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[Assessing quality of life in older adults living at home: Overview and justification of fourteen relevant domains]. [评估居家老年人的生活质量:14个相关领域的概述和理由]。
Q4 Nursing Pub Date : 2021-07-26 DOI: 10.36613/tgg.1875-6832/2021.03.02
Miriam van Loon, Karen van Leeuwen, Raymond Ostelo, Guy Widdershoven, Judith Bosmans

An increasing group of older adults living at home in the Netherlands requires proper support through the use of services. Determining important outcomes is crucial in this respect. For this specific group, broad outcomes in terms of quality of life (QoL) are relevant, focusing on the influence of services on capabilities. This article describes the development and content of the ASCOT-NL (Adult Social Care Outcomes Toolkit, Dutch version) and the EQLT (Extended Quality of Life Tool), and highlights application possibilities in the evaluation of care. Both instruments aim to measure effects of care on QoL of elderly people living at home in multiple relevant domains. The ASCOT-NL has eight domains, the EQLT includes these eight domains and adds six domains, resulting in a total of fourteen domains. The domains of the ASCOT-NL are based on the goals of social support and care; the additional domains of the EQLT are based on empirical research on QoL from the perspective of older people living at home and how care can contribute to QoL.

在荷兰,越来越多的老年人住在家里,需要通过使用各种服务得到适当的支持。在这方面,确定重要成果至关重要。对于这一特定群体,生活质量(QoL)方面的广泛结果是相关的,重点是服务对能力的影响。本文描述了ASCOT-NL(成人社会护理结果工具包,荷兰版)和EQLT(延长生活质量工具)的发展和内容,并强调了在护理评估中的应用可能性。这两种工具旨在衡量护理在多个相关领域对居家老年人生活质量的影响。ASCOT-NL有8个域,EQLT包括这8个域并增加6个域,共14个域。ASCOT-NL的领域是基于社会支持和关怀的目标;EQLT的其他领域基于从居住在家中的老年人的角度对生活质量的实证研究,以及护理如何有助于生活质量。
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引用次数: 0
Menswaardig leven met dementie. 与痴呆症一起过有尊严的生活。
Q4 Nursing Pub Date : 2021-07-20 DOI: 10.36613/tgg.1875-6832/2021.03.05
John Ekkerink
Dementie is voor veel mensen een schrikbeeld: ‘Als ik dement word, wil ik een spuitje.’ Maar verreweg de meeste mensen met dementie worden niet de-ment = zonder geest. Zij overlijden door een andere oorzaak voordat de dementie zijn verwoestende werk tot het ‘demente’ eindstadium heeft kunnen volbrengen. Naast patiënt, iemand die lijdt aan een ongeneeslijke ziekte, blijven mensen met dementie mensen zoals u en ik, met dit verschil: zij krijgen een heleboel problemen die wij niet hebben. Problemen met geheugen, taal, handelen en begrijpen. En waar het verstand wijkt, krijgt het gevoel alle ruimte. Sentio ergo sum: ik voel, dus ik besta. Mensen met dementie zijn vaak heel geestig en geestrijk en kunnen vaak net als een kind eerlijk, openhartig en ad rem reageren. Als zij de wereld met hun verstand niet meer kunnen begrijpen, gaan zij af op hun gevoel. Hoe tegen hen gepraat wordt, wat lichaamstaal hen laat zien. Zij prikken snel door een benadering die niet authentiek is.
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引用次数: 0
[Five years University Practice of Elderly Care: users, care provided, costs and experiences]. [五年大学老年护理实践:用户、提供的护理、成本和经验]。
Q4 Nursing Pub Date : 2021-06-09 DOI: 10.36613/tgg.1875-6832/2021.02.03
Brigit Ronde, Hana Broulikova, Judith Bosmans, Franka Meiland

The increasing number of elderly people living at home demands a strengthening of primary care for (vulnerable) older adults. Therefore, in 2015 the VU University Medical Centre in Amsterdam founded the Universitaire Praktijk Ouderengeneeskunde (UPO) (University Practice for Elderly Care). This practice makes the expertise of the Elderly Care physician (SO) available in primary care through a close and easy accessible collaboration between the SO and the General Practitioner. The aim of this research is an evaluation of the UPO, in order to determine the added value of this care innovation and to identify areas for improvement. This research consists of a quantitative part in which the characteristics of the 190 treated UPO patients have been assessed. Also, costs have been estimated of UPO care compared to expected usual care. The qualitative part of this study consists of 22 interviews with the most important UPO stakeholders. The results of this study show  that 1) the UPO seems to meet a demand from general practitioners to support them in the care of vulnerable elderly people with mostly cognitive disorders, 2) this care seems to save costs and 3) the UPO was appreciated by most of those involved. The current results call for applying this care innovation in other regions and to evaluate it on a larger scale.

越来越多的老年人住在家里,要求加强对(脆弱的)老年人的初级保健。因此,2015年阿姆斯特丹自由大学医学中心成立了Universitaire Praktijk Ouderengeneeskunde (UPO)(老年护理大学实践)。这种做法使老年护理医生(SO)的专业知识可以通过SO和全科医生之间的密切和容易获得的合作在初级保健中使用。本研究的目的是对UPO进行评估,以确定这种护理创新的附加价值,并确定需要改进的领域。本研究包括定量部分,其中对190例治疗的UPO患者的特征进行了评估。此外,与预期的常规护理相比,估计了UPO护理的费用。本研究的定性部分包括与最重要的UPO利益相关者的22次访谈。本研究结果显示:1)UPO似乎满足了全科医生的需求,支持他们照顾以认知障碍为主的弱势老年人;2)这种照顾似乎节省了成本;3)UPO得到了大多数参与者的赞赏。目前的结果要求在其他地区应用这种护理创新,并对其进行更大规模的评估。
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引用次数: 1
[How "elderly-proof" are the current medical specialist guidelines in the Netherlands?] [荷兰目前的医学专家指南有多“防老”?]
Q4 Nursing Pub Date : 2021-06-09 DOI: 10.36613/tgg.1875-6832/2021.02.02
Nicky A B de Rooij, Marlies Verhoeff, Rianne Lindeboom, Carolien M J van der Linden, Barbara C van Munster

The prevalence of multimorbidity increases with age, with over 70% of people aged 75 years and over having three or more chronic conditions, often combined with frailty. In current medical practice, evidence-based medicine with evidence-based guidelines forms the basis for treatment. The aim of this study is to determine the practical applicability of the current medical specialist guidelines for the treatment of the heterogeneous group of older patients. All guidelines from the Dutch guidelines database were examined. Twelve guidelines identified as elderly-specific were compared with the recommendations from the 'methodology for the development of guidelines tailored to the elderly'. In 117 guidelines (54%) general terms such as 'older' or 'elderly' were found. An age limit was mentioned in 26 guidelines (12%). The term 'frailty' was mentioned in 38 guidelines (18%), the term 'comorbidity' in 107 (50%) and cognitive problems in eight (4%). Five age-specific guidelines distinguished frail from non-frail older people. Three guidelines discussed relevant outcome measures for the elderly. The results show that the practical applicability of current guidelines is not optimal for the various groups of older people. In our opinion, the improvement of the guidelines preferably by implementation of the Dutch methodology for senior-proof guidelines is a necessary first step in making the current second-line evidence-based guidelines in the Netherlands usable for the growing group of frail and multimorbid elderly.

多病的患病率随着年龄的增长而增加,75岁及以上的人群中有70%以上患有三种或三种以上的慢性疾病,通常伴有虚弱。在目前的医学实践中,循证医学和循证指南构成了治疗的基础。本研究的目的是确定当前医学专家指南的实际适用性,以治疗异质组老年患者。审查了荷兰指南数据库中的所有指南。将确定为针对老年人的12项指导方针与“针对老年人制定指导方针的方法”中的建议进行比较。在117份指南中(54%)发现了“年长”或“老年”等一般术语。26条(12%)指南中提到了年龄限制。38份指南(18%)提到了“虚弱”一词,107份(50%)提到了“共病”一词,8份(4%)提到了认知问题。五项针对特定年龄的指南区分了体弱和非体弱的老年人。三个指南讨论了老年人的相关结果测量。结果表明,现行指南的实际适用性并不适合各种老年人群体。我们认为,最好是通过实施荷兰的高级证据指南方法来改进指南,这是使荷兰目前的二线循证指南适用于日益增多的体弱和多病老年人群体的必要的第一步。
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引用次数: 0
[Case managers' perceptions on their role in (future) euthanasia requests in patients with dementia]. [案例管理者对他们在(未来)痴呆患者安乐死请求中所扮演角色的看法]。
Q4 Nursing Pub Date : 2021-06-09 DOI: 10.36613/tgg.1875-6832/2021.02.04
Marjolijn van Daalen, Eefje Sizoo, Simone Hendriks, Annelie Monnier, Marike de Boer, Cees Hertogh

To anticipate future suffering due to dementia a growing number of people draft written advance euthanasia directives (AED). In actual practice the number of cases of euthanasia in advanced dementia is very limited. Dementia case managers are often closely involved since an early stage of the disease in the support and guidance of people with dementia and are well positioned to talk about the AED. This study aims to acquire insights into the way case managers deal with AEDs of people suffering from dementia. This qualitative study consists of two focus groups of ten case managers in total. Involvement of case managers was found to extend beyond discussing merely AEDs, to also the broader discussion of euthanasia and 'future euthanasia wishes' of patients with dementia. A thematic analysis of how case managers proceed with future euthanasia wishes yielded five themes: 1) Scenarios in practice; 2) Introduction of a written euthanasia directive as a conversation topic; 3) Guidance and support of the client and caregiver; 4) Cooperation with other health care workers; 5) Experienced dilemmas. The insights, provided by this study, into the role of case managers regarding the guidance of people with dementia and a future euthanasia wish contributes to a further optimization of the multidisciplinary collaboration between general practitioners and dementia case managers. Further research into the added value of this collaboration in dealing with these complicated issues around euthanasia in dementia care, is recommended.

为了预测未来因痴呆症而遭受的痛苦,越来越多的人起草了书面的提前安乐死指令(AED)。在实际实践中,晚期痴呆症患者的安乐死案例非常有限。痴呆症病例管理人员通常从疾病的早期阶段就密切参与支持和指导痴呆症患者,并且能够很好地谈论AED。本研究旨在深入了解病例管理人员处理老年痴呆症患者的AEDs的方式。本定性研究由两个焦点小组共十个案例管理者组成。研究发现,病例管理人员的参与不仅仅局限于讨论aed,还涉及到更广泛的关于安乐死和痴呆症患者“未来安乐死愿望”的讨论。对案例管理者如何处理未来安乐死愿望的专题分析产生了五个主题:1)实践中的场景;2)引入书面安乐死指令作为谈话话题;3)来访者和照顾者的指导和支持;4)与其他医护人员的合作;5)经历过困境。本研究提供的关于病例管理人员在指导痴呆症患者和未来安乐死愿望方面的作用的见解有助于进一步优化全科医生和痴呆症病例管理人员之间的多学科合作。建议进一步研究这种合作的附加价值,以处理痴呆症护理中围绕安乐死的这些复杂问题。
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引用次数: 0
[Raising awareness for dementia risk reduction through a public health campaign: a pre-post study]. [通过公共卫生运动提高对降低痴呆症风险的认识:一项前后研究]。
Q4 Nursing Pub Date : 2021-06-09 DOI: 10.36613/tgg.1875-6832/2021.02.01
Irene Heger, Sebastian Köhler, Martin van Boxtel, Marjolein de Vugt, KlaasJan Hajema, Frans Verhey, Kay Deckers

This study evaluates a public health campaign initiated by the Alzheimer Center Limburg of Maastricht University. The aim was to increase awareness of the influence of a healthy lifestyle on lowering the risk of dementia in community-dwelling inhabitants of the Province of Limburg (aged 40 - 75 years). The campaign used mass media and public events, supported by a campaign website and mobile application (MijnBreincoach app).  An additional district-oriented approach was chosen in the municipalities of Roermond, Landgraaf and Brunssum, in which local stakeholders were involved in the design and execution of campaign-related events. Population-level difference in awareness before and after the campaign was assessed in two independent samples. No pre-post difference was observed in the level of awareness of dementia risk reduction. An additional analyses in the post-campaign sample revealed that the group that reported to have heard of the campaign, was more often aware of dementia risk reduction and reported higher motivation for behavioural change than the group that had not heard of the campaign. The district-oriented approach resulted in better recognition of campaign-material and the mobile application. With regard to the individual lifestyle factors, healthy diet and physical activity were identified more often post-campaign. Cognitive activity was identified most often at both pre- and post-assessment, but there was no increase in awareness after the campaign.

这项研究评估了由马斯特里赫特大学林堡阿尔茨海默病中心发起的一项公共卫生运动。其目的是提高人们对健康生活方式对降低林堡省社区居民(40 - 75岁)患痴呆症风险的影响的认识。该活动利用大众媒体和公共活动,由活动网站和移动应用程序(MijnBreincoach应用程序)提供支持。另外,在Roermond、Landgraaf和Brunssum市政当局选择了一种以地区为导向的方法,在这种方法中,当地利益相关者参与了与活动相关活动的设计和执行。在两个独立的样本中评估了运动前后的人口水平差异。在降低痴呆风险的意识水平上,没有观察到前后的差异。对活动后样本的另一项分析显示,与没有听说过该活动的小组相比,听说过该活动的小组更经常意识到痴呆症风险的降低,并报告了更高的行为改变动机。以地区为导向的方法使人们对活动材料和移动应用程序有了更好的认识。就个人生活方式因素而言,健康饮食和体育活动在竞选活动后更为常见。认知活动在评估前和评估后都是最常见的,但在活动后意识没有增加。
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引用次数: 0
[Death of an older patient after reactivation of latent tuberculosis]. [1例老年患者潜伏结核复发后死亡]。
Q4 Nursing Pub Date : 2021-03-23 DOI: 10.36613/tgg.1875-6832/2021.01.04
Houda Es-Safraouy, Wim Stoop, Sander L van Leuven, D Z B van Asselt
Latent tuberculosis has a high prevalence rate among older patients. Latent tuberculosis could be reactivated when patients are treated with immunosuppression. Therefore it is crucial to create awareness of the high prevalence of tuberculosis in the older patient. A thorough assessment of the risk of infection before starting immune modulating treatments contributes to timely recognition and treatment Our patient had an unknown history of latent tuberculosis. He was admitted to the geriatric department because of his deteriorating condition after the start of different immunosuppressing drugs for his arthritis. He developed cavitating pulmonary lesions. The PCR detected Mycobaterium tuberculosis.
潜伏性肺结核在老年患者中发病率高。当患者接受免疫抑制治疗时,潜伏结核可能会重新激活。因此,提高人们对老年患者结核病高患病率的认识至关重要。在开始免疫调节治疗前对感染风险进行全面评估有助于及时识别和治疗。在开始使用不同的免疫抑制药物治疗关节炎后,由于病情恶化,他被送进了老年科。他出现了肺空化病变。PCR检测结核分枝杆菌。
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引用次数: 0
['I went for a short walk, so I'll run into people again'. Qualitative research on the participation of older adults with memory problems]. “我出去散了一会儿步,所以我还会碰到人。”有记忆问题的老年人参与的定性研究[j]。
Q4 Nursing Pub Date : 2021-03-23 DOI: 10.36613/tgg.1875-6832/2021.01.03
Mirjam Klaassens, Louise Meijering

Many older adults who live at home face memory problems, which creates challenges for their participation in society. This may lead to social isolation and a lower wellbeing. In this qualitative study, we studied the physical and social participation of seven older adults with memory problems who live at home, to identify obstacles and coping strategies. Different research methods were adopted: 1) walking interviews, 2) travel diaries, and 3) in-depth interviews. Physical and social participation take place independently and in the immediate living environment. Participants experience several obstacles, which are highly impacted by the mode of transportation that they use: walking versus cycling. The results provide new insights on the strategies that participants develop to continue to participate. Fixed routes help them navigate, orientate and anticipate to traffic situations. Participating in activities for a short period of time is a strategy to make social participation less demanding. It is not the duration, but the experience of the activity that is important. The article concludes that older adults with memory problems exercise control in shaping their activities according to their personal needs, possibilities and surroundings. It is important that they are not only supported in avoiding risks, but also in developing suitable coping strategies.

许多住在家里的老年人都有记忆问题,这给他们参与社会带来了挑战。这可能会导致社会孤立和较低的幸福感。在本定性研究中,我们研究了七个在家生活的有记忆问题的老年人的身体和社会参与,以确定障碍和应对策略。采用了不同的研究方法:1)行走访谈,2)旅行日记,3)深度访谈。身体和社会参与独立发生,在直接的生活环境中。参与者会遇到一些障碍,这些障碍很大程度上取决于他们使用的交通方式:步行还是骑自行车。研究结果为参与者制定继续参与的策略提供了新的见解。固定路线帮助他们导航、定位和预测交通状况。短时间参加活动是一种降低社会参与要求的策略。重要的不是持续时间,而是活动的体验。这篇文章的结论是,有记忆问题的老年人根据他们的个人需要、可能性和环境来控制他们的活动。重要的是,不仅要支持他们避免风险,还要帮助他们制定适当的应对策略。
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引用次数: 1
[The nurse's role in the process of advance care planning]. [护士在预先护理计划过程中的角色]。
Q4 Nursing Pub Date : 2021-03-23 DOI: 10.36613/tgg.1875-6832/2021.01.02
Sascha R Bolt, J T van der Steen, Jos M G A Schols, Sandra M G Zwakhalen, D J A Janssen, J M M Meijers

The COVID-19 pandemic and its impact on older and frail people underlines the importance of advance care planning (ACP). ACP is a dynamic communication process involving patients, families and healthcare providers, which serves to discuss and document wishes and goals for future care. Currently, ACP practice is often suboptimal. This implies that important decisions about care and treatment may need to be made acutely in crises. Many factors contribute to suboptimal ACP practice. One such factor is ambiguity regarding roles and responsibilities of different disciplines in the ACP-process. The perception that having ACP conversations is primarily a physician's task is a misconception. Specific skills that could contribute to a holistic and person-centered ACP-process are largely lacking in nursing curricula and therefore, may be insufficient and under-utilized. For instance, nursing staff could involve persons in conversations about meaning, quality of life, loss and grief as a part of ACP. Moreover, they may communicate a patient's wishes to other healthcare providers including physicians. Acknowledgement of this potential role, by physicians as well as by nursing staff themselves, is needed for ACP to become a truly interprofessional process.

2019冠状病毒病大流行及其对老年人和体弱者的影响凸显了预先护理规划的重要性。ACP是一个涉及患者、家属和医疗保健提供者的动态沟通过程,用于讨论和记录未来护理的愿望和目标。目前,ACP实践通常不是最优的。这意味着在危机中可能需要紧急作出有关护理和治疗的重要决定。许多因素导致ACP实践不理想。其中一个因素是在非加太进程中不同学科的作用和责任不明确。认为ACP对话主要是医生的任务是一种误解。在护理课程中,很大程度上缺乏有助于整体和以人为本的acp过程的具体技能,因此可能不足且未得到充分利用。例如,作为ACP的一部分,护理人员可以让人们参与关于意义、生活质量、损失和悲伤的对话。此外,他们可能会将病人的意愿传达给包括医生在内的其他医疗服务提供者。要使ACP成为一个真正的跨专业过程,医生和护理人员本身都需要认识到这一潜在作用。
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引用次数: 0
[Experiences of (care) professionals during a COVID-19 outbreak and results of serological tests in the staff of a heavily affected nursing home.] [在COVID-19暴发期间(护理)专业人员的经验和严重感染疗养院工作人员的血清学检测结果]
Q4 Nursing Pub Date : 2021-03-23 DOI: 10.36613/tgg.1875-6832/2021.01.01
Joyce C F Heffels, Danielle de Vries, Irma Helga Johanna Everink, Anne M Timmermans, Marjolijn C A Wegdam-Blans, Jos M G A Schols

Despite compliance with national (RIVM) guidelines, nursing home Mariënburght (the Netherlands) was severely affected during the first COVID-19 wave: 68 (68%) of the residents were infected. This resulted in a large emotional impact on the (nursing) staff. This study aims to describe the experiences of (nursing) staff, as well as the results of serological tests on COVID-19 that have been administered to professionals. All professionals (n=281) were invited for group interviews to share their experiences concerning the COVID-19 outbreak and for a serological test for COVID-19. The 29 professionals participating in the group interviews mentioned negative and positive experiences about their fear and anxiety, the changed care for residents, the team spirit, the use of personal protective equipment and the testing policy. Out of 240 professionals who underwent the serological test and completed a questionnaire, 94 professionals (39%) had COVID-19 antibodies. In this group, 18 professionals (19%) indicated not having experienced any (physical) complaints related to COVID. Insight into the experiences of professionals resulted in essential learning points, in particular the importance of clear communication with and emotional support for staff. This study also reveals that many professionals of nursing home Mariënburght were affected by COVID-19. An important finding is the high percentage of asymptomatic employees (19% of 94 infected). Our results contributed to changed national testing policies and adapted recommendations in the use of personal protective equipment in nursing homes.

尽管遵守了国家(RIVM)指导方针,但养老院Mariënburght(荷兰)在第一次COVID-19浪潮中受到严重影响:68名(68%)居民被感染。这对护理人员造成了很大的情绪影响。本研究旨在描述(护理)工作人员的经验,以及对专业人员进行的COVID-19血清学检测结果。所有专业人员(n=281)被邀请参加小组访谈,分享他们在COVID-19爆发和COVID-19血清学检测方面的经验。参与小组访谈的29名专业人员提到了他们的恐惧和焦虑、对居民的护理改变、团队精神、个人防护装备的使用和检测政策等消极和积极的经历。在接受血清学检测并完成问卷调查的240名专业人员中,94名专业人员(39%)有COVID-19抗体。在这一组中,18名专业人士(19%)表示没有经历过与COVID相关的任何(身体)投诉。对专业人员经验的深入了解产生了重要的学习要点,特别是与工作人员明确沟通和提供情感支持的重要性。本研究还揭示了许多养老院Mariënburght的专业人员受到COVID-19的影响。一个重要的发现是无症状员工的比例很高(94名感染者中有19%)。我们的研究结果有助于改变国家检测政策,并调整了在养老院使用个人防护装备的建议。
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引用次数: 0
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Tijdschrift voor Gerontologie en Geriatrie
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