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Whom Do I Trust to Represent Me? Long-Term Care Resident and Family Perspectives on Legitimate Representation. 我相信谁会代表我?长期护理居民和家庭对合法代表的看法。
Q2 Medicine Pub Date : 2024-09-01 DOI: 10.12927/hcpol.2024.27414
Jeonghwa You, Katherine Boothe, Rebecca Ganann, Michael Wilson, Julia Abelson

Introduction: Public engagement in long-term care policy making in Canada has primarily focused on "intermediary agents" who speak on behalf of long-term care (LTC) residents and their family caregivers. Yet the legitimacy of these intermediaries, as perceived by those they represent, has gone largely unexplored. This study examines LTC resident and family perspectives on who can legitimately represent them in LTC policy making.

Methodology: We used an interpretive description design, drawing on semi-structured interviews with LTC residents and family caregivers in Ontario, Canada. Data were analyzed using inductive thematic analysis.

Results: Eighteen interviews were conducted with 19 participants. Three key characteristics of legitimate representatives were identified: (1) willingness to act in the best interests of residents and families, (2) having the necessary skills and capacity to participate in LTC policy making and (3) engaging directly with residents and families.

Conclusion: Governments and civil society organizations seeking to establish and maintain legitimacy in the eyes of LTC residents and family members can pursue this goal by supporting intermediaries who mirror the identities or experiences of those they represent, who are dedicated to serving their interests and who routinely and directly engage with them to understand the realities of LTC.

导言:加拿大公众对长期护理政策制定的参与主要集中在 "中介代理 "上,他们代表长期护理(LTC)居民及其家庭护理者发言。然而,这些中间人所代表的那些人对其合法性的看法在很大程度上尚未得到探讨。本研究探讨了长期护理居民和家庭对谁能在长期护理政策制定中合法代表他们的看法:我们采用解释性描述设计,对加拿大安大略省的长者照护中心居民和家庭照护者进行了半结构化访谈。采用归纳式主题分析法对数据进行分析:对 19 名参与者进行了 18 次访谈。确定了合法代表的三个主要特征:(1) 愿意以居民和家庭的最大利益为重,(2) 具备必要的技能和能力参与长期护理政策的制定,(3) 直接与居民和家庭接触:政府和民间社会组织要想在长 期护理机构居民和家庭成员心目中建立并保持合法性,可以通过支持那些反映其所代表的人 的身份或经历、致力于为他们的利益服务、经常直接与他们接触以了解长 期护理机构现实情况的中介机构来实现这一目标。
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引用次数: 0
A Canadian Call for Addressing Physical Health in Specialized Mental Health Settings. 加拿大呼吁在专门的心理健康环境中解决身体健康问题。
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27475
Cara Evans, Christopher Canning, Munazzah Ambreen, Brian Lo, Mary Rose Van Kesteren, Caroline M E Walker, Vicky Stergiopoulous

People with serious mental illness experience poorer physical health and higher mortality rates than the general population. One option for responding to this disparity is reverse integration, which promotes physical health monitoring in secondary and tertiary mental health settings. Health leaders in Canada can learn from reverse integration approaches that have been adopted or proposed in other jurisdictions. We conducted a jurisdictional scan and applied the 3I framework for policy analysis to suggest that Canadian adaptations of existing approaches should foreground equity, build on existing infrastructure and human resources and prioritize leadership of people with lived experience.

与一般人群相比,患有严重精神疾病的人身体健康状况较差,死亡率较高。应对这种差异的一种选择是反向整合,即在二级和三级精神卫生机构中促进身体健康监测。加拿大的卫生领导人可以借鉴其他司法管辖区采用或建议采用的反向一体化办法。我们进行了司法管辖区扫描,并将3I框架应用于政策分析,以建议加拿大对现有方法的适应应该突出公平,建立在现有基础设施和人力资源的基础上,并优先考虑有实际经验的人的领导。
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引用次数: 0
Does Productivity in Healthcare Matter? An Unfortunate Post-Pandemic Legacy. 医疗保健行业的生产力重要吗?大流行后的不幸遗产。
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27521
Jason M Sutherland

In speeches this year, a bank of canada official announced that our country experienced no growth in productivity over the past two years (Rogers 2024a, 2024b). To improve this predicament, the bank says businesses should focus on adding value and being more efficient. These recommendations should be heeded by healthcare - the industry exceeds 12% of Canada's gross domestic product and is growing (CIHI 2024b).

在今年的演讲中,加拿大银行的一位官员宣布,我国在过去两年中没有经历生产力的增长(Rogers 2024a, 2024b)。为了改善这种困境,世界银行表示,企业应该专注于增加价值和提高效率。这些建议应该得到医疗保健行业的重视——该行业超过加拿大国内生产总值的12%,并且还在增长(CIHI 2024b)。
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引用次数: 0
Reasons for High Emergency Department Use Among Patients With Common Mental Disorders or Substance-Related Disorders. 常见精神障碍或药物相关障碍患者大量使用急诊科的原因。
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27333
Karine-MichÈle Dion, Francine Ferland, Lambert Farand, Lise Gauvin, Marie-JosÉe Fleury

Aims: This study examined the reasons for high emergency department (ED) use among patients with common mental disorders (MDs), substance-related disorders (SRDs) or co-occurring MDs-SRDs.

Method: Following content analysis, 42 high ED users (three-plus visits/year) recruited in two Quebec EDs were interviewed.

Results: The reasons included barriers to outpatient care, patient disabilities and professional practices. Patients with SRDs trust outpatient services less, those with MDs had important unmet needs and those with MDs-SRDs faced care coordination issues.

Conclusion: Improvements such as ED use monitoring, consolidating MD-SRD practices and continuous training are needed in EDs and outpatient services to enhance access and continuity of care.

目的:本研究探讨了患有常见精神障碍(MDs)、药物相关障碍(SRDs)或精神障碍与药物相关障碍并发的患者频繁使用急诊科(ED)的原因:方法:在对内容进行分析后,对魁北克两家急诊室招募的 42 名急诊室高使用率患者(每年就诊三次以上)进行了访谈:原因包括门诊治疗障碍、患者残疾和专业实践。有 SRD 的患者对门诊服务的信任度较低,有 MD 的患者有重要需求未得到满足,有 MD-SRD 的患者面临护理协调问题:结论:需要对急诊室和门诊服务进行改进,如监测急诊室的使用情况、整合 MD-SRD 实践和持续培训,以提高护理的可及性和连续性。
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引用次数: 0
Commentary: Which Principles Should Apply for a National Strategy on Rare Diseases? 评论:国家罕见病战略应适用哪些原则?
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27353
Marc-AndrÉ Gagnon

Lexchin and Sirrs (2024) proposed five relevant principles to guide the use of federal funding for expensive drugs for rare diseases, including funding of outcomes-based risk-sharing agreements (OBRSAs) and proactive commitment and participation in the generation of high-quality evidence in a transparent way. This rejoinder, however, questions whether the federal funding should be used only to buy new drugs or whether it could be used to develop new drugs as well. It also examines what OBRSAs would require in terms of institutional capacities to allow the collection of real-world evidence.

Lexchin 和 Sirrs(2024 年)提出了五项相关原则,以指导联邦资助罕见病昂贵药物的使用,包括资助基于结果的风险分担协议 (OBRSA),以及以透明的方式积极承诺和参与高质量证据的生成。然而,这篇反驳文章质疑联邦资金是否只应用于购买新药,还是也可用于开发新药。它还探讨了 OBRSA 在机构能力方面的要求,以便收集真实世界的证据。
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引用次数: 0
Quality of Work Life and Mental Well-Being for Long-Term Care Staff in Nova Scotia. 新斯科舍省长期护理人员的工作生活质量和心理健康。
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27348
Janice M Keefe, Amber Duynisveld, Susan Stevens, Carole Estabrooks

This study assesses the quality of work life for Nova Scotian continuing care assistants (CCAs) (n = 266), nurses (n = 144) and managers (n = 45) from 10 long-term care (LTC) homes in late 2021. CCAs scored significantly worse than nurses and managers on measures of mental health and anxiety. All groups reported high levels of cynicism and emotional exhaustion; CCAs' scores were higher than nurses or managers. CCAs scored significantly higher on professional efficacy than other groups. CCAs can derive a strong sense of accomplishment from their work, but results raise concerns of a potential breaking point. This suggests the need for continued action to support LTC staff.

本研究评估了新斯科舍省持续护理助理(CCAs)(n = 266)、护士(n = 144)和管理人员(n = 45)在 2021 年底的工作生活质量,他们来自 10 家长期护理(LTC)机构。在心理健康和焦虑方面,CCAs 的得分明显低于护士和管理人员。所有组别都报告了较高程度的愤世嫉俗和情感衰竭;CCA 的得分高于护士或管理人员。在专业效能方面,CCA 的得分明显高于其他组别。总护理师可以从工作中获得强烈的成就感,但结果也让人担心他们的工作可能会出现崩溃。这表明有必要继续采取行动,为 LTC 员工提供支持。
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引用次数: 0
Changes in Primary Care Health Services During the COVID-19 Pandemic: A Longitudinal Analysis of Data From Ontario. COVID-19 大流行期间初级保健服务的变化:安大略省数据纵向分析。
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27362
Onlak Ruangsomboon, Adrina Zhong, Alexander Kopp, Beth Elston, Kirsten Eldridge, Samantha Lee, Erin Plenert, Andrew D Pinto, Richard H Glazier, Tara Kiran

The COVID-19 pandemic significantly impacted primary care, but its effect on quality of care is not well understood. We used health administrative data to understand the changes in quality-of-care measures for primary care between October 2018 and April 2022. We examined the following domains: cancer screening, chronic disease (diabetes) management, high-risk prescribing, continuity of care and capacity of primary care services. Colorectal and breast cancer screenings declined after the pandemic and had not returned to baseline by study end. In patients living with diabetes, in-person visits and up-to-date retinopathy screening rates declined after the pandemic declaration and did not return to baseline by study end, while statin prescribing remained stable. High-risk opioid prescribing decreased over time and was not affected by the pandemic. Physician continuity remained stable, though new patient enrollments decreased over the pandemic but returned to baseline by study end. Existing disparities in colorectal cancer screening by income and recent registration widened during the pandemic. In summary, COVID-19 had a variable impact on primary care, with the strongest influence on preventive and chronic disease care that was dependent on in-person visits.

COVID-19 大流行对初级医疗产生了重大影响,但其对医疗质量的影响还不甚了解。我们利用卫生行政数据了解了 2018 年 10 月至 2022 年 4 月间初级医疗保健质量措施的变化。我们考察了以下领域:癌症筛查、慢性病(糖尿病)管理、高风险处方、医疗连续性和初级医疗服务能力。大流行后,结直肠癌和乳腺癌筛查率有所下降,到研究结束时仍未恢复到基线水平。在糖尿病患者中,亲自就诊率和最新视网膜病变筛查率在大流行后有所下降,到研究结束时仍未恢复到基线水平,而他汀类药物的处方则保持稳定。高风险阿片类药物的处方量随时间推移有所减少,但并未受到大流行病的影响。医生的连续性保持稳定,尽管新病人注册人数在大流行期间有所减少,但到研究结束时已恢复到基线水平。大流行期间,结直肠癌筛查中因收入和最近注册情况而存在的差异有所扩大。总之,COVID-19 对初级保健产生了不同程度的影响,其中对依赖于亲自就诊的预防性保健和慢性病保健的影响最大。
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引用次数: 0
Commentary: Reducing the Mortality Gap for the Mentally Ill - Rethinking How and Where We Provide Care. 评论:减少精神疾病的死亡率差距-重新思考我们如何和在哪里提供护理。
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27482
Nick Kates

The mortality gap faced by Canadians living with a severe and persistent mental illness is a national scandal. If we are to change this and take advantage of the possibilities that reverse integration presents, we need to rethink the ways our systems of care function and remove barriers to accessing care while tapping the full potential of collaborative partnerships, moving to earlier interventions with this population and integrating poverty reduction into all our work. Above all, we need to be much more effective in bringing these issues into the public discourse.

患有严重和持续性精神疾病的加拿大人面临的死亡率差距是一个全国性的丑闻。如果我们要改变这种状况并利用逆转一体化所带来的可能性,我们需要重新思考我们的护理系统的运作方式,消除获得护理的障碍,同时充分挖掘合作伙伴关系的潜力,对这一人群采取更早的干预措施,并将减贫纳入我们的所有工作。最重要的是,我们需要更有效地将这些问题纳入公众讨论。
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引用次数: 0
How Good Reforms Fail: The Warning Example of Alberta's Borderless EMS System. 好的改革是如何失败的:阿尔伯塔省无国界医疗服务系统的警示例子。
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27476
Janna Newton, Travis Carpenter, Jennifer Zwicker

When ill, many Albertans' first interaction with their healthcare system is Alberta's centralized emergency medical services (EMS) system operated by Alberta Health Services (AHS). The media has become saturated with articles articulating concerns about lagging response time, limited ambulance availability and poor work conditions. As Alberta undergoes restructuring of the EMS system by Alberta Health and AHS, there are lessons to be learned from prior EMS restructuring. It is crucial that front-line paramedics are heard and their concerns addressed regarding implemented policies. Several policy recommendations focus on optimizing operations and improving the working environment for paramedics in the long term.

当生病时,许多阿尔伯塔人与医疗保健系统的第一次互动是由阿尔伯塔卫生服务(AHS)运营的阿尔伯塔集中紧急医疗服务(EMS)系统。媒体上充斥着表达对反应时间滞后、救护车供应有限和工作条件恶劣的担忧的文章。由于阿尔伯塔省卫生部和安联正在对EMS系统进行改组,因此可以从以前的EMS改组中吸取教训。听取一线护理人员的意见并解决他们对实施政策的关切至关重要。若干政策建议侧重于长期优化护理人员的操作和改善工作环境。
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引用次数: 0
Whose Accountability Matters in Long-Term Care? 谁的责任在长期护理中重要?
Q2 Medicine Pub Date : 2024-08-01 DOI: 10.12927/hcpol.2024.27420
Michaella Miller, Ellen Maceachen

In response to quality issues within the long-term care (LTC) sector, the Government of Ontario implemented the Fixing Long-Term Care Act, 2021, and updated accountability and compliance measures, including doubling fines for non-compliance and investing in 193 new inspectors. However, enforcement tactics and inspection regimes may contribute to harm and neglect the root issues within the sector. Fines for non-compliance may create catch-22 situations in which homes lack the funds to fix the root issues. Governments also dictate and determine much of the resource allocation within the LTC sector. Accountability and quality improvement should involve addressing performance problems as a system.

为了应对长期护理(LTC)行业的质量问题,安大略省政府实施了2021年的《修复长期护理法案》(Fixing long-term care Act),并更新了问责制和合规措施,包括对违规行为的罚款翻倍,并投资193名新检查员。然而,执法策略和检查制度可能会造成伤害,并忽视该部门的根本问题。对违规行为的罚款可能会造成第22条军规,即家庭缺乏解决根本问题的资金。政府还支配和决定LTC部门的大部分资源配置。问责制和质量改进应该包括将绩效问题作为一个系统来处理。
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引用次数: 0
期刊
Healthcare Policy
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