A booklet was developed in Canada in 2005 to inform family caregivers of people with dementia about end-of-life care. A Dutch version was published in 2011 after evaluation and revision. Developments in research and society call for a second revision. The aim of this study was to map out users' (family caregivers and healthcare professionals) preferences regarding the look and feel, and content of the booklet. To this end, in addition to the current paper booklet, we created a prototype website and app, along with three illustration options. Twenty-one family caregivers and nineteen healthcare professionals completed a questionnaire about their preferences. Open ended questions were analyzed using content analysis, multiple-choice questions using descriptive analysis. The participants valued the question-answer format. They perceived the text as too medically oriented and they expressed a need for more inclusive language and broader information. The participants found images of people suitable for the booklet and they preferred the illustrations to be less focused on the medical context. The participants preferred the paper booklet and a website. By understanding family caregivers' and healthcare professionals' preferences, in the second revision, the booklet can be tailored to the user. It is expected that this tailoring will support informing family caregivers about end-of-life care.
Background: There is growing attention for freedom of movement as part of person-centred dementia care. Although a closed door can reduce safety risks, it also reduces quality of life. Care organization tanteLouise strives for maximum responsible freedom for residents with dementia. Nevertheless, residents are sometimes transferred from an open to a closed psychogeriatrics (PG) department.
Aim: To explore healthcare professionals' considerations in transferring residents from an open to a closed psychogeriatrics [PG] ward within tanteLouise.
Method: Semi-structured in-depth interviews with carers and nurses from open and closed PG and a multidisciplinary focus group. The data has been analyzed thematically.
Findings: According to the participants, both open and closed PG can provide a suitable living environment, depending on individual residents. Open PG facilitates freedom and self-direction, and closed PG offers security, structure and expert guidance. Before a transfer, the multidisciplinary team discusses possibilities and risks on open PG. Despite this, residents regularly move to closed PG without a valid reason. Participants strive for more freedom for residents with dementia, for which they believe preconditions are still lacking.
Conclusion: The provided structure and expert guidance on closed PG must also be present on open PG to maintain freedom for residents with dementia. In addition, a culture change and preconditions from the organization are necessary.
Abstracts.
Background: The Personality Inventory for DSM-5 Brief Form + Modified (PID-5-BF+M) is a self-report questionnaire measuring maladaptive personality traits, as defined by the dimensional classifications of personality disorders in DSM-5 Section 3 and ICD-11. The instrument combines both classifications to capture six personality domains and 18 underlying personality facets, operationalized by two items each. This study examined the construct validity of this questionnaire in older adults, by examining the factor structure and the reliability of the domains and facets. Additionally, the study investigated the relationship between maladaptive personality traits and resilience, as measured by the Connor-Davidson Resilience Scale (CD-RISC).
Method: The PID-5-BF+M was administered to 251 older adults from the general population, 104 of the respondents also filled in the CD-RISC.
Results: The hierarchical factor structure of the PID-5-BF+M was corroborated in in older adults. Additionally, the domain and facet scales were found to be internally consistent. The correlations with the CD-RISC showed logical associations. The domain of Negative Affectivity and the facets Emotional Lability, Anxiety and Irresponsibility were negatively associated with resilience.
Conclusion: Based on these results, this study supports the construct validity of the PID-5-BF+M in older adults. However, future research on the age-neutrality of the instrument is still needed.