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Social relationships and community end of life care in Hong Kong: a three-stage model of social capital development 香港的社会关系与社区临终关怀:社会资本发展的三阶段模型
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-09-21 DOI: 10.1080/13576275.2022.2126934
W. Chan, S. Payne, L. Funk
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引用次数: 0
End-of-life offerings in US medical schools: 1975-2020 美国医学院临终关怀课程:1975-2020
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-09-12 DOI: 10.1080/13576275.2022.2121155
G. Dickinson, Brenda S. Sanders
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引用次数: 0
How I lost my mother: a story of life, care and dying 我是如何失去母亲的:一个关于生命、关怀和死亡的故事
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-30 DOI: 10.1080/13576275.2022.2117596
Jean Sprackland
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引用次数: 1
Tourism and memory: visitor experiences of the Nazi and GDR past 旅游和记忆:纳粹和德意志民主共和国过去的游客体验
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-30 DOI: 10.1080/13576275.2022.2117597
T. Walter
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引用次数: 1
Coronial determination of suicide: insights from inquests 自杀的死因判定:来自调查的见解
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-24 DOI: 10.1080/13576275.2022.2114823
B. Carpenter, Bridget Weir, S. Jowett, G. Tait, C. Ferguson
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引用次数: 0
Patient and family caregiver perspectives of Advance Care Planning: qualitative findings from the ACTION cluster randomised controlled trial of an adapted respecting choices intervention 预先护理计划的患者和家庭护理者视角:适应性尊重选择干预的ACTION集群随机对照试验的定性结果
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-23 DOI: 10.1080/13576275.2022.2107424
K. Pollock, F. Bulli, G. Caswell, H. Kodba-Čeh, U. Lunder, G. Miccinesi, J., Seymour, A. Toccafondi, J. J. M. V. Delden, M. Zwakman, J. Rietjens, A. van, der Heide, M. Kars
Advance Care Planning (ACP) is widely regarded as a component of good end-of-life care. However, findings from a qualitative international study of patient and family caregiver attitudes and preferences regarding ACP highlight participants’ ambivalence towards confronting the future and the factors underlying their motivation to accept or defer anticipatory planning. They show how ACP impacts on, and can be determined by, relationships between patients and their family caregivers. Although some patients may welcome the chance to engage in ACP a tendency towards either therapeutic optimism or fatalism can limit its perceived appeal or benefit. The focus on individual autonomy as an ethical principle underlying ACP does not resonate with real world settings. Many patients naturally orient to share responsibility and decision making within the network of significant others in which they are embedded, rather than exert unfettered freedom of ‘choice’.
预先护理计划(ACP)被广泛认为是良好的临终关怀的一个组成部分。然而,一项关于患者和家庭照顾者对ACP的态度和偏好的定性国际研究的结果突出了参与者面对未来的矛盾心理,以及他们接受或推迟预期计划的动机因素。他们展示了ACP如何影响病人和他们的家庭照顾者之间的关系。尽管一些患者可能会欢迎参与ACP的机会,但治疗乐观主义或宿命论的倾向可能会限制其感知的吸引力或益处。将个人自主权作为ACP的伦理原则,与现实世界的背景并不相符。许多患者自然倾向于在他们所处的重要他人的网络中分担责任和决策,而不是行使不受约束的“选择”自由。
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引用次数: 2
Temple eye banking: cornea donation practice at Pashupati crematorium in Nepal 寺庙眼库:尼泊尔帕舒帕蒂火葬场的角膜捐赠实践
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-18 DOI: 10.1080/13576275.2022.2107900
Hans Hadders
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引用次数: 0
Palliative accompaniment: biomedical and social resignification of dying during the COVID-19 pandemic 缓解伴随:新冠肺炎大流行期间死亡的生物医学和社会辞职
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-05 DOI: 10.1080/13576275.2022.2107797
Jana Mercadal-Sánchez, Emilio Ferrer-Romero, Ignacio Fradejas‐García
ABSTRACT The COVID-19 pandemic has led to unprecedented changes in the accompaniment of the sick, the dead, and their loved ones. This article analyses the intertwined accompaniment practices performed by health professionals working in hospitals and nursing homes and by the relatives of those who died or striving during the first few months of the pandemic in Barcelona, Spain. We argue that isolation, fear of contagion, and lack of biomedical professionals and infrastructures, produced a resignification of palliative care, social support and grief practices. Moving beyond the Western biomedical professionalization and the institutionalization of dying processes to give more agency to the dying and their loved ones, we apply the term palliative accompaniment to disentangle healthcare and psychosocial support practices adapted to the extreme circumstances of COVID-19, which includes old and new practices to alleviate patients’ suffering, relieve their loved ones’ anguish and support health professionals. Following the stories of our respondents, the interruption of the face-to-face visits and dying and mourning rituals was eased by the appearance of innovative healthcare practices, communication, and ritualization. However, this necessary evil was not enough to cope with the feelings of abandonment that emerged in response to dying alone and postponing mourning.
摘要新冠肺炎大流行导致了伴随着病人、死者及其亲人的前所未有的变化。这篇文章分析了在医院和疗养院工作的卫生专业人员以及在西班牙巴塞罗那疫情最初几个月死亡或挣扎的人的亲属所进行的相互交织的伴随实践。我们认为,隔离、对传染的恐惧以及缺乏生物医学专业人员和基础设施,导致了姑息治疗、社会支持和悲伤实践的放弃。超越西方生物医学专业化和死亡过程的制度化,为垂死者及其亲人提供更多的代理权,我们应用姑息疗法来区分适应新冠肺炎极端情况的医疗保健和心理社会支持实践,包括缓解患者痛苦的新旧实践,减轻亲人的痛苦并支持卫生专业人员。根据我们受访者的故事,创新的医疗实践、沟通和仪式化的出现缓解了面对面探访、临终和哀悼仪式的中断。然而,这种必要的邪恶不足以应对因孤独终老和推迟哀悼而产生的遗弃感。
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引用次数: 0
From prison to pit: trajectories of a dispensable population in Latin America 从监狱到深坑:拉丁美洲可有可无的人口轨迹
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-05 DOI: 10.1080/13576275.2022.2107795
C. Klaufus, Julienne Weegels
ABSTRACT The prisoner population in Latin America is highly vulnerable to violence and deadly disease due to overpopulation, understaffing and political neglect. The COVID-19 pandemic has worsened their situation. Drawing from empirical research in three countries – Argentina, Colombia, and Nicaragua – this paper analyses three phases of marginalisation in prisoners’ trajectories from prison to pit. Our analysis is structured by the triple marginalisation that stretches out from an experienced situation of ‘social death’ in prison, a legally imposed ‘depersonalisation’ of the dead prisoners’ body, and the ‘bare’ death of their plastic-wrapped bodies buried without any ceremony in a politically neglected cemetery. This process points to the everyday necropolitical production of marginal deaths and sheds light on marginalised populations’ moral conceptions of dying in pandemic times.
摘要由于人口过多、人手不足和政治忽视,拉丁美洲的囚犯极易受到暴力和致命疾病的影响。新冠肺炎疫情使他们的处境更加恶化。根据阿根廷、哥伦比亚和尼加拉瓜三个国家的实证研究,本文分析了囚犯从监狱到监狱轨迹中边缘化的三个阶段。我们的分析是由三重边缘化构成的,这种边缘化从监狱中经历的“社会死亡”、法律规定的对死去囚犯尸体的“去人格化”,以及他们用塑料包裹的尸体在没有任何仪式的情况下被埋葬在政治上被忽视的墓地中的“裸死”。这一过程指向了边缘死亡的日常死亡政治生产,并揭示了边缘化人群在疫情时期死亡的道德观念。
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引用次数: 2
Women’s experiences of adolescent maternal loss: grief, attachment and adolescent development 青少年失去母亲的女性经历:悲伤、依恋与青少年发展
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2022-08-04 DOI: 10.1080/13576275.2022.2107423
Chloe De Rosbo-Davies, Stella Laletas, Penny Round
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引用次数: 0
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Mortality
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