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Experiences of parents of children with intellectual disabilities in the Ashanti Region of Ghana 加纳阿散蒂地区智障儿童父母的经验
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2016-07-28 DOI: 10.36251/JOSI.100
Eric Badu
Parents of children with intellectual disabilities could experience difficulties associated with their care. Yet, insight into individual experiences is inadequate to guide effective responses to the needs of parents and their sons and daughters with intellectual disability. This study sought to explore the experiences of parents of children with intellectual disability with the aim of making these experiences visible to guide the design and provision of support services for the parents and their children. In-depth interviews were conducted with 20 parents of children with intellectual disability between the ages of 4 and 15 years residing in the Ashanti Region of Ghana. Data were analyzed using qualitative content analysis to explore themes that describe the experiences of the parents. The study found that parents of intellectually disabled children encounter challenges looking after their children due to the negative perceptions associated with having such children. Financial costs and managing behavioral challenges of intellectually disabled children were also major sources of stressors for parents. Although informal support and assurances from professionals alleviated parental stress and gave them some hope about the future of their children, these support services seem inadequate. A more structured support programme that includes financial empowerment of the parents and recognizes the importance of early detection and intervention practices is needed.
智障儿童的父母在照顾他们的过程中可能会遇到困难。然而,对个人经历的洞察不足以指导对智力残疾的父母及其子女的需求作出有效的反应。本研究旨在探讨智障儿童父母的经验,以使这些经验可见,以指导父母及其子女的支持服务的设计和提供。对居住在加纳阿散蒂地区的20名4至15岁智力残疾儿童的父母进行了深入访谈。数据分析采用定性内容分析,以探索描述父母经历的主题。研究发现,智力残疾儿童的父母在照顾他们的孩子时遇到了挑战,因为他们对有这样的孩子有负面的看法。经济成本和管理智障儿童的行为挑战也是父母压力的主要来源。虽然来自专业人员的非正式支持和保证减轻了父母的压力,使他们对孩子的未来抱有一些希望,但这些支持服务似乎是不够的。需要有一个更有组织的支助方案,其中包括向父母提供经济支持,并认识到早期发现和干预做法的重要性。
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引用次数: 18
Making participation accessible for vulnerable clients 使弱势客户能够参与
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2016-07-28 DOI: 10.36251/JOSI.105
L. Iaquinto
Despite forty years of research, community sector service providers still find operationalising participation in their practice confusing and difficult. This paper presents the results of a preliminary study that begins to question why this is so and what can be done about it? The study examines the meaning and importance of participation determined by a review of the academic literature, by soliciting feedback from a range of stakeholders in community sector organisations, including service users with complex barriers to participation, staff, and board members. The participants’ perspectives, views and experience of participation were obtained through the use of semi-structured interviews. The data generated a number of telling examples of the impact organisational culture has on service delivery and how the values of the leadership shape the organization, as well as illustrations of the principles that underpin participation expressed from the standpoints of the three participant groups. Study findings underscore the critical importance for service providers to consider their culture and its influences.
尽管进行了四十年的研究,社区部门服务提供者仍然发现在他们的实践中实施参与是令人困惑和困难的。本文介绍了一项初步研究的结果,该研究开始质疑为什么会这样,以及对此可以做些什么?该研究通过对学术文献的回顾,通过征求社区部门组织的一系列利益相关者的反馈,包括在参与方面存在复杂障碍的服务用户、员工和董事会成员,来检验参与的意义和重要性。参与者的观点、观点和参与经验是通过使用半结构化访谈获得的。这些数据产生了许多生动的例子,说明组织文化对服务提供的影响,以及领导的价值观如何塑造组织,以及从三个参与者群体的立场表达的支持参与的原则的插图。研究结果强调了服务提供者考虑其文化及其影响的重要性。
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引用次数: 1
Doing belonging: Meanings of home and settlement among the Karen Community in Brisbane, Australia 做归属:澳大利亚布里斯班克伦人社区的家和定居的意义
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2016-07-28 DOI: 10.36251/JOSI.104
J. Bird, Leonie Cox, M. Brough
The phenomenon of belonging allows diasporic people to negotiate socio-cultural terrains that go beyond singular attachments to “here” or “there”. This paper interrogates doing belonging amongst members of the Karen refugee community from Burma settling in Brisbane, Australia. We use data collected over twelve months of ethnographic fieldwork using the methods of participant observation and semi-structured interviews. This paper presents an interpretation of challenges faced by Karen community members as they grapple with local and transnational complexities of belonging within their own community, whilst also establishing belonging to Australian social environments. We argue that Karen participants’ lived experiences of settlement challenge bounded notions of belonging, thereby allowing us to extend dominant constructions of settlement and social inclusion and give way to a more nuanced representation of an emerging diasporic community. We thus reposition a resettled refugee community away from disempowering and exclusionary notions that dominant constructions of belonging and inclusion tend to impose.
归属感的现象使散居的人们能够跨越社会文化领域,超越对“这里”或“那里”的单一依恋。本文探讨了在澳大利亚布里斯班定居的缅甸克伦难民社区成员的行为归属问题。我们使用的数据收集超过12个月的民族志田野调查使用参与式观察和半结构化访谈的方法。本文介绍了卡伦社区成员所面临的挑战,因为他们在自己的社区内努力应对本地和跨国的复杂性,同时也建立了对澳大利亚社会环境的归属感。我们认为,卡伦参与者的定居生活经历挑战了有限的归属感概念,从而使我们能够扩展定居和社会包容的主导结构,并让位于新兴散居社区的更细致入微的代表。因此,我们重新定位了一个重新安置的难民社区,使其远离那些占主导地位的归属感和包容性结构倾向于强加的剥夺权力和排他性观念。
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引用次数: 5
Understanding sexual violence as a form of caste violence 将性暴力理解为一种种姓暴力
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2016-07-28 DOI: 10.36251/JOSI.103
Prachita Patil
The paper attempts to understand narratives of sexual violence anchored within the dynamics of social location of caste and gender. Apparent caste-patriarchy and gender hierarchies which are at play in cases of sexual violence against lower-caste and dalit women speak about differential experiences of rape and sexual abuse that women have in India. The paper endeavours to establish that sexual violence is also a form of caste violence by rereading the unfortunate cases of Bhanwari Devi, Khairlanji, Lalasa Devi and Delta Meghwal
本文试图理解性暴力的叙事锚定在种姓和性别的社会位置的动态。明显的种姓父权制和性别等级制度在针对低种姓和达利特妇女的性暴力案件中起作用,说明了印度妇女在强奸和性虐待方面的不同经历。本文试图通过重读Bhanwari Devi, Khairlanji, Lalasa Devi和Delta Meghwal的不幸案例来确定性暴力也是一种种姓暴力形式
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引用次数: 10
Exploring the challenges experienced by people with disabilities in the employment sector in Australia: Advocating for inclusive practice‐ a review of literature 探索残疾人在澳大利亚就业部门所面临的挑战:倡导包容性实践-文献综述
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2016-07-28 DOI: 10.36251/JOSI.99
Amos Ruhindwa, Christine Randall, J. Cartmel
People with disabilities are generally not considered as able participants in the workforce (paid or volunteer work) and therefore, they often experience exclusion from participating in mainstream employment opportunities. People with disabilities experience various barriers to employment, such as discrimination in the workplace, stigma, prejudice and stereotypes. However, some people with disabilities participate in the workforce and make valuable contributions towards economic development, social capital and wider society. This literature review summarises published research findings about the challenges that people with disabilities experience in pursuing employment opportunities, including volunteering and paid positions; and in undertaking these roles. Furthermore, it explores possible interventions to improve employment outcomes that are effective from the perspectives of people with disabilities. Findings indicate that effective practice takes an inclusive approach and allows clients to take ownership of solutions in relation to addressing the challenges they experience in the employment sector. For this reason, two different community development projects, which particularly focused on employment challenges for people with disabilities, as well as outlining strategies and solutions that promote client ownership were reviewed. Additionally, employment support techniques and strategies, as well as human rights’ principles on work and employment for people with disabilities will be debated. Finally, implications for research and practice for the rehabilitation counselling profession and the disability employment services sector are discussed.
残疾人通常不被认为是劳动力(有偿或志愿工作)的有能力参与者,因此,他们经常被排除在主流就业机会之外。残疾人在就业方面面临各种障碍,例如工作场所的歧视、污名化、偏见和陈规定型观念。然而,一些残疾人参加了工作,为经济发展、社会资本和更广泛的社会作出了宝贵的贡献。本文献综述总结了已发表的关于残疾人在寻求就业机会时遇到的挑战的研究结果,包括志愿服务和带薪职位;在承担这些角色时。此外,它还探讨了从残疾人的角度有效改善就业结果的可能干预措施。研究结果表明,有效的实践采取了一种包容性的方法,并允许客户在解决他们在就业部门遇到的挑战方面拥有解决方案。出于这个原因,我们审查了两个不同的社区发展项目,它们特别关注残疾人的就业挑战,并概述了促进客户所有权的战略和解决方案。此外,还将讨论就业支助技术和战略,以及残疾人工作和就业的人权原则。最后,讨论了研究和实践对康复咨询专业和残疾就业服务部门的影响。
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引用次数: 16
Promoting social inclusion: More important now than ever? 促进社会包容:现在比以往任何时候都更重要?
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2015-12-17 DOI: 10.36251/JOSI.80
P. Harris
We are all unique and as humans share the experience of having areas of strength and weakness. However, our opportunities and abilities to capitalise on our strengths, and concordantly, to mask or accommodate our weaknesses vary tremendously. The degree to which our intersectionality or whether the different aspects of our lives are valued or devalued and the degree to which this impacts us is also heterogeneous. The phenomena of social exclusion and the need for more socially inclusive agendas is therefore not universally experienced nor understood. Indeed, it is argued that to not have to think about such issues is itself indicative of a position of relative privilege.
我们都是独一无二的,作为人类,我们都有自己的长处和短处。然而,我们利用我们的优势,同时掩盖或适应我们的弱点的机会和能力差别很大。我们的交集程度,或者说我们生活的不同方面是被重视还是被贬低,以及它对我们的影响程度也是不同的。因此,社会排斥现象和对更具社会包容性议程的需求并没有得到普遍的体验和理解。事实上,有人认为,不必考虑这些问题本身就表明了一种相对特权的地位。
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引用次数: 1
Older adults’ understandings of social inclusion: Views from a healthy ageing community program 老年人对社会包容的理解:来自健康老龄化社区项目的观点
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2015-12-17 DOI: 10.36251/JOSI.86
Michael Nycyk, Margaret Redsell
Keeping older adults over 65 years of age socially included is a challenge still being addressed. Older adults’ views of feeling socially included and avoiding social exclusion and isolation are individual. This ethnographic study examines the views participants have about feeling socially included in their community when attending a community healthy ageing program in Brisbane, Australia. Niche studies of social inclusion in particular settings are valuable as alternatives to large studies, because of the diversity they offer in finding out what older adults identify as making them feel socially included. Data was collected by participant observation and focus groups, with supporting member checks and brief follow-up interviews. The main finding was that the program encouraged program participants to view themselves as feeling socially mobile, mainly because of access to information resources and to the human networks the program offered. Five concerns dominated the analysis where participants felt exclusion and isolation was an issue: transport, housing and living arrangements, health, crime and personal safety, and technology use. This paper contributes to the understanding of views of social inclusion in a particular setting and brings an awareness of the types of solutions a community program can bring to older adults to help keep them socially included.
让65岁以上的老年人融入社会是一项仍在解决的挑战。老年人对感受社会包容和避免社会排斥和孤立的看法是个人的。这项人种学研究考察了在澳大利亚布里斯班参加社区健康老龄化计划时,参与者对社会融入社区的看法。在特定环境下对社会包容的小众研究是有价值的,可以替代大型研究,因为它们提供了多样性,可以找出老年人认为是什么让他们感到被社会包容。通过参与者观察和焦点小组收集数据,并对支持成员进行检查和简短的后续访谈。研究的主要发现是,该项目鼓励项目参与者将自己视为具有社会流动性的人,这主要是因为他们可以获得信息资源和项目提供的人际网络。参与者认为被排斥和孤立是一个问题,在分析中占主导地位的五个问题是:交通、住房和生活安排、健康、犯罪和人身安全以及技术使用。本文有助于理解特定环境下社会包容的观点,并使人们意识到社区项目可以为老年人带来的解决方案类型,以帮助他们保持社会包容。
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引用次数: 1
#NewWSUnites: Reflections on institutionalising acceptance and diversity through Sydney's Gay and Lesbian Mardi Gras Parade #NewWSUnites:通过悉尼同性恋狂欢节游行对制度化接受和多样性的思考
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2015-12-17 DOI: 10.36251/JOSI.87
T. Dune, Annie Armstrong
The institutionalisation of discrimination is often cited as a key factor in poor health and wellbeing outcomes for people identifying as lesbian, gay, bisexual, transgender, intersex and queer (LGBTIQ). Such health outcomes include poor mental health, psychological stress resulting in physical manifestations of illness, and higher incidence of drug and alcohol abuse, in addition to higher prevalence of self-harm and suicide (Jones, del Pozo De Bolger, Dune, Lykins & Hawkins, 2015). McNair and Hughes (2012) also cite a higher prevalence of risk factors for cardiovascular disease and cancer, and lower rates of preventive screening, which all contribute to poor health outcomes. However, institutionalisation of LGBTIQ acceptance is also on the rise (Ellis, 2009; Renn, 2007). This is especially the case within higher education institutions, with many people around the world leading awe-inspiring initiatives to celebrate diversity. For instance, through the It Gets Better campaign (2015) many universities have incorporated the acceptance of diversity as part of their institutional and public image. Considering that such organisations are often in positions of both privilege and influence, they are well placed to champion change within their communities.
歧视的制度化经常被认为是女同性恋、男同性恋、双性恋、变性人、双性人和酷儿(LGBTIQ)群体健康和福祉不佳的一个关键因素。这些健康结果包括心理健康状况不佳,心理压力导致身体疾病的表现,药物和酒精滥用的发生率较高,以及自残和自杀的发生率较高(Jones, del Pozo De Bolger, Dune, Lykins & Hawkins, 2015)。McNair和Hughes(2012)还指出,心血管疾病和癌症风险因素的患病率较高,预防性筛查率较低,这些都是导致健康状况不佳的原因。然而,LGBTIQ接受的制度化也在上升(Ellis, 2009;Renn, 2007)。在高等教育机构中尤其如此,世界各地有许多人发起了令人敬畏的活动来庆祝多样性。例如,通过It Gets Better活动(2015年),许多大学已经将接受多样性作为其机构和公众形象的一部分。考虑到这些组织往往既具有特权又具有影响力,它们在支持社区变革方面处于有利地位。
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引用次数: 0
Civil disabilities: Citizenship, membership, and belonging. A review 公民残疾:公民权、会员资格和归属感。回顾
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2015-12-17 DOI: 10.36251/JOSI.88
S. Cappe
Nancy Hirschmann and Beth Linker edited a collection of essays that deal with various topics in the history and current situation of people with disabilities in America. The essays in Civil Disabilities expertly navigate the contours of ableism and citizenship to provide historical and analytical context to the lived experiences of disability in America. While the editors point out and recognise how American scholarship has not adequately developed the concept of citizenship in reference to Americans with disabilities, they draw on Canadian authors and their more nuanced study of citizenship and disability to frame the chapters in this volume. The authors do, however, draw on the rich American literature of citizenship, such as that developed by Martin Luther King and Ruth Bader Ginsburg. This collection of essays in an important step forward in the application of those foundational concepts to the study of disability in America.
南希·赫希曼和贝丝·林克编辑了一本论文集,讨论了美国残疾人的历史和现状。《公民残疾》的文章熟练地驾驭了残疾歧视和公民身份的轮廓,为美国残疾人的生活经历提供了历史和分析背景。虽然编辑们指出并认识到美国奖学金如何没有充分发展公民身份的概念,参考美国残疾人,他们借鉴了加拿大作家和他们对公民身份和残疾的更细致入微的研究,以框架本卷的章节。然而,作者确实借鉴了丰富的美国公民文学,比如马丁·路德·金和露丝·巴德·金斯伯格的作品。这本文集是将这些基本概念应用于美国残疾研究的重要一步。
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引用次数: 0
Towards an inclusive society in Ghana: An analysis of challenges persons with disabilities face in participating in tourism in the Ashanti region 加纳迈向包容性社会:分析阿散蒂地区残疾人参与旅游业所面临的挑战
IF 0.5 Q4 SOCIAL ISSUES Pub Date : 2015-12-17 DOI: 10.36251/JOSI.85
S. A. Mensah, Eric Badu, M. Opoku
Participation in tourism brings individuals, families and communities together, making it an important social inclusion strategy. Negative perceptions about persons with disabilities could make it difficult for them to access public places. Therefore, this study served to examine tourism challenges for persons with disabilities (PwDs) in the Ashanti region of Ghana. A cross sectional study with quantitative data collection was conducted with PwDs. Structured questionnaires were administered to 120 PwDs using a convenience sampling technique. Descriptive statistics were explored using SPSS version 20. The study found that PwDs faced barriers to facilities and structures at tourist destinations. The barriers to tourism included lack of income, negative attitudes of the public and physical barriers such as a lack of adapted toilet facilities, tables and chairs, inaccessible routes for wheel chair users, inability to climb walkways and an absence of canopy walk-ways. The study supports the evidence of challenges faced by PwDs at tourism destinations. Redesigning and resourcing tourism facilities to be more PwD friendly could remove barriers faced by PwDs in tourism, creating greater social inclusion for this population.
参与旅游业将个人、家庭和社区聚集在一起,使其成为一项重要的社会包容战略。对残疾人的负面看法可能使他们难以进入公共场所。因此,本研究旨在研究加纳阿散蒂地区残疾人(PwDs)面临的旅游挑战。对残疾患者进行了定量数据收集的横断面研究。采用方便抽样技术对120名残疾人进行结构化问卷调查。描述性统计使用SPSS version 20进行研究。研究发现,残疾人士在旅游目的地的设施和构筑物上面临障碍。旅游业的障碍包括缺乏收入、公众的消极态度和物理障碍,如缺乏适应的厕所设施、桌椅、轮椅使用者无法进入的路线、无法爬上人行道和缺乏天篷人行道。这项研究证实了残疾人士在旅游目的地所面临的挑战。重新设计旅游设施,为残疾人士提供更方便的资源,可消除残疾人士在旅游方面面临的障碍,为这一群体创造更大的社会包容。
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引用次数: 3
期刊
Journal of Social Inclusion
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