Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2204722
Ashley Brock
{"title":"We’ll Fight It Out Here: A History of the Ongoing Struggle for Health Equity","authors":"Ashley Brock","doi":"10.1080/15398285.2023.2204722","DOIUrl":"https://doi.org/10.1080/15398285.2023.2204722","url":null,"abstract":"","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42617962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2211498
Denise A Smith
Abstract With more than 300 language editions, Wikipedia offers accessible health information written in plain language to a wide audience. Having survived more than twenty years, it is broadly considered the “grown-up” of the internet due to its sheer longevity and maturity. Along with evidence that Wikipedia is more reliable than widely believed, it has emerged as the most frequently accessed web site for health information despite a lingering stigma. Grounded in real-life examples of health events, the author reinforces Wikipedia as a tool for public health education. With wider acceptance of Wikipedia as a health information resource, existing opportunities for education, investment, and improvement of the world’s largest encyclopedia can be cultivated.
{"title":"It’s Time to Recognize Wikipedia as a Health Information Resource","authors":"Denise A Smith","doi":"10.1080/15398285.2023.2211498","DOIUrl":"https://doi.org/10.1080/15398285.2023.2211498","url":null,"abstract":"Abstract With more than 300 language editions, Wikipedia offers accessible health information written in plain language to a wide audience. Having survived more than twenty years, it is broadly considered the “grown-up” of the internet due to its sheer longevity and maturity. Along with evidence that Wikipedia is more reliable than widely believed, it has emerged as the most frequently accessed web site for health information despite a lingering stigma. Grounded in real-life examples of health events, the author reinforces Wikipedia as a tool for public health education. With wider acceptance of Wikipedia as a health information resource, existing opportunities for education, investment, and improvement of the world’s largest encyclopedia can be cultivated.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42355691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2204724
Tiffany N. Chavis
{"title":"Indigenous Public Health: Improvement Through Community Engaged Interventions","authors":"Tiffany N. Chavis","doi":"10.1080/15398285.2023.2204724","DOIUrl":"https://doi.org/10.1080/15398285.2023.2204724","url":null,"abstract":"","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47467366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2204723
F. Steele
{"title":"Talking Health: A New Way to Communicate about Public Health","authors":"F. Steele","doi":"10.1080/15398285.2023.2204723","DOIUrl":"https://doi.org/10.1080/15398285.2023.2204723","url":null,"abstract":"","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47491887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2204287
Elizabeth Sillence, C. Hardy, Emma Kemp
Abstract Mobile health (mHealth) apps are becoming a popular digital resource and in the last few years menopause smartphone apps have become more popular. While these apps often contain little healthcare professional (HCP) input or evidence-based information less is known about the specific features of the apps and whether users find the apps helpful in relation to their menopause experience. We conducted a quality, feature and written review analysis of 18 menopause apps. We assessed the overall quality of the apps using the Mobile App Rating Scale (MAR), identified features including tracking, data visualization and community elements and undertook a thematic analysis of the written reviews. The analysis showed that app quality was variable and features ranged from simple trackers to community elements, audio guides and personalized content. Reviews of apps were overwhelmingly positive in nature and the thematic analysis highlighted four themes: “empowering functions”, “I’m not alone,” “function wish list,” and “usability and privacy.” The apps encouraged self-reflection and built confidence around menopause discussions, especially with HCPs, while the community features encouraged a sense of togetherness. Additional, tailored functionality, alongside ease of use remains important to users. Menopause apps currently available on the market vary in terms of their quality and features but reviews indicate they are generally perceived as positive. Apps may have a role to play in supporting women’s menopause experience and further consideration of their role in relation to HCP consultations is required.
{"title":"“This App Just Gets Me”: Assessing the Quality, Features and User Reviews of Menopause Smartphone Apps","authors":"Elizabeth Sillence, C. Hardy, Emma Kemp","doi":"10.1080/15398285.2023.2204287","DOIUrl":"https://doi.org/10.1080/15398285.2023.2204287","url":null,"abstract":"Abstract Mobile health (mHealth) apps are becoming a popular digital resource and in the last few years menopause smartphone apps have become more popular. While these apps often contain little healthcare professional (HCP) input or evidence-based information less is known about the specific features of the apps and whether users find the apps helpful in relation to their menopause experience. We conducted a quality, feature and written review analysis of 18 menopause apps. We assessed the overall quality of the apps using the Mobile App Rating Scale (MAR), identified features including tracking, data visualization and community elements and undertook a thematic analysis of the written reviews. The analysis showed that app quality was variable and features ranged from simple trackers to community elements, audio guides and personalized content. Reviews of apps were overwhelmingly positive in nature and the thematic analysis highlighted four themes: “empowering functions”, “I’m not alone,” “function wish list,” and “usability and privacy.” The apps encouraged self-reflection and built confidence around menopause discussions, especially with HCPs, while the community features encouraged a sense of togetherness. Additional, tailored functionality, alongside ease of use remains important to users. Menopause apps currently available on the market vary in terms of their quality and features but reviews indicate they are generally perceived as positive. Apps may have a role to play in supporting women’s menopause experience and further consideration of their role in relation to HCP consultations is required.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47205088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2204721
H. Epstein
Abstract Linking quality information within an electronic medical record or patient electronic record is not a new concept to health sciences librarians. Over time LATCH (Literature Attached to the Chart), InfoButtons, Clinical-e, Digital Libraries, Ask-A-Librarian, and MyChart information links have brought access by librarians to information resources within the electronic and patient health records. Bringing information to the fingertips of the patient care team members and patients and their families builds health literacy. It offers the opportunity to learn and make informed decisions about diagnostic tests, diseases and conditions, drugs and other therapies. This column highlights these electronic enhancements and the partnerships the health science librarians had with IS departments to bring these to fruition.
{"title":"Building Health Literacy by Enhancing Electronic Health Records With Information Connections: A Partnership of Health Science Librarians and IS Departments","authors":"H. Epstein","doi":"10.1080/15398285.2023.2204721","DOIUrl":"https://doi.org/10.1080/15398285.2023.2204721","url":null,"abstract":"Abstract Linking quality information within an electronic medical record or patient electronic record is not a new concept to health sciences librarians. Over time LATCH (Literature Attached to the Chart), InfoButtons, Clinical-e, Digital Libraries, Ask-A-Librarian, and MyChart information links have brought access by librarians to information resources within the electronic and patient health records. Bringing information to the fingertips of the patient care team members and patients and their families builds health literacy. It offers the opportunity to learn and make informed decisions about diagnostic tests, diseases and conditions, drugs and other therapies. This column highlights these electronic enhancements and the partnerships the health science librarians had with IS departments to bring these to fruition.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45869091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2207157
Bhavya Yalamanchili, C. Basch, J. Fera, Marianne Sullivan
Abstract Background Approximately 20% of individuals worldwide are affected by chronic pain, a condition defined by WHO as lasting more than 3 months. Although chronic pain is more prevalent in adults 65 years and older, it affects individuals of all ages. An estimated one-quarter to one-third of children experience chronic pain. Materials and methods One-hundred TikTok videos discussing chronic pain were analyzed using quantitative content analysis and descriptive statistics. Content categories were pre-determined based on CDC guidelines for prescribing practices for chronic pain and literature review. Data was recorded, managed, and analyzed using Microsoft Excel. Results Collectively, the 100 sampled videos received 99,133,350 views; 13,817,400 likes; 167,473 comments; and 310,301 shares. Five content categories were present in a majority of the videos: 81 videos were created by patients and 81 by perceived young adults (age 19–30), 58 mentioned a type of chronic pain, and 55 used music. Additionally, 78 videos did not recommend solutions for chronic pain. Discussion Young people are using social media platforms, such as TikTok, to discuss their personal experiences with chronic pain. Our study found that these videos were primarily ways for young adults to share personal stories of chronic pain, not to promote remedies. Understanding the content created by people suffering from inadequately treated conditions, like chronic pain, is important for those involved in caring for such patients.
{"title":"Using Social Media to Discuss Chronic Pain: A Descriptive Study of TikTok Content","authors":"Bhavya Yalamanchili, C. Basch, J. Fera, Marianne Sullivan","doi":"10.1080/15398285.2023.2207157","DOIUrl":"https://doi.org/10.1080/15398285.2023.2207157","url":null,"abstract":"Abstract Background Approximately 20% of individuals worldwide are affected by chronic pain, a condition defined by WHO as lasting more than 3 months. Although chronic pain is more prevalent in adults 65 years and older, it affects individuals of all ages. An estimated one-quarter to one-third of children experience chronic pain. Materials and methods One-hundred TikTok videos discussing chronic pain were analyzed using quantitative content analysis and descriptive statistics. Content categories were pre-determined based on CDC guidelines for prescribing practices for chronic pain and literature review. Data was recorded, managed, and analyzed using Microsoft Excel. Results Collectively, the 100 sampled videos received 99,133,350 views; 13,817,400 likes; 167,473 comments; and 310,301 shares. Five content categories were present in a majority of the videos: 81 videos were created by patients and 81 by perceived young adults (age 19–30), 58 mentioned a type of chronic pain, and 55 used music. Additionally, 78 videos did not recommend solutions for chronic pain. Discussion Young people are using social media platforms, such as TikTok, to discuss their personal experiences with chronic pain. Our study found that these videos were primarily ways for young adults to share personal stories of chronic pain, not to promote remedies. Understanding the content created by people suffering from inadequately treated conditions, like chronic pain, is important for those involved in caring for such patients.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44160917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-04-03DOI: 10.1080/15398285.2023.2203580
Sapphire H. Lin
Abstract This study explores the adoption of mobile and wearable technology in the physical activity of older adults. The data arose from qualitative ethnographic observations and interviews (N = 7). Findings led to the conceptualization of a model describing interviewees’ decision-making processes for adoption. The model outlines these phases: awareness; attitudes; appraisals; initial use, which could lead to abandonment or adoption; and post-trial abandonment, which could lead to rejection or probable adoption through redeveloping awareness and attitudes, and reappraising the technology. The findings highlight the need to consider for age-specific barriers to adoption and to understand adoption as a stage-wise process with intricate layers. Certain well-formed habits and the lack of understanding of the parameters provided by these technologies can lead to older adults’ rejection of tools that are potentially useful for physical activity motivation. The paper suggests practical ways for promoting mobile and wearable technology to older adults.
{"title":"Adoption of Mobile and Wearable Technology for Older Adults’ Physical Activity: A Preliminary Model","authors":"Sapphire H. Lin","doi":"10.1080/15398285.2023.2203580","DOIUrl":"https://doi.org/10.1080/15398285.2023.2203580","url":null,"abstract":"Abstract This study explores the adoption of mobile and wearable technology in the physical activity of older adults. The data arose from qualitative ethnographic observations and interviews (N = 7). Findings led to the conceptualization of a model describing interviewees’ decision-making processes for adoption. The model outlines these phases: awareness; attitudes; appraisals; initial use, which could lead to abandonment or adoption; and post-trial abandonment, which could lead to rejection or probable adoption through redeveloping awareness and attitudes, and reappraising the technology. The findings highlight the need to consider for age-specific barriers to adoption and to understand adoption as a stage-wise process with intricate layers. Certain well-formed habits and the lack of understanding of the parameters provided by these technologies can lead to older adults’ rejection of tools that are potentially useful for physical activity motivation. The paper suggests practical ways for promoting mobile and wearable technology to older adults.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46789928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/15398285.2023.2168396
Margareta Westerbotn, Taina Sormunen
Abstract This study was conducted to examine whether online information regarding male infertility on Swedish fertility clinics’ websites was readable, suitable, and of appropriate quality. A cross-sectional design was used to evaluate 22 fertility clinics’ websites focusing on male infertility by using the Suitability Assessment of Materials (SAM), and the DISCERN instrument. Results showed that information focusing on male infertility was scanty but had an “adequate” readability and was easy to comprehend. The conclusion was that the information on the websites must be reliable, so that men can base their choices concerning their fertility issues on reliable facts. It is important that health care professionals develop high quality sources of information regarding male infertility.
{"title":"Male Infertility Information on Swedish Fertility Clinics’ Websites: An Evaluation of Readability, Suitability, and Quality","authors":"Margareta Westerbotn, Taina Sormunen","doi":"10.1080/15398285.2023.2168396","DOIUrl":"https://doi.org/10.1080/15398285.2023.2168396","url":null,"abstract":"Abstract This study was conducted to examine whether online information regarding male infertility on Swedish fertility clinics’ websites was readable, suitable, and of appropriate quality. A cross-sectional design was used to evaluate 22 fertility clinics’ websites focusing on male infertility by using the Suitability Assessment of Materials (SAM), and the DISCERN instrument. Results showed that information focusing on male infertility was scanty but had an “adequate” readability and was easy to comprehend. The conclusion was that the information on the websites must be reliable, so that men can base their choices concerning their fertility issues on reliable facts. It is important that health care professionals develop high quality sources of information regarding male infertility.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42776481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-02DOI: 10.1080/15398285.2023.2167426
B. Jivanelli
{"title":"Living with Hereditary Cancer Risk What You and Your Family Need to Know","authors":"B. Jivanelli","doi":"10.1080/15398285.2023.2167426","DOIUrl":"https://doi.org/10.1080/15398285.2023.2167426","url":null,"abstract":"","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2023-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47182509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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