Pub Date : 2022-07-03DOI: 10.1080/15398285.2022.2073709
Nicola Gadd, Simone M Lee, K. Obamiro
Abstract Objective To identify levels of bowel cancer information overload and associated predictors. Methods A cross-sectional online survey of Tasmanians ≥18 years measured bowel cancer information overload using a modified Cancer Information Overload Scale. Descriptive statistics summarized participants’ demographic and information overload data; linear regression investigated information overload predictors. Results The analysis included 3,701 Tasmanians (75.8% female). Above 50% of participants disagreed/strongly disagreed with the statements favoring information overload. Significant predictors of bowel cancer information overload included current smokers, body mass index, lower educational attainment, and living less rurally. Conclusion In this study bowel cancer information overload was associated with lower educational attainment, current smokers, higher body mass index, and living less rurally.
{"title":"Perception of Bowel Cancer Information Overload: A Cross-Sectional Study","authors":"Nicola Gadd, Simone M Lee, K. Obamiro","doi":"10.1080/15398285.2022.2073709","DOIUrl":"https://doi.org/10.1080/15398285.2022.2073709","url":null,"abstract":"Abstract Objective To identify levels of bowel cancer information overload and associated predictors. Methods A cross-sectional online survey of Tasmanians ≥18 years measured bowel cancer information overload using a modified Cancer Information Overload Scale. Descriptive statistics summarized participants’ demographic and information overload data; linear regression investigated information overload predictors. Results The analysis included 3,701 Tasmanians (75.8% female). Above 50% of participants disagreed/strongly disagreed with the statements favoring information overload. Significant predictors of bowel cancer information overload included current smokers, body mass index, lower educational attainment, and living less rurally. Conclusion In this study bowel cancer information overload was associated with lower educational attainment, current smokers, higher body mass index, and living less rurally.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48689908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2053830
Adebowale Jeremy Adetayo, Olajumoke Bolanle Williams-Ilemobola, M. Asiru
Abstract This study sought to examine the relationship between religious sources of COVID-19 Vaccine information, Authentication and Vaccination acceptance among students in selected universities in Nigeria. A simple random technique was adopted for sampling. An anonymous survey was conducted online among Nigeria students in selected universities. Data were analyzed using descriptive and inferential statistics. Of the 521 participants surveyed, 74(14.2) stated that they have already received COVID-19 vaccination, while 286 (54.9%) intend to be vaccinated as soon as the vaccine becomes available. Sourcing COVID-19 Vaccine information on Facebook has a significant positive relationship with the intent to vaccinate (r = 0.146**, N = 521, p < 0.05), while online newspapers was found to have a significant positive relationship with the intent to vaccinate (r = 0.123**, N = 521, p < 0.05). Authenticating received information has a significant positive relationship with the intent to vaccinate (r = 0.159**, N = 521, p < 0.05). The study concluded that religious sources of COVID-19 vaccine information and information authentication are essential for vaccine acceptance. Therefore, it recommends that the vaccine acceptability may be increased if students use Facebook and online newspapers more for their religious sources of COVID-19 Vaccine information. However, authenticating this information will have more impact on vaccine acceptability.
摘要本研究旨在研究尼日利亚选定大学学生中COVID-19疫苗信息的宗教来源、认证和疫苗接种接受程度之间的关系。采用简单的随机抽样方法。一项匿名在线调查在尼日利亚选定大学的学生中进行。数据分析采用描述性和推断性统计。在接受调查的521名参与者中，74人(14.2%)表示他们已经接种了COVID-19疫苗，而286人(54.9%)打算在疫苗可用后立即接种疫苗。在Facebook上获取COVID-19疫苗信息与接种意愿呈显著正相关(r = 0.146**， N = 521, p < 0.05)，而在线报纸与接种意愿呈显著正相关(r = 0.123**， N = 521, p < 0.05)。验证接收到的信息与接种意愿呈显著正相关(r = 0.159**， N = 521, p < 0.05)。研究得出结论，新冠病毒疫苗信息的宗教来源和信息认证对疫苗接受至关重要。因此，它建议，如果学生更多地使用Facebook和在线报纸作为新冠病毒疫苗信息的宗教来源，可能会提高疫苗的可接受性。然而，验证这些信息将对疫苗的可接受性产生更大的影响。
{"title":"Religious Sources of COVID-19 Vaccine Information, Authentication and Vaccination Acceptance Among Students in Selected Universities in Nigeria","authors":"Adebowale Jeremy Adetayo, Olajumoke Bolanle Williams-Ilemobola, M. Asiru","doi":"10.1080/15398285.2022.2053830","DOIUrl":"https://doi.org/10.1080/15398285.2022.2053830","url":null,"abstract":"Abstract This study sought to examine the relationship between religious sources of COVID-19 Vaccine information, Authentication and Vaccination acceptance among students in selected universities in Nigeria. A simple random technique was adopted for sampling. An anonymous survey was conducted online among Nigeria students in selected universities. Data were analyzed using descriptive and inferential statistics. Of the 521 participants surveyed, 74(14.2) stated that they have already received COVID-19 vaccination, while 286 (54.9%) intend to be vaccinated as soon as the vaccine becomes available. Sourcing COVID-19 Vaccine information on Facebook has a significant positive relationship with the intent to vaccinate (r = 0.146**, N = 521, p < 0.05), while online newspapers was found to have a significant positive relationship with the intent to vaccinate (r = 0.123**, N = 521, p < 0.05). Authenticating received information has a significant positive relationship with the intent to vaccinate (r = 0.159**, N = 521, p < 0.05). The study concluded that religious sources of COVID-19 vaccine information and information authentication are essential for vaccine acceptance. Therefore, it recommends that the vaccine acceptability may be increased if students use Facebook and online newspapers more for their religious sources of COVID-19 Vaccine information. However, authenticating this information will have more impact on vaccine acceptability.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46557864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2069391
H. Epstein
Abstract Wikipedia, a crowd-sourced online encyclopedia begun in 2001, is potentially the most used source for medical information in the world with billions of visits each year. Its goal is to ensure that every person has access to all medical knowledge in their own language. The upside of this free open encyclopedia is everyone can enter an article. The downside of this free encyclopedia is that everyone can change words in an article. Vast amounts of health information has been added to Wikipedia, by medical professionals and some has even been edited by health science librarians and various health science student groups; but is it trustworthy? In this day and age of informed health consumers, is this an information tool on which to rely? This column traces the history of Wikipedia, comments on its health information contents and some editing efforts. This column ends with guiding questions whether or not it should be trusted.
{"title":"Health Information on Wikipedia: Can You Trust It?","authors":"H. Epstein","doi":"10.1080/15398285.2022.2069391","DOIUrl":"https://doi.org/10.1080/15398285.2022.2069391","url":null,"abstract":"Abstract Wikipedia, a crowd-sourced online encyclopedia begun in 2001, is potentially the most used source for medical information in the world with billions of visits each year. Its goal is to ensure that every person has access to all medical knowledge in their own language. The upside of this free open encyclopedia is everyone can enter an article. The downside of this free encyclopedia is that everyone can change words in an article. Vast amounts of health information has been added to Wikipedia, by medical professionals and some has even been edited by health science librarians and various health science student groups; but is it trustworthy? In this day and age of informed health consumers, is this an information tool on which to rely? This column traces the history of Wikipedia, comments on its health information contents and some editing efforts. This column ends with guiding questions whether or not it should be trusted.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45693331","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2062659
Chionye R. Ossai, S. Bedrick, B. Orwoll
Abstract Parents are increasingly using online physician rating sites to select a pediatrician. However, no studies have examined the role of social media in influencing parents’ choice of a pediatrician. The objective of this study was to qualitatively analyze what factors influence the choice of a pediatrician in an online peer support community. We retrieved retrospective data of all threads made to 4 subreddits on the Reddit social media platform between January 1, 2018 and December 31, 2019. We performed qualitative analysis using an inductive approach on threads related to choosing a pediatrician. We identified several codes which were grouped into subcategories/categories and finally abstracted into themes. We retrieved a total of 179 threads and included 30 for qualitative analysis. Thematic analysis led to identification of four major themes that influence how parents choose pediatricians on a social media platform—pediatrician-specific factors, office-related factors, parent/patient factors, and social factors. An online peer support community can serve as an important source of information for parents when searching for a pediatrician. Pediatric practices should focus on providing unmet information needs to parents that will ease the burden of the search process.
{"title":"Using Publicly Available Reddit Data to Understand How Parents Choose Pediatricians","authors":"Chionye R. Ossai, S. Bedrick, B. Orwoll","doi":"10.1080/15398285.2022.2062659","DOIUrl":"https://doi.org/10.1080/15398285.2022.2062659","url":null,"abstract":"Abstract Parents are increasingly using online physician rating sites to select a pediatrician. However, no studies have examined the role of social media in influencing parents’ choice of a pediatrician. The objective of this study was to qualitatively analyze what factors influence the choice of a pediatrician in an online peer support community. We retrieved retrospective data of all threads made to 4 subreddits on the Reddit social media platform between January 1, 2018 and December 31, 2019. We performed qualitative analysis using an inductive approach on threads related to choosing a pediatrician. We identified several codes which were grouped into subcategories/categories and finally abstracted into themes. We retrieved a total of 179 threads and included 30 for qualitative analysis. Thematic analysis led to identification of four major themes that influence how parents choose pediatricians on a social media platform—pediatrician-specific factors, office-related factors, parent/patient factors, and social factors. An online peer support community can serve as an important source of information for parents when searching for a pediatrician. Pediatric practices should focus on providing unmet information needs to parents that will ease the burden of the search process.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48943492","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2067715
C. Grinstead, S. Sumner, Martha Inofuentes-Likins
Abstract Nurses, as educators of hospitalized patients and their families, can play a major role in helping consumers discover and use quality online health information. Nurses access online content to build their own knowledge base, to share resources with patients and their families during the hospital stay, and to refer them to resources they might want to read on their own. Richer understanding of nurses’ experiences using the Internet to educate patients can help librarians develop and promote more effective materials. In this qualitative study, a librarian interviewed ten nurses about their experiences providing patient education. Three themes emerged: teaching as a constant process, teaching as personal and individual, and teaching as social.
{"title":"Nurses’ Experiences and Perceptions of Using Online Resources for Patient and Family Education","authors":"C. Grinstead, S. Sumner, Martha Inofuentes-Likins","doi":"10.1080/15398285.2022.2067715","DOIUrl":"https://doi.org/10.1080/15398285.2022.2067715","url":null,"abstract":"Abstract Nurses, as educators of hospitalized patients and their families, can play a major role in helping consumers discover and use quality online health information. Nurses access online content to build their own knowledge base, to share resources with patients and their families during the hospital stay, and to refer them to resources they might want to read on their own. Richer understanding of nurses’ experiences using the Internet to educate patients can help librarians develop and promote more effective materials. In this qualitative study, a librarian interviewed ten nurses about their experiences providing patient education. Three themes emerged: teaching as a constant process, teaching as personal and individual, and teaching as social.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45003157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2056370
Roghayeh Ghazavi, Hadi Zarei, Zahra Teimouri Jervekani, Mohammad Reza Soleymani
Abstract Background Patients with serious diseases need to have further access to reliable information regarding how to take care of themselves against COVID-19. Objective This study endeavored to elucidate COVID-19 information needs and information-seeking behaviors of cardiovascular patients hospitalized in the hospitals of Isfahan, Iran. Methods This qualitative study was conducted using content analysis in 2020. The population was 17 cardiovascular patients referred to the Shahid Chamran Hospital of Isfahan, who were selected using the purposive sampling method. Data were collected using semi-structured interviews and analyzed through continuous thematic analysis. Results The findings showed four categories and ten sub-categories as follows: information needs (general information regarding COVID-19, prevention methods, and treatment methods), information resources (reliable information resources and unreliable information resources), information validation (using formal and informal resources), and information-seeking barriers (media-related, political, economical, and COVID-19-related barriers). Conclusion Cardiovascular patients are in serious need of awareness-raising concerning COVID-19 to take care of themselves. This study’s results could help health education policy-makers of Iran pinpoint the information needs of high-risk patients and provide these patients access to reliable information while preventing damages due to misinformation regarding the COVID-19 pandemic.
{"title":"COVID-19 Information Needs and Information-Seeking Behavior of Cardiovascular Patients: A Qualitative Study","authors":"Roghayeh Ghazavi, Hadi Zarei, Zahra Teimouri Jervekani, Mohammad Reza Soleymani","doi":"10.1080/15398285.2022.2056370","DOIUrl":"https://doi.org/10.1080/15398285.2022.2056370","url":null,"abstract":"Abstract Background Patients with serious diseases need to have further access to reliable information regarding how to take care of themselves against COVID-19. Objective This study endeavored to elucidate COVID-19 information needs and information-seeking behaviors of cardiovascular patients hospitalized in the hospitals of Isfahan, Iran. Methods This qualitative study was conducted using content analysis in 2020. The population was 17 cardiovascular patients referred to the Shahid Chamran Hospital of Isfahan, who were selected using the purposive sampling method. Data were collected using semi-structured interviews and analyzed through continuous thematic analysis. Results The findings showed four categories and ten sub-categories as follows: information needs (general information regarding COVID-19, prevention methods, and treatment methods), information resources (reliable information resources and unreliable information resources), information validation (using formal and informal resources), and information-seeking barriers (media-related, political, economical, and COVID-19-related barriers). Conclusion Cardiovascular patients are in serious need of awareness-raising concerning COVID-19 to take care of themselves. This study’s results could help health education policy-makers of Iran pinpoint the information needs of high-risk patients and provide these patients access to reliable information while preventing damages due to misinformation regarding the COVID-19 pandemic.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48768073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2045669
S. Arslan, Y. Korkmaz, S. Buyuk
Abstract The aim of this study was to investigate the quality and reliability of the information about orthodontics on TikTok by analyzing the related videos using DISCERN tool and Global Quality Scale. Five orthodontic-related “hashtags” were searched, and a total of 250 video posts were reviewed. Non-English and inappropriate content/quality posts were excluded from the study. The videos were evaluated by using Quality Criteria for Consumer Health Information (DISCERN) toolkit and Global Quality Scale (GQS). Most of the posts were posted by dental professionals (68 posts; 55%), followed by dental clinics (23 posts; 19%), layperson (18 posts; 15%), and technician/dental laboratories (13 posts; 11%). The mean DISCERN score (section 1 + section 2) for 122 posts was 38.7/75. The mean overall quality of the 122 posts (section 3) in the DISCERN toolkit was 3.15/5. The average GQS score of 122 posts was 3.18 ± 0.93. The DISCERN and GQS scores did not have significant differences among the groups (p > 0.05). The DISCERN and GQS results of evaluated TikTok video posts were moderate quality. DISCERN and GQS scores did not differ significantly between the groups. Orthodontists should warn their patients about the reliability of information on social media platforms and should guide them to the right resources.
{"title":"Can TikTok Provide Reliable Information about Orthodontics for Patients?","authors":"S. Arslan, Y. Korkmaz, S. Buyuk","doi":"10.1080/15398285.2022.2045669","DOIUrl":"https://doi.org/10.1080/15398285.2022.2045669","url":null,"abstract":"Abstract The aim of this study was to investigate the quality and reliability of the information about orthodontics on TikTok by analyzing the related videos using DISCERN tool and Global Quality Scale. Five orthodontic-related “hashtags” were searched, and a total of 250 video posts were reviewed. Non-English and inappropriate content/quality posts were excluded from the study. The videos were evaluated by using Quality Criteria for Consumer Health Information (DISCERN) toolkit and Global Quality Scale (GQS). Most of the posts were posted by dental professionals (68 posts; 55%), followed by dental clinics (23 posts; 19%), layperson (18 posts; 15%), and technician/dental laboratories (13 posts; 11%). The mean DISCERN score (section 1 + section 2) for 122 posts was 38.7/75. The mean overall quality of the 122 posts (section 3) in the DISCERN toolkit was 3.15/5. The average GQS score of 122 posts was 3.18 ± 0.93. The DISCERN and GQS scores did not have significant differences among the groups (p > 0.05). The DISCERN and GQS results of evaluated TikTok video posts were moderate quality. DISCERN and GQS scores did not differ significantly between the groups. Orthodontists should warn their patients about the reliability of information on social media platforms and should guide them to the right resources.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44533425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2067716
Bethany Figg
Abstract The Centers for Disease Control and Prevention provides a web page called “Travelers’ Health” to assist individuals with preparing for expectations regarding health while traveling. While a heavy emphasis is placed on the COVID-19 aspect of travel (including vaccine and testing requirements), this web page also focuses on health and travel information for a wide variety of diseases, destinations, and modes of travel. An interactive map provides users with a visual guide to high-risk areas, and a listing of health information is provided for countries all over the world. Utilizing the Travelers’ Health web page can encourage travelers to be prepared on how to stay healthy while away from home.
{"title":"Travelers’ Health","authors":"Bethany Figg","doi":"10.1080/15398285.2022.2067716","DOIUrl":"https://doi.org/10.1080/15398285.2022.2067716","url":null,"abstract":"Abstract The Centers for Disease Control and Prevention provides a web page called “Travelers’ Health” to assist individuals with preparing for expectations regarding health while traveling. While a heavy emphasis is placed on the COVID-19 aspect of travel (including vaccine and testing requirements), this web page also focuses on health and travel information for a wide variety of diseases, destinations, and modes of travel. An interactive map provides users with a visual guide to high-risk areas, and a listing of health information is provided for countries all over the world. Utilizing the Travelers’ Health web page can encourage travelers to be prepared on how to stay healthy while away from home.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46277488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2078083
Kat Phillips
Abstract Mental health is a pinnacle aspect of one’s overall well-being, both emotionally and physically. This column takes a look at mental health resources for the general or adult population and the youth population, and also identifies several reliable podcasts addressing mental health from a variety of perspectives. This brief annotated bibliography of resources is meant to serve as a starting point, not as an all-inclusive list of information. Its purpose is to aid in de-stigmatizing conversations about mental health and wellness, direct folks to some of the safe spaces to have these conversations, and provide starting points for those seeking advice or answers.
{"title":"Mental Health and You: A Brief Annotated Bibliography","authors":"Kat Phillips","doi":"10.1080/15398285.2022.2078083","DOIUrl":"https://doi.org/10.1080/15398285.2022.2078083","url":null,"abstract":"Abstract Mental health is a pinnacle aspect of one’s overall well-being, both emotionally and physically. This column takes a look at mental health resources for the general or adult population and the youth population, and also identifies several reliable podcasts addressing mental health from a variety of perspectives. This brief annotated bibliography of resources is meant to serve as a starting point, not as an all-inclusive list of information. Its purpose is to aid in de-stigmatizing conversations about mental health and wellness, direct folks to some of the safe spaces to have these conversations, and provide starting points for those seeking advice or answers.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47641506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-03DOI: 10.1080/15398285.2022.2068914
B. Jivanelli
David B. Goldstein is the John E. Borne Professor of Genetics and Development and director of the Institute for Genomic Medicine at Columbia University Medical Center. In his new book, The End of Genetics: Designing Humanity’s DNA, Goldstein emphasizes the need for more extensive understanding of the underlying sciences of genetics by the general public. Parents will soon be able to decide on the genetic makeup of their children in both large and small ways. These decisions will lead to a new kind of genetics and Goldstein’s goal is to empower non-scientists to be a part of these changes. The book is divided into 5 chapters The Future of Reproduction; Learning to Read the Human Genome; The Nature of Human Genetic Variation; DNA and Human Disease; and Writing the Genomes of Our Children – concluding with notes, a bibliography and index. Goldstein includes a brief history of genetics, thought experiments for the reader, and examples of genome mutations in real individuals. Goldstein is cognizant of his reader – reassuring them as begins a more complex topic that he will be returning to easier to understand information. While he takes the time to define these complex topics and words, the reader does need to have some awareness of scientific language. He also recognizes that some readers may be more familiar with genetics and offers alternative reading suggestions. While much of what is discussed in the book can be considered eugenics, Goldstein is sensitive to the negative connotation and makes the decision to refer to it as reproducted genome design. He points out when he is sharing his personal opinion versus facts – which are well detailed in his notes and bibliography. Genetics research has moved faster than expected and there are gaps in knowledge that make it difficult for scientists to anticipate the consequences of our actions. By empowering non-scientists to understand the underlying science, Goldstein hopes to lead parents to make informed decisions that will impact the future of our species. Goldstein has done a good job making a complicated and potentially overwhelming topic accessible to a broader audience. This book is recommended for all libraries with public health collections.
David B.Goldstein是John E.Borne遗传学与发展教授，也是哥伦比亚大学医学中心基因组医学研究所所长。戈尔茨坦在他的新书《遗传学的终结：设计人类的DNA》中强调，公众需要更广泛地了解遗传学的基本科学。父母很快就能从大的和小的方面决定孩子的基因构成。这些决定将导致一种新的遗传学，戈尔茨坦的目标是让非科学家参与这些变化。本书分为五章：《复制的未来》；学习阅读人类基因组；人类基因变异的本质；DNA与人类疾病；以及撰写《我们孩子的基因组》——以笔记、参考书目和索引结尾。戈尔茨坦包括遗传学简史、读者的思想实验以及真实个体基因组突变的例子。戈尔茨坦意识到了他的读者——在一个更复杂的话题开始时，他会回到更容易理解的信息中，这让他们放心。虽然他花时间来定义这些复杂的主题和单词，但读者确实需要对科学语言有一些认识。他还认识到，一些读者可能更熟悉遗传学，并提出了其他阅读建议。虽然书中讨论的大部分内容都可以被认为是优生学，但戈尔茨坦对负面含义很敏感，并决定将其称为复制基因组设计。当他分享自己的个人观点与事实时，他会指出——这些观点在他的笔记和参考书目中都有很好的详细说明。遗传学研究的进展比预期的要快，而且存在知识差距，这使得科学家很难预测我们行为的后果。戈尔茨坦希望通过让非科学家了解潜在的科学，带领父母做出明智的决定，影响我们物种的未来。戈尔茨坦做得很好，让一个复杂的、潜在的、压倒性的话题能够被更广泛的观众所接受。这本书推荐给所有有公共卫生收藏的图书馆。
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