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Catholic voice and ART: revising the French bioethics law 天主教之声与艺术:修改法国生命伦理法
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2020.11.001
Séverine Mathieu

In France, assisted reproductive technology (ART) is regulated by a ‘law relative to bioethics’ voted by the French Parliament in 1994. This law undergoes regular parliamentary revision (in 2004 and 2011) and is currently under review (2019–2020). The most controversial issue at present is access to ART by lesbian couples and single women. The Catholic Church has taken an active part in these debates, despite the fact that France is a secular state, and religion is barred from interference in government policy. Nonetheless, the Church justifies its participation by presenting itself as a guardian of moral values and as an authority on issues related to the family. The Church’s discourse combines religious and secular arguments that foster what I call an ‘anxious rhetoric’, sometimes shared by other segments of the population. Drawing on an ethnographic survey of public debates that preceded and accompanied the present revision of the bioethics law, this article analyses Catholic arguments regarding the specific controversy of ART for lesbian couples and single women.

在法国,辅助生殖技术(ART)是由法国议会于1994年投票通过的一项“与生物伦理有关的法律”来管理的。该法在议会定期修订(2004年和2011年),目前正在审查中(2019-2020年)。目前最具争议的问题是女同性恋伴侣和单身女性获得抗逆转录病毒治疗的机会。尽管法国是一个世俗国家,宗教被禁止干涉政府政策,但天主教会积极参与了这些辩论。然而,教会的参与是正当的,因为它把自己表现为道德价值的守护者和有关家庭问题的权威。教会的话语结合了宗教和世俗的争论,形成了我所说的“焦虑的修辞”,有时也会被其他部分的人分享。根据对当前生物伦理学法修订之前和伴随的公共辩论的人种学调查,本文分析了天主教关于女同性恋伴侣和单身女性ART的具体争议的论点。
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引用次数: 3
(Not) wanting to choose: outside agencies at work in assisted reproductive technology (不想)选择:从事辅助生殖技术工作的外部机构
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2020.09.008
Anne-Sophie Giraud

Human choice and interventions that could seem to threaten the course of ‘nature’ or ‘chance’ are at the heart of controversies over assisted reproductive technology across Western countries. These debates focus predominately on so-called ‘selective reproductive technology’. While today, the technique of in-vitro fertilization (IVF) raises few political and bioethical debates in France and other Western countries, concerns remain that human intervention might replace ‘natural’ processes, threatening human procreation. These polemics focus on situations that require a decision, notably embryo selection and the fate of spare frozen embryos. The choices involved are induced by the technology and organized by the law. In the French legal system, IVF patients and professionals have the opportunity and, to a certain extent, the responsibility to decide on the status of in-vitro embryos. This article shows that, in these situations, both IVF patients and professionals invoke outside agencies (‘instances tierces’), both to avoid making decisions and to recover a world order in which procreation is not entirely subject to human decision. In short, there is a need to feel that procreation is not entirely dependent on human intervention; that individuals do not decide everything. It appears that the choices that are made, their nature and the type of outside agency that is invoked are highly situated.

人类的选择和干预似乎会威胁到“自然”或“偶然”的进程,这是西方国家关于辅助生殖技术争议的核心。这些争论主要集中在所谓的“选择性生殖技术”上。虽然今天,体外受精技术在法国和其他西方国家很少引起政治和生物伦理方面的争论,但人们仍然担心,人工干预可能会取代“自然”过程,威胁到人类的生殖。这些争论集中在需要做出决定的情况下,特别是胚胎选择和多余冷冻胚胎的命运。所涉及的选择是由技术诱导和法律组织的。在法国的法律体系中,试管婴儿患者和专业人员有机会,在一定程度上也有责任决定体外胚胎的状态。这篇文章表明,在这些情况下,试管婴儿患者和专业人员都求助于外部机构(“instances tierces”),既可以避免做出决定,也可以恢复生育不完全受人类决定支配的世界秩序。简而言之,有必要感到生殖并不完全依赖于人类的干预;个人不能决定一切。看来所作的选择、它们的性质和所援引的外部机构的类型都是高度适当的。
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引用次数: 1
Reprotech in France and the United States: Differences and similarities – an introduction 法国和美国的再保护:异同——介绍
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2021.02.001
Séverine Mathieu, Rayna Rapp
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引用次数: 1
Reprotech in France and the United States: comparisons, reproductive technology and migrapolitics 法国和美国的再保护:比较,生殖技术和移民政治
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2021.02.002
Charis Thompson
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引用次数: 1
Cross-border reproductive care in the USA: who comes, why do they come, what do they purchase? 美国的跨境生殖保健:谁来,他们为什么来,他们买什么?
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2020.09.003
Heather Jacobson

This article explores the participation of non-US-resident patients/clients in the US reproductive market, garnering a picture of cross-border reproductive care (CBRC) into the USA by drawing on the existing literature, identifying the frequency of and motivations for such arrangements, the primary sending countries, and the reproductive services sought. I find that although the expense of US CBRC necessarily limits the patient/client pool, it is largely non-economic factors that drive CBRC into the USA. The US CBRC patient/client base, which is diverse in terms of national origin, race and sexual orientation, is recruited by the US fertility industry and drawn to the full range of assisted reproductive technology (ART) services, such as in-vitro fertilization, surrogacy, oocyte donation and preimplantation genetic screening/preimplantation genetic diagnosis, available in the US market which are often restricted or limited in their countries of origin. CBRC patients/clients enjoy the legal clarity for establishing parentage and citizenship for their children available in the USA, as well as what some view as a medically and ethically superior ART market.

本文探讨了非美国居民患者/客户在美国生殖市场的参与情况,通过借鉴现有文献,确定这种安排的频率和动机,主要派遣国和寻求生殖服务,获得了美国跨境生殖护理(CBRC)的情况。我发现,尽管美国银监会的费用必然限制了患者/客户数量,但推动中国银监会进入美国的主要是非经济因素。美国CBRC的患者/客户群体在国籍、种族和性取向方面都是多样化的,他们是由美国生育行业招募的,并被美国市场上提供的各种辅助生殖技术(ART)服务所吸引,如体外受精、代孕、卵母细胞捐赠和植入前遗传学筛查/植入前遗传学诊断,这些服务在其原籍国通常是受限制的。CBRC的患者/客户在美国享有明确的法律,可以为他们的孩子建立亲子关系和公民身份,以及一些人认为在医学和道德上都更优越的ART市场。
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引用次数: 14
In-vitro gametogenesis on YouTube – epistemological performances from Strasbourg and Los Angeles YouTube上的体外配子发生——来自斯特拉斯堡和洛杉矶的认识论表演
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2020.12.001
Noémie Merleau-Ponty

YouTube hosts two records of interest for those interested in how human-stem-cell-derived gametes are made: one from the USA and one from France. Human-stem-cell-derived gametes, sometimes called ‘artificial gametes’ or ‘synthetic gametes’, are the result of in-vitro gametogenesis (IVG). IVG is a technology in the making that attempts to create oocytes and spermatozoa from embryonic cells or skin cells. This article presents some elements of these videos in written form, and asks what information is publicly available to ‘think with’, and what is not, when it comes to imagining the future of human reproduction. Focusing on the staging of science, this article argues that these videos represent ways of understanding and interrogating science, and display epistemological performances. The comparison is helpful to analyse how a shared global bioscientific authority is valued in these two locations, pointing at areas 'back stage' that the social sciences can illuminate.

对于那些对人类干细胞衍生的配子是如何产生感兴趣的人来说,YouTube上有两个有趣的记录:一个来自美国,一个来自法国。人类干细胞衍生的配子,有时被称为“人工配子”或“合成配子”,是体外配子发生(IVG)的结果。IVG是一种试图从胚胎细胞或皮肤细胞中产生卵母细胞和精子的技术。本文将以书面形式呈现这些视频的一些元素,并询问在想象人类生殖的未来时,哪些信息是可以公开“思考”的,哪些是不可公开的。本文着眼于科学的舞台,认为这些视频代表了理解和质疑科学的方式,并展示了认识论的表现。这种比较有助于分析在这两个地方如何评价共享的全球生物科学权威,指出社会科学可以阐明的“后台”领域。
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引用次数: 1
ART with PGD: risky heredity and stratified reproduction ART与PGD:风险遗传和分层繁殖。
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2020.09.007
Ilana Löwy

Preimplantation genetic diagnosis (PGD) was developed to allow women/couples at risk of having a child with ‘severe and incurable’ hereditary disease to produce embryos through in-vitro fertilization, followed by implantation of embryos devoid of mutated genes, allowing the birth of children free of the pathology present in the family. This article examines the highly regulated practice of PGD in France, the highly deregulated practice of PGD in the USA and Brazil, and the extensive use of this biomedical technology in Israel, and highlights the ways that distinct national policies produce distinct definitions of risk and different norms, standards and rules. PGD, this article argues, is a situated practice. Shaped to an important extent by legal and economic constraints, it displays the ways that new technologies continuously reframe our definitions of the normal and the pathological.

开发了植入前遗传学诊断(PGD),以便使有可能生下患有"严重和无法治愈的"遗传病的孩子的妇女/夫妇通过体外受精产生胚胎,然后植入没有突变基因的胚胎,从而使出生的孩子没有家庭中存在的病理。本文考察了法国高度管制的PGD实践,美国和巴西高度管制的PGD实践,以及以色列对这种生物医学技术的广泛使用,并强调了不同的国家政策产生不同的风险定义和不同的规范、标准和规则的方式。本文认为,PGD是一种情境实践。它在很大程度上受到法律和经济限制的影响,展示了新技术不断重塑我们对正常和病态的定义的方式。
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引用次数: 5
Reprint: Where has the quest for conception taken us? Lessons from anthropology and sociology 转载:对受孕的追求把我们带到了哪里?人类学和社会学的课程。
Q1 Social Sciences Pub Date : 2020-11-01 DOI: 10.1016/j.rbms.2021.03.001
Marcia C. Inhorn

Louise Brown, the world’s first test-tube baby, was born more than 40 years ago in England. For Louise Brown’s infertile mother, Lesley, in-vitro fertilization (IVF) was the ‘hope technology’ which allowed her to overcome her tubal infertility after 9 years of heart-breaking involuntary childlessness. Since then, IVF has travelled to diverse global locations, where millions of individuals and couples have embarked on technologically assisted ‘quests for conception’. After 40 years of IVF, where has the quest for conception taken us? This article outlines seven major global trajectories — namely, that the quest for conception has become more: (i) technological, because of a profusion of IVF-based innovations; (ii) masculine, because of men’s eager uptake of intracytoplasmic sperm injection, their own ‘masculine hope technology’; (iii) stratified, due to persistent race- and class-based barriers in IVF access; (iv) transnational, as infertile and other involuntarily childless people search across borders to overcome restrictions in their home countries; (v) selective, as IVF-based reprogenetic technologies eliminate genetic disease while exacerbating sex selection; (vi) moral, as religious sensibilities both accommodate and curtail the possibilities and outcomes of assisted reproductive technology (ART); and (vii) extended, as new cryopreservation technologies prolong the reproductive lifespan and extend reproduction to the transgender community. The article concludes with thoughts on where future quests for conception might take us, and why IVF and other reproductive technologies are ‘good to think with’ in both the anthropology and sociology of reproduction.

Louise Brown,世界上第一个试管婴儿,40多年前在英国出生。对于Louise Brown不孕的母亲Lesley来说,体外受精(IVF)是一项“希望技术”,使她在经历了9年令人心碎的无子女生活后,克服了输卵管不孕。从那时起,试管婴儿已经传播到全球不同的地方,在那里,数百万个人和夫妇开始了技术辅助的“受孕探索”。经过40年的试管婴儿,对受孕的追求将我们带到了哪里?这篇文章概述了七个主要的全球轨迹,即对受孕的追求变得更加强烈:(i)技术,因为大量基于试管婴儿的创新;(ii)男性化,因为男性渴望接受细胞质内精子注射,这是他们自己的“男性希望技术”;(iii)由于试管婴儿获取过程中持续存在的基于种族和阶级的障碍而分层;(iv)跨国,因为不孕不育和其他非自愿无子女的人跨越边境寻找,以克服本国的限制;(v) 选择性,因为基于试管婴儿的再生技术消除了遗传疾病,同时加剧了性别选择;(vi)道德,因为宗教敏感性既适应又限制辅助生殖技术的可能性和结果;以及(vii)延长,因为新的冷冻保存技术延长了生殖寿命,并将生殖扩展到转基因群体。文章最后思考了未来对受孕的探索可能会把我们带到哪里,以及为什么试管婴儿和其他生殖技术在生殖人类学和社会学中都是“值得思考的”。
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引用次数: 3
Adapting the 14-day rule for embryo research to encompass evolving technologies 调整胚胎研究的14天规则,以涵盖不断发展的技术
Q1 Social Sciences Pub Date : 2020-06-01 DOI: 10.1016/j.rbms.2019.12.002
Kate Williams , Martin H. Johnson

We consider the scientific evidence that research on in-vitro development of embryos beyond 14 days is necessary. We then examine potential new developments in the use of stem cells to make embryoids or synthetic human entities with embryo-like features, and consider whether they also require legal control. Next, we consider the arguments advanced against extending the 14-day period during which research on human embryos is currently permitted, and find none of them to be convincing. We end by proposing a new objective limit that could serve as a mechanism for regulating the use of embryos for research in vitro.

我们认为有科学证据表明,有必要研究14天以上胚胎的体外发育。然后,我们研究了利用干细胞制造胚胎样或具有胚胎样特征的合成人类实体的潜在新发展,并考虑它们是否也需要法律控制。接下来,我们考虑反对延长目前允许对人类胚胎进行研究的14天期限的论点,并发现其中没有一个是令人信服的。最后,我们提出了一个新的客观限制,可以作为调节体外研究中胚胎使用的机制。
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引用次数: 18
Where has the quest for conception taken us? Lessons from anthropology and sociology 对受孕的探索把我们带到了哪里?人类学和社会学的教训
Q1 Social Sciences Pub Date : 2020-06-01 DOI: 10.1016/j.rbms.2020.04.001
Marcia C. Inhorn

Louise Brown, the world’s first test-tube baby, was born more than 40 years ago in England. For Louise Brown’s infertile mother, Lesley, in-vitro fertilization (IVF) was the ‘hope technology’ which allowed her to overcome her tubal infertility after 9 years of heart-breaking involuntary childlessness. Since then, IVF has travelled to diverse global locations, where millions of individuals and couples have embarked on technologically assisted ‘quests for conception’. After 40 years of IVF, where has the quest for conception taken us? This article outlines seven major global trajectories — namely, that the quest for conception has become more: (i) technological, because of a profusion of IVF-based innovations; (ii) masculine, because of men’s eager uptake of intracytoplasmic sperm injection, their own ‘masculine hope technology’; (iii) stratified, due to persistent race- and class-based barriers in IVF access; (iv) transnational, as infertile and other involuntarily childless people search across borders to overcome restrictions in their home countries; (v) selective, as IVF-based reprogenetic technologies eliminate genetic disease while exacerbating sex selection; (vi) moral, as religious sensibilities both accommodate and curtail the possibilities and outcomes of assisted reproductive technology (ART); and (vii) extended, as new cryopreservation technologies prolong the reproductive lifespan and extend reproduction to the transgender community. The article concludes with thoughts on where future quests for conception might take us, and why IVF and other reproductive technologies are ‘good to think with’ in both the anthropology and sociology of reproduction.

40多年前,世界上第一个试管婴儿路易丝·布朗在英国出生。对于路易丝·布朗的不孕母亲莱斯利来说,体外受精(IVF)是“希望的技术”,让她在经历了9年令人心碎的非自愿无子女后,克服了输卵管性不孕症。从那时起,试管婴儿技术已经传播到全球各地,数百万个人和夫妇开始了技术辅助的“受孕探索”。经过40年的试管受精,对受孕的追求将我们带向何方?这篇文章概述了七个主要的全球轨迹——即,对受孕的追求变得更加:(i)技术,因为大量基于体外受精的创新;(ii)男性化,因为男性渴望摄取胞浆内单精子注射,他们自己的“男性化希望技术”;(iii)分层,由于在获得试管婴儿方面存在持续的种族和阶级障碍;跨国,因为不育和其他非自愿无子女的人跨越国界寻求克服其本国的限制;(v)选择性,因为基于体外受精的生殖技术消除了遗传性疾病,同时加剧了性别选择;道德的,因为宗教敏感性既容纳又限制辅助生殖技术的可能性和结果;(vii)延长,因为新的冷冻保存技术延长了生殖寿命,并将生殖扩展到跨性别群体。这篇文章总结了对未来探索受孕的思考,以及为什么试管婴儿和其他生殖技术在生殖人类学和社会学中都是“值得思考的”。
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引用次数: 18
期刊
Reproductive Biomedicine and Society Online
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