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Health-Related Quality of Life in Midlife and Older Women With Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. 患有多动ehers - danlos综合征和多动谱系障碍的中老年妇女的健康相关生活质量
IF 1.5 Pub Date : 2026-01-23 DOI: 10.1016/j.nwh.2025.09.006
Linda K Anderson

Objective: To identify factors associated with health-related quality of life (HRQOL) in midlife and older women with hypermobile Ehlers-Danlos syndrome/hypermobility spectrum disorders (hEDS/HSD).

Design: Online, cross-sectional survey.

Setting: Online survey was administered to participants in Ehlers-Danlos syndrome Facebook groups.

Participants: Women ages 40 years and older with a diagnosis of hEDS/HSD.

Methods: Online survey including demographic and health history; 36-Item Short-Form Health Survey (SF-36) to measure HRQOL; and free-text questions related to things that reduced and improved well-being.

Results: Sixty-six women (mean age, 55 years) participated in the survey. Symptom onset was in childhood, but treatment was not sought until their late 20s. The mean age at diagnosis was the mid-40s; thus, the diagnosis was delayed by more than 18 years from the time participants first sought treatment. Comorbidities were common, with 62% of participants reporting seven or more comorbid diagnoses. The SF-36 scores indicated a high symptom burden and poor HRQOL, with worse mean scores in the physical domains compared to the mental domains. Symptom severity, treatment restrictions, environmental factors, comorbidities, and interactions with health care providers influenced HRQOL.

Conclusion: Nursing has an emerging role in research and education related to genetic syndromes and heritable connective tissue disorders, including hEDS/HSD, in midlife and older women. Future research should address the complex relationships among physical, social, personal, and environmental factors to maximize HRQOL in this population.

目的:探讨中老年ehers - danlos综合征/多动谱系障碍(hEDS/HSD)患者健康相关生活质量(HRQOL)的相关因素。设计:在线,横断面调查。背景:对埃勒斯-丹洛斯综合症Facebook群组的参与者进行在线调查。参与者:年龄在40岁及以上,诊断为hEDS/HSD的女性。方法:在线调查,包括人口统计和健康史;36项健康调查表(SF-36)测量HRQOL;自由文本的问题与降低和提高幸福感的事情有关。结果:66名女性(平均年龄55岁)参与了调查。症状出现在儿童时期,但直到20多岁才开始寻求治疗。确诊时的平均年龄是40多岁;因此,诊断从参与者第一次寻求治疗的时间延迟了18年以上。合并症很常见,62%的参与者报告了七种或更多的合并症诊断。SF-36评分显示症状负担高,HRQOL差,生理领域的平均得分低于心理领域。症状严重程度、治疗限制、环境因素、合并症以及与卫生保健提供者的相互作用影响HRQOL。结论:护理在中老年妇女遗传综合征和遗传性结缔组织疾病(包括hEDS/HSD)的研究和教育中发挥着越来越重要的作用。未来的研究应解决身体、社会、个人和环境因素之间的复杂关系,以最大限度地提高这一人群的HRQOL。
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引用次数: 0
Nurses' Attitudes Toward Patients With Perinatal Substance Use Disorder. 护士对围产期物质使用障碍患者的态度。
IF 1.5 Pub Date : 2026-01-23 DOI: 10.1016/j.nwh.2025.09.007
Gail Elliott, April Messer, Thomas P McCoy, Ratchneewan Ross

Objectives: To determine the extent of stigmatizing attitudes among perinatal registered nurses in North Carolina, examine correlates of stigmatizing attitudes, and describe nurses' attitudes about patients with perinatal substance use disorder (PSUD).

Design: Explanatory sequential mixed methods.

Setting: Participants were recruited through the North Carolina Board of Nursing and included nurses providing care to patients with PSUD in any care setting in North Carolina.

Participants: Eighty-three nurses licensed with the North Carolina Board of Nursing completed the survey; nine of these participants were interviewed.

Methods: Nurses' attitudes were scored using the Modified Attitudes About Drug Use in Pregnancy (MADUP) scale, and a subsample completed semistructured interviews, which were transcribed and analyzed using thematic analysis.

Results: MADUP scale scores averaged 3.4 (SD = 0.8), and 33% of participants had stigmatizing attitudes toward patients with PSUD. Participants with a bachelor's degree or higher had more positive attitudes than those with a diploma or associate degree (b = -0.603, 95% CI [-1.117, -0.088], p = .022). Three stages emerged from the qualitative data illustrating a continuum in which nurses are positioned related to their knowledge and attitudes toward patients with PSUD.

Conclusion: There is a need for integrated, standardized nursing care and structural education to mitigate stigma toward patients with PSUD and to ensure quality care. A larger national study is recommended for more generalizability of the results.

目的:了解北卡罗来纳州围产期注册护士的污名化态度程度,探讨污名化态度的相关因素,并描述护士对围产期物质使用障碍(PSUD)患者的态度。设计:解释性顺序混合方法。环境:参与者通过北卡罗莱纳州护理委员会招募,包括在北卡罗莱纳州任何护理环境中为PSUD患者提供护理的护士。参与者:83名获得北卡罗来纳州护理委员会许可的护士完成了调查;其中9名参与者接受了采访。方法:采用修改后的“妊娠期用药态度”(MADUP)量表对护士态度进行评分,并对子样本进行半结构化访谈,对访谈内容进行转录和专题分析。结果:MADUP量表平均得分为3.4 (SD = 0.8), 33%的参与者对PSUD患者持污名化态度。拥有学士或更高学位的参与者比拥有文凭或副学士学位的参与者有更积极的态度(b = -0.603, 95% CI [-1.117, -0.088], p = 0.022)。从定性数据中出现了三个阶段,说明护士的定位与他们对PSUD患者的知识和态度有关。结论:为减轻PSUD患者的耻辱感,确保护理质量,需要进行综合、规范的护理和结构性教育。建议进行更大规模的全国性研究,以使结果更具普遍性。
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引用次数: 0
A Scoping Review of Approaches to Extragenital Chlamydia and Gonorrhea Screening for Adolescents and Young Adults in the United States 美国青少年和年轻人生殖器外衣原体和淋病筛查方法的范围审查。
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/j.nwh.2025.06.002
Loren M. Dobkin, Barbara L. Brush, Erin M. Kahle, Patricia Drenth, Yasamin Kusunoki

Objective

To identify effective strategies for extragenital sexually transmitted infection screening among adolescents and young adults (AYAs).

Data Sources

Following the Joanna Briggs Institute method, searches were conducted in PubMed and the Cumulative Index to Nursing and Allied Health Literature (CINAHL) for relevant, peer-reviewed articles published from January 2000 through December 2024.

Study Selection

The search strategy identified studies pertaining to chlamydia, gonorrhea, extragenital sites, screening, and AYAs. Studies were included if most participants were 12 to 24 years old or if their outcomes were disaggregated. Selected studies described at least one approach to extragenital screening, reporting corresponding measures of uptake, preferability, or acceptability. Nine studies met the inclusion criteria.

Data Extraction

Data on study characteristics, sampled populations, approaches, relative successes, infection prevalence, and correlates were extracted, critically appraised, and descriptively synthesized.

Data Synthesis

Included studies demonstrated higher extragenital screening uptake in research studies (89%–100%) compared to routine care (0%–74%) and when standardized protocols and health care staff trainings were incorporated. Extragenital infections were prevalent among female AYAs with genital infection, as well as sexual and gender minority individuals assigned male at birth.

Conclusion

Increasing clinical standardization as well as enhancing health care and nursing staff training may improve detection of common extragenital infections and help prevent associated sexual and reproductive health complications.
目的:探讨青少年和青壮年(AYAs)生殖器外性传播感染筛查的有效策略。数据来源:采用乔安娜布里格斯研究所的方法,在PubMed和CINAHL(护理和相关健康文献累积索引)中搜索2000年1月至2024年12月发表的相关同行评审文章。研究选择:搜索策略确定了与衣原体、淋病、外生殖器部位、筛查和AYAs有关的研究。如果大多数参与者年龄在12岁到24岁之间,或者他们的研究结果是分类的,那么这些研究就会被纳入。选定的研究描述了至少一种外阴筛查的方法,报告了相应的吸收、首选或可接受性措施。9项研究符合纳入标准。数据提取:提取有关研究特征、抽样人群、方法、相对成功、感染流行率和相关因素的数据,并进行严格评估和描述性综合。数据综合:纳入的研究表明,与常规护理(0%-74%)和纳入标准化方案和卫生保健人员培训时相比,研究性研究的外阴筛查接受率(89%-100%)更高。生殖器外感染在患有生殖器感染的女性未成年人以及出生时被指定为男性的性和性别少数群体中普遍存在。结论:加强临床规范,加强卫生保健和护理人员培训,可提高常见生殖器外感染的检出率,有助于预防相关的性健康和生殖健康并发症。
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引用次数: 0
Access to Health Care 获得医疗保健。
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/j.nwh.2025.07.001
Association of Women’s Health, Obstetric and Neonatal Nurses
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引用次数: 0
Nurses’ Perceptions of Comfort, Competence, and Barriers to Informed Consent in Labor and Delivery 护士在分娩过程中对舒适、能力和知情同意障碍的认知。
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/j.nwh.2025.05.003
Alexis Zehler, Caitlin Jeanmougin, Riley Costello

Objective

To identify barriers to patient inclusion in decision-making regarding obstetric care, as witnessed by registered nurses, with a focus on the provision of informed consent in labor and delivery.

Design

Descriptive study.

Setting

Online distribution from September 2023 to March 2024.

Participants

One hundred twenty-five registered nurses with more than 6 months of experience caring for obstetric patients in level I through IV maternal care centers in the United States.

Methods

Data collection was completed using a 20-question online survey. Analysis of quantitative data included descriptive and inferential statistics, and analysis of qualitative data included review of all narrative survey responses, grouping by commonality, and identification of categories of concern related to research aims.

Results

Most participants reported high levels of competence and comfort in providing the patient education necessary to achieve informed consent; however, level of comfort decreased if the education included evidence-based options that go against standard medical advice or provider recommendation. Nearly half of the participants reported experiencing retaliation as a result of providing patient education in efforts to support informed consent, and more than 70% reported witnessing patients be coerced by providers, denied care options, and experience negative care outcomes resulting from insufficient informed consent practices. Eleven categories of concern were identified that represent participants’ experiences regarding barriers to patient inclusion in decision-making and insufficient informed consent practices.

Conclusion

Standardized education and protocols for obtaining informed consent in labor and delivery and advocacy for patient inclusion in decision-making may improve informed consent practices, provision of high-quality care, and perceived patient experiences.
目的:通过注册护士的见证,确定患者参与产科护理决策的障碍,重点是在分娩和分娩过程中提供知情同意。设计:描述性研究。设定:2023年9月至2024年3月在线发行。参与者:125名注册护士,具有6个月以上在美国一级到四级产妇护理中心护理产科患者的经验。方法:采用20个问题的在线调查完成数据收集。定量数据的分析包括描述性和推断性统计,定性数据的分析包括对所有叙述性调查反应的回顾,按共性分组,并确定与研究目标相关的关注类别。结果:大多数参与者报告了在提供必要的患者教育以实现知情同意方面的高水平能力和舒适度;然而,如果教育包含了与标准医疗建议或提供者建议相反的循证选择,则舒适程度降低。近一半的参与者报告说,由于为患者提供支持知情同意的教育而遭受报复,超过70%的参与者报告说,他们目睹了患者被提供者胁迫,拒绝了护理选择,并因知情同意实践不足而经历了负面的护理结果。确定了11种关注类别,代表了参与者在将患者纳入决策和知情同意实践不足方面的障碍方面的经验。结论:在分娩和分娩过程中获得知情同意的标准化教育和协议,以及倡导患者参与决策,可能会改善知情同意实践,提供高质量的护理,并改善患者体验。
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引用次数: 0
Sleepy But Supported: Helping Caregivers Navigate Newborn Sleep 困倦但有支持:帮助护理人员引导新生儿睡眠。
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/j.nwh.2025.07.005
Brenna Morse
Normal newborn sleep is significantly disruptive to caregiver routines because of shortened total sleep duration, fragmented sleep, and longer periods of nighttime wakefulness. Although these disruptions may be normal and healthy for a newborn, they can make it difficult for caregivers to meet their own daily demands. Nurses can promote health among caregivers of newborns through emotional support, proactive education, and discussion of evidence-based strategies to support sleep and the newborn adjustment period. Beyond individual family care, nurses have a critically important role in advocating for policy changes that support caregivers of newborns. Efforts in both the clinical setting and policy arena are essential to supporting healthy sleep patterns for caregivers of newborns.
新生儿的正常睡眠对护理人员的日常工作有明显的干扰,因为新生儿的总睡眠时间缩短,睡眠碎片化,夜间清醒时间延长。虽然这些干扰对新生儿来说可能是正常和健康的,但它们可能使护理人员难以满足自己的日常需求。护士可以通过情感支持、积极教育和讨论支持睡眠和新生儿调整期的循证策略来促进新生儿照顾者的健康。除了个人家庭护理之外,护士在倡导支持新生儿护理人员的政策变革方面发挥着至关重要的作用。临床环境和政策领域的努力对于支持新生儿护理人员的健康睡眠模式至关重要。
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引用次数: 0
Impact Factor and Other Updates to Nursing for Women’s Health 妇女健康护理的影响因素和其他更新
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/j.nwh.2025.09.001
Heidi Collins Fantasia
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引用次数: 0
Information for Readers 读者资讯
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/S1751-4851(25)00185-0
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引用次数: 0
Facilitating Culturally Safe Conversations Around Substance Use Disorder and Contraception to Provide Inclusive Care for Neurodiverse and Neurotypical Populations 促进围绕物质使用障碍和避孕的文化安全对话,为神经多样性和神经典型人群提供包容性护理
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/j.nwh.2025.07.006
Lily R.Kelyn Bastian, Faith A. Ozer Green, Corrie B. Whitmore, Kassandra S. Greci, Alexandra E. Edwards
Nurses are vital to facilitating patient-centered discussions on alcohol use, substance use, and contraception, yet they face significant barriers to effective communication, including time constraints, stigma, and implicit bias. This article presents an inclusive framework to support culturally safe, patient-centered dialogue, with attention to neurodiverse populations, including those with fetal alcohol spectrum disorders. Drawing on the Model of the Five Principles of Cultural Safety and the Respectful Maternity Care Framework and Evidence-Based Clinical Practice Guideline from the Association of Women’s Health, Obstetric and Neonatal Nurses, we offer actionable strategies for improving communication, reducing bias, and enhancing patient trust. Training in culturally safe communication improves nurses’ confidence in sensitive conversations, promotes patient-centered care, reduces stigma, and improves patient experiences. Integrating these principles into nursing education and practice equips nurses to meet patients’ complex needs, advancing equitable, compassionate, and effective reproductive health care.
护士对于促进以患者为中心的关于酒精使用、药物使用和避孕的讨论至关重要,但他们面临着有效沟通的重大障碍,包括时间限制、耻辱和隐性偏见。本文提出了一个包容性框架,以支持文化安全,以患者为中心的对话,并关注神经多样性人群,包括胎儿酒精谱系障碍患者。根据妇女健康、产科和新生儿护士协会的“文化安全五原则”模式、“尊重产妇护理框架”和“循证临床实践指南”,我们提供了改善沟通、减少偏见和增强患者信任的可行策略。文化安全沟通方面的培训可以提高护士在敏感对话中的信心,促进以患者为中心的护理,减少耻辱感,改善患者体验。将这些原则纳入护理教育和实践,使护士能够满足患者的复杂需求,促进公平、富有同情心和有效的生殖卫生保健。
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引用次数: 0
Health Equity in Maternal-Newborn Care: A Sub-Analysis of Interventions for Birthing Women from the Middle East and North Africa 母婴保健中的卫生公平:中东和北非分娩妇女干预措施的亚分析
IF 1.5 Pub Date : 2025-12-01 DOI: 10.1016/j.nwh.2025.07.003
Shokoufeh Modanloo, Liquaa Wazni, Wendy Gifford, Zahra Hakimi, Shahnaz Shahid Ali

Objective

To identify evidence-informed interventions that support maternal and newborn health among birthing women from the Middle East and North Africa (MENA), and to explore existing gaps in knowledge related to health equity for this population and their infants.

Data Sources

This subgroup analysis forms part of a broader scoping review. A systematic search was conducted across several electronic databases—Medline, CINAHL, Cochrane, ProQuest, ABI Inform Global, PsycINFO, and the Canada Statute Service. Reference lists of identified articles were also manually reviewed to capture additional relevant sources.

Study Selection

Of 46 studies included in the larger scoping review, 6 met the criteria for this subgroup analysis. These studies focused specifically on maternal–newborn interventions targeting migrant women and families from the MENA region.

Data Extraction

Relevant data were extracted and compiled into summary tables detailing study characteristics, intervention components, and health outcomes.

Data Synthesis

The six interventions targeted a range of maternal and newborn health outcomes. Programs such as Moms Matter and Happy Mothers, Happy Babies aimed to improve maternal knowledge and awareness. Culturally safe educational films supported informed decision-making during prenatal screening. Parenting skills and maternal confidence were strengthened through the Mom-to-Mom program and FIRST STEPS initiative. Mental health was also addressed, with both the Parent Buddy for Preterm Infants and FIRST STEPS interventions reducing postpartum depression symptoms. Collectively, the studies emphasized the need for culturally safe, evidence-based care.

Conclusion

This analysis highlights the importance of tailored, holistic interventions to improve maternal and newborn outcomes for MENA migrant women. It highlighted the need for further research to refine and evaluate specific strategies that address the diverse needs of this population.
目的:确定支持中东和北非(MENA)产妇和新生儿健康的循证干预措施,并探索该人群及其婴儿健康公平相关知识的现有差距。数据来源:此子组分析是更广泛的范围审查的一部分。在medline、CINAHL、Cochrane、ProQuest、ABI Inform Global、PsycINFO和Canada Statute Service等几个电子数据库中进行了系统的搜索。还手动审查了已确定文章的参考书目,以获取其他相关来源。研究选择:纳入大范围综述的46项研究中,有6项符合本亚组分析的标准。这些研究特别侧重于针对中东和北非地区移民妇女和家庭的孕产妇-新生儿干预措施。数据提取:提取相关数据并汇编成汇总表,详细说明研究特征、干预成分和健康结果。数据综合:六项干预措施针对一系列孕产妇和新生儿健康结果。“妈妈很重要”和“快乐妈妈,快乐宝宝”等节目旨在提高母亲的知识和意识。文化安全教育影片支持产前筛查期间的知情决策。通过“妈妈对妈妈”项目和“第一步”倡议,育儿技巧和母亲的信心得到了加强。心理健康问题也得到了解决,“早产儿父母伙伴”和“第一步”干预措施都减少了产后抑郁症状。总的来说,这些研究强调了文化上安全、循证护理的必要性。结论:该分析强调了量身定制的整体干预措施对改善中东和北非地区移民妇女孕产妇和新生儿结局的重要性。它强调需要进一步研究,以完善和评价满足这一人口不同需要的具体战略。
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引用次数: 0
期刊
Nursing for Women''s Health
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