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The opposite of a step parent – The genetics without any of the emotion: ‘sperm donors’ reflections on identity-release donation and relatedness 与继父母相反——没有任何情感的基因:“捐精者”对身份释放捐赠和血缘关系的反思
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2021.06.003
Susanna Graham

This paper draws upon data from an online survey with closed- and open-ended questions completed by 168 identity-release sperm donors who had all donated in the UK between 2010 and 2016. Paying particular attention to the qualitative data obtained from the donors’ responses to the open-ended questions, this paper explores the sperm donors’ thoughts and feelings about being an identity-release donor and about future information exchange and contact with offspring conceived with their gametes. It shows that the majority of donors regarded identity-release donation as their preferred method of donation, supported the removal of anonymity, did not have concerns about being an identity-release donor and indeed saw positives for both the donor-conceived offspring and themselves. However, it also highlights that the donors’ thoughts and feelings about being an identity-release sperm donor, how they saw themselves in relation to the individual conceived with their donation, and their preferences for information exchange and contact, varied greatly. The paper explores how identity-release donation is surrounding by many unknowns and consequentially sperm donors struggle to conceptualize what it means to be an identity-release sperm donor. As well as adding to the literature on donor conception, relatedness and kinship, by giving voice to sperm donors’ own views and experience of the identity-release regulatory context, and their thoughts and feelings about future information exchange, this paper will help policy makers and clinicians prepare for the imminent time when donor-conceived individuals in the UK can start requesting their donor’s identity.

这篇论文利用了一项在线调查的数据,该调查有168个公开身份的精子捐赠者完成的封闭式和开放式问题,他们在2010年至2016年期间都在英国捐赠了精子。本文特别关注从捐赠者对开放式问题的回答中获得的定性数据,探讨了精子捐赠者作为身份释放捐赠者的想法和感受,以及未来与其配子所生后代的信息交流和接触。研究表明,大多数捐赠者认为匿名捐赠是他们首选的捐赠方式,支持取消匿名,不担心成为匿名捐赠者,而且确实对捐赠者怀上的孩子和他们自己都有好处。然而,它也强调了捐献者对于作为一个释放身份的精子捐献者的想法和感受,他们如何看待自己与他们的捐赠所孕育的个体的关系,以及他们对信息交流和联系的偏好,都有很大的不同。本文探讨了身份释放捐赠是如何被许多未知因素所包围的,因此,精子捐赠者很难将身份释放精子捐赠者的含义概念化。通过表达精子捐献者对身份释放监管背景的个人观点和经验,以及他们对未来信息交换的想法和感受,本文不仅增加了关于捐赠者概念、亲缘关系和亲属关系的文献,还将帮助政策制定者和临床医生为即将到来的时刻做好准备,那时英国的捐赠者怀孕的个人可以开始要求他们的捐赠者的身份。
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引用次数: 2
The production of ignorance about medication abortion in Tunisia: between state policies, medical opposition, patriarchal logics and Islamic revival 突尼斯对药物流产的无知:在国家政策、医疗反对、父权逻辑和伊斯兰复兴之间
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2021.11.001
Irene Maffi

In Tunisia, medication abortion has been available in government reproductive and sexual health clinics since the early 2000s. Since its introduction, it has rapidly replaced the surgical method, and between 75% and 80% of abortions in the public sector were performed using the pharmacological protocol in 2016. In this article, I intend to discuss the various forms of ignorance about medication abortion that exist in Tunisia among several categories of actors in relation to the legal, medical and religious domains. I explore how the existing ‘varieties of ignorance’ are related to the specific political, social and economic positions of the involved actors, the dominant gender regime, specific institutional policies and economic interests. I also investigate how some forms of ignorance are wilfully produced by institutions and individuals, whereas others are the result of positionality or organizational features. I first describe when and how medication abortion was introduced in Tunisia and the forms of resistance it elicited; later, I examine the production of ignorance about this technology after the revolution of 2011. I mainly consider practices and discourses of health professionals, but also those of women seeking abortion care in the public sector, and those of the activists of a Tunisian non-governmental organization operating in the domain of women’s health and rights.

在突尼斯,自2000年代初以来,政府的生殖和性健康诊所就提供药物流产服务。自引入以来,它已迅速取代了手术方法,2016年,公共部门75%至80%的堕胎是使用药理学方案进行的。在本文中,我打算讨论突尼斯在法律、医疗和宗教领域的几类行为者中存在的对药物流产的各种形式的无知。我探讨了现存的“各种无知”是如何与相关行动者的特定政治、社会和经济地位、占主导地位的性别制度、特定的制度政策和经济利益相关联的。我还研究了某些形式的无知是如何由机构和个人故意产生的,而其他形式的无知则是位置性或组织特征的结果。我首先描述了突尼斯何时以及如何引入药物流产,以及它引发的抵制形式;之后,我考察了2011年革命后对这项技术的无知。我主要考虑保健专业人员的做法和言论,但也考虑在公共部门寻求堕胎护理的妇女的做法和言论,以及在妇女健康和权利领域开展活动的突尼斯非政府组织的活动家的做法和言论。
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引用次数: 0
Like mother, like daughter, like granddaughter… Transgenerational ignorance engendered by a defective reproductive health technology 像母亲一样,像女儿一样,像孙女一样…由有缺陷的生殖健康技术造成的跨代无知
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2021.10.001
Emmanuelle Fillion , Didier Torny

From 1941, the synthetic oestrogen diethylstilbestrol (DES) was administered to millions of women around the world to prevent miscarriages. In 1971, a clear and direct link was shown between taking DES during pregnancy and its subsequent long-term morbid effects on offspring. In the last 50 years, the list of side effects of in-utero exposure to DES has grown to include cancer, infertility, significant prematurity and urogenital malformation, amongst others. Based on qualitative sociological research conducted between 2010 and 2013, compiling archives, judicial documents and 108 interviews, this article illustrates a continuous production of ignorance in France. By focusing on DES as a reproductive health technology, three aspects are stressed. First, in terms of recognition of adverse effects, despite DES being identified as a prototype for other technologies such as the contraceptive pill or hormone replacement therapy, there remained a strong reluctance to import knowledge from the USA on its dangers and risks. Second, there was indifference to transgenerational side effects: even when the most visible effects of DES were finally acknowledged, there was a lack of consideration of the health of descendants; an inability to deem the knowledge of these repercussions as emancipatory or potentially empowering for the offspring. Third, regarding the health care of DES daughters, an important propensity to undone science is highlighted, with notable indifference to the risks of hormonalization of the female body, even on the part of activists. Thus, decades after it was last given to pregnant women, the shadow of DES still lingers as a failed reproductive health technology.

从1941年起,合成雌激素己烯雌酚(DES)被用于世界各地数百万妇女预防流产。1971年,一项明确而直接的研究表明,怀孕期间服用DES与其对后代的长期病态影响之间存在联系。在过去的50 年里,子宫内暴露于DES的副作用清单已经增长到包括癌症,不孕症,严重早产和泌尿生殖畸形等。本文基于2010年至2013年间进行的定性社会学研究,收集档案、司法文件和108次访谈,阐述了法国不断产生的无知。以DES作为生殖健康技术为重点,强调了三个方面。首先,在对不良反应的认识方面,尽管DES被认为是避孕药或激素替代疗法等其他技术的原型,但人们仍然强烈不愿意从美国进口有关其危险和风险的知识。其次,对跨代副作用漠不关心:即使DES最明显的影响最终得到承认,也缺乏对后代健康的考虑;不能把对这些影响的了解看作是对后代的解放或潜在的授权。第三,关于DES女儿的保健问题,强调了一种重要的不科学倾向,对女性身体激素化的风险明显漠不关心,即使是积极分子也是如此。因此,在最后一次给孕妇使用DES的几十年后,DES作为一项失败的生殖健康技术的阴影仍然挥之不去。
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引用次数: 2
Thank you to our distinguished editors 感谢我们杰出的编辑
Q1 Social Sciences Pub Date : 2022-03-01 DOI: 10.1016/j.rbms.2022.03.002
Kamal Ahuja (Chairman)
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引用次数: 0
Adopting an ‘unlearner’ technology? Knowledge battles over pharmaceutical pain relief in childbirth in post-1968 France 采用“不学习”技术?1968年后的法国,关于分娩药物镇痛的知识之争
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.03.002
Sezin Topçu

With a national rate of 82.4%, France is currently one of the world’s leading users of epidural analgesia (EA), which is promoted not just as a pain reliever but also as a technology that makes childbirth safer. Drawing on analytical tools from science and technology studies, reproductive studies and ignorance studies, I will show how this obstetric drug came to be widely used after significant knowledge/ignorance battles had been fought during heated public and medical controversy in the 1970s. Different visions of the ‘knowns’, the ‘unknowns’ and ‘know-how’ came into conflict in this context, supported by a series of moral, political and feminist justifications that were often at odds with one another. While the defenders of natural birth clashed with feminists, created ambiguities around conceptions of the maternal body, and struggled to produce large-scale clinical knowledge on the risks of EA, the defenders of EA put forward technological promises and biomedical modernization as a means to outstrip the knowledge wars. In the aftermath of this epistemic battle, EA was to gradually become an ‘unlearner’ technology; that is, a modern tool that radically silenced the maternal body and led to denial, disregard or unawareness of a whole range of shared and alternative knowledges and ‘know-how’ relating to female physiology and the birth process that are free of pharmaceutical products and medical interventions.

法国目前是世界上硬膜外镇痛(EA)的主要使用者之一,全国使用率为82.4%。硬膜外镇痛不仅被推广为止痛药,而且被视为一种使分娩更安全的技术。利用科学和技术研究、生殖研究和无知研究的分析工具,我将展示这种产科药物是如何在20世纪70年代激烈的公众和医学争议中进行了重大的知识/无知之战之后得到广泛使用的。在这种背景下,对“已知”、“未知”和“专有技术”的不同看法产生了冲突,并得到了一系列道德、政治和女权主义理由的支持,而这些理由往往彼此不一致。自然分娩的捍卫者与女权主义者发生冲突,在母体概念上制造歧义,并努力产生关于EA风险的大规模临床知识,而EA的捍卫者则提出技术承诺和生物医学现代化作为超越知识战争的手段。在这场认知之战之后,艺电逐渐成为一种“不学习”的技术;这是一种现代工具,从根本上使产妇身体沉默,导致否认、无视或不了解与女性生理和分娩过程有关的一系列共享和替代知识和“诀窍”,这些知识和“诀窍”没有医药产品和医疗干预。
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引用次数: 3
Analysis of fertility clinic marketing of complementary therapy add-ons 生育诊所辅助治疗附加产品营销分析
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.04.001
Julia Stein, Joyce C. Harper

Complementary therapies are often used during in-vitro fertilization (IVF) treatment. The aim of this study was to determine how UK fertility clinic websites are advertising complementary therapy add-ons. The Human Fertilisation and Embryology Authority’s (HFEA) ‘Choose a Fertility Clinic’ website was used to identify fertility clinics and their websites. Acupuncture, reflexology, nutritional advice and miscellaneous complementary therapies were examined to determine treatment provision and costs. Treatment claims for acupuncture and reflexology were analysed using an inductive coding approach, and categorized depending on whether they pertained to holistic benefits, physiological benefits or improvements to IVF treatment outcome. At least one complementary therapy was advertised by 17 of 66 (26%) websites. Acupuncture was the most commonly advertised complementary therapy (16/66 clinic websites, 24%), followed by nutritionist services (11/66, 17%), reflexology (10/66, 15%) and other miscellaneous complementary therapies (9/66, 14%). Treatment costs were found to range from less than £50 for individual appointments to hundreds of pounds for treatment packages. Treatments were not always offered in-house at the fertility clinic, but rather patients were referred to an affiliated practitioner. Analysing claims relating to the complementary therapies highlighted that there were differences in the extent to which clinics claimed that complementary therapies benefited IVF, and that information occasionally acknowledged scientific research evidence but did not always present resources in an unbiased manner. Fertility clinic websites should provide accurate information for patients for complementary therapy add-ons. HFEA should add acupuncture and reflexology to their traffic-light system with amber and red ratings, respectively.

辅助疗法通常用于体外受精(IVF)治疗。这项研究的目的是确定英国生育诊所网站是如何宣传补充治疗附加项目的。人类受精和胚胎学管理局(HFEA)的“选择生育诊所”网站被用来识别生育诊所及其网站。对针灸、反射疗法、营养建议和各种补充疗法进行了检查,以确定治疗提供和费用。针灸和反射疗法的治疗主张使用归纳编码方法进行分析,并根据它们是否涉及整体效益、生理效益或改善体外受精治疗结果进行分类。66个网站中有17个(26%)宣传了至少一种补充疗法。针灸是最常见的补充疗法(16/66诊所网站,24%),其次是营养师服务(11/66,17%),反射疗法(10/66,15%)和其他杂项补充疗法(9/66,14%)。治疗费用从个人预约不到50英镑到治疗套餐数百英镑不等。生育诊所并不总是提供内部治疗,而是将患者转介给附属医生。分析与补充疗法相关的声明强调,诊所声称补充疗法对试管婴儿有益的程度存在差异,信息偶尔承认科学研究证据,但并不总是以公正的方式提供资源。生育诊所网站应该为患者提供准确的补充治疗附加信息。HFEA应该在他们的红绿灯系统中增加针灸和反射疗法,分别用琥珀色和红色评级。
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引用次数: 10
Preconditions to parenthood: changes over time and generations 为人父母的先决条件:随着时间和世代的变化而变化
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.03.003
Maja Bodin , Charlotta Holmström , Lars Plantin , Lone Schmidt , Søren Ziebe , Eva Elmerstig

Reproductive decision-making and fertility patterns change with time and place, and are influenced by contemporary societal factors. In this paper, we have studied biosocial aspects of reproductive decision-making over time and generations in a Nordic setting. The aim was to explore intergenerational changes and influences on decision-making, especially regarding preconditions to first birth. Twenty-six focus group interviews were conducted in southern Sweden, including a total of 110 participants aged 17–90 years. The analysis of the interviews resulted in six themes: (i) ‘Providing security – an intergenerational precondition’; (ii) ‘A growing smorgasbord of choices and requirements’; (iii) ‘Parenthood becoming a project’; (iv) ‘Stretched out life stages’; (v) ‘(Im)possibilities to procreate’; and (vi) ‘Intergenerational pronatalism’. Our findings reflect increasing expectations on what it means to be prepared for parenthood. Despite increasing awareness of the precariousness of romantic relationships, people still wish to build new families but try to be as prepared as possible for adverse events. The findings also show how increasing life expectancy and medical advancements have come to influence people’s views on their reproductive timeline.

生殖决策和生育模式随着时间和地点的变化而变化,并受到当代社会因素的影响。在本文中,我们研究了生殖决策的生物社会方面随着时间和世代在北欧设置。其目的是探讨代际变化和对决策的影响,特别是关于第一胎的先决条件。在瑞典南部进行了26个焦点小组访谈,包括110名年龄在17-90岁之间的参与者。对访谈的分析产生了六个主题:(i)“提供安全-代际先决条件”;“越来越多的选择和要求”;“为人父母成为一个项目”;“延长人生阶段”;“生育的可能性”;(vi)“代际生育”。我们的发现反映了人们对为人父母的准备越来越高的期望。尽管越来越多的人意识到爱情关系的不稳定性,但人们仍然希望建立新的家庭,但尽量为不利事件做好准备。研究结果还显示了预期寿命的延长和医学的进步是如何影响人们对生育时间的看法的。
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引用次数: 10
Surrogacy reform and its impact on the child’s right to birth registration 代孕改革及其对儿童出生登记权的影响
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.06.001
Elaine O'Callaghan

The regulation and reform of surrogacy law will inevitably have an impact on the system of birth registration and the content of birth certificates. This Commentary considers deliberations around reform in Ireland, the UK and Australia, where different approaches have been adopted. In Ireland, for example, a surrogacy certificate has been proposed that will not reference the fact that the child was born as a result of surrogacy. Meanwhile, in the UK, it is proposed that the full birth certificate will record that it was a surrogate birth but will not record the identity of the surrogate. In Australia, a review of the role of states and territories regulating surrogacy has emphasized that not enough information is being recorded on birth certificates to safeguard children’s rights. I conclude that it is time to assess the purpose of a birth certificate and consider its role in realizing the child’s rights to birth registration and to identity under international human rights law.

《代孕法》的调整和改革,必然会对出生登记制度和出生证明内容产生影响。本评论考虑了爱尔兰、英国和澳大利亚围绕改革的审议,在这些国家采取了不同的方法。例如,在爱尔兰,已经提出了一份代孕证明,其中不会提及孩子是由于代孕而出生的事实。与此同时,在英国,有人提议,完整的出生证明将记录这是代孕,但不会记录代孕者的身份。在澳大利亚,对各州和地区监管代孕的作用进行的一项审查强调,出生证明上没有记录足够的信息来保护儿童的权利。我的结论是,现在是评估出生证明的目的并考虑其在实现儿童根据国际人权法获得出生登记和身份的权利方面的作用的时候了。
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引用次数: 2
Knowledge and attitudes about assisted reproductive technology: Findings from a Hungarian online survey 关于辅助生殖技术的知识和态度:来自匈牙利在线调查的结果
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.06.005
Ivett Szalma , Tamás Bitó

This study aimed to evaluate the general knowledge and attitudes about assisted reproductive technology (ART) and the influence of sociodemographic features on knowledge and attitudes in a large sample of men and women of reproductive age in Hungary. A cross-sectional online survey study was conducted among 1370 men and women between 18 and 50 years of age in Hungary. The questionnaire included questions about self-rated knowledge, an attitude item, and eight questions concerning general knowledge about ART. In addition, participants were asked sociodemographic background questions. The results show that approximately half of the respondents (49.3%) rated themselves as fairly knowledgeable about ART. However, 56% of the respondents answered just three of the eight knowledge questions correctly. Both men and women had limited knowledge about the success rate of ART, the costs of ART and the age limit to access ART. The greatest lack of knowledge about ART was about its risks: the majority of respondents did not know that in-vitro fertilization poses health risks for women and conceived children. Regarding attitudes, the majority of respondents had a very positive attitude towards ART. Only those respondents who were religious were less supportive of ART. These data suggest that men and women of reproductive age overestimate their ART-related knowledge. As most men and women would like to have biological children in Hungary, there is a critical need for public education.

本研究旨在评估匈牙利大量育龄男女样本中关于辅助生殖技术(ART)的一般知识和态度,以及社会人口特征对知识和态度的影响。一项横断面在线调查研究在匈牙利的1370名年龄在18至50岁 之间的男性和女性中进行。问卷包括自评知识题、态度题和8个关于抗逆转录病毒治疗的一般知识题。此外,参与者还被问及社会人口统计学背景问题。结果显示,大约一半的受访者(49.3%)认为自己对抗逆转录病毒治疗相当了解。然而,56%的受访者只正确回答了8个知识问题中的3个。男性和女性对抗逆转录病毒治疗的成功率、成本和获得抗逆转录病毒治疗的年龄限制的了解都很有限。对抗逆转录病毒治疗最缺乏的是对其风险的了解:大多数答复者不知道体外受精对妇女和怀孕儿童构成健康风险。在态度方面,大部分受访者对抗逆转录病毒治疗持非常积极的态度。只有那些有宗教信仰的受访者不太支持抗逆转录病毒治疗。这些数据表明,育龄男性和女性高估了他们的art相关知识。由于匈牙利的大多数男女都希望有亲生子女,因此迫切需要公共教育。
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引用次数: 9
Who can take advantage of medically assisted reproduction in Germany? 在德国,谁可以利用医学辅助生殖?
Q1 Social Sciences Pub Date : 2021-08-01 DOI: 10.1016/j.rbms.2021.05.002
Katja Köppen , Heike Trappe , Christian Schmitt

Compared with other European societies, access to medically assisted reproduction (MAR) in Germany is rather restrictive. Surprisingly little is known about the actual utilization of MAR in Germany and its social selectivity, primarily due to a lack of appropriate data. This article studies the use of MAR by drawing on 11 waves of the German Family Panel (pairfam), an annual survey that collects data on partnership and family dynamics in Germany. In estimating pooled logistic regression models that take into account whether or not MAR has been used, the following treatments were included: (i) in-vitro fertilization or micro-fertilization; (ii) intrauterine insemination; and (iii) any type of surgery performed to treat infertility. The highest odds of seeking medical help for infertility were found among married, childless couples who had a higher income, a strong desire to have children, a poor self-assessed health status, and who reported having problems conceiving a child prior to the year of the interview. Among these married couples, those with an above-average income were particularly likely to use MAR. These findings indicate that social selectivity in the uptake of MAR is based on economic resources and on the importance of marriage as the cultural ideal for a ‘normal family’.

与其他欧洲社会相比,德国获得医疗辅助生殖的机会相当有限。令人惊讶的是,由于缺乏适当的数据,人们对德国MAR的实际使用情况及其社会选择性知之甚少。本文通过德国家庭调查小组(pairfam)的11次调查来研究MAR的使用,这是一项收集德国伙伴关系和家庭动态数据的年度调查。在估计是否使用MAR的合并逻辑回归模型时,包括以下处理:(i)体外受精或微受精;(ii)宫内人工授精;(iii)为治疗不孕症而进行的任何类型的手术。在没有孩子的已婚夫妇中,因不孕症寻求医疗帮助的几率最高,这些夫妇收入较高,有强烈的生孩子的愿望,自我评估的健康状况不佳,并且在采访前报告有怀孕问题。在这些已婚夫妇中,收入高于平均水平的夫妇特别有可能使用MAR。这些发现表明,社会对MAR的选择是基于经济资源和婚姻作为“正常家庭”文化理想的重要性。
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引用次数: 6
期刊
Reproductive Biomedicine and Society Online
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