Pub Date : 2022-09-21DOI: 10.1080/13576275.2022.2126934
W. Chan, S. Payne, L. Funk
{"title":"Social relationships and community end of life care in Hong Kong: a three-stage model of social capital development","authors":"W. Chan, S. Payne, L. Funk","doi":"10.1080/13576275.2022.2126934","DOIUrl":"https://doi.org/10.1080/13576275.2022.2126934","url":null,"abstract":"","PeriodicalId":40045,"journal":{"name":"Mortality","volume":" ","pages":""},"PeriodicalIF":0.8,"publicationDate":"2022-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45616101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-09-12DOI: 10.1080/13576275.2022.2121155
G. Dickinson, Brenda S. Sanders
{"title":"End-of-life offerings in US medical schools: 1975-2020","authors":"G. Dickinson, Brenda S. Sanders","doi":"10.1080/13576275.2022.2121155","DOIUrl":"https://doi.org/10.1080/13576275.2022.2121155","url":null,"abstract":"","PeriodicalId":40045,"journal":{"name":"Mortality","volume":" ","pages":""},"PeriodicalIF":0.8,"publicationDate":"2022-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45368552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-30DOI: 10.1080/13576275.2022.2117596
Jean Sprackland
{"title":"How I lost my mother: a story of life, care and dying","authors":"Jean Sprackland","doi":"10.1080/13576275.2022.2117596","DOIUrl":"https://doi.org/10.1080/13576275.2022.2117596","url":null,"abstract":"","PeriodicalId":40045,"journal":{"name":"Mortality","volume":"27 1","pages":"520 - 521"},"PeriodicalIF":0.8,"publicationDate":"2022-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46773483","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-30DOI: 10.1080/13576275.2022.2117597
T. Walter
{"title":"Tourism and memory: visitor experiences of the Nazi and GDR past","authors":"T. Walter","doi":"10.1080/13576275.2022.2117597","DOIUrl":"https://doi.org/10.1080/13576275.2022.2117597","url":null,"abstract":"","PeriodicalId":40045,"journal":{"name":"Mortality","volume":"27 1","pages":"521 - 522"},"PeriodicalIF":0.8,"publicationDate":"2022-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43417713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-24DOI: 10.1080/13576275.2022.2114823
B. Carpenter, Bridget Weir, S. Jowett, G. Tait, C. Ferguson
{"title":"Coronial determination of suicide: insights from inquests","authors":"B. Carpenter, Bridget Weir, S. Jowett, G. Tait, C. Ferguson","doi":"10.1080/13576275.2022.2114823","DOIUrl":"https://doi.org/10.1080/13576275.2022.2114823","url":null,"abstract":"","PeriodicalId":40045,"journal":{"name":"Mortality","volume":" ","pages":""},"PeriodicalIF":0.8,"publicationDate":"2022-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43209947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-23DOI: 10.1080/13576275.2022.2107424
K. Pollock, F. Bulli, G. Caswell, H. Kodba-Čeh, U. Lunder, G. Miccinesi, J., Seymour, A. Toccafondi, J. J. M. V. Delden, M. Zwakman, J. Rietjens, A. van, der Heide, M. Kars
Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalence towards confronting the future and the factors underlying their motivation to accept or defer anticipatory planning. They show how ACP impacts on, and can be determined by, relationships between patients and their family caregivers. Although some patients may welcome the chance to engage in ACP a tendency towards either therapeutic optimism or fatalism can limit its perceived appeal or benefit. The focus on individual autonomy as an ethical principle underlying ACP does not resonate with real world settings. Many patients naturally orient to share responsibility and decision making within the network of significant others in which they are embedded, rather than exert unfettered freedom of ‘choice’.
{"title":"Patient and family caregiver perspectives of Advance Care Planning: qualitative findings from the ACTION cluster randomised controlled trial of an adapted respecting choices intervention","authors":"K. Pollock, F. Bulli, G. Caswell, H. Kodba-Čeh, U. Lunder, G. Miccinesi, J., Seymour, A. Toccafondi, J. J. M. V. Delden, M. Zwakman, J. Rietjens, A. van, der Heide, M. Kars","doi":"10.1080/13576275.2022.2107424","DOIUrl":"https://doi.org/10.1080/13576275.2022.2107424","url":null,"abstract":"Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalence towards confronting the future and the factors underlying their motivation to accept or defer anticipatory planning. They show how ACP impacts on, and can be determined by, relationships between patients and their family caregivers. Although some patients may welcome the chance to engage in ACP a tendency towards either therapeutic optimism or fatalism can limit its perceived appeal or benefit. The focus on individual autonomy as an ethical principle underlying ACP does not resonate with real world settings. Many patients naturally orient to share responsibility and decision making within the network of significant others in which they are embedded, rather than exert unfettered freedom of ‘choice’.","PeriodicalId":40045,"journal":{"name":"Mortality","volume":" ","pages":""},"PeriodicalIF":0.8,"publicationDate":"2022-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42468381","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-18DOI: 10.1080/13576275.2022.2107900
Hans Hadders
{"title":"Temple eye banking: cornea donation practice at Pashupati crematorium in Nepal","authors":"Hans Hadders","doi":"10.1080/13576275.2022.2107900","DOIUrl":"https://doi.org/10.1080/13576275.2022.2107900","url":null,"abstract":"","PeriodicalId":40045,"journal":{"name":"Mortality","volume":" ","pages":""},"PeriodicalIF":0.8,"publicationDate":"2022-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47333582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-05DOI: 10.1080/13576275.2022.2107797
Jana Mercadal-Sánchez, Emilio Ferrer-Romero, Ignacio Fradejas‐García
ABSTRACT The COVID-19 pandemic has led to unprecedented changes in the accompaniment of the sick, the dead, and their loved ones. This article analyses the intertwined accompaniment practices performed by health professionals working in hospitals and nursing homes and by the relatives of those who died or striving during the first few months of the pandemic in Barcelona, Spain. We argue that isolation, fear of contagion, and lack of biomedical professionals and infrastructures, produced a resignification of palliative care, social support and grief practices. Moving beyond the Western biomedical professionalization and the institutionalization of dying processes to give more agency to the dying and their loved ones, we apply the term palliative accompaniment to disentangle healthcare and psychosocial support practices adapted to the extreme circumstances of COVID-19, which includes old and new practices to alleviate patients’ suffering, relieve their loved ones’ anguish and support health professionals. Following the stories of our respondents, the interruption of the face-to-face visits and dying and mourning rituals was eased by the appearance of innovative healthcare practices, communication, and ritualization. However, this necessary evil was not enough to cope with the feelings of abandonment that emerged in response to dying alone and postponing mourning.
{"title":"Palliative accompaniment: biomedical and social resignification of dying during the COVID-19 pandemic","authors":"Jana Mercadal-Sánchez, Emilio Ferrer-Romero, Ignacio Fradejas‐García","doi":"10.1080/13576275.2022.2107797","DOIUrl":"https://doi.org/10.1080/13576275.2022.2107797","url":null,"abstract":"ABSTRACT The COVID-19 pandemic has led to unprecedented changes in the accompaniment of the sick, the dead, and their loved ones. This article analyses the intertwined accompaniment practices performed by health professionals working in hospitals and nursing homes and by the relatives of those who died or striving during the first few months of the pandemic in Barcelona, Spain. We argue that isolation, fear of contagion, and lack of biomedical professionals and infrastructures, produced a resignification of palliative care, social support and grief practices. Moving beyond the Western biomedical professionalization and the institutionalization of dying processes to give more agency to the dying and their loved ones, we apply the term palliative accompaniment to disentangle healthcare and psychosocial support practices adapted to the extreme circumstances of COVID-19, which includes old and new practices to alleviate patients’ suffering, relieve their loved ones’ anguish and support health professionals. Following the stories of our respondents, the interruption of the face-to-face visits and dying and mourning rituals was eased by the appearance of innovative healthcare practices, communication, and ritualization. However, this necessary evil was not enough to cope with the feelings of abandonment that emerged in response to dying alone and postponing mourning.","PeriodicalId":40045,"journal":{"name":"Mortality","volume":"27 1","pages":"443 - 458"},"PeriodicalIF":0.8,"publicationDate":"2022-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44629630","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-08-05DOI: 10.1080/13576275.2022.2107795
C. Klaufus, Julienne Weegels
ABSTRACT The prisoner population in Latin America is highly vulnerable to violence and deadly disease due to overpopulation, understaffing and political neglect. The COVID-19 pandemic has worsened their situation. Drawing from empirical research in three countries – Argentina, Colombia, and Nicaragua – this paper analyses three phases of marginalisation in prisoners’ trajectories from prison to pit. Our analysis is structured by the triple marginalisation that stretches out from an experienced situation of ‘social death’ in prison, a legally imposed ‘depersonalisation’ of the dead prisoners’ body, and the ‘bare’ death of their plastic-wrapped bodies buried without any ceremony in a politically neglected cemetery. This process points to the everyday necropolitical production of marginal deaths and sheds light on marginalised populations’ moral conceptions of dying in pandemic times.
{"title":"From prison to pit: trajectories of a dispensable population in Latin America","authors":"C. Klaufus, Julienne Weegels","doi":"10.1080/13576275.2022.2107795","DOIUrl":"https://doi.org/10.1080/13576275.2022.2107795","url":null,"abstract":"ABSTRACT The prisoner population in Latin America is highly vulnerable to violence and deadly disease due to overpopulation, understaffing and political neglect. The COVID-19 pandemic has worsened their situation. Drawing from empirical research in three countries – Argentina, Colombia, and Nicaragua – this paper analyses three phases of marginalisation in prisoners’ trajectories from prison to pit. Our analysis is structured by the triple marginalisation that stretches out from an experienced situation of ‘social death’ in prison, a legally imposed ‘depersonalisation’ of the dead prisoners’ body, and the ‘bare’ death of their plastic-wrapped bodies buried without any ceremony in a politically neglected cemetery. This process points to the everyday necropolitical production of marginal deaths and sheds light on marginalised populations’ moral conceptions of dying in pandemic times.","PeriodicalId":40045,"journal":{"name":"Mortality","volume":"27 1","pages":"410 - 425"},"PeriodicalIF":0.8,"publicationDate":"2022-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42051310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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