some of the highest rates of infertility. We found a wide variety of reasons for reproductive travel, including a lack of trusted local clinics. Destinations were chosen for reasons including historical movements for medical treatment broadly, diasporic circulations, pragmatic language reasons, and ties of former colonial relations. We describe the unique tempos of treatment in the region, ranging from some intended parents staying in receiving countries for some years to the short-term contingent support networks that reprotravellers develop during their treatment and travel. Unique to the region is the movement of medical professionals, such as the ‘fly-in, fly-out’ clinic staff to deliver fertility care. Future research should include practices and movements to presently neglected ‘reprohubs’, particularly Kenya and Nigeria; the impact of pandemic-related lockdowns and border closures on the movements of intended parents, reproductive assistors and reproductive material; and the impact of low-cost protocols on treatment access within the region. This scoping review provides insight into the relevant work on cross-border reproductive care in sub-Saharan Africa, where a unique combination of access factors, affordability, and sociocultural and geopolitical issues fashion individuals’ and couples’ cross-border reproductive travel within, to and from Africa.

近年来,学术界对生殖旅行的兴趣有所增加,但在非洲大陆内部和往返非洲大陆的旅行受到的关注要少得多。我们回顾了有关撒哈拉以南非洲国家跨境生殖旅行的文献,以了解这种贸易的当地形式。获得生育护理的机会仍然严重分层,这是一个不育率最高的地区持续关注的问题。我们发现了生育旅行的各种各样的原因,包括缺乏值得信赖的当地诊所。选择目的地的原因包括广泛的医疗历史运动、散居流动、实用语言原因以及前殖民地关系的联系。我们描述了该地区独特的治疗节奏,从一些意向父母在接收国停留数年,到再旅行者在治疗和旅行期间形成的短期应急支持网络。该地区的独特之处在于医疗专业人员的流动,例如提供生育护理的“飞进飞出”诊所工作人员。未来的研究应该包括目前被忽视的“责备国”的实践和运动,特别是肯尼亚和尼日利亚;与大流行病有关的封锁和边境关闭对准父母、生殖辅助人员和生殖材料流动的影响;以及低成本协议对该地区治疗可及性的影响。这一范围审查提供了对撒哈拉以南非洲跨境生殖保健相关工作的深入了解,在撒哈拉以南非洲,获得因素、可负担性以及社会文化和地缘政治问题的独特组合影响了个人和夫妇在非洲境内、进出非洲的跨境生殖旅行。
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引用次数: 4
Like mother, like daughter, like granddaughter… Transgenerational ignorance engendered by a defective reproductive health technology 像母亲一样,像女儿一样,像孙女一样…由有缺陷的生殖健康技术造成的跨代无知
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2021.10.001
Emmanuelle Fillion , Didier Torny

From 1941, the synthetic oestrogen diethylstilbestrol (DES) was administered to millions of women around the world to prevent miscarriages. In 1971, a clear and direct link was shown between taking DES during pregnancy and its subsequent long-term morbid effects on offspring. In the last 50 years, the list of side effects of in-utero exposure to DES has grown to include cancer, infertility, significant prematurity and urogenital malformation, amongst others. Based on qualitative sociological research conducted between 2010 and 2013, compiling archives, judicial documents and 108 interviews, this article illustrates a continuous production of ignorance in France. By focusing on DES as a reproductive health technology, three aspects are stressed. First, in terms of recognition of adverse effects, despite DES being identified as a prototype for other technologies such as the contraceptive pill or hormone replacement therapy, there remained a strong reluctance to import knowledge from the USA on its dangers and risks. Second, there was indifference to transgenerational side effects: even when the most visible effects of DES were finally acknowledged, there was a lack of consideration of the health of descendants; an inability to deem the knowledge of these repercussions as emancipatory or potentially empowering for the offspring. Third, regarding the health care of DES daughters, an important propensity to undone science is highlighted, with notable indifference to the risks of hormonalization of the female body, even on the part of activists. Thus, decades after it was last given to pregnant women, the shadow of DES still lingers as a failed reproductive health technology.

从1941年起,合成雌激素己烯雌酚(DES)被用于世界各地数百万妇女预防流产。1971年,一项明确而直接的研究表明,怀孕期间服用DES与其对后代的长期病态影响之间存在联系。在过去的50 年里,子宫内暴露于DES的副作用清单已经增长到包括癌症,不孕症,严重早产和泌尿生殖畸形等。本文基于2010年至2013年间进行的定性社会学研究,收集档案、司法文件和108次访谈,阐述了法国不断产生的无知。以DES作为生殖健康技术为重点,强调了三个方面。首先,在对不良反应的认识方面,尽管DES被认为是避孕药或激素替代疗法等其他技术的原型,但人们仍然强烈不愿意从美国进口有关其危险和风险的知识。其次,对跨代副作用漠不关心:即使DES最明显的影响最终得到承认,也缺乏对后代健康的考虑;不能把对这些影响的了解看作是对后代的解放或潜在的授权。第三,关于DES女儿的保健问题,强调了一种重要的不科学倾向,对女性身体激素化的风险明显漠不关心,即使是积极分子也是如此。因此,在最后一次给孕妇使用DES的几十年后,DES作为一项失败的生殖健康技术的阴影仍然挥之不去。
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引用次数: 2
Thank you to our distinguished editors 感谢我们杰出的编辑
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2022.03.002
Kamal Ahuja (Chairman)
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引用次数: 0
Adopting an ‘unlearner’ technology? Knowledge battles over pharmaceutical pain relief in childbirth in post-1968 France 采用“不学习”技术?1968年后的法国,关于分娩药物镇痛的知识之争
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.03.002
Sezin Topçu

With a national rate of 82.4%, France is currently one of the world’s leading users of epidural analgesia (EA), which is promoted not just as a pain reliever but also as a technology that makes childbirth safer. Drawing on analytical tools from science and technology studies, reproductive studies and ignorance studies, I will show how this obstetric drug came to be widely used after significant knowledge/ignorance battles had been fought during heated public and medical controversy in the 1970s. Different visions of the ‘knowns’, the ‘unknowns’ and ‘know-how’ came into conflict in this context, supported by a series of moral, political and feminist justifications that were often at odds with one another. While the defenders of natural birth clashed with feminists, created ambiguities around conceptions of the maternal body, and struggled to produce large-scale clinical knowledge on the risks of EA, the defenders of EA put forward technological promises and biomedical modernization as a means to outstrip the knowledge wars. In the aftermath of this epistemic battle, EA was to gradually become an ‘unlearner’ technology; that is, a modern tool that radically silenced the maternal body and led to denial, disregard or unawareness of a whole range of shared and alternative knowledges and ‘know-how’ relating to female physiology and the birth process that are free of pharmaceutical products and medical interventions.

法国目前是世界上硬膜外镇痛(EA)的主要使用者之一,全国使用率为82.4%。硬膜外镇痛不仅被推广为止痛药,而且被视为一种使分娩更安全的技术。利用科学和技术研究、生殖研究和无知研究的分析工具,我将展示这种产科药物是如何在20世纪70年代激烈的公众和医学争议中进行了重大的知识/无知之战之后得到广泛使用的。在这种背景下,对“已知”、“未知”和“专有技术”的不同看法产生了冲突,并得到了一系列道德、政治和女权主义理由的支持,而这些理由往往彼此不一致。自然分娩的捍卫者与女权主义者发生冲突,在母体概念上制造歧义,并努力产生关于EA风险的大规模临床知识,而EA的捍卫者则提出技术承诺和生物医学现代化作为超越知识战争的手段。在这场认知之战之后,艺电逐渐成为一种“不学习”的技术;这是一种现代工具,从根本上使产妇身体沉默,导致否认、无视或不了解与女性生理和分娩过程有关的一系列共享和替代知识和“诀窍”,这些知识和“诀窍”没有医药产品和医疗干预。
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引用次数: 3
Analysis of fertility clinic marketing of complementary therapy add-ons 生育诊所辅助治疗附加产品营销分析
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.04.001
Julia Stein, Joyce C. Harper

Complementary therapies are often used during in-vitro fertilization (IVF) treatment. The aim of this study was to determine how UK fertility clinic websites are advertising complementary therapy add-ons. The Human Fertilisation and Embryology Authority’s (HFEA) ‘Choose a Fertility Clinic’ website was used to identify fertility clinics and their websites. Acupuncture, reflexology, nutritional advice and miscellaneous complementary therapies were examined to determine treatment provision and costs. Treatment claims for acupuncture and reflexology were analysed using an inductive coding approach, and categorized depending on whether they pertained to holistic benefits, physiological benefits or improvements to IVF treatment outcome. At least one complementary therapy was advertised by 17 of 66 (26%) websites. Acupuncture was the most commonly advertised complementary therapy (16/66 clinic websites, 24%), followed by nutritionist services (11/66, 17%), reflexology (10/66, 15%) and other miscellaneous complementary therapies (9/66, 14%). Treatment costs were found to range from less than £50 for individual appointments to hundreds of pounds for treatment packages. Treatments were not always offered in-house at the fertility clinic, but rather patients were referred to an affiliated practitioner. Analysing claims relating to the complementary therapies highlighted that there were differences in the extent to which clinics claimed that complementary therapies benefited IVF, and that information occasionally acknowledged scientific research evidence but did not always present resources in an unbiased manner. Fertility clinic websites should provide accurate information for patients for complementary therapy add-ons. HFEA should add acupuncture and reflexology to their traffic-light system with amber and red ratings, respectively.

辅助疗法通常用于体外受精(IVF)治疗。这项研究的目的是确定英国生育诊所网站是如何宣传补充治疗附加项目的。人类受精和胚胎学管理局(HFEA)的“选择生育诊所”网站被用来识别生育诊所及其网站。对针灸、反射疗法、营养建议和各种补充疗法进行了检查,以确定治疗提供和费用。针灸和反射疗法的治疗主张使用归纳编码方法进行分析,并根据它们是否涉及整体效益、生理效益或改善体外受精治疗结果进行分类。66个网站中有17个(26%)宣传了至少一种补充疗法。针灸是最常见的补充疗法(16/66诊所网站,24%),其次是营养师服务(11/66,17%),反射疗法(10/66,15%)和其他杂项补充疗法(9/66,14%)。治疗费用从个人预约不到50英镑到治疗套餐数百英镑不等。生育诊所并不总是提供内部治疗,而是将患者转介给附属医生。分析与补充疗法相关的声明强调,诊所声称补充疗法对试管婴儿有益的程度存在差异,信息偶尔承认科学研究证据,但并不总是以公正的方式提供资源。生育诊所网站应该为患者提供准确的补充治疗附加信息。HFEA应该在他们的红绿灯系统中增加针灸和反射疗法,分别用琥珀色和红色评级。
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引用次数: 10
Preconditions to parenthood: changes over time and generations 为人父母的先决条件:随着时间和世代的变化而变化
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.03.003
Maja Bodin , Charlotta Holmström , Lars Plantin , Lone Schmidt , Søren Ziebe , Eva Elmerstig

Reproductive decision-making and fertility patterns change with time and place, and are influenced by contemporary societal factors. In this paper, we have studied biosocial aspects of reproductive decision-making over time and generations in a Nordic setting. The aim was to explore intergenerational changes and influences on decision-making, especially regarding preconditions to first birth. Twenty-six focus group interviews were conducted in southern Sweden, including a total of 110 participants aged 17–90 years. The analysis of the interviews resulted in six themes: (i) ‘Providing security – an intergenerational precondition’; (ii) ‘A growing smorgasbord of choices and requirements’; (iii) ‘Parenthood becoming a project’; (iv) ‘Stretched out life stages’; (v) ‘(Im)possibilities to procreate’; and (vi) ‘Intergenerational pronatalism’. Our findings reflect increasing expectations on what it means to be prepared for parenthood. Despite increasing awareness of the precariousness of romantic relationships, people still wish to build new families but try to be as prepared as possible for adverse events. The findings also show how increasing life expectancy and medical advancements have come to influence people’s views on their reproductive timeline.

生殖决策和生育模式随着时间和地点的变化而变化,并受到当代社会因素的影响。在本文中,我们研究了生殖决策的生物社会方面随着时间和世代在北欧设置。其目的是探讨代际变化和对决策的影响,特别是关于第一胎的先决条件。在瑞典南部进行了26个焦点小组访谈,包括110名年龄在17-90岁之间的参与者。对访谈的分析产生了六个主题:(i)“提供安全-代际先决条件”;“越来越多的选择和要求”;“为人父母成为一个项目”;“延长人生阶段”;“生育的可能性”;(vi)“代际生育”。我们的发现反映了人们对为人父母的准备越来越高的期望。尽管越来越多的人意识到爱情关系的不稳定性,但人们仍然希望建立新的家庭,但尽量为不利事件做好准备。研究结果还显示了预期寿命的延长和医学的进步是如何影响人们对生育时间的看法的。
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引用次数: 10
Surrogacy reform and its impact on the child’s right to birth registration 代孕改革及其对儿童出生登记权的影响
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.06.001
Elaine O'Callaghan

The regulation and reform of surrogacy law will inevitably have an impact on the system of birth registration and the content of birth certificates. This Commentary considers deliberations around reform in Ireland, the UK and Australia, where different approaches have been adopted. In Ireland, for example, a surrogacy certificate has been proposed that will not reference the fact that the child was born as a result of surrogacy. Meanwhile, in the UK, it is proposed that the full birth certificate will record that it was a surrogate birth but will not record the identity of the surrogate. In Australia, a review of the role of states and territories regulating surrogacy has emphasized that not enough information is being recorded on birth certificates to safeguard children’s rights. I conclude that it is time to assess the purpose of a birth certificate and consider its role in realizing the child’s rights to birth registration and to identity under international human rights law.

《代孕法》的调整和改革,必然会对出生登记制度和出生证明内容产生影响。本评论考虑了爱尔兰、英国和澳大利亚围绕改革的审议,在这些国家采取了不同的方法。例如,在爱尔兰,已经提出了一份代孕证明,其中不会提及孩子是由于代孕而出生的事实。与此同时,在英国,有人提议,完整的出生证明将记录这是代孕,但不会记录代孕者的身份。在澳大利亚,对各州和地区监管代孕的作用进行的一项审查强调,出生证明上没有记录足够的信息来保护儿童的权利。我的结论是,现在是评估出生证明的目的并考虑其在实现儿童根据国际人权法获得出生登记和身份的权利方面的作用的时候了。
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引用次数: 2
Knowledge and attitudes about assisted reproductive technology: Findings from a Hungarian online survey 关于辅助生殖技术的知识和态度:来自匈牙利在线调查的结果
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.06.005
Ivett Szalma , Tamás Bitó

This study aimed to evaluate the general knowledge and attitudes about assisted reproductive technology (ART) and the influence of sociodemographic features on knowledge and attitudes in a large sample of men and women of reproductive age in Hungary. A cross-sectional online survey study was conducted among 1370 men and women between 18 and 50 years of age in Hungary. The questionnaire included questions about self-rated knowledge, an attitude item, and eight questions concerning general knowledge about ART. In addition, participants were asked sociodemographic background questions. The results show that approximately half of the respondents (49.3%) rated themselves as fairly knowledgeable about ART. However, 56% of the respondents answered just three of the eight knowledge questions correctly. Both men and women had limited knowledge about the success rate of ART, the costs of ART and the age limit to access ART. The greatest lack of knowledge about ART was about its risks: the majority of respondents did not know that in-vitro fertilization poses health risks for women and conceived children. Regarding attitudes, the majority of respondents had a very positive attitude towards ART. Only those respondents who were religious were less supportive of ART. These data suggest that men and women of reproductive age overestimate their ART-related knowledge. As most men and women would like to have biological children in Hungary, there is a critical need for public education.

本研究旨在评估匈牙利大量育龄男女样本中关于辅助生殖技术(ART)的一般知识和态度,以及社会人口特征对知识和态度的影响。一项横断面在线调查研究在匈牙利的1370名年龄在18至50岁 之间的男性和女性中进行。问卷包括自评知识题、态度题和8个关于抗逆转录病毒治疗的一般知识题。此外,参与者还被问及社会人口统计学背景问题。结果显示,大约一半的受访者(49.3%)认为自己对抗逆转录病毒治疗相当了解。然而,56%的受访者只正确回答了8个知识问题中的3个。男性和女性对抗逆转录病毒治疗的成功率、成本和获得抗逆转录病毒治疗的年龄限制的了解都很有限。对抗逆转录病毒治疗最缺乏的是对其风险的了解:大多数答复者不知道体外受精对妇女和怀孕儿童构成健康风险。在态度方面,大部分受访者对抗逆转录病毒治疗持非常积极的态度。只有那些有宗教信仰的受访者不太支持抗逆转录病毒治疗。这些数据表明,育龄男性和女性高估了他们的art相关知识。由于匈牙利的大多数男女都希望有亲生子女,因此迫切需要公共教育。
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引用次数: 9
Who can take advantage of medically assisted reproduction in Germany? 在德国,谁可以利用医学辅助生殖?
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.05.002
Katja Köppen , Heike Trappe , Christian Schmitt

Compared with other European societies, access to medically assisted reproduction (MAR) in Germany is rather restrictive. Surprisingly little is known about the actual utilization of MAR in Germany and its social selectivity, primarily due to a lack of appropriate data. This article studies the use of MAR by drawing on 11 waves of the German Family Panel (pairfam), an annual survey that collects data on partnership and family dynamics in Germany. In estimating pooled logistic regression models that take into account whether or not MAR has been used, the following treatments were included: (i) in-vitro fertilization or micro-fertilization; (ii) intrauterine insemination; and (iii) any type of surgery performed to treat infertility. The highest odds of seeking medical help for infertility were found among married, childless couples who had a higher income, a strong desire to have children, a poor self-assessed health status, and who reported having problems conceiving a child prior to the year of the interview. Among these married couples, those with an above-average income were particularly likely to use MAR. These findings indicate that social selectivity in the uptake of MAR is based on economic resources and on the importance of marriage as the cultural ideal for a ‘normal family’.

与其他欧洲社会相比,德国获得医疗辅助生殖的机会相当有限。令人惊讶的是,由于缺乏适当的数据,人们对德国MAR的实际使用情况及其社会选择性知之甚少。本文通过德国家庭调查小组(pairfam)的11次调查来研究MAR的使用,这是一项收集德国伙伴关系和家庭动态数据的年度调查。在估计是否使用MAR的合并逻辑回归模型时,包括以下处理:(i)体外受精或微受精;(ii)宫内人工授精;(iii)为治疗不孕症而进行的任何类型的手术。在没有孩子的已婚夫妇中,因不孕症寻求医疗帮助的几率最高,这些夫妇收入较高,有强烈的生孩子的愿望,自我评估的健康状况不佳,并且在采访前报告有怀孕问题。在这些已婚夫妇中,收入高于平均水平的夫妇特别有可能使用MAR。这些发现表明,社会对MAR的选择是基于经济资源和婚姻作为“正常家庭”文化理想的重要性。
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引用次数: 6
期刊
Reproductive Biomedicine and Society Online
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