Pub Date : 2018-09-02DOI: 10.1080/02682621.2018.1541531
Elizabeth Rolls
{"title":"On a White Horse: A memoir of love, loss and the healing power of art","authors":"Elizabeth Rolls","doi":"10.1080/02682621.2018.1541531","DOIUrl":"https://doi.org/10.1080/02682621.2018.1541531","url":null,"abstract":"","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2018.1541531","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59272817","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-09-02DOI: 10.1080/02682621.2018.1535874
C. M. Parkes
{"title":"Cicely Saunders: A life and legacy","authors":"C. M. Parkes","doi":"10.1080/02682621.2018.1535874","DOIUrl":"https://doi.org/10.1080/02682621.2018.1535874","url":null,"abstract":"","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2018.1535874","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46624700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-09-02DOI: 10.1080/02682621.2018.1535878
Clare Wakenshaw, Elizabeth Sillence
Abstract To date, the majority of research into a good death has focused on the experience of the person who is dying. Taking the perspective of bereaved individuals, this qualitative study explores which elements of the end of life experience constitute a good death and how these elements influence the process of bereavement adjustment. Following interviews with ten bereaved adults four themes were identified which together define a good death: a lack of physical distress, emotional resolution, ‘naming death as death’ and death at ‘the right time’. The value of open communication prior to death is highlighted. For those working with bereaved individuals these results support an understanding of the impact of the manner of death on bereavement adjustment. For those in palliative care settings, potentially modifiable elements of the end of life experience which may support better bereavement are suggested.
{"title":"From a good death to a better bereavement? The impact of the end of life experience on bereavement adjustment, a thematic analysis","authors":"Clare Wakenshaw, Elizabeth Sillence","doi":"10.1080/02682621.2018.1535878","DOIUrl":"https://doi.org/10.1080/02682621.2018.1535878","url":null,"abstract":"Abstract To date, the majority of research into a good death has focused on the experience of the person who is dying. Taking the perspective of bereaved individuals, this qualitative study explores which elements of the end of life experience constitute a good death and how these elements influence the process of bereavement adjustment. Following interviews with ten bereaved adults four themes were identified which together define a good death: a lack of physical distress, emotional resolution, ‘naming death as death’ and death at ‘the right time’. The value of open communication prior to death is highlighted. For those working with bereaved individuals these results support an understanding of the impact of the manner of death on bereavement adjustment. For those in palliative care settings, potentially modifiable elements of the end of life experience which may support better bereavement are suggested.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2018.1535878","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44863803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-05-04DOI: 10.1080/02682621.2018.1493638
J. Mowll
Palliative care services around the world are often mandated to provide support to bereaved family caregivers in the wake of a death in palliative care. At the same time there is increasing debate on the parameters and models of such support and about how and when to provide professional support. Research has focussed important attention on the minority of bereaved caregivers who experience a pathological reaction, most commonly equated with Complicated Grief (CG) or Prolonged Grief Disorder (PGD) (Hall, 2014). However, such a focus privileges a medical or psychiatric understanding of grief and does not always take into account the breadth and varied bereavement experiences and concomitant support needs of caregivers. The three articles discussed take a rigorous qualitative and interpretive research approach to provide further insights. The research contributes a deepened understanding of the experiences of bereaved caregivers in context of end of life (EOL) or palliative care and invites us to consider the multiple layers and complexities of bereavement support needs.
{"title":"The bereavement experiences and support needs of bereaved family caregivers in the context of palliative care","authors":"J. Mowll","doi":"10.1080/02682621.2018.1493638","DOIUrl":"https://doi.org/10.1080/02682621.2018.1493638","url":null,"abstract":"Palliative care services around the world are often mandated to provide support to bereaved family caregivers in the wake of a death in palliative care. At the same time there is increasing debate on the parameters and models of such support and about how and when to provide professional support. Research has focussed important attention on the minority of bereaved caregivers who experience a pathological reaction, most commonly equated with Complicated Grief (CG) or Prolonged Grief Disorder (PGD) (Hall, 2014). However, such a focus privileges a medical or psychiatric understanding of grief and does not always take into account the breadth and varied bereavement experiences and concomitant support needs of caregivers. The three articles discussed take a rigorous qualitative and interpretive research approach to provide further insights. The research contributes a deepened understanding of the experiences of bereaved caregivers in context of end of life (EOL) or palliative care and invites us to consider the multiple layers and complexities of bereavement support needs.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2018.1493638","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41381279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-05-04DOI: 10.1080/02682621.2018.1493642
J. Dowling
This is an attractively illustrated book for very young children, three years and older, which deals with the painful and sensitive situation of the death of a baby brother or sister just after birth. There is very little literature available aimed specifically at young children who are bereaved in this way so in that respect it is a very welcome addition. As with all books for this age group, there are more pictures than words, and adults reading the book to small children need to be able to extrapolate and wonder with the child about what is going on based on visual or verbal clues; ‘ What’s happening here?’, ‘Do you remember when we were in the hospital?’ and so on. Although there is a short section at the back with edited extracts from a Sands (Stillbirth and Neonatal Death Charity) publication, I could imagine grieving parents, stunned by grief as they often are, might overlook that; it might have been better to put that information at the beginning. Quite a lot of space is devoted to the often misunderstood idea of ‘losing’ the baby and this is good. I think other unhelpful but commonly used expressions could have been incorporated however ‘going to sleep’ being the obvious example. Children at three or four cannot understand the permanency of death and this isn’t really addressed either which is a shame. I really liked the idea of a cot as a spaceship and the illustration is lovely; that seems an inspired choice. Equally good is the description of how Stewart wasn’t strong enough to live outside of Mummy’s tummy which avoids later worries the surviving sibling may have of being ill or catching something. Explaining death through the loss of senses is usually helpful for young children and this is done well, as is the message he will never be forgotten. The ‘d’ word is used once, which is helpful, but perhaps could have been used more often or in other forms ‘died’ and so on. The link to confusion about what happens is implied well (Why are all these cards arriving? Why are people bringing soup?’) but I feel could have been made more explicit. Indeed the most obvious absence is the lack of reference to any feelings, either from the parents or relatives or from the child’s point of view and I think this is a real drawback. The illustrations could really have been used well here to show the range of feelings but they are rather neutral or ambiguous. Small children really need to be helped with giving words to the feelings they will observe in others and feel in themselves. Neither is there a reference to a funeral or where his body is now. In that respect the book might need to be complemented with other publications.
{"title":"Karuna Cards: creative ideas to transform grief and difficult life transitions","authors":"J. Dowling","doi":"10.1080/02682621.2018.1493642","DOIUrl":"https://doi.org/10.1080/02682621.2018.1493642","url":null,"abstract":"This is an attractively illustrated book for very young children, three years and older, which deals with the painful and sensitive situation of the death of a baby brother or sister just after birth. There is very little literature available aimed specifically at young children who are bereaved in this way so in that respect it is a very welcome addition. As with all books for this age group, there are more pictures than words, and adults reading the book to small children need to be able to extrapolate and wonder with the child about what is going on based on visual or verbal clues; ‘ What’s happening here?’, ‘Do you remember when we were in the hospital?’ and so on. Although there is a short section at the back with edited extracts from a Sands (Stillbirth and Neonatal Death Charity) publication, I could imagine grieving parents, stunned by grief as they often are, might overlook that; it might have been better to put that information at the beginning. Quite a lot of space is devoted to the often misunderstood idea of ‘losing’ the baby and this is good. I think other unhelpful but commonly used expressions could have been incorporated however ‘going to sleep’ being the obvious example. Children at three or four cannot understand the permanency of death and this isn’t really addressed either which is a shame. I really liked the idea of a cot as a spaceship and the illustration is lovely; that seems an inspired choice. Equally good is the description of how Stewart wasn’t strong enough to live outside of Mummy’s tummy which avoids later worries the surviving sibling may have of being ill or catching something. Explaining death through the loss of senses is usually helpful for young children and this is done well, as is the message he will never be forgotten. The ‘d’ word is used once, which is helpful, but perhaps could have been used more often or in other forms ‘died’ and so on. The link to confusion about what happens is implied well (Why are all these cards arriving? Why are people bringing soup?’) but I feel could have been made more explicit. Indeed the most obvious absence is the lack of reference to any feelings, either from the parents or relatives or from the child’s point of view and I think this is a real drawback. The illustrations could really have been used well here to show the range of feelings but they are rather neutral or ambiguous. Small children really need to be helped with giving words to the feelings they will observe in others and feel in themselves. Neither is there a reference to a funeral or where his body is now. In that respect the book might need to be complemented with other publications. ","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2018.1493642","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42437333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-05-04DOI: 10.1080/02682621.2018.1493644
Judy Debenham
This is an attractively illustrated book for very young children, three years and older, which deals with the painful and sensitive situation of the death of a baby brother or sister just after birth. There is very little literature available aimed specifically at young children who are bereaved in this way so in that respect it is a very welcome addition. As with all books for this age group, there are more pictures than words, and adults reading the book to small children need to be able to extrapolate and wonder with the child about what is going on based on visual or verbal clues; ‘ What’s happening here?’, ‘Do you remember when we were in the hospital?’ and so on. Although there is a short section at the back with edited extracts from a Sands (Stillbirth and Neonatal Death Charity) publication, I could imagine grieving parents, stunned by grief as they often are, might overlook that; it might have been better to put that information at the beginning. Quite a lot of space is devoted to the often misunderstood idea of ‘losing’ the baby and this is good. I think other unhelpful but commonly used expressions could have been incorporated however ‘going to sleep’ being the obvious example. Children at three or four cannot understand the permanency of death and this isn’t really addressed either which is a shame. I really liked the idea of a cot as a spaceship and the illustration is lovely; that seems an inspired choice. Equally good is the description of how Stewart wasn’t strong enough to live outside of Mummy’s tummy which avoids later worries the surviving sibling may have of being ill or catching something. Explaining death through the loss of senses is usually helpful for young children and this is done well, as is the message he will never be forgotten. The ‘d’ word is used once, which is helpful, but perhaps could have been used more often or in other forms ‘died’ and so on. The link to confusion about what happens is implied well (Why are all these cards arriving? Why are people bringing soup?’) but I feel could have been made more explicit. Indeed the most obvious absence is the lack of reference to any feelings, either from the parents or relatives or from the child’s point of view and I think this is a real drawback. The illustrations could really have been used well here to show the range of feelings but they are rather neutral or ambiguous. Small children really need to be helped with giving words to the feelings they will observe in others and feel in themselves. Neither is there a reference to a funeral or where his body is now. In that respect the book might need to be complemented with other publications.
{"title":"Stewart’s Tree","authors":"Judy Debenham","doi":"10.1080/02682621.2018.1493644","DOIUrl":"https://doi.org/10.1080/02682621.2018.1493644","url":null,"abstract":"This is an attractively illustrated book for very young children, three years and older, which deals with the painful and sensitive situation of the death of a baby brother or sister just after birth. There is very little literature available aimed specifically at young children who are bereaved in this way so in that respect it is a very welcome addition. As with all books for this age group, there are more pictures than words, and adults reading the book to small children need to be able to extrapolate and wonder with the child about what is going on based on visual or verbal clues; ‘ What’s happening here?’, ‘Do you remember when we were in the hospital?’ and so on. Although there is a short section at the back with edited extracts from a Sands (Stillbirth and Neonatal Death Charity) publication, I could imagine grieving parents, stunned by grief as they often are, might overlook that; it might have been better to put that information at the beginning. Quite a lot of space is devoted to the often misunderstood idea of ‘losing’ the baby and this is good. I think other unhelpful but commonly used expressions could have been incorporated however ‘going to sleep’ being the obvious example. Children at three or four cannot understand the permanency of death and this isn’t really addressed either which is a shame. I really liked the idea of a cot as a spaceship and the illustration is lovely; that seems an inspired choice. Equally good is the description of how Stewart wasn’t strong enough to live outside of Mummy’s tummy which avoids later worries the surviving sibling may have of being ill or catching something. Explaining death through the loss of senses is usually helpful for young children and this is done well, as is the message he will never be forgotten. The ‘d’ word is used once, which is helpful, but perhaps could have been used more often or in other forms ‘died’ and so on. The link to confusion about what happens is implied well (Why are all these cards arriving? Why are people bringing soup?’) but I feel could have been made more explicit. Indeed the most obvious absence is the lack of reference to any feelings, either from the parents or relatives or from the child’s point of view and I think this is a real drawback. The illustrations could really have been used well here to show the range of feelings but they are rather neutral or ambiguous. Small children really need to be helped with giving words to the feelings they will observe in others and feel in themselves. Neither is there a reference to a funeral or where his body is now. In that respect the book might need to be complemented with other publications. ","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2018.1493644","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45123141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2018-05-04DOI: 10.1080/02682621.2018.1493646
Laurel Young, A. Pringle
Abstract Although singing is an inherent part of grieving in many cultures, relatively little research has been conducted on how singing is experienced by adults in bereavement support group contexts. The purpose of this study was to examine the singing experiences of seven female adults who participated in a postloss bereavement support music therapy group that took place in a community hospice. Individual interviews were conducted with all participants, who also had the option of submitting written feedback after each group singing session. This feedback, along with interview transcripts, was analysed using Interpretative Phenomenological Analysis (IPA). This resulted in seven narrative summary interpretations that represent explicit and implicit aspects of each individual’s lived experience of singing in this context. Cross case analysis revealed themes organised under five categories, supported with participant quotes. Potential implications for research and practice are presented.
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